Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Chonette: I think you have it right as to being treated with Fludarabine as it doesn't seem to work. But when I had RF in 05, my Doc had not done the tests to know about the 53 deletion. I had what I think was amazing results to the RF. I was 300K plus at the beginning and I think by the second treatment I was in the normal range. But those results were short lived. Within less than a year my counts were rising again. That is probably due to the p53 deletion. But on the bright side, That treatment ended 3 years ago and I could be a year or even more away from needing additional treatment. Chonette, I am really pulling for you to get through these next few months. You and are two of my heroes. Two speciasl guys like you will make it through this little blip of time. I'll be praying. Dave > > I have not gone deep into this so I do not really know but I thought if you have p53 you are not treated with fluradabine, in fact the protocol I am following HDMP and Campath was designed for people with p53. > regards > Chonette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 Dave, Thanks for this, no one has ever said that to me in public, it got my spirits up, but I make sure it does not get up my head. regards Chonette "Chonette, I am really pulling for you to get through these next few months. You and are two of my heroes. Two speciasl guys like you will make it through this little blip of time. I'll be praying.Dave" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Vitamin D can help prevent a lot of issues. Normally you would take it daily not every week. Along with tablet or capsules, cod liver oil is a good source plus will help the heart. 2 weeks is not long enough to go off testosterone to let your HPTA system kick back in. You need 6-8 weeks and then LH and FSH testing. Testosterone injections do spike your levels but most doctors still prescribe to the old shots every 2-3 weeks. They prescribe huge shots that spike your levels and then they drop below where you started after 2-3 weeks. Smaller shots at least every week keep your levels up without too drastic of a swing. An E2 check would be helpful. ________________________________ From: ph Noonan <jgnoonan@...> Sent: Friday, January 16, 2009 2:28:37 PM Subject: Tests So in April I went to my PCP for my annual physical and complained of exhaustion. He ordered yearly blood work and added Total Testosterone to the tests, which came back at 170. He started me on Androgel and when the minimum dose didn't work, he switched me to testim. All the while, I kept asking why this was happening. I am a 47 yo and the problems actually started a year earlier but I'm kind of slow about going to the dr. I was 170lbs when the problem started and am now 208lbs. I asked him to do an MRI for a pituitary tumor, and he grudgingly agreed but did not order it with the contrast, which of course makes it totally useless. I finally contacted and endocronologist through my medical plan and went to see her on Christmas Eve. I had developed a rash from the testim so she stopped that and had me wait 2 weeks and then go for a LOT of blood work. She did a full lipid and metabolic panel. She did full testosterone, LH, FSH, the whole 9 yards. She also did a Vitamin D and a CBC. In any case, I got the results yesterday. I don't have all the exact results but basically my T is very low and I was also very low on Vitamin D (12 and minimum sb 50). My cholesterol and triglycerides were the usual mess and for the forth time in a row, my glucose was over the top of the range at 105. She started me on vitamin D once a week and 8 pumps a day of androgel, which is like taking a bath in the stuff. She says she uses shots as a last resort because you get a spike of T and then a rapid drop off. The nurse called me with the results (only the negative ones) so I don't know what the exact readings are. The one thing they did NOT check was estrogen levels, which I am going to ask about. Without being too graphic, there is a certain body part that seems to be shrinking and doesn't seem to want to do anything any more. It's usual automatic night time and early morning activity disappeared about a year ago and has not returned. I guess my question is about the Vitamin D deficiency. Could this be causing the problem. I really like to know why things happen so I keep pressing the doctors for answers and so far, no luck. jgn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2009 Report Share Posted January 17, 2009 On Fri, 16 Jan 2009 15:28:37 -0500, you wrote: >Without being too >graphic, there is a certain body part that seems to be shrinking and >doesn't seem to want to do anything any more. It's usual automatic >night time and early morning activity disappeared about a year ago and >has not returned. I guess my question is about the Vitamin D >deficiency. Could this be causing the problem. I really like to know >why things happen so I keep pressing the doctors for answers and so far, >no luck. > >jgn That's far less to do with D vitamins and much more to do with low T and high E2. The huge weight gain you've had suggests some E2 fat and bloating effects. I've been dealing with TRT 6 years now and find whenever I have ED issues it's always E2 and responds well to arimidex. With both low T and low D you should probably have a bone density test. Low T leads to bone loss and low D will speed that also. Good TRT will help some on your lipid profile too. Sugar and fast carbs are the main culprits in triglyceride problems. If you go to whole grains and limit sugar you'll find they'll come down very fast (with some weight loss too.) I cut mine more than 50% in just a few weeks of watching sugar. ANd lost about 15 pounds too. As mentioned you can lessen the spike from shots some by lowering dose and increasing frequency. I really urge an E2 test. Anything above 40 should be aggressively controlled, as it will lead to ED issues and rob you of the energy, focus and clarity of the TRT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 > > >Without being too > >graphic, there is a certain body part that seems to be shrinking and > >doesn't seem to want to do anything any more. It's usual automatic > >night time and early morning