AntIbiotics

[Guest guest]

I'm sorry the AP didn't work for you. Did you try both the generic and/or

the brand Minocin? El

Re: rheumatic Antibiotics

Well the antibiotic protocol didn't work for me. I gave it a year now I am

on enbrel now and seem to be feeling back to myself...I am 30 and have had

Lupus and Ra since Iwas 19 years old....

impaulettep <impaulettep@...> wrote: I posted last week but

didn't receive replies. I don't know if I know

how to use this new format.

I have had RA for about 14 years and have been on minocin 100 mg, doxy

100mg and sulfazaladine together with lots of supplements. I did

receive one message regarding the fact that I eat fish and could have

mercury problems. I will check into that.

The new rheumtologist I saw did x-rays on my feet and hands to see if I

have much erosion and am in need of different meds. I have been going

to Dr Whitman for about 14 years but went to someone new who is much

closer to my home. The last few times I saw Dr Whitman all he did was

take his notes and doesn't reaaly examine me or offer anything new. I

will see him again after going back to the new doctor.

Anyway, I have been getting lots more nodules and stiffness and I'm

afraid of getting progressively worse. I am concerned that the AP has

stopped helping me. Please let me know if you have any ideas. A few

years ago I had intrvenous antibiotics. Don't know if that helped much.

Thanks,

ette

P.S. Any hints on this new format?

---------------------------------

Music Unlimited - Access over 1 million songs.Try it free.

[Guest guest]

>Hi Cooky,

I remember you from the last time I was on this list. I appreciate

your post. I tried nystatin and diflucan and was terribly sick on

that combination.

I will ask about tetracycline. I know the last time I asked Dr.

Whitman about it he gave me a bunch of reasons not to go on it -

don't remember why now.

Do you know Dr. Whitman's e-mail address?

I got the nodules before feeling badly. Didn't even realize I had

them for quite a while.

Thanks.

ette

>

>

[Guest guest]

>Hi Sally,

Do you think we're doing the right thing by not going on enbrel or

something else when we're getting damage? I have had RA for 14 years

and I am afraid things are getting worse.

I am on mino, doxy and asulfaziadine and have been for many years.

What do we do when it stops working? I know I mentioned tetra to Dr.

Whitman and he told me not to go on it - don't remember why. I will

ask again.

I am getting frightened about the damage and don't know what else to

do.

Let me know what you think. You can write to me directly - I have

trouble with this format.

Thanks again.

ette

>

[Guest guest]

Hi again,

How about just diflucan or nystatin alone not together?? There are a lot of

other things to try for yeast.

No I don't know his address. I really hope you find a solution.

hugs,

cooky

rheumatic Re: Antibiotics

>Hi Cooky,

I remember you from the last time I was on this list. I appreciate

your post. I tried nystatin and diflucan and was terribly sick on

that combination.

I will ask about tetracycline. I know the last time I asked Dr.

Whitman about it he gave me a bunch of reasons not to go on it -

don't remember why now.

Do you know Dr. Whitman's e-mail address?

I got the nodules before feeling badly. Didn't even realize I had

them for quite a while.

Thanks.

ette

>

>

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

I tried the generic first a mth supply of that, then I was fortunate my ins co

allowed brand.The enbrel seems to be working..I am praying that it works

everyday...taking it one day at a time....ing <ehgooding@...> wrote:

I'm sorry the AP didn't work for you. Did you try both the generic and/or

the brand Minocin? El

Re: rheumatic Antibiotics

Well the antibiotic protocol didn't work for me. I gave it a year now I am

on enbrel now and seem to be feeling back to myself...I am 30 and have had

Lupus and Ra since Iwas 19 years old....

impaulettep <impaulettep@...> wrote: I posted last week but

didn't receive replies. I don't know if I know

how to use this new format.

I have had RA for about 14 years and have been on minocin 100 mg, doxy

100mg and sulfazaladine together with lots of supplements. I did

receive one message regarding the fact that I eat fish and could have

mercury problems. I will check into that.

The new rheumtologist I saw did x-rays on my feet and hands to see if I

have much erosion and am in need of different meds. I have been going

to Dr Whitman for about 14 years but went to someone new who is much

closer to my home. The last few times I saw Dr Whitman all he did was

take his notes and doesn't reaaly examine me or offer anything new. I

will see him again after going back to the new doctor.

