Re: heres a good reason why not to use the term CFS.

[Guest guest]

wow. that is quite a spin doc. it doesn't name the name of the study.

doesn't name who did or where it is published. doesn't name where this

" clinic in Britian " is located. BUT made the NYTimes???

In a message dated 2/18/2011 5:29:50 P.M. Pacific Standard Time,

jeaninem660@... writes:

Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds

_http://www.nytimes.com/2011/02/18/health/research/18fatigue.html_

(http://www.nytimes.com/2011/02/18/health/research/18fatigue.html)

[Guest guest]

(Several of the study's authors reported financial ties to the insurance

industry.)

The new study, conducted at clinics in Britain and financed by that country's

government, is expected to lend ammunition to those who think the disease is

primarily psychological or related to stress.

PRETTY WEIRD!

>

> wow. that is quite a spin doc. it doesn't name the name of the study.

> doesn't name who did or where it is published. doesn't name where this

> " clinic in Britian " is located. BUT made the NYTimes???

>

>

> In a message dated 2/18/2011 5:29:50 P.M. Pacific Standard Time,

> jeaninem660@... writes:

>

>

>

>

> Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds

>

> _http://www.nytimes.com/2011/02/18/health/research/18fatigue.html_

> (http://www.nytimes.com/2011/02/18/health/research/18fatigue.html)

>

>

>

>

>

>

[Guest guest]

" Several of the study's authors reported financial ties to the insurance

industry. "

Where was that statement? Did I miss it?

In a message dated 2/18/2011 9:42:39 P.M. Pacific Standard Time,

jeaninem660@... writes:

Several of the study's authors reported financial ties to the insurance

industry.)

The new study, conducted at clinics in Britain and financed by that

country's government, is expected to lend ammunition to those who think the

disease is primarily psychological or related to stress.

PRETTY WEIRD!

>

> wow. that is quite a spin doc. it doesn't name the name of the study.

> doesn't name who did or where it is published. doesn't name where this

> " clinic in Britian " is located. BUT made the NYTimes???

>

>

> In a message dated 2/18/2011 5:29:50 P.M. Pacific Standard Time,

> jeaninem660@... writes:

>

[Guest guest]

Chronic inflammatory responses caused by exposure to microbial contaminants

known to be present in water damaged buildings.

The reason for the illness and its symptoms are right in the name.

CIRS-WDB.

The games they are playing with CFS, FM, etc, are old games they have been

playing for at least 25 years. They do this to stave off liability by

selling doubt for chemical environments causing illness. No one really

believes them anymore EXCEPT the doctors who want to believe - so they can stay

part of the good ole boys club who aid the insurance industry; and some poor

soul physicians who just don't realize how corrupt the medical field can

really be when setting policy based on the financial interests of some being

given disgusting precedence over the lives and safety of others.

Sharon

In a message dated 2/19/2011 9:19:09 A.M. Pacific Standard Time,

jeaninem660@... writes:

to me this article is just outright obsurb. a obvious slap in the face to

all CFS sufferer's. theres no doubt that theres many different causes and

levels of suffering when it comes to CFS.

I dont fell like I have CFS in the true sence of the word, I'm not in a

whellchair, for me, most of my tiredness results probably from not getting

deep refreshing sleep.

I was diagnosed as border line CFS by a questionare which I think is

pretty useless as it in no way deturmines why or what is the cause of being

tired. I am just getting to the point where I hate these terms and the

controversy surrounding them and as one of those repliers stated, the name

itself,

CFS just lends to what ignorant people preceive and as another one stated,

people will mock and lecture from a position of absolute ignorance.

thats why I think we would be better off leaving these terms, CFS, MCS,

and FM, out of our volcabulary. we need a name for our disease and

discription of symptoms and damages without useing these terms.

we sure are not going to get people to take WDB exposures seriously when

we use these terms that are surrounded by misconseptions and

ignorance.

[Guest guest]

yep, it's there, also I noticed to the top left there is replies to a first

article from january.

> >

> > wow. that is quite a spin doc. it doesn't name the name of the study.

