Sharon

January 15, 2009

do you keep a pulse Ox on your finger to monitor your oxygen? Are you on

oxygen? How do you keep track of your oxygen levels....I am thinking you are

still hypoxic.

I would love to find a scientific way to see if the uptake of oxygen does occur

at the cellular level.

---- PeachStatePam <figment@...> wrote:

> Pam and ; your cordyceps went on their way to your homes this morning

: )))

>

> ~~~~~~~~~~~~~~~~~~~

> Thank you so much Sharon! I am looking forward to trying it. I will

definitely let you know if I feel any better. Really fatigued lately but I

keep pushing myself.

> Saw my pulmonologist yesterday for the first time in 4 years and he was

shocked I was still alive! LOL Plan to keep fooling all of them. I am

worried about tomorrow night though. It is going to be 17 degrees in sunny

Florida and I will be out in it from 10P until 4A doing my " hot dog thing "

Probably stupid on my part but I need the $$. I plan to wear 4 layers and my

Sorel's from Colorado. I am sure people will laugh at knee high boots but I

could care less! My high school friend sells hot dogs, hamburgers, brats,

pulled pork, nachos, etc. to the drunk FSU college kids. It is entertaining if

nothing else! ROFLOL

April 9, 2009

Hi,

If you got the band and decide to get the sleeve with Dr A. Does he give you a discount because you got the band from him or you have to pay for the full price of the sleeve and how much?

Hello. I'm going in on April 24th for my lap band and I'm very excited.Have noticed that more and more folks are trading in their lap bands for a sleeve.I am aware of the differences, but would be interested in knowing some of the reasons people traded in the lap band for the sleeve.Was the lap band not working for you? Did you have problems? Was some of the restrictions that you had to have not working for you? etc?Just curious. I am thinking that the sleeve would be a bit too drastic for me.Interested in hearing the opinions of others. Thanks!!

April 9, 2009

I do not post much. . . but I just have to say that I love my band. It has been the perfect tool for me. I have been able to add my portion of good choices to meet the band's help with volume control. I have found my perfect tool! The band and I are 50-50% with my success.

I am LUCKY!!!

From: jessica briones <bjessicana@...> Sent: Thursday, April 9, 2009 3:17:27 PMSubject: Re: Sharon

Hi,

If you got the band and decide to get the sleeve with Dr A. Does he give you a discount because you got the band from him or you have to pay for the full price of the sleeve and how much?

Hello. I'm going in on April 24th for my lap band and I'm very excited.Have noticed that more and more folks are trading in their lap bands for a sleeve.I am aware of the differences, but would be interested in knowing some of the reasons people traded in the lap band for the sleeve.Was the lap band not working for you? Did you have problems? Was some of the restrictions that you had to have not working for you? etc?Just curious. I am thinking that the sleeve would be a bit too drastic for me.Interested in hearing the opinions of others. Thanks!!

May 21, 2009

Pat,

We decided to keep him home tomorow. They are taking the whole school!!!!!! And some of those kids are wheelchair bound and lower funtioning then J. Doug bush (From awakeings where J is going to go ) is picking him up at 2 from home to take him to awakenigs to spend some time there to get the feel of it. that is what I am conetrating on now. Jake has to watch him as I will be at work. Lois

Re: Sharon

May 21, 2009

That sounds like a good idea. Let me know how it goes. Pat K

Re: Sharon

Pat,

We decided to keep him home tomorow. They are taking the whole school!!!!!! And some of those kids are wheelchair bound and lower funtioning then J. Doug bush (From awakeings where J is going to go ) is picking him up at 2 from home to take him to awakenigs to spend some time there to get the feel of it. that is what I am conetrating on now. Jake has to watch him as I will be at work. Lois

Re: Sharon

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May 22, 2009

Pat,

It went ok. Don-JJ's aid went to get him and bring him home. He will start there in July. Lois

Re: Sharon

May 22, 2009

I'm watching and listening; you are making the path for us in just a few years.

An ok day is a good day in my book. My day was another long day, but Karac

was very good except for a few seconds and he kept himself under control.Love and blessings, Pat K

Re: Sharon

Pat,

It went ok. Don-JJ's aid went to get him and bring him home. He will start there in July. Lois

Re: Sharon

Huge savings on HDTVs from Dell.com!

May 23, 2009

I will keep you posted Pat.J's been having a "Hormonial" week. He has went back to his bedroom everynight this week. He's been stimming a lot this week too. Its like he runs in circles. Lois

Re: Sharon

May 23, 2009

Bless his heart; these young men have so many adjustments to make. I can't

even imagine how Karac will adust to not going to school any more. At least JJ

has you, and you are such a good, loving, and smart Mom. blessings, PatK

Re: Sharon

I will keep you posted Pat.J's been having a "Hormonial" week. He has went back to his bedroom everynight this week. He's been stimming a lot this week too. Its like he runs in circles. Lois

Re: Sharon

Gadget of the Year: Peek. Unlimited email on the go no contracts.