Anyway, I have been getting lots more nodules and stiffness and I'm

afraid of getting progressively worse. I am concerned that the AP has

stopped helping me. Please let me know if you have any ideas. A few

years ago I had intrvenous antibiotics. Don't know if that helped much.

Thanks,

ette

P.S. Any hints on this new format?

---------------------------------

Music Unlimited - Access over 1 million songs.Try it free.

[Guest guest]

>Rannece,

How did you feel before starting on enbrel? Were you getting worse? I

still don't know what to do about trying enbrel. I don't like the

things that are starting to happen to me but I am afraid of the side

effects of enbrel. How did you make the decision to try enbrel?

ette

[Guest guest]

hi, Bonnie here in seattle with a question to anyone who has advice on this

subject.

I have been on minocycline 100 MG twice a day for 11 months, I also take

synthroid because I let them burn out my thyroid several years ago in a attempt

to stop the pain of (undiagnoised) reactive arthritis.

anyway, what's done is done.I take both pills together in the morning & have

had no problems .Last month I had cateract sugery in both eyes ,2 weeks

apart,For the last week or so when I take the morning pills after about 20

minuts

or so my eyes get real light senctive almost like i've had them

dialated,this last for about 2 hours. i've started taking the pills a few hours

apart &

it still happens but not so bad .I don't have any problem when I take my night

dose of minocycline .

I got the antibiotics from a naturalpath she isn't the best one to ask

questions to .I think they are helping because my flair ups used to last 2

months

,I just got over one & it only lasted 6 days.Is it time to slow down on them

?like once a day or 3 times A week ?

Is that how we improve? or will they just stop happening altogether? any

input will be appericated.

Thanks for your help

Bonnie

[Guest guest]

Hi, ette,

Sally from L. Rk here.

Hopefully, I didn't just accidentally send an empty reply to the group...

Yes, I think we all need to do WHATEVER it takes to get better. I, too, am

having crippling problems and stomach problems and am so tired of being sick and

in pain.

I did have my GP switch me from mino to doxy and I could be Herxing but do have

an apptmt with a new rheumie in Sept and am dreading that, but would love to

find pain relief and stop the damage....

So, my friend, do what it takes, OK?

Lots of luck, woman!

Sally

rheumatic Re: Antibiotics

>Hi Sally,

Do you think we're doing the right thing by not going on enbrel or

something else when we're getting damage? I have had RA for 14 years

and I am afraid things are getting worse.

I am on mino, doxy and asulfaziadine and have been for many years.

What do we do when it stops working? I know I mentioned tetra to Dr.

Whitman and he told me not to go on it - don't remember why. I will

ask again.

I am getting frightened about the damage and don't know what else to

do.

Let me know what you think. You can write to me directly - I have

trouble with this format.

Thanks again.

ette

>

[Guest guest]

In a message dated 8/12/2006 6:24:27 P.M. Central Daylight Time,

Beaconbonnie@... writes:

I got the antibiotics from a naturalpath she isn't the best one to ask

questions to .I think they are helping because my flair ups used to last 2

months

,I just got over one & it only lasted 6 days.Is it time to slow down on

them

?like once a day or 3 times A week ?

Is that how we improve? or will they just stop happening altogether? any

input will be appreciated.

Thanks for your help

Bonnie.......Keep on the daily schedule of Minocin for now. When I first

started on Minocin I stayed on it for three months after all my pain and aches

had totally disappeared. I felt great but my doc had me wait until all my

bloodwork went into normal zones. Then and only then did I go to the three day

a week schedule. I still occasionally go back on a daily regime when my

feet act up. I continue my daily dosing for several weeks after all pain has

stopped. This has worked well for me and I just thought I would pass it on

for your input. Hope you get rid of all your aches and pains soon. Martha

[Guest guest]

Hi,

I have been taking antibiotics for only 7.5 weeks now. The only other thing I

take for my RA/Lupus at this time is Celebrex. Prior to this I had refused all

the other meds that had been suggested and prescribed so by the time I learned

of the AP I was in pretty bad shape. I had severe stiffness all day and mostly

swelling in my hands/wrists, and feet/ankles but my spine and jaw were also

beginning to be affected. There were many days when it was bad enough that I

could not drive. None of the stuff that is sold OTC was ever of any help so I

didn't bother to take it. When I started with the treatment, the Celebrex

provided tremendous relief immediately and my doctor has told me that it was

necessary to control the swelling in order for the antibiotic to do it's job.

