Advice

[Guest guest]

Kristian,

I too recently joined this group. My father has melanoma. He has

just begun the Gerson Therapy in California. He finishes his 2 week

trip there tomorrow. I'm not sure if something like this would help

your father in law or not. Visit their website www.gerson.org My

best of luck to your father in law and your family.

" Kristian wrote:

I have just joined this group because my father-in-law has been

diagnosed with stomach cancer which has begun to metastasise and

has touched his oesophagus and left spots on his bone.

[Guest guest]

Becky,

I had forgotten to mention the consult...I cried on the way home because the neurosurgeon had told us previously that he did not think Tommy needed to be banded and when did the measurements and told us moderate brachy and mild to mod plagio - I was floored! We thought that his head was improving with the repo. At least we are in good hands now and moving forward to get the best results and care for our kids.

The casting appointment as well may be difficult. If Isabelle takes a pacifier or bottle you may want to use that or any toys that she is fond of (and can get washed)! Tommy cried so much he fell asleep while we were bathing him after the casting! Remember to pack a change of clothes for you too.

Tommy has adjusted remarkably well with the band - he even slept straight thru (about 12 hours) the first few nights! Now he is getting his first tooth, so the band is not causing any sleep problems. He did have a red spot on the back of his neck the first week so we had to keep it off more during the day after we talked with Mike (the other PT in Cleveland - he is VERY nice!). Tommy is back in it as much as possible during the day, but the spot still comes and goes. We take the band off every few hours for his neck exercises anyway, so it is a good time to let the spot heal too.

Perhaps we will see you in Cleveland soon, we go Saturday for the 2nd adjustment - these visits are very short and simple. Good luck Saturday, I'll be thinking of you and Isabelle. Have a safe trip and hopefully you will both sleep on the way home...if your husband is driving. Feel free to email me at mscahil@... anytime.

Maureen

Re: Advice

Hello Maureen,Thanks so much for your upbeat response! We went for our consultationtoday for the DOC band. Up to this time my doctor and my PT have beentelling us that Isabelle has a mild case of plagio. But, today theP.T. in Cleveland...I believe her name is ...says she is moderatemeasuring at 20 mm. Needless to say, my husband and I were a littlesaddened, but optimistic and are planning on casting next Saturday. Imust admit the drive was long, but we are hoping it all goes well. So how is Tommy doing? How is sleeping going? Any red marks?Thanks so much for all your help and advice!Becky> > > > > >> > > > > > Hello, > > > > > > > > > > > > I just joined the group and am looking for advise. My> > daughter was> > > > > > diagnosed with torticollis and plagiocephaly at 3 months > old. > > > We have> > > > > > completely corrected the torticollis with PT. Then with> > aggressive> > > > > > repositioning, etc. we have made some improvement with the> > > > > > plagiocephaly. However, Isabelle is now 5 months old and> > > continues to> > > > > > have a flattened right occipital area with slight anterior> > > protrusion> > > > > > of her right ear. She has no facial abnormalities at all > and> > > everyone> > > > > > keeps telling us she is a "very mild" case. My husband and > I> > > went for> > > > > > a consultation for helmet therapy. We are just really torn > on> > > what to> > > > > > do. She is such a happy, developmentally appreciate baby > that I> > > would> > > > > > hate to cause her discomfort for "cosmetic" reasons; yet, I> > want to> > > > > > offer her all the opportunities available to her. Has > anyone> > > NOT done> > > > > > helmet therapy and seen good results? > > > > > > > > > > > > Thanks,> > > > > > Becky> > > > > >> > > > >> > > >> > >> >> > > > > > >----------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.476 / Virus Database: 269.11.19/955 - Release Date:8/15/2007 4:55 PM>

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.484 / Virus Database: 269.12.6/971 - Release Date: 8/24/2007 2:59 PM

[Guest guest]

Jen,

we are new to the group but we live between dayton and cincy. We are going to Hanger Orthotics tomorrow for a scan to get my 5 month old dd fitted. I am glad to see someone near us who has gone to Hanger and has high regards.

Alison

Re: Advice

Becky,I was just reading through your post. I live in Dayton as well and my daughter just received her helmet this past Thursday. We went to Hanger Orthotics (The Brace Shopee) which is located in Monroe, Ohio near Cincinnati - about 50 min from where we live in Oakwood. The Doctor at Cincinnati Children's recommended this place and they are wonderful!My daughter Kacy is adjusting well. She is measuring 16 mm right now, what we thought was mild pre-measurement, and we are hopefully the helmet will help to correct her head shape. She just turned 6 months and they told us that she should have to wear it for 2 1/2 to 3 months. If you have any questions about Hanger Orthotics let me know. It's a little bit of a closer drive for you and they will provide a nice discount for the helmet if your insurance will not cover it.Hope this is helpful!Jen> > > > > > >> > > > > >

