Tests

[Guest guest]

In a message dated 5/17/99 4:01:33 PM Central Daylight Time,

mimianne@... writes:

<< has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the way to

being tested for lyme disease? if you have been tested, were you negative?

positive? were you positive or negative for LD? >>

I actually just tested positive on a new blood culture test for rheumatoid

arthritis. This same test also looks for MS and Lyme and is from GenSys

Labs. My doctor says he will use the same treatment as for the Lyme as this

is a bacterial infection that denotes this particular RA.

[Guest guest]

Hi ,

I have never tested positive for anything other than Lyme, and no longer

test positive for that. I give no credence to any of the lab work I have

had. I just know I got very sick after removing a tick from my scalp.

I wish you the best with the LLMD and the RA appointments, keep us posted

on how you are doing,

Best to you, Marta

-

>From: mimianne@...

>

>has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the way to

>being tested for lyme disease? if you have been tested, were you negative?

>positive? were you positive or negative for LD?

>

>i test positive for all 3. it has been a real problem for my drs. they

just

>want to pick one and say, i have that ... so far they pick RA. my last dr.

>finally picked sjogrens and LD so have made appointm. w/RA and LLMD .. I

HOPE!

>

[Guest guest]

I not only was tested numerous times (all negative) but the doctor was

willing to diagnose me with sero-negative R.A. but not sero-negative

Lyme. The next ten doctors I went to said I didn't have R.A. but they

didn't know what was wrong. Now, I've tested positive for Babesia and

Tulerimia but not Lyme. I was treated for several years for RA to no

avail. The doctor took X-Rays and said all the high powered meds must be

working since my joints weren't crippled. They still aren't and I'm not

on those awful drugs anymore but I still can barely walk.

On Mon, 17 May 1999 17:01:28 -0400 mimianne@... writes:

>From: mimianne@...

>

>has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the

>way to

>being tested for lyme disease? if you have been tested, were you

>negative?

>positive? were you positive or negative for LD?

>

>i test positive for all 3. it has been a real problem for my drs.

>they just

>want to pick one and say, i have that ... so far they pick RA. my

>last dr.

>finally picked sjogrens and LD so have made appointm. w/RA and LLMD ..

>I HOPE!

>MimiAnne's Specialty Coffee

> (540) 980-6464

> 93 W. Main Street

> Pulaski, VA 24301

>

>

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[Guest guest]

wow. you sound like a friend of mine. she has NEVER received a diagnosis

for anything but has classic RA symptoms. she is in really bad shape due to

steriods. she is still on prednisone, only thing that allows her to

function. what are Babesia and Tulerimia. are they autoimmune diseases?

i can't walk if i don't take ibupropen 800mg x 3. i tried celebrex, did not

help. my fingers are like vienna sausages even w/the med. i think i must

have permanent joint damage in wrists, hands, and shoulders. my shoulder

crack and fingers are bumpy looking. I HATE THIS #$%@^ *^ & ^$%.

>From: " J. Swilley " <ljswilley@...>

>

>I not only was tested numerous times (all negative) but the doctor was

>willing to diagnose me with sero-negative R.A. but not sero-negative

>Lyme. The next ten doctors I went to said I didn't have R.A. but they

>didn't know what was wrong. Now, I've tested positive for Babesia and

>Tulerimia but not Lyme. I was treated for several years for RA to no

>avail. The doctor took X-Rays and said all the high powered meds must be

>working since my joints weren't crippled. They still aren't and I'm not

>on those awful drugs anymore but I still can barely walk.

>

>

>

>

>On Mon, 17 May 1999 17:01:28 -0400 mimianne@... writes:

>>From: mimianne@...

>>

>>has anyone been tested for rheumatoid arthritis/sjogrens/etc. on the

>>way to

>>being tested for lyme disease? if you have been tested, were you

>>negative?

>>positive? were you positive or negative for LD?

>>

>>i test positive for all 3. it has been a real problem for my drs.

>>they just

>>want to pick one and say, i have that ... so far they pick RA. my

>>last dr.

>>finally picked sjogrens and LD so have made appointm. w/RA and LLMD ..

>>I HOPE!

>>MimiAnne's Specialty Coffee

>> (540) 980-6464

>> 93 W. Main Street

>> Pulaski, VA 24301

>>

>>

>>------------------------------------------------------------------------

>>ONElist: where real people with real interests get connected.

>>

>>Join a new list today!

>>------------------------------------------------------------------------

>>Please send privately messages unrelated to lyme.