May 23, 2009

Pat,

Thank you so much! You are the BEST Granmother too!!!! When I think of you I think of my mom. (She is gone now) She was very sweet just like you! ((HUGS)) Lois

Re: Sharon

May 23, 2009

Lois, I feel so complimented. I never think of myself as sweet; in fact I think sometimes

that I come across so unsympathetic that you'll are going to kick me off of the list. LOL, LOL Pat K

Re: Sharon

Pat,

Thank you so much! You are the BEST Granmother too!!!! When I think of you I think of my mom. (She is gone now) She was very sweet just like you! ((HUGS)) Lois

Re: Sharon

Gadget of the Year: Peek. Unlimited email on the go no contracts.

May 24, 2009

You are always there for us! How could we continue on the list without you?? ((HUGS)) Lois

Re: Sharon

May 24, 2009

Lois, you make me smile. Thanks, Pat K

Re: Sharon

You are always there for us! How could we continue on the list without you?? ((HUGS)) Lois

Re: Sharon

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

July 16, 2010

hang in there Sharon. We have all been going through h**l with our detox and

diarrhea is good not bad like the commercials say. It is your body saying, " get

this out of me! " Hang tough. You need that poison out of your body and then u

will feel soooo good.

We are all in this together;

Jeanne

When I first started I was so sick, I could barely eat a dab of coconut oil and

I love coconut. Now I have to stop myself from eating too much!

July 16, 2010

Jeanne, thank you for the encouragement! I sure need it. Yes, this is

definitely difficult for me. Today was another rough day. The

interesting thing, though, is that I felt good enough to do a short walk

about one and a half miles. If it were as horrible as I fear, I wouldn't

be out there walking in the evening.

I keep hearing Bee's voice saying this is good and you are detoxing.

Though I've never heard her voice. I reckon she has heard our whines

enough times to drive her nuts. She must have the patience of Job.

I had the coconut oil up to 4 Tablespoons a day, doing great. And now,

I'm afraid to have much at all. Go figure....

Hanging in another day and hoping for a better tomorrow, Sharon

Jeanne Money wrote:

>

> hang in there Sharon. We have all been going through h**l with our

> detox and

> diarrhea is good not bad like the commercials say. It is your body

> saying, " get

> this out of me! " Hang tough. You need that poison out of your body and

> then u

> will feel soooo good.

>

> We are all in this together;

> Jeanne

>

> When I first started I was so sick, I could barely eat a dab of

> coconut oil and

> I love coconut. Now I have to stop myself from eating too much!

>

December 9, 2010

Hi Sharon,

Everyone is different, there are people that do not die from Hep C and then there are people whose liver will be so damaged by the HepC if they don't get a liver transplant then they will die. My hope in doing tx is that I will achive SVR and then there will be no more damage done to my liver or maybe if I am real lucky it will regenerate itself. My old gastro doctor said what damage done to my liver at this point would not repair itself, that my best hope is that there will be no more damage, I have heard different versions to that theory. But I could do tx, achive SVR and still end up with liver cancer, kidney issues, etc. There are a lot of things that can happen from tx and then again maybe I won't have that happen. I will just have to wait and see. That is why it is so important to have a liver biopsy before starting tx, you should also have a full eye exam and do any dental work also. It is not advised to have dental work done while on tx.

As to your question, if my doctor had tested me back then and told me I had Hep C, I would not have started my family then until I learned everything about it. If I was the only one positvie and my husband wasn't I would have probably went ahead and had my kids. But I am sure my husband has it also, so if I was told that both of us had it I would not have had children. I whole heartedly believe that because we both had it is why my daughter has it and possibly my son. I pray everyday that when he is tested it will be negative, but who knows. I will cross that bridge when we get to it.

Huggss

Cheryl

April 1, 2011

My thoughts and prayers are with you today, Sharon, for a positive

outcome. Thanks for being our spokeperson and going through all of

this for us.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

May 17, 2012

Sharon

My heart goes,out to you

U are suffering so much

I too was almost suicidal when this started for me last summer

I had months,of sheer hell too

Thinkin I was cursed like u think sometimes

My dear

I am still here

Stil get sensations feet

Which distress me

But I dont have sensation elsewhere

N havent infested anyone

So it isnt over

And I lost my dear cat with reaction to insecticide

Andmoved got rid 95 % all my belongings

But I have survived

And u will too my dear

Terry too

Hang in there

Love n best wishes

------------------------------

On Thu, May 17, 2012 09:07 PDT Goldstein@... wrote:

