Re: I've moved

[Guest guest]

I hope I'm not saying anything wrong.  Many of us won't be able to tolerate

mold in any form since our toxic exposure. We had no choice in our 1st exposure,

until we found out about it.  I look at outside mold w fear now.

A remediation that works for one, won't for the sensitive person. Many go on to

have MCS.

I'm so sorry about your relationship &   pray you find healing.

Baking in the sun should help or could be EMF's if you had it on.

tug_slug wrote:

Im hypersensitive to mold even the most minuet amount of spores will cause me

to react, this obviously wasnt taken into consideration.

Im begging everyone here to never ever take one persons advice as gospel, dont

make the mistake I did, call around get several opinions and only than weigh

your options.

Im going to have to take a break from sick building as my laptop has been cross

contaminated and I don't have the money to replace it. Perhaps if I stick the

laptop out side long enough like one other person would suggest it would be

enough decontaminate it?

 my relationship. One of the other members said that by simply airing out the

house would be enough to make it safe and clear out whatever mold spores were

remaining from the improperly remediated mold that was in the a/c coils. Because

I was told the procedure that the AIR DUCT CLEANING COMPANY would be sufficient

to remediate the mold in our a/c coils, I took that persons advice and it has

cost me the most important thing in my life, my relationship with my g/f. Im

hypersensitive to mold even the most minuet amount of spores will cause me to

react, this obviously wasnt taken into consideration when I was told to allow

the air duct cleaning service to remove the mold, simply opening the windows and

airing out the house would never be enough to make the house tolerable. Think

about it, would you allow an air duct cleaning service to remove toxic mold in

your bathroom or under your sink? why would anyone say its ok to allow them to

clean it from a/c

coils?

[Guest guest]

my boyfriend of ten years couldn't handle my illness and left me

>>>

In a message dated 10/5/2010 6:27:42 P.M. Eastern Daylight Time,

ldelp84227@... writes:

Very sorry for your situation. I don't know about your advice, but usually

the term used when people advise is YMMV which is your milage might very. I

believe that is correct. But we are all different in this illness and we

have to do what we think is right.

Things might work out, I have been doing this for 12 years and it has

taken a toll on my marriage, and I left for one summer. But in time things were

better. I hope things work out. It is such a sad illness.

>

> I finally moved a couple of hours south of Denver and am living in a

hotel but unfortunately it cost me my relationship. One of the other members

said that by simply airing out the house would be

[Guest guest]

Very sorry for your situation. I don't know about your advice, but usually the

term used when people advise is YMMV which is your milage might very. I believe

that is correct. But we are all different in this illness and we have to do what

we think is right.

Things might work out, I have been doing this for 12 years and it has taken a

toll on my marriage, and I left for one summer. But in time things were

better. I hope things work out. It is such a sad illness.

>

> I finally moved a couple of hours south of Denver and am living in a hotel but

unfortunately it cost me my relationship. One of the other members said that by

simply airing out the house would be

[Guest guest]

Tug, I dont think anyone said that airing out the house would get rid of the

sorce of whatever was bothering you, only that if the air outside is better than

inside at any given time, you might get some relief from whats bothering you by

opening the windows.

let me explain it, air better outside, open windows, TEMPERARY cleaning of air

inside, close windows, sorce still there, return of inside air that bothers you.

no one said that airing out the house would solve ,get rid of the sorce of whats

bothering you inside. NO ONE!

heres a thought, even though you were convienced it was mold bothering you,

maybe you could have had the oil cleaned off the AC coils anyway, just to see if

it would help.

I know that when my AC unit was going to be replaced with a new one, I asked

them first if there was going to be a new smell, a chemical smell involved and

told them I have severe problems with smelling many chemicals and just wouldn't

be able to deal with that.

they told me they do use a oil on the coils but would leave it off for me, they

also said they would hook it up and run it for a while before bringing it over

so that hopefully it wouldn't bother me.

and that worked, it didn't bother me.

all I had to do is say I had a problem being around chemicals and they

understood that.

just like now, if your hotel room is bothering you, you might nicely go tell

them that you have hypersensitivites to chemicals and molds and that something

in the room is bothering you and you might work with you to get you in a room

that is more tolerable.

if you say only mold bothers you, they are just going to look at you

with a big DUH on their face, if you say chemicals bother you, they well know

that things like cleaning products, carpet cleaner, or something else in the

room is bothering you, they may have a room that they fell may be better for

you.

sometimes useing the word severe allergies can help them understand

what they might not understand in other words.

as far as your relationship, dont blame anyone else for that.