>>/archives.cgi/

>>/archives.cgi/Lyme-Docs

>>Email: -subscribeonelist

>>You may substitute " unsubscribe " , " digest " , or " normal " for

>>the word " subscribe " ( " normal " is the opposite of " digest " )

>>

>

>___________________________________________________________________

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>

>

MimiAnne's Specialty Coffee

(540) 980-6464

93 W. Main Street

Pulaski, VA 24301

[Guest guest]

Hi ,

Babesia and Tuleremia are other tick-borne diseases, there are even more

other than Lyme, Ehrlichiosis, and Rocky Mountain Fever too. Many of us are

now finding out that we were/are coinfected with other diseases, mostly

Babesia and Ehrlichiosis. Some even think that is why Lyme is chronic in

some people. It is hard to believe that a tick can carry and infect us with

more than one disease at a time, but it is happening.

Best to you,

Marta

-

>From: mimianne@...

>

>wow. you sound like a friend of mine. she has NEVER received a diagnosis

>for anything but has classic RA symptoms. she is in really bad shape due

to

>steriods. she is still on prednisone, only thing that allows her to

>function. what are Babesia and Tulerimia. are they autoimmune diseases?

>

[Guest guest]

--- FIG4159@... wrote:

> From: FIG4159@...

>

> Although I really like and have confidence in my

> LLMd, I think she

> over-tests. I don't have insurance, so it's all out

> of pocket. I have an

> appointment Friday and I just can't afford for her

> to run $500 worth of

> (non-Lyme) blood work AGAIN. I understand there are

> certain tests that

> absolutely NEED to be done (ie: liver enzymes), but

> I don't know what they

> are. Can someone help? What tests do most LLMd's

> do monthly? Thanks!

> in SW Florida

> -

My LLD does a CBCwith Differential, a SMAC or whatever they are calling

it these days. (SMAC,SMA,CHEM 20)I have heard them all. Also does the

liver profile.

He does this once a month during IV therapy and when I was on the

Amoxicillin/Probenecid he checked those levels at one week and then

like once a month after that.

L (MI)

> ---------------------------

[Guest guest]

In a message dated 10/5/00 8:20:08 PM Central Daylight Time,

chestnutt@... writes:

<< there is a book out called eating for your blood type >>

I am type O - supposedly a red meat fiend, but I am actually a vegan. I

never liked meat, even as a child. I love tofu, tempeh, beans, nuts and

other sources of protein, though.

Tracey

[Guest guest]

i am also an o- vegan. funny

raen

>From: TFreyre@...

>Reply-candidiasisegroups

>candidiasisegroups

>Subject: Re: tests

>Date: Thu, 5 Oct 2000 22:43:39 EDT

>

>In a message dated 10/5/00 8:20:08 PM Central Daylight Time,

>chestnutt@... writes:

>

><< there is a book out called eating for your blood type >>

>I am type O - supposedly a red meat fiend, but I am actually a vegan. I

>never liked meat, even as a child. I love tofu, tempeh, beans, nuts and

>other sources of protein, though.

>

> Tracey

>

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[Guest guest]

Dale..its a test specific for PBC.

Jerry

Hello my name is Dale Barnett, I may have PBC?

One test I had was Pyruvate Dehydrogenase IgG ABB,it was 122

Does anyone know what this test means?

Dale Barnett

[Guest guest]

Dale ....I`m sorry for the other note being so short but I really don`t

know what the numbers mean. Pyruvate dehydrogenase is an enzyme produced

and used as a catalyst in metabolization. It has been found to be an

antigen specific to AMAs in people who have PBC as opposed to other

liver diseases and as such is used in diagnoses. That`s about all I know

and I`m not real sure about that, perhaps some PBCers know.

Jerry

[Guest guest]

Dear Joe,

There are many ways to test for cancer. Different cancers often require

different tests. When you go to the doctor and have certain complaints, he

may order bloodwork , x-rays or special tests like cat scans, colonoscopys,

ultrasounds or MRIs. The bloodwork may also indicate a need for more

specialized bloodwork. These types of tests are often looking for antigens

for specific cancers. Theseall need to be ordered by an M.D. or a D.O.. I

hope I answered your question enough.

Sincerely,

Lexi

[Guest guest]

Joe,

The Antimalignin Antibody in Serum (AMAS) test is non-invasive with a high level

of accuracy. The test can be ordered from Onocolab Inc. 1 800 9CA TEST or

617-536-0850. In Britan 01- 486 -0923.

Rand

" ph T. " <joe039@...> wrote: Could someone who has the knowledge on

the various

tests that are used to find cancer, tell us what they

are and what the normal limits are and what they are

looking for etc. I see people refer to a certain test

but I have no ideal what it is. I am sure it would

help more than just me.