>Dearest Sharon,

>

>This could be my story. One difference being for me that weeks the invasion I

had felt things crawling on my legs. I thought they were ants. We had gone

through an intense heat wave recently of temps up to 112 degrees outside; one of

the hottest heat waves I've been through in No. Cal. The ants and tiny baby

spiders were marching through my office sliding door in lines because the heat

was killing them. By a week or so later, an explosion happened in my house. The

whole house was infiltrated with something we could not see other than the tiny

spiders and a few ants, but we felt them. We were getting bit all over. We had

exterminators here too and signed a big contract for many sprayings and PCOs

found nothing. I called the County Vector, they found nothing except they did

say that we had rodent feces outside in the open space near the door that were

full of mites. My sister from Nebraska had come to visit so I had gone outside

to clean up debris of

leaves and twigs to tidy up. Did I track something in the house from muddy

shoes? I had also gone to help out at church by doing massive yard work hauling

buckets of debris to a truck. Did I get something like springtails on my

clothing while doing volunteer work? Also a friend had had birdmites so I

thought maybe I had gotten something from her. She and I got together once in a

while. And on top of that my husband and I had gone bird watching a few weeks

before that. I had dropped my wrap around neck scarf in the dirt (it was cold

that day) and I developed a day later an elongated 4 " rash on my neck that would

not go away from the scarf I had wrapped back around my neck. The rash migrated

from one side of the neck to around the neck in the back near the hairline.

Nothing would make it go away. There were so many possible scenarios that might

explain how I got an organism on me, into my house, etc. And on top of that, my

husband and I so stupidly had

not changed our air filter in our house for the last 11 years, not knowing

where it was (near tall 10' ceiling). For years I thought we just happen to have

a filterless central air furnace... the humidity in the house was unbearable,

and in the summer!!!! Up to 80% humidity in CA is practically unheard of IN A

HOUSE.

>

>Those were some of the things that possibly led up to our infestation. But from

there, the story is like yours. The swarming on the body, getting the medication

Hydroxyzine helped me through this so that at least I could sleep. My husband

was infested too (another difference with you, but HE WAS infested as badly as I

was). I want you to know that eventually things do get better. My brother and

father-in-law paid for our treatment outside of our HMO to see our LLMD. Thank

goodness someone believed us and wanted to help us. We suffered terribly. We got

rid of all we had and lived out of zip lock bags that held ironed clothing which

I washed and steam pressed with my Singer steam press every day, including all

our sheets and all bedding. We slept on an airbed upstairs on a bedframe from

Ikea. Everything was sprayed and wiped down daily. We had fly paper wrapped

around the legs of the bed. I still sometimes had swarming to feet and face, and

did some very

bizarre things like sleep in painter's suits with duct tape around any

entrance. to sleep. It didn't work. Try to get out of it in the middle of the

night when nature calls... or it was so hot in the house I couldn't breath and

had to strip down outside to breath. Anyway, many trials and tribulations to my

story... I too wanted to burn my house down. We stopped going to church too. I

was so glad my daughter lived in Germany with the grandkids as we wanted no one

in our house. I wondered if neighbors had this too, but we said nothing to

anyone. When we had the trucks here to take furniture to the dump I did tell one

neighbor who lives quite a distance away, and she backed away as fast as she

could. We removed all carpets and rugs and replaced flooring downstairs with a

vinyl. The cement was coated with some type of thick glue to keep the vinyl

down. My husband took off the baseboards in the house downstairs and replaced

those, but not until we totally

sealed off the bottom of the drywall to the floor (there is usually a large gap

between drywall and floor which is covered up by baseboards) with a thick sticky

substance used for sealing out air) to keep anything from getting to us. He did

a great job on the baseboards because he used to do carpentry and cabinets for a

living.

>

>I do buy the idea about the military testing. I'm sorry, I do. Something is

definitely going on. Two examples: my son and daughter-in-law came over on

Sunday for Mother's Day brunch. 1) In conversation I found out that my former

husband has scabies (I doubt that it is scabies... I think it is either

birdmites, springtails or this mysterious thing that most of us here have

experienced). He is so stubborn he won't ask for help (he is a very egotistical

sort of attorney). He has his law practice in his home, along with a whole slew

of dogs. He is my son's dad. 2) my daughter-in-law shared that her 60 year old

co-worker has springtails... she has had them for 2 years and still trying to

work while treating herself. She is afraid if her boss found out she has them

she will lose her job. She has all the SAME symptoms we have all had. I told my

daughter-in-law not to hug her or sit in her chair. This poor woman rents an

apt. Landlord has had PCOs come in with

no relief. She really needs to remove all carpeting. This co-worker woman has

CFS and Fibro. So they seem to like most of us who have immune problems

(pre-existing Lyme?). But we know that anyone can get these, even if healthy.

>

>Anyway Sharon, my hopes are that these monsters start to recede for you and you

get a real handle on it (it took 10 months for any big differences to be felt

here)... I'm available if you ever want to talk. We finally did discover the air

filter problem and also bought a dehumidifier, ran it 24/7 for about a year.

Treated all drains, continued with all the usual like spraying, cleaning

everything constantly, no clutter anywhere, all plants tossed, we had no

animals, so one less problem there... things are 90% better, but I still get

sensations and occasional bites. So my problem is not 100%.

