Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 > > Hi,Thanks for all of the suggestions! I guess I just don't get out enough. I didn't realize all of these places had the larger size. I generally shop at Kohl's but can not find what I need there. is not so much big in the tummy but she has a back side! That is causing our biggest clothing problem right now. The other thing that frustrates me is her shirts. She is very long in the torso but has shorter arms. I usually end up with her rolling up her selves or having her tummy hang out. If I were gifted in sewing I would start a line of clothing just for children with Downs! > > Lee Ann > Hi Everyone, I joined you today only. I was just reading the massages and suggestions regarding cloths. I like the idea starting your own clothing line,Atleast we can be benifited with that. Anju Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 When I left the hospital I just wore slippers (with a grip) but slip on shoes would've probably been better but I had been in that place for two weeks and wanted home. About the van, sounds good to me I tried to get home in my mom's car but it was too low they were going to have two interns pick me up and put me in but then I would've had no way of getting out so I was driven home at the last minute by private ambulance. Personally I would the van easier to get into it might seem strange to some but when you can't bend at a 90 degree angle (not too sure if this is the rule with all surgeons) it is much easier to get up than lowering yourself. Good luck with the surgery ~Contessica TLHR March 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Hi Shauna. I have real problems buttoning my pants in the morning. My fingers and hands have no strength. The buttons should be larger and concave and the buttonholes are too small. I take a knife and slice them larger. I would like jeans that have a sensible hook to fasten them. Also the tabs on zippers need to be bigger so I can get a grip on them. I like polo shirts made from a soft fabric that stretches when you put it on. My shoulders do not work anymore. My 2 cents worth. " il faut d'abord durer. " Hemingway [ ] Clothing > Dear Group: > > I am working with a designer to produce a line of clothing for folks > with physical disabilities. > > If you could produce a line of clothing specifically to meet your needs > and limitations what would you like to see? > > I for one, despise " sweats and t-shirts " as a way of life. > When I look good I feel better. > > Any ideas as to types of fabric, closures and specific designs and > concepts are welcome. > Thank you. > Shauna > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 There are days I can not get dressed. I dream about a velcro bra. I would like attractive pull over my head or step into options. I must be able to sit down as I dress. I Cvan not find clothes I can dress myself easily in. shauna4343 <shauna4343@...> wrote: Dear Group: I am working with a designer to produce a line of clothing for folks with physical disabilities. If you could produce a line of clothing specifically to meet your needs and limitations what would you like to see? I for one, despise " sweats and t-shirts " as a way of life. When I look good I feel better. Any ideas as to types of fabric, closures and specific designs and concepts are welcome. Thank you. Shauna Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2007 Report Share Posted September 1, 2007 Shauna- Remember that people who are in a wheelchair have different needs than people who are able to walk. A wheelchair skirt, for example, should have a shorter back than a front (so that there is not fabric bunched up in back, nor the weird creeping over the knee that happens sitting down). Also, seams anywhere you sit, can be very painful after many hours of sitting on them. Just a thought to keep in mind, when you are designing. Myself, I dream of pants- boot cut, slightly lower waist, with elastic waist- high quality, wide elastic waist. I want them in good fabric- soft but heavy twill, or wool gabardine. They should come in neutral colors, and of course black. No stupid pockets on the front, side or rear. No pleats. Some lycra/spandex in the fabrics would be wonderful too- for some reason fabrics in spandex feel like they keep my joints warmer. I would also love, long shirts, pullover, with longer torso, to cover that big elastic waist. Three quarter sleeves, with no buttons to button. Pretty scoop necks and vnecks. There are days I just cannot deal with buttons and zippers. The only elastic waist pants that I can find are either yoga pants, or " grandma polyester " (sorry to all grandmas out there, but you have to admit the pants are not flattering to anyone). I work in an office, and would love to have beautiful pants to wear, that I didnt have to wake my dh up to help me put on. Good luck with your designing! Di --- In , " shauna4343 " <shauna4343@...