> Hello, > > > > > > > > > > > > > > I just joined the group and am looking for advise. My> > > daughter was> > > > > > > diagnosed with torticollis and plagiocephaly at 3 months > > old. > > > > We have> > > > > > > completely corrected the torticollis with PT. Then with> > > aggressive> > > > > > > repositioning, etc. we have made some improvement with the> > > > > > > plagiocephaly. However, Isabelle is now 5 months old and> > > > continues to> > > > > > > have a flattened right occipital area with slight anterior> > > > protrusion> > > > > > > of her right ear. She has no facial abnormalities at all > > and> > > >

everyone> > > > > > > keeps telling us she is a "very mild" case. My husband and > > I> > > > went for> > > > > > > a consultation for helmet therapy. We are just really torn > > on> > > > what to> > > > > > > do. She is such a happy, developmentally appreciate baby > > that I> > > > would> > > > > > > hate to cause her discomfort for "cosmetic" reasons; yet, I> > > want to> > > > > > > offer her all the opportunities available to her. Has > > anyone> > > > NOT done> > > > > > > helmet therapy and seen good results? > > > > > > > > > > > > > > Thanks,> > > > > > > Becky> > > > >

> >> > > > > >> > > > >> > > >> > >> > > > > > > > > > > > > >> ------------ --------- --------- --------- --------- --------- ------------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition. > > Version: 7.5.476 / Virus Database: 269.11.19/955 - Release Date:> 8/15/2007 4:55 PM> >>

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

Hey Alison - just read your post and had to say that we are taking our 5month old son to Hanger tomorrow for a scan also - although in NC! Just wanted to wish you and family the best of luck! Does your daughter have plagio? Our son has brachy - and we're really hoping this band helps to round him out!! Again ~ best of luck! alison mignery <alisonmignery@...> wrote: Jen, we are new to the group but we live between dayton and cincy. We are going to Hanger Orthotics tomorrow for a scan to get my 5 month old dd fitted. I am glad to see someone near us who has gone to Hanger and has high regards. Alison Re: Advice Becky,I was just reading through your post. I live in

Dayton as well and my daughter just received her helmet this past Thursday. We went to Hanger Orthotics (The Brace Shopee) which is located in Monroe, Ohio near Cincinnati - about 50 min from where we live in Oakwood. The Doctor at Cincinnati Children's recommended this place and they are wonderful!My daughter Kacy is adjusting well. She is measuring 16 mm right now, what we thought was mild pre-measurement, and we are hopefully the helmet will help to correct her head shape. She just turned 6 months and they told us that she should have to wear it for 2 1/2 to 3 months. If you have any questions about Hanger Orthotics let me know. It's a little bit of a closer drive for you and they will provide a nice discount for the helmet if your insurance will not cover it.Hope this is helpful!Jen> > > > > > >> > > > > > > Hello, > > > > > > > > > > > > > > I just joined the group and am looking for advise. My> > > daughter was> > > > > > > diagnosed with torticollis and plagiocephaly at 3 months > > old. > > > > We have> > >

> > > > completely corrected the torticollis with PT. Then with> > > aggressive> > > > > > > repositioning, etc. we have made some improvement with the> > > > > > > plagiocephaly. However, Isabelle is now 5 months old and> > > > continues to> > > > > > > have a flattened right occipital area with slight anterior> > > > protrusion> > > > > > > of her right ear. She has no facial abnormalities at all > > and> > > > everyone> > > > > > > keeps telling us she is a "very mild" case. My husband and > > I> > > > went for> > > > > > > a consultation for helmet therapy. We are just really torn > > on> > > > what to> > > > > > > do. She is such a

happy, developmentally appreciate baby > > that I> > > > would> > > > > > > hate to cause her discomfort for "cosmetic" reasons; yet, I> > > want to> > > > > > > offer her all the opportunities available to her. Has > > anyone> > > > NOT done> > > > > > > helmet therapy and seen good results? > > > > > > > > > > > > > > Thanks,> > > > > > > Becky> > > > > > >> > > > > >> > > > >> > > >> > >> > > > > > > > > > > > > >> ------------ --------- --------- --------- --------- --------- ------------> > > > > > No virus found in this incoming

message.> > Checked by AVG Free Edition. > > Version: 7.5.476 / Virus Database: 269.11.19/955 - Release Date:> 8/15/2007 4:55 PM> >> Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games.

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Search.

[Guest guest]

,

Thank you so much for the well wishes, Best of luck to you too! Yes she has tort and plagio. She has been going to PT since she was 6 weeks old but her head shape is still a little off. We have been wresteling with banding her. one nurse acted like she was fine, another acted not sure and the doctor (who only spoke maybe 5 words to us) said "she needs a helmet". So I have been praying and think I am finaly at peace with it, but things may change when I have to acctually put the band on her. I know it will only be for a very short peroid of her life and in the long run better for her. Now I just hope insurance will help cover it!