activity disappeared about a year ago and > >has not returned. I guess my question is about the Vitamin D > >deficiency. Could this be causing the problem. I really like to know > >why things happen so I keep pressing the doctors for answers and so far, > >no luck. > > > >jgn > > > That's far less to do with D vitamins and much more to do with low T > and high E2. The huge weight gain you've had suggests some E2 fat and > bloating effects. > > I've been dealing with TRT 6 years now and find whenever I have ED > issues it's always E2 and responds well to arimidex. > > With both low T and low D you should probably have a bone density > test. Low T leads to bone loss and low D will speed that also. > > Good TRT will help some on your lipid profile too. Sugar and fast > carbs are the main culprits in triglyceride problems. If you go to > whole grains and limit sugar you'll find they'll come down very fast > (with some weight loss too.) I cut mine more than 50% in just a few > weeks of watching sugar. ANd lost about 15 pounds too. > > As mentioned you can lessen the spike from shots some by lowering dose > and increasing frequency. > > I really urge an E2 test. Anything above 40 should be aggressively > controlled, as it will lead to ED issues and rob you of the energy, > focus and clarity of the TRT. > Thanks for the info. I am on the McDougall diet plan for 3 years which is a very low fat vegan diet. I do not add suger to anything so the weight gain totally took me by surprise. I was running three times a week and lifting and was in great shape and then all of a sudden I started having energy problems. I haven't gone to the gym in months because I am just too tired. I have had a long history of cholesterol/triglyceride problems that are genetic. I was was on lipitor for a long time but have been off it since going on McDougall. I will ask my dr. to order an E2 test when I go back in Feb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 Thanks ...Bill Law Jr comes across as yet another ignoramus, probably got his snout in a trough somewhere. Trish > > Why Thyroid Lab Tests Are Not Accurate > > http://www.youtube.com/watch?v=eSwgUndHcqU & feature=sub > > Then look at: > http://www.quackwatch.org/11Ind/hotze.html > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 The CT scan is for my abdomen, I am seeing a different doctor about my ankle it is looking a little better but still purple in some spots yellow in other and swelling. It has been over ten days now so I am concerned. The colonoscopy is just a precaution my father died of colon cancer at age 50.~annamarie"Life isn't about how to survive the storm, but how to dance in the rain" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 You are killing me with the farts lmao~annamarie"Life isn't about how to survive the storm, but how to dance in the rain" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 How is the Real Time urine lab test? Does Direct lab. offer the same any cheaper? I can't get a person on the phone. I'm considering. Thanks, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 The only lab that does the test is RealTime. They are moving to a new facility and will be in by September 15. The lab is dropping its prices. If you have problems reaching someone at the lab, let me know. [] Tests How is the Real Time urine lab test? Does Direct lab. offer the same any cheaper? I can't get a person on the phone. I'm considering. Thanks, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 I'd interested in have these tests done as well. --- In , " Jack Thrasher, Ph.D. " <toxicologist1@...> wrote: > > The only lab that does the test is RealTime. They are moving to a new facility and will be in by September 15. The lab is dropping its prices. If you have problems reaching someone at the lab, let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 Below is the web site of RealTime Labs http://www.realtimelab.com/ Jack-Dwayne: Thrasher, Ph.D. Toxicologist/Immunotoxicologist/Fetaltoxicologist www.drthrasher.org toxicologist1@... Off: 916-745-4703 Cell: 575-937-1150 L. Crawley, M.ED., LADC Trauma Specialist sandracrawley@... 916-745-4703 - Off 775-309-3994 - Cell This message and any attachments forwarded with it is to be considered privileged and confidential. The forwarding or redistribution of this message (and any attachments) without my prior written consent is strictly prohibited and may violate privacy laws. Once the intended purpose of this message has been served, please destroy the original message contents. If you have received this message in error, please reply immediately to advise the sender of the miscommunication and then delete the message and any copies you have printed. Thank you in advance for your compliance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2010 Report Share Posted September 23, 2010 This is absolutely wonderful Audrey and what a very helpful GP you have. I have found that doctors appear to be much more helpful if they have a patient who is quite knowledgeable and asks for the right tests for the right reasons. Long may this continue, and I hope to have more and more reports from you that you are regaining your full health, and that one day, you will no longer need the services of TPA. Again, don't rush things. I did have notification from Genova that they had received your saliva test, so hope the results help you to understand what has caused your problems so far. Luv - Sheila Dear Sheila Well, I seem to be hitting it off with my new lady GP as I rang her this morning, thanked her for prescribing cortisone and that it has helped but that I am going to see Dr M in three weeks and need some bloods done. She was most kind and has arranged for Ferritin, B12, D3, Mag, Folate, Copper & Zinc and I should have these before I go to London. I have sent off the Genova DHEA/Adrenal saliva test and also I am now using the progesterone cream. Thanks once again for all your help and it is a better day again today, not brillient but better. Love Audrey No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.445 / Virus Database: 271.1.1/3146 - Release Date: 09/22/10 18:40:00 Quote Link to comment Share on other sites More sharing options...
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