new to the group

[Guest guest]

Jessi,

As I am sure you will hear, we all know can feel your pain! I think most of us

were in this place at some point. When we got our Autism diagnosis, it just

helped make sense of something no one can understand. It also helps us in

dealing with issues day to day. I had someone tell me once, that once you get

the second diagnosis, the Down syndrome is only secondary. Jake is almost 8 and

we have known since he was Danial's age that he as most likely on the spectrum.

Everyone else kept saying " no way. " Well, we told them! and then the experts

told them too!

We all love our kids and have pity parties quite often. I like this group

because they help me refocused my energy when I am overwhelmed or feeling " why

me! " It is a roller coaster that we can't get off, but some how we all get used

to the ride. We get by with a little help from our friends.....

Welcome.

Holly

New to the group

Hi my name is Jessi and I have 2 boys. Dominick is 9 and Danial is 3

with DS. I am married to . We live in California.

The reason I joined this group is because Danial's teacher and speech

ther. think that Danial may be autistic. They see many signs pointing

to that conclusion. We have an appointment with a Developmental Ped. on

Dec. 8. We are also on a waiting list for a CAD clinic for him to be

evaluated also. It is a long time. I just want to know.

Here is a list of things that we are looking at with Danial, please, if

you could help me and let me know if this sounds like any of your kids

I would really appriciate any feedback.

* Pacing (he walks around with no destination, just walks and walks)

* Loss of language (had quite a few signs and words and just lot them

* Hand flapping (only sometimes he will walk and put his hand up and

flap it)

* Not understand simple directions (I cannot ask him to get me

something or ask him where something is he just does not understand

* requires 1-1 assitance in class and everyday activities

* Not makeing social connections (does not interact with the other

kids in his class or outside of class, it is like they are not

there

* selective with caregivers

* Not as affectionate

I feel guilty, I feel like maybe if I worked with him more he would

have learned more. But it is hard with him, if he does not want to do

it you cannot make him. He will get frustrated and and loose it and

there is not getting him back so I just give in.

I also feel guilty becasue I am wanting them to tell me that he is

autistic and then that would explain a lot. Because if he is not then

why is he not progressing. I just feel very confused and upset and

asking the " Why Us " question. I love him so much and just want him to

reach his full potential. He is a sweet loveing little boy and so fun

to be around.

I am so sorry I am rambling. But I just need some advise, and someone

to tell me they know what I am going through. You always feel like your

the only one.

Jessi

Mom to Dominick 9 and Danial 3

[Guest guest]

Jessi

I have a aughter 14, who has Down syn and just last year got the autism diag. We

knew that she was not like our other 3 adopted children who had D.s. She was

very different. Do not feel guilty. We all do the best we can. The school is

where she is affected most. She doesn't talk to other kids, even if they try to

engage her. She acts " shy " , but she is not shy...it is the autism that holds

her back. She is a very good dancer and acts on stage in several community

theater companies, She is usually pretty happy.

You are a good Mom...don't be too hard on yourself!

Brigid

New to the group

Hi my name is Jessi and I have 2 boys. Dominick is 9 and Danial is 3

with DS. I am married to . We live in California.

The reason I joined this group is because Danial's teacher and speech

ther. think that Danial may be autistic. They see many signs pointing

to that conclusion. We have an appointment with a Developmental Ped. on

Dec. 8. We are also on a waiting list for a CAD clinic for him to be

evaluated also. It is a long time. I just want to know.

Here is a list of things that we are looking at with Danial, please, if

you could help me and let me know if this sounds like any of your kids

I would really appriciate any feedback.

* Pacing (he walks around with no destination, just walks and walks)

* Loss of language (had quite a few signs and words and just lot them

* Hand flapping (only sometimes he will walk and put his hand up and

flap it)

* Not understand simple directions (I cannot ask him to get me

something or ask him where something is he just does not understand

* requires 1-1 assitance in class and everyday activities

* Not makeing social connections (does not interact with the other

kids in his class or outside of class, it is like they are not

there

* selective with caregivers

* Not as affectionate

I feel guilty, I feel like maybe if I worked with him more he would

have learned more. But it is hard with him, if he does not want to do

it you cannot make him. He will get frustrated and and loose it and

there is not getting him back so I just give in.