Good Luck tomorrow!

Alison

Re: Advice

Becky,I was just reading through your post. I live in Dayton as well and my daughter just received her helmet this past Thursday. We went to Hanger Orthotics (The Brace Shopee) which is located in Monroe, Ohio near Cincinnati - about 50 min from where we live in Oakwood. The Doctor at Cincinnati Children's recommended this place and they are wonderful!My daughter Kacy is adjusting well. She is measuring 16 mm right now, what we thought was mild pre-measurement, and we are hopefully the helmet will help to correct her head shape. She just turned 6 months and they told us that she should have to wear it for 2 1/2 to 3 months. If you have any questions about Hanger Orthotics let me know. It's a little bit of a closer drive for you and they will provide a nice discount for the helmet if your insurance will not cover it.Hope this is helpful!Jen> > > > > > >> > > > > >

> Hello, > > > > > > > > > > > > > > I just joined the group and am looking for advise. My> > > daughter was> > > > > > > diagnosed with torticollis and plagiocephaly at 3 months > > old. > > > > We have> > > > > > > completely corrected the torticollis with PT. Then with> > > aggressive> > > > > > > repositioning, etc. we have made some improvement with the> > > > > > > plagiocephaly. However, Isabelle is now 5 months old and> > > > continues to> > > > > > > have a flattened right occipital area with slight anterior> > > > protrusion> > > > > > > of her right ear. She has no facial abnormalities at all > > and> > > >

everyone> > > > > > > keeps telling us she is a "very mild" case. My husband and > > I> > > > went for> > > > > > > a consultation for helmet therapy. We are just really torn > > on> > > > what to> > > > > > > do. She is such a happy, developmentally appreciate baby > > that I> > > > would> > > > > > > hate to cause her discomfort for "cosmetic" reasons; yet, I> > > want to> > > > > > > offer her all the opportunities available to her. Has > > anyone> > > > NOT done> > > > > > > helmet therapy and seen good results? > > > > > > > > > > > > > > Thanks,> > > > > > > Becky> > > > >

> >> > > > > >> > > > >> > > >> > >> > > > > > > > > > > > > >> ------------ --------- --------- --------- --------- --------- ------------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition. > > Version: 7.5.476 / Virus Database: 269.11.19/955 - Release Date:> 8/15/2007 4:55 PM> >>

Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games.

Luggage? GPS? Comic books? Check out fitting gifts for grads at Search.

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

Best of luck to you! I worked with Sheri and she is really great!

From: alison mignery <alisonmignery@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Re: AdviceDate: Sun, 26 Aug 2007 12:13:52 -0700 (PDT)

Jen,

we are new to the group but we live between dayton and cincy. We are going to Hanger Orthotics tomorrow for a scan to get my 5 month old dd fitted. I am glad to see someone near us who has gone to Hanger and has high regards.

Alison

Re: Advice

Becky,I was just reading through your post. I live in Dayton as well and my daughter just received her helmet this past Thursday. We went to Hanger Orthotics (The Brace Shopee) which is located in Monroe, Ohio near Cincinnati - about 50 min from where we live in Oakwood. The Doctor at Cincinnati Children's recommended this place and they are wonderful!My daughter Kacy is adjusting well. She is measuring 16 mm right now, what we thought was mild pre-measurement, and we are hopefully the helmet will help to correct her head shape. She just turned 6 months and they told us that she should have to wear it for 2 1/2 to 3 months. If you have any questions about Hanger Orthotics let me know. It's a little bit of a closer drive for you and they will provide a nice discount for the helmet if your insurance will not cover it.Hope this is helpful!Jen> > > > > > >> > > > > > > Hello, > > > > > > > > > > > > > > I just joined the group and am looking for advise. My> > > daughter was> > > > > > > diagnosed with torticollis and plagiocephaly at 3 months > > old. > > > > We have> > > > > > > completely corrected the torticollis with PT. Then with> > > aggressive> > > > > > > repositioning, etc. we have made some improvement with the> > > > > > > plagiocephaly. However, Isabelle is now 5 months old and> > > > continues to> > > > > > > have a flattened right occipital area with slight anterior> > > > protrusion> > > > > > > of her right ear. She has no facial abnormalities at all > > and> > > > everyone> > > > > > > keeps telling us she is a "very mild" case. My husband and > > I> > > > went for> > > > > > > a consultation for helmet therapy. We are just really torn > > on> > > > what to> > > > > > > do. She is such a happy, developmentally appreciate baby > > that I> > > > would> > > > > > > hate to cause her discomfort for "cosmetic" reasons; yet, I> > > want to> > > > > > > offer her all the opportunities available to her. Has > > anyone> > > > NOT done> > > > > > > helmet therapy and seen good results? > > > > > > > > > > > > > > Thanks,> > > > > > > Becky> > > > > > >> > > > > >> > > > >> > > >> > >> > > > > > > > > > > > > >> ------------ --------- --------- --------- --------- --------- ------------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition. > > Version: 7.5.476 / Virus Database: 269.11.19/955 - Release Date:> 8/15/2007 4:55 PM> >>

Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games.

