Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 Well said a! Their unconditional love that they give to us is a lesson to us all! I just wish the other's around our kids could know that love that we receive! It's contagious! And it's sweet! Joyce-wife to Mike 33 wonderful years mom to seven -32, Leah-31, Mikey-27, -25, -22, -15-DS, and -11-DS/Autism To: Multiples-DS From: bpnkids@...Date: Wed, 3 Sep 2008 13:12:38 -0400Subject: Re: Mother of Down Syndrome Child is McCain's chosen one! Keep the faith , I know sometimes that can sound empty. It is amazing how strong all those memories can be and how quickly you can be transported back to painful times. There are days when I look at when he is sleeping and cry. Not for what he will or will not accomplish, but that I may not always be there to watch over him and I love him like no one else ever will. Knowing that he will meet people who think he should not have been born, breaks my heart. I think the way he loves me back, so unconditionally, so fully, that makes me smile when I want to cry. He is the sweetest boy, every morning when I take him out of his bed, he wraps his little arms around my neck and whispers 'Mama' in my ear and it is so drippy and sweet, it makes all the worry vanish for a while. If nothing else, having has really made me appreciate all the little things in life. Stay strong!amom to Meg14,Jack11,Lucy7,(DS) & 33 months Re: Introduction >> >> Hello Sandi, >> Sounds like a busy house. 20 months is >> alot of fun. I hope you >> will find the answers to all you >> questions, here and in the future. >> Irene >> =2 0 ZackDS/ADHD, , & 10 >> Jake 12 >> > > * Introduction > > Hello to everyone. We have enjoyed > reading all the posts this last > year and have found the group > 20 extremely informative. > > We have 20 month old boy twins > (ds) and Liam. Tommy will be > happy to tell you that he is 12 minuts > older than Liam. Tommy also > has Hirschsprung' s disease (he had 5 > inches of his colon removed and > reconnected thru what is termed a pull > thru surgery). Tommy had an > NG tube for his first 10 months of > life and now has a Gtube. He > uses sign lanugage to communicate, can > sign more, eat, itsy bitsy > =2 0 sp ider song, dog and happy. He is one > of four of our children and > continues to be our inspiration and > joy. Liam is a healthy little > toddler and LOVES his brother, many > times walking over to Tommy and > rubbing his brothers back. > > We look forward to checking this > message board ofte n. Our current > questions are: does anyone use daycare > with their kiddos that have > ds? does anyone else have gtubes? > kinda curious about granulation > tissue issues with that. > > Lots of love to everyone, Sandi > McMillan (wife to Colin, momma to > Hannah 14, 13, (Ds and > HD pull thru) and Liam (almost > 2 years). www.tommyupdate > <http://www.tommyupdate/>. blogspot. com > > > > ------------------------------------------------------------------------ > Talk to your Yahoo! Friends via Windows > Live Messenger. Find Out How > <http://www.windowslive.com/explore/messenger?ocid=TXT_TAGLM_WL_messenger_yahoo_082008> > > > ------------------------------------------------------------------------ > Get the MapQuest Toolbar > <http://mapquest.com/toolbar?ncid=mpqmap00050000000010>. > Directions, Traffic, Gas Prices More! > > ------------------------------------------------------------------------ > Get the MapQuest Toolbar > <http://mapquest.com/toolbar?ncid=mpqmap00050000000010>. > Directions, Traffic, Gas Prices More! > > > > > -- > Gayla > > > > > -- > Gayla > > > > > -- > Gayla > ------------------------------------ More pictures of our kids: http://www.pbase.com/urriegrl/multiplesds Quote Link to comment Share on other sites More sharing options...
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