Re: worst meltdowns we've ever had any other thougths

[Guest guest]

Steph, my son is the same..He is acting so strange..its really distressing to watch him!! and your right he is like a wild animal.. Its like he is on speed !!

Kind Regards..

Parveen Waris

Subject: worst meltdowns we've ever had any other thougthsTo: Autism-Biomedical-Europe Date: Thursday, 25 December, 2008, 4:13 PM

SHould we just take him to casualty?he's like a wild animal - no idea what we'd say to them but this isn'tright.is there anything else anyone can think of?

[Guest guest]

Blimey Steph. Poor Tom. Its so so hard for the non verbal kids when

they can't tell you whats wrong and whats hurting.

I would go to casualty, yes because you just don't know. If everything

is checked and ok then I guess you know it could be the die

off/reaction from Liverlife.At least you would know one way or the

other. If you haven't gone yet you could phone in advance to let them

know what to expect which may help Tom and you when you get there. Good

luck and really hope he feels himself again soon.

Helen x

>

> SHould we just take him to casualty?

>

> he's like a wild animal - no idea what we'd say to them but this isn't

> right.

>

> is there anything else anyone can think of?

>

[Guest guest]

How are things this morning, Steph?

Margaret

>

> SHould we just take him to casualty?

>

> he's like a wild animal - no idea what we'd say to them but this isn't

> right.

>

> is there anything else anyone can think of?

>

[Guest guest]

Hi Steph,

thought a lot about your son,do hope hes feeling better.cant wait to hear good news.

Barbara

To: Autism-Biomedical-Europe From: m.collins9@...Date: Fri, 26 Dec 2008 09:27:01 +0000Subject: Re: worst meltdowns we've ever had any other thougths

How are things this morning, Steph?Margaret>> SHould we just take him to casualty?> > he's like a wild animal - no idea what we'd say to them but this isn't> right.> > is there anything else anyone can think of?> Inviti, foto e commenti per rendere unico il tuo party! Basta un clic!

[Guest guest]

thanks chaps, that was really scary and god knows, I've seen enough

meltdowns. We went to casualty and they were terrific. ruled out

appendicitis which is my worst fear and offered to keep him in for

observation. Junior doctor immediately thought it was overflow and

that we should do an enema either there or at home and come back.

They were actually very good - ruled out anything life threatening and

told us to come back if he didn't (with help) right himself in 12

hours or so. Which he hasn't exactly but he has had a good night's

sleep. Very glad we took him in. The doc spoke to Tom - like he a ten

year old. Conseuqently Tom responded like a ten year old, did

everything asked of him although weeing into a pulp dish was beyond him.

Doctor was scandalised that we didn't really have a proper diagnosis

about the bowel disorder - kept revisiting it. Sadly I was too tired

to do much of a spiel by this point but I did tell him it was rife.

anyhow, thanks for the help yesterday, I really appreciated it!!! and

hopefully we'll resolve things a bit better today. One thing occurs

is that at Christmas Tom spends a fair amount of time curled up on the

sofa whilst adoring adults bring him totally on diet food. But he's

losing that running about bit that helps keep things moving. So I'll

try and prise him off the sofa today and hope for the best.

He decorated a room late last night - not a colour I@d have chosen

frankly but we were so relieved that we barely noticed. Comes to

something when you're celebrating having to boil wash three beds

worth of duvets. :-)

> >

> > SHould we just take him to casualty?

> >

> > he's like a wild animal - no idea what we'd say to them but this isn't

> > right.

> >

> > is there anything else anyone can think of?

> >

>

[Guest guest]

Dear Steph,

I'm glad things have improved. I did wonder whether he was getting

enough exercise.

Henry is on the go a lot - indoor rebounder, trampoline outside,

swing - and I think this helps him. he still is constipated, though.

One thing that is helping is daily bisocodyl suppositories, as he is

retentive and dislikes pooing, but with the suppository every day he

nearly always produces a log afterwards, but of course he's still

backed up. Is Tom OK about pooing or is ithe problem inflammation?

Margaret

> > >

> > > SHould we just take him to casualty?

> > >

> > > he's like a wild animal - no idea what we'd say to them but

this isn't

> > > right.

> > >

> > > is there anything else anyone can think of?

> > >

> >

>

[Guest guest]

Oh Sweetheart, we have been thinking about you too. I am so glad you

went to the Hospital and that things are a bit better. The bedding

sounds a nightmare but if things werent moving then its probably a

fairly welcome sight!

I do hope he continues to pick up and I do think you are right the

lack of exercise is a big issue at this time of year. If you have a

trampoline then have a bounce today, if he can cope with that. If not

a good old tramp thru the fields (mmm not sure if theres many fields

in downtown where you are!!). If not take him to DFS to look at all

the sofas on sale (not sure you have DFS either!). Lots of hot baths

and gently massaging next to this ileo-caecal valve on his side might

be useful too.

If he could cope boiling up some dried fruits or plums, figs whatever

and drinking the juice is a good old laxative. If they have given you

movicol thats about the best really to move things along here, not my

favourite but we find that and oxypowder about as good as it gets. (I

seem to remember he doesnt do well on oxypowder??) Thats all my words

of wisdom used up!

Did they x-ray him? So glad you found a doc that was sympathetic. And

for you a huge glass of something highly alcoholic to be planned for

later.

Hugs from the Highlands

Caz

xx