Low dose naltrexone

[Guest guest]

I hope to start LDN shortly, too.

I've been on the LDN and Autism_LDN groups for over a year.

Some folks with CFIDS occasionally post.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

Posted by: " per h " _pehan03@... _ (mailto:pehan03@...?Subject=

Re:Low%20dose%20Naltrexone) _pehan03 _ (pehan03)

Thu Nov 16, 2006 8:57 pm (PST)

Hi

Low dose Naltrexone will soon be available at prescription where Im at,

and I am wondering if anyone have tried this?

There seems to be mainly MS patients getting help from this or they are

the largest group willing to try it.

Interested in experiences or updated info in relation to CFS

if anyone got.

Per

[Guest guest]

I tried it several years ago. No response.

>

> Hi

> Low dose Naltrexone will soon be available at prescription where Im

at,

> and I am wondering if anyone have tried this?

> There seems to be mainly MS patients getting help from this or they

are

> the largest group willing to try it.

>

> Interested in experiences or updated info in relation to CFS

> if anyone got.

>

> Per

>

[Guest guest]

Ditto, tried it twice, last time for almost a year with no noticeable benefit.

Mariska <mariska31@...> wrote: I tried it several years ago. No

response.

>

> Hi

> Low dose Naltrexone will soon be available at prescription where Im

at,

> and I am wondering if anyone have tried this?

> There seems to be mainly MS patients getting help from this or they

are

> the largest group willing to try it.

>

> Interested in experiences or updated info in relation to CFS

> if anyone got.

>

> Per

>

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[Guest guest]

What were your expectations? Were you taking LDN between 9 pm and midnight?

What dose? What filler?

THe purpose of LDN is to stop progression.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

Posted by: " Bullock " _steverbullock@... _

(mailto:steverbullock@...?Subject= Re:%20Low%20dose%20Naltrexone)

_steverbullock _

(steverbullock)

Fri Nov 17, 2006 10:45 am (PST)

Ditto, tried it twice, last time for almost a year with no noticeable

benefit.

Mariska <_mariska31@..._ (mailto:mariska31@...) > wrote: I tried

it several years ago. No response.

[Guest guest]

Took at bedtime. Think it was 4.5 mg. dose. Maybe it was stopping progression

but how to know it was this that was doing it? Don't know filler but it was

from compounding pharmacy recommended by that doc who is the big proponent for

it's use...Bihari??

foxhillers@... wrote: What were your expectations? Were you taking

LDN between 9 pm and midnight?

What dose? What filler?

THe purpose of LDN is to stop progression.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

Posted by: " Bullock " _steverbullock@... _

(mailto:steverbullock@...?Subject= Re:%20Low%20dose%20Naltrexone)

_steverbullock _

(steverbullock)

Fri Nov 17, 2006 10:45 am (PST)

Ditto, tried it twice, last time for almost a year with no noticeable

benefit.

Mariska <_mariska31@..._ (mailto:mariska31@...) > wrote: I tried

it several years ago. No response.

[Guest guest]

I took LDN the first year I was sick back in 1991-2. I recovered after a year,

although I was taking twice a week mega-vitamin drips from another doctor. So I

don't know which if any (or both?) helped.

After being well for a year I relapsed. Tried LDN again, and the vitamin

drips (different doctors -- I'd moved), and they neither did any good.

Sick ever since, for 13-years.

michael

[Guest guest]

Stupid question? What is LDN? Thanks.

Re:Low dose Naltrexone

I took LDN the first year I was sick back in 1991-2. I recovered after a year,

although I was taking twice a week mega-vitamin drips from another doctor. So I

don't know which if any (or both?) helped.

After being well for a year I relapsed. Tried LDN again, and the vitamin drips

(different doctors -- I'd moved), and they neither did any good.

