Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Once again if you share your specific protocol that would be very helpful. I might have missed it but have you posted the exact steps the clinic has you take that has led to your and others at the clinic's success? Are you taking supplements i.e. the core protocol, oxygen therapy, meditation? Whats driving your success? I think you'll have less cysnicism (sp?) if you post the treatment program (in detail). Walk us through one day at the clinic. Thanks -------------- Original message ---------------------- From: sherri higgins <itzmee37@...> > Has anyone considered the damage to the body with long term antibiotic use? > I think that the standard care for Lyme disease is WAY off. I did not have any > relief > from the anti's... I posted info for the Reno clinic a few times here. I read > some debunkers telling folks it is a scam...Well, they are not in the position > to know anything...One must be in the treatments to see the miracles I have > seen!! > Anti's are only effective in the first 2 weeks of infection, once the > spiorchete penetrates the blood cells it moves quickly throughout the whole > body.. > Very few peole experience complete relief for life with the treatments now > available > in the standard medical protocols for Lyme. Next time someone says that the > Reno clinic is " bogus " , ask them the last time they were there for the > treatments!! > I tell you all, it is a permanent relief from this disease, period... I see it > daily, > I have been there for 3 weeks now and am coming back to life...Miraculously!! > I hope more of you seek this help, then you will have real relief and get your > life back, your health restored, and peace knowing the spiorchete is DEAD!! > On my way back to health....JMJ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Try not to take skepticism too personally.. You have to remember a lot of us on this list have been sick for many many years and have tried many many avenues in search of a cure.. Also, a lot of us have been played on by scam makers with their " miracle cures " only to end up no better or even worse off ... Because Lyme disease and treatment is SUCH a complicated issue MANY are skepticle of alternatives and rightfully so... I " m glad the clinic is working for you thats wonderful but just try and understand where others with this disease are too.. Warm Regards, Robyn -- [ ] antibiotics Has anyone considered the damage to the body with long term antibiotic use? I think that the standard care for Lyme disease is WAY off. I did not have any relief from the anti's... I posted info for the Reno clinic a few times here. I read some debunkers telling folks it is a scam...Well, they are not in the position to know anything...One must be in the treatments to see the miracles I have seen!! Anti's are only effective in the first 2 weeks of infection, once the spiorchete penetrates the blood cells it moves quickly throughout the whole body.. Very few peole experience complete relief for life with the treatments now available in the standard medical protocols for Lyme. Next time someone says that the Reno clinic is " bogus " , ask them the last time they were there for the treatments!! I tell you all, it is a permanent relief from this disease, period... I see it daily, I have been there for 3 weeks now and am coming back to life.. Miraculously!! I hope more of you seek this help, then you will have real relief and get your life back, your health restored, and peace knowing the spiorchete is DEAD!! On my way back to health....JMJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 I know what I felt like prior to antibiotic/supplement use for chronic lyme and it was not pretty. I am sorry antibiotics did not help you, but as we all know, everyone is different. I don't think that we know enough about lyme to make blanket statements like " antibiotics don't work " or " supplements don't help " or " salt/c is snake oil, " but that just my opinion. I am curious as to what the treatments are like at this clinic? Could you tell us more? I hope to learn more about what they are doing that is different. I know there are several lyme clinics with alternative practices that have helped overcome the sometimes devistating effects of lyme. I'm glad you are feeling better. Please describe your treatments... > > Has anyone considered the damage to the body with long term antibiotic use? > I think that the standard care for Lyme disease is WAY off. I did not have any relief > from the anti's... I posted info for the Reno clinic a few times here. I read some debunkers telling folks it is a scam...Well, they are not in the position