> > doesn't name who did or where it is published. doesn't name where this

> > " clinic in Britian " is located. BUT made the NYTimes???

>

[Guest guest]

the replies are very interesting to read.

to me this article is just outright obsurb. a obvious slap in the face to all

CFS sufferer's. theres no doubt that theres many different causes and levels of

suffering when it comes to CFS.

I dont fell like I have CFS in the true sence of the word, I'm not in a

whellchair, for me, most of my tiredness results probably from not getting deep

refreshing sleep.

I was diagnosed as border line CFS by a questionare which I think is pretty

useless as it in no way deturmines why or what is the cause of being tired. I am

just getting to the point where I hate these terms and the controversy

surrounding them and as one of those repliers stated, the name itself, CFS just

lends to what ignorant people preceive and as another one stated,

people will mock and lecture from a position of absolute ignorance.

thats why I think we would be better off leaving these terms, CFS, MCS, and FM,

out of our volcabulary. we need a name for our disease and discription of

symptoms and damages without useing these terms.

we sure are not going to get people to take WDB exposures seriously when we use

these terms that are surrounded by misconseptions and

ignorance.

>

> " Several of the study's authors reported financial ties to the insurance

> industry. "

>

> Where was that statement? Did I miss it?

> >

> In a message dated 2/18/2011 9:42:39 P.M. Pacific Standard Time,

> jeaninem660@... writes:

>

> Several of the study's authors reported financial ties to the insurance

> industry.)

> The new study, conducted at clinics in Britain and financed by that

> country's government, is expected to lend ammunition to those who think the

> disease is primarily psychological or related to stress.

>

> PRETTY WEIRD!

[Guest guest]

all this talk on initials. Whats important is to help each other!!

In a message dated 2/19/2011 7:10:09 P.M. Eastern Standard Time,

dragonflymcs@... writes:

true and they are trying to get away from the term CFS too. Changing it to

ME.

______________________________

From: osisposis <_jeaninem660@..._

(mailto:jeaninem660@...) >

_ _ (mailto: )

Sent: Sat, February 19, 2011 3:08:04 PM

Subject: [] Re: heres a good reason why not to use the term

CFS.

yes, I agree, TE and CIRS-WDB. even a chemical sensitivity reaction is a

inflammatory reaction. we dont need these other diseases to explain what

we are

dealing with, all the symptoms of those diseases are symptoms of TE and

CIRS-WDB. so therefor we just dont need those diagnoses or tittles

involved with

our illness.

[Guest guest]

yes, I agree, TE and CIRS-WDB. even a chemical sensitivity reaction is a

inflammatory reaction. we dont need these other diseases to explain what we are

dealing with, all the symptoms of those diseases are symptoms of TE and

CIRS-WDB. so therefor we just dont need those diagnoses or tittles involved with

our illness.

>

> Chronic inflammatory responses caused by exposure to microbial contaminants

> known to be present in water damaged buildings.

[Guest guest]

true and they are trying to get away from the term CFS too. Changing it to ME.

______________________________

From: osisposis <jeaninem660@...>

Sent: Sat, February 19, 2011 3:08:04 PM

Subject: [] Re: heres a good reason why not to use the term CFS.

yes, I agree, TE and CIRS-WDB. even a chemical sensitivity reaction is a

inflammatory reaction. we dont need these other diseases to explain what we are

dealing with, all the symptoms of those diseases are symptoms of TE and

CIRS-WDB. so therefor we just dont need those diagnoses or tittles involved with

our illness.

[Guest guest]

I am laughing, what a joke....

they tried that on a patient in UK i believe it was, she died. Upon autopsy

they learned her spinal region was severely affected. That was NOT funny.

God Bless !!

dragonflymcs

Mayleen

________________________________

From: osisposis <jeaninem660@...>

Sent: Fri, February 18, 2011 1:07:56 PM

Subject: [] heres a good reason why not to use the term CFS.

Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds

http://www.nytimes.com/2011/02/18/health/research/18fatigue.html

[Guest guest]

Imagine that they did not need any sources,

God Bless !!

dragonflymcs

Mayleen

________________________________

From: " snk1955@... " <snk1955@...>

Sent: Fri, February 18, 2011 9:19:23 PM

Subject: Re: [] heres a good reason why not to use the term CFS.

wow. that is quite a spin doc. it doesn't name the name of the study.

doesn't name who did or where it is published. doesn't name where this

" clinic in Britian " is located. BUT made the NYTimes???

In a message dated 2/18/2011 5:29:50 P.M. Pacific Standard Time,

jeaninem660@... writes:

Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds

_http://www.nytimes.com/2011/02/18/health/research/18fatigue.html_

(http://www.nytimes.com/2011/02/18/health/research/18fatigue.html)

[Guest guest]

I had a long talk with my sick son's doctor, about some of the stuff in

Shoemaker's new book, how the WDB exposure or other biotoxin exposure

sets off this long list of dysregulations in the body and over

activation of the innate immune system....His doctor says that testing

positive on many of the SHoemaker labs tells you that you've got

inflammation and an activated immune system, problem is that this may or

may not be caused by mold/WDB, it could also be lyme, or ?????? So,

CIRS isn't always WDB.... And sometimes the innate immune system may be

over activated just cause person was born that way, no big trigger...

The doctor is saying little is likely to help him other than immune

modulating things like ALF, LDA, or stem cells, but first he wants to

try EVERYTHING else, as the immune modulating therapies, especially stem

cells are so new that no one really knows the long-term effects....

The Whittemore Institute is now finding a very close

correlation between CFS and the new human retrovirus XMRV....and the

blood banks are paying attention, they are now refusing blood from

anyone with CFS, so it now being acknowledged as " real " . Now is XMRV

the cause of CFS or even one of the causes? No one knows yet.... But

XMRV is a retrovirus, if you have it you have it " for life " , it

integrates itself into your DNA.... and many healthy family members also

test XMRV positive but aren't sick, so it must take more than just the

retrovirus to make one sick... anyway, CFS is now being acknowledged as

real in some medical circles, blood bank screening tests for it are now

in development, now the tests are too slow, by the time they had results

the blood would no longer be fresh.

Has anyone else here w/CIRS-WDB done the XMRV tests and are others

testing positive?

thanks, Sue V.

[Guest guest]

Sue,

Thanks for your clear and succinct post. There are many different

illnesses and conditions which can be related to each other, they

may or may not have similar causes, and research is beginning to

separate some of them. Especially important to remember is

Shoemaker's studies are on BIOTOXINS, not just mold.

Carl Grimes

Healthy Habitats LLC

-----

I had a long talk with my sick son's doctor, about some of the stuff in

Shoemaker's new book, how the WDB exposure or other biotoxin

exposure

sets off this long list of dysregulations in the body and over

activation of the innate immune system....His doctor says that testing

positive on many of the SHoemaker labs tells you that you've got

inflammation and an activated immune system, problem is that this may

or

may not be caused by mold/WDB, it could also be lyme, or ?????? So,

CIRS isn't always WDB.... And sometimes the innate immune system

may be

over activated just cause person was born that way, no big trigger...

The doctor is saying little is likely to help him other than immune

modulating things like ALF, LDA, or stem cells, but first he wants to

try EVERYTHING else, as the immune modulating therapies, especially

stem

cells are so new that no one really knows the long-term effects....

The Whittemore Institute is now finding a very close

correlation between CFS and the new human retrovirus XMRV....and the

blood banks are paying attention, they are now refusing blood from

anyone with CFS, so it now being acknowledged as " real " . Now is XMRV

the cause of CFS or even one of the causes? No one knows yet.... But

XMRV is a retrovirus, if you have it you have it " for life " , it

integrates itself into your DNA.... and many healthy family members also

test XMRV positive but aren't sick, so it must take more than just the

retrovirus to make one sick... anyway, CFS is now being acknowledged as

real in some medical circles, blood bank screening tests for it are now

in development, now the tests are too slow, by the time they had results

the blood would no longer be fresh.

Has anyone else here w/CIRS-WDB done the XMRV tests and are others

testing positive?

thanks, Sue V.

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[Guest guest]

Sue, they have came out sence saying that the MXRV testing was contaminated by

rat urine. well see if I can find that for you.

