Re: Re: Pandas Soup: The LeRoy 12/Good General Sum...

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I have known it cause hyper when starting out and sleeplessness (is that a word??) but goes over time, maybe start on tiny dose? 100iu's? I think Biocare do drops with low dosage

Mx

Thanks Eileen,I am planning another trial soon.I appreciate your posts as they are making some things a lot clearer to me. Thanks again.

Hi, , my ds is of the type that is "never ill" - put in D3, he actually showed the outward signs of a virus which we knew from behaviour, things weren't right with him, then he picked up very nicely. Its so difficult to tell with our kids I know. The other thing is, we all had a virus here, and we took D3 high dose as well after a struggle with it and it hit it big time. Worked well.Eileen x> > >> > > Happy Sunday,> > >> > > Good friend of mine is Anti-Vax campaigner Marcella Piper-Terry, who > > also works with children biomedically. She has posted an excellent > > article today which incorporates a summary of treatment options for > > Pandas.> > >> > > Given the recent thread on Treatment Options and Titres, whether > > tests work, I am cutting and pasting the treatment options here. if > > you want to read the whole sorry story of the LeRoy 12, here is the link.> > >> > > > > http://vaxtruth.org/2012/01/the-leroy-twelve-and-the-lancet-twelve-pandas-and-autism-common-factors/> > >> > > Treatment Options: Marcella Piper-Terry> > >> > > I have known about PANDAS since 2001-2002. I have been treating my > > daughter's PANDAS for the last several years, using supplements and > > diet to rebalance her immune system and increase her resistance to > > infection. We have had great success with this method, as have many of > > the patients I worked with between 2003-2010 when I was in private > > practice.> > >> > > I have used (with my daughter) and have recommended antibiotic > > treatment (for other children) for the acute bacterial infections. I > > have worked with physicians, helping to educate them about PANDAS and > > making recommendations for treatment, especially with IM bicillin. IM > > bicillin is an injected form of antibiotic that treats strep and works > > very well for a significant number of children. Part of the reason IM > > bicillin is preferable (in my opinion and experience) is because it is > > not as likely to damage the balance of bacteria in the > > gastrointestinal tract, where the good bacteria is essential in > > keeping pathogenic yeast overgrowth from taking over.> > >> > > In the children I have seen, many of whom have not only PANDAS, but > > who have also been diagnosed with Autism, the overgrowth of yeast in > > the GI tract is very near 100%. With the patients I have been > > priveleged to work with, we have tried to avoid the use of oral > > antibiotics whenever possible because once yeast takes hold it is much > > more difficult to get rid of than the bacterial infections that cause > > PANDAS symptoms.> > >> > > In addition to IM bicillin there are also many natural agents that > > can be used to strengthen the body's resistance to bacterial > > infections. Among these, Olive Leaf Extract, Grapefruit Seed Extract, > > Cranberry Extract, High Potency Proteolytic Enzymes and Soveriegn > > Silver are some of the most effective.> > >> > > Additional prescription medications that have shown promise with > > PANDAS include oral or IM baygam, Low-Dose Naltrexone, and IVIG > > (Intravenous Immuno Globulin). IVIG has been highly effective at > > treating PANDAS, with one study showing complete cessation of symptoms > > in 86% of patients. However, IVIG is also very expensive and it is > > frequently not covered by insurance. The reason IVIG and bagam are > > effective is not because they treat strep (or other bacterial > > infections), it's because they repair the damaged immune system that > > sets kids up for the infections in the first place.> > >> > > There are natural ways to balance the immune system and these can be > > used without having to have a prescription. This is what I have done > > with my daughter and with other kids with whom I have worked. Thing > > that work very well include Transfer Factor, colostrum, and > > glycoproteins including beta glucans and arabinogalactin.> > >> > > Vitamin D3 also works wonders to balance the immune system and it > > costs about $10 a bottle. The most important thing about these options > > (IMO) is that unlike long-term antibiotic use (which my daughter and > > many of the other kids I've seen) have had as young children, the > > things I have discussed and believe are certainly viable alternatives, > > do not lead to the depletion of vital enzymes and bacteria in the gut.> > >> > > An important component of treating strep (and other bacterial and > > viral infections) naturally involves changing the diet. Food is a > > wonderful healer -- if it is real food. In particular, > > anti-inflammatory foods and foods with high anti-oxidants are key in > > helping to combat chronic bacterial (or viral) infections. I > > absolutely agree with the use of antibiotics for the acute infection. > > In children who need to have longer-term administration of > > antibiotics, it just makes sense to me to do it in a way that does not > > cause even more problems down the road.> > >> > > This stance has made me unpopular in the last few days, especially > > with many of the parents of children who have been treated by Dr. > > Trifletti. I think this is very unfortunate. This is not about being > > right. It's about ensuring that parents do not have a false sense of > > security, especially with regard to the issue of the risk of severe > > reactions from vaccines.> > >> > > Interested to hear anyone's comments> > > Currently undertaking antibiotic therapy but don't want to continue > > forever - and yeast is under control. Main point - healing the damaged > > immune system is the key.> > >> > > Eileen> > >> >> > > >> > No virus found in this message.> > Checked by AVG - www.avg.com <http://www.avg.com>> > Version: 2012.0.1901 / Virus Database: 2109/4773 - Release Date: 01/28/12> >>

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1901 / Virus Database: 2109/4773 - Release Date: 01/28/12