Re: Introduction

[Guest guest]

> is also on the GFCF diet, I see a change in her bowles, but she seems very

> hungry all the time. I got the school to provide the diet for lunch.

I don't know if this is applicable, but when I was going GF I ended up

feeling hungry all the time because I wasn't really getting enough carbs

-- I was loading on protein and fats and low-carb veggies, because that's

what I could eat, but up until that time most of the carbs I had were

breads and pasta and such. Once I figured this out and started eating more

rice and potatoes I felt a lot better. There are a bunch of other

non-gluten bearing grains out there, but they're generally hard to get

unless you go to a really upscale grocery store, go to a food coop (which

are wonderful things, I think) or get them via mail order. There was (four

years ago, when I lived there) a food coop in northern virginia --

arlington or alexandria, I think, that was pretty good.

Vinnie

[Guest guest]

Hi Rick,

Welcome to the list . I am new here as well. What part of VA are you in.

I am familiar with TAP_VA. My daughter is 10. Look forward to chatting.

[Guest guest]

We've only lived in La Mesa for about ten weeks...

before that we lived in Indiana. I wasn't at the

Autism 2000 conference, we are still in the process of

trying to get services established, etc... It's going

to be a long process, I think. I feel so guilty

complaining about this, but Asia is doing so well that

most people (even professionals if they didn't know

her back when things were really bad) do not realize

she's autistic. I am ever so grateful for this, at the

same time it's stressful because she still has some

behaviors that need to be addressed. Indiana had

nothing in the way of ABA, which is what we use. So I

had to act as lead and only ABA therapist, while her

outstanding slp helped me create the goals, etc... I

*know* some people in CA get ABA services, so I am

trying to figure out how on earth to get them for Asia

because with a 5 year old with adhd and a 12 week old

baby, I am beyond exhausted and could really use a

therapist or two to spot me. Ack, sorry didn't mran to

ramble! Back on track, I'd love to meet up with you

sometime!

Maggie

<<<I didn't know you were in La Mesa, Maggie! We're up

by Escondido! We go

in

to San Diego quite a bit. We should meet sometime. I

didn't even hear

about

the walk. I wish I had. I was just at the Autism 2000

Educating Parents

and

Professionals in Penasquitos last weekend. Were you

there by any

chance?

na>>>

__________________________________________________

[Guest guest]

Hi Rick,

and welcome. You certainly have accomplished allot and have wonderful

experience that I hope you will share with all of us.

sounds like a charming young lady and it sounds like you and her

have a good relationship.

I look forward to seeing your posts.

--

June

" Do little things with great love. " Mother

mailto:jn516@...

http://www.geocities.com/Wellesley/1204

http://www.geocities.com/heartland/meadows/6250

http://www.geocities.com/athens/forum/7306

[Guest guest]

not from macon area, but hoepfully when things have calmed down for

us ga families someone will give you a heads up for the macon area.

(most of us started school this past week and are hammering out

kinks, lol). hugs

> Hello!

>

> My name is Jane and I have a son 6yrs with autism and a

daughter

> 3 yrs NT. I currently reside in AZ, but am moving to the

Macon

> area in a few months. So am looking for some info. I have been on

the

> board of ASA in Phoenix and involved in fundraising for biomedical

> research. I am also working in the autism research dept at Arizona

> State University. We are currently replicating the Amy Holmes Baby

> Hair study. I will post my questions below and if anyone has any

> guidance it will be very much appreciated! Please feel free to e-

mail

> me privately.

>

> 1) Looking for an alternative doctor. We have been involved in many

> things already and I am looking to maintain at this point. is

> doing very well. We are chelating, supplementing, GFCFSFYFSFCF diet

> (!),and homeopathy among other things. So any recommendations in

this

> arena are welcome.

>

> 2) Does anyone have any coops going as in supplements or GFCF food?

>

> 3) What other food stores that are similar to Whole Foods are in

that

> area. I expect to have a hike. Have cooler, will travel for organic

> food!

>

> 4) How are the schools? We are just now mainstreaming 1/2 day in

> first grade, so will see how it goes.

>

> 5) Does the state offer services or is it through the schools? I

have

> lived in both situations in different states.

>

> Thanks in advance for any insight! And I look forward to talking

with

> you all!

>

> Jane

> Mama to 6 yrs (ASD) and 3 yrs (NT)

[Guest guest]

Join ASA_CentralGA

It's our local ASA chapter. I live about 20 mins south of Macon, however, several members of the group can give you information about the area. I hope you'll join our ASA chapter, I have a 3.7 yoa daughter with autism myself.