I also feel guilty becasue I am wanting them to tell me that he is

autistic and then that would explain a lot. Because if he is not then

why is he not progressing. I just feel very confused and upset and

asking the " Why Us " question. I love him so much and just want him to

reach his full potential. He is a sweet loveing little boy and so fun

to be around.

I am so sorry I am rambling. But I just need some advise, and someone

to tell me they know what I am going through. You always feel like your

the only one.

Jessi

Mom to Dominick 9 and Danial 3

[Guest guest]

Hi Jessi-

Welcome to the group. WHERE in California do you live? - if you don't mind.

I live in Sacramento area. I have a son, DJ, age 11, with DS and significant

autistic behaviors, but no ASD dx yet. We are hoping to see that answered soon.

Be sure and check out the disabilitysolutions.org website that Joan Medlen

has. It is THE BEST source of information I have seen.

You asked about noises in a later post. DJ makes a " raspberry " type noise (a

bronx cheer, some have observed) that seems to be with him everyday. Sometimes

we can tell him " quiet mouth " and he will stop for awhile. It drives his teacher

crazy. He also is very echolalic and don't even let a dog be barking in the

neigborhood - he just barks along with. At a recent IEP the teacher wanted to

add a behavior goal to decrease DJ's " dog noises. " Everyone else at the meeting

tried to discourage her from this goal, but she insisted that his " dog noise "

behavior was the one behavior she wanted to address. I finally had to say that

I felt this would not be an appropriate goal for DJ and that maybe she should

just not show him any dog pictures for awhile as this was what seemed to be

triggering the behavior. LOL DJ can also imitate most mechanical noises and

will display this talent in many different circumstances: ie.ringing like

someone's cellphone while we are waiting in an

office, beeping like a pulse oximeter in the hospital, wailing like a fire

engine as it passes by three streets over! He can imitate the laughs of Bert,

Ernie & Elmo as well as people we meet in the waiting room at the doctor's

office - which can be very embarrassing!

We have recently begun utilizing PECS (Picture Exchange Communication System)

with DJ and are having some real success in getting him to let us know what he

wants. His language skills are pretty phenomenal, but he does not ask FOR

something, just takes us or pushes us to it to get it for him or he just tries

to get it himself. But with the PECS he seems to find that seeing the picture

gives him a better trigger to find the right word to say what he wants. I can't

believe we didn't get more help from education on this before, but I think they

figured he " just has down syndrome " and nothing more. It could really get me

down, thinking about what should have been done, or why they (education) can't

seem to see that he needs more than the regular old program, but I'm consciously

trying to focus on making things change for the better NOW!

Just know that nothing in this world would ever change if there were never

challenges to cause people to find that strength deep within themselves, that

God-given strength, to stand up and fight for change. You have friends here who

will cheer you on, cry with you, offer you real suggestions and hope, for now

and for the future. Bless you, Jessi, and Danial, Dominick and . May your

journey be interesting and may you be strong.

Hugs-

Donnell (mom to DJ-age 11)

Jessi wrote:

Hi my name is Jessi and I have 2 boys. Dominick is 9 and Danial is 3

with DS. I am married to . We live in California.

The reason I joined this group is because Danial's teacher and speech

ther. think that Danial may be autistic. They see many signs pointing

to that conclusion. We have an appointment with a Developmental Ped. on

Dec. 8. We are also on a waiting list for a CAD clinic for him to be

evaluated also. It is a long time. I just want to know.

Here is a list of things that we are looking at with Danial, please, if

you could help me and let me know if this sounds like any of your kids

I would really appriciate any feedback.

* Pacing (he walks around with no destination, just walks and walks)

* Loss of language (had quite a few signs and words and just lot them

* Hand flapping (only sometimes he will walk and put his hand up and

flap it)

* Not understand simple directions (I cannot ask him to get me

something or ask him where something is he just does not understand

* requires 1-1 assitance in class and everyday activities

* Not makeing social connections (does not interact with the other

kids in his class or outside of class, it is like they are not

there

* selective with caregivers

* Not as affectionate

I feel guilty, I feel like maybe if I worked with him more he would

have learned more. But it is hard with him, if he does not want to do

it you cannot make him. He will get frustrated and and loose it and

there is not getting him back so I just give in.