you made your choise on that, no one made that for you.

some did try to tell you that maybe staying and figureing out what is getting to

you would be better than leaveing and risking a chance on a new place and what

hidden problems that might bring.

some times it's better to stay and keep working to get the place liveable

instead of moveing to a new place where you may have just as many or more hidden

problems to deal with.

and really, your plight is no different than anything all of us have been

through, chances are that it may just take some time for your body to calm down

before you well be able to really be able to judge

weither anyplace is going to be liveable/serviveable or not.

things like what we eat, drink, wear against or put on our skin can be reactors,

it's not always about what we are breathing.

theres a lot to things about. that takes time to get a grip on.

you seem to be in a belief of finding a quick fix, sorry but there aint one, it

takes time, mistakes,learning. so when people try to help you here, it's not

nice to turn their words around and blame them because you didn't get that quick

fix, you thought you would,

no one can be in your shoes, in your place, and give you absolutes.

we all have had to find our own way.

>

> I finally moved a couple of hours south of Denver and am living in a hotel but

unfortunately it cost me my relationship. One of the other members said that by

simply airing out the house would be enough to make it safe and clear out

whatever mold spores were remaining from the improperly remediated mold that was

in the a/c coils. Because I was told the procedure that the AIR DUCT CLEANING

COMPANY would be sufficient to remediate the mold in our a/c coils, I took that

persons advice and it has cost me the most important thing in my life, my

relationship with my g/f.

[Guest guest]

Tug, It took me two years before I realize it was my house. It turned out to be

more than one thing: lead and wdb exposure from 'moisture' condensation in

walls, and not a obvious leak. I also had multiple leaks in gas line, small ones

here and there but they add up. Someone working here smelled gas. I was not

noticing the odor, probably used to it. It isn't easy to pinpoint these things.

Sometimes it is obvious. Sometimes it's not and sometimes it is something

you've become exposed to .ie. virus, etc and has nothing to do with house. I

remember someone who was here at the board for months and finally it became

obvious that some old throw rugs he had bought at Goodwill were the source of

trouble. He threw them out, and problem was gone, house was okay. One thing I'm

not clear on is what your symptoms are. It might be good to keep diary of

symptoms and when they come and go, and when they are there, make note of as

many things as you can that might be related and when they leave, note as many

things as you can, to increase your awareness of symptoms and what circumstances

might bring them on or make them leave, time of day, heat, humidity, location,

diet, exercise of lack of it, hydration or lack of it, etc. Mind sharing some

of your symptoms with us?

>

heres a thought, even though you were convienced it was mold bothering you,

maybe you could have had the oil cleaned off the AC coils anyway, just to see if

it would help.

[Guest guest]

This is exactly what I'm talking about we can't expect the person that were

dating to stop living their lives. The divorce rate alone is well over 50% out

of curiosity I wonder what the divorce rate is for a couple where one of the

partners is sensitive to mold? I can't begin to tell you how many people I have

talked to that have been jilted by their significant other because of that

persons hypersensitivity to mold

My thinking may be all over the place and for that i apologize but that's

because of the situation I was in and was trying desperately to hang onto the

last thing that meant anything to me. There's at least one person here whose in

for a rude awakening should they get re-exposed for a second time like so many

of us on this site have.

Had I not been re-exposed there's no doubt in my mind I'd be living a normal

healthy life but unfortunetely that's not the case.

> >

> > I finally moved a couple of hours south of Denver and am living in a

> hotel but unfortunately it cost me my relationship. One of the other members

> said that by simply airing out the house would be

>

[Guest guest]

Thank you Barb I'm typing on cell phone so it's kind of hard to type a lengthy

response. I don't have any plans of going back to my g/f's house in the near

future but this morning when i woke up and started using my laptop my neck

started to hurt again and the back of my head felt like it was going to explode

that's when I knew the laptop was making me sick. Not wanting to ruffle any

feathers I don't know exactly what in the laptop was making me sick I just know

that within minutes of turning it on I became symptomatic.

> >

> heres a thought, even though you were convienced it was mold bothering you,

maybe you could have had the oil cleaned off the AC coils anyway, just to see if

it would help.

>

[Guest guest]

Are you on any medication that may be affecting you with head or pain pain, read

the side affect lists that come on them, don't want to keep moving if you are

taking your problem along with you.

>

> Thank you Barb I'm typing on cell phone so it's kind of hard to type a lengthy

response. I don't have any plans of going back to my g/f's house in the near

future but this morning when i woke up and started using my laptop my neck

started to hurt again and the back of my head felt like it was going to explode

that's when I knew the laptop was making me sick. Not wanting to ruffle any

feathers I don't know exactly what in the laptop was making me sick I just know

that within minutes of turning it on I became symptomatic.