Karyn

Re: Introduction

not from macon area, but hoepfully when things have calmed down for us ga families someone will give you a heads up for the macon area. (most of us started school this past week and are hammering out kinks, lol). hugs > Hello!> > My name is Jane and I have a son 6yrs with autism and a daughter > 3 yrs NT. I currently reside in AZ, but am moving to the Macon > area in a few months. So am looking for some info. I have been on the > board of ASA in Phoenix and involved in fundraising for biomedical > research. I am also working in the autism research dept at Arizona > State University. We are currently replicating the Amy Holmes Baby > Hair study. I will post my questions below and if anyone has any > guidance it will be very much appreciated! Please feel free to e-mail > me privately.> > 1) Looking for an alternative doctor. We have been involved in many > things already and I am looking to maintain at this point. is > doing very well. We are chelating, supplementing, GFCFSFYFSFCF diet > (!),and homeopathy among other things. So any recommendations in this > arena are welcome.> > 2) Does anyone have any coops going as in supplements or GFCF food?> > 3) What other food stores that are similar to Whole Foods are in that > area. I expect to have a hike. Have cooler, will travel for organic > food!> > 4) How are the schools? We are just now mainstreaming 1/2 day in > first grade, so will see how it goes.> > 5) Does the state offer services or is it through the schools? I have > lived in both situations in different states.> > Thanks in advance for any insight! And I look forward to talking with > you all!> > Jane> Mama to 6 yrs (ASD) and 3 yrs (NT)

[Guest guest]

Sorry that was supposed to ASA-CentralGA

Karyn

Re: Introduction

not from macon area, but hoepfully when things have calmed down for us ga families someone will give you a heads up for the macon area. (most of us started school this past week and are hammering out kinks, lol). hugs > Hello!> > My name is Jane and I have a son 6yrs with autism and a daughter > 3 yrs NT. I currently reside in AZ, but am moving to the Macon > area in a few months. So am looking for some info. I have been on the > board of ASA in Phoenix and involved in fundraising for biomedical > research. I am also working in the autism research dept at Arizona > State University. We are currently replicating the Amy Holmes Baby > Hair study. I will post my questions below and if anyone has any > guidance it will be very much appreciated! Please feel free to e-mail > me privately.> > 1) Looking for an alternative doctor. We have been involved in many > things already and I am looking to maintain at this point. is > doing very well. We are chelating, supplementing, GFCFSFYFSFCF diet > (!),and homeopathy among other things. So any recommendations in this > arena are welcome.> > 2) Does anyone have any coops going as in supplements or GFCF food?> > 3) What other food stores that are similar to Whole Foods are in that > area. I expect to have a hike. Have cooler, will travel for organic > food!> > 4) How are the schools? We are just now mainstreaming 1/2 day in > first grade, so will see how it goes.> > 5) Does the state offer services or is it through the schools? I have > lived in both situations in different states.> > Thanks in advance for any insight! And I look forward to talking with > you all!> > Jane> Mama to 6 yrs (ASD) and 3 yrs (NT)

[Guest guest]

not from macon area, but hoepfully when things have calmed down for

us ga families someone will give you a heads up for the macon area.

(most of us started school this past week and are hammering out

kinks, lol). hugs

Thanks! We are starting this week, so I certainly understand!

Jane

Mama to 6 (ASD) and 3 (NT- with gut issues)

[Guest guest]

Join ASA_CentralGA

It's our local ASA chapter. I live about 20 mins south of Macon, however, several members of the group can give you information about the area. I hope you'll join our ASA chapter, I have a 3.7 yoa daughter with autism myself.

Thanks Karyn, I will check this out!

Jane

Mama to 6 (ASD) and 3 (NT- with gut issues)

[Guest guest]

Welcome Dori,

It's good to have you here.

These kids really are wonderful aren't they!

I look forward to talking to you,

Sally from PA

introduction

Hello all, My name is Dori Barton & we live in Kansas City, Missouri. We have 5 children but our 12 y/o daughter is the only one who has AS. Hers is immunization related. I would like to talk to other parents & share stories about these wonderful children who are as special as God could possibly make them. I would like to share stories & am willing to help others in things I have experienced & learned the hard way during our journey to where we are now. Thanks for the group

[Guest guest]

Welcome to the group Litha!!

MISSYSAHM to some special kids!!!

All kid's are gifted; some just open their packagesearlier than others.-- Carr

Introduction

Hello... my name is Litha. I have a 12 year old son that is Autistic. His official diagnosis is Autism with a Severe Level of Mental Retardation, Communication Disorder, PICA, and Seizure Disorder (he hasn't had a seizure in a while though).