> wrote: > > Dear Group: > > I am working with a designer to produce a line of clothing for folks > with physical disabilities. > > If you could produce a line of clothing specifically to meet your needs > and limitations what would you like to see? > > I for one, despise " sweats and t-shirts " as a way of life. > When I look good I feel better. > > Any ideas as to types of fabric, closures and specific designs and > concepts are welcome. > Thank you. > Shauna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Donna, RA does not affect every person who has it in the same way. Becoming disabled is not inevitable. If you want to be here, you belong. Not an MD [ ] clothing >I unlike many of you are able to get dressed in the morning all though > I do have problems with buttons alot. > I feel like I don't belong to such a wonderful group such as this > because of all that you suffer from.I am thankful that I don't have > such difficulties with everyday living,and I feel that I should stop > complaining and be more thankful that I have not yet reached the point > of " disabilities " that many of you suffer with. I am sorry to ramble > on,my mind forgets to stop sometimes. > Thank you for listening. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2007 Report Share Posted September 3, 2007 Donna, you do belong here:) Were all here to learn how to live with are chronic disease(s). We share stories, and it helps others to make decisions at times. I am so glad to hear when people are doing good, and able to work or just able to get out of the house. It gives hope to us all. Hugs, Tawny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2007 Report Share Posted September 4, 2007 Hi, Donna. I'm Marina. I've been in the background for quite sometime. But I saw your post and I had to respond to it. Don't think that you are any less important than anyone else in this group. The people in here are diverse and have varying types of symptoms at varying degrees. Your pain and difficulties are just as important. When you talk about your difficulties and what you are going through, it may help someone who is in the same situation as you. It also makes me long for those symptoms!! :-) Trust me, talking about what you are going through to such a great group of people who can totally " get it " makes such a difference. It's very theraputic. You need to talk and get things out just as much as anyone else does. Personally, I'm thrilled for you!! I don't wish my situation and issues on ANYbody!! I pray that your symptoms don't get any worse. One of the many great and wonderful things about everyone in here is that they are terrific listeners!! So, hang in there!!.......Gentle Hugs, Marina P.S...Sorry I haven't posted in several months. Hello to all my old friends and welcome to all my new friends!! God Bless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Don't just think clothing. Think accessories. I have a tough time wearing watches. I usually can't handle anything on my wrists. Pin on watches are nice (like nurses watches) but most of the faces are too small for those of us with RA eyes. Monna -- In , " shauna4343 " <shauna4343@...> wrote: > > Dear Group: > > I am working with a designer to produce a line of clothing for folks > with physical disabilities. > > If you could produce a line of clothing specifically to meet your needs > and limitations what would you like to see? > > I for one, despise " sweats and t-shirts " as a way of life. > When I look good I feel better. > > Any ideas as to types of fabric, closures and specific designs and > concepts are welcome. > Thank you. > Shauna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 I would very much appreciate a bra which I could slip over my head and tighten somehow. I am quite large and need to wear one. I can not do straps or hooks. This is making it difficult to leave the house unless someone can assist me. Monna <monnajohnson@...> wrote: Don't just think clothing. Think accessories. I have a tough time wearing watches. I usually can't handle anything on my wrists. Pin on watches are nice (like nurses watches) but most of the faces are too small for those of us with RA eyes. Monna -- In , " shauna4343 " <shauna4343@...> wrote: > > Dear Group: > > I am working with a designer to produce a line of clothing for folks > with physical disabilities. > > If you could produce a line of clothing specifically to meet your needs > and limitations what would you like to see? > > I for one, despise " sweats and t-shirts " as a way of life. > When I look good I feel better. > > Any ideas as to types of fabric, closures and specific designs and > concepts are welcome. > Thank you. > Shauna > Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2008 Report Share Posted March 12, 2008 Cheryl, You might be interested in joining the Parents of Little People group (grandparents are welcome too!). They have a bunch of great people who can answer almost any question pertaining to dwarf children. The web site is parentsoflittlepeople2/. You can find all the instructions on how to join there. Cheers, Bill On Wed, Mar 12, 2008 at 9:44 AM, Cheryl <mccauley38@...