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Hi , I have a quick question, if the "sub" is a dud, what was the response from the Principal at the IEP meeting? I would suggest you keep track of all activities and issues during her tinure in the class and if you continue having issues, call the Special Ed director for the district. they need to provide some "special" training to that gal ASAP, or they could have a law suit on thier hand for not meeting IEP goals.... Sandy Weber Mom to , , Barry, Aimee(92-03), Robbie, (98-00), , (ds) &

(ds)(Identical Twins of triplets with Downs's)

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I was also thinking that by law don't they need to have a certified or specially trained teacher, especially if they are a long time sub, to teach special ed. classes. At the very least I would write a letter to be put in the school file about everything you told us, so that it is documented. had an awful summer school teacher. She was a 3-4 grade reading/math specialist who "happened" to have been certified for special ed. but didn't teach it. According to the therapists she had no control over the kids and has now developed some bad behavior. We found out from his teacher and another parent that two other kids also have developed behavior issues due to her class. Miriam Weber wrote: Hi , I have a quick question, if the "sub" is a dud, what was the response from the Principal at the IEP meeting? I would suggest you keep track of all activities and issues during her tinure in the class and if you continue having issues, call the Special Ed director for the district. they need to provide some "special" training to that gal ASAP, or they could have a law suit on thier hand for not meeting IEP goals.... Sandy Weber Mom to , ,

Barry, Aimee(92-03), Robbie, (98-00), , (ds) & (ds)(Identical Twins of triplets with Downs's) Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us.

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ditto!!

Sam

> >

> > Hi All,

> >

> > Attached are Sara and Gabe's Fall school pictures. I hope

everyone's

> > school year is going well, so far.

> >

> > Marcia

> > Mom to Sara (DS) and 12 and Lucas 16

> >

> >

> >

> > ------------------------------------------------------------------

------

> > See what's new at AOL.com

> > <http://www.aol.com?NCID=AOLCMP00300000001170> and Make AOL Your

> > Homepage <http://www.aol.com/mksplash.adp?

NCID=AOLCMP00300000001169>.

> >

> > ------------------------------------------------------------------

------

> >

>

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,

Being the mom of identicals born at 29 weeks and losing Jordan....I can relate to the teacher's pain at a very deep level. Please give her my deepest sympathy. I am so sorry.

Deanna mom to

Alyssa, 14

, 11

Jarod, 7

(DS) 4 1/2

~i~ JOrdan (DS) 1/20/03-2/2/03

checking in

Will started pre school at our elementary school and I am sad to say that we have already had some problems. His teacher is out on maternity leave. she had boy/girl twins at 23 weeks and the little girl died. It has been horribly sad but she is coming back in January. Anyway, the sub is NOT a special ed teacher and doesn't really want to put up with Will. there are 6 DD slots and 6 "typical" slots that are filled by teachers kids. they are there as an EXAMPLE and this teacher would rather have them and no children with "issues". Will had an eye appt last week so I was late getting him to school and she had the nerve to tell me "Well, I'll be honest with you, I was able to get so much work done this morning and we didn't have to clean up for 45 min before going out on the playground. We looked around at each other and wondered what was different". I brought that comment up in our IEP meeting 2 days later because I wanted the team to hear what she had to say. She said "Well, you told me that you wanted me to be honest with you". I said "I understand that I now I am being honest with you when I say that it was an inappropriate comment. No one wants to hear that about their child". We had this "re evaluation" meeting because this idiot was trying to get the team to agree to cutting Will back to part time because his "endurance wasn't great". I did have to get a little bitchy and I really didn't want to but oh well. If I had to do it over again, I would have done and said the exact same things!!!Bottom line, he did not get anything cut back and we actually got an extra O.T. and P.T. session per month to try and build up his endurance :) We can't wait for his regular teacher to return!