>

> Post # 1 of the end of my horror

>

>This is an e-mail that I sent to two pastors at my church on May 9th- one being

a PHD of Psychology:

>

>Something happened to me at the end of February that has shaken me to my core

and I need help because of it. I have tried to journal it but will try to

summarize it here.

>

>I am an accountant and was in the midst of a very stressful tax season, along

with lots of stressful family situations.

>

>I woke up one morning with things crawling all over me. It felt like an army of

insects had come over the head of my bed and were swarming my body. I couldn't

see them and I couldn't bathe them off. From that point on there was nowhere I

could lay down in my house. I couldn't take a nap when I was exhausted and that

took it's toll emotionally.

>

>I called three different exterminators. The first two told me it sounded like

bird mites and wanted me to sign a contract so they could start extermination. I

resisted because I needed more information so I googled Bird Mites and found the

site BirdMites.org. There is a link to find an expert in the field. I applied.

The one who came out basically told me " it's all in your head " . At least that's

what I heard at the time. He used his 30x magnifier on " samples " I'd trapped but

couldn't see anything so he gave me an address to send the samples to the

Entomology Dept at the U of FL in Gainesville. I " trapped " some more from my

body on glue boards and sent them off. The results were that they saw nothing.

He also referred me to a woman in Winter Park whose whole family had been

suffering similarly. I called her but her case was quite different than mine.

The whole family was affected and they gave up, disposed of all their

belongings, sold their home and

moved.

>

>My husband has been working with the folks at DIY Pest Control in Oviedo, where

we have spent a fortune on different treatments. It seems like mites, all kinds,

are rampant and mostly untreatable. The curious thing is that my husband is not

bothered by them. The info on the internet says that frequently they will pick a

host, usually a female, and not bother anyone else in the household. In fear, I

have isolated myself from my family - the worst thing is from my

great-grandchildren who need me to care for them, often. I am in such fear of

infecting others that I have not been to church but once or twice in the first

days since this hit me. If I run to the store and see a friend who wants to hug

I get sick. I avoid anyone I know like the plague.

>

>I made it through tax season but I could barely work with things crawling on me

every moment. It was horrible trying to talk to a client professionally but

feeling like a crazy person feeling things crawling on my neck and face and

wondering if they could see them.

>

>Where did these mites come from? Did I pick them up from somebody? Did I bring

them in with something I bought? Are they from some animal or something in the

yard? They find me wherever I am. I moved from my bed to the sofa bed. I slept

outside in my van a few nights. I bought an air mattress that I moved from room

to room. We even stayed in a hotel for four nights. Each night their presence on

me was increased so much so that on the fourth night I laid in bed feeling them

going into my mouth, nose and ears and asking the Lord to just take my life.

Nothing kept them off me and I rarely got more than two hours sleep a night. I

cannot sleep in my bed which we have sprayed and wrapped in three layers of

painters plastic drop cloth and sealed with packing tape. There were many

occasions at night that I laid there feeling as if they were coming out of my

body because they were just " appearing " without having crawled to get wherever

they were. I have

considered suicide on more than one occasion. I began to believe someone had

put a curse on me.

>

>I have been to my primary care physician 2 times and felt like she didn't

believe me so I changed doctors. She did however give me 2 prescriptions.

Methylprednisone (for 6 days) and Hydroxyzine (to take at bedtime each night).

Can you imagine! The purpose of that medicine is to calm me down enough so that

I can sleep when things crawl on me!

>The first appointment I can get with my new primary care is May 23rd.

>I have been to a walk-in clinic twice. The doctor there seems more concerned

than anyone else I've been to. However, her treatments for Scabies brought no

relief. I guess if you don't know what it is treat for anything. She referred me

to a Dermatologist who travels worldwide on mission trips and has seen things we

don't see here in the US. I have not yet made an effort to see him.

>I've been to a doctor outside my plan and paid $75 out of pocket to be told to

order some skin cream off the internet. I guess she thought my rough skin was

the cause. I've been bathing in Epsom Salts, Clorox, Lysol, 20 Mule Team Borax,

Dawn Dish Detergent and Arm & Hammer Washing Detergent. Many of these things

were recommended by a person at DIY Pest Control and some of the like sufferers

on a forum I found.

>

>I've been to two different acupuncturists a total of three times and have some

of the worst tasting concoctions anyone could ever imagine. One is treating for

parasites and the other says it's my circulation and nervous system. he gave me

some " relax " herbal pills.

>

>One Saturday morning, after many days of less than two hours sleep on any night

and taking several baths each day and using lice shampoo (sometmes 3x in one day

alone) to get them off my scalp, my husband took me to the ER at 5AM. They gave

me an IV with Ativan and I got about four hours sleep there. They gave me a

prescription for some over the counter allergy pills which I already had in the

cabinet.

