Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Re: Elena from Romani Hello, Casey, I wish I can tell that in Romania the system is ok but is not! in Romania a lot of parents and doctors blame newborns wiht DS. When was born the doctor told us that he will lie in bed all his life. We went with for physio therapy since he had 8 months and for speech therapy since 18, but we pay a lot for this because the medically system is down. But not only this. In Romania children with DS or another medical problems are integrate in special schools. Only a few go in normal schools and they get a support teacher. Fortunately is pretty healthy. Now he walk alone through the whole house, he say a few words and he is able to understand us. He likes music so much and he is a great dancer. We are looking for a swim teacher but we didn t found anyone available. We are still looking for. About Vlad what can I tell! He loves and , he enjoy playing with them with balls, hide and seek , he pretend a horse and they ride on. I hope you understand me! Regards, Elena from Romania > > Welcome, Elena! > > It is nice that we are getting more members from outside the US, and your English is perfectly good, so worry about that! (I lived in Norway for some time, and wish I had been less cautious about speaking Norwegian!) > > I'll be interested to hear more about Romania and how the services are for children with DS. Is pretty healthy, or has he had some health problems? Is there quite a bit of social acceptance for children with DS (schools, etc.) or is there a lot of discrimination? I hope you don't mind my questions, but I've often wondered how it is in different countries, and how our experiences are similar or different. > > My twins are now 8 1/2 and are having a very active summer with swimming, playing on the swings and playing baseball together in the backyard. I am a musician, as well as in school to become an Occupational Therapist. What does Vlad like to do with his free time? Does he enjoy playing with his brother and sister? Please write when you have time! > -- > Casey, > mom of (DS) and , 8 > > -------------- Original message -------------- > > Hello, > My name is Elena , I m 30 years old and I m from Romania. I have three children. Vlad - 8 years , (DS) and 1 year and 9 month. > My english is not so good , but I hope that not being an inconvenient for you. I want to learn from your experience and to know more things about Down Syndrome. > Thank you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Elena,I am so sorry to hear that the doctor said he would just lay there in bed all his life. It is obvious you are doing a wonderful job raising him because I looked back on your first email to see how old he is and saw that he is 1 year 9 months and already walking around the house. My , who is 4 years now, didn't walk until he was 2 years 5 months and that was with therapy since he was one month old! You are doing the right thing by getting on line to meet people and ask questions. You will learn more from other parents than you ever will from the doctors. Your beautiful son is going to show the world how truly amazing he and others are with DS are. I can't tell you how much has change so many people's perceptions about DS. Always have high expectations for your son. People (mostly medical) keep telling me that I am expecting too much from at his age but I tell them as long as it is something a four year old should be doing then I will work that much harder to make sure he is and he is doing somethings even his typical peers aren't yet. I just love proving people wrong when it comes to him.Here in America I know we have it good compared to so much of the world but it still isn't as good as our kids deserve. I was told by a orthopedic specialist, when I went to find out about his hips and his walking, that I could have him wear a helmet (again I was there for his hips/walking) he said the only draw back is that it will look weird and kids might tease him but he said it wouldn't mater for because he wouldn't know the difference. His PT also said there was no point in helping him to walk more "normal because all people with DS walk a little "off"! Just wanted you to know that you aren't alone. By the way we are in Los Angeles California, a big city with lots of big specialists!Miriam Quote Link to comment Share on other sites More sharing options...
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