I also feel guilty becasue I am wanting them to tell me that he is

autistic and then that would explain a lot. Because if he is not then

why is he not progressing. I just feel very confused and upset and

asking the " Why Us " question. I love him so much and just want him to

reach his full potential. He is a sweet loveing little boy and so fun

to be around.

I am so sorry I am rambling. But I just need some advise, and someone

to tell me they know what I am going through. You always feel like your

the only one.

Jessi

Mom to Dominick 9 and Danial 3

[Guest guest]

Thank You so much Donnell, for your kind words.

DJ sounds like a great kid. I think it is really cool that he can

make those noises. I wish I could do that.

We also have been using the PEC pictures with Danial. His home

teachers and the school he went to for early intervention started

him on them. We made books (One for bath, diaper change and eating)

and they also put some on the frig door, so he could take them off

and hand them to us. He was starting to bring a lot of them to us.

But now only brings us the milk card. He still drinks from a bottle

so he will bring us the bottle, sippy cup and glass of milk pictures

because he knows those will get him his milk. Or he will bring his

empty bottle and throw it at me most of the time. Trying to get him

to stop that. He will hand it to me sometimes.

We also made and all done box and they put a picture of Danial and

PEC pic of " all done " and we put his bottle in there and tell him

all done. I am not sure if he gets it.

Jessi

Mom to Dominick 9 and Danial 3(DS)

> Hi my name is Jessi and I have 2 boys. Dominick is 9 and

Danial is 3

> with DS. I am married to . We live in California.

> The reason I joined this group is because Danial's teacher and

speech

> ther. think that Danial may be autistic. They see many signs

pointing

> to that conclusion. We have an appointment with a Developmental

Ped. on

> Dec. 8. We are also on a waiting list for a CAD clinic for him to

be

> evaluated also. It is a long time. I just want to know.

> Here is a list of things that we are looking at with Danial,

please, if

> you could help me and let me know if this sounds like any of your

kids

> I would really appriciate any feedback.

>

> * Pacing (he walks around with no destination, just walks and

walks)

> * Loss of language (had quite a few signs and words and just lot

them

> * Hand flapping (only sometimes he will walk and put his hand up

and

> flap it)

> * Not understand simple directions (I cannot ask him to get me

> something or ask him where something is he just does not understand

> * requires 1-1 assitance in class and everyday activities

> * Not makeing social connections (does not interact with the other

> kids in his class or outside of class, it is like they are not

> there

> * selective with caregivers

> * Not as affectionate

>

> I feel guilty, I feel like maybe if I worked with him more he

would

> have learned more. But it is hard with him, if he does not want to

do

> it you cannot make him. He will get frustrated and and loose it

and

> there is not getting him back so I just give in.

> I also feel guilty becasue I am wanting them to tell me that he is

> autistic and then that would explain a lot. Because if he is not

then

> why is he not progressing. I just feel very confused and upset and

> asking the " Why Us " question. I love him so much and just want him

to

> reach his full potential. He is a sweet loveing little boy and so

fun

> to be around.

> I am so sorry I am rambling. But I just need some advise, and

someone

> to tell me they know what I am going through. You always feel like

your

> the only one.

>

> Jessi

> Mom to Dominick 9 and Danial 3

>

>

>

>

>

>

>

[Guest guest]

Hey Donnell, I missed the part of this message where you live in

Sacrament. We live 2 hours away in Rohnert Park. My husbands brother

lives in Sacramento so we are there a lot.

Jessi

Mom to Dominick 9 and Danial 3(DS)

> Hi my name is Jessi and I have 2 boys. Dominick is 9 and

Danial is 3

> with DS. I am married to . We live in California.

> The reason I joined this group is because Danial's teacher and

speech

> ther. think that Danial may be autistic. They see many signs

pointing

> to that conclusion. We have an appointment with a Developmental

Ped. on

> Dec. 8. We are also on a waiting list for a CAD clinic for him to

be

> evaluated also. It is a long time. I just want to know.

> Here is a list of things that we are looking at with Danial,

please, if

> you could help me and let me know if this sounds like any of your

kids

> I would really appriciate any feedback.