>

>Let me add that prior to this I had no health issues and am on no meds. I

resist drugs and believe in the healthy way. To get relief from this I RAN to

the doctor(s), etc begging for help and swallowed everything they suggested and

more.

>

>My husband has been praying for me. Friends I have told have been praying for

me. And, I've been calling out to God, begging, pleading for help. April 21st I

put an anonymous prayer request on the church prayer request link.

>

>We paid for a week at the hotel but the fourth night was so horrible we checked

out and returned home. At this time suicide was first and foremost in my mind.

Knowing that we need more help than I've been able to get I called the

exterminator who came out at the beginning of this. He had news for me. He is a

Christian and told me that first and foremost I need to have my church praying

for me. So here I am. Then he told me he has been in this business for many

years, over thirty I believe, and his experience has been that if you can't see

something it isn't there. Then he added " there is always the possibility that

the government has created something to use in warfare, but as yet we don't know

that " . I didn't think that strange because in my search on the internet I had

already seen that as a theory. Then he told me of someone who had called him. A

retired police officer, swat team member. Intelligent, educated, sharp and

analytical. All the qualities

associated with someone in that field. His malady came on the same as mine, in

that it struck in one day. Just as for me, no treatment worked. He was so

stricken that he considered burning his house down. So have I. The end of that

story is that he had experienced an emotional breakdown and St Wort healed

him. Other than that, I have no information. I hope the exterminator will put us

together so I can get more info.

>

>St Wort is one of the things I didn't have on my counter so I ran to Whole

Foods and bought what appears to be the best St Wort on their shelf and

began taking it immediately. I don't doubt that I had an emotional breakdown

because of all the pressure on me at that time. It all makes sense now but I

rejected that theory until yesterday.

>

>I also went to Home Depot and bought wide double sided tape. I came home and

cleaned the top of my mattress, already wrapped in three layers of painter's

drop cloth and sealed with packing tape, vacuumed both the mattress and the air

mattress, sprayed them both down with Lysol and then made a border on both with

the very sticky double sided tape. I washed my pillow in Arm & Hammer laundry

soap and a little Ammonia. It was dry at 1:30 AM and everything was ready

Nothing was going to crawl on me that night! I went to bed crying because I

could no longer sleep in my nice fluffy bed with crisp sheets and a down

comforter. Now, my bed is a vinyl air mattress with no sheet and very sticky

double sided tape around it. I sleep covered with a Queen size flat sheet folded

in half crosswise and am always fearful that it will droop off the side and

allow the mites to crawl up that way. Last night there was no chance at all of

that happening because I was double

protected by the tape on the air mattress and the outside border of the

mattress on my bed.

>

>At 4:30 I woke up with things crawling all over me from the soles of my feet to

my scalp. I quickly jumped up and ran to get the black light the exterminator

had told me to use. Shining it in the dark will reveal anything that is there. I

checked the vinyl air mattress from top to bottom, I saw lots of white specks

but none of them were moving. I used a very big magnifier that I use for my

sewing and crafts to see better. Nothing moving. Then I took the light and

looked into my 10x mirror in my bathroom, at spots on my face, chest and body

that I felt the crawling. Nothing! Then I knew that the exterminator had to be

right. I can't tell you how much that calmed me, really calmed me. I went back

to bed and right to sleep and slept till 9AM when the phone woke me up.

>

>I know it's far from over and I need help to get over this and make sure it

never happens again. I feel that crawling all day and night and I have been

reluctant to call for help because I believed I was infested with mites and was

fearful of infecting people with whom I came in contact. I don't know what help

to ask for other than prayer. If there really is something then our home needs

to be anointed and prayed over. Since the first day only a little over two

months ago, this has cost us close to $3,000 in co-pays, out of network doctors

and meds, etc, every kind of herbal thing from Leaves & Roots you could ever

imagine, cleaning supplies I don't ordinarily use, pesticides and equipment and

on and on and on. And the work has been beyond exhausting. Spraying, scrubbing,

cleaning, steaming, washing every item that I touched even one time. I really

want my life back.

>

>Sharon

>

>I will post what followed tomorrow.