> wrote: > > > > > > > My 6 week old grandson, Cade, has achondroplasia. My daughter was > trying to find something for him a little special to wear for Easter, > to no avail, due to his short legs and arms. She knows in the scheme of > things, clothing at his young age can be worked out. My daughter has a > great outlook, but this sort of hit her hard that day while shopping, > as she was able to find Cade's 2 yr old sister something, but not him. > > Does anyone have suggestions... or what may work as he grows? I > realize one obvious thing we can do is make alterations. > I'm sure this is a problem that has existed for all those of short > stature. > Being new to this, we truly appreciate any information or suggestions. > Cheryl, Cade's Grandma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 If you have a Sears in your area, they can do free alterations! Just have him try on the clothes and have them alter the problem areas. ~ a > > My 6 week old grandson, Cade, has achondroplasia. My daughter was > trying to find something for him a little special to wear for Easter, > to no avail, due to his short legs and arms. She knows in the scheme of > things, clothing at his young age can be worked out. My daughter has a > great outlook, but this sort of hit her hard that day while shopping, > as she was able to find Cade's 2 yr old sister something, but not him. > > Does anyone have suggestions... or what may work as he grows? I > realize one obvious thing we can do is make alterations. > I'm sure this is a problem that has existed for all those of short > stature. > Being new to this, we truly appreciate any information or suggestions. > Cheryl, Cade's Grandma > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Hi teresa, I use 2 cups of ammonia for my colors...it stinks...but seems to be the best thing i have used besides clorox. I think we all need completely white wardrobes! I want to know how to add the epsom salt to lotion also>>> LL > From: Singleton <baboig@...> > Subject: Clothing > bird mites > Date: Friday, May 16, 2008, 9:05 PM > Hi all, > The constant cleaning seems to be paying off and I really > think the > windex/clorox regime works well. I'm still having > problems with > clothing and just put on a top I hadn't worn since last > summer and > instantly started getting bites. It just goes to show how > long these > little monsters can live. I put bleach in everything white > and borax in > colors. The colors seem to be my problem and I don't > think the borax on > it's own is doing the job. Any ideas? I just ordered > the cedarcide > which cost $300 so please pray this will be the thing that > gets these > buggers out of here for one and for all. I'm exhausted > from all the > cleaning so I'm hoping this will do the job. One last > question......can > I add straight epsom salts to lotion? > Thanks > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 > > > From: Singleton <baboig@...> > > Subject: Clothing > > bird mites > > Date: Friday, May 16, 2008, 9:05 PM > > Hi all, > > The constant cleaning seems to be paying off and I really > > think the > > windex/clorox regime works well. I'm still having > > problems with > > clothing and just put on a top I hadn't worn since last > > summer and > > instantly started getting bites. It just goes to show how > > long these > > little monsters can live. I put bleach in everything white > > and borax in > > colors. The colors seem to be my problem and I don't > > think the borax on > > it's own is doing the job. Any ideas? I just ordered > > the cedarcide > > which cost $300 so please pray this will be the thing that > > gets these > > buggers out of here for one and for all. I'm exhausted > > from all the > > cleaning so I'm hoping this will do the job. One last > > question......can > > I add straight epsom salts to lotion? > > Thanks > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 By coincidence, I ended up making more lotion last night. 