Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 A dx of EE isn't dependant on having eos in the blood. It is usually dx by biopsy. DS was worked up for EE, but was already on the elimination diet at time of endoscopy. There is an EGID board & lots of parents there will tell you that their child is dx w/EE, but it wasn't found in the bloodwork. Tx can consist of elimination diet, elemental diet, & /or inhaled steroids. It is believed to be either allergy based or immune based. I know of another child who was worked up for achalasia & it was found he has EE. Here are some very good links about EE: http://www.apfed.org eosinophilgastro/ http://www.cincinnatichildrens.org/svc/alpha/e/eosinophilic/ in OH, mom to: Grant 2 yo w/reflux, dysphagia w/aspiration & on thickened liquids, in OT & PT, hypotonia, feeding therapy, intolerant to lots with immunologic responses, nodules found in duodenum indicate possible food allergy, possible oral allergy syndrome, on prevacid, E028 only but not drinking enough, losing weight due to swallowing difficulty, possible achalasia Aleah 5 yo w/reflux, cyclic vomiting (Now not sure if accurate dx since eliminating dairy), delayed gastric emptying, MPI, chronic sinusitis, hypotonia, in OT, on prevacid & rhinocort > Hi all, > The words eosinophilic esophagitis caught my eye, as my 16 yr old > boy is currently awaiting results of a blood test for it. He was > diagnosed with Achalasia a year ago and had the Heller's Lap/no wrap > surgery, but the GI is still not happy with the esophagus as shown > on the barium swallow and manometry; the endoscopy showed > eosinophils-and esophagitis, but the scope passed through easily > enough. His only 'bad' symptom at present is the chest > pain,controlled with cold drinks and not affecting his everyday life > as long as he remembers to carry a drink around. He is on a trial of > domperidone(motility), and proton pump inhibitors for the chest > pain, to rule out acid reflux. (doesn't seem to be working). > There has been talk of another Hellers-open this time, and I would > like to avoid that for as long as possible, or maybe dilatation- > although the GI seemed to think the results would be affected > because of the Hellers a year ago. > We are waiting for the follow-up to decide what to do next. > Sally mother of Stefan > London > England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 This group is great! It's so nice to hear of people who even know what EE is! Most people I discuss any of my husband's case with have no idea what I'm talking about. Is EE found mostly in children? My husband had blood tests and biopsies of esophagus sites to check for EE at Univ. of Mich. The doctor said that he could go back and biopsy more sites, but the original biopsies didn't show EE. Instead, he went on to do the barium swallow, manometry, and 24 hr ph probe (which ruled out reflux). I wonder if Cleveland Clinic will revisit this issue when we are there. I didn't realize that a person could have both achalasia and EE. Sally, good luck with making a decision for your son's treatment! I hope he can get relief from the easiest method possible. I don't blame you for wanting to delay more surgery as long as possible! , it sounds like you have a lot on your plate these days! I'm so sorry your little ones have so many problems! I hope all the treatments and therapies help them. Wouldn't it be nice if they just outgrew all of these things? Thank you both for your input! > Hi all, > The words eosinophilic esophagitis caught my eye, as my 16 yr old > boy is currently awaiting results of a blood test for it. He was > diagnosed with Achalasia a year ago and had the Heller's Lap/no wrap > surgery, but the GI is still not happy with the esophagus as shown > on the barium swallow and manometry; the endoscopy showed > eosinophils-and esophagitis, but the scope passed through easily > enough. His only 'bad' symptom at present is the chest > pain,controlled with cold drinks and not affecting his everyday life > as long as he remembers to carry a drink around. He is on a trial of > domperidone(motility), and proton pump inhibitors for the chest > pain, to rule out acid reflux. (doesn't seem to be working). > There has been talk of another Hellers-open this time, and I would > like to avoid that for as long as possible, or maybe dilatation- > although the GI seemed to think the results would be affected > because of the Hellers a year ago. > We are waiting for the follow-up to decide what to do next. > Sally mother of Stefan > London > England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Hi Jenn, and thanks for the interesting information and Links. I think I caused a misunderstanding in my post: I meant that Stefan had a blood test to check for allergies, not to check for EE. Although he was diagnosed with A, he didn't have the endoscopy (with biopsies & discovery of eosinophils) until a year later, then had the PPI trial, (ongoing for two more weeks) & blood test for allergies. He had Asthma badly as a toddler, and gets the chest pain and swallowing problems still. We wait with bated breath for the results........... Sally and Stefan London UK > A dx of EE isn't dependant on having eos in the blood. It is usually > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 Eosinophilic esophagitis: the newest esophageal inflammatory disease http://www.nature.com/nrgastro/journal/v6/n5/full/nrgastro.2009.45.html IgE and non-IgE-mediated food allergy: treatment in 2007.: Non-IgE-Mediated Food Allergies http://www.medscape.com/viewarticle/559690_3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 Its called mold colonization.. give it some intraconzole nasal spray for a yr and see what happens From: osisposis <jeaninem660@...> Subject: [] Eosinophilic esophagitis Date: Wednesday, October 6, 2010, 5:24 PM Eosinophilic esophagitis: the newest esophageal inflammatory disease http://www.nature.com/nrgastro/journal/v6/n5/full/nrgastro.2009.45.html IgE and non-IgE-mediated food allergy: treatment in 2007.: Non-IgE-Mediated Food Allergies http://www.medscape.com/viewarticle/559690_3 Quote Link to comment Share on other sites More sharing options...
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