>

[Guest guest]

Thanks again Barb, I am now using a friends computer so I can answer your

question without having to worry about typos.

Im currently taking Sporanox and CSM on a regular basis, when things get really

bad I have ketoconzole nasal inhaler which works wonders for what seems to be

immediate relief but due to the cost I have to use it sparingly.

Sporanox is the only medication that could possibly be making me dizzy so about

two weeks ago I stopped taking it and my symptoms became much worst, the brain

fog was so bad it was unbearable so I had to go back to the dose I was

originally on before that I had cut my dose in half due to the possibility of

liver toxicity.

You have no idea how much I appreciate you taking the time to help me figure

this out especially at a time when my thinking is so fuzzy. All I keep thinking

about when it comes to making a decision is " Im I doing the right thing " " If not

for my moldy brain would I still make this same decision? " . Im constantly second

guessing myself which is why my posts seem to be all over the place.

Ive been accused of being anxious and depressed all I can say to that is of

course Im anxious and depressed who wouldnt be? In the past 6 months I went from

buying a condo with all new furniture, a new bedroom set and a new dinning room

set to having absolutely nothing but a huge mountain of debt that I cant afford

to pay back. Back in October 2009 my life was without a doubt complete, I had my

own place, a woman that loves me and other than my mortgage was completely debt

free and within 6 short weeks I lost it all and will have health issues that

will persist for the rest of my life. At this very moment I feel like Im

fighting for my very existance and there's not a soul who can help me... no one.

Yeah, I'd definitely say Im depressed and somewhat anxious, I think I have a

right to be.

>

> Are you on any medication that may be affecting you with head or pain pain,

read the side affect lists that come on them, don't want to keep moving if you

are taking your problem along with you.

[Guest guest]

Maybe what you are experiencing is die off and effects of antifungals. They can

be very hard on you. Increase fiber in your diet, pick up some detox things for

your liver, such as milk thistle. Do you use CSM? Some people use a

combination of liver detox aides, supplements and also change of diet. Are you

following mold free diet? I've tried taking Sporonax and couldn't tolerate it

even though I sought out the rx. Probably means I needed it or need it but I

don't want to damage my liver. I've thought of trying it again sometimes at

lower dose but I had to get off of it pronto at the time.

- In , " Tug " <tug_slug@...> wrote:

>

> Thanks again Barb, I am now using a friends computer so I can answer your

question without having to worry about typos.

>

> Im currently taking Sporanox and CSM on a regular basis, when things get

really bad I have ketoconzole nasal inhaler which works wonders for what seems

to be immediate relief but due to the cost I have to use it sparingly.

>

[Guest guest]

Barb right now Im supplementing whole psyllium husks with the CSM to keep me

regular. I've experienced die off when I was living in the hotel back in

February and it wasn't pleasant if anything I honestly thought I was going to

die and didnt know why. Then I spoke to Sharon K and she explained what die off

was and why it was happening. When it happened again even as bad as I felt at

the time I was actually glad it was happening, just knowing the mold was dying

off in my system over came the illness that was brought on by it.

About a month after I started taking sporanox I had my liver enzymes tested and

they came back as being elevated. My Dr told me unless they come down Im going

to have to stop taking the sporanox, that very day I started drinking no less

than a gallon of water (over kill)a day and taking a supplement called critical

liver support. The following month when they retested my liver my enzymes were

back down to normal and have been down ever since.

The problem Im having is following a mold free diet, so far its consisted

basically of baked chicken breasts (no wheat), almonds and 2 apples every day.

I've pretty much been on this diet for 6 months and Im jonesing pretty bad for a

spoonful of peanut butter or a bowl of ice cream heck I'd even settle for a diet

pepsi but out of fear have abstained.

I do have some GREAT news I think I may have found a furnished apartment thats

well within my price range. The problem is it's back up in Denver. A month ago

this apartment complex had small studio that would have been perfect for me but

it had some water issues in the apartment above it so they had to tear the

ceiling out in the bathroom to fix it. The owner said the work was done either 2

to 3 years prior but because of the possible mold issue I had to pass. Well, the

owner just called me and said she had a one bedroom that she was absolutely sure

didnt have any water leaks above or below it.

Im going to have a friend of mine check the apartment out when she gets off

work, if it checks out she'll put the deposit down and I can let the healing

process begin.