Sick ever since, for 13-years.

michael

[Guest guest]

Edy

LDN = low dose Naltrexone as indicated in the subject line

see also _www.low dose naltrexone.org_ (http://www.low dose naltrexone.org)

there are at least two groups

low dose naltrexone

Autism_LDN

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/Edy_ (http://foxhillfarm.us/FireBasil/Edy)

Posted by: " Edy Rayfield " _edyrayfield@... _ (m

ailto:edyrayfield@...?Subject= Re:%20Low%20dose%20Naltrexone)

_edithio2005 _

(edithio2005)

Sat Nov 18, 2006 4:01 pm (PST)

Stupid question? What is LDN? Thanks.

[Guest guest]

The noticeable benefit is in the blood tests. Without it ( it takes 3 months

to work), I have very few lymphocytes (T cells and CD8s), and the ones I had

were incompetant. The tests for them are very specific. I was sick all the

time without it. Not sick much with it. Dr Bihari is unavailable these, days,

unfortunately. He has now referred me to Dr Ehrlich in NYC. I went to

him on Friday and he took many vials of blood. He seemed to be very bright and

a caring individual. He spent a lot of time with me, and listened. I will

see what he decided to change for me on a follow up based on my results.

Caro in LI, NY

[Guest guest]

>

> Hello,

>

> I just joined this group today. I wanted to know if the drug

> naltrexone can really make a difference to the health of M.E./CFS

> sufferers. However , when I did a " search " for past posts on this

> subject, nothing came up. So if there's anyone here who has been

> helped by this drug, then can you cheer me up please by letting me

> know? Many thanks :-)

>

> Kind regards,

> Lillianna

>

Ive been taking LDN since July 2005. I started at 3 mg. for 3

months and then progressed to 4.5 mg. every night. I take it

because I have CFIDS and FM with alot of neuro and cognitive problems

and I thought it might help. It has increased a sense of well-being

for me. Im not sure if it has had any long term positive effects,

but I continue to take it b/c its inexpensive (generic 50 mg.pills

diluted with 50 cc. of water, shaken and refrig.)and it hasnt caused

me any harm. I started by taking the capsules made up by a

compounding pharmacy but after 6 months decided to try the

solution. Zuzu

[Guest guest]

Yeah -- see www.ldninfo.com and www.low dose naltrexone@....

-- In , " tluttrell2003 " <tluttrell49@...> wrote:

>

> Has anyone heard of a new treatment consisting of low dose

naltrexone? It's being used for

> patients with MS and Parkinson's. My partner's neurologist suggested

it may help boost the

> immune system.

>

[Guest guest]

Hi Mark..I have heard that Naltrexone has had some success in individuals who

that have stimulatory deficiencies, who tend to have high levels of

beta-endorphins

in their CNS.

Evidently if blocks the action of endogenous opioids (those we produce on our

own)

as well as introduced opioids like heroin.

The action is blocked at the site of reception, and the body compensates for

this

blockage by raising the production level of endorphins that benefit the

persons

immune profile.

It is showing benefit in those persons who " self-stimulate " often, but it is

contraindicated in those with liver or kidney damage, so I would imagine

someone with hepatitis would have to be closely monitored should it be

prescribed for them.

************************************** Get a sneak peek of the all-new AOL at

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[Guest guest]

For me, useless

R

Low Dose Naltrexone

> Has anyone tried low dose naltrexone for CFS? It is being used for

> fibromyalgia, multiple sclerosis and other autoimmune diseases.

>

> http://www.low dose naltrexone.org/

>

>

>

>

[Guest guest]

I tried it around 1992. It didn't do a thing for me, unfortunately.

Liz

-- In , " Windsor "

<rwindsor@...> wrote:

>

> For me, useless

> R

> Low Dose Naltrexone

>

>

> > Has anyone tried low dose naltrexone for CFS? It is being used

for

> > fibromyalgia, multiple sclerosis and other autoimmune diseases.

> >

> > http://www.low dose naltrexone.org/

> >

> >

> >

[Guest guest]

Thanks, . I saw a new doctor today who is suggesting 3mg of naltrexone.

I read where it can take up to 3 months for it to work, and it is important that

it be taken at night, between 9pm and 3am, because it is supposed to cause an

increase in beta-endorphins, and it has to be taken at that hour to do so.