to know anything...One must be in the treatments to see the miracles I have seen!! > Anti's are only effective in the first 2 weeks of infection, once the spiorchete penetrates the blood cells it moves quickly throughout the whole body.. > Very few peole experience complete relief for life with the treatments now available > in the standard medical protocols for Lyme. Next time someone says that the Reno clinic is " bogus " , ask them the last time they were there for the treatments!! > I tell you all, it is a permanent relief from this disease, period... I see it daily, > I have been there for 3 weeks now and am coming back to life...Miraculously!! > I hope more of you seek this help, then you will have real relief and get your > life back, your health restored, and peace knowing the spiorchete is DEAD!! > On my way back to health....JMJ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Has it not occured to anyone that perhaps this is not a Lyme patient posting, but rather a clinic owner pretending to be a Lyme patient who is trying to drum up more business? > > Your email is full of half truths and falsehoods, sorry. getting relief > from Lyme for a few weeks is one thing, we all know that the Spirochete will > hide. Come back in a few years. This place is sounding even more like > snake oil. > > > > > > Has anyone considered the damage to the body with long term antibiotic > use? > > I think that the standard care for Lyme disease is WAY off. I did not > have any relief > > from the anti's... I posted info for the Reno clinic a few times here. I > read some debunkers telling folks it is a scam...Well, they are not in the > position to know anything...One must be in the treatments to see the > miracles I have seen!! > > Anti's are only effective in the first 2 weeks of infection, once the > spiorchete penetrates the blood cells it moves quickly throughout the whole > body.. > > Very few peole experience complete relief for life with the treatments > now available > > in the standard medical protocols for Lyme. Next time someone says that > the Reno clinic is " bogus " , ask them the last time they were there for the > treatments!! > > I tell you all, it is a permanent relief from this disease, period... I > see it daily, > > I have been there for 3 weeks now and am coming back to > life...Miraculously!! > > I hope more of you seek this help, then you will have real relief and > get your > > life back, your health restored, and peace knowing the spiorchete is > DEAD!! > > On my way back to health....JMJ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 wrote: > > Dear Bee,> > I used to read all your material religiously when I was battling > candida last year. I finally got it under control with the help of > all your information and have been doing great until recently. > > I came down w/ and infection in my throat (not strep) and went 6 > weeks w/o antiobiotics. I was running fevers, muscle aches, and had a wicked sore throat. I finally went to the doctor and went on antiobiotics (which I have not been on since I was 17) and they made > me really really ill. I tried to explain to the doctor that the > antiobiotics were causing a whole host of new symptoms including > really high fevers but he wouldn't listen. I had to find a new > doctor and needless to say I am on antibiotics again without all the symptoms but my recovery is really slow. > > I have been pumping myself with high quality probiotics and to this point I do not have any yeast symptoms... ==>Are you sure you've cured your yeast, because having a sore throat indicates that your immune system is not operating up to par, and curing candida means your immune system is normalized so you wouldn't get those symptoms unless you experienced tremendous stress, ran into heavy toxins, and/or didn't maintain a healthy regime. > > What can I do, right now, to move back towards health? Do you have > any advice? I feel like I have to take the antibiotics now since I > went down that road, and they have helped w/ the fevers but what can I do in addition to help my immune system? ==>Natural antibiotics are much more effective and are not damaging to the body like medical drugs, i.e. raw crushed garlic, oil of oregano, clove oil, etc. Take the same amount recommended for antifungal treatments (in my main article). Coconut oil is also important, as well as eating enough protein and taking supplements I recommend. ==>In order to recover you might need more than just probiotics. I suggest you go back on the candida diet & supplements for at least 1 month (maybe longer), so you get the nutrients required to heal, and also do the treatments recommended in the Thrush