[Guest guest]

It is scary and confusing at first but once you get started the band

is really no big deal. Most babies take right to it, no problems.

Our son slept through the night from day 3 on. The first 2 nights,

we had to play with his clothing and the temperature of the house

but by the 3rd night we figured out what worked for him. He was the

same happy little guy the entire time banded and the time in the

band goes by so quick. I even had people say what a " charlie Brown "

head my son had because from the front, you could not tell that he

had assymetry in the back. Then I would turn him around and show

them the assymetry and then they'd go " oh. " I think a lot of times,

unless we point it out people don't notice it because they aren't

looking for it. We went to CT at 3 months as we noticed our son

preferring his left side (the flat side). At that time, they said a

band would benefit our son. We decided to ask our ped. at 4months.

He said to wait till 6months. At 6 months, he kind of waffled

between waiting till 9months or going to the specialist. Well at

6.5 months, a RN friend was over (she had never seen my son and we

never talked about his head shape prior) asked me if his doctor was

okay with my son's head shape. At that point, I really wasn't happy

and I told her the entire story. She encouraged us to go back to

CT. At that time, his head measured the exact same as it did at 3

months and once again we were told he'd benefit from the band so we

went ahead with it. We are SO glad we did. My husband thought my

son's head was fine but after banding he is glad we did. Another

thing for me, is I knew with our baby being a boy that he would have

short hair so that was another reason we did it. Plus, I didn't want

to risk the unknowns of not doing it (i.e. headaches, vision issues,

etc.)

Good luck once again. Can't wait to see pictures.

> > > > > > > > > > >

> > > > > > > > > > > Hello,

> > > > > > > > > > >

> > > > > > > > > > > I just joined the group and am looking for

> advise.

> > My

> > > > > > > daughter was

> > > > > > > > > > > diagnosed with torticollis and plagiocephaly

at

> 3

> > > > months

> > > > > > old.

> > > > > > > > We have

> > > > > > > > > > > completely corrected the torticollis with PT.

> Then

> > > > with

> > > > > > > aggressive

> > > > > > > > > > > repositioning, etc. we have made some

> improvement

> > > > with the

> > > > > > > > > > > plagiocephaly. However, Isabelle is now 5

months

> > old

> > > > and

> > > > > > > > continues to

> > > > > > > > > > > have a flattened right occipital area with

> slight

> > > > anterior

> > > > > > > > protrusion

> > > > > > > > > > > of her right ear. She has no facial

> abnormalities

> > at

> > > > all

> > > > > > and

> > > > > > > > everyone

> > > > > > > > > > > keeps telling us she is a " very mild " case. My

> > > > husband and

> > > > > > I

> > > > > > > > went for

> > > > > > > > > > > a consultation for helmet therapy. We are just

> > > > really torn

> > > > > > on

> > > > > > > > what to

> > > > > > > > > > > do. She is such a happy, developmentally

> > appreciate

> > > > baby

> > > > > > that I

> > > > > > > > would

> > > > > > > > > > > hate to cause her discomfort for " cosmetic "

> > reasons;

> > > > yet, I

> > > > > > > want to

> > > > > > > > > > > offer her all the opportunities available to

> her.

> > > > Has

> > > > > > anyone

> > > > > > > > NOT done

> > > > > > > > > > > helmet therapy and seen good results?

> > > > > > > > > > >

> > > > > > > > > > > Thanks,

> > > > > > > > > > > Becky

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > ------------ --------- --------- --------- --------- ------

--

> -

> > -

> > > > -----------

> > > > > >

> > > > > >

> > > > > > No virus found in this incoming message.

> > > > > > Checked by AVG Free Edition.

> > > > > > Version: 7.5.476 / Virus Database: 269.11.19/955 -

Release

> > > > Date:

> > > > > 8/15/2007 4:55 PM

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Moody friends. Drama queens. Your life? Nope! - their life,

> your

> > story.

> > > > Play Sims Stories at Games.

> > > >

> > >

> >

>

[Guest guest]

Thanks kristin that does help alot. Do you have pictures of your daughter's improvement in the photos section? I would love to see them... especially after the 2nd banding. Triciatimkris724 <timkris724@...> wrote: I don't know if this helps or not, but I also go to in Cleveland. My daughter started her 2nd band at 9 1/2 months(6 weeks ago today actually). At that point she was down to 10mm and she definitely had a way to go to get symmetrical. People thought her head looked great

compared to where it was but I could still see the shift of her entire head. Well my daughter has just had a growth spurt and I am soooo glad I did not stop at 10mm. There is a big difference and it looks so much better. It is not the same as when she went from 19mm to 10mm but it is still a significant change in her appearance.Good luck with your decision. does not like to push the band on people but I know she does feel banding at 10mm is the correct thing to do as she did share that with me whe we were deciding on the 2nd band.> > > > > > > > > > >> > > > > > > > > > > Hello, > > > > > > > > > > > > > >