This makes sense to me. There have been 2 occasions now where I have neglected

to take my once a day dose of Celebrex. (Once I forgot and once I left it at

home and was out) The first time was pretty much back to my original condition

without meds. The swelling and the pain were awful and I could barely climb out

of bed in the am. The second time, a couple of weeks later, I felt very stiff

but not nearly as bad as the first time. This seems to me a sign that the

antibiotics are working. Has anyone experienced relief in such a short time? I

don't believe I am anywhere near remission but I did notice enough of a

difference to indicate some improvement. I know it is still a long road ahead

of me and I am willing to get there slowly. My other question is, what tests

are the ones that show the biggest changes first? My doctor is really not very

impressed with AP and is sort of " humoring me " by " letting me " try it. Even

though I know test results are not always indicative, I know the doc will want

to see proof that I am getting better. I am hoping that at some point I will no

longer need the Celebrex daily or at all. I just want to know what to look for

since my doctor THINKS I will surely give up soon and ask for Methotrexate and

Plaquenil. I am trying to make sure not to miss a dose since it throws

everything off kilter. How will I know when to start weaning off of it? Is

there anyone here taking only Celebrex (or something similar) in conjunction

with the AP? I'm worried about the long term effects of it. Thanks for reading

my long post.

Maggy Alonso

www.AMothersTouchPhoto.com

Re: rheumatic Re: Antibiotics

In a message dated 8/12/2006 6:24:27 P.M. Central Daylight Time,

Beaconbonnie@... writes:

I got the antibiotics from a naturalpath she isn't the best one to ask

questions to .I think they are helping because my flair ups used to last 2

months

,I just got over one & it only lasted 6 days.Is it time to slow down on

them

?like once a day or 3 times A week ?

Is that how we improve? or will they just stop happening altogether? any

input will be appreciated.

Thanks for your help

Bonnie.......Keep on the daily schedule of Minocin for now. When I first

started on Minocin I stayed on it for three months after all my pain and aches

had totally disappeared. I felt great but my doc had me wait until all my

bloodwork went into normal zones. Then and only then did I go to the three day

a week schedule. I still occasionally go back on a daily regime when my

feet act up. I continue my daily dosing for several weeks after all pain has

stopped. This has worked well for me and I just thought I would pass it on

for your input. Hope you get rid of all your aches and pains soon. Martha

[Guest guest]

Hi everybody, This is Dolores from NYC. Last year during my darkest hours when

I was being told by the experts in the field, that Scleroderma & R/A were

incurable and all they could do was treat the symptoms, my docs were appalled

that I refused to take Methotrexate and the rest of the poisonous cocktails they

offered. An angel from the Roadbackfoundation Bulletin Board told me about A/P

and the docs tsk! tsk'ed me and shook their heads. Well, I found an A/P doc in

Boston and today, these same docs are singing a different tune. They are

totally amazed and look at me in a new light. They are calling each other up

and saying things like, " her symptoms are reversing. " " She looks good! " " Skin

is soft! " " No pain meds needed! " , " She just turned 70 this week and looks

fabulous! " " We can't explain it, but wait till you see her! " " Everything is

going back to normal! " " She gained back all the weight she lost. " Not anemic

anymore! " You get the picture! I have been on

Minocin and Minocin only for S/D & R/A since the last week of Christmas 2005.

My recovery started from the first month and kept on going and going like the

energizer bunny. In my 7th month, I had a setback and felt, Oh!, Oh!, " I spoke

too soon. But I stuck to it. I was diagnosed last August and have just gone

back to these, so called experts for my yearly check up! The only way to

convert these unbelievers is one at a time. Stick to your guns and don't just

talk the talk, but walk the walk and show them. I bet by next year, there will

be a whole lot more S/D'er's in NYC starting on antibiotics. I just had a

celebration and threw myself a birthday party and looking forward to many more

years happily enjoying this planet with my husband of 31 yrs. Dolores & Mike

Rosner

Carbone <sammiches42@...> wrote: Hi Maggy,

I'm only in my third week of Minocin for psoriatic arthritis, and while I felt

really bad last week, I've felt better in the past few days than I have for the

past three months! I've read that in some cases improvement can be detected

earlier than in others, so perhaps it's not totally odd that you're feeling

better.