Joe

__________________________________________________

[Guest guest]

In a message dated 2/1/02 12:08:11 PM Mountain Standard Time, suzynakauchi@... writes:

Recently his counsellor suggested that start Prozac again, since the symptoms started after he stopped.

Dumbass doctor!!! No, he shouldn't START prozac again. See if there is a test to measure dopamine. From what I understand, these tremors, twitches, etc. come from the disruption in dopamine caused by excess serotonin. Check Ann 's book for a more medical explanation.

[Guest guest]

In a message dated 2/1/02 2:50:26 PM Mountain Standard Time, stinky72001@... writes:

I'm in california so will probably end up in a california prison - don't know what is gonna happen. I think I have a couple more free years before they (irs) start harrassing me. of course I could always just disappear.

File bankruptcy and get rid of your debt. You can do this is the assessed amount is 3 years old.

[Guest guest]

SHEESH! Suzy - I can tell that you and both know better than to

listen to that counsellor! Prozac is what started this tragedy in the

first place. How could that counsellor even suggest that?

you know, I was wondering. Has talked to you about what it is

like to actually be in prison? how do they treat him? are the other

inmates mean and nasty? are the guards terrible? just wondering

because I may end up in prison (irs related)and just trying to find

out what the reality is. I'm in california so will probably end up in

a california prison - don't know what is gonna happen. I think I have

a couple more free years before they (irs) start harrassing me. of

course I could always just disappear.

I have also heard that the drinking water in many prisons is causing

health problems. it's the fluoride in the water. doubt that they

have anything like filtered water or bottled water for the inmates.

thanks,

/stinky

> In a message dated 2/1/02 12:08:11 PM Mountain Standard Time,

> suzynakauchi@h... writes:

>

>

> > Recently

> > his counsellor suggested that start Prozac again, since the

symptoms

> > started after he stopped.

> >

> > Dumbass doctor!!! No, he shouldn't START prozac again. See if

there is a

> > test to measure dopamine. From what I understand, these tremors,

twitches,

> > etc. come from the disruption in dopamine caused by excess

serotonin.

> >

[Guest guest]

Thank you for the lead.

Suzy

>From: glitterari@...

>Reply-SSRI medications

>SSRI medications

>Subject: Re: Tests

>Date: Fri, 1 Feb 2002 16:19:49 EST

>

>In a message dated 2/1/02 12:08:11 PM Mountain Standard Time,

>suzynakauchi@... writes:

>

>

> > Recently

> > his counsellor suggested that start Prozac again, since the

>symptoms

> > started after he stopped.

> >

> > Dumbass doctor!!! No, he shouldn't START prozac again. See if there is

>a

> > test to measure dopamine. From what I understand, these tremors,

>twitches,

> > etc. come from the disruption in dopamine caused by excess serotonin.

> >

>

>

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[Guest guest]

I do know that I have read that different antibioitics are more effective

for some types of mycos and not as effective for others.

At 05:16 AM 2/18/2002 +0000, you wrote:

>There seems to be some controversy regarding whether or not all the

>mycoplasma tests are needed, since the treatment is the same. I need some

>input if these are really necessary, because I know most labs don't have

>sensitive enough equipment, and imm. in California wants 1300.00 for the

>complete panel of tests, which my insurance co. would not pay for. I have

>heard you should have these specific tests, but what if its not possible?

>Do they treat all the mycoplasmas with antibiotics? I " m just trying to

>figure out what tests I really must have.Thanks for any info. if anyone

>knows about this. -Diane

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Testosterone free and total

Estradiol / Estrogen

Cholesterol

PSA if you have not had one recently (as a baseline)

Bone Density if you have not had one (again as a baseline)

You should obviously be on your treatment a few weeks before

returning for more tests. I would go at least quarterly thereafter.

Regards,

K4

> I will be going back to the doctor soon.

> What test should I ask for as far as my T levels are concerned.

> Also when should I go.

>

> I'm taking 100mg every 5 days

>

> Also what is aggressive dosing ?

>

> I'm 6'7 " 290 lift weights and play softball alot. Also ride a

> mountain bike 3-4 times a week. my body fat is 26%.

>

> I'm 37 I also don't want to feel like I'm juicing.

>

> Thanks

[Guest guest]

Lynne;

The primary test is the candida-antibody assay. It is a blood test.

tests

HI Everyone!

Big question: I am going to my FOURTH " specialist " this Friday and this time I

am going armed with as much info as possible so he can't give me the " it's all

in your head " wrap. I want TESTS and I mean besides the culture that half the

time shows yeast and half the time doesn't.

So, I need opinions in which tests to insist upon. Keep in ming he is an M.D.

(gyn) specializing in infectious disease.