Treatments article, located in the Treatments Folder (in the files) because many of the treatments for the mouth you would swallow, which helps your throat. You should also gargle using one of the solutions in that file. Also take megadoses of vitamin C - start with 4,000 mg at once, and then take 1,000 mg every hour until you reach bowel tolerance (loose stools), and then back off on the amount every hour until you reach bowel tolerance again, and so on. ==>Also take 100,000 IU vitamin A every day (in divided doses) for 1 month, and then go back to the normal dose (20,000 - 30,000 daily) - buy one that doesn't contain soy, usually from halibut liver oil. There's been discussion lately on brands to buy - maybe do an archive search to find them. Cheers, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Hi ette, before you give up on antibiotics, get a toxic screen test for mercury. You say you are a vegetarian who eats fish. It could be that your diet may be lacking something or you are eating something you shouldn't. Our bodies change with time and what was good 14 years ago may not work well today. Also, look into changing your antibiotic. Some people do well with clindamycin. If you have an A/P doc discuss this with him/her. Also check out Celiac disease. You may have accumulated a yeast infection and will need to adjust diet or take difulcan. There's lots of other options before you go to Enbrel. Good luck Dolores S/D & R/A on Minocin 7 months and doing well. I see Dr. Trentham in Boston. Stay in touch impaulettep <impaulettep@...> wrote: I just rejoined this list after about 2 years. I've been on minocin and doxy for about 14 years and up until recently it seemed to have helped me - at least kept my RA from progressing. Lately, I've been getting some deformities of my fingers (I've already had surgery for carpal tunnel and to remove some of the arthritis from some fingers). Also, my ankles are more stiff, and I've gotten a large nodule under my elbow. I feel as though I am not doing as well and don't know if I should think about taking the harder drugs e.g. embrel. I am frightened of the side effects but I don't feel I'm being helped any more from the antibiotics. I also take a sulfur drug. I take lots of supplements and eat a vegetarian diet with fish. Any advice would be greatly appreciated. Thanks, ette To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 ette...What is your dosage of minocin??? Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 hello,I'm wondering if anyone has a idea what causes really bad baggs under the eyes & bad puffyness on the top? I do have graves but I take my daily pill & it is under control I've been using the eat right 4 your blood type diet for type AB ,my blood sugar & chlosteral are doing good but the bags are getting worse Dr says its probably a alergy but to what ?If anybody else has had this & found something that helps or knows what I should be avoiding I would be thankfull. Bonnie in seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Hey, ette! Sally in L. Rk here. I'm going thru the same kind of thing and Cooky said that getting off the mino and on to tetracycline for a couple of months and then back on the mino was very helpful. So, I went to my GP this past Monday and he prescribed Doxycycline to try for a while. I was on Doxy in the DC area for 2 1/2 years because my rheumie would not switch me to mino. When I switched to mino, I had a small flare but was much better within 3 mos. I do have an apptmt with a rheumie here in Sept and have decided if the mino/doxy do not work, I'll do the Azulfidine (sulfasalazine) as it is basically a sulfa antibiotic and works on UTI's (urinary tract infections) and other infections and is really good for colitis & irritable bowel syndrome (IBS), AND is a typically prescribed DMARD that relieves pain and stops damage. I've suffered from IBS and had my 1st UTI in my life, AFTER I was bitten by a tick in '92. I think I have Lyme's, resulting in 2 good rheumies Dx'ing me w/Reiter's (which just means I have rheumatoid from an infection). And, of course, neither rheumie liked the idea of A/biotics for Tx!! I hate seeing more dmg occurring and do NOT need any more crippling (both my wrists are destroyed per medical records that I just got from Rheumie I saw in Jan '05-I know that but HATE reading it!!) So, ette, good luck to you! Sally in L. Rk. rheumatic Antibiotics I just rejoined this list after about 2 years. I've been on minocin and doxy for about 14 years and up until recently it seemed to have helped me - at least kept my RA from progressing. Lately, I've been getting some deformities of my fingers (I've already had