>

> * Pacing (he walks around with no destination, just walks and

walks)

> * Loss of language (had quite a few signs and words and just lot

them

> * Hand flapping (only sometimes he will walk and put his hand up

and

> flap it)

> * Not understand simple directions (I cannot ask him to get me

> something or ask him where something is he just does not understand

> * requires 1-1 assitance in class and everyday activities

> * Not makeing social connections (does not interact with the other

> kids in his class or outside of class, it is like they are not

> there

> * selective with caregivers

> * Not as affectionate

>

> I feel guilty, I feel like maybe if I worked with him more he

would

> have learned more. But it is hard with him, if he does not want to

do

> it you cannot make him. He will get frustrated and and loose it

and

> there is not getting him back so I just give in.

> I also feel guilty becasue I am wanting them to tell me that he is

> autistic and then that would explain a lot. Because if he is not

then

> why is he not progressing. I just feel very confused and upset and

> asking the " Why Us " question. I love him so much and just want him

to

> reach his full potential. He is a sweet loveing little boy and so

fun

> to be around.

> I am so sorry I am rambling. But I just need some advise, and

someone

> to tell me they know what I am going through. You always feel like

your

> the only one.

>

> Jessi

> Mom to Dominick 9 and Danial 3

>

>

>

>

>

>

>

[Guest guest]

Jessi-

Rohnert Park is not so very far away. We have a married daughter who lives up

Hwy. 101 from you---in Eureka area. We used to live there, too. But now we

live in West Sacramento closer to major medical hospitals our son needs. We

have dear friends who live in Cotati area, not too far from you. Can you tell

me what a CAD clinic is? I don't know. If you ever come to this area you will

have to let me know.

Hugs-

Donnell (mom to DJ-age 11)

Jessi wrote:

Hey Donnell, I missed the part of this message where you live in

Sacrament. We live 2 hours away in Rohnert Park. My husbands brother

lives in Sacramento so we are there a lot.

Jessi

Mom to Dominick 9 and Danial 3(DS)

> Hi my name is Jessi and I have 2 boys. Dominick is 9 and

Danial is 3

> with DS. I am married to . We live in California.

> The reason I joined this group is because Danial's teacher and

speech

> ther. think that Danial may be autistic. They see many signs

pointing

> to that conclusion. We have an appointment with a Developmental

Ped. on

> Dec. 8. We are also on a waiting list for a CAD clinic for him to

be

> evaluated also. It is a long time. I just want to know.

> Here is a list of things that we are looking at with Danial,

please, if

> you could help me and let me know if this sounds like any of your

kids

> I would really appriciate any feedback.

>

> * Pacing (he walks around with no destination, just walks and

walks)

> * Loss of language (had quite a few signs and words and just lot

them

> * Hand flapping (only sometimes he will walk and put his hand up

and

> flap it)

> * Not understand simple directions (I cannot ask him to get me

> something or ask him where something is he just does not understand

> * requires 1-1 assitance in class and everyday activities

> * Not makeing social connections (does not interact with the other

> kids in his class or outside of class, it is like they are not

> there

> * selective with caregivers

> * Not as affectionate

>

> I feel guilty, I feel like maybe if I worked with him more he

would

> have learned more. But it is hard with him, if he does not want to

do

> it you cannot make him. He will get frustrated and and loose it

and

> there is not getting him back so I just give in.

> I also feel guilty becasue I am wanting them to tell me that he is

> autistic and then that would explain a lot. Because if he is not

then

> why is he not progressing. I just feel very confused and upset and

> asking the " Why Us " question. I love him so much and just want him

to

> reach his full potential. He is a sweet loveing little boy and so

fun

> to be around.

> I am so sorry I am rambling. But I just need some advise, and

someone

> to tell me they know what I am going through. You always feel like

your

> the only one.

>

> Jessi

> Mom to Dominick 9 and Danial 3

>

>

>

>

>

>

>

[Guest guest]

It is nice to live near good medical facilities. We are lucky we

have a good Kaiser the next town up, in Santa . When he needs

other things they don't offer or a special doctor, we just go up to

San Francisco, only about 45 minutes away to UCSF.

Wow you have friends who live in Cotati. That is only about 5

minutes from me. My older son in the baseball league for Cotati.

The CAD clinic is a clinic (they actually have a site at Danial's

school) where they will evaluate him. I am still not to sure who

will be there. Danial is on a waiting list. They are very backed up.

I guess I will get more info when they set a date for him.