Anyway, on a happier note, we had a blast at our Buddy Walk this weekend. I snapped the cutest ever picture of my boys. The title....My best buddy. See below

mom to (7), (4)

Will(ds) and Jake(almost 3)

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Marcia,

Those are awesome pics!!!!!!!!! I wish ours had turned out that well!!!!

Deanna mom to

Alyssa, 14

, 11

Jarod, 7

, (DS) 4 1/2

~i~Jordan 1/20/03-2/2/03

Re: checking in

Hi All,

Attached are Sara and Gabe's Fall school pictures. I hope everyone's school year is going well, so far.

Marcia

Mom to Sara (DS) and 12 and Lucas 16

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  • 2 months later...

What a cute picture!

sounds like one amazing kid!

-- checking in

We're off to Portland in the morning, just over for the weekend, but I'm all packed and the alarm won't ring for 5 hours! I think I have time to write an email!

I just finished finals for fall quarter and they went well. I even got 100% on the paper I wrote about DS, for my English class. My professor liked it and called it "powerfully written". I guess that happens when you write what you're passionate about!

Tonight had her Christmas program with all the 1st and 2nd graders in her school. She really did fantastic!! She has an aide at school, but not for this evening program, and she just stood up there, in the front row, right in front of the music teacher. There was a play on stage and she and about 100 other kids were on risers to the side and sang songs during the play. She did most the hand motions (with a 1-2 second delay at times. . .oh well) and sang all the words. I was so cute!! She got lots of compliments from the other girls about how pretty her dress was, and this year all the sensory stuff (lights, crowd etc) didn't bother her like it did last year. She's having a great 2nd grade year!

In Portland, we're going to stay with her best buddy from last year, who moved away over the summer. 's having some testing done, and then its off to the science museum for an afternoon of hands on science for all the kids!

I haven't been able to see most of the Christmas card pictures. . .it must be a setting of mine that doesn't let them through, but I don't know how to change it! We don't have Christmas pictures, but here's 's school picture from this year. (sorry if i already sent it)

Casey

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  • 4 months later...
Guest guest

Hello Multiples DS Listserv,

We are hanging in there. Last I

checked in I shared with the group that my son’s school district was

taking us to Due Process. Well, we are trying to resolve all the issues

outside of court. I have agreed to allow them to assess him in all areas

except IQ and I am having assessments done privately as well so that there is

an unbiased reporting to compare results against. They have withdrawn

their Behavior Intervention Plan that isolated him and had penal

interventions. Now we are going to sit down with the assessments and

attempt to develop an IEP that we all can agree on with placement and services that

meet his unique needs. The last stunt the district pulled was accusing me

of child abuse and contacting the police. That was a month ago, and

hopefully it was the height of the insanity. Their accusations kind of

backfired on them because the only time my son has been hurt and required medical

care has been when he was at school. Basically this year becomes a wash…

and yes I am counting the days until school ends.

Gavin turned 7 on the 8th and he

had a Ratatouille birthday party. We cooked individual pizzas from

scratch and had chocolate fondue. It was a blast!

I’d love to hear what everyone has

planned for the summer!

Suze (mom to Nicolas and Kristopher

Identical/15/Opitz and Gavin 7/DS

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Guest guest

Suze,

We love Ratatouille too, what a great bday idea.

It sounds like you have the school situation handled as best as possible,

I hope your evaluations will be enlighting. Good luck.

Irene

RE: Checking In

Hello Multiples DS Listserv,

We are hanging in there. Last I checked in I shared with the group that my son’s school district was taking us to Due Process. Well, we are trying to resolve all the issues outside of court. I have agreed to allow them to assess him in all areas except IQ and I am having assessments done privately as well so that there is an unbiased reporting to compare results against. They have withdrawn their Behavior Intervention Plan that isolated him and had penal interventions. Now we are going to sit down with the assessments and attempt to develop an IEP that we all can agree on with placement and services that meet his unique needs. The last stunt the district pulled was accusing me of child abuse and contacting the police. That was a month ago, and hopefully it was the height of the insanity. Their accusations kind of backfired on them because the only time my son has been hurt and required medical care has been when he was at school. Basically this year becomes a wash… and yes I am counting the days until school ends.