surgery for carpal tunnel and to remove some of the arthritis from some fingers). Also, my ankles are more stiff, and I've gotten a large nodule under my elbow. I feel as though I am not doing as well and don't know if I should think about taking the harder drugs e.g. embrel. I am frightened of the side effects but I don't feel I'm being helped any more from the antibiotics. I also take a sulfur drug. I take lots of supplements and eat a vegetarian diet with fish. Any advice would be greatly appreciated. Thanks, ette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi Bonnie, My wife was recently diagnosed with MCTD. About the same time we determined she probably has a glutin intolerance. Anything with wheat or glutin products gives her the same (and worse) symptoms. She also has stomach discomfort on a major scale but that may be due to the meds she's on. Easy way to tell is to cut out all the glutin in your system. Unfortunately it seems like its everywhere and can be a real pain trying to eat out. Travelling has been almost impossible between the celiac disease (glutin intolerance) and the MCTD. Hope this helps. r/k --- Beaconbonnie@... wrote: > hello,I'm wondering if anyone has a idea what causes > really bad baggs under > the eyes & bad puffyness on the top? I do have > graves but I take my daily > pill & it is under control > I've been using the eat right 4 your blood type diet > for type AB ,my blood > sugar & chlosteral are doing good but the bags are > getting worse Dr says its > probably a alergy but to what ?If anybody else has > had this & found something > that helps or knows what I should be avoiding I > would be thankfull. > Bonnie in seattle > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 hi; Thanks for your speedy reply ,I've seen a lot about intolerance to wheat on the line and will try that . I used to have bad stomach problems and cured them with aloe vera Bonnie in seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 hi r/k I buy the cheep stuff from safeway,brand name 'Fruit of the earth " I started with about 2 oz mixed with apple juice so I couldn't even taste it. It might loosen the bowels a bit at first so its good to start slow.It took about 2 weeks to notice a improvement but when I started to feel better I drank more straight out of the bottle In about 2 months my stomach problems were nothing but a memory .I also had a sensation of movement inside .That is a real good thing my accupuncherist told me 'A sighn of healing'' I have had many friends helped with many different problems ranging from bleeding to hepititus , all swear by it . I still drink it from time to time but my stomach problems " I'm still not sure what it all was'' have never returned and I,m talking about over 13 years of misery. You can also find it at most drug stores,I prefer the liquid to the gell Bonnie in seattle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi Bonnie, How did you use aloe for stomach problems? She's had a lot of luck using it directly on her skin rashes. r/k --- Beaconbonnie@... wrote: > hi; > Thanks for your speedy reply ,I've seen a lot about > intolerance to wheat on > the line and will try that . > > I used to have bad stomach problems and cured them > with aloe vera > Bonnie in seattle > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Sally do you think your doc would order tetracycline? The doxy works in a different way and I know Doxy never did anything for me and a friend actually could not get back to where she was on minocin after she switched to doxy. Anyway if the doxy does not work, before you go to sulfa, try the tetra. cooky Re: rheumatic Antibiotics Hey, ette! Sally in L. Rk here. I'm going thru the same kind of thing and Cooky said that getting off the mino and on to tetracycline for a couple of months and then back on the mino was very helpful. So, I went to my GP this past Monday and he prescribed Doxycycline to try for a while. I was on Doxy in the DC area for 2 1/2 years because my rheumie would not switch me to mino. When I switched to mino, I had a small flare but was much better within 3 mos. I do have an apptmt with a rheumie here in Sept and have decided if the mino/doxy do not work, I'll do the Azulfidine (sulfasalazine) as it is basically a sulfa antibiotic and works on UTI's (urinary tract infections) and other infections and i Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 Hi, For those of you taking doxy, there are some I know who have added bromelain one half hour before taking the doryx and have found that there is much better penetration of the drug than taking it alone. Also, some have had success by taking 100mg minocin in the a.m. and 