Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Hey where in eastern NC? We live in Clayton (east of Raleigh). We are seeing a doctor in Hillsborough. He has been pretty cooperative. Let me know if this might help. Robin [ ] Testing For those of you following Andy's protocol, how do you get testing done? I emailed DD lab and they need a doc's permission. I do not have docs who cooperate. We live in Eastern NC. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Anne Hines, M.D. over in Winston-Salem is an excellent physician and the mother of a child with autism. We live in Goldsboro but have used her in the past (primary physician now is Jerry Kartzinel but he is in Florida). Anne is very well versed in chelation matters and has probably done most of the different lab tests and protocols with her son. Janet Presson, R.N., M.Ed. (mom to Robbie-11 years old with autism and president of A Small Miracle, Inc.) Robin Arnold wrote: > Hey where in eastern NC? We live in Clayton (east of Raleigh). We are > seeing a doctor in Hillsborough. He has been pretty cooperative. Let me > know if this might help. Robin > > [ ] Testing > > For those of you following Andy's protocol, how do you get testing done? I > emailed DD lab and they need a doc's permission. I do not have docs who > cooperate. We live in Eastern NC. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 Two that I sent today did not show up either. Got the same message you got. Don't even know if this one is going to go through and wondering why I'm even typing... LOL! W > My posts aren't showing up...got a notice that I'd violated some bcc > policy for a few of them, the rest just aren't showing up. Anyone > know what's wrong? > > Thanks, > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Sorry you are having problems. For once my posts seem to be working right. Angie testing My posts are not showing up! Ugg sometimes!DonnaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 It has been one of those days! Earlier it was telling me I wasn't subscribed to any groups! > My posts are not showing up! Ugg sometimes! > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Hi . I was on antibiotics about 6months when I was tested for mycos. It came back that I had been infected in the past. My doc almost did not treat me and I asked if I was already on the antibiotics and it has killed off some mycos it would say I had been treated but that with RA I probably still had more. Quite possibly 10 days would cause the same thing but others may have different ideas. This is just my opinion. Don't forget a simple test for mycoplasma will not be good. It has to be a special test and you can only get them in certain areas. The web site rheumatic.org has the places that offer the test. As for the doses. This is also on the web site and the reasons why. For now I will say 100 mgms 2x a day MWF is what we suggest. Some people are on lower doses because they have side effects and herxes(increase of symptoms)that are bad. Some are on higher doses. These were either put on it by their docs who do not believe in the pulsing dosing or they have just been dxed and are not having bad symptoms so sometimes a big dose right away can put a person in remission faster. This can also bacfire and you may become allergic, immune or get a massive herx that will not go away. You are very lucky to have a doc that will order the antibiotics and work with you. Also keep reading the posts here and you will becomevery AP knowledgeable. hugs for luck, cooky AP 9 yrs rheumatic Testing Hi, I am on the AP for 10 days now. I most likely have RA, based on the blood tests, and so far, I too have the swelling moving around my body from day to day. I am wondering about the dosage of mino and also testing. My dr says the tests can come back with false results, but he was willing to do them. Exactly what should I have him test me for? (besides mycoplasma)--Is he right that I could have a false negative, and how long do I need to be off the AP to get accurate results (I read Dr F in CA says 4 weeks!). Also, how do you know how much mino to take? I have no ill effects on 100mgs MWF, but I read that others are on higher doses. It is confusing. Can someone point me to the diet that has been mentioned? Is rice ok, or are all grains out? Thanks very much, To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Thanks Cooky, If I were to increase my dosage of minocin to 200mgs MWF, should I do it gradually or take the plunge? My Dr prescribes it but is not aware of the protocol. I think he's humoring me, expecting it to fail. I'm thinking about traveling to find a more experienced doc, but in the