>

>------------------------------------

>

May 17, 2012

It is a complex story for each of us that must be told, and sometimes retold. From: "ILIKE TREES" <wherearetheangels@...>bird mites Sent: Thursday, May 17, 2012 10:46:46 AMSubject: Re: sharonSharonMy heart goes,out to youU are suffering so muchI too was almost suicidal when this started for me last summerI had months,of sheer hell tooThinkin I was cursed like u think sometimesMy dear I am still hereStil get sensations feet Which distress meBut I dont have sensation elsewhereN havent infested anyoneSo it isnt overAnd I lost my dear cat with reaction to insecticideAndmoved got rid 95 % all my belongingsBut I have survivedAnd u will too my dearTerry tooHang in there Love n best wishes------------------------------On Thu, May 17, 2012 09:07 PDT Goldstein@... wrote:>Dearest Sharon, >>>This could be my story. One difference being for me that weeks the invasion I had felt things crawling on my legs. I thought they were ants. We had gone through an intense heat wave recently of temps up to 112 degrees outside; one of the hottest heat waves I've been through in No. Cal. The ants and tiny baby spiders were marching through my office sliding door in lines because the heat was killing them. By a week or so later, an explosion happened in my house. The whole house was infiltrated with something we could not see other than the tiny spiders and a few ants, but we felt them. We were getting bit all over. We had exterminators here too and signed a big contract for many sprayings and PCOs found nothing. I called the County Vector, they found nothing except they did say that we had rodent feces outside in the open space near the door that were full of mites. My sister from Nebraska had come to visit so I had gone outside to clean up debris of leaves and twigs to tidy up. Did I track something in the house from muddy shoes? I had also gone to help out at church by doing massive yard work hauling buckets of debris to a truck. Did I get something like springtails on my clothing while doing volunteer work? Also a friend had had birdmites so I thought maybe I had gotten something from her. She and I got together once in a while. And on top of that my husband and I had gone bird watching a few weeks before that. I had dropped my wrap around neck scarf in the dirt (it was cold that day) and I developed a day later an elongated 4" rash on my neck that would not go away from the scarf I had wrapped back around my neck. The rash migrated from one side of the neck to around the neck in the back near the hairline. Nothing would make it go away. There were so many possible scenarios that might explain how I got an organism on me, into my house, etc. And on top of that, my husband and I so stupidly had not changed our air filter in our house for the last 11 years, not knowing where it was (near tall 10' ceiling). For years I thought we just happen to have a filterless central air furnace... the humidity in the house was unbearable, and in the summer!!!! Up to 80% humidity in CA is practically unheard of IN A HOUSE. >>>Those were some of the things that possibly led up to our infestation. But from there, the story is like yours. The swarming on the body, getting the medication Hydroxyzine helped me through this so that at least I could sleep. My husband was infested too (another difference with you, but HE WAS infested as badly as I was). I want you to know that eventually things do get better. My brother and father-in-law paid for our treatment outside of our HMO to see our LLMD. Thank goodness someone believed us and wanted to help us. We suffered terribly. We got rid of all we had and lived out of zip lock bags that held ironed clothing which I washed and steam pressed with my Singer steam press every day, including all our sheets and all bedding. We slept on an airbed upstairs on a bedframe from Ikea. Everything was sprayed and wiped down daily. We had fly paper wrapped around the legs of the bed. I still sometimes had swarming to feet and face, and did some very bizarre things like sleep in painter's suits with duct tape around any entrance. to sleep. It didn't work. Try to get out of it in the middle of the night when nature calls... or it was so hot in the house I couldn't breath and had to strip down outside to breath. Anyway, many trials and tribulations to my story... I too wanted to burn my house down. We stopped going to church too. I was so glad my daughter lived in Germany with the grandkids as we wanted no one in our house. I wondered if neighbors had this too, but we said nothing to anyone. When we had the trucks here to take furniture to the dump I did tell one neighbor who lives quite a distance away, and she backed away as fast as she could. We removed all carpets and rugs and replaced flooring downstairs with a vinyl. The cement was coated with some type of thick glue to keep the vinyl down. My husband took off the baseboards in the house downstairs and replaced those, but not until we totally sealed off the bottom of the drywall to the floor (there is usually a large gap between drywall and floor which is covered up by baseboards) with a thick sticky substance used for sealing out air) to keep anything from getting to us. He did a great job on the baseboards because he used to do carpentry and cabinets for a living. >>>I do buy the idea about the military testing. I'm sorry, I do. Something is definitely going on. Two examples: my son and daughter-in-law came over on Sunday for Mother's Day brunch. 