100mg doryx in the p.m. for those on the full 200mg antibiotic per day. Carol_DM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Just a reminder that my pharmacist checked his manual and found that Bromelain causes Minocin to be excreted more quickly from the body. rheumatic Re: Antibiotics > Hi, For those of you taking doxy, there are some I know who have added > bromelain one half hour before taking the doryx and have found that there > is much better penetration of the drug than taking it alone. Also, some > have had success by taking 100mg minocin in the a.m. and 100mg doryx in > the p.m. for those on the full 200mg antibiotic per day. > Carol_DM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Salut ette; An other thing about fish is it's content of vitamin D.Have you had your 1,25 and 25 ratio done.I came in almost 3 times too high and after dropping all dietary D I was able to get of methotrexate and AP kicked in .Check our www.marshallprotocol.com many people with RA there I have not done any reading there in months as I am sooooooooooo busy and do not know how they are doing.This protocol has only been in effect for a couple of years so no one knows exactly what will happen.Dr.Marshall was just about a dead duck but is CURED now as he experimented on himself before saying anything about it. Lynne impaulettep wrote: > I posted last week but didn't receive replies. I don't know if I know > how to use this new format. > > I have had RA for about 14 years and have been on minocin 100 mg, doxy > 100mg and sulfazaladine together with lots of supplements. I did > receive one message regarding the fact that I eat fish and could have > mercury problems. I will check into that. > > The new rheumtologist I saw did x-rays on my feet and hands to see if I > have much erosion and am in need of different meds. I have been going > to Dr Whitman for about 14 years but went to someone new who is much > closer to my home. The last few times I saw Dr Whitman all he did was > take his notes and doesn't reaaly examine me or offer anything new. I > will see him again after going back to the new doctor. > > Anyway, I have been getting lots more nodules and stiffness and I'm > afraid of getting progressively worse. I am concerned that the AP has > stopped helping me. Please let me know if you have any ideas. A few > years ago I had intrvenous antibiotics. Don't know if that helped much. > > Thanks, > ette > > P.S. Any hints on this new format? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 My hydroxyvitamin D 1,25 and 25 results are fine. Lynne, can you explain the ratio and its interpretation? Thanks, Re: rheumatic Antibiotics > Salut ette; > An other thing about fish is it's content of vitamin D.Have you had > your 1,25 and 25 ratio done.I came in almost 3 times too high and after > dropping all dietary D I was able to get of methotrexate and AP kicked > in .Check our www.marshallprotocol.com many people with RA there I > have not done any reading there in months as I am sooooooooooo busy and > do not know how they are doing.This protocol has only been in effect for > a couple of years so no one knows exactly what will happen.Dr.Marshall > was just about a dead duck but is CURED now as he experimented on > himself before saying anything about it. Lynne > > > > > impaulettep wrote: > >> I posted last week but didn't receive replies. I don't know if I know >> how to use this new format. >> >> I have had RA for about 14 years and have been on minocin 100 mg, doxy >> 100mg and sulfazaladine together with lots of supplements. I did >> receive one message regarding the fact that I eat fish and could have >> mercury problems. I will check into that. >> >> The new rheumtologist I saw did x-rays on my feet and hands to see if I >> have much erosion and am in need of different meds. I have been going >> to Dr Whitman for about 14 years but went to someone new who is much >> closer to my home. The last few times I saw Dr Whitman all he did was >> take his notes and doesn't reaaly examine me or offer anything new. I >> will see him again after going back to the new doctor. >> >> Anyway, I have been getting lots more nodules and stiffness and I'm >> afraid of getting progressively worse. I am concerned that the AP has >> stopped helping me. Please let me know if you have any ideas. A few >> years ago I had intrvenous antibiotics. Don't know if that helped much. >> >> Thanks, >> ette >> >> P.S. Any hints on this new format? >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi, Were you taking remicaid? If so, why did you get off of it? Thanks, Gloria rheumatic Antibiotics I posted last week but didn't receive replies. I don't