Did you take it at night for at least three months? If you don't want to take

the time to answer, I understand. If you do answer, though, it would be helpful

to me.

Low Dose Naltrexone

> Has anyone tried low dose naltrexone for CFS? It is being used for

> fibromyalgia, multiple sclerosis and other autoimmune diseases.

>

> http://www.low dose naltrexone.org/

>

>

>

>

[Guest guest]

Dear

So far back now I'm a little hazy on the details but I'm sure I took it at

night before bed but I'm not sure that I went 3 months. I had real problems

getting it formulated at the right strength, pharmacies wouldn't touch it

so I ended up doing it myself, grinding it in a mortar and pestle and

putting it into capsules. Pain in the butt.

R

Low Dose Naltrexone

>

> > Has anyone tried low dose naltrexone for CFS? It is being used for

> > fibromyalgia, multiple sclerosis and other autoimmune diseases.

> >

> > http://www.low dose naltrexone.org/

> >

> >

> >

> >

[Guest guest]

I would suggest that you also join the low dose Naltrexone group via

the link on the site and ask that question there.

mjh

Posted by: " retractap@... " _retractap@... _

(mailto:retractap@...?Subject= Re:Low%20Dose%20Naltrexone)

_arabella1776 _

(arabella1776)

Fri Dec 14, 2007 1:07 pm (PST)

Has anyone tried low dose naltrexone for CFS? It is being used for

fibromyalgia, multiple sclerosis and other autoimmune diseases.

_http://www.lowdosenhttp://wwwhttp_ (http://www.low dose naltrexone.org/)

**************************************See AOL's top rated recipes

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[Guest guest]

Another issue with LDN is the use of a fast release, appropriate, filler.

Skip Lenz at _www.skipspharmacy.com_ (http://www.skipspharmacy.com) has more

experience than any other pharmacist at compounding LDN and is open to

questions and etc. from potential users as well as other pharmacists and docs.

McCandless, MD, recommends at least a six month LDN trial.

Opiates, steroids and immune-supressants are contra-indicated.

mjh

Posted by: " " _retractap@... _

(mailto:retractap@...?Subject= Re:%20Low%20Dose%20Naltrexone)

_arabella1776 _

(arabella1776)

Fri Dec 14, 2007 4:09 pm (PST)

Thanks, . I saw a new doctor today who is suggesting 3mg of

naltrexone. I read where it can take up to 3 months for it to work, and it is

important that it be taken at night, between 9pm and 3am, because it is

supposed to

cause an increase in beta-endorphins, and it has to be taken at that hour to

do so.

Did you take it at night for at least three months? If you don't want to

take the time to answer, I understand. If you do answer, though, it would be

helpful to me.

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[Guest guest]

The LDN do-it-yourself fans that I know dissolve a 50 mg Naltrexone tab in

50 ml of distilled water. They then use a measured syringe to get a more

precise dose.... 1.5 mg, 3.0 mg or 4.5 mg LDN.

mjh

Posted by: " Windsor " _rwindsor@... _

(mailto:rwindsor@...?Subject= Re:%20Low%20Dose%20Naltrexone)

_rwindsorau _

(rwindsorau)

Fri Dec 14, 2007 4:37 pm (PST)

Dear

So far back now I'm a little hazy on the details but I'm sure I took it at

night before bed but I'm not sure that I went 3 months. I had real problems

getting it formulated at the right strength, pharmacies wouldn't touch it

so I ended up doing it myself, grinding it in a mortar and pestle and

putting it into capsules. Pain in the butt.

R

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[Guest guest]

I considered that but the rate of degradation in aqueous solution suggested

in the reference materials I had at hand seemed to rule that solution out

(pardon the pun).

T

Re: Low Dose Naltrexone

>

>

> The LDN do-it-yourself fans that I know dissolve a 50 mg Naltrexone tab

> in

> 50 ml of distilled water. They then use a measured syringe to get a more

> precise dose.... 1.5 mg, 3.0 mg or 4.5 mg LDN.

