New to group

[Guest guest]

Hi Sara,

Thanks for the welcome and quick reply. It was great to hear about your son and

see that he has found a life for himself that seems to suit him. I am trying to

think of transition now as sometimes I have no clue as to what Jake might do in

the future. Sometimes he is so connected to what he is doing and then moments

later is in " another world " . The main thing is to find something that he likes

doing for a number of hours at one time. I think this will be the year where we

start answering some of the questions regarding his inclinations/talents and

start strengthening those skills. Jake will be having a bar-mitzvah this Spring

which will be very moving and really mark this transition to manhood. (It is

not so much a religious ritual for us/him but meaningful just the same.) He

knows what it is and I think, having seen others' in the family wants one for

himself!

Anyway, glad to hear from you and about your son, Elie. I look forward to more.

> To:

> From: pastmidvale@...

> Date: Fri, 14 Dec 2007 10:33:34 -0500

> Subject: Re: New to group

>

>

> we are so glad to have more people join this list - especially

> families with " older " kids.

>

> My son Elie, is 22, now attends a center day/work program after various

> interventions over the years. HE was included in school with an aid thru

> 4th grade, getting very unsuccessful after third grade (I refused to give

> up!!!) and then self contained except for " specials " in middle school, which

> was a comfortable time for him. H/S in our local district was not a good

> fit . Nor was the center school inour district. So Elie went to a private,

> state approved (and paid for) school for ages 15-21 in a neighboring

> community. Then we moved and found out that in our new state, Elie

> qualified for another year of FAPE. AND that in the new community he would

> fit beautifully in a self contained (in the h/s) class with a teacher who

> had many years experience with ds AND AUTISM!!! HE had the best year of his

> life and grew tremendously. DId he pass SATS???? NO, but he became more

> responsible, learned to use a schedule so he could plan and predict his own

> life (as opposed to being given a schedule to follow) and he learned to work

> and appreciate the benefit of working.

>

> This led us to the Burnt Mountain Center where he spends his days at both

> work (he stuffs newspapers for Sunday) and play (acitvity room and

> basketball, bowling, mini golf, other opportuniuties to be a guy in town. I

> think he likes his life most of the time.

>

> Again, welcome to the conversation.

>

> On Dec 14, 2007 10:06 AM, Thiele

_________________________________________________________________

Don't get caught with egg on your face. Play Chicktionary!

http://club.live.com/chicktionary.aspx?icid=chick_wlhmtextlink1_dec

[Guest guest]

Elie did not have his Bar Mitzvah as at that age he was way too much in his

" dream world " . Now, in our new community, they would LOVEf or him to do

this ritual, but we are not so interested. IT is a thought for another

time. Too many other issues at this time to even think about that one.

Elie's big thrill is that one of his mentors (for 5 years) is getting

married summer of 2009. Elie is to be in the wedding. HE is already

planning his speech (best men must make a speech) on how the guys can get

wives but still have to be guys - figure out how he is getting this thought

across when he speaks in three word sound bites!!??! But we do know what he

wants to say.

Elie's longest work stint is 2 hours at a time. Then he takes a break. That

is one of the myriad of reasons that we are not rushing for him to work in

" the community " . In GA, the goals is supposed to be for everyone to work

independently and live independantly in the community. I cannot envision

either of those things in my dream for Elie's future.

We are not even talking about the safety issues involved with someone who

thinks everyone is a buddy and that ice cream and trucks mean the owner is a

great buddy - if he can ride shotgun!!!

>

> Hi Sara,

> Thanks for the welcome and quick reply. It was great to hear about your

> son and see that he has found a life for himself that seems to suit him. I

> am trying to think of transition now as sometimes I have no clue as to what

> Jake might do in the future. Sometimes he is so connected to what he is

> doing and then moments later is in " another world " . The main thing is to

> find something that he likes doing for a number of hours at one time. I

> think this will be the year where we start answering some of the questions

> regarding his inclinations/talents and start strengthening those skills.

> Jake will be having a bar-mitzvah this Spring which will be very moving and

> really mark this transition to manhood. (It is not so much a religious

> ritual for us/him but meaningful just the same.) He knows what it is and I

> think, having seen others' in the family wants one for himself!

>

> Anyway, glad to hear from you and about your son, Elie. I look forward to

> more.