know if I know how to use this new format. I have had RA for about 14 years and have been on minocin 100 mg, doxy 100mg and sulfazaladine together with lots of supplements. I did receive one message regarding the fact that I eat fish and could have mercury problems. I will check into that. The new rheumtologist I saw did x-rays on my feet and hands to see if I have much erosion and am in need of different meds. I have been going to Dr Whitman for about 14 years but went to someone new who is much closer to my home. The last few times I saw Dr Whitman all he did was take his notes and doesn't reaaly examine me or offer anything new. I will see him again after going back to the new doctor. Anyway, I have been getting lots more nodules and stiffness and I'm afraid of getting progressively worse. I am concerned that the AP has stopped helping me. Please let me know if you have any ideas. A few years ago I had intrvenous antibiotics. Don't know if that helped much. Thanks, ette P.S. Any hints on this new format? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi Kid,as long as the ratio is 1.5 or lower you are fine Ken and wrote: > My hydroxyvitamin D 1,25 and 25 results are fine. Lynne, can you explain > the ratio and its interpretation? > > Thanks, > > Re: rheumatic Antibiotics > > > Salut ette; > > An other thing about fish is it's content of vitamin D.Have you had > > your 1,25 and 25 ratio done.I came in almost 3 times too high and after > > dropping all dietary D I was able to get of methotrexate and AP kicked > > in .Check our www.marshallprotocol.com many people with RA there I > > have not done any reading there in months as I am sooooooooooo busy and > > do not know how they are doing.This protocol has only been in effect for > > a couple of years so no one knows exactly what will happen.Dr.Marshall > > was just about a dead duck but is CURED now as he experimented on > > himself before saying anything about it. Lynne > > > > > > > > > > impaulettep wrote: > > > >> I posted last week but didn't receive replies. I don't know if I know > >> how to use this new format. > >> > >> I have had RA for about 14 years and have been on minocin 100 mg, doxy > >> 100mg and sulfazaladine together with lots of supplements. I did > >> receive one message regarding the fact that I eat fish and could have > >> mercury problems. I will check into that. > >> > >> The new rheumtologist I saw did x-rays on my feet and hands to see if I > >> have much erosion and am in need of different meds. I have been going > >> to Dr Whitman for about 14 years but went to someone new who is much > >> closer to my home. The last few times I saw Dr Whitman all he did was > >> take his notes and doesn't reaaly examine me or offer anything new. I > >> will see him again after going back to the new doctor. > >> > >> Anyway, I have been getting lots more nodules and stiffness and I'm > >> afraid of getting progressively worse. I am concerned that the AP has > >> stopped helping me. Please let me know if you have any ideas. A few > >> years ago I had intrvenous antibiotics. Don't know if that helped much. > >> > >> Thanks, > >> ette > >> > >> P.S. Any hints on this new format? > >> > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Lynne, which way does the ratio go: 1,25:25 or 25:1,25? Thanks again, Re: rheumatic Antibiotics > > > Salut ette; > > An other thing about fish is it's content of vitamin D.Have you had > > your 1,25 and 25 ratio done.I came in almost 3 times too high and after > > dropping all dietary D I was able to get of methotrexate and AP kicked > > in .Check our www.marshallprotocol.com many people with RA there I > > have not done any reading there in months as I am sooooooooooo busy and > > do not know how they are doing.This protocol has only been in effect for > > a couple of years so no one knows exactly what will happen.Dr.Marshall > > was just about a dead duck but is CURED now as he experimented on > > himself before saying anything about it. Lynne > > > > > > > > > > impaulettep wrote: > > > >> I posted last week but didn't receive replies. I don't know if I know > >> how to use this new format. > >> > >> I have had RA for about 14 years and have been on minocin 100 mg, doxy > >> 100mg and sulfazaladine together with lots of supplements. I did > >> receive one message regarding the fact that I eat fish and could have > >> mercury problems. I will check into that. > >> > >> The new rheumtologist I saw did x-rays on my feet and hands to see if I > >> have much erosion and am in need of different meds. I have been going > >> to Dr Whitman for about 14 years but went to someone new who is much > >> closer to my home. The