I was told to either go throught the CAD clinic or a Dev. Ped. We

have app. with both. The CAD clinic is throught North Bay Regional

where he get his services, and the Dev. Ped is throught a referral

from his Dr. We have to go to SF for that.

Jessi

Mom to Dominick 9 and Danial 3 (DS)

> > Hi my name is Jessi and I have 2 boys. Dominick is 9 and

> Danial is 3

> > with DS. I am married to . We live in California.

> > The reason I joined this group is because Danial's teacher and

> speech

> > ther. think that Danial may be autistic. They see many signs

> pointing

> > to that conclusion. We have an appointment with a Developmental

> Ped. on

> > Dec. 8. We are also on a waiting list for a CAD clinic for him

to

> be

> > evaluated also. It is a long time. I just want to know.

> > Here is a list of things that we are looking at with Danial,

> please, if

> > you could help me and let me know if this sounds like any of

your

> kids

> > I would really appriciate any feedback.

> >

> > * Pacing (he walks around with no destination, just walks and

> walks)

> > * Loss of language (had quite a few signs and words and just lot

> them

> > * Hand flapping (only sometimes he will walk and put his hand up

> and

> > flap it)

> > * Not understand simple directions (I cannot ask him to get me

> > something or ask him where something is he just does not

understand

> > * requires 1-1 assitance in class and everyday activities

> > * Not makeing social connections (does not interact with the

other

> > kids in his class or outside of class, it is like they are not

> > there

> > * selective with caregivers

> > * Not as affectionate

> >

> > I feel guilty, I feel like maybe if I worked with him more he

> would

> > have learned more. But it is hard with him, if he does not want

to

> do

> > it you cannot make him. He will get frustrated and and loose it

> and

> > there is not getting him back so I just give in.

> > I also feel guilty becasue I am wanting them to tell me that he

is

> > autistic and then that would explain a lot. Because if he is not

> then

> > why is he not progressing. I just feel very confused and upset

and

> > asking the " Why Us " question. I love him so much and just want

him

> to

> > reach his full potential. He is a sweet loveing little boy and

so

> fun

> > to be around.

> > I am so sorry I am rambling. But I just need some advise, and

> someone

> > to tell me they know what I am going through. You always feel

like

> your

> > the only one.

> >

> > Jessi

> > Mom to Dominick 9 and Danial 3

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Can't wait to try the warm water trick!! Welcome to the group .

Patty

[Guest guest]

Hi, I'm fairly new to the group too. Toileting is going to take a

long time, most likely. My son is 14 and will usually go when taken

to the bathroom, but is not independent on this at all. He also

doesn't talk & doesn't indicate when he needs to go very well. One

good tip that I got about toileting that I would like to pass on is

this. If he/she is on the toilet and will not go, fill a cup with

warm (not hot) water & pour it on their privates. It nearly always

works. Occasionally I have had to do it twice and I always warn

him. I am working on getting him to dry himself, but it is good

practice.

You said that you moved recently & lost your ABA services. What

state are you in? You should have a caseworker & should be able to

get services, even though they do not offer it through the school.

We are in Missouri and gets services through our regional

center. It's not a lot, we drop to 3 hours of behavior therapy in

Jan, but much better than nothing.

>

> We are the Norton family: Hazel(Mom), Larry(Dad), Hayley(daughter-

11 years old), and Ted(why we are interested in this group).

> Ted is 7 and was diagnosed with autism when he was 5 in addition to

his down snydrome. He is nonverbal,not toilet-trained, but

> is a sweet and easy-going kid. We recently moved because of my

husband's job, which has been pretty stressful. Our families

> are no where near. Ted goes to public school and spends most of

the day in special ed. class. He goes to 1ST grade for

> specials. He was receiving ABA training which seem to help him in

school, but it is not available at his new school. We are

> using PECS for communication with a little success. We are also

working on toileting, but would take any suggestions on that to

> help!

> Ted has been rather healthy except for many upper respiratory

infections. He did not walk until age 5. He is still unable to go

> up and down steps without help. He Started having drop-attack

seizures,which was pretty scary. They are under control now

> and it's been over a year, since he had one. He takes medication

twice a day for it.

> I've given you a brief history and am glad to be a part of this

group.