>

>

> > To:

> > From: pastmidvale@... <pastmidvale%40gmail.com>

> > Date: Fri, 14 Dec 2007 10:33:34 -0500

> > Subject: Re: New to group

> >

> >

> > we are so glad to have more people join this list - especially

> > families with " older " kids.

> >

> > My son Elie, is 22, now attends a center day/work program after various

> > interventions over the years. HE was included in school with an aid thru

> > 4th grade, getting very unsuccessful after third grade (I refused to

> give

> > up!!!) and then self contained except for " specials " in middle school,

> which

> > was a comfortable time for him. H/S in our local district was not a good

> > fit . Nor was the center school inour district. So Elie went to a

> private,

> > state approved (and paid for) school for ages 15-21 in a neighboring

> > community. Then we moved and found out that in our new state, Elie

> > qualified for another year of FAPE. AND that in the new community he

> would

> > fit beautifully in a self contained (in the h/s) class with a teacher

> who

> > had many years experience with ds AND AUTISM!!! HE had the best year of

> his

> > life and grew tremendously. DId he pass SATS???? NO, but he became more

> > responsible, learned to use a schedule so he could plan and predict his

> own

> > life (as opposed to being given a schedule to follow) and he learned to

> work

> > and appreciate the benefit of working.

> >

> > This led us to the Burnt Mountain Center where he spends his days at

> both

> > work (he stuffs newspapers for Sunday) and play (acitvity room and

> > basketball, bowling, mini golf, other opportuniuties to be a guy in

> town. I

> > think he likes his life most of the time.

> >

> > Again, welcome to the conversation.

> >

> > On Dec 14, 2007 10:06 AM, Thiele

> __________________________________________________________

> Don't get caught with egg on your face. Play Chicktionary!

> http://club.live.com/chicktionary.aspx?icid=chick_wlhmtextlink1_dec

>

>

>

--

Sara - Life is a journey- we choose the path.

[Guest guest]

Hi Mellissa welcome to the group.

To: @...: melissad@...: Tue, 15 Jan

2008 15:34:44 -0600Subject: New to Group

Hello to all!We are new to the group and I am so excited to have found you all.

My nameis , my husband is Shaugn and we have two children Logan (DS/ASD)

8and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.Keck.

We have really struggled trying to find a place where we belong as afamily, as I

am sure you are familiar with. Logan almost all speech at 4,just around the time

Emma was born and we moved. That year of school was atotal waste, but we thought

it was just the teacher as he changed schools,as well. It was a rough road, but

the dx of ASD was really a blessing. Weno longer feel like we are horrible

parents that cannot discipline ourchild, etc., etc.Logan is in a self-contained

class and has had an Autism Assistance dogsince November of 06. Her name is

Akira and she has changed our lives.Logan sleeps better during the night and is

more independent and safe inpublic.I know this sounds silly, but finding this

group is awesome! Davenport[Non-text portions of this message have been

removed]

_________________________________________________________________

Share life as it happens with the new Windows Live.

http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008

[Guest guest]

! Welcome!

Liz-mom to Tori 8 on 2.23

New to Group

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

: Where did you get Akira from?

Liz

New to Group

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

What does your autism dog do? We tried a border collie for Elie when he was

a kid who headed for double yellow lines - but the dog jut nipped his ankles

- which he ignored!!!

On Jan 15, 2008 4:34 PM, L. Davenport

wrote:

> Hello to all!

>

> We are new to the group and I am so excited to have found you all. My name

> is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

> and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

> Keck. We have really struggled trying to find a place where we belong as a

> family, as I am sure you are familiar with. Logan almost all speech at 4,

> just around the time Emma was born and we moved. That year of school was a

> total waste, but we thought it was just the teacher as he changed schools,

> as well. It was a rough road, but the dx of ASD was really a blessing. We

> no longer feel like we are horrible parents that cannot discipline our

> child, etc., etc.

>

> Logan is in a self-contained class and has had an Autism Assistance dog

> since November of 06. Her name is Akira and she has changed our lives.

> Logan sleeps better during the night and is more independent and safe in

> public.

>

> I know this sounds silly, but finding this group is awesome!

>

> Davenport

>

>

[Guest guest]

Welcome !

Glad you found us all. Can't wait to hear more about you and your family.