Gavin turned 7 on the 8th and he had a Ratatouille birthday party. We cooked individual pizzas from scratch and had chocolate fondue. It was a blast!

I’d love to hear what everyone has planned for the summer!

Suze (mom to Nicolas and Kristopher Identical/15/Opitz and Gavin 7/DS

No virus found in this incoming message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.23.0/1381 - Release Date: 4/16/2008 9:34 AM

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Guest guest

Wow Suze,

That sounds insane! What school district is this? I want to make sure we try

to avoid it when we go house hunting.

We are thick in the middle of little league challenger little league (Davey is

doing both leagues) and Davey is swimming with Special Olympics. We also take

the boys swimming at the gym on the weekends.

My girls are so busy just being who they are we hardly ever see them.

Mom to Amy 20, Kelsey 18, Davey 8, and Will 8

Sent via BlackBerry by AT & T

RE: Checking In

<http://geo.yahoo.com/serv?s=97359714/grpId=284743/grpspId=1705042054/msgId=1905\

9/stime=1208532926/nc1=4025291/nc2=5028927/nc3=5191955> Hello Multiples DS

Listserv,

 

We are hanging in there.  Last I checked in I shared with the group that my

son’s school district was taking us to Due Process.  Well, we are trying to

resolve all the issues outside of court.  I have agreed to allow them to assess

him in all areas except IQ and I am having assessments done privately as well so

that there is an unbiased reporting to compare results against.  They have

withdrawn their Behavior Intervention Plan that isolated him and had penal

interventions.  Now we are going to sit down with the assessments and attempt

to develop an IEP that we all can agree on with placement and services that meet

his unique needs.  The last stunt the district pulled was accusing me of child

abuse and contacting the police.  That was a month ago, and hopefully it was

the height of the insanity.  Their accusations kind of backfired on them

because the only time my son has been hurt and required medical care has been

when he was at school.  Basically this year becomes a wash… and yes I am

counting the days until school ends.

 

Gavin turned 7 on the 8th and he had a Ratatouille birthday party.  We cooked

individual pizzas from scratch and had chocolate fondue.  It was a blast!

 

I’d love to hear what everyone has planned for the summer!

 

Suze (mom to Nicolas and Kristopher Identical/15/Opitz and Gavin 7/DS

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AM

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Checked by AVG.

Version: 7.5.519 / Virus Database: 269.23.0/1381 - Release Date: 4/16/2008 9:34

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Guest guest

Suze,

Wow, what a year you've had!! I sure hope it gets better! Your "this year" sounds a lot like our "last year" but take heart. . .our district settled in the last meeting before court and this year has been a dream! I hope it turns out as well for you, and good for you -- fighting for what he needs and deserves!

The birthday parts sounds great too!

--Casey, mom of (DS) and , 8

-------------- Original message --------------

Hello Multiples DS Listserv,

We are hanging in there. Last I checked in I shared with the group that my son’s school district was taking us to Due Process. Well, we are trying to resolve all the issues outside of court. I have agreed to allow them to assess him in all areas except IQ and I am having assessments done privately as well so that there is an unbiased reporting to compare results against. They have withdrawn their Behavior Intervention Plan that isolated him and had penal interventions. Now we are going to sit down with the assessments and attempt to develop an IEP that we all can agree on with placement and services that meet his unique needs. The last stunt the district pulled was accusing me of child abuse and contacting the police. That was a month ago, and hopefully it was the height of the insanity. Their accusations kind of backfired on t

hem because the only time my son has been hurt and required medical care has been when he was at school. Basically this year becomes a wash… and yes I am counting the days until school ends.

Gavin turned 7 on the 8th and he had a Ratatouille birthday party. We cooked individual pizzas from scratch and had chocolate fondue. It was a blast!