14 ounce of lotion, divided into two containers (had one old empty one) 3/4 cup of epsom salts * Divided epsom salts in two halves (so 3/8 cup each) * Then put the salts into the two containers of lotion, each having ~7 ounce of lotion. So 3/8 cup of salts with 7 ounce of lotion * Heated each container ~20 seconds. * Shook like crazy! The lotion is partially melted and salts have started dissolving, so shake it enough and the salts will completely dissolve into soft lotion * That did it. Afterwards, I added 1/4 teaspoon of tea tree oil to each. > > Hi all, > The constant cleaning seems to be paying off and I really think the > windex/clorox regime works well. I'm still having problems with > clothing and just put on a top I hadn't worn since last summer and > instantly started getting bites. It just goes to show how long these > little monsters can live. I put bleach in everything white and borax in > colors. The colors seem to be my problem and I don't think the borax on > it's own is doing the job. Any ideas? I just ordered the cedarcide > which cost $300 so please pray this will be the thing that gets these > buggers out of here for one and for all. I'm exhausted from all the > cleaning so I'm hoping this will do the job. One last question......can > I add straight epsom salts to lotion? > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 >> I hate to invest money in clothes I very well won't be able to wear in a couple of months ... IF I STAY ON PROGRAM! I'll probably buy them, if I do manage to lose the weight I can always pass them to Goodwill or God Tell or some other charity. Or do consignment at a flea market or something. I " m just focusing on working harder on staying on program. Our one and only consignment store lasted about 6 months before she went out of business, taking all the stuff with her that people left to be sold. Lots of bad blood there. As far as thrift shops go, all we have is a Salvation Army, and they *never* have plus sized clothing in all the years I've been shopping there, not even in men's sizes. The one in Kissimmee, FL had a nice plus size section, but not this one or the one in the next city. We used to have a few other stores, like cancer Care and a store run for the developmentally disabled group, but one is gone and the other stopped selling clothes - too many problems with bugs. What I *missed* going to this past year was the Fat Girl's Flea Market in downtown Manhattan: http://fatgirlfleamarket.com/ This is where I've gotten most of my clothes the past few years, aside form the summer caftans I've been making. Last year I even bought 2 sundresses there. I usually spend the admission price and around another $30 and come home with a minimum of 3 shopping bags full of great clothing, a lot of it new from specialty manufacturers, like Big on Batik. www.bigonbatik.com/ Next year I don't care if Ed's aunt needs us to do stuff for her, she can wait one more day because I'm going! Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Spent some time at Justice today.... discovered " jeggings. " To me, it sounds like some sort of awful Saturday Night Live skit (jeggings, they're jeans like leggings) but really, they are.... look like skinny jeans, but stretchy like leggings. didn't care for most of them because they were snugger fitting, but we did find one pair that was very soft, and thicker material than traditional thin leggings, and they had different jeans-looking washes, black, brown, etc. Since they were having a sale, I bought a pair for her, hopefully she'll get used to them because they looked really cute and fashionable. Also, they were too long (of course) but the salesgirl showed me that hers she was wearing were also too long and she didn't even bother hemming them... she just folded them under and they stayed fine and looked fine too... always a bonus not to have to hem. Jeggings... I still can't believe it's a word and people are running around shopping for jeggings, but they fit the bill for us today :-) , mom to (14) (12 DS), and Sammy (10) On 8/12/2010 9:23 AM, karriemom@... wrote: > Karrie loves the clothes from Justice. She won't wear jeans, either, but we both love the cute sweats they carry. They have plus sizes and also go up to size 18-20 girls! She calls it the " iCarly " store > Sue mom to Kate 20 and Karrie 14 w/ds > Sent on the Sprint® Now Network from my BlackBerry® > > (unknown) > > , your is so much like my Alyssa. Lys love Hannah and now > starting to like the Jonas Bros. She will pretty much wear what I buy, but it > can't be " touching " her-LOL! I love Penney's for the plus size knit pants as Lys > won't wear jeans (they " touch " her and she walks like a cowboy who just got off > a horse). It is hard to tell her no to the Hannah shirts, etc. And it is very > difficult to find clothes in other departments. Not sure what we'll do when she > outgrows the plus size at Penney's. Sue & Alyssa, MI > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 Many here have said that mould, fungus can be washed out of clothing. I washed a whole lot of things in the hottest water possible with borax amd tipped a cup of vinegar in the rinse, i wore a woolen blend jacket to bed and got really sick, def mould reactions. Are some clothing items safer than others and easier to