last few times I saw Dr Whitman all he did was > >> take his notes and doesn't reaaly examine me or offer anything new. I > >> will see him again after going back to the new doctor. > >> > >> Anyway, I have been getting lots more nodules and stiffness and I'm > >> afraid of getting progressively worse. I am concerned that the AP has > >> stopped helping me. Please let me know if you have any ideas. A few > >> years ago I had intrvenous antibiotics. Don't know if that helped much. > >> > >> Thanks, > >> ette > >> > >> P.S. Any hints on this new format? > >> > >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2006 Report Share Posted July 22, 2006 Hi ,would you believe that I would have to look it up as I have not kept in touch with MP for a couple of years.All I know is that my D keeps rising in the summer as I have a greenhouse and cannot afford time away from bright light.I also have to be able to see spider mites,scale and mealy bugs which I could not with No Ir glasses.Take a run over to www.sarcinfo.com ,it is all explained there Lynne Ken and wrote: > Lynne, which way does the ratio go: 1,25:25 or 25:1,25? > > Thanks again, > > Re: rheumatic Antibiotics > > > > > Salut ette; > > > An other thing about fish is it's content of vitamin D.Have you had > > > your 1,25 and 25 ratio done.I came in almost 3 times too high and > after > > > dropping all dietary D I was able to get of methotrexate and AP kicked > > > in .Check our www.marshallprotocol.com many people with RA there I > > > have not done any reading there in months as I am sooooooooooo > busy and > > > do not know how they are doing.This protocol has only been in > effect for > > > a couple of years so no one knows exactly what will happen.Dr.Marshall > > > was just about a dead duck but is CURED now as he experimented on > > > himself before saying anything about it. Lynne > > > > > > > > > > > > > > > impaulettep wrote: > > > > > >> I posted last week but didn't receive replies. I don't know if I know > > >> how to use this new format. > > >> > > >> I have had RA for about 14 years and have been on minocin 100 mg, > doxy > > >> 100mg and sulfazaladine together with lots of supplements. I did > > >> receive one message regarding the fact that I eat fish and could have > > >> mercury problems. I will check into that. > > >> > > >> The new rheumtologist I saw did x-rays on my feet and hands to > see if I > > >> have much erosion and am in need of different meds. I have been going > > >> to Dr Whitman for about 14 years but went to someone new who is much > > >> closer to my home. The last few times I saw Dr Whitman all he did was > > >> take his notes and doesn't reaaly examine me or offer anything new. I > > >> will see him again after going back to the new doctor. > > >> > > >> Anyway, I have been getting lots more nodules and stiffness and I'm > > >> afraid of getting progressively worse. I am concerned that the AP has > > >> stopped helping me. Please let me know if you have any ideas. A few > > >> years ago I had intrvenous antibiotics. Don't know if that helped > much. > > >> > > >> Thanks, > > >> ette > > >> > > >> P.S. Any hints on this new format? > > >> > > >> > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 ette hi, I don't know if I said this before but I would change to tetracycline if I were you. Anytime I feel the Minocin is not working (I have never let it go so far as to get nodules) I start on tetracycline. I also start aloe era gel and Glutamine for possible leaky gut. I would also recommend taking OTC for yeast or better yet asking your doc for long term nystatin alternating with Diflucan for yeast. I have only been on this for 9 years and this happened to me quite a lot over this time. I truely do not like Doxy and prefer tetra. As for the x-rays...mine were really bad and my rheumy (not in favor of AP) kept at me for this. Finally I had them done by my gp at another hospital and they found nothing. I would also call Whitman on the phone and tell him you were not satisfied with your last visit and tell him why and what does he recommendand maybe suggest the tetracycline (Doc Brown used this). These are only my opinions...I am not telling you what to do. Good luck! cooky rheumatic Antibiotics I posted last week but didn't receive replies. I don't know if I know how to use this new format. I have had RA for about 14 years and have been on minocin 100 mg, doxy 100mg and sulfazaladine together with lots of supplements. I did receive one message regarding the fact that I eat fish and could have mercury problems. I will check into that. The new rheumtologist I saw did x-rays on my feet and hands to see if I have much erosion and