Advice

[Guest guest]

Dear Lee,

The tablet form is not supposed to be too good because the heat involved

in making the tablets will damage the colostrum. The best product

is supposed to be the gelatin capsule. The powder isn't very tasty

or easy to work with.

Lee wrote:

Hello everyone...I'm still alive!

Well some days it's...

But I'm here, that's the main thing.

I have a few questions and I'd appreciate some advice.

I haven't been able to get to the doctor for the AP yet. I'm

too

decrepit to get to the damn car. But will hopefully make it in

the

next couple of weeks I hope...

1) Colostrum seems to be very popular. I've been told

you can get a

herx on colostrum! Is that true? Has anyone experienced

that? And

is the powdered form taken in water (which doesn't seem to dissolve

very well I might add) OK or is it best in tablet form?

2) What tests should my doctor do before starting me on AP

to make

sure everything is covered?

3) Are hormone/thyroid tests necessary? I had one thyroid

test that

was apparently normal but I'm very very thin and can't seem to

put on

weight.

Thanks,

Lee

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi Lee,

> I haven't been able to get to the doctor for the AP yet. I'm too

> decrepit to get to the damn car. But will hopefully make it in the

> next couple of weeks I hope...

I did send you our list of Aussie doctors, didn't I?

> 2) What tests should my doctor do before starting me on AP to make

> sure everything is covered?

The baseline tests are listed at rheumatic.org/tests.htm and PCR tests

should be run for the entire panel of mycoplasma and as many other

organisms that you can get tested for. Your doctor might also do blood

tests for the markers of specific types of rheumatic disease. What other

tests you can get probably depends on the 'bent' of the doctor you're

seeing. Some doctors don't believe that candida can overgrow, for

instance. ACAM doctors will also test candida levels, mercury levels, do

hair analysis, test for vitamin/mineral deficiencies, hormone levels etc.

The fact that you can't put on weight (like my daughter) suggests leaky

gut or malabsorption problems. Janene is doing better since taking

l-glutamine, olive leaf extract and amino acids - at her worst about 18

months ago, her weight dropped to 38kg (she is 5'3 " ) and now her weight

has gone up to 42kg - still very thin but better than she was.

(in Adelaide).

[Guest guest]

Lee, I just found this on my drafts and figure it never went to you so am

now sending this your way. I don't even know how long it has been sitting

here just waiting for attention! Love,

Dear Lee, I will respond regarding the colostrum. I take the capsules

while my daughter with Chron's disease takes the powdered form because of

finances as she figures it is cheaper. I have not figured it up to see. I

started on the powdered form but found the taste abhorable. I do give my

elderly dog powdered colostrum every night and mix his with a whipper

(cannot remember the word for the instrument) into rice milk and he drinks

it down. My daughter mixes as much she you possibly can, hers into water

and drinks it down quickly. The " herx " is actually called a healing crisis

as the mucous etc. is leaving your body. I have a friend who is over weight

who has not ever had this but I do not think she takes enough to bring this

crisis on. I take eight capsules per day and if I even think I am catching

a cold or something, I up it to 11 per day. The healing crisis can feel

just like a bad cold, a sinus infection, a light flu like feeling, chills, a

little fever. My own was like a terrible head cold as I got rid of the

mucous. Did not last long and it was about a month into the colostrum

before mine occurred. Be sure to keep d rinking PLENTY of water.

Dr. Sinnott took blood studies for mycoplasms, and RA and Lupus factors,

SD strep (as this is treated before the AP is begun if you also have strep

and don't know it), thyroid but don't know the name of the test. Other than

that, he did not do any other studies but then again, he may on other people

Lee wrote:

> Hello everyone...I'm still alive! Well some days it's...

> But I'm here, that's the main thing.

>

> I have a few questions and I'd appreciate some advice.

>

> I haven't been able to get to the doctor for the AP yet. I'm too

> decrepit to get to the damn car. But will hopefully make it in the

> next couple of weeks I hope...

>

> 1) Colostrum seems to be very popular. I've been told you can get a

> herx on colostrum! Is that true? Has anyone experienced that? And

> is the powdered form taken in water (which doesn't seem to dissolve

> very well I might add) OK or is it best in tablet form?