It's important to remember that your doctor works for you, and that you don't

owe them anything (except money, of course). While it's nice of them to " humor "

us with AP, we are also humoring them humoring us for the sake of convenience.

If you feel that your doc might want to force you off AP before it's had a fair

chance to work, start looking for a better doctor right now. I'm in the process

of doing that myself!

Maggy Alonso wrote: Hi,

I have been taking antibiotics for only 7.5 weeks now. The only other thing I

take for my RA/Lupus at this time is Celebrex. Prior to this I had refused all

the other meds that had been suggested and prescribed so by the time I learned

of the AP I was in pretty bad shape. I had severe stiffness all day and mostly

swelling in my hands/wrists, and feet/ankles but my spine and jaw were also

beginning to be affected. There were many days when it was bad enough that I

could not drive. None of the stuff that is sold OTC was ever of any help so I

didn't bother to take it. When I started with the treatment, the Celebrex

provided tremendous relief immediately and my doctor has told me that it was

necessary to control the swelling in order for the antibiotic to do it's job.

This makes sense to me. There have been 2 occasions now where I have neglected

to take my once a day dose of Celebrex. (Once I forgot and once I left it at

home and was out) The first time was pretty

much back to my original condition without meds. The swelling and the pain were

awful and I could barely climb out of bed in the am. The second time, a couple

of weeks later, I felt very stiff but not nearly as bad as the first time. This

seems to me a sign that the antibiotics are working. Has anyone experienced

relief in such a short time? I don't believe I am anywhere near remission but I

did notice enough of a difference to indicate some improvement. I know it is

still a long road ahead of me and I am willing to get there slowly. My other

question is, what tests are the ones that show the biggest changes first? My

doctor is really not very impressed with AP and is sort of " humoring me " by

" letting me " try it. Even though I know test results are not always indicative,

I know the doc will want to see proof that I am getting better. I am hoping that

at some point I will no longer need the Celebrex daily or at all. I just want to

know what to look for since my

doctor THINKS I will surely give up soon and ask for Methotrexate and Plaquenil.

I am trying to make sure not to miss a dose since it throws everything off

kilter. How will I know when to start weaning off of it? Is there anyone here

taking only Celebrex (or something similar) in conjunction with the AP? I'm

worried about the long term effects of it. Thanks for reading my long post.

Maggy Alonso

www.AMothersTouchPhoto.com

Re: rheumatic Re: Antibiotics

In a message dated 8/12/2006 6:24:27 P.M. Central Daylight Time,

Beaconbonnie@... writes:

I got the antibiotics from a naturalpath she isn't the best one to ask

questions to .I think they are helping because my flair ups used to last 2

months

,I just got over one & it only lasted 6 days.Is it time to slow down on

them

?like once a day or 3 times A week ?

Is that how we improve? or will they just stop happening altogether? any

input will be appreciated.

Thanks for your help

Bonnie.......Keep on the daily schedule of Minocin for now. When I first

started on Minocin I stayed on it for three months after all my pain and aches

had totally disappeared. I felt great but my doc had me wait until all my

bloodwork went into normal zones. Then and only then did I go to the three day

a week schedule. I still occasionally go back on a daily regime when my

feet act up. I continue my daily dosing for several weeks after all pain has

stopped. This has worked well for me and I just thought I would pass it on

for your input. Hope you get rid of all your aches and pains soon. Martha

[Guest guest]

Thank you Dolores. You are trully inspiring and I'm so glad that you are

staying healthy and here to share your experiences with us all. I spent so many

years being told I was crazy for refusing those horrible drugs, it's great to be

among others who feel the same way. I can't wait to show all my doctors too.

Happy Belated Birthday to you! I just celebrated my 44th last week on the 9th.

Maggy

Re: rheumatic Re: Antibiotics

Hi everybody, This is Dolores from NYC. Last year during my darkest hours when

I was being told by the experts in the field, that Scleroderma & R/A were

incurable and all they could do was treat the symptoms, my docs were appalled

that I refused to take Methotrexate and the rest of the poisonous cocktails they

offered. An angel from the Roadbackfoundation Bulletin Board told me about A/P

and the docs tsk! tsk'ed me and shook their heads. Well, I found an A/P doc in

Boston and today, these same docs are singing a different tune. They are totally

amazed and look at me in a new light. They are calling each other up and saying

things like, " her symptoms are reversing. " " She looks good! " " Skin is soft! " " No

pain meds needed! " , " She just turned 70 this week and looks fabulous! " " We can't

explain it, but wait till you see her! " " Everything is going back to normal! "

" She gained back all the weight she lost. " Not anemic anymore! " You get the

picture! I have been on

Minocin and Minocin only for S/D & R/A since the last week of Christmas 2005.

