Re: neuropathy

[Guest guest]

Have you tried foot massage?    That helps but hard to go often enough to get

any good done.  Even manicure pedicure can help with the pedicure as they do

massage the feet.  Have to be sure the water is not too hot though if you have

lack of feeling in feet as can burn them.  My husband doesn't like creams and

stuff on his hands so I get little help from him.  Maybe Alan can get more from

you. Even the plastic gloves could help.   Could have pinched nerves from the

groin or hip area too.  Massage may help to relax the muscles.  Chiropractic may

work some too.  I know I'd had chiropractic work suggested, but I think a

massage would help more right now.  My massage therapist moved to another spa

though and it is a bit more distance.  I liked her as she was very familiar with

diabetes and her mother was diabetic.  She was careful with my feel and often

did lymphatic massage as well as spot work on shoulders which is another place

I'm really

tight.   Wish I could afford one a week.

 

Carolyn Wilkerson

 

To: sproutpeople

Sent: Friday, June 8, 2012 10:09 AM

Subject: Re: A new Sprout Story

 

Dona:

The only treatment for nerve pain (pain meds I mean) that works (in some people,

not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried

them, became deathly ill and will never go in that direction again. He has tried

all the creams, some compounds (you might try them, have your doctor write a

prescription for neuropathy compound creams, by looking this up on google),

bring the prescription to a compound pharmacist and they'll make it up for you

and you can spread it where you feel the burning.

Also, if you have burning, try spraying a menthol spray on the skin. That seems

to help Alan. CVS has one that is 16% menthol.

Now one thing you must never try is the new Qtenza treatment that a friend of

mine volunteered for. It was initially made for Shingles but it's devastating.

It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some

ridiculous amount). He went into the hospital to volunteer for this. They spread

lidocain first on the legs. They gave him tylenol for the pain (THE TREATMENT

ITSELF almost did him in). Felt like 3rd degree burns, because it BURNS the

nerves in the skin.

they then spread the cream on his legs. He got up, almost punched the doctor and

ran to the drugstore to get some opiate.

The burning on his legs from that treatment almost did him in.

The doctors are finding out that in some people (even though the treatment

almost kills them), it will help with neuropathy for about 3 months. We were

discussing this at the meeting last month. He says if he had known what it

entailed, he would never have done it.

It works for shingles, but then again, the treatment itself is horrendous.

But what others have gotten relief for their neuropathy pain is the spinal cord

stimulators (from Medtronic and other companies). Jerry had this done

YEARS AGO because of his back pain.

See...it also helps with neuropathy pain.

Look into this also. You need a pain management specialist for this.

If you want to discuss this privately just email me at eliz7212@...

anytime. Glad to share what I know. (or actually the little I DO know about

peripheral neuropathy).

Melody

>

> Melody -

>

> I have a similar situation (for the past 15 years), similar to neuropathy

since there is burning in my entire leg. I have some other sensations that keep

my feet from feeling normal, but not the loss of sensation that your husband and

some diabetics have. I may get to that point.

>

> Like him, my doctors have been unable to pinpoint a specific nerve or nerves

causing the problem, so are mostly unable to help me. This was originally

brought on by moving some furniture on my own. It has been a great frustration

that doctors can help people with clearly far more damage than I have, but can

do mostly nothing for me. I have also tried some of the typical drugs like

Neurontin with no response.

>

> Please let me know if you learn about anything new from your meetings. My

doctor is pretty conservative, so he may not tell me quickly about alternatives

that exist. Fortunately, I'm at a point where I can sometimes get away with just

telling myself to " suck it up, " but I don't have the complications that Alan

has. I commend his attitude.

>

> Dona

> 

[Guest guest]

Carolyn:

I have this FABULOUS Homedics Massager (with Heat) that I got from a garage sale

two weeks ago (we've had others but they burn out).Anyway, every day Alan lays

down and I go up and down his back concentrating on his lower back near the

butt. He says " all his neuropathy goes away " . This is heard on my hands because

I have arthritis and the vibrations do a number on my wrists but I wrap the

handle in a towel and it's okay.

Can't massage his feet because I tried that and the pain between his toes got

worse. Peripheral Neuropathy is a very hard to understand condition. He has had

it for 20 years. Seen NUMEROUS specialists who scratch their heads.