>

> Maybe what you are experiencing is die off and effects of antifungals. They

can be very hard on you. Increase fiber in your diet, pick up some detox things

for your liver, such as milk thistle. Do you use CSM? Some people use a

combination of liver detox aides, supplements and also change of diet. Are you

following mold free diet? I've tried taking Sporonax and couldn't tolerate it

even though I sought out the rx. Probably means I needed it or need it but I

don't want to damage my liver. I've thought of trying it again sometimes at

lower dose but I had to get off of it pronto at the time.

[Guest guest]

I got to go a great clinic for infectious diseases. My doctor who is tops told

me that people with fungal allergies etc do the best with Glutathione. I have

found that to be true. I am taking it orally and via ivs. I do not take as much

as I should but I see a great difference. I have a huge problem with mold. cathy

>

> I finally moved a couple of hours south of Denver and am living in a hotel but

unfortunately it cost me my relationship. One of the other members said that by

simply airing out the house would be enough to make it safe and clear out

whatever mold spores were remaining from the improperly remediated mold that was

in the a/c coils. Because I was told the procedure that the AIR DUCT CLEANING

COMPANY would be sufficient to remediate the mold in our a/c coils, I took that

persons advice and it has cost me the most important thing in my life, my

relationship with my g/f. Im hypersensitive to mold even the most minuet amount

of spores will cause me to react, this obviously wasnt taken into consideration

when I was told to allow the air duct cleaning service to remove the mold,

simply opening the windows and airing out the house would never be enough to

make the house tolerable. Think about it, would you allow an air duct cleaning

service to remove toxic mold in your bathroom or under your sink? why would

anyone say its ok to allow them to clean it from a/c coils?

>

> Im begging everyone here to never ever take one persons advice as gospel, dont

make the mistake I did, call around get several opinions and only than weigh

your options.

>

> Im going to have to take a break from sick building as my laptop has been

cross contaminated and I don't have the money to replace it. Perhaps if I stick

the laptop out side long enough like one other person would suggest it would be

enough decontaminate it?

>

[Guest guest]

yes, the antifungal nasal spray may be causeing a hexheimer effect,

die off, a release of toxins in the body which well make you fell like your

being exposed all over again.

> >

> > Thanks again Barb, I am now using a friends computer so I can answer your

question without having to worry about typos.

> >

> > Im currently taking Sporanox and CSM on a regular basis, when things get

really bad I have ketoconzole nasal inhaler which works wonders for what seems

to be immediate relief but due to the cost I have to use it sparingly.

> >

>

[Guest guest]

i just started a gse, olive leaf extract nasal spray and it caused some

interesting die off.. brain inflammation came back.. looseness in thinking.

if you have an active fungal infection you will still have symptoms.. right?

csm has its side effects as well from dislodging of toxins to robbing your body

of fat soluable nutrients .. ive heard some compalin in lyme circies that is can

also cause deep depression im gussing from depleting fat soluable vitamins

though not sure.

ive heard of rotating in csm but not taking constantly. talked with someone who

used for 4 months and said at that point he was getting diminishing returns.

possibly?

robin

- In

, " Tug " <tug_slug@> wrote:

> >

> > Thanks again Barb, I am now using a friends computer so I can answer your

question without having to worry about typos.

> >

> > Im currently taking Sporanox and CSM on a regular basis, when things get

really bad I have ketoconzole nasal inhaler which works wonders for what seems

to be immediate relief but due to the cost I have to use it sparingly.

> >

>

[Guest guest]

this is how i felt since starting the gse/olive leaf nasal spray.. not

constant.. it comes and goes.. very uncomfortable and diff from a lyme die off..

not flu feeling.. spacy, brain inflammed.

robin

> > >

> > > Thanks again Barb, I am now using a friends computer so I can answer your

question without having to worry about typos.

> > >

> > > Im currently taking Sporanox and CSM on a regular basis, when things get

really bad I have ketoconzole nasal inhaler which works wonders for what seems

to be immediate relief but due to the cost I have to use it sparingly.

> > >

> >

>

[Guest guest]

several months of csm did nothing for my son, i tried a couple 1/2

doses, didn't like it--heartburn, etc. i am going to try sauna as a

means to get these toxins out rather than messing with my digestive

tract. sue v.

>i just started a gse, olive leaf extract nasal spray and it caused some

>interesting die off.. brain inflammation came back.. looseness in thinking.

>

[Guest guest]

When experiencing die off I get flu like symptoms. Their so severe it takes

everything I have to just get out of bed and get a drink of water. If I drink a

small glass of OJ the flu type symptoms diminish and I start to feel better.