Holly

in PA

Mom to Jake 8, DS/PDD and Mia 10 CSTS (Cant stop talking syndrome)

New to Group

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

CSTS?? Wow, I though my Emma (TDC) was the only one!

Shaugn M. Davenport

Senior Technologist

HBMJ Consulting, LLC

Office: 1. ext. 19

International: +1. ext. 19

________________________________

From: on behalf of Holly Giglio

Sent: Tue 1/15/2008 4:46 PM

To:

Subject: Re: New to Group

Welcome !

Glad you found us all. Can't wait to hear more about you and your family.

Holly

in PA

Mom to Jake 8, DS/PDD and Mia 10 CSTS (Cant stop talking syndrome)

New to Group

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

We got her from 4 Paws for Ability in Xenia, OH. They are a little

different from other organizations in that the child does not have to be of

a certain age and they allow the families to their own fundraising so there

is not as long of a waiting list.

_____

From: [mailto: ] On Behalf

Of Liz DeSantis

Sent: Tuesday, January 15, 2008 3:41 PM

To:

Subject: Re: New to Group

: Where did you get Akira from?

Liz

New to Group

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

Welcome, . The DS/ASD diagnosis is just creates a unique set of

circumstances that no one else can understand. It's nice to have this group for

us all; welcome to it.

Beth, mom to , age 8, with DS, autism, and a leukemia survivor; also mom to

, 14, and , 11

New to Group

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

Logan is tethered to Akira when we are in public. He cannot dart off into

traffic or walk off with a stranger. She goes to church and restaurants

with us and Loan is tethered, but if he is having trouble coping, he also

sits by her or takes his shoes off to rub his feet on her fur. I have also

caught him rubbing her ear together with his fingers as if it were a ribbon.

She goes on field trips and sleeps with him, too. With time, she is

becoming his best friend. She is awesome! And I am so not dog person!!!

Let me know if you want any more info.

4pawsforability.org is the web site - they do all sorts of assistance dogs.

_____

From: [mailto: ] On Behalf

Of Sara Cohen

Sent: Tuesday, January 15, 2008 3:41 PM

To:

Subject: Re: New to Group

What does your autism dog do? We tried a border collie for Elie when he was

a kid who headed for double yellow lines - but the dog jut nipped his ankles

- which he ignored!!!

On Jan 15, 2008 4:34 PM, L. Davenport <melissad@genevasolu

<mailto:melissad%40genevasolutions.com> tions.com>

wrote:

> Hello to all!

>

> We are new to the group and I am so excited to have found you all. My name

> is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

> and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

> Keck. We have really struggled trying to find a place where we belong as a

> family, as I am sure you are familiar with. Logan almost all speech at 4,

> just around the time Emma was born and we moved. That year of school was a

> total waste, but we thought it was just the teacher as he changed schools,

> as well. It was a rough road, but the dx of ASD was really a blessing. We

> no longer feel like we are horrible parents that cannot discipline our

> child, etc., etc.

>

> Logan is in a self-contained class and has had an Autism Assistance dog

> since November of 06. Her name is Akira and she has changed our lives.

> Logan sleeps better during the night and is more independent and safe in

> public.

>

> I know this sounds silly, but finding this group is awesome!

>

> Davenport

>

>

[Guest guest]

My wife sells herself short here. Not only is she not a " dog person " . She is

quite allergic to them and has been going for shots for almost two years so that

Logan can have the benefit of this dog. A couple of weeks ago, we were at my

Grandmothers house with a dozen or so other adults. Logan managed to sneak out

without anyone noticing. One of Akira's primary functions is search and rescue

or tracking. hooked her up, told her to track, and Akira found Logan

in a couple of minutes.

Shaugn M. Davenport

Senior Technologist

HBMJ Consulting, LLC

Office: 1. ext. 19

International: +1. ext. 19

________________________________

From: on behalf of L. Davenport

Sent: Tue 1/15/2008 5:11 PM

To:

Subject: RE: New to Group

Logan is tethered to Akira when we are in public. He cannot dart off into

traffic or walk off with a stranger. She goes to church and restaurants

with us and Loan is tethered, but if he is having trouble coping, he also

sits by her or takes his shoes off to rub his feet on her fur. I have also

caught him rubbing her ear together with his fingers as if it were a ribbon.