meantime, I'm on my own here. Thanks for the hugs :-) > > Hi . > > I was on antibiotics about 6months when I was tested for mycos. It came back > that I had been infected in the past. My doc almost did not treat me and I > asked if I was already on the antibiotics and it has killed off some mycos > it would say I had been treated but that with RA I probably still had more. > Quite possibly 10 days would cause the same thing but others may have > different ideas. This is just my opinion. > > Don't forget a simple test for mycoplasma will not be good. It has to be a > special test and you can only get them in certain areas. The web site > rheumatic.org has the places that offer the test. > > As for the doses. This is also on the web site and the reasons why. For now > I will say 100 mgms 2x a day MWF is what we suggest. Some people are on > lower doses because they have side effects and herxes(increase of > symptoms)that are bad. Some are on higher doses. These were either put on it > by their docs who do not believe in the pulsing dosing or they have just > been dxed and are not having bad symptoms so sometimes a big dose right away > can put a person in remission faster. This can also bacfire and you may > become allergic, immune or get a massive herx that will not go away. > > You are very lucky to have a doc that will order the antibiotics and work > with you. Also keep reading the posts here and you will becomevery AP > knowledgeable. > > hugs for luck, > > cooky > > AP 9 yrs > > > > > rheumatic Testing > > > Hi, > > I am on the AP for 10 days now. I most likely have RA, based on the > blood tests, and so far, I too have the swelling moving around my body > from day to day. I am wondering about the dosage of mino and also > testing. > > My dr says the tests can come back with false results, but he was > willing to do them. Exactly what should I have him test me for? > (besides mycoplasma)--Is he right that I could have a false negative, > and how long do I need to be off the AP to get accurate results (I > read Dr F in CA says 4 weeks!). > > Also, how do you know how much mino to take? I have no ill effects on > 100mgs MWF, but I read that others are on higher doses. It is > confusing. > > Can someone point me to the diet that has been mentioned? Is rice ok, > or are all grains out? > > Thanks very much, > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Increase VERY slowly!!!! Stop and go back down if it causes more symptoms. A regular GP could do it for you if he were willing you don't ned an AP doc. Rheumatologists just won't have anything to do with it. I was on my own and it worked out great. Lots of people on this list did it with a GP and now that doc treats with antibiotics for his RA patients. Bigger hug, cooky Thanks Cooky, If I were to increase my dosage of minocin to 200mgs MWF, should I do it gradually or take the plunge? My Dr prescribes it but is not aware of the protocol. I think he's humoring me, expecting it to fail. I'm thinking about traveling to find a more experienced doc, but in the meantime, I'm on my own here. Thanks for the hugs :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 , just recently sent the list of doctors in your area that prescribe antibiotics for rheumatic diseases. She also mentioned that if a dr does iv's it shows that he is likely familiar with AP. Bobbi Lutack, Evergreen Natural Health Clinic, 2008 WE 65th St., Seattle, WA 98103. P: 206-729-0907 Bove, ND, Lac oral & IV son, M.D. (IM) University Health Center 5312 Roosevelt Way NE Seattle, WA 98105 P: 206-525-8015 Ralph Golan, M.D. Preventive medicine Ravenna Medical Arts 7522 20th Ave. NE Seattle, WA 98115 P: 206-524-8966 Take care, Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Thanks Ute, I will call Dr. Bove's office for more info. Thanks for forwarding! My rheumy told me yesterday he wants me to start conventional drugs sometime soon. So I DO need to find someone else! > > , > just recently sent the list of doctors in your area that > prescribe antibiotics for rheumatic diseases. She also mentioned that if a > dr does iv's it shows that he is likely familiar with AP. > > Bobbi Lutack, > Evergreen Natural Health Clinic, > 2008 WE 65th St., > Seattle, WA 98103. > P: 206-729-0907 > > Bove, ND, Lac oral & IV > son, M.D. (IM) > University Health Center > 5312 Roosevelt Way NE > Seattle, WA 98105 > P: 206-525-8015 > > Ralph Golan, M.D. Preventive medicine > Ravenna Medical Arts > 7522 20th Ave. NE > Seattle, WA 98115 > P: 206-524-8966 > > Take care, > Ute > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Hi ! On 12/24/06, <lmanske@...