> > > > > > > > I just joined the group and am looking for > advise. > > My> > > > > > > daughter was> > > > > > > > > > > diagnosed with torticollis and plagiocephaly at > 3 > > > > months > > > > > > old. > > > > > > > > We have> > > > > > > > > > > completely corrected the torticollis with PT. > Then > > > > with> > > > > > > aggressive> > > > > > > > > > > repositioning, etc. we have made some > improvement > > > > with the> > > > > > > > > > > plagiocephaly. However, Isabelle is now 5 months > > old > > > > and> > > > > > > > continues to> > >

> > > > > > > > have a flattened right occipital area with > slight > > > > anterior> > > > > > > > protrusion> > > > > > > > > > > of her right ear. She has no facial > abnormalities > > at > > > > all > > > > > > and> > > > > > > > everyone> > > > > > > > > > > keeps telling us she is a "very mild" case. My > > > > husband and > > > > > > I> > > > > > > > went for> > > > > > > > > > > a consultation for helmet therapy. We are just > > > > really torn > > > > > > on> > > > > > > > what to> > > > > > > > > > > do. She is such a happy,

developmentally > > appreciate > > > > baby > > > > > > that I> > > > > > > > would> > > > > > > > > > > hate to cause her discomfort for "cosmetic" > > reasons; > > > > yet, I> > > > > > > want to> > > > > > > > > > > offer her all the opportunities available to > her. > > > > Has > > > > > > anyone> > > > > > > > NOT done> > > > > > > > > > > helmet therapy and seen good results? > > > > > > > > > > > > > > > > > > > > > > Thanks,> > > > > > > > > > > Becky> > > > > > > > > > >> > > > > > > >

> >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >> > > > > ------------ --------- --------- --------- --------- --------> -> > -> > > > -----------> > > > > > > > > > > > > > > > > > No virus found in this incoming message.> > > > > > Checked by AVG Free Edition. > > > > > > Version: 7.5.476 / Virus Database: 269.11.19/955 - Release > > > > Date:> > > > > 8/15/2007 4:55 PM> > > > > >> > > > >> > >

> > > > > > > > > > > > > > > > > > > > > > > > > > > > > Moody friends. Drama queens. Your life? Nope! - their life, > your > > story.> > > > Play Sims Stories at Games.> > > >> > >> >> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><> ><>

Pinpoint customers who are looking for what you sell.

[Guest guest]

Pam, why do you take so many things if you have no symptoms? Is it

because of the western blot results?

It's just a curiosity. Before lyme, I rarely took anything.

I don't know what to say about doxy, if you should take it or not. If

you expect your doctor to treat you, you could then take nothing to

do the Igenex test.

I did wait many times to take my herbs before few doctor's

appointment for the same reason as yours, but nobody treated me even

with a positive westernblot.

I do hope your doctor is a LLMD and that waiting will bring you

support from him/her. For me, it was waste of time to wait.

Selma

>

> My appt with Dr M in Fond du Lac is 2 weeks from tomorrow. I am

not

> currently on any Lyme treatments but am taking a boatload of things

for

> recovering Cdiff - fish oil, vitamin D drops, CoQ10, Lutein,

> multivitamin, minerals from volcanic & seabed clays, Vidacell -

which I

> have been told works against Lyme, vitamin E, vitamin C, Miracle

Greens,

> & the probiotics - Florastor, Culturelle, & Primadophilus reuteri.

>

> I am also currently waiting for the results of my Igenex test. My

> previous W blots were reactive on 41 & 23 at 1 month apart. My

was

> positive.

>

> My local doctor gave me a 2 week prescription of Doxy but at the

100 mg

> dosage. That would last me, if taken twice a day, right up to the

appt.

>

> My question is whether to take the Doxy or wait until my appt. If I

go

> into the appt with an Igenex test that ws done prior to taking the

Doxy

> (which would be the case if I take the Doxy now), then I imagine

they

> would want to do the Igenex over again & I would end up paying for

it twice.

>

> I have Cat's Claw & could start taking that at a low dose.

>

> Any advice?

>

> I have no symptoms that I know of & haven't had since bitten in May

&

> June with something that did NOT produce a bullseye rash. Only

reason I

> was tested was that I was needing lab work for Cdiff & decided to

add

> the Lyme.

>

> Pam

>

[Guest guest]

Pam:

HOW do you know you didn't have Lyme BEFORE you were bitten in May? Since

you got no rash now?

WE are NOT doctors on here. I am a doctor, but not of people. I have a

Doctor of Motors degree. NEED your motor tuned up or overhauled, see me.