She goes on field trips and sleeps with him, too. With time, she is

becoming his best friend. She is awesome! And I am so not dog person!!!

Let me know if you want any more info.

4pawsforability.org is the web site - they do all sorts of assistance dogs.

_____

From: <mailto:%40yahoogroups.com>

[mailto: <mailto:%40yahoogroups.com> ] On

Behalf

Of Sara Cohen

Sent: Tuesday, January 15, 2008 3:41 PM

To: <mailto:%40yahoogroups.com>

Subject: Re: New to Group

What does your autism dog do? We tried a border collie for Elie when he was

a kid who headed for double yellow lines - but the dog jut nipped his ankles

- which he ignored!!!

On Jan 15, 2008 4:34 PM, L. Davenport <melissad@genevasolu

<mailto:melissad%40genevasolutions.com> tions.com>

wrote:

> Hello to all!

>

> We are new to the group and I am so excited to have found you all. My name

> is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

> and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

> Keck. We have really struggled trying to find a place where we belong as a

> family, as I am sure you are familiar with. Logan almost all speech at 4,

> just around the time Emma was born and we moved. That year of school was a

> total waste, but we thought it was just the teacher as he changed schools,

> as well. It was a rough road, but the dx of ASD was really a blessing. We

> no longer feel like we are horrible parents that cannot discipline our

> child, etc., etc.

>

> Logan is in a self-contained class and has had an Autism Assistance dog

> since November of 06. Her name is Akira and she has changed our lives.

> Logan sleeps better during the night and is more independent and safe in

> public.

>

> I know this sounds silly, but finding this group is awesome!

>

> Davenport

>

>

[Guest guest]

Hi ,

We were thinking of getting a companion dog for our son Cole. How did you

go about getting in touch with someone to get your dog, it seems like there are

so many options when you google it on the internet.

To: @...: liz.desantis@...: Tue, 15 Jan 2008

16:39:41 -0500Subject: Re: New to Group

! Welcome!Liz-mom to Tori 8 on 2.23 New to GroupHello to all!We are new to the

group and I am so excited to have found you all. My nameis , my husband

is Shaugn and we have two children Logan (DS/ASD) 8and Emma 4. Logan was

diagnosed with ASD at 6 yrs of age after seeing Dr.Keck. We have really

struggled trying to find a place where we belong as afamily, as I am sure you

are familiar with. Logan almost all speech at 4,just around the time Emma was

born and we moved. That year of school was atotal waste, but we thought it was

just the teacher as he changed schools,as well. It was a rough road, but the dx

of ASD was really a blessing. Weno longer feel like we are horrible parents that

cannot discipline ourchild, etc., etc.Logan is in a self-contained class and has

had an Autism Assistance dogsince November of 06. Her name is Akira and she has

changed our lives.Logan sleeps better during the night and is more independent

and safe inpublic.I know this sounds silly, but finding this group is

awesome! Davenport[Non-text portions of this message have been

removed]

[Guest guest]

sorry our posts must have crossed. I see your web address from a previous post

Thanks

To: @...: ildteacher@...: Tue, 15 Jan 2008

16:23:18 -0600Subject: RE: New to Group

Hi ,We were thinking of getting a companion dog for our son Cole. How did

you go about getting in touch with someone to get your dog, it seems like there

are so many options when you google it on the internet.To:

@...: liz.desantis@...: Tue, 15 Jan 2008

16:39:41 -0500Subject: Re: New to Group! Welcome!Liz-mom to

Tori 8 on 2.23

New to GroupHello to all!We are new to the group and I am so excited

to have found you all. My nameis , my husband is Shaugn and we have two

children Logan (DS/ASD) 8and Emma 4. Logan was diagnosed with ASD at 6 yrs of

age after seeing Dr.Keck. We have really struggled trying to find a place where

we belong as afamily, as I am sure you are familiar with. Logan almost all

speech at 4,just around the time Emma was born and we moved. That year of school

was atotal waste, but we thought it was just the teacher as he changed

schools,as well. It was a rough road, but the dx of ASD was really a blessing.