I’d love to hear what everyone has planned for the summer!

Suze (mom to Nicolas and Kristopher Identical/15/Opitz and Gavin 7/DS

No virus found in this incoming message.Checked by AVG.Version: 7.5.519 / Virus Database: 269.23.0/1381 - Release Date: 4/16/2008 9:34 AM

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  • 1 month later...
Guest guest

Hi! Checking in from central Illinois. Luke & Jake turned six on

April 10 and they had a " sports theme " party with 10 other little

boys and one girl. They had a great time, but I was amazed at how

little boys this age can turn anything into a " weapon " --it was chaos

but fun, and is the last big friends party I'm doing for a few

years! The boys had very successful school years and I'm pleased

with what we have set up for next year. They will be in the first

grade and Luke will spend most of his time in the general ed

classroom, pulled out for math and some reading, but will also have

reading groups within gen ed too. He has been mostly non-verbal up

until this point, but he's been speaking a lot more, and we've been

experimenting with voice output devices too. That's been

interesting. He is also the first student in our district to receive

extended school year services this summer, where he will get speech

once a week. This tells me that I must be the only parent that even

knows what ESY is. They are both playing on the same tee ball team

this summer, and their first game is tomorrow, so we're excited for

that. I am paying his 1:1 aide from school to come over twice a week

this summer and work on skills with him and we're starting that

today. So there's a lot going on, but so far they're enjoying their

summer. Now we just need it to stop raining here--we have so much

flooding around us and we've been very fortunate but there are many

who have not been.

Hope everyone enjoys their summer and welcome to all the new families!

--mom to Luke (DS) and Jake, age 6

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  • 2 months later...

LOL......My oldest loved to say I don't know. He is also very high functioning. He was finally told that it was not OK to say he doesn't know when he does this was at about 13 and now at 16 he rarely tries to use the I don't know response any more unless he really doesn't know. We had explained this all to him well and told him how saying I don't know all the time made people think he wasn't smart and that we all knew he was very smart. He definitely didn't want people to think he wasn't smart.....Good Luck

Merry Low Parent to 16 DS, congenital heart defect, Hypothyroidism, Leukemia(in remission), chronic lung disease, asthma, Failure to thrive, and osteoperosis; Kate 15 ADHD, NAS, Long QT Syndrome; Jaykob 12 DS, ADHD, hypothyroidism, moderate hearing loss

-- Checking in

Alas, summer ends here when school starts on the 20th of August. I'm a first grade teacher and have already begun attending workshops and getting my classroom set up. It's a very busy time and I took in to the Down syndrome clinic at the Center for Disabilties and Development in Iowa City. They do an all-day long assessment - which we leave exhausted! has decided to answer almost all questions with "I don't know" - even when he does know it. Well, sure enough, he decided to pull that stunt with the psychologist. It was very frustrating for me to sit back and have him say he didn't know the answer to "What do you wear in the winter to keep your head warm?" Surprisingly, he ended up doing quite well overall (as some required that he point to certain pictures). A "typical" child scores between 85-115. Even with all the "I don't know's", he scored a 71! I was very happy with that!However, when he had his hearing test, he failed with the lower tones. So, now we have to go back the the ENT and see what to do. It might be a matter of just using an FM system (amplification) in the classroom OR possibly hearing aides (I hope not).The physical therapist suggested that he wear orthotics because his arches are "collapsing". Then, she gave me recommendations to stretch out his achilles tendon (he has a club foot that keeps tightening up).The speech pathologist was from a different culture and had an accent that might have made it more difficult for to understand. was again in the "I don't know" mode. So, she thought she would ask, "Can you take a guess?" to which would reply, "no". No surprise there! Well, she asked another question and said, "I don't know. No guess." Too funny!I know is functioning pretty high since he tries to manipulate the situation, but frustrating nonetheless when his standby response is "I don't know!"Well, that's it from Iowa!Mom to Austin (12), 9 year old twins (DS) and Gabe

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When Caelia was

5 her answer in school was “no”. No matter the question, no

matter if she REALLY wanted what she was being offered. It was extremely

frustrating. The psychologist that did her testing was someone that

Caelia had a dislike for anyway and that was absolutely all she would say to

the woman. When the testing was done, I asked Caelia why she kept saying “no”

– she wrinkled her nose, pointed to the woman’s office and said “yucky”.