1) In conversation I found out that my former husband has scabies (I doubt that it is scabies... I think it is either birdmites, springtails or this mysterious thing that most of us here have experienced). He is so stubborn he won't ask for help (he is a very egotistical sort of attorney). He has his law practice in his home, along with a whole slew of dogs. He is my son's dad. 2) my daughter-in-law shared that her 60 year old co-worker has springtails... she has had them for 2 years and still trying to work while treating herself. She is afraid if her boss found out she has them she will lose her job. She has all the SAME symptoms we have all had. I told my daughter-in-law not to hug her or sit in her chair. This poor woman rents an apt. Landlord has had PCOs come in with no relief. She really needs to remove all carpeting. This co-worker woman has CFS and Fibro. So they seem to like most of us who have immune problems (pre-existing Lyme?). But we know that anyone can get these, even if healthy. >>>Anyway Sharon, my hopes are that these monsters start to recede for you and you get a real handle on it (it took 10 months for any big differences to be felt here)... I'm available if you ever want to talk. We finally did discover the air filter problem and also bought a dehumidifier, ran it 24/7 for about a year. Treated all drains, continued with all the usual like spraying, cleaning everything constantly, no clutter anywhere, all plants tossed, we had no animals, so one less problem there... things are 90% better, but I still get sensations and occasional bites. So my problem is not 100%. >>> >> Post # 1 of the end of my horror >>This is an e-mail that I sent to two pastors at my church on May 9th- one being a PHD of Psychology: >>Something happened to me at the end of February that has shaken me to my core and I need help because of it. I have tried to journal it but will try to summarize it here. >>I am an accountant and was in the midst of a very stressful tax season, along with lots of stressful family situations. >>I woke up one morning with things crawling all over me. It felt like an army of insects had come over the head of my bed and were swarming my body. I couldn't see them and I couldn't bathe them off. From that point on there was nowhere I could lay down in my house. I couldn't take a nap when I was exhausted and that took it's toll emotionally. >>I called three different exterminators. The first two told me it sounded like bird mites and wanted me to sign a contract so they could start extermination. I resisted because I needed more information so I googled Bird Mites and found the site BirdMites.org. There is a link to find an expert in the field. I applied. The one who came out basically told me "it's all in your head". At least that's what I heard at the time. He used his 30x magnifier on "samples" I'd trapped but couldn't see anything so he gave me an address to send the samples to the Entomology Dept at the U of FL in Gainesville. I "trapped" some more from my body on glue boards and sent them off. The results were that they saw nothing. He also referred me to a woman in Winter Park whose whole family had been suffering similarly. I called her but her case was quite different than mine. The whole family was affected and they gave up, disposed of all their belongings, sold their home and moved. >>My husband has been working with the folks at DIY Pest Control in Oviedo, where we have spent a fortune on different treatments. It seems like mites, all kinds, are rampant and mostly untreatable. The curious thing is that my husband is not bothered by them. The info on the internet says that frequently they will pick a host, usually a female, and not bother anyone else in the household. In fear, I have isolated myself from my family - the worst thing is from my great-grandchildren who need me to care for them, often. I am in such fear of infecting others that I have not been to church but once or twice in the first days since this hit me. If I run to the store and see a friend who wants to hug I get sick. I avoid anyone I know like the plague. >>I made it through tax season but I could barely work with things crawling on me every moment. It was horrible trying to talk to a client professionally but feeling like a crazy person feeling things crawling on my neck and face and wondering if they could see them. >>Where did these mites come from? Did I pick them up from somebody? Did I bring them in with something I bought? Are they from some animal or something in the yard? They find me wherever I am. I moved from my bed to the sofa bed. I slept outside in my van a few nights. I bought an air mattress that I moved from room to room. We even stayed in a hotel for four nights. Each night their presence on me was increased so much so that on the fourth night I laid in bed feeling them going into my mouth, nose and ears and asking the Lord to just take my life. Nothing kept them off me and I rarely got more than two hours sleep a night. I cannot sleep in my bed which we have sprayed and wrapped in three layers of painters plastic drop cloth and sealed with packing tape. There were many occasions at night that I laid there feeling as if they were coming out of my body because they were just "appearing" without having crawled to get wherever they were. I have considered suicide on more than one occasion. I began to believe someone had put a curse on me. >>I have been to my primary care physician 2 times and felt like she didn't believe me so I changed doctors. She did however give me 2 prescriptions. Methylprednisone (for 6 days) and Hydroxyzine (to take at bedtime each night). Can you imagine! The purpose of that medicine is to calm me down enough so that I can sleep when things crawl on me! >The first appointment I can get with my new primary care is May 23rd. >I have been to a walk-in clinic twice. The doctor there seems more concerned than anyone else I've been to. However, her treatments for Scabies brought no relief. I guess if you don't know what it is treat for anything. She referred me to a Dermatologist who travels worldwide on mission trips and has seen things we don't see here in the US. I have not yet made an effort to see him. >I've been to a doctor outside my plan and paid $75 out of pocket to be told to order some skin cream off the internet. I guess she thought my rough skin was the cause. I've been bathing in Epsom Salts, Clorox, Lysol, 20 Mule Team Borax, Dawn Dish Detergent and Arm & Hammer Washing Detergent. Many of these things were recommended by a person at DIY Pest Control and some of the like sufferers on a forum I found. >>I've been to two different acupuncturists a total of three times and have some of the worst tasting concoctions anyone could ever imagine. One is treating for parasites and the other says it's my circulation and nervous system. he gave me some "relax" herbal pills. >>One Saturday morning, after many days of less than two hours sleep on any night and taking several baths each day and using lice shampoo (sometmes 3x in one day alone) to get them off my scalp, my husband took me to the ER at 5AM. They