So, I won't give you advice for Lyme. Only that IF it were me, I would do

something ASAP. IF you DO have Lyme, and you wait like I did, you may be here

for years to come complaining on your symptoms.

IF he gave you the DOXY, why aren't you really taking it? I have written you

before on this, as have others. I would take it, as it does do SOME good IF

your stomach can handle it. I find that NO medicines do me any good just

sitting in the bottle.

Call your doctor for advice. Talk to US, IF you want us to tell you OUR

experiences. AND for support, but not advice. WE canNOT give it.

JMHO.

Jim

###

Pam Norman <pam_norman@...> wrote:

My appt with Dr M in Fond du Lac is 2 weeks from tomorrow. I am not

currently on any Lyme treatments but am taking a boatload of things for

recovering Cdiff - fish oil, vitamin D drops, CoQ10, Lutein,

multivitamin, minerals from volcanic & seabed clays, Vidacell - which I

have been told works against Lyme, vitamin E, vitamin C, Miracle Greens,

& the probiotics - Florastor, Culturelle, & Primadophilus reuteri.

I am also currently waiting for the results of my Igenex test. My

previous W blots were reactive on 41 & 23 at 1 month apart. My was

positive.

My local doctor gave me a 2 week prescription of Doxy but at the 100 mg

dosage. That would last me, if taken twice a day, right up to the appt.

My question is whether to take the Doxy or wait until my appt. If I go

into the appt with an Igenex test that ws done prior to taking the Doxy

(which would be the case if I take the Doxy now), then I imagine they

would want to do the Igenex over again & I would end up paying for it twice.

I have Cat's Claw & could start taking that at a low dose.

Any advice?

I have no symptoms that I know of & haven't had since bitten in May &

June with something that did NOT produce a bullseye rash. Only reason I

was tested was that I was needing lab work for Cdiff & decided to add

the Lyme.

Pam

[Guest guest]

I believe I wrote in my email that all those things I am taking are for

the Cdiff. I've been on them since January in order to get my immune

system back up. I had lost 30 pounds between October 1 & end of December

& had been pretty ill.

The doctor in Fond du Lac (WI) is an LLMD. I will have the results of

the Igenex test back this next week & then I see him on the 17th.

selmanaka wrote:

>

> Pam, why do you take so many things if you have no symptoms? Is it

> because of the western blot results?

>

> It's just a curiosity. Before lyme, I rarely took anything.

>

> I don't know what to say about doxy, if you should take it or not. If

> you expect your doctor to treat you, you could then take nothing to

> do the Igenex test.

>

> I did wait many times to take my herbs before few doctor's

> appointment for the same reason as yours, but nobody treated me even

> with a positive westernblot.

>

> I do hope your doctor is a LLMD and that waiting will bring you

> support from him/her. For me, it was waste of time to wait.

>

> Selma

>

> >

> > My appt with Dr M in Fond du Lac is 2 weeks from tomorrow. I am

> not

> > currently on any Lyme treatments but am taking a boatload of things

> for

> > recovering Cdiff - fish oil, vitamin D drops, CoQ10, Lutein,

> > multivitamin, minerals from volcanic & seabed clays, Vidacell -

> which I

> > have been told works against Lyme, vitamin E, vitamin C, Miracle

> Greens,

> > & the probiotics - Florastor, Culturelle, & Primadophilus reuteri.

> >

> > I am also currently waiting for the results of my Igenex test. My

> > previous W blots were reactive on 41 & 23 at 1 month apart. My

> was

> > positive.

> >

> > My local doctor gave me a 2 week prescription of Doxy but at the

> 100 mg

> > dosage. That would last me, if taken twice a day, right up to the

> appt.

> >

> > My question is whether to take the Doxy or wait until my appt. If I

> go

> > into the appt with an Igenex test that ws done prior to taking the

> Doxy

> > (which would be the case if I take the Doxy now), then I imagine

> they

> > would want to do the Igenex over again & I would end up paying for

> it twice.

> >

> > I have Cat's Claw & could start taking that at a low dose.

> >

> > Any advice?

> >

> > I have no symptoms that I know of & haven't had since bitten in May

> &

> > June with something that did NOT produce a bullseye rash. Only

> reason I

> > was tested was that I was needing lab work for Cdiff & decided to

> add

> > the Lyme.

> >

> > Pam

> >

>

>

[Guest guest]

Hi Jodie,

In 3 mo time you should definitely see improvement. How old is your

son? Younger babies would have more growth, but in that time anyone

should improve. Have there been improvements in any areas? Where are

you going? How often is your son being seen? Have you have problems

(besides lack of progress)?

-christine

sydney 22 mo starband grad

>

> Hi Everyone!

>

> This has been a long and grueling process for us, and I want to know in

> your opinion: Do you think that after 3 months in the hanger helmet

> our sons head should still be as flat on one side as it was when we

> first started? Or should I say, should we be able to see a difference

> in it? Any input will help. Thank You

>

> Jodie

>

[Guest guest]

I would think in 3 months time you should see improvement. Did you take pics before band so you could compare pictures?