Weno longer feel like we are horrible parents that cannot discipline ourchild,

etc., etc.Logan is in a self-contained class and has had an Autism Assistance

dogsince November of 06. Her name is Akira and she has changed our lives.Logan

sleeps better during the night and is more independent and safe inpublic.I know

this sounds silly, but finding this group is awesome! Davenport[Non-text

portions of this message have been removed][Non-text portions of this message

have been removed] __________________________________________________________Get

the power of Windows + Web with the new Windows

Live.http://www.windowslive.com?ocid=TXT_TAGHM_Wave2_powerofwindows_012008[Non-t\

ext portions of this message have been removed]

_________________________________________________________________

Put your friends on the big screen with Windows Vista® + Windows Live™.

http://www.microsoft.com/windows/shop/specialoffers.mspx?ocid=TXT_TAGLM_CPC_Medi\

aCtr_bigscreen_012008

[Guest guest]

,

I also belong to Ups for Downs so I think we are close if you ever want to

see how this works.

Re: New to Group! Welcome!Liz-mom

to Tori 8 on 2.23

New to GroupHello to all!We are new to the group and I am so

excited to have found you all. My nameis , my husband is Shaugn and

we have two children Logan (DS/ASD) 8and Emma 4. Logan was diagnosed with

ASD at 6 yrs of age after seeing Dr.Keck. We have really struggled trying to

find a place where we belong as afamily, as I am sure you are familiar with.

Logan almost all speech at 4,just around the time Emma was born and we

moved. That year of school was atotal waste, but we thought it was just the

teacher as he changed schools,as well. It was a rough road, but the dx of

ASD was really a blessing. Weno longer feel like we are horrible parents

that cannot discipline ourchild, etc., etc.Logan is in a self-contained

class and has had an Autism Assistance dogsince November of 06. Her name is

Akira and she has changed our lives.Logan sleeps better during the night and

is more independent and safe inpublic.I know this sounds silly, but finding

this group is awesome! Davenport[Non-text portions of this message

have been removed]

[Guest guest]

, we are glad you found us too. Where are you located???

Tell us about your dog, please. This has been an on and off discussion if

you check the archives!

> Welcome !

> Glad you found us all. Can't wait to hear more about you and your family.

> Holly

> in PA

> Mom to Jake 8, DS/PDD and Mia 10 CSTS (Cant stop talking syndrome)

> New to Group

>

> Hello to all!

>

> We are new to the group and I am so excited to have found you all. My name

> is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

> and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

> Keck. We have really struggled trying to find a place where we belong as a

> family, as I am sure you are familiar with. Logan almost all speech at 4,

> just around the time Emma was born and we moved. That year of school was a

> total waste, but we thought it was just the teacher as he changed schools,

> as well. It was a rough road, but the dx of ASD was really a blessing. We

> no longer feel like we are horrible parents that cannot discipline our

> child, etc., etc.

>

> Logan is in a self-contained class and has had an Autism Assistance dog

> since November of 06. Her name is Akira and she has changed our lives.

> Logan sleeps better during the night and is more independent and safe in

> public.

>

> I know this sounds silly, but finding this group is awesome!

>

> Davenport

>

>

[Guest guest]

I would love to learn more about the service dog. It sounds like Cole has some

similar issues. Escaping being a big one and no fear of others, he especially

loves big burley men, the more facial hair the better, and the crepier the

better. (He has such a good heart:-) Sleep is also huge in our household, a

typical night when medicated is about 3-5 hours. Does the dog sleep with him or

does he just stay in the room? Well thanks for the info. We should chat

sometime my home e-mail is ildteacher@...

To: @...: melissad@...: Tue, 15 Jan

2008 16:31:43 -0600Subject: RE: New to Group

,I also belong to Ups for Downs so I think we are close if you ever want

tosee how this works. Re:

New to Group! Welcome!Liz-momto Tori 8 on 2.23 New to GroupHello to all!We are new

to the group and I am soexcited to have found you all. My nameis , my

husband is Shaugn andwe have two children Logan (DS/ASD) 8and Emma 4. Logan was

diagnosed withASD at 6 yrs of age after seeing Dr.Keck. We have really struggled

trying tofind a place where we belong as afamily, as I am sure you are familiar

with.Logan almost all speech at 4,just around the time Emma was born and

wemoved. That year of school was atotal waste, but we thought it was just

theteacher as he changed schools,as well. It was a rough road, but the dx ofASD

was really a blessing. Weno longer feel like we are horrible parentsthat cannot

discipline ourchild, etc., etc.Logan is in a self-containedclass and has had an

Autism Assistance dogsince November of 06. Her name isAkira and she has changed

our lives.Logan sleeps better during the night andis more independent and safe

inpublic.I know this sounds silly, but findingthis group is awesome!