I'm also thinking that I may have vulvadynia also. I don't know if he knows

anything about that but I'm not leaving his office with nothing again.

Thanks.

Lynne

_____________________________________________________________

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[Guest guest]

Now, is that the one that gives the IgG that I keep reading about?

Lynne

>The primary test is the candida-antibody assay. It is a blood test.

> tests

>

>

> HI Everyone!

>

> Big question: I am going to my FOURTH " specialist " this Friday and this time

I am going armed with as much info as possible so he can't give me the " it's all

in your head " wrap. I want TESTS and I mean besides the culture that half the

time shows yeast and half the time doesn't.

>

> So, I need opinions in which tests to insist upon. Keep in ming he is an M.D.

(gyn) specializing in infectious disease.

>

> I'm also thinking that I may have vulvadynia also. I don't know if he knows

anything about that but I'm not leaving his office with nothing again.

>

> Thanks.

>

> Lynne

>

> _____________________________________________________________

> Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

>

>

[Guest guest]

LYNNE,

YOU NEED TO TELL THEM TO DO A IGA BLOOD

TEXT. GO TO HEALTH.COM

BUG

tests

HI Everyone!

Big question: I am going to my FOURTH " specialist " this Friday and this time I

am going armed with as much info as possible so he can't give me the " it's all

in your head " wrap. I want TESTS and I mean besides the culture that half the

time shows yeast and half the time doesn't.

So, I need opinions in which tests to insist upon. Keep in ming he is an M.D.

(gyn) specializing in infectious disease.

I'm also thinking that I may have vulvadynia also. I don't know if he knows

anything about that but I'm not leaving his office with nothing again.

Thanks.

Lynne

_____________________________________________________________

Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

[Guest guest]

yes it is the IgG TEST

tests

>

>

> HI Everyone!

>

> Big question: I am going to my FOURTH " specialist " this Friday and this

time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

>

> So, I need opinions in which tests to insist upon. Keep in ming he is an

M.D. (gyn) specializing in infectious disease.

>

> I'm also thinking that I may have vulvadynia also. I don't know if he knows

anything about that but I'm not leaving his office with nothing again.

>

> Thanks.

>

> Lynne

>

> _____________________________________________________________

> Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

>

>

[Guest guest]

YES LYNN IT IS IgG TEST. LOOK ON HEALTH.COM

BUG

tests

HI Everyone!

Big question: I am going to my FOURTH " specialist " this Friday and this time

I am going armed with as much info as possible so he can't give me the " it's all

in your head " wrap. I want TESTS and I mean besides the culture that half the

time shows yeast and half the time doesn't.

So, I need opinions in which tests to insist upon. Keep in ming he is an

M.D. (gyn) specializing in infectious disease.

I'm also thinking that I may have vulvadynia also. I don't know if he knows

anything about that but I'm not leaving his office with nothing again.

Thanks.

Lynne

_____________________________________________________________

Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

[Guest guest]

Thanks, I will.

Lynne

>

>

>

>

> Now, is that the one that gives the IgG that I keep reading about?

>

> Lynne

>

>

>

>

> >The primary test is the candida-antibody assay. It is a blood test.

> > tests

> >

> >

> > HI Everyone!

> >

> > Big question: I am going to my FOURTH " specialist " this Friday and this

time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

> >

> > So, I need opinions in which tests to insist upon. Keep in ming he is an

M.D. (gyn) specializing in infectious disease.

> >

> > I'm also thinking that I may have vulvadynia also. I don't know if he

knows anything about that but I'm not leaving his office with nothing again.

> >

> > Thanks.

> >

> > Lynne

> >

> > _____________________________________________________________

> > Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

> >

> >

[Guest guest]

No, that would be through the food allergy test.

tests

>

>

> HI Everyone!

>

> Big question: I am going to my FOURTH " specialist " this Friday and this

time I am going armed with as much info as possible so he can't give me the

" it's all in your head " wrap. I want TESTS and I mean besides the culture that

half the time shows yeast and half the time doesn't.

>

> So, I need opinions in which tests to insist upon. Keep in ming he is an

M.D. (gyn) specializing in infectious disease.

>

> I'm also thinking that I may have vulvadynia also. I don't know if he knows

anything about that but I'm not leaving his office with nothing again.

>

> Thanks.

>

> Lynne

>

> _____________________________________________________________

> Check out Stonyfield Farm at Stonyfield.com to get E-Coupons for our yummy

yogurt and " Moosletters " focusing on organic info, recipes, nutritionist advice,

profiles of folks who are making a difference and ways you can make a difference

too! Visit them at http://www.planet-save.com/stonyfield.htm

>

>