>

> I had a long talk with my sick son's doctor, about some of the stuff in

> Shoemaker's new book, how the WDB exposure or other biotoxin exposure

> sets off this long list of dysregulations in the body and over

> activation of the innate immune system....His doctor says

[Guest guest]

I think they are looking at CFS in the wrong way.

it seems to me that they really need to do more sleep studies and take a closer

look at brain functions.

and look in the bedroom for the cause. how many people sleep with purfume and/or

colone on, their hair is scented from shampoo, their beding is highly scented

from laudry detergent and dryer sheets, they have scented candles, plug ins,

ect. thats a lot of crap to be breathing all night while your sleeping.

thats a chronic nightly exposure to chemicals. thats got to affect sleeping

stages,the sensory system and the brain. so sleep disturbance affects the brain

and brain disturbance afects the sleeping stages, after awhile these

could cause a permenant brain disfunction and sleep disorders.

out of the symptoms that go along with CFS, fibro may be the one most noticeably

reconized. this all ties in together. maybe some think they get CFS after a

viral infection but maybe the viral infection on top of what they are sleeping

with everynight is what pushes them over the edge. and most of them are

breathing alot of things during the day thats not really giveing their body a

much needed break.

to me it seems that there are forces out there that just really dont want the

world to start reconizeing that we all are being very slowly

but surely chemically poisoned.

why else would these diseases be becoming so prevelant.

sick bedrooms, sick buildings,sick world, and it's only going to become sicker.

really, when the healthyest food for you, fish, becomes something that you

better be not eat to much of and they live in water, thats a hudge problem. how

many can say they actually fell completely secure drinking water right from the

tap? I'm not talking about SBS people.

the way I see it, we are in a world of s### here, we dont even have time to

discuss it, things need to change, for the last 60 years we have had our head up

our butts worrying about entertanment and leasure activitys, who's got the best

and what the stars are doing, when we should have been paying closer attn. to

what the chemical industries were doing to us and our country that they are

getting rich from while basicly paying no consequences for mass produceing

chemicals that are used in everything we consume,breath,eat,bath with, ect. all

these illnesses have something in common, environmental exposure. and here we

are, most environment doctors supposedly dont even have a clue.

you do alot of medical research and believe me, some things start standing out

like a sore thumb, one of the bestest things that erks me is that cause and

effects are very often ass backward,

why, well maybe mostly because environment exposures dont get the credit they

deserve. why is it that the brain is mostly just looked at when theres been a

impact injury to the head, and why is it that closed head injury doesn't get as

much attn. as it should, and everything conserning brain function has to be

either from getting hit upside the head or you need to see a shrink. why at this

day and age with all the environmental exposures out there that we live with

every day is so little reconized about the nasal to brain effects

from breathing this crap. you know, we can all be called crazy, but I fell like

it's the rest of the world thats gone mad.

I dont see a bright future for my grandchildren at all and that is hard to take.

>

> Sue,

>

> Thanks for your clear and succinct post. There are many different

> illnesses and conditions which can be related to each other, they

> may or may not have similar causes, and research is beginning to

> separate some of them. Especially important to remember is

> Shoemaker's studies are on BIOTOXINS, not just mold.

>

> Carl Grimes

> Healthy Habitats LLC

>

[Guest guest]

They should also tests at blood banks and other places for mycotoxins, invasive

fungus, since many with transplants are also contracting invasive fungus after

transplants

________________________________

From: sue <svican@...>

Sent: Sun, February 20, 2011 12:39:59 AM

Subject: [] Re: heres a good reason why not to use the term CFS.

I had a long talk with my sick son's doctor, about some of the stuff in

Shoemaker's new book, how the WDB exposure or other biotoxin exposure

sets off this long list of dysregulations in the body and over

activation of the innate immune system....His doctor says that testing

positive on many of the SHoemaker labs tells you that you've got

inflammation and an activated immune system, problem is that this may or

may not be caused by mold/WDB, it could also be lyme, or ?????? So,

CIRS isn't always WDB.... And sometimes the innate immune system may be

over activated just