My recovery started from the first month and kept on going and going like the

energizer bunny. In my 7th month, I had a setback and felt, Oh!, Oh!, " I spoke

too soon. But I stuck to it. I was diagnosed last August and have just gone back

to these, so called experts for my yearly check up! The only way to convert

these unbelievers is one at a time. Stick to your guns and don't just talk the

talk, but walk the walk and show them. I bet by next year, there will be a whole

lot more S/D'er's in NYC starting on antibiotics. I just had a celebration and

threw myself a birthday party and looking forward to many more years happily

enjoying this planet with my husband of 31 yrs. Dolores & Mike Rosner

.

[Guest guest]

Maggy.... (f you felt you were doing considerably better after only 7

weeks, I would wait another 7 weeks and once again skip a day. That will let

you

know if you are definitely doing well. It does sound really good. I was

totally pain free after the first four months. I was also told I was one of

the

luckier ones to do so well so fast, Everyone is different, some are much

sicker than others. Heres hoping in a couple of months when you try skipping a

dose you find your pains really at a minimum!!! Martha

[Guest guest]

Hi,

..Bonnie here needing more advice.

As I said befor I have been on AP for 11 months now & I am experincing

strange things.

#1 If I take my minocycline in the morning with my synthroid I get real

light sencetive in my eyes for about 2 hours ,I don't have this problem at

night.

#2 I'm beginning to be able to taste something odd in my sweat. I tried just

taking 1 mino a day & the strange sweat taste didn't happen. & the eyes were

alright.

Something very simalar to this happened when I drank ALOE VERA for 2 months

& it was a healing process that worked

Has anyone else experienced any thing like this? somewhere in the back of my

mind I keep hearing my GP telling me " we don't want to breed a super virus "

#3 I do feel better I guess .My last flair only lasted 6 days, they used to

be 2 months I'm on AP for reactive arthritice ,so it's hard to tell if i'm

improving as I am not in constant pain just spells that feel a lot like labor

pains.

#4 does this taste mean that my body is getting rid of unnessary mino? am I

taking to much drugs ?could I be doing harm ?

please advise, Bonnie in Seattle

[Guest guest]

Hi Bonnie;

I can't remember exactly what I read but it seems to me that there

might be something about that at www.marshallprotocol.com. Lynne G. SD

Beaconbonnie@... wrote:

> Hi,

> .Bonnie here needing more advice.

> As I said befor I have been on AP for 11 months now & I am experincing

> strange things.

> #1 If I take my minocycline in the morning with my synthroid I get real

> light sencetive in my eyes for about 2 hours ,I don't have this

> problem at night.

> #2 I'm beginning to be able to taste something odd in my sweat. I

> tried just

> taking 1 mino a day & the strange sweat taste didn't happen. & the eyes

> were

> alright.

> Something very simalar to this happened when I drank ALOE VERA for 2

> months

> & it was a healing process that worked

> Has anyone else experienced any thing like this? somewhere in the back

> of my

> mind I keep hearing my GP telling me " we don't want to breed a super

> virus "

> #3 I do feel better I guess .My last flair only lasted 6 days, they

> used to

> be 2 months I'm on AP for reactive arthritice ,so it's hard to tell if

> i'm

> improving as I am not in constant pain just spells that feel a lot

> like labor

> pains.

> #4 does this taste mean that my body is getting rid of unnessary mino?

> am I

> taking to much drugs ?could I be doing harm ?

> please advise, Bonnie in Seattle

>

>

[Guest guest]

Thanks Martha, I will try that. I am also finding out that dairy foods really

do aggravate the pain for me if I overdo, it which I did recently. Thank you

for your support, it means so much!