>

> 2) What tests should my doctor do before starting me on AP to make

> sure everything is covered?

>

> 3) Are hormone/thyroid tests necessary? I had one thyroid test that

> was apparently normal but I'm very very thin and can't seem to put on

> weight.

>

> Thanks,

>

> Lee

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

It is my understanding that there is only one in L.A and One in Boston....I

hope I am wrong!

Willow

----------

> From: SUZANNAT@...

> dwarfism

> Subject: advice

> Date: Tuesday, April 24, 2001 10:32 AM

>

> I'd be interested to those on this list -- how they were able to get a

> Skeletal Dysplasia Clinic in there location. There is a possibility that

> Hospital For Special Surgery will be opening a clinic for Dr. LaPlaza

here on

> Long Island.

>

> So for those of you who have already visited HSS and have a doctor --

please

> have them ask HSS about this particular possibility, so that we can have

our

> own

> Skeletal Dysplasia Center. As I still may choose to go out of network

and

> out of area till they are fully established -- it's about time we have a

> facility in NY / Long Island. Many of their doctors are also recognized

in

> the " Best Doctors Book " which is referenced in your Library, next to the

> " Best Lawyers Book "

>

> Check their site -- www.hss.edu

>

> Telesca

>

>

> Looking to unsubscribe? Don't e-mail the list! Just send a blank e-mail

to dwarfism-unsubscribe

>

>

[Guest guest]

Hi. Is it just me, or am I the only one who just got these messages

dated 4/27????

I sure hope Doc can answer your questions, I don't know anything

about hepatitis B. Sorry!

Good luck!

Claudine

--- rsgp <rsgp@...> wrote:

> Dear Doc and List Members,

>

>

>

> 1. I am pasting below my last lab report

>

> 2. I am apreehensive

>

> 3. My virus is what people call mutant, (hbe -, anti hbe +)

>

> 4. My latest ultrasonography showed a heterogeneous

> parenchyma, liver volume reduced and splenomegaly. No portal

> hipertension (I don't remember the details of the report, as a

> matter of fact)

>

> 5. My doctor said I would be a candidate for transplantation

> later on, provided that I succeed to clear the virus and lose

> weight (I weigh 117kg).

>

> 6. He said it is expected a virus clearance with

> administration of zaffix

>

> 7. He added that I have scars in your liver (an incipient

> cirrosis) and your condition is due to alcohol intake for nearly 30

> years. It takes time to improve.

>

>

>

>

>

> The lab report:

>

>

>

> Hemogram (results and normal parameters in brackets)

>

>

>

> Hemacias 4,66 (4,22/5,05)

>

> Hemoglobin 15,1 (12,6/16,6)

>

> Hematocrit 45,3 (37,8/48,6)

>

> Media VGM 97,1 (80,5/91,7) *

>

> Media HGM 32,4 (26,8/30,9) *

>

> Media CHGM 33,4 (32,7/34,6)

>

> Media RDW 13,4 (11,5/14,5)

>

>

>

> Leucocitary series

>

>

>

> Leucocytes 4.580 100% (4,6/9,5)

>

> Total neutrophiles 52% 40-70 2.382 (1,8/6,6)

>

> Mielocites 0

>

> Metamielocites 0

>

> Linfocytes 40% 1.832 (2,5/4,3)**

>

> Reactive linfocytes 0

>

> Monocytes 6% 275 (100-800)

>

> Basofiles 0

>

> Eosinofiles normal

>

>

>

> Platelets series

>

>

>

> Count 74,000

>

> Platelet medium volume - 11,2 (7,5/9,0)

>

> Platecocrit 0,08 (0,18/0,29)

>

>

>

>

>

> Total Proteins - 6,8 (6,0/8,4)

>

> Albumin 3,1 (3,5/5,0)

>

> Globulin 3,7

>

>

>

>

>

> GGT 456 (11/50)

>

> SGOT 52 (up to 45)

>

> TGP 68 (up to 50)

>

>

>

> Alphaphetoprotein 5,15 (up to 15,0)

>

> Hbsag 233,1 (+ or > 1 positive)

>

> Anti Hbsag below 0,2 (positive above 10)

>

>

>

> Except for some fatigue, slight pains in articulation and in

> splean when doing exercises (swimming, for example) and occasional

> memory fails I would say I am feeling well.

