Re: Swedo's slides from PANDAS / PITANDS talk in Texas

[Guest guest]

Swedo, who put the whole Pandas (controversial) framework in action, has

been doing a similar presentation to this link for a long time.

To hear her talk about it is easier first IMHO - the AC Mind Institute

presentation video then read Natasha's link to the latest presentation. Then

that will make sense if you really want to understand PANDAS and are new to it:

http://www.ucdmc.ucdavis.edu/mindinstitute/videos/video_special.html

She explains it well in the video, and it is fascinating. Very interesting -

Swedo now works on Autism. She envisages in 10 years we'll be further on. I

listened to her presentation on all the different therapies and was greatly

disappointed. She didn't have much to say for a lot of things that have helped

our children and hasn't made the crossover in pandas to diet for instance. Your

opinion might be different.

If you want to hear her on autism therapies:

http://videocast.nih.gov/summary.asp?live=10144

I spoke with Dr.K and Dr.T when I was writing about PANDAS, and both noted the

startled look effect as a diagnostic marker, not so sure, think it could be

linked with a number of things. J had this look a lot when little. Dr.T comes

from the perspective that he has already seeing a pandas-autism sub group as

young as 3 yo related to MMR for a number of years.

Thank you Natasha for the updated link. With my previous post, I was trying to

summarise, but maybe people need and want to know a lot more.

Eileen

>

> healthcare-professionals.sw.org/resources/docs/division-of-education/cme/bra

> in-post-infection-symposium/0900_PANDASPITANDS_Swedo.pdf

>

> Or

> http://tinyurl.com/7h5mjqc

>

[Guest guest]

http://www.ucdmc.ucdavis.edu/mindinstitute/videos/video_special.html

Sorry try above link for Swedo's early presentation, how she put the PANDAS

framework together.

Also if you want to read a really amazing book on OCD, read " The Boy Who Kept

Washing His Hands " by Judith Rapoport. She was the person who really laid the

foundations for Swedo. She worked with her at the NIMH whilst the pandas

hypothesis was built. This book is highly readable and helped me to really

understand what OCD is all about.(A lot of you have probably read it)

http://www.amazon.co.uk/Boy-Couldnt-Stop-Washing-Obsessive-compulsive/dp/0006375\

197/ref=sr_1_fkmr0_2?ie=UTF8 & qid=1327880644 & sr=8-2-fkmr0

> >

> > healthcare-professionals.sw.org/resources/docs/division-of-education/cme/bra

> > in-post-infection-symposium/0900_PANDASPITANDS_Swedo.pdf

> >

> > Or

> > http://tinyurl.com/7h5mjqc

> >

>