Funny how something like a small glass of OJ is enough to feed the mold so you

dont have such a severe reaction.

>

> this is how i felt since starting the gse/olive leaf nasal spray.. not

constant.. it comes and goes.. very uncomfortable and diff from a lyme die off..

not flu feeling.. spacy, brain inflammed.

[Guest guest]

I tried glute IV's for a couple of months, not only were they expensive I

didn't notice any significant change in the way I was feeling. I was told not to

take Vit C drips along with the Glute drips the Vit C will diminish the effects

of the glutathione.

>

> I got to go a great clinic for infectious diseases. My doctor who is tops told

me that people with fungal allergies etc do the best with Glutathione. I have

found that to be true. I am taking it orally and via ivs. I do not take as much

as I should but I see a great difference. I have a huge problem with mold. cathy

[Guest guest]

very interesting observation. give it a little sugar so it can hang on to life!

Die off survival tool.. gets too much, sugar to the rescue. :-)

robin

> >

> > this is how i felt since starting the gse/olive leaf nasal spray.. not

constant.. it comes and goes.. very uncomfortable and diff from a lyme die off..

not flu feeling.. spacy, brain inflammed.

>

[Guest guest]

Tug: I am confused about what mold diet you are following as nuts and fruit are

not normally recommendede. Nuts are notoriously moldy. The mold diet is not that

limiting really, you can eat all the greens you want, did not see them on your

list. Veggies are very important for your well being. D

> >

> > Maybe what you are experiencing is die off and effects of antifungals. They

can be very hard on you. Increase fiber in your diet, pick up some detox things

for your liver, such as milk thistle. Do you use CSM? Some people use a

combination of liver detox aides, supplements and also change of diet. Are you

following mold free diet? I've tried taking Sporonax and couldn't tolerate it

even though I sought out the rx. Probably means I needed it or need it but I

don't want to damage my liver. I've thought of trying it again sometimes at

lower dose but I had to get off of it pronto at the time.

>

[Guest guest]

Sue I've been on CSM for several months as well and Im not sure if its doing any

good or not. The one thing I dont want to do is stop using it and make my

situation worst.

>

> several months of csm did nothing for my son, i tried a couple 1/2

> doses, didn't like it--heartburn, etc. i am going to try sauna as a

> means to get these toxins out rather than messing with my digestive

> tract. sue v.

>

> >i just started a gse, olive leaf extract nasal spray and it caused some

> >interesting die off.. brain inflammation came back.. looseness in thinking.

> >

>

[Guest guest]

maybe with at least exposure to aspergillus fumigatus, glutathione might be

worth a try.

> >

> > I got to go a great clinic for infectious diseases. My doctor who is tops

told me that people with fungal allergies etc do the best with Glutathione. I

have found that to be true. I am taking it orally and via ivs. I do not take as

much as I should but I see a great difference. I have a huge problem with mold.

cathy

>

[Guest guest]

D I'll be honest with you my diet stinks. Its easier for me to keep my diet

simple and easy as opposed to follow a specific one. I can eat baked chicken

breasts till Im blue in the face which I do when I eat greens its usually

brussle sprouts.

Ive been told to stay away from nuts the grow underground and that almonds are

actually good for you? I've also been told and have read that eating two pieces

of fruit (apples) is ok but to stay away from bananas due to their high sugar

content. Is this information incorrect?

>

> Tug: I am confused about what mold diet you are following as nuts and fruit

are not normally recommendede. Nuts are notoriously moldy. The mold diet is not

that limiting really, you can eat all the greens you want, did not see them on

your list. Veggies are very important for your well being. D

[Guest guest]

Its not that they are unhealthy food, its the sugar/mold content that you are to

be concerned with. Almonds are a very healthy food but from what I have read,

bateria and mold can grow inside of the shell. So, it does not matter if they

are grown above or under ground. I have not been able to tolerate any nuts or

nutbutter and I love them! You say your diet stinks, diet is SO important with

this condition. The more you can improve your diet the better you will feet.

Fuel for the body! I do not eat any fruit as fructose can still feed the

mold/candida in the gut. Dr M used to say if you dont notice improvement with

the mold diet, your trigger is possibly not mold. Diet makes all the difference

with me. Good luck...

> >

> > Tug: I am confused about what mold diet you are following as nuts and fruit

are not normally recommendede. Nuts are notoriously moldy. The mold diet is not

that limiting really, you can eat all the greens you want, did not see them on

your list. Veggies are very important for your well being. D

>