>

>

>

>

>

> MY QUESTIONS ARE:

>

>

>

> 1. What means these lab results?

>

> 2. What is most appropriate diet and I must avoid?

>

> 3. I used to take milk thistle but I interrupted it because I

> read some messages saying it is not good to associate milk thistle

> and lamivudine. I would like to take it again. Is it OK?

>

> 4. The doctor said I must carry on with lamivudine. Is it

> consistent?

>

> 5. Please advise me but don't scare me, OK?

>

> 6. I am not drinking since September of 2000!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

yeah I got several. I figured burped.

RSGP (sorry I don't know your name), You are talking about Hep B correct? I

don't remember much about it so I can't help you, but I am saying that cuz I

didn't want you to think I'm ignoring your post I'm sure Doc will have

some info on it. If you are talking about Hep B, there is a great email

list for B and Doc can give you the addy. Good luck!

alley

[Guest guest]

Thank you and my name is Renato, from Brazil.

Re: Advice

> yeah I got several. I figured burped.

>

> RSGP (sorry I don't know your name), You are talking about Hep B correct?

I

> don't remember much about it so I can't help you, but I am saying that cuz

I

> didn't want you to think I'm ignoring your post I'm sure Doc will have

> some info on it. If you are talking about Hep B, there is a great email

> list for B and Doc can give you the addy. Good luck!

>

> alley

>

>

>

>

[Guest guest]

Hi Renato! ) Nice to meet you.

alley

Grand Prairie, Tx, USA

[Guest guest]

Hi Renato! ) Nice to meet you.

alley

Grand Prairie, Tx, USA

[Guest guest]

Nice to meet you too, .

So you are from Texas!

It is a famous state of US.

I grew viewing cow boy films with Texas as scenario.

But I never have been there except in a flight conection to Washington DC,

as member of a brazilian delegation in a working tour, 3 years ago.

Do you have HepB or C?

nice greetings

Renato

Re: Advice

> Hi Renato! ) Nice to meet you.

>

> alley

> Grand Prairie, Tx, USA

>

>

>

>

[Guest guest]

Nice to meet you too, .

So you are from Texas!

It is a famous state of US.

I grew viewing cow boy films with Texas as scenario.

But I never have been there except in a flight conection to Washington DC,

as member of a brazilian delegation in a working tour, 3 years ago.

Do you have HepB or C?

nice greetings

Renato

Re: Advice

> Hi Renato! ) Nice to meet you.

>

> alley

> Grand Prairie, Tx, USA

>

>

>

>

[Guest guest]

I must have missed a post somewhere along the line...but that wouldn't

be surprising since I'm such a space cadet these days.

Welcome to our group, Renato

Tatezi

wrote:

> Hi Renato! ) Nice to meet you.

>

> alley

> Grand Prairie, Tx, USA

>

>

>

[Guest guest]

I must have missed a post somewhere along the line...but that wouldn't

be surprising since I'm such a space cadet these days.

Welcome to our group, Renato

Tatezi

wrote:

> Hi Renato! ) Nice to meet you.

>

> alley

> Grand Prairie, Tx, USA

>

>

>

[Guest guest]

Renato,

I have hep B antibodies, e and s antigen neg, and Hep C.

I haven't been out of the country yet, hell, I barely get out of Texas! But

hubby spent some time in Sao o and Rio on business. I think he found

every place in Rio that sold Jack s

alley

[Guest guest]

Renato,

I have hep B antibodies, e and s antigen neg, and Hep C.

I haven't been out of the country yet, hell, I barely get out of Texas! But

hubby spent some time in Sao o and Rio on business. I think he found

every place in Rio that sold Jack s

alley

[Guest guest]

Renato,

I have hep B antibodies, e and s antigen neg, and Hep C.

I haven't been out of the country yet, hell, I barely get out of Texas! But

hubby spent some time in Sao o and Rio on business. I think he found

every place in Rio that sold Jack s

alley

[Guest guest]

Renato,

I have hep B antibodies, e and s antigen neg, and Hep C.