Davenport[Non-text portions of this messagehave been removed][Non-text portions

of this message have been

removed]__________________________________________________________Get the power

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8

[Guest guest]

Akira actually sleeps with Logan. We found that a lot of Logan's night

waking issues were due to anxiety. Although they were helped a lot by

Risperdal, Akira sleeping with him really seems to have made a difference.

Now if we could only get his bladder to catch up! LOL!

Re: New to Group!

Welcome!Liz-momto Tori 8 on 2.23 New to GroupHello to all!We are new to the group

and I am soexcited to have found you all. My nameis , my husband is

Shaugn andwe have two children Logan (DS/ASD) 8and Emma 4. Logan was

diagnosed withASD at 6 yrs of age after seeing Dr.Keck. We have really

struggled trying tofind a place where we belong as afamily, as I am sure you

are familiar with.Logan almost all speech at 4,just around the time Emma was

born and wemoved. That year of school was atotal waste, but we thought it

was just theteacher as he changed schools,as well. It was a rough road, but

the dx ofASD was really a blessing. Weno longer feel like we are horrible

parentsthat cannot discipline ourchild, etc., etc.Logan is in a

self-containedclass and has had an Autism Assistance dogsince November of

06. Her name isAkira and she has changed our lives.Logan sleeps better

during the night andis more independent and safe inpublic.I know this sounds

silly, but findingthis group is awesome! Davenport[Non-text portions

of this messagehave been removed][Non-text portions of this message have

been removed]__________________________________________________________Get

the power ofWindows + Web with the new

WindowsLive.http://www.windowslive.com?ocid=TXT_TAGHM_Wave2_powerofwindows_0

12008

[Guest guest]

We have thought about looking for an assistance dog for Colton. Can

you tell us more about it?

Lori

[Guest guest]

,

Welcome to the group and hello to Logan! I have 5 children: Darriann, Dallass

(both married- 2 kids each), Danneen, Dorrthee and DJ (age 12, DS/ASD). DJ was

just diagnosed this fall with ASD at age 12. I, too, have found this group so

helpful and comforting!

Hugs,

Donnell

" L. Davenport " wrote:

Hello to all!

We are new to the group and I am so excited to have found you all. My name

is , my husband is Shaugn and we have two children Logan (DS/ASD) 8

and Emma 4. Logan was diagnosed with ASD at 6 yrs of age after seeing Dr.

Keck. We have really struggled trying to find a place where we belong as a

family, as I am sure you are familiar with. Logan almost all speech at 4,

just around the time Emma was born and we moved. That year of school was a

total waste, but we thought it was just the teacher as he changed schools,

as well. It was a rough road, but the dx of ASD was really a blessing. We

no longer feel like we are horrible parents that cannot discipline our

child, etc., etc.

Logan is in a self-contained class and has had an Autism Assistance dog

since November of 06. Her name is Akira and she has changed our lives.

Logan sleeps better during the night and is more independent and safe in

public.

I know this sounds silly, but finding this group is awesome!

Davenport

[Guest guest]

welcome - Irish and living in MA - who would have thought?? :~)

I know there are a few other countries represented in MA but IRISH always

comes to mind.

Glad to welcome you and your clan.

My son, Elie , (adopted in Israel) was 12 before we got a dx of DS with

Pdd-nos??/ASD?? so I know that you have long wonfdered why is your boy

different from other kids with DS??

> Hello

> My name is Kerry. My husband, Pat, and I live in Massachusetts with our 3

> children. (11), Orla (7) and Maeve (1).

> Our son, , has Down Syndrome and PDD-NOS. He was given the PDD-NOS

> diagnosis about 3 years ago.

> I am so happy to have found this group. I don't know anyone else with this

> dual diagnosis. It will be GREAT to " meet " others that understand our

> " unique " life.

>

> To add our " unique-ness " , (lol), my husband is from Ireland and we adopted

> Maeve from Vietnam last May. Orla is nearly 7 but seems like she is 30. We

> like to keep the neighbors guessing about us! lol. Oh and I also like

> American Idol.