>

>

>

[Guest guest]

Hi Amber! I am glad you found this site. I think you will love all the

information that gets past. Can't wait until we actually get to meet with the

kids and all!

Holly

New to the Group

Hi everyone! I'm new to the group. I have been lurking for a bit to

see what goes on and what people talk about. My family and I are in

York Co, PA. I have a 4yr old on the Autism Spectrum. We just

received this diagnosis in January so our journey is just beginning.

We have been to see a developmental specialist and had over $4000 (my

jaw hit the floor) worth of lab work that all came back normal, but we

will be starting a general supplement called Super Nuthera. It's

known to increase awareness and speech. So I'm curious to see how it

will work for us.

I've seen a lot of people posting about different events and wanted to

share one that I know about. Autism Expo 2007. www.autismexpo.org

It is at the Community College in land. The event is a bit

pricey, but a lot of speakers and information.

Anyway I've really been enjoying all the topics. Everyone seems to

know a little about everything and I am always looking to soak up new

information.

**Amber

[Guest guest]

Welcome Amber, glad to meet you.

Does your son also have Down syndrome?

Sherry mom to DS-Aut/18

[Guest guest]

Thanks Holly! We are getting ready to start the new Tumblers class on

Thursdays. Thanks for that info. I think she is really going to enjoy the

class.

---------------------------------

No need to miss a message. Get email on-the-go

with Yahoo! Mail for Mobile. Get started.

[Guest guest]

Hi Amber,

Welcome to the group !!! It is a wonderful group. I have only been in it a

short time. It has been so helpful to me and I have met some wonderful people on

here. I have little twin grandsons that have autism. They will be 3 years old

August 30th. They are so precious to me. They are completely non verbal and also

have other problems. You said your child is 4 years old does he/she talk? Can't

wait to get to know you.

,

Granny to Matt and Will

---------------------------------

Looking for earth-friendly autos?

Browse Top Cars by " Green Rating " at Yahoo! Autos' Green Center.

[Guest guest]

There are other people in York COunty, PA. Hope you hook up. Do you use

Hershey MEdical Center for medical care? HAve you been to the developmental

pediatrician there? When we were in HErshey, we were delighted with this

particular place. We also used the dental clinic at York Hospital.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: New to the Group

>Date: Tue, 06 Mar 2007 05:45:35 -0000

>

>Hi everyone! I'm new to the group. I have been lurking for a bit to

>see what goes on and what people talk about. My family and I are in

>York Co, PA. I have a 4yr old on the Autism Spectrum. We just

>received this diagnosis in January so our journey is just beginning.

>We have been to see a developmental specialist and had over $4000 (my

>jaw hit the floor) worth of lab work that all came back normal, but we

>will be starting a general supplement called Super Nuthera. It's

>known to increase awareness and speech. So I'm curious to see how it

>will work for us.

>I've seen a lot of people posting about different events and wanted to

>share one that I know about. Autism Expo 2007. www.autismexpo.org

>It is at the Community College in land. The event is a bit

>pricey, but a lot of speakers and information.

>Anyway I've really been enjoying all the topics. Everyone seems to

>know a little about everything and I am always looking to soak up new

>information.

>

>**Amber

>

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

Hi Amber, welcome to the group. I have only been on here for a short

time also. My son is Danial he is 3 with DS and ASD. This site is

very helpful.

Welcome!!!

Jessi

Mom to Dominick 10 and Danial 3(DS & ASD)

>

> Hi everyone! I'm new to the group. I have been lurking for a bit

to

> see what goes on and what people talk about. My family and I are in

> York Co, PA. I have a 4yr old on the Autism Spectrum. We just

> received this diagnosis in January so our journey is just

beginning.

> We have been to see a developmental specialist and had over $4000

(my

> jaw hit the floor) worth of lab work that all came back normal, but

we

> will be starting a general supplement called Super Nuthera. It's

> known to increase awareness and speech. So I'm curious to see how

it

> will work for us.

> I've seen a lot of people posting about different events and wanted

to

> share one that I know about. Autism Expo 2007. www.autismexpo.org

> It is at the Community College in land. The event is a

bit

> pricey, but a lot of speakers and information.

> Anyway I've really been enjoying all the topics. Everyone seems to

> know a little about everything and I am always looking to soak up

new

> information.