Maggy

Re: rheumatic Re: Antibiotics

Maggy.... (f you felt you were doing considerably better after only 7

weeks, I would wait another 7 weeks and once again skip a day. That will let

you

know if you are definitely doing well. It does sound really good. I was

totally pain free after the first four months. I was also told I was one of

the

luckier ones to do so well so fast, Everyone is different, some are much

sicker than others. Heres hoping in a couple of months when you try skipping a

dose you find your pains really at a minimum!!! Martha

[Guest guest]

Could you tell me how you are taking the antibiotics ? Twice daily? Mon. wed and

fri? once a day or twice a day?

Re: rheumatic Re: Antibiotics

In a message dated 8/12/2006 6:24:27 P.M. Central Daylight Time,

Beaconbonnie@... writes:

I got the antibiotics from a naturalpath she isn't the best one to ask

questions to .I think they are helping because my flair ups used to last 2

months

,I just got over one & it only lasted 6 days.Is it time to slow down on

them

?like once a day or 3 times A week ?

Is that how we improve? or will they just stop happening altogether? any

input will be appreciated.

Thanks for your help

Bonnie.......Keep on the daily schedule of Minocin for now. When I first

started on Minocin I stayed on it for three months after all my pain and aches

had totally disappeared. I felt great but my doc had me wait until all my

bloodwork went into normal zones. Then and only then did I go to the three day

a week schedule. I still occasionally go back on a daily regime when my

feet act up. I continue my daily dosing for several weeks after all pain has

stopped. This has worked well for me and I just thought I would pass it on

for your input. Hope you get rid of all your aches and pains soon. Martha

[Guest guest]

Hi Glenda,

I am taking Minocycline 100 mg. twice daily, everyday.

Maggy

Re: rheumatic Re: Antibiotics

Hi,

I have been taking antibiotics for only 7.5 weeks now. The only other thing I

take for my RA/Lupus at this time is Celebrex. Prior to this I had refused all

the other meds that had been suggested and prescribed so by the time I learned

of the AP I was in pretty bad shape. I had severe stiffness all day and mostly

swelling in my hands/wrists, and feet/ankles but my spine and jaw were also

beginning to be affected. There were many days when it was bad enough that I

could not drive. None of the stuff that is sold OTC was ever of any help so I

didn't bother to take it. When I started with the treatment, the Celebrex

provided tremendous relief immediately and my doctor has told me that it was

necessary to control the swelling in order for the antibiotic to do it's job.

This makes sense to me. There have been 2 occasions now where I have neglected

to take my once a day dose of Celebrex. (Once I forgot and once I left it at

home and was out) The first time was pretty much! back to my original condition

without meds. The swelling and the pain were awful and I could barely climb out

of bed in the am. The second time, a couple of weeks later, I felt very stiff

but not nearly as bad as the first time. This seems to me a sign that the

antibiotics are working. Has anyone experienced relief in such a short time? I

don't believe I am anywhere near remission but I did notice enough of a

difference to indicate some improvement. I know it is still a long road ahead of

me and I am willing to get there slowly. My other question is, what tests are

the ones that show the biggest changes first? My doctor is really not very

impressed with AP and is sort of " humoring me " by " letting me " try it. Even

though I know test results are not always indicative, I know the doc will want

to see proof that I am getting better. I am hoping that at some point I will no

longer need the Celebrex daily or at all. I just want to know what to look! for

since my doctor THINKS I will surely give up soon and ask for Met hotrexate and

Plaquenil. I am trying to make sure not to miss a dose since it throws

everything off kilter. How will I know when to start weaning off of it? Is there

anyone here taking only Celebrex (or something similar) in conjunction with the

AP? I'm worried about the long term effects of it. Thanks for reading my long

post.

Maggy Alonso

www.AMothersTouchPhoto.com

.

[Guest guest]

How long have you been taking the minocyline

Re: rheumatic Re: Antibiotics

Hi,

I have been taking antibiotics for only 7.5 weeks now. The only other thing I

take for my RA/Lupus at this time is Celebrex. Prior to this I had refused all

the other meds that had been suggested and prescribed so by the time I learned

of the AP I was in pretty bad shape. I had severe stiffness all day and mostly

swelling in my hands/wrists, and feet/ankles but my spine and jaw were also

beginning to be affected. There were many days when it was bad enough that I

could not drive. None of the stuff that is sold OTC was ever of any help so I

didn't bother to take it. When I started with the treatment, the Celebrex

provided tremendous relief immediately and my doctor has told me that it was

necessary to control the swelling in order for the antibiotic to do it's job.