>

> Kerry Donovan-Casey

> http://threecloversdesigns.blogspot.com/

> -------------------------------------

> Life does not have to be perfect to be wonderful.

> - Anonymous

> <

>

>

[Guest guest]

>

>

> Hi Everyone,

>

> My name is Pam and I am from Tn. I have 4 children and my yougest

two are identical twins with Down Syndrome. They are 6 years old.

There names are Hannah and .

>

> I have some concerns about because she is not progressing

as well as her twin. I have suspected she may be autistic since she

was 3 years old. I have ask her ped. about it but she says it's just

the ds. A few people have the same concerns as I do about her.

>

> I have joined the group in hopes of getting some answers and some

infomation. I hope I learn what I need to. Can anyone tell me what

to look for in my child? Thanks for letting me be a part of this

group.

>

> Pam

>

>

> Pam, I would see Dr. Capone at Kennedy Kreiger. He has

nothing but Ds Patients and can surely diagnose your child correctly.

His number is , he is in Baltimore. If you can make the

trip, even to just get the dx it is worth it. He is the best

around. Anyone who has attended any National DS conferences knows

him. He is good, humble, smart and thorough. He is associated with

Hopkins. The best and worth it. medicaid paid for it.

Sarno

> ---------------------------------

>

[Guest guest]

>

>

> Hi Everyone,

>

> My name is Pam and I am from Tn. I have 4 children and my yougest

two are identical twins with Down Syndrome. They are 6 years old.

There names are Hannah and .

>

> I have some concerns about because she is not progressing

as well as her twin. I have suspected she may be autistic since she

was 3 years old. I have ask her ped. about it but she says it's just

the ds. A few people have the same concerns as I do about her.

>

> I have joined the group in hopes of getting some answers and some

infomation. I hope I learn what I need to. Can anyone tell me what

to look for in my child? Thanks for letting me be a part of this

group.

>

> Pam

>

> Pam,

Go with your gut, you probably know better than anyone. It took us

until was 14 for a secondary dx. He missed out on a lot of

extra help and understanding. But he has gotten lots more help with

the 2nd dx. I should have NEVER listened to certain teachers and I

feel our Dr. did not understand the importance of bringing this

double dx to the school table with school plans and the extra help

needed. Very frustrating but worth it for that child. You

sound like you are on the correct track. I suspected this about

when he was 2. I was always told, just DS. But my heart knew

different and I was correct. Sigh... Keep at it!

>

> ---------------------------------

>

[Guest guest]

Hi I am Kris and I have come today along with and Rita from our Reece's Rainbow group. I too have adopted a child with Down syndrome, Kara, age 3 from Ukraine, but I also have a biological daughter with Down syndrome, Meghan age 7 I also have 5 older children, 4 adult sons; Fred, Terry, , and , and a teenage daughter . Later this year my family will travel to Estonia to adopt our 8th and last child, . She also has Down syndrome. She just turned 3. I have been dealing with sibling rivalry issues with Meghan and Kara and some skill regression with Meghan. Meghan does seem to be rebounding but what will happen when comes home? I am also wracking my brain about how to fit the kids in the minivan. I am wondering if anyone has heard of a specialized 3 seat car seat for the middle seat in the van? I know, wishful thinking... Kris

[Guest guest]

Kris, We have a 2002 Caravan. We moved the far back seat to the

middle (yes they have the latches for it) and then we moved the

middle to the back. Not the most convenient for anyone getting in

the back- we used the hatch door, but is flexible and that

way I don't have to remove the carseats. Good luck.

Sheila

>

> Hi I am Kris and I have come today along with and Rita

from our Reece's Rainbow group. I too have adopted a child with Down

syndrome, Kara, age 3 from Ukraine, but I also have a biological

daughter with Down syndrome, Meghan age 7 I also have 5 older

children, 4 adult sons; Fred, Terry, , and , and a teenage

daughter .

>

> Later this year my family will travel to Estonia to adopt our 8th

and last child, . She also has Down syndrome. She just turned

3.

>

> I have been dealing with sibling rivalry issues with Meghan and

Kara and some skill regression with Meghan. Meghan does seem to be

rebounding but what will happen when comes home? I am also

wracking my brain about how to fit the kids in the minivan. I am

wondering if anyone has heard of a specialized 3 seat car seat for

the middle seat in the van? I know, wishful thinking...

> Kris

>