wash eg polyester, cotton or does it depend on the type of mould, fungus etc? Im so reactive now im thinking of only saving supplements, glass cookware, my brand new organic cotton bedding, bed base, and a very few items of clothing, hardened plastic items, and urgent paperwork that i seal, keep in garbage bags and inside plastic packing boxes in the shed until i can deal with them. The intersting thing with the clothes is that they passed the sniff test and was only after sleeping in them for about 5 hours that the reactions started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 what reactions did you have? could you cover the mattress/box spring in plastic? denise ________________________________ From: khandalah <candalah@...> Sent: Mon, October 18, 2010 6:32:58 PM Subject: [] Clothing Many here have said that mould, fungus can be washed out of clothing. I washed a whole lot of things in the hottest water possible with borax amd tipped a cup of vinegar in the rinse, i wore a woolen blend jacket to bed and got really sick, def mould reactions. Are some clothing items safer than others and easier to wash eg polyester, cotton or does it depend on the type of mould, fungus etc? Im so reactive now im thinking of only saving supplements, glass cookware, my brand new organic cotton bedding, bed base, and a very few items of clothing, hardened plastic items, and urgent paperwork that i seal, keep in garbage bags and inside plastic packing boxes in the shed until i can deal with them. The intersting thing with the clothes is that they passed the sniff test and was only after sleeping in them for about 5 hours that the reactions started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2010 Report Share Posted October 18, 2010 Hi denise i had extreme reactions, swelling glands in neck andbelow sternum, difficulty breathing, itchy crawling skin, muscle weakness, hands swelled up, itchyness in ears, running nose, itchy crawling sensation in eyes and over body, feeling of unwellness and the scariest was thoughts that made no sense, weird abstract dreams etc which hasnt happened before, i get brain fog but not weird senseless dreams, there are symptoms ive missed im sure but these are the ones i got last night and always get around this particular mould or fungus, i dont seem to react to other moulds. I need to take extreme precautions, hopefully i havnt contaminated anything here like the bed or washing machine or furnishings grr. Wrapping the bed in plastic would be a bad idea as it will trap moisture and cause anything to grow. Ive thrown the offending item away and will try and sleep in there again tonight. The trouble is the reactions are not always immediate. eg polyester, cotton or does it depend on the type of mould, fungus etc? > Im so reactive now im thinking of only saving supplements, glass cookware, my > brand new organic cotton bedding, bed base, and a very few items of clothing, > hardened plastic items, and urgent paperwork that i seal, keep in garbage bags > and inside plastic packing boxes in the shed until i can deal with them. > > The intersting thing with the clothes is that they passed the sniff test and was > only after sleeping in them for about 5 hours that the reactions started. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 , not knowing any better when I moved from my WDB to my sisters house I took some clothes and the 2 hdtvs that I put in the original box's and felt sick the entire time I was there. I stayed there for two weeks before I was hospitalized (non mold related) and after the second day in the hospital I started feeling normal again. When I was finally released my g/f picked me up and within minutes became symptomatic again, it was january and she had a heavy jacket on so Im thinking her jacket made me sick. Not wanting to go back to my sisters house I moved into a hotel and it took me about 3 months to start to feel better and start working out again and thats with all new clothes I've been told by several of the veteran moldies to wash you clothing 3 times, if it's not decontaminated after the third wash than to just get rid of it. FWIW none of my clothes were never near the source, the mold was in the crawl space and all my clothing was in the third level of the townhouse and none of them had even the slightest hint of the musty smell associated with mold. I dont know if youve tried ammonia in your wash I was told it works as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 thanks dave, my biggest problem is i can't tell one problem from the other? like you said, after the hospital you felt normal, i have never felt normal, so all the sx are blending and i can't tell whats what. like i don't know if i react to my computer, or couch or food because i am so sick from everything, it is hard to know where to start. the benzo is