> wrote: > > Hi, I made my first post 2 days ago and it isn't here, so I'm just > testing . . . > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Please let us know if you get these tests done, and how you come out.My concern is that the tests many no longer be offered. . . . Have you called them to confirm the tests are still being done?Based on the addresses, I think the tests are being done by qualified people - assuming they are still offered.Thanks for the information!Rogene testing someone from the other support group I joined sent me this list LABORATORY TESTS FOR IMPLANT-RELATED DISEASES Costs are listed in U.S. dollars. APA ASSAY This test is available for investigational use. Autoimmune Technologies is applying to the FDA for approval of the APA Assay ELISA test as a diagnostic test for fibromyalgia. This test is also utilized for symptomatic patients with silicone implants. Cost:$145.00 Contact: Autoimmune Technologies LLC 144 Elks Place Suite 1402 New Orleans,Louisiana, 70112,USA Fax:(504) 529-8982 Website: http://www.autoimmu ne.com SILICONE SENSITIVITY TEST Cost:$250.00- $300.00 Contact: Memphis Pathology Lab 5846 Distribution Drive Memphis,Tennessee, 38141 FAX:(901)405- 8189 Website: http://www.mpllab. com SILICONE ANTIBODIES (IgG, IgM, IgA, IgE) Silicone antibodies in serum confirms the exposure to silicone. Contact: Center for Immune, Environmental, and Toxic Disorders 25010 Oakhurst Drive Suite 200 Spring,TX,77386 Fax:(281)364- 0492 Website:http://www.immunoto xicology. com/flash. htm PLATINUM TESTING Women exposed to silicone breast implants have platinum levels that exceed that of the general population. The oxidation states of the platinum indicate that the exposure may be toxic. Contact: Chemically Associated Neurological Disorders (CANDO) P.O. Box 682633 Houston, Texas 77268-2633 Phone:(281)444- 0662 Website:http://www.humantic sfoundation. com/cando. htm To learn more about platinum testing visit: http://www.humantic sfoundation. com/platinumtest ing.htm ADDITIONAL TESTS Immunosciences Lab.,Inc. is a diagnostic and research facility that specializes in innovative microbiology and immunology laboratory testing. Tests available at this facility include the following: IMMUNOLOGY OF SILICA AND SILICONE PANEL * Lymphocyte Subpopulation Analysis--- $200.00 * Anti-DNA --- $30.00 * Anti-Microsomal --- $30.00 * Anti-Nuclear Antibody --- $30.00 * Anti-Striated Muscle --- $33.00 * Anti-Thyroglobulin --- $30.00 * Immune Complex (Total) --- $25.00 * Immune Complexes (IgG, IgM, IgA)--- $90.00 * Lymphocyte Immune Function Test --- $200.00 * Anti-Asialoganglios ide GM1 (IgG)--- $33.00 * Anti-Myelin Basic Protein (IgG,IgM,IgA) --- $99.00 * Anti-Sulfatide (IgG)---$33. 00 * Natural Killer Cell Cytotoxic Activity --- $150.00 * Rheumatoid Factor --$30.00 USD * Silicone Antibodies (IgG, IgM, IgA, IgE)--- $129.00 SILICONE ANTIBODIES --- $100.00 * Silicone IgG, IgM, IgA --- $99.00 * Silicone IgE --- $330.00 MEMORY LYMPHOCYTE IMMUNE FUNCTION ASSAY (MELIFA) * MELIFA with Silica --- $150.00 MARKERS FOR MULTIPLE MYELOMA AND MGUS * Markers for Multiple Myeloma and MGUS --- $575.00 Immunofixation of Immunoglobulins (IgG, IgM, IgA), Kappa Chain, Lambda Chain Contact: Immunosciences Lab., Inc. 8693 Wilshire Blvd. Suite 200 Beverly Hills, CA 90211 Fax: (310) 657- 1053 Website:http://www.immuno- sci-lab.com/ index2.html Copyright 2004-2005,Human Adjuvant Disease Corp. The information on this website is presented for educational purposes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Hi Michele, Glad to hear from you and that you are doing good. Wow, a 21 day fast! That's awesome! Was it water only, or with juices or what? I can appreciate your heart for this woman....I don't think any of us wants to see another woman suffered like we have. But it is sometimes very hard to break through that wall of denial that has been built through the misinformation out there. I wish there was a test that would point directly to the implants making women ill. It would make things so much easier for the thousands upon thousands of sick women. But there is no such test. If there were, you can bet that the first court cases would have been won in our favor, and implants would have been banned. The whole mess in court, where the manufacturer's have prevailed, can be summed up in two words: " Reasonable doubt. " Without proof positive of exactly what it is that implants are doing to women, they can all just say, " There's no proof. " It doesn't help that we have varying symptoms. Having said that, according to Dr. Kolb's website, there are some labs that will perform tests for silicone related issues. You can see the research site here: http://implants.webs.com/index.htm Patty > > HI all havent posted in some time.Im doing good. > > I have a friend that has for saline implants (11years)and she wants > to do testing to see if she has any chemicals in her body.I told her i > had saline and i had silicone in my body.But is there a test she can > do while she still has the implants to see what chemicals is in her > body or silicone.But there are other test she want to do.So what test > to you recommend and what test should she get for her boys.She said > there healthy . > she has 2 young boys and my understanding is pregnant. It makes me > sad.I want to give her as much info as i can. > again she want proof .I said you dont need a study to prove women are > getting sick.She said how do you know its implants making these woman > sick. I dont want to upsest anyone>i just want to save this woman. > I dont want her to have to even go thru what half of what i had to go > thru. > oh i did 21 day fast.wow that was great! > I will write more have to get sleep. > thank you god bless michele > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Thanks Shay for the welcome. I haven't thank goodness had bad reactions from anything, they just don't do anything. Humara did nothing, Embral did nothing then they added methotrexate and then I caught all my grand kids colds, but did nothing for the RA. lol. That was the only reaction I have gotten. I want to see my grand kids so I said enough was enough. So mixing of meds does not work for me so that kinda brings what I can do down some.  Maybe we will both be lucky and find what we need with Orencia. Let's hope we do. God Bless Connie   ________________________________  None of my emails are coming through. I have answered everyone's " Welcome to the group " and none came through. Don't want anyone to think that I'm avoiding them. If this, by chance, makes it though Welcome Connie, I am like you. Don't like to take a lot of meds.....I've had bad reactions to " almost " everything. And, like you, my specialist wants to put me on Orencia and I truly don't want to do it. I don't know how it will affect me and am scared to find out. Would like anyone here to let me know, along with you, how it has affected them. Shay In Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Yea, I haven't gotten any emails from this group at all yet today. I usually get a couple a day. Hmmmm -- In , " Shay " <sweetnsassy55@...> wrote: > > I'm not receiving mail from any of my groups. Once in awhile 1 or 2 will > come through but other than that, nothing. Is anyone else having this > problem? > Shay > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 Mine started doing it shortly after did it's maintenance. Good old . It seems to be straightening up " a little " but I know new members have joined and their intros didn't come in to my box. Weird! -- [ ] Re: Testing Yea, I haven't gotten any emails from this group at all yet today. I usually get a couple a day. Hmmmm -- In , " Shay " <sweetnsassy55@...> wrote: > > I'm not receiving mail from any of my groups. Once in awhile 1 or 2 will > come through but other than that, nothing. Is anyone else having this > problem? > Shay > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Can anyone recommend testing that reveals molds as well as toxins or bacterias etc. Etc. What sort of testing is available? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 In the body or in the environment? Carl Grimes Healthy Habitats LLC (fm my Blackberry) [] Testing Can anyone recommend testing that reveals molds as well as toxins or bacterias etc. Etc. What sort of testing is available? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 The environment. ________________________ On 2011-03-07 07:25:03 +1100 Carl Grimes <grimes@...> wrote: > > In the body or in the environment? > > Carl Grimes > Healthy Habitats LLC > (fm my Blackberry) > > [] Testing > > Can anyone recommend testing that reveals molds as well as toxins or > bacterias etc. Etc. What sort of testing is available? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Actually, om second thoughts both! ________________________ On 2011-03-07 10:24:38 +1100 Dana S <candalah@...> wrote: > > The environment. > ________________________ > > On 2011-03-07 07:25:03 +1100 Carl Grimes <grimes@...> wrote: > >> >> In the body or in the environment? >> >> Carl Grimes >> Healthy Habitats LLC >> (fm my Blackberry) >> >> [] Testing >> >> Can anyone recommend testing that reveals molds as well as toxins or >> bacterias etc. Etc. What sort of testing is available? >> >> >> Quote Link to comment Share on other sites More sharing options...
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