The best was years ago when I told a neurologist that Methyl B-12 was good for

Diabetic neuropathy and the guy said he never heard of this. And then soon after

the same doctor appeared at our monthly Neuropathy Support Group Meetings (top

Neurologist from a big NY Medical Center) and during his presentation he have a

short presentation on the benefits of B-12 therapy for neuropathy and that THEY

WERE JUST BEGINNING TO LEARN ABOUT THIS.

I just looked at him. He looked at me and winked.

Yeah, right!!

lol Melody

[Guest guest]

 He may have studied up on the B12 after you said that.  Sometimes they do

learn that way. I was tellng someone about hip surgery using a method where they

havethis special table and they operate from the front because of what this

table can do (hanna table I think) and they don't go through the back where they

have to cut a muscle.  So recovery is faster and not as big a sugery and no cut

muscles so much better.  His doctor never heard of it and checked into it when

he mentioned it and said, it would be a better surgery for him.  Then he had

some kind of heart problem and had to wait.  But he was ging to go where they

were experienced. I even offered to have hi come here for the surgery and

whatever therapy he had to do afterwards.  He rents a house I have there,

little bunglalow and he is a nice guy and a good tenant.   he really trusts

his doctor but idon't think he is what he should be.  But have to have someone

you like.  He was reading

up on things when he was told though.  many doctors are still doing the old

surgery but few will be doing t in a few years as recovery is much faster. 

They have them up and walking the same day.  Takes less therapy afterwards,

etc. 

Sounds like the back nerves are helped by the massage.  You hve a hand eld

massage thing.  I used t have one tha was in a special chair but lost all that

in our moving too.  it didn't help a whole lot anyway.  A real massage

therapist does so much better. 

With reflexology, it is mainly applying pressure on the pressure points and

nerves in the feet.  It is not in the toes where they massage at all but in

the  heel and the middle of the foot and in the ball.  They know where the

pressure points are.  They say that different parts control parts of the

body.  I don't know about that but I do know that the pressure and massage

relieves the feet and it is like walking and exercising and relieves the feet. 

I just need a therapist who stays in one place and who doesn't charge me an arm

and a leg.  I have a stiff neck and sure need some massaging in that area

too.  It has been too long since i've been so I should make an appointment

about once a week for a couple of weeks.  That would help.  My whole back is

tight.  A good jacuzzi would help with hot tub.  I had one in Ohio but then

moved to be closer to family and to get away from a terrible secretary  That is

another story.  Could find a massage

school as they charge about $25-35 for an h our massage.  That is half the

cost.  They would know where to massage and it might help.  Some places  you

could both go and they would help you know how to do it.  I went to a place

once where they would teach couples to massage one another. mY HUBBY didn't like

to get grease and stuff on  his hands so that was out and he doesnt' want his

back messed with.  Would lkely help him though.  Sure would help me.  If

anything ever happened to him, I won't marry unless I find me a massage

therapist.  LOL. 

Carolyn Wilkerson

 

To: sproutpeople

Sent: Saturday, June 9, 2012 8:52 AM

Subject: Re: neuropathy

 

Carolyn:

I have this FABULOUS Homedics Massager (with Heat) that I got from a garage sale

two weeks ago (we've had others but they burn out).Anyway, every day Alan lays

down and I go up and down his back concentrating on his lower back near the

butt. He says " all his neuropathy goes away " . This is heard on my hands because

I have arthritis and the vibrations do a number on my wrists but I wrap the

handle in a towel and it's okay.

Can't massage his feet because I tried that and the pain between his toes got

worse. Peripheral Neuropathy is a very hard to understand condition. He has had

it for 20 years. Seen NUMEROUS specialists who scratch their heads.

The best was years ago when I told a neurologist that Methyl B-12 was good for

Diabetic neuropathy and the guy said he never heard of this. And then soon after

the same doctor appeared at our monthly Neuropathy Support Group Meetings (top

Neurologist from a big NY Medical Center) and during his presentation he have a

short presentation on the benefits of B-12 therapy for neuropathy and that THEY

WERE JUST BEGINNING TO LEARN ABOUT THIS.

I just looked at him. He looked at me and winked.

Yeah, right!!

lol Melody