If you would like to read more about him you can go to http://autism.lithasworld.com/

Thank you,

Litha

[Guest guest]

Hi Litha,

Thank you for telling me what PECS means. I think they tried that with Marty years ago, and he just threw the cards at them. haha. Yes, I think that is wonderful that your son can stay at the school. We didn't have anything like that for my son. I would have sent him if there had been one. It was hell for our family and it is a miracle he wasn't killed. I used to have to tie him up with a rope. I know it sounds bad, but he ran all over the place and had no idea what was dangerous and what wasn't. In fact I think he headed for the danger, like there was a magnet on him or something.

Yes, I know about fighting for services, did that for a long time too, about wore myself out. When my son was in school they had just started the disabilities act, so he was supposed to get a publically funded education. So the school district had to give him a program, and they tried their best at the time. Although it was pretty frustrating.

Now, we have a really good thing here in Oregon. They used to have what they called a "wait list" for services for these folks. Well there was a couple with a disabled daughter I think, who realized it was a scam, that there was no such thing, and there were never going to be any services for these people and their families, so they sued the state, and they won! Marty was a part of that class action suit. So starting next month we are going to get more funding than we ever have before to take care of Marty's needs at home. I am not going to believe it until I see it though! The people who sued the state were named Slaney I think, if anybody wants to look it up. Very interesting case.

You said you had two little ones, that is wonderful! I take care of my granddaughter who is 7 now, Sierra, and her brother who is 4 now, , and will soon have a new baby to care for, as my daughter has to go back to work some time in September. I love little kids, and have in home help with all of Marty's care, and he isn't crazy anymore or we couldn't do it.

I think that must have been a miracle.

It is fun talking to you, wow Indiana, that is a long ways from us in Oregon.

Carolyn

Introduction

Hello... my name is Litha. I have a 12 year old son that is Autistic. His official diagnosis is Autism with a Severe Level of Mental Retardation, Communication Disorder, PICA, and Seizure Disorder (he hasn't had a seizure in a while though).

If you would like to read more about him you can go to http://autism.lithasworld.com/

Thank you,

Litha

[Guest guest]

Welcome, Darla! No doubt the denial of membership was just an accident. On my

groups, I have accidentally hit the " decline " button when I meant to hit accept,

so that is likely all that happened. Anyway, you found us and glad you did!

May I suggest using either GSE (grapefruits seed extract) or hydrogen peroxide

to wash your fruits instead of bleach? I personally wouldn't want bleach

anywhere near my food. GSE is wonderful as a veggie wash or soak-baking soda

also makes a good " scrub " for harder things like pumpkins, melons, etc. Good

luck with your ventures!

>

> Darla, Welcome,

> Question for you. Could you use food grade hydrogen peroxide instead of

bleach? The amount of bleach that the produce would absorb and get into you

body, frightens me.

> Hopefully you can have your own garden.

> ew

>

> Introduction

>

> Hello,

> Thanks for letting me into the group! I was told initially that I was denied

entry so I'm glad someone changed their minds.

> I just moved to Dakar, Senegal. We'd been in Stuttgart, Germany for the past

3.5 years on an American military base. Now we are working at the American

embassy here. We've been here for 4 weeks now. We found the produce here to be

fabulous, for the time being, except that we have to soak it all in a bleach

solution before we eat it. I plan to have a square foot garden and an indoor

micro garden once we move into our permanent quarters. For now I have been

experimenting with the lentils available at the Lebanese grocery store. I have

been putting them in a red Solo cup and draining them in a colander. I am not

very good at remembering to rinse them often enough but I guess once I get into

the rhythm of things I'll do better. Oh, and we have to use water from the

distiller machine so It's not quite the same as running the tap water in the

sink. So there you have it. Once I get my supplies I have in my house hold good

and get going on this project I'll probably have lots of questions!

> Thanks,

> Darla

>

>

>

>

>

[Guest guest]

Food grade hydrogen peroxide?  I don't know.  I'm not sure where to get it or

what it's called.  One of the reasons we can't drink the water is because they

use so much bleach!  That's one of the main reasons I want to grow my own

gardens, so I don't have to eat/bleach their produce.  Another suggestion I've

had is to soak them in vinegar.  Or I could shop at the French market where

everything is imported from France, costs 200% more and looks half dead.

Darla

[Guest guest]

Oh how exciting to have someone from Senegal. You must tell us about the

produce. What veggies are you able to get? What sprouting seeds do you have (if

any I mean, lol).

Glad to have you aboard.

Melody

[Guest guest]

Darla:

What do the Senagalese eat (that they don't put bleach on?)

Melody

>

> Food grade hydrogen peroxide?  I don't know.  I'm not sure where to get it or

what it's called.  One of the reasons we can't drink the water is because they

use so much bleach!  That's one of the main reasons I want to grow my own

gardens, so I don't have to eat/bleach their produce.  Another suggestion I've

had is to soak them in vinegar.  Or I could shop at the French market where

everything is imported from France, costs 200% more and looks half dead.

> Darla

>

>