Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 In a message dated 1/14/08 9:40:17 PM Eastern Standard Time, deealejo@... writes: > Mostly the first week or two restless sleep. > I still have restless sleep and have to take an herbal sleep suppliment. ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 " Fitzpatrick " wrote: >Is there anybody here that has any experience with Low Dose Naltrexone (LDN) ? If so can you tell me what your experience was. Were there any side effects? > I've only been taking it for about a week-and-a-half and the only side effects are a little more restless during the night. From what I understand, that levels out after a couple of weeks, so I should be almost there! xxoo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 , There are very little if any side effects from LDN. Mostly the first week or two restless sleep. Side effects: LDN has virtually no side effects. Occasionally, during the first week's use of LDN, patients may complain of some difficulty sleeping. This rarely persists after the first week. You can read about LDN here: http://www.low dose naltrexone.org/#Are_there_any_side_effects I have been on it for almost 1 year for stage 4 cancer and my husband takes it also as a " preventative " . If you need any further information or assistance in finding a prescribing doctor, just let me know. Dee http://www.ldn4cancer.com ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Dear Dee, I was asking for my little girl. She was 13 when she was diagnosed with glioblastoma on Dec7/06. I've spoken to Dr. Ian Zagon (he did research on LDN) and he recommended a dosage of 3mg. I spoke to 's Dr about it because I don't see how it could hurt her but the Dr was less than enthusiastic. We live in Canada. If you know of any Dr's that would be able to prescribe this for us could you please provide the information to me. Thank you so much to everybody that responded. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hello , I sent you a private email about 30 minutes ago with the Canada's doctors information... Let me know if you got it or need further information. Yes it is to be expected your doctor is less that enthusiatic... mine was also and dropped me as no further treatment he could offer. I searched for a LDN doctor and found a nice GP who prescribes for me. He is very supportive. When you have life threatening cancer you have to take your health into your own hands sometimes and fight back without the oncologists... as they can only do so much as their hands are tied to the establishment unfortunately. Let me know if I can be of any further assistance, Dee --- Fitzpatrick wrote: > Dear Dee, > I was asking for my little girl. She was 13 when > she was diagnosed with glioblastoma on Dec7/06. > I've spoken to Dr. Ian Zagon (he did research on > LDN) and he recommended a dosage of 3mg. I spoke to > 's Dr about it because I don't see how it could > hurt her but the Dr was less than enthusiastic. We > live in Canada. If you know of any Dr's that would > be able to prescribe this for us could you please > provide the information to me. Thank you so much to > everybody that responded. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 In a message dated 1/15/08 12:33:16 PM Eastern Standard Time, jinglejan2001@... writes: > My husband, (chronic lymphocytic leukemia), and I take LDN at night Has it been shown to help your leukemia? ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Dear , My husband, (chronic lymphocytic leukemia), and I take LDN at night - 4.5mg, and I take 3mg. Neither of us have experienced any side effects, including sleep issues. To my knowledge, at the low dose of 4.5mg or less, there are no known serious side effects. Warm wishes, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hi Dee, I just got home now and I'm looking through all of the information. I'm going to start making phone calls tomorrow. I can't thank you enough.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 In a message dated 1/15/08 1:24:41 AM Eastern Standard Time, deealejo@... writes: > When you have life threatening cancer you have to take > your health into your own hands I have taken my life into my own hands and most doctors want nothing to do with people who do this. ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 This sounds like such good stuff. My husband was diagnosed with stage iv lung cancer and we are needing some hope right now. I printed out a lot of this info about ldn from the sight and am going to bring it to his oncologist this thurs. Just wondering, where people here on this list are getting their LDN? Thanks, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 > Has it been shown to help your leukemia? ***************************************** It's much too early for me to make any definative judgement regarding , my husband who has chronic lymphocytic leukemia. started taking LDN 4.5mg about mid October 2007. He's gone through some odd changes, all of which have resulted in my *getting my husband back*. The first change was a marked decrease in the size of his visable lymph nodes. As a result, the expressed lymphocytes raised his blood lymphocyte count for a while, and he felt terrible. Now his WBC seems to be on the down-swing, but a consistant decline will tell the story. Shucks, the lymphocyte count just not rising would be a blessing. I will say this. 's color has come back; he no longer experiences the over-whelming fatigue that he had; is no longer dehydrated and does not require I.V. fluids; he is strong, and his humor has returned. He will be having blood work on January 24 and is scheduled for a follow-up bone marrow biopsy in 6 months, so we will see. It's all in a consistant trend. I'll trust nothing else. So to be cautious, I will not say that the LDN has stopped his CLL progression in this short period of time or, for that matter, started to reverse it, but I will say that how he feels has been a remarkable turn-around. Warm wishes, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 dee writes: > You can talk to those with Cll at: > LDN_4_cancer/ > I don't want to go back to the doctor that's been perscribing LDN for me. How can I find one in my area or via phone consult to write a script? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Yes and with good success. You can talk to those with Cll at: LDN_4_cancer/ Dee --- Carol Ford <carolford@...> wrote: > Has anyone had any experience using Low Dose > Naltrexone for Chronic > Lymphatic Leukemia? I would appreciate any help > possible. > Thankyou, Carol > > > > ________________________________________________________________________________\ ____ Special deal for users & friends - No Cost. Get a month of Blockbuster Total Access now http://tc.deals./tc/blockbuster/text3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Hi Carol, You can find an LDN-related CLL testimonial at http://tinyurl.com/2p57xv Best regards, Dudley Delany dudley_delany [ ] Low Dose Naltrexone Has anyone had any experience using Low Dose Naltrexone for Chronic Lymphatic Leukemia? I would appreciate any help possible. Thankyou, Carol ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 winiecki@... writes: > - I didn't know you were taking LDN. Have you seen any > benefits yet? > ..my dog Flurry is on it. I also need a vet to perscribe for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 - I didn't know you were taking LDN. Have you seen any benefits yet? On Mar 30, 2008, at 8:50 AM, szukipoo@... wrote: > I don't want to go back to the doctor that's been perscribing LDN for > me. > How can I find one in my area or via phone consult to write a script? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 Check out www.low dose naltrexone.org. 50mg is used to treat addictions, but 4.5mg is being used as an immune booster in a wide variety of diseases. It increases blood levels of beta endorphins and enkephalins, increasing well being and preventing disease relapse. (Purportedly) ************** Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 check out the low dose naltrexone group. there are a few with RA doing it there. one woman is off all other meds and doing well. another did great the 1st 2 mos and is now flaring a bit - she is thinking herx so may be adding ap to her regimen. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 There is a study currently enrolling patients in a Low Dose Naltrexon Study for Fibromyalgia patients at Stanford University. I am thinkingabout applying to participate. Cheryl Ferguson --- Sauve <moniquesauve@...> wrote: > check out the low dose naltrexone group. there > are a few with RA > doing it there. one woman is off all other meds and > doing well. another > did great the 1st 2 mos and is now flaring a bit - > she is thinking herx > so may be adding ap to her regimen. > > monique > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 I thought Naltrexone was used for treating alcohol addiction?? How is it being applied for RA? rheumatic Re:low dose naltrexone check out the low dose naltrexone group. there are a few with RA doing it there. one woman is off all other meds and doing well. another did great the 1st 2 mos and is now flaring a bit - she is thinking herx so may be adding ap to her regimen. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2008 Report Share Posted May 8, 2008 Here is a link to a website for this treatment. www.low dose naltrexone.org I know of several AP doctors who have recommended this treatment along with AP to their patients. There is a thread on the Road Back Foundation Bulliten Board about LDN. Several people have tried it, one person was asking because their AP doctor recommended it. The results of the patients who posted seem inconclusive. Cheryl --- DEBBIE GIBSON <Debbullwinkle@...> wrote: > I thought Naltrexone was used for treating alcohol > addiction?? How is it being applied for RA? > rheumatic Re:low dose naltrexone > > > check out the low dose naltrexone group. > there are a few with RA > doing it there. one woman is off all other meds > and doing well. another > did great the 1st 2 mos and is now flaring a bit - > she is thinking herx > so may be adding ap to her regimen. > > monique > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2008 Report Share Posted May 9, 2008 check it out http://www.low dose naltrexone.org/ldn_and_ai.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 I'm so glad to hear this is helping you Dee. Yaayyy!! How many mg do you take every day? I have to convince my doc to prescribe this for me. ~Amber -- [ ] Low dose Naltrexone For terminal/ late stage cancer with no conventional treatment available I have been on Low dose Naltrexone for 20 months and it has kept me alive. ( was told 4-9 months prognosis) LDN website http://www.ldninfo.org For those who are interested in learning more about LDN, the 4th annual LDN conference will be held in Los Angeles October 11, at USC Medical Campus. Details are here: http://www.ldninfo.org/conf2008.htm This information may be useful for those like me who have failed all conventional means and want a safe, low cost, non toxic and most of all " life saving " treatment. Dee http://www.ldn4cancer.com ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Reading the LDN website is beneficial. Dosage for cancer is 4.5 mg. Most doctors don't know about the " low dose "  version of naltrexone and need to be educated. If you have trouble with your doctor, we have material and doctor lists which can help you. I have now 2 doctors which are willing to prescribe LDN for me but went through a series of emails with doctors who didn't see the benefit.  Education is the key. http://www.low dose naltrexone.org/ Thankful I kept up the fight and found doctors who are eager to keep me alive. Hope to see many at the LDN conference in October. Dee http://www.ldn4cancer.com I'm so glad to hear this is helping you Dee. Yaayyy!! How many mg do you take every day? I have to convince my doc to prescribe this for me. ~Amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Dee, Can you email me privately. You can just order this from the pharmacy in NYC then? Everyone has been so helpful. ...thank you Quote Link to comment Share on other sites More sharing options...
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