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We've been busy as usual with doctor visits. The latest developments are that has a thyroid problem and he now wears hearing aids. I will find out about the thyroid treatments soon. The hearing aids are a challenge as they keep popping out of his ears, but we will be getting new inserts soon, so we will see how that goes. Blackwood Mom to 2, (DS) and , 7-mo. twins

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  • 1 month later...
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Hi,

Just checking in.. has been pretty healthy this winter,

he had a runny nose a few times but never got any worse. He

enjoys going to the Day service program through our local

organization that serves persons with disabilities. They do a lot

of things with . They also have really good staff right at the

moment. There has been some not so good in the past. The

Director of the organization is also our state representative in

KS so we do have a personal in with the legislature and someone

who listens to our concerns at the state level. He is a good guy.

Judy and Bob parents to 26yrs. old the joy of our lives who

happens to have ds and multiple disabilities and 33yrs.

-- Check In Day

Hi Everyone

Checking in...............

Gearing up for the annual reviews............I'm attending a two day seminar late june on "inclusion and successful practices" this comes after Tara's annual review in May, but thats OK, I'm sure I'll want to change her IEP when she starts 1st grade in Sept. anyway..................it's a working document!!

Gail,

Mom to Bobby 12, Jillian 9, & Tara(Ds) 7

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Hi,

I have 2 children; has DS and is typical. They will be

4 in July. is in a preschool disabled class 5 days a week for

2 1/2 hours a day, goes to a preschool 3 days a week. I'm

looking for a summer school for so she can continue learning.

had just finished a music class, she had loved it! She's

showing some interest in the potty but I'm sure it will be quite some

time before she's potty trained.

Okrem

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This is Deanna....mom to 5. Just been busy, busy, busy here. had been sick for a month and ended up on 2 L O2 then admitted to pulm for 5 days.....influenza A......after all of us had flu shot. Go figure.....our luck. Anyway, he came home on 2 L and I finally weaned him off after about a week. He is so much better now, but I am very hesitant to send him back to school yet.....since it could be where he got it......lots of boogies there. Besides that and doing a lot of fixing up at home....painting.....nothing going on. Hope everyone is doing well. Hello to all newbies and happy birthday to all the birthday kiddos.

Deanna mom to

Alyssa, 12 (ADHD)

, 10

Jarod, 5 1/2 (ODD/severe ADHD)

3 (DS and mult med problems)

~i~Jordan (DS) 1/20/03-2/2/03

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Good to hear from you Deanna; hang in there. Around here, the Boston area, it seems like March was the month from Hell---oops---but everyone seemed to be sooo sick..... is sick right now with a high fever. We're going back to the Dr.'s tomorrow. Fingers crossed.

Sherrill

mom to Jillian 8, and (D/s) 4

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  • 11 months later...
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,

What an awesome family! Good news all around. How wonderful to make Sara officially yours.

-- Check in Day

Hi, everyone. We are all doing well in upstate NY. and (almost 2 1/2 yrs.old DS) are both healthy and changing quickly. got braces for his lower legs a few months ago and he is growingstronger because of them. He is thrilled to be able to stand while holdingonto furniture. His feet have finally started to grow since he is bearingsome weight on them, and he can even bear weight on his feet w/o braces foralmost a full minute. HURRAY! We (and is doctors and therapists) have had some concerns because of hisextreme muscle weakness, but we have been very encouraged to see him slowlygaining some strength in his lower legs. Walking may be in his future afterall. Praise God!! is still trying to walk more than 5 or 6 steps at a time. Someweeks he is standing and trying to walk all the time, and some weeks wecan't even get him to stand while we are holding his hands. He's developingsome pretty strong temper tantrums, but I know that goes with the territorywhen they're old enough to want things their own way. LOL Usually he'scuddly and sweet. His OT wants to start doing "Astronaut Therapy" with him. Have any of yourkids used this program? She thinks it will help his balance enough so thathe will be able to stay on his feet.I have some great new to share...We are finally adopting our foster daughter Sara. We've had her in ourfamily since she was 3 weeks old, and her parents both signed judicialsurrenders recently. We are hoping to finalize her adoption before hersecond birthday this summer. God has certainly blessed us with all of these little ones.Our 14 year old daughter is always a great help with the little ones. Sheis home schooled, so she is a big part of the kids lives all day long...anda BIG help to Mommy!I hope all of you have a wonderful Easter.Blessings, D. in NY

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