Angie

advice

Hi Everyone!This has been a long and grueling process for us, and I want to know in your opinion: Do you think that after 3 months in the hanger helmet our sons head should still be as flat on one side as it was when we first started? Or should I say, should we be able to see a difference in it? Any input will help. Thank YouJodie

[Guest guest]

Thanks for replying! My son is 7 1/2 months. There has been some improvements to the back of his head, it's not as pointy anymore. But the flatness on his right side is what is really the worst part on him. Like his ear doesn't line up. I went for a second opinion on sat and he measured 18 in circ. and 10 on either sides if I am understanding that correctly. Thanks...Jodiechristineashok <christineashok@...> wrote: Hi Jodie,In 3 mo time you should definitely see

improvement. How old is yourson? Younger babies would have more growth, but in that time anyoneshould improve. Have there been improvements in any areas? Where areyou going? How often is your son being seen? Have you have problems(besides lack of progress)?-christinesydney 22 mo starband grad>> Hi Everyone!> > This has been a long and grueling process for us, and I want to know in > your opinion: Do you think that after 3 months in the hanger helmet > our sons head should still be as flat on one side as it was when we > first started? Or should I say, should we be able to see a difference > in it? Any input will help. Thank You> > Jodie>

Be a better sports nut! Let your teams follow you with Mobile. Try it now.

[Guest guest]

Are you seeing any change elsewhere? How does the band fit?

After 3 months we did see change - it helped our dd's ear and forehead alot - but that is rare. She ended up with 2 bands and though I am happy - she is still flat on the right side - it is not too noticable but when she recently had an MRI you could see her plagio was still very much there.

Also, if your baby has not hit a major growth spurt then you wouldn't see much change. If the fit is right and you are seeing consistant growth the change will come - just be consistant with the wearing of the band. You don;t want to miss a growth!

HTH!

Jen and Luli - 23 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

advice

Hi Everyone!

This has been a long and grueling process for us, and I want to know in

your opinion: Do you think that after 3 months in the hanger helmet

our sons head should still be as flat on one side as it was when we

first started? Or should I say, should we be able to see a difference

in it? Any input will help. Thank You

Jodie

Email and AIM finally together. You've gotta check out free AOL Mail!

[Guest guest]

there are some ppl on these support groups who have way more knowledge and

experience than most docs. This is getting us to a place of wellness and

healthcare, rather than disease maintenance. It's a good thing, really.

Gracia

No; not iodophobic [is that a word???]. Personally I just don't see a

need for it. If I did see a need I wouldn't have a problem starting

with a small dose and experimenting with increasing the dose and

monitoring closely my reactions. AFTER educating myself as to the

possible negative results to be on the lookout for.

BUT, even if I did the above and it worked well for me I would simply

report my results to the group. I WOULD NOT give everyone who happens to

stumble upon this site a " prescription " for whatever worked for me.

AND even if my personal results were contrary to the published peer

reviewed literature I would still maintain an immense respect for same.

Hope you had a Merry Christmas and have a Happy New Year. Try to stay

out of jail! [ggg]

>

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11:51 AM

[Guest guest]

, if he's not keeping fluids down that is a huge concern, espcially for

nearly a week now. There is a stomach virus going around by us (we live in WI).

I had it around Thankgiving and it hit several in our office too. Luckily my

kids did not get it.

Sending prayers & happy thoughts,

Beth :-)

advice

Caleb has been sick with the pukes and the poops since last tuesday.

We were told on Friday night to call today if he was stll sick. He

started vomiting again last night. Only peeing about 1 time in every

14-15 hours. He did manage to eat a popsicle but everything that goes

in comes out. His labs on friday were a little off. Should I can the

DR back and take him for fluids? Any one else have this ecpirence with

this diesase or had a virus lately?

I really dont want to have to put him therough " needles " if I dont have

too.

[Guest guest]

I have had jas for sixteen years now and everytime I get the stomach flu or

diarhea. I have ended up at er for fluids I would just go ahead. He will feel a

lot better with some fluids and maybe even anti nausea meds. Good luck

jas 23

Sent via BlackBerry by AT & T

advice

Caleb has been sick with the pukes and the poops since last tuesday.

We were told on Friday night to call today if he was stll sick. He

started vomiting again last night. Only peeing about 1 time in every

14-15 hours. He did manage to eat a popsicle but everything that goes

in comes out. His labs on friday were a little off. Should I can the

DR back and take him for fluids? Any one else have this ecpirence with

this diesase or had a virus lately?

I really dont want to have to put him therough " needles " if I dont have

too.

[Guest guest]

The Norwalk (sp?) virus has been running rampant around here. It sounds like it

is time for a trip to the ER for some IV fluids if you can't get him to keep

anything else down. It will help tremendously.--e

nurse0300 <nurse0300@...> wrote: Caleb has

been sick with the pukes and the poops since last tuesday.