am in need of different meds. I have been going to Dr Whitman for about 14 years but went to someone new who is much closer to my home. The last few times I saw Dr Whitman all he did was take his notes and doesn't reaaly examine me or offer anything new. I will see him again after going back to the new doctor. Anyway, I have been getting lots more nodules and stiffness and I'm afraid of getting progressively worse. I am concerned that the AP has stopped helping me. Please let me know if you have any ideas. A few years ago I had intrvenous antibiotics. Don't know if that helped much. Thanks, ette P.S. Any hints on this new format? To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Well the antibiotic protocol didn't work for me. I gave it a year now I am on enbrel now and seem to be feeling back to myself...I am 30 and have had Lupus and Ra since Iwas 19 years old.... impaulettep <impaulettep@...> wrote: I posted last week but didn't receive replies. I don't know if I know how to use this new format. I have had RA for about 14 years and have been on minocin 100 mg, doxy 100mg and sulfazaladine together with lots of supplements. I did receive one message regarding the fact that I eat fish and could have mercury problems. I will check into that. The new rheumtologist I saw did x-rays on my feet and hands to see if I have much erosion and am in need of different meds. I have been going to Dr Whitman for about 14 years but went to someone new who is much closer to my home. The last few times I saw Dr Whitman all he did was take his notes and doesn't reaaly examine me or offer anything new. I will see him again after going back to the new doctor. Anyway, I have been getting lots more nodules and stiffness and I'm afraid of getting progressively worse. I am concerned that the AP has stopped helping me. Please let me know if you have any ideas. A few years ago I had intrvenous antibiotics. Don't know if that helped much. Thanks, ette P.S. Any hints on this new format? --------------------------------- Music Unlimited - Access over 1 million songs.Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 Sorry, you stopped the antibiotic. One year is not enough! This therapy is for a long long time. Maybe even for life. There is no know cure for Scleroderma. Lupus, R/A M/S, Sarcoidosis, Spondylitis etc, etc, etc! It is a terminal disorder, but so is life. We are here to tell you our stories and accomplishments and to extend the quality of life, give hope and have empathy. If Enbrel works for you, so be it. I hope it lasts longer than a year before the side effects set in. I'm on my 7th month of Minocin and my symptoms are reversing slowly little by little and I'm in it for the long run. In fact, most probably I'll go out of this world with my last dose of antibiotic, be it Minocin or some other or maybe they will find a cure in the meantime. At least, right now, I am enjoying a quality of life I have not had in more than twenty years since I first came down with CFS in 1986. I have S/D & R/A. Diagnosed one year ago. Stay in touch and let us know how long you are on Enbrel and how you are doing with it. Dolores Rannece Mc <rannecemcdaniel@...> wrote: Well the antibiotic protocol didn't work for me. I gave it a year now I am on enbrel now and seem to be feeling back to myself...I am 30 and have had Lupus and Ra since Iwas 19 years old.... impaulettep wrote: I posted last week but didn't receive replies. I don't know if I know how to use this new format. I have had RA for about 14 years and have been on minocin 100 mg, doxy 100mg and sulfazaladine together with lots of supplements. I did receive one message regarding the fact that I eat fish and could have mercury problems. I will check into that. The new rheumtologist I saw did x-rays on my feet and hands to see if I have much erosion and am in need of different meds. I have been going to Dr Whitman for about 14 years but went to someone new who is much closer to my home. The last few times I saw Dr Whitman all he did was take his notes and doesn't reaaly examine me or offer anything new. I will see him again after going back to the new doctor. Anyway, I have been getting lots more nodules and stiffness and I'm afraid of getting progressively worse. I am concerned that the AP has stopped helping me. Please let me know if you have any ideas. A few years ago I had intrvenous antibiotics. Don't know if that helped much. Thanks, ette P.S. Any hints on this new format? --------------------------------- Music Unlimited - Access over 1 million songs.Try it free. Quote Link to comment Share on other sites More sharing options...
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