>

> **Amber

>

[Guest guest]

Dear Amber,

Welcome and hello! You will enjoy the group - - I certainly have. I have a

son, DJ, the youngest of 5 and the only boy. He has Down syndrome and what we

think is autism, though we have not had anyone in the medical world concur with

us yet. Though many of his teachers, therapists and even some of the doctors

have pointed out to us that he certainly has some of the signs. Until it is

confirmed, and even after, if it ever happens, he continues to need the same

types of therapies children with autism need.

With one-on-one instruction we saw him learn to read this year! Yippee!! We

knew he was capable of much more than the school thought. Now he enjoys hearing

stories about his favorite character, " Arthur, " and will sit for a few minutes

to be read to. I love it as it seemed that he usually doesn't want to interact,

prefering his own company to ours.

When I have a challenge with DJ, a grief or a triumph, I turn to this group.

My husband and I enjoy a close relationship, but having sisters and brothers who

share similar circumstances make a wonderful community. My husband loves to

hear what's going on here in the group, too.

Again, welcome!

Hugs,

Donnell (mom to DJ-age 11)

sullhomeorg wrote:

Hi everyone! I'm new to the group. I have been lurking for a bit to

see what goes on and what people talk about. My family and I are in

York Co, PA. I have a 4yr old on the Autism Spectrum. We just

received this diagnosis in January so our journey is just beginning.

We have been to see a developmental specialist and had over $4000 (my

jaw hit the floor) worth of lab work that all came back normal, but we

will be starting a general supplement called Super Nuthera. It's

known to increase awareness and speech. So I'm curious to see how it

will work for us.

I've seen a lot of people posting about different events and wanted to

share one that I know about. Autism Expo 2007. www.autismexpo.org

It is at the Community College in land. The event is a bit

pricey, but a lot of speakers and information.

Anyway I've really been enjoying all the topics. Everyone seems to

know a little about everything and I am always looking to soak up new

information.

**Amber

[Guest guest]

Thanks for all the welcomes, I appreciate it. I have a DD (dear daughter) she

is only autistic. She is verbal, lately her words have tripled, she is

repeating sooo much...only 2 word sentences. It was really a lot of work

getting to this point, but now very exciting!

Can't remember who asked but we do go to Hershey to see a developmental

specialist. Not sure how many their are. The woman we saw is very nice and

attentive. We went there for the first time in February and will not go again

till August.

We are currently applying for SSI, I'm expecting the worst and hoping for the

best. We also want to start Wrap Around services but have to wait for DD's

medical assistance to be approved. I was surprised to find out you have to have

medical assistance to get the Wrap Around services...but it was probably a good

thing bc it got me on the ball. Being a mom is such a busy job!

Thanks all.

**Amber

---------------------------------

Get your own web address.

Have a HUGE year through Yahoo! Small Business.

[Guest guest]

Hi I'am Barbara.....I live w/my family in upstate new york. I have 8

kids,2 bio, 6 adopted, 2 w/D/S.....I recently introduced myself to

Reeces Rainbow families....awesome group.....someday i hope to get a

blog set up....have a blessed day

Barbara

[Guest guest]

Sorry to be so late with my welcome. I happen to have identical twins with DS but there are many here who have 2 children with DS, like you. Welcome. It's a great group! xo maggie

Mom to Olivia (01) and & (05 - IDs w/ DS)

www.walkonthehappyside.blogspot.com

To: Multiples-DS Sent: Tuesday, July 28, 2009 1:19:34 PMSubject: New to the group

Hello all,My name is Kathy I am 35 years old from Northern Ca. I have a two year old son with DS named . My husband is . We are 16 weeks pregnant and will be having another child a girl this time that was also diagnosed as having DS. Both are trisomy 21 and not genetic. We did not know about until about a week after birth. When we got pregnant again we did a full screening and found out early that she had it too. I know this group is for twins and triplets and adoptive multiples. I was wondering how many other families were out there that had more than one birth and were found to be non genetic. We will be at the conference this weekend and would like to maybe meet you.

[Guest guest]

Hi Kathy and family,

 

Welcome to the group.  I am in Reno, but not able to make the conference.  Where are you in NO CA?

 

We have four children, Amy is 21, Kelsey is 19, Davey (DS) and Will are 9.   There are several families on the list with more than one biological child with DS. 