This makes sense to me. There have been 2 occasions now where I have neglected

to take my once a day dose of Celebrex. (Once I forgot and once I left it at

home and was out) The first time was pretty much! back to ! my original

condition without meds. The swelling and the pain were awful and I could barely

climb out of bed in the am. The second time, a couple of weeks later, I felt

very stiff but not nearly as bad as the first time. This seems to me a sign that

the antibiotics are working. Has anyone experienced relief in such a short time?

I don't believe I am anywhere near remission but I did notice enough of a

difference to indicate some improvement. I know it is still a long road ahead of

me and I am willing to get there slowly. My other question is, what tests are

the ones that show the biggest changes first? My doctor is really not very

impressed with AP and is sort of " humoring me " by " letting me " try it. Even

though I know test results are not always indicative, I know the doc will want

to see proof that I am getting better. I am hoping that at some point I will no

longer need the Celebrex daily or at all. I just want to know what to look! for

since my docto! r THINKS I will surely give up soon and ask for Met hotrexate

and Plaq uenil. I am trying to make sure not to miss a dose since it throws

everything off kilter. How will I know when to start weaning off of it? Is there

anyone here taking only Celebrex (or something similar) in conjunction with the

AP? I'm worried about the long term effects of it. Thanks for reading my long

post.

Maggy Alonso

www.AMothersTouchPhoto.com

.

[Guest guest]

Almost 3 months now.

Re: rheumatic Re: Antibiotics

Hi,

I have been taking antibiotics for only 7.5 weeks now. The only other thing I

take for my RA/Lupus at this time is Celebrex. Prior to this I had refused all

the other meds that had been suggested and prescribed so by the time I learned

of the AP I was in pretty bad shape. I had severe stiffness all day and mostly

swelling in my hands/wrists, and feet/ankles but my spine and jaw were also

beginning to be affected. There were many days when it was bad enough that I

could not drive. None of the stuff that is sold OTC was ever of any help so I

didn't bother to take it. When I started with the treatment, the Celebrex

provided tremendous relief immediately and my doctor has told me that it was

necessary to control the swelling in order for the antibiotic to do it's job.

This makes sense to me. There have been 2 occasions now where I have neglected

to take my once a day dose of Celebrex. (Once I forgot and once I left it at

home and was out) The first time was pretty much! back to ! my original

condition without meds. The swelling and the pain were awful and I could barely

climb out of bed in the am. The second time, a couple of weeks later, I felt

very stiff but not nearly as bad as the first time. This seems to me a sign that

the antibiotics are working. Has anyone experienced relief in such a short time?

I don't believe I am anywhere near remission but I did notice enough of a

difference to indicate some improvement. I know it is still a long road ahead of

me and I am willing to get there slowly. My other question is, what tests are

the ones that show the biggest changes first? My doctor is really not very

impressed with AP and is sort of " humoring me " by " letting me " try it. Even

though I know test results are not always indicative, I know the doc will want

to see proof that I am getting better. I am hoping that at some point I will no

longer need the Celebrex daily or at all. I just want to know what to look! for

since my docto! r THINKS I will surely give up soon and ask for Met hotrexate

and Plaq uenil. I am trying to make sure not to miss a dose since it throws

everything off kilter. How will I know when to start weaning off of it? Is there

anyone here taking only Celebrex (or something similar) in conjunction with the

AP? I'm worried about the long term effects of it. Thanks for reading my long

post.

Maggy Alonso

www.AMothersTouchPhoto.com

.

[Guest guest]

I know this seems off the subject, but have you done a Western Blot test for

Lyme disease? After having been diagnosed with R.A., Lupus, Sjogrens, and

finally Lyme, I am convinced this all started with lyme disease. Time is on

your side--please get tested. And read about the Western Blot, because the

CDC tried to develop a vaccine and elimitated two of the most important

findings on the Western Blot. I would give so much to have known then what I

know

now. I have had many surgeries to correct deformity, have saved a couple of

people from a lifetime of R.A., and want the information out there for others.

[Guest guest]

Hi ,

It seems I've traveled a similar path as you. I finally had the Western

Blot test and got on AP (April 05) and am doing well. I still am chemically

sensitive which is difficult; a primary issue is trying to live

fragrance-free in a heavily scented world.