just wait to recovery, but like you said stay away from supplements and vitamins, but with the mold, candida and mercury i have to take some stuff. i have really worried about that. like i have to use the dmsa and ala for mercury. i had my blood drawn and no vit d was detected at all, and my calcium was very very low. so i take that. i don't take any of the other supplement that andy culter recommends because i am so scared. my adrenals are flat so i am trying adrenal support. from the mercury i have a copper def, which is very dangerous so i have to supplement with copper. for the candida i take probiotic, anti-fungal and candex. i am so afraid i will never recover from the benzo because of the supplements but i have to extract the mercury and take the copper, cal, vit d adrenal and candida. what am i to do. if i don't get rid of the culprit mercury i will never get well. what do you think? will i recover from the benzo b/c of this? i am worn out denise ________________________________ From: Tug <tug_slug@...> Sent: Tue, October 19, 2010 11:26:35 AM Subject: [] Re: Clothing , not knowing any better when I moved from my WDB to my sisters house I took some clothes and the 2 hdtvs that I put in the original box's and felt sick the entire time I was there. I stayed there for two weeks before I was hospitalized (non mold related) and after the second day in the hospital I started feeling normal again. When I was finally released my g/f picked me up and within minutes became symptomatic again, it was january and she had a heavy jacket on so Im thinking her jacket made me sick. Not wanting to go back to my sisters house I moved into a hotel and it took me about 3 months to start to feel better and start working out again and thats with all new clothes I've been told by several of the veteran moldies to wash you clothing 3 times, if it's not decontaminated after the third wash than to just get rid of it. FWIW none of my clothes were never near the source, the mold was in the crawl space and all my clothing was in the third level of the townhouse and none of them had even the slightest hint of the musty smell associated with mold. I dont know if youve tried ammonia in your wash I was told it works as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 You could be sick from everything all together, not nec one thing or the other. I got sick and then went looking for an answer and found at least 3 indoor problems: lead dust after dry sanding paint (lead level found high in hair analysis, then house inspection found it in underlayers of paint I had dry sanded), several gas leaks in house (someone else smelled it, apparently I got used to odor), and apparent moisture damage...never found exact location but on culture dish levels not high but doctor believed too high for particular health situation. There was ocratoxin found in cyct in pancreas and afloxin found in urine. Retested a couple years later and none found after remediation. Remediation, in not removing mold bec none found, but in air sealing house so air from wall cavities, attic, basement, etc can't mingle with house air. I have more work to do on house but I don't feel sick anymore at home. > > thanks dave, > my biggest problem is i can't tell one problem from the other? like you said, > after the hospital you felt normal, i have never felt normal, so all the sx are > blending and i can't tell whats what. like i don't know if i react to my > computer, or couch or food because i am so sick from everything, it is hard to > know where to start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 Good advice Tug! Please read this and share with others: A female, age 53, dies of aspergillosis on Oct 12, 2009. She had been hurt while serving in the Army but her disability isn’t what killed her. After stressing through night classes she finally finishes her Master’s Degree in theology. She becomes not only a pastor but also a counselor helping others through the struggles of life. She gets sick with aspergillosis and dies three weeks from the day she was diagnosed at Mercy hospital in Charlotte, NC. My point? My air is now cleared from those dangerous spores, but had I not been so determined to figure out what was causing me to be sick at Grace Avenue, had God not given me the curiosity to seek the truth, I doubt I would have figured out the true cause in time enough to save us. If the cause of their sickness can be discovered within a specific time period, where people have time enough to get out or either resolve the problem by cleaning it up, they don’t have to get sick or die! We were all healthy so we had some extra time. That extra time was a gift from God for me to use wisely and so I did.  But sick people, the old, or weak are often not allowed the time I was. They get too sick or even die before the real truth can be revealed. Then after they die the doctors say “well, if she had not been immune compromised she would not have diedâ€.  