I guess she was actually communicating – we just didn’t know the

question.

The woman listed

Caelia as profoundly mentally disabled and asked if we had considered placing

her in a care facility? I agree with Caelia – “YUCKY!”

Your son must be

very bright to have scored so high with his stubborn streak showing.

Sheila

Mama to

(11), Caelia (6, DS) and Valeria (5, DS- adopted 6 months ago from Ukraine)

Hoping to adopt

Masha (19month, DS) from Russia

From:

Multiples-DS [mailto:Multiples-DS ] On Behalf Of highlandtchr

Sent: Monday, August 11, 2008 7:43 PM

To: Multiples-DS

Subject: Checking

in

Alas, summer ends here when school starts on the 20th

of August. I'm

a first grade teacher and have already begun attending workshops and

getting my classroom set up. It's a very busy time and I took

in to the Down syndrome clinic at the Center for Disabilties and

Development in Iowa City.

They do an all-day long assessment - which

we leave exhausted!

has decided to answer almost all questions with " I don't

know " - even when he does know it. Well, sure enough, he decided to

pull that stunt with the psychologist. It was very frustrating for

me to sit back and have him say he didn't know the answer to " What do

you wear in the winter to keep your head warm? " Surprisingly, he

ended up doing quite well overall (as some required that he point to

certain pictures). A " typical " child scores between 85-115. Even

with all the " I don't know's " , he scored a 71! I was very happy with

that!

However, when he had his hearing test, he failed with the lower

tones. So, now we have to go back the the ENT

and see what to do.

It might be a matter of just using an FM system (amplification) in

the classroom OR possibly hearing aides (I hope not).

The physical therapist suggested that he wear orthotics because his

arches are " collapsing " . Then, she gave me recommendations to

stretch out his achilles tendon (he has a club foot that keeps

tightening up).

The speech pathologist was from a different culture and had an accent

that might have made it more difficult for to understand.

was again in the " I don't know " mode. So, she thought she

would ask, " Can you take a guess? " to which would

reply, " no " . No surprise there! Well, she asked another question and

said, " I don't know. No guess. " Too funny!

I know is functioning pretty high since he tries to manipulate

the situation, but frustrating nonetheless when his standby response

is " I don't know! "

Well, that's it from Iowa!

Mom to Austin (12), 9 year old twins (DS) and Gabe

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Yucky is right, yucky, icky, and not very well versed in the subject she was evaluating-how stubborn our sweeties can be.

Hugs, Kris

Please visit the girls blogs to hear our latest news

Subject: RE: Checking inTo: Multiples-DS Date: Wednesday, August 13, 2008, 10:38 AM

When Caelia was 5 her answer in school was “no”. No matter the question, no matter if she REALLY wanted what she was being offered. It was extremely frustrating. The psychologist that did her testing was someone that Caelia had a dislike for anyway and that was absolutely all she would say to the woman. When the testing was done, I asked Caelia why she kept saying “no” – she wrinkled her nose, pointed to the woman’s office and said “yucky”. I guess she was actually communicating – we just didn’t know the question.

The woman listed Caelia as profoundly mentally disabled and asked if we had considered placing her in a care facility? I agree with Caelia – “YUCKY!”

Your son must be very bright to have scored so high with his stubborn streak showing.

