To Al From Caroline in

[Guest guest]

HI Al

where do you live? In Canada or the United States. I am curious did both your sons have a lot of behavior issues growing up and if yes did the behaviors eventually subside as they got farther into their teenage years. I live in BC Canada, I am sure you have read some of my posts. I have not spoken to anyone else who has twin boys older than sons Neil and who will be 15 in September. I have notice my sons finally maturing some and they are starting to recognize the world around them more. They also are starting to understand the things they are learning in school have meaning outside of school. The biggest change is they are both really starting to understand they each have their own voice and if they use words instead of noises or negative behavior people listen and respond to them. My sons did have a lot of negative behavior issues growing up and still do some times. Most of the behaviors came from not being understood and treated like they did not know anything, or they were getting sick. Most of their behaviors were a way of telling me or whom ever they were with, they were not happy with the current situation. I had a lot of battles with the school especially trying to get the school to understand if you have a hard time with verbal communication, it is going to come out a different way.

How are your boys doing now? Are they almost finished high school? What do you see for their future, i.e. jobs, more schooling, any kind of programs that will continue with life skills towards some kind of independence.

I hope you do not mind me asking, I am starting to think of these things for my sons and wondering what other parents with older children with any kind of disability are doing for their kids.

I hope your summer is going great.

Take Care Caroline Mavridis Mom to almost 15 year old Identical twins Neil and

Re: Elena from Romani> Hello, Casey,>> I wish I can tell that in Romania the system is ok but is not! in>> Romania a lot of parents and doctors blame newborns wiht DS. When>> was born the doctor told us that he will lie in bed all his life.>> We went with for physio therapy since he had 8 months and for>> speech therapy since 18, but we pay a lot for this because the>> medically system is down. But not only this.>> In Romania children with DS or another medical problems are>> integrate in special schools. Only a few go in normal schools and they>> get a support teacher.>> Fortunately is pretty healthy. Now he walk alone through the>> whole house, he say a few words and he is able to understand us. He>> likes music so much and he is a great dancer.>> We are looking for a swim teacher but we didn t found anyone>> available. We are still looking for.>> About Vlad what can I tell! He loves and , he enjoy>> playing with them with balls, hide and seek , he pretend a horse and>> they ride on.>> I hope you understand me!>> Regards,>> Elena from Romania>>>> >> >>> > Welcome, Elena!>> >>> > It is nice that we are getting more members from outside the US, and>> your English is perfectly good, so worry about that! (I lived in>> Norway for some time, and wish I had been less cautious about speaking>> Norwegian!)>> >>> > I'll be interested to hear more about Romania and how the services>> are for children with DS. Is pretty healthy, or has he had some>> health problems? Is there quite a bit of social acceptance for>> children with DS (schools, etc.) or is there a lot of discrimination?>> I hope you don't mind my questions, but I've often wondered how it is>> in different countries, and how our experiences are similar or> different.>> >>> > My twins are now 8 1/2 and are having a very active summer with>> swimming, playing on the swings and playing baseball together in the>> backyard. I am a musician, as well as in school to become an>> Occupational Therapist. What does Vlad like to do with his free time?>> Does he enjoy playing with his brother and sister? Please write when>> you have time!>> > -->> > Casey,>> > mom of (DS) and , 8>> >>> > -------------- Original message -------------->> > From: Elena Constantin <econstantin78@>>> > Hello,>> > My name is Elena , I m 30 years old and I m from Romania. I have>> three children. Vlad - 8 years , (DS) and 1 year and 9>> month.>> > My english is not so good , but I hope that not being an>> inconvenient for you. I want to learn from your experience and to know>> more things about Down Syndrome.>> > Thank you.>> >>

[Guest guest]

If this is a duplicate, my error. I didn't find a copy in my " Sent "

box, but there was one in my " Saved " box.

Al Veerhoff

To Al From Caroline in

HI Al

where do you live? In Canada or the United States.

I am curious did both your sons have a lot of behavior issues growing

up and if

yes did the behaviors eventually subside as they got farther into their

teenage

years. I live in BC Canada, I am sure you have read some of my

posts. I

have not spoken to anyone else who has twin boys older than sons Neil

and

who will be 15 in September. I have notice my sons finally maturing

some and

they are starting to recognize the world around them more. They also

are

starting to understand the things they are learning in school have

meaning

outside of school. The biggest change is they are both really starting

to

understand they each have their own voice and if they use words instead

of

noises or negative behavior people listen and respond to them. My sons

did have

a lot of negative behavior issues growing up and still do some times.

Most

of the behaviors came from not being understood and treated like they

did not

know anything, or they were getting sick. Most of their behaviors were

a way of

telling me or whom ever they were with, they were not happy with the

current

situation. I had a lot of battles with the school especially trying to

get the

school to understand if you have a hard time with verbal communication,

it is

going to come out a different way.

How are your boys doing now? Are they almost

finished high school? What do you see for their future, i.e. jobs, more

schooling, any kind of programs that will continue with life skills

towards some

kind of independence.

I hope you do not mind me asking, I am starting to

think of these things for my sons and wondering what other parents with

older

children with any kind of disability are doing for their kids.

I hope your summer is going

great.

Take Care Caroline Mavridis Mom to almost 15 year

old Identical twins Neil and