> mjh

> Posted by: " Windsor " _rwindsor@... _

> (mailto:rwindsor@...?Subject= Re:%20Low%20Dose%20Naltrexone)

> _rwindsorau _

> (rwindsorau)

> Fri Dec 14, 2007 4:37 pm (PST)

> Dear

> So far back now I'm a little hazy on the details but I'm sure I took it

> at

> night before bed but I'm not sure that I went 3 months. I had real

> problems

> getting it formulated at the right strength, pharmacies wouldn't touch it

> so I ended up doing it myself, grinding it in a mortar and pestle and

> putting it into capsules. Pain in the butt.

> R

>

>

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

>

[Guest guest]

Thanks for the suggestion, mjh. I asked here because I have been a member for a

long time and I respect the opinions of the people here. I don't want to join a

group formed for the purpose of promoting naltrexone.

Re:Low Dose Naltrexone

I would suggest that you also join the low dose Naltrexone group via

the link on the site and ask that question there.

mjh

Posted by: " retractap@... " _retractap@... _

(mailto:retractap@...?Subject= Re:Low%20Dose%20Naltrexone)

_arabella1776 _

(arabella1776)

Fri Dec 14, 2007 1:07 pm (PST)

Has anyone tried low dose naltrexone for CFS? It is being used for

fibromyalgia, multiple sclerosis and other autoimmune diseases.

_http://www.lowdosenhttp://wwwhttp_ (http://www.low dose naltrexone.org/)

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

LDN is working for many as an aqueous solution. A compounding pharmacy can

also provide that form of LDN to avoid fillers used to make caps that can

cause some folks some problems. Contact Dr Skip Lenz at _www.skipspharmacy.com_

(http://www.skipspharmacy.com/) and talk to him about the aqueous form of

LDN.

Hope this helps,

mjh

In a message dated 12/16/2007 6:43:11 A.M. Eastern Standard Time,

writes:

Posted by: " Windsor " _rwindsor@... _

(mailto:rwindsor@...?Subject= Re:%20Low%20Dose%20Naltrexone)

_rwindsorau _

(rwindsorau)

Sat Dec 15, 2007 1:47 pm (PST)

I considered that but the rate of degradation in aqueous solution suggested

in the reference materials I had at hand seemed to rule that solution out

(pardon the pun).

T

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[Guest guest]

What dose of LDN where you on? For how long? Did you have capsules with a

fast release filler? Many docs suggest at least a six month's trial on LDN.

mjh

In a message dated 12/16/2007 6:43:11 A.M. Eastern Standard Time,

writes:

Posted by: " Liz Willow " _zeewillow@... _

(mailto:zeewillow@...?Subject= Re:%20Low%20Dose%20Naltrexone) _zeewillow _

(zeewillow)

Sat Dec 15, 2007 11:20 pm (PST)

I tried it around 1992. It didn't do a thing for me, unfortunately.

Liz

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[Guest guest]

VERY nice information!

I will add that in the last 5 yrs use of this drug with alcohol

withdrawal has made its way in the US as well.

Jeanetta Mastron

>

> Hi Everyone,

>

> I just stopped in to share some information that I thought this

group might find of interest.

>

> Naltrexone is a medication approved in 1984 by the U.S. Food and

Drug Administration for treating heroin and opium addiction. In very

low doses, it is proving to be amazingly effective in treating

HIV/AIDS, certain types of cancer, some neurodegenerative diseases,

and a host of autoimmune disorders--with minimal side effects and at a

price anyone can afford

>

> For more information about Low Dose Naltrexone, visit

>

> http://tinyurl.com/2boot2

>

> With best wishes,

>

> Dudley Delany, R.N., M.A., D.C.

>

> dudley_delany

>

[Guest guest]

In a message dated 1/14/08 9:00:25 PM Eastern Standard Time,

melissabuhmeyer@... writes:

> Is there anybody here that has any experience with Low Dose Naltrexone

> (LDN) ? If so can you tell me what your experience was. Were there any side

> effects?

>

The only side effect that people seem to experience is vivid dreams, like in

childhood. I did gain a lot of weight but I can't say for sure that it was

the LDN. I was also under a lot of stress due to my dog's cancer.

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