gave me an IV with Ativan and I got about four hours sleep there. They gave me a prescription for some over the counter allergy pills which I already had in the cabinet. >>Let me add that prior to this I had no health issues and am on no meds. I resist drugs and believe in the healthy way. To get relief from this I RAN to the doctor(s), etc begging for help and swallowed everything they suggested and more. >>My husband has been praying for me. Friends I have told have been praying for me. And, I've been calling out to God, begging, pleading for help. April 21st I put an anonymous prayer request on the church prayer request link. >>We paid for a week at the hotel but the fourth night was so horrible we checked out and returned home. At this time suicide was first and foremost in my mind. Knowing that we need more help than I've been able to get I called the exterminator who came out at the beginning of this. He had news for me. He is a Christian and told me that first and foremost I need to have my church praying for me. So here I am. Then he told me he has been in this business for many years, over thirty I believe, and his experience has been that if you can't see something it isn't there. Then he added "there is always the possibility that the government has created something to use in warfare, but as yet we don't know that". I didn't think that strange because in my search on the internet I had already seen that as a theory. Then he told me of someone who had called him. A retired police officer, swat team member. Intelligent, educated, sharp and analytical. All the qualities associated with someone in that field. His malady came on the same as mine, in that it struck in one day. Just as for me, no treatment worked. He was so stricken that he considered burning his house down. So have I. The end of that story is that he had experienced an emotional breakdown and St Wort healed him. Other than that, I have no information. I hope the exterminator will put us together so I can get more info. >>St Wort is one of the things I didn't have on my counter so I ran to Whole Foods and bought what appears to be the best St Wort on their shelf and began taking it immediately. I don't doubt that I had an emotional breakdown because of all the pressure on me at that time. It all makes sense now but I rejected that theory until yesterday. >>I also went to Home Depot and bought wide double sided tape. I came home and cleaned the top of my mattress, already wrapped in three layers of painter's drop cloth and sealed with packing tape, vacuumed both the mattress and the air mattress, sprayed them both down with Lysol and then made a border on both with the very sticky double sided tape. I washed my pillow in Arm & Hammer laundry soap and a little Ammonia. It was dry at 1:30 AM and everything was ready Nothing was going to crawl on me that night! I went to bed crying because I could no longer sleep in my nice fluffy bed with crisp sheets and a down comforter. Now, my bed is a vinyl air mattress with no sheet and very sticky double sided tape around it. I sleep covered with a Queen size flat sheet folded in half crosswise and am always fearful that it will droop off the side and allow the mites to crawl up that way. Last night there was no chance at all of that happening because I was double protected by the tape on the air mattress and the outside border of the mattress on my bed. >>At 4:30 I woke up with things crawling all over me from the soles of my feet to my scalp. I quickly jumped up and ran to get the black light the exterminator had told me to use. Shining it in the dark will reveal anything that is there. I checked the vinyl air mattress from top to bottom, I saw lots of white specks but none of them were moving. I used a very big magnifier that I use for my sewing and crafts to see better. Nothing moving. Then I took the light and looked into my 10x mirror in my bathroom, at spots on my face, chest and body that I felt the crawling. Nothing! Then I knew that the exterminator had to be right. I can't tell you how much that calmed me, really calmed me. I went back to bed and right to sleep and slept till 9AM when the phone woke me up. >>I know it's far from over and I need help to get over this and make sure it never happens again. I feel that crawling all day and night and I have been reluctant to call for help because I believed I was infested with mites and was fearful of infecting people with whom I came in contact. I don't know what help to ask for other than prayer. If there really is something then our home needs to be anointed and prayed over. Since the first day only a little over two months ago, this has cost us close to $3,000 in co-pays, out of network doctors and meds, etc, every kind of herbal thing from Leaves & Roots you could ever imagine, cleaning supplies I don't ordinarily use, pesticides and equipment and on and on and on. And the work has been beyond exhausting. Spraying, scrubbing, cleaning, steaming, washing every item that I touched even one time. I really want my life back. >>Sharon >>I will post what followed tomorrow. >>>>>>------------------------------------ >>

May 17, 2012

Yes,

Its such a horrifying thing to go thru

It beggers belief!!!

Yet we all do survive

Thank god!!!!!

------------------------------

On Thu, May 17, 2012 11:10 PDT Goldstein@... wrote:

>It is a complex story for each of us that must be told, and sometimes retold.

>

> Post # 1 of the end of my horror

>>

>>This is an e-mail that I sent to two pastors at my church on May 9th- one

being a PHD of Psychology:

>>

>>Something happened to me at the end of February that has shaken me to my core

and I need help because of it. I have tried to journal it but will try to

summarize it here.

>>

>>I am an accountant and was in the midst of a very stressful tax season, along

with lots of stressful family situations.

>>

>>I woke up one morning with things crawling all over me. It felt like an army

of insects had come over the head of my bed and were swarming my body. I

couldn't see them and I couldn't bathe them off. From that point on there was

nowhere I could lay down in my house. I couldn't take a nap when I was exhausted

and that took it's toll emotionally.

>>

>>I called three different exterminators. The first two told me it sounded like