That is like saying because a woman wears a short skirt it’s her fault she was rape. It’s a big fat cop out for a lack of social responsibility to educate the public about this issue. In essence, it is blaming the victim for the crime and that is WRONG! The crime belongs to the criminal.  But who is the real criminal, the toxic mold spores or the persons who knows about them and doesn’t say anything about their dangers to warn others? In fact the ones with the knowledge are guiltier than the actual toxic spores themselves because knowledge is a gift to be shared and used wisely for the forces of good.  Could she have got aspergillosis from any place where there were leaky pipes and toxic spores being released into the air? Technically speaking, yes. But common sense will tell you that it is  prolonged exposure to these toxins which is deadly. Are mycotoxins in our food? Yes, but the body doesn’t store toxins, it can get rid of them, and therefore in healthy people no prolonged exposure exists. Jane’s kidneys worked fine which only leaves one other place where she was overly exposed to these toxins. Right in her own bedroom from the leak she never took too much notice of. How do you notice something that hides in so much silence?  But where do we draw the line between wasting our time and making an example out of one land lord's negligence in order to bring public awareness? Would it even help and what we would all go through... worth it? If so why? Is the interconnection between the law and bringing forth public awareness worth our efforts and does such interconnection even exist? At what expense do we dare risk when seeking meaning and purpose to our lives and events that shape them?  How many times did they (doctors) say I was crazy when they found 8 lesions on my sons brain and I told them what Dr. Shoemaker said about mold posioning mimicking MS? And the leasions being in the same places on the brain. And I showed them the levels of toxic air we had been breathing in. I was crying trying to get them to listen me. But the don't and they put my son on copaxon (a shot everyday for MS) which they swore he had. One year after leaving the toxic moldy enviroment and one year from his first MRI with 8 leasions, he goes back for another MRI and the leasions are completely gone!!! Now copaxon does not cure MS. I think God did it and getting out of the moldy enviroment. What I'm saying is people don't have to get sick and or even die from this stuff if they know about it before its too late. From: Tug <tug_slug@...> Subject: [] Re: Clothing Date: Tuesday, October 19, 2010, 12:26 PM  , not knowing any better when I moved from my WDB to my sisters house I took some clothes and the 2 hdtvs that I put in the original box's and felt sick the entire time I was there. I stayed there for two weeks before I was hospitalized (non mold related) and after the second day in the hospital I started feeling normal again. When I was finally released my g/f picked me up and within minutes became symptomatic again, it was january and she had a heavy jacket on so Im thinking her jacket made me sick. Not wanting to go back to my sisters house I moved into a hotel and it took me about 3 months to start to feel better and start working out again and thats with all new clothes I've been told by several of the veteran moldies to wash you clothing 3 times, if it's not decontaminated after the third wash than to just get rid of it. FWIW none of my clothes were never near the source, the mold was in the crawl space and all my clothing was in the third level of the townhouse and none of them had even the slightest hint of the musty smell associated with mold. I dont know if youve tried ammonia in your wash I was told it works as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 This paragraph below is so true!!! The real criminals are the ones that know that their building has a mold problem but does nothing but keep it quiet as possible and tell everyone that things are all under control!! This is exactly what happened in my school!! Teachers, staff and parents were NEVER given the inspection reports. Another teacher was confirmed with toxic mold exposure, many students & staff had symptoms and 6 yrs. later they are STILL open!!!! I call it child abuse! But who is the real criminal, the toxic mold spores or the persons who knows about them and doesn’t say anything about their dangers to warn others? In fact the ones with the knowledge are guiltier than the actual toxic spores themselves because knowledge is a gift to be shared and used wisely for the forces of good. Quote Link to comment Share on other sites More sharing options...
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