I try to tell everyone I can about Lyme's and AP because I really believe

it's an undiagnosed epidemic and AP is the solution. I'm so thankful for

this support group and the good things that are being done here. El

Re: rheumatic Re: Antibiotics

I know this seems off the subject, but have you done a Western Blot test

for

Lyme disease? After having been diagnosed with R.A., Lupus, Sjogrens, and

finally Lyme, I am convinced this all started with lyme disease. Time is

on

your side--please get tested. And read about the Western Blot, because the

CDC tried to develop a vaccine and elimitated two of the most important

findings on the Western Blot. I would give so much to have known then what

I know

now. I have had many surgeries to correct deformity, have saved a couple

of

people from a lifetime of R.A., and want the information out there for

others.

[Guest guest]

I wonder if the staph infection is allergy related? My pediatrician says

dark circles = allergies. Both my kids get loose stools from

antibiotics. Bananas and rice are our top binders so you got me there.

Maybe a rice cracker? We have a constipation issue with daughter. If

only we could wave a wand and meet in the middle!

alilvrs wrote:

>My son is on strong antibiotics for a staph infection. Its some sort

>of antibiotic resistant form, so they are very strong. Needless to say

>he is super cranky, he had a cold all week on top of everything -

>unless it was allergies (he does have dark circles under his eyes). He

>has been having very loose stools. i dont want to give him more milk

>(we've been trying to get him to take rice milk to no avail) or

>cheese, but what can i give him to help bind him? he's been living on

>applesauce and bananas. for a kid with a limited menu as it is, this

>is hard! any ideas from anyone out there? also, any reactions to

>antibiotics of note?

>thanks

>alexis

>

>

>

>

[Guest guest]

is

Get some probiotics fast! The antibiotics are also killing all the good

gut flora (thus the loose stools and crankiness). Probiotics do not

interfere with the antibiotics work so no fear - it's more that the

probiotics will be killed by the antibiotic if taken at the same moment.

Give the probiotics on an empty stomach half way between the antibiotic

doses...it may take a little while to see improvements in his stools but

give them without fail.

Ask in the pharmacy for a good multi Lactobacillus probiotic that does

not contain milk products - go for powder capsules rather than caplets -

you can empty the capsules into a drink or mix it in a little applesauce.

Hang tough on not giving milk or cheese - especially since he's already

having loose stools from the effects of the antibiotics.

alilvrs ha scritto:

> My son is on strong antibiotics for a staph infection. Its some sort

> of antibiotic resistant form, so they are very strong. Needless to say

> he is super cranky, he had a cold all week on top of everything -

> unless it was allergies (he does have dark circles under his eyes). He

> has been having very loose stools. i dont want to give him more milk

> (we've been trying to get him to take rice milk to no avail) or

> cheese, but what can i give him to help bind him? he's been living on

> applesauce and bananas. for a kid with a limited menu as it is, this

> is hard! any ideas from anyone out there? also, any reactions to

> antibiotics of note?

> thanks

> alexis

>

>

[Guest guest]

VSL #3 is a FABULOUS probiotic!

[sPAM] Re: [ ] Antibiotics

is

Get some probiotics fast! The antibiotics are also killing all the good

gut flora (thus the loose stools and crankiness). Probiotics do not

interfere with the antibiotics work so no fear - it's more that the

probiotics will be killed by the antibiotic if taken at the same moment.

Give the probiotics on an empty stomach half way between the antibiotic

doses...it may take a little while to see improvements in his stools but

give them without fail.

Ask in the pharmacy for a good multi Lactobacillus probiotic that does

not contain milk products - go for powder capsules rather than caplets -

you can empty the capsules into a drink or mix it in a little applesauce.

Hang tough on not giving milk or cheese - especially since he's already

having loose stools from the effects of the antibiotics.

alilvrs ha scritto:

> My son is on strong antibiotics for a staph infection. Its some sort

> of antibiotic resistant form, so they are very strong. Needless to say

> he is super cranky, he had a cold all week on top of everything -

> unless it was allergies (he does have dark circles under his eyes). He

> has been having very loose stools. i dont want to give him more milk

> (we've been trying to get him to take rice milk to no avail) or

> cheese, but what can i give him to help bind him? he's been living on

> applesauce and bananas. for a kid with a limited menu as it is, this

> is hard! any ideas from anyone out there? also, any reactions to

> antibiotics of note?

> thanks

> alexis

>

>