 

We love pictures (HINT!)

 

 

 

Hello all,My name is Kathy I am 35 years old from Northern Ca. I have a two year old son with DS named . My husband is . We are 16 weeks pregnant and will be having another child a girl this time that was also diagnosed as having DS. Both are trisomy 21 and not genetic. We did not know about until about a week after birth. When we got pregnant again we did a full screening and found out early that she had it too. I know this group is for twins and triplets and adoptive multiples. I was wondering how many other families were out there that had more than one birth and were found to be non genetic. We will be at the conference this weekend and would like to maybe meet you.

-- Love life and be gentle,

[Guest guest]

we are from vacaville, ca about 40 minutes west of sacramento. good to meet you

all, im sure I will learn a lot here. thanks for the welcome, Kathy and family

----------

Sent from AT & T's Wireless network using Mobile Email

- Re: New to the group

Hi Kathy and family,

Welcome to the group. I am in Reno, but not able to make the conference.

Where are you in NO CA?

We have four children, Amy is 21, Kelsey is 19, Davey (DS) and Will are 9.

There are several families on the list with more than one biological child

with DS.

We love pictures (HINT!)

>

>

> Hello all,

> My name is Kathy I am 35 years old from Northern Ca. I have a two year old

> son with DS named . My husband is . We are 16 weeks pregnant and

> will be having another child a girl this time that was also diagnosed as

> having DS. Both are trisomy 21 and not genetic. We did not know about

> until about a week after birth. When we got pregnant again we did a full

> screening and found out early that she had it too. I know this group is for

> twins and triplets and adoptive multiples. I was wondering how many other

> families were out there that had more than one birth and were found to be

> non genetic. We will be at the conference this weekend and would like to

> maybe meet you.

>

>

>

--

Love life and be gentle,

[Guest guest]

Hello KathyI am . I live in south GA. I am a mom to 3 children with DS. My two oldest are 15yr and 11yr. They are biologically mine and both have translocation 13 and I am a carrier. We adopted at 8weeks now 7yrsold. He also has DS. Welcome to our world! Sent from my Verizon Wireless BlackBerryFrom: "Kathy" Date: Tue, 28 Jul 2009 17:19:34 -0000To: <Multiples-DS >Subject: New to the group Hello all, My name is Kathy I am 35 years old from Northern Ca. I have a two year old son with DS named . My husband is . We are 16 weeks pregnant and will be having another child a girl this time that was also diagnosed as having DS. Both are trisomy 21 and not genetic. We did not know about until about a week after birth. When we got pregnant again we did a full screening and found out early that she had it too. I know this group is for twins and triplets and adoptive multiples. I was wondering how many other families were out there that had more than one birth and were found to be non genetic. We will be at the conference this weekend and would like to maybe meet you.

[Guest guest]

Hi Kathy,

Our situation is very similiar to yours. We have three girls, Taryn,7, Cate,5 (ds) and Ella,3 (ds). Both are Trisomy 21 and not genetic. And we also did not know before Cate was born and with Ella I did have an amniocentisis to confirm the sonogram results.

Beautiful girls and so fascinating to see the differences in their personalities. I would have chalked up so much to down syndrome when it is really their nature. Cate is a sweet, sensitive, "one-on-one" kind of girl while Ella is the life of the party, the more people the better. If you ever want to talk, my e-mail is mkoz-riddle@.... We live in North Texas and both girls attend a pre-school on the campus of TCU called KinderFrogs. The Dallas-Ft. Worth is a great area to live because there are so many resources.

Koz-Riddle

Mom to Taryn,7,Cate,5(ds) and Ella,3 (ds)

Subject: New to the groupTo: Multiples-DS Date: Tuesday, July 28, 2009, 12:19 PM

Hello all,My name is Kathy I am 35 years old from Northern Ca. I have a two year old son with DS named . My husband is . We are 16 weeks pregnant and will be having another child a girl this time that was also diagnosed as having DS. Both are trisomy 21 and not genetic. We did not know about until about a week after birth. When we got pregnant again we did a full screening and found out early that she had it too. I know this group is for twins and triplets and adoptive multiples. I was wondering how many other families were out there that had more than one birth and were found to be non genetic. We will be at the conference this weekend and would like to maybe meet you.