We were told on Friday night to call today if he was stll sick. He

started vomiting again last night. Only peeing about 1 time in every

14-15 hours. He did manage to eat a popsicle but everything that goes

in comes out. His labs on friday were a little off. Should I can the

DR back and take him for fluids? Any one else have this ecpirence with

this diesase or had a virus lately?

I really dont want to have to put him therough " needles " if I dont have

too.

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Sounds like he is dehydrated - that is not enough urine output as I

learned when had to be hospitalized when he was young. I would

definitely get a dr to take a look, Michele ( 20, spondy)

________________________________

From: [mailto: ] On

Behalf Of nurse0300

Sent: Sunday, January 13, 2008 7:45 AM

Subject: advice

Caleb has been sick with the pukes and the poops since last tuesday.

We were told on Friday night to call today if he was stll sick. He

started vomiting again last night. Only peeing about 1 time in every

14-15 hours. He did manage to eat a popsicle but everything that goes

in comes out. His labs on friday were a little off. Should I can the

DR back and take him for fluids? Any one else have this ecpirence with

this diesase or had a virus lately?

I really dont want to have to put him therough " needles " if I dont have

too.

[Guest guest]

Lynn,

This sounds like Sjogren's...I think there is a mouthwash you can use

to help with the dry mouth. Rogene might remember the name of it. I

can't seem to think of it offhand.

I'm sorry to hear about your new symptom. New ones are always scary.

I am clueless...not sure why you would be having such severe pains, so

maybe you can ask your doctor, but in the meantime, can you do some

epsom salt baths?

Anything to relax and get your mind off of it....

Sending love and gentle hugs for healing,

Patty

--- In , " iluvmy3pets " <spinkscl@...>

wrote:

>

> Hi ladies,

>

> New fun symptom. I have had a severe stabbing pain in my mid to

lower

> right side of my back. It has been on and off all day. Some of the

> pains nearly took my breath away.

>

> Oh and I have a super super dry mouth all of the sudden. I have been

> drinking water but can't quench it.

>

> Am I freaking for nothing? Any advice????

>

> Thanks so much. Love, Lynn

>

[Guest guest]

Lynn,

This sounds like Sjogren's...I think there is a mouthwash you can use

to help with the dry mouth. Rogene might remember the name of it. I

can't seem to think of it offhand.

I'm sorry to hear about your new symptom. New ones are always scary.

I am clueless...not sure why you would be having such severe pains, so

maybe you can ask your doctor, but in the meantime, can you do some

epsom salt baths?

Anything to relax and get your mind off of it....

Sending love and gentle hugs for healing,

Patty

--- In , " iluvmy3pets " <spinkscl@...>

wrote:

>

> Hi ladies,

>

> New fun symptom. I have had a severe stabbing pain in my mid to

lower

> right side of my back. It has been on and off all day. Some of the

> pains nearly took my breath away.

>

> Oh and I have a super super dry mouth all of the sudden. I have been

> drinking water but can't quench it.

>

> Am I freaking for nothing? Any advice????

>

> Thanks so much. Love, Lynn

>

[Guest guest]

Patty,

I don't understand why all these new things are cropping up when I am

keeping a good diet.

This makes me sad. I hope it is not Sjogren's : (

The pain feels like it is maybe right now my kidney. I sure hope the

Lupus type symptoms I have are not damaging my kidney.

Perhaps I should go to urgent care.

Lynn

> >

> > Hi ladies,

> >

> > New fun symptom. I have had a severe stabbing pain in my mid to

> lower

> > right side of my back. It has been on and off all day. Some of

the

> > pains nearly took my breath away.

> >

> > Oh and I have a super super dry mouth all of the sudden. I have

been

> > drinking water but can't quench it.

> >

> > Am I freaking for nothing? Any advice????

> >

> > Thanks so much. Love, Lynn

> >

>

[Guest guest]

Patty,

I don't understand why all these new things are cropping up when I am

keeping a good diet.

This makes me sad. I hope it is not Sjogren's : (

The pain feels like it is maybe right now my kidney. I sure hope the

Lupus type symptoms I have are not damaging my kidney.

Perhaps I should go to urgent care.

Lynn

> >

> > Hi ladies,

> >

> > New fun symptom. I have had a severe stabbing pain in my mid to

> lower

> > right side of my back. It has been on and off all day. Some of

the

> > pains nearly took my breath away.

> >

> > Oh and I have a super super dry mouth all of the sudden. I have

been

> > drinking water but can't quench it.

> >

> > Am I freaking for nothing? Any advice????

> >

> > Thanks so much. Love, Lynn

> >

>

[Guest guest]

I believe the name of the product for dry mouth is Salagen . . . Something like that . . . Ask the druggist. I believe it availble OTC.Rogene