I haven't been out of the country yet, hell, I barely get out of Texas! But

hubby spent some time in Sao o and Rio on business. I think he found

every place in Rio that sold Jack s

alley

[Guest guest]

Hi Alley and thanks for your mail. I think I missed a

post also. Welcome Renato to the group

Take Care, Connie

--- <patriciajean@...> wrote:

> Renato,

>

> I have hep B antibodies, e and s antigen neg, and

> Hep C.

>

> I haven't been out of the country yet, hell, I

> barely get out of Texas! But

> hubby spent some time in Sao o and Rio on

> business. I think he found

> every place in Rio that sold Jack s

>

> alley

>

>

__________________________________________________

[Guest guest]

Hi Alley and thanks for your mail. I think I missed a

post also. Welcome Renato to the group

Take Care, Connie

--- <patriciajean@...> wrote:

> Renato,

>

> I have hep B antibodies, e and s antigen neg, and

> Hep C.

>

> I haven't been out of the country yet, hell, I

> barely get out of Texas! But

> hubby spent some time in Sao o and Rio on

> business. I think he found

> every place in Rio that sold Jack s

>

> alley

>

>

__________________________________________________

[Guest guest]

Hi Alley and thanks for your mail. I think I missed a

post also. Welcome Renato to the group

Take Care, Connie

--- <patriciajean@...> wrote:

> Renato,

>

> I have hep B antibodies, e and s antigen neg, and

> Hep C.

>

> I haven't been out of the country yet, hell, I

> barely get out of Texas! But

> hubby spent some time in Sao o and Rio on

> business. I think he found

> every place in Rio that sold Jack s

>

> alley

>

>

__________________________________________________

[Guest guest]

Hi Alley and thanks for your mail. I think I missed a

post also. Welcome Renato to the group

Take Care, Connie

--- <patriciajean@...> wrote:

> Renato,

>

> I have hep B antibodies, e and s antigen neg, and

> Hep C.

>

> I haven't been out of the country yet, hell, I

> barely get out of Texas! But

> hubby spent some time in Sao o and Rio on

> business. I think he found

> every place in Rio that sold Jack s

>

> alley

>

>

__________________________________________________

[Guest guest]

Thank you Connie.

Re: Advice

> Hi Alley and thanks for your mail. I think I missed a

> post also. Welcome Renato to the group

> Take Care, Connie

> --- <patriciajean@...> wrote:

> > Renato,

> >

> > I have hep B antibodies, e and s antigen neg, and

> > Hep C.

> >

> > I haven't been out of the country yet, hell, I

> > barely get out of Texas! But

> > hubby spent some time in Sao o and Rio on

> > business. I think he found

> > every place in Rio that sold Jack s

> >

> > alley

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thank you Connie.

Re: Advice

> Hi Alley and thanks for your mail. I think I missed a

> post also. Welcome Renato to the group

> Take Care, Connie

> --- <patriciajean@...> wrote:

> > Renato,

> >

> > I have hep B antibodies, e and s antigen neg, and

> > Hep C.

> >

> > I haven't been out of the country yet, hell, I

> > barely get out of Texas! But

> > hubby spent some time in Sao o and Rio on

> > business. I think he found

> > every place in Rio that sold Jack s

> >

> > alley

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thank you Connie.

Re: Advice

> Hi Alley and thanks for your mail. I think I missed a

> post also. Welcome Renato to the group

> Take Care, Connie

> --- <patriciajean@...> wrote:

> > Renato,

> >

> > I have hep B antibodies, e and s antigen neg, and

> > Hep C.

> >

> > I haven't been out of the country yet, hell, I

> > barely get out of Texas! But

> > hubby spent some time in Sao o and Rio on

> > business. I think he found

> > every place in Rio that sold Jack s

> >

> > alley

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thank you Connie.

Re: Advice

> Hi Alley and thanks for your mail. I think I missed a

> post also. Welcome Renato to the group

> Take Care, Connie

> --- <patriciajean@...> wrote:

> > Renato,

> >

> > I have hep B antibodies, e and s antigen neg, and

> > Hep C.

> >

> > I haven't been out of the country yet, hell, I

> > barely get out of Texas! But

> > hubby spent some time in Sao o and Rio on

> > business. I think he found

> > every place in Rio that sold Jack s

> >

> > alley

> >

> >

>

>

> __________________________________________________

>