Sheila

Mama to (11), Caelia (6, DS) and Valeria (5, DS- adopted 6 months ago from Ukraine)

Hoping to adopt Masha (19month, DS) from Russia

From: Multiples-DS@ yahoogroups. com [mailto:Multiples- DSyahoogroups (DOT) com] On Behalf Of highlandtchrSent: Monday, August 11, 2008 7:43 PMTo: Multiples-DS@ yahoogroups. comSubject: Checking in

Alas, summer ends here when school starts on the 20th of August. I'm a first grade teacher and have already begun attending workshops and getting my classroom set up. It's a very busy time and I took in to the Down syndrome clinic at the Center for Disabilties and Development in Iowa City . They do an all-day long assessment - which we leave exhausted! has decided to answer almost all questions with "I don't know" - even when he does know it. Well, sure enough, he decided to pull that stunt with the psychologist. It was very frustrating for me to sit back and have him say he didn't know the answer to "What do you wear in the winter to keep your head warm?" Surprisingly, he ended up doing quite well overall (as some required that he point to certain pictures). A "typical" child scores between 85-115. Even with all

the "I don't know's", he scored a 71! I was very happy with that!However, when he had his hearing test, he failed with the lower tones. So, now we have to go back the the ENT and see what to do. It might be a matter of just using an FM system (amplification) in the classroom OR possibly hearing aides (I hope not).The physical therapist suggested that he wear orthotics because his arches are "collapsing" . Then, she gave me recommendations to stretch out his achilles tendon (he has a club foot that keeps tightening up).The speech pathologist was from a different culture and had an accent that might have made it more difficult for to understand. was again in the "I don't know" mode. So, she thought she would ask, "Can you take a guess?" to which would reply, "no". No surprise there! Well, she asked another question and said, "I don't know. No guess." Too

funny!I know is functioning pretty high since he tries to manipulate the situation, but frustrating nonetheless when his standby response is "I don't know!"Well, that's it from Iowa !Mom to Austin (12), 9 year old twins (DS) and Gabe

No virus found in this incoming message.Checked by AVG - http://www.avg. comVersion: 8.0.138 / Virus Database: 270.6.2/1609 - Release Date: 8/13/2008 6:43 AM

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It's reassuring to hear that I'm not the only mom dealing with the "no"!!

Mom to Austin (12), 9 yr old twins Gabe and (DS)

Checking in

Alas, summer ends here when school starts on the 20th of August. I'm a first grade teacher and have already begun attending workshops and getting my classroom set up. It's a very busy time and I took in to the Down syndrome clinic at the Center for Disabilties and Development in Iowa City . They do an all-day long assessment - which we leave exhausted! has decided to answer almost all questions with "I don't know" - even when he does know it. Well, sure enough, he decided to pull that stunt with the psychologist. It was very frustrating for me to sit back and have him say he didn't know the answer to "What do you wear in the winter to keep your head warm?" Surprisingly, he ended up doing quite well overall (as some required that he point to certain pictures). A "typical" child scores between 85-115. Even with all the "I don't know's", he scored a 71! I was very happy with that!However, when he had his hearing test, he failed with the lower tones. So, now we have to go back the the ENT and see what to do. It might be a matter of just using an FM system (amplification) in the classroom OR possibly hearing aides (I hope not).The physical therapist suggested that he wear orthotics because his arches are "collapsing" . Then, she gave me recommendations to stretch out his achilles tendon (he has a club foot that keeps tightening up).The speech pathologist was from a different culture and had an accent that might have made it more difficult for to understand. was again in the "I don't know" mode. So, she thought she would ask, "Can you take a guess?" to which would reply, "no". No surprise there! Well, she asked another question and said, "I don't know. No guess." Too funny!I know is functioning pretty high since he tries to manipulate the situation, but frustrating nonetheless when his standby response is "I don't know!"Well, that's it from Iowa !Mom to Austin (12), 9 year old twins (DS) and Gabe

No virus found in this incoming message.Checked by AVG - http://www.avg. comVersion: 8.0.138 / Virus Database: 270.6.2/1609 - Release Date: 8/13/2008 6:43 AM

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