Re: Hello, I am New Here

[Guest guest]

Lynn,

Good luck and welcome, do what ever you

have to do to get him out of that house NOW!

This is a very sad story.

-Charlotte

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of Lynn V. Sheldon

Sent: Thursday, September 29, 2005

10:34 AM

Autism and Aspergers Treatment

Subject: hello,

I am new here

My name is Lynn and I live in Michigan. I am

happy and relieved to have been accepted on this list. Here is my story as

succinctly as I can explain it:

My second, middle,daughter is disabled. She has severe ADD and

other

serious health issues. When her son was 4 she asked me to accept legal

guardianship and raise him as he was too much for her to handle. (There

is

no dad for him in the picture). By age 6 my grandson Sky was diagnosed

with

AS and ADHD. By the time he was 8 my daughter also moved in with my

husband and me due to her own health issues.

Then in 2002, when Sky was 9, I was diagnosed with stage 3 breast cancer.

I

faced a long series of hospitalizations, surgeries, chemo, radiation, etc.,

etc, and my prognosis was grim. In facing the stark reality of the

situation, my primary goal became about planning for Sky's future. This

child is dearly loved. My family rallied to help. None of them were

in a

position to take him, but they helped in a diligent search for private,

temporary foster placement by contacting churches in our area - as we wanted

to avoid placing him in *the system* for fear of losing him. This

placement

was intended to be a stop-gap measure; an open-ended arrangement until we

knew what course my health would take.

We found a couple in our town in their 40's who had no biologic children of

their own, but had an adopted son; now grown and out of the house. They

had

a lovely, clean home, seemed caring and nice - and they were eager to help

with Sky. After many conversations and an in-depth interview we placed Sky

with them. We maintained regular contact and Sky visited us frequently.

One thing that bothered me a lot was that from Day One the woman complained

to me constantly about Sky's behavioral issues. I tried hard to be a good

listener, to empathize and to coach and counsel and educate her on AS and

ADHD. The chronic complaining should have sent up a red flag for me, but

I

guess I was too sick to see it.

Then about 1 1/2 years ago, while I was still fairly down and out

physically, the foster mom approached me to ask for legal guardianship,

" ..just so we can get Sky off Medicaid and onto military

benefits... " (Her

husband is retired Navy). My first reaction was no way! This really

backed

me up and scared me. She got a bit of a snotty attitude. I still

did not

know if I was going to survive my cancer, and so in desperation I decided

not to protest this and just do whatever she thought was best for the child.

As soon as she got guardianship she began telling me stuff about how her

husband hated his job here and they were thinking of moving to another

state - with Sky! My daughter and I did not need this added stress, but

we

were relieved when they ended up moving only a few towns away.

In conclusion - Sky is now 12 and has been with these people for 3 years.

In the past year we have been allowed less and less time with him. She

kept

telling me he could not come for any given weekend because he was grounded.

He was acting out violently at their home and at school. When we finally

got to get him for a weekend recently, my husband and I sat down for a long

chat with Sky. He was calm and quite open and honest with us, as he

trusts

and loves us. What came out of that child's mouth would curl your hair.

Not knowing what to anticipate, we discreetly taped the conversation.

Sky told us he is frequently bare-bottom spanked, slapped hard across his

face by the foster mom, and on at least one occasion he was grabbed by the

throat until " my head began to feel tingly " , and punched in the ribs

with a

closed fist by the foster dad. On many occasions he was threatened that

the

police would be called and he would lose his home and go to jail. My

husband and I tried to keep poker faces as we listened. The saddest part

of

all was that when he was done, Sky defended his foster parents actions, and

claimed they told him in the Bible it says parents must punish their

children and he believed he deserved this treatment. He added he was a

little scared, though, that they might break one of his bones one day.

It really killed me to send him back home the next day, but I advised Sky to

keep our conversation to himself for now, and promised him I would look into

matters. The very next day I went to the courthouse and petitioned the

court to regain guardianship of my grandson. I am awaiting a call from

family court as to the date set for the hearing.

I joined the Asperger mailing list to gain input, knowledge and

support beyond my own research into AS and ADHD. I want Sky to come home

to his family and receive the best love, patience, treatment, education and

future.

Thanks for listening,

Lynn

[Guest guest]

Thank you one and all for your warm welcome, prayers and words of encouragement. I am fairly confident we have our ducks in a row and will get Sky back. We are awaiting a court date for the guardianship hearing.

As to questions some folks had:

My present state of health -

I am doing really well, thank you. I am in remission and continue to get stronger both physically and mentally.

To Anne - I am in Berrien Springs, MI

About Sky's awareness of things -

Skylar is very smart. We have always been very open and honest with him. He knows he has AS and ADHD, what these dx's mean and how they effect him. We've always taught him to know himself, own his dx's, and not use them as excuses for problems, but to be open to learning how to turn them around and use them to his benefit. This helped his self-esteem a lot by age 9. I now hope that this progress has not been side-railed in the past 3 years.

Sky also knows precisely why he was sent to live with these foster folks. He knows about my breast cancer and he understands that his family was trying to protect him and look out for his future at the time I (Grandma) got sick.

As to the foster parents:

Yes, they did all the things to Sky that I said in my intro letter. What is the weirdest thing of all is that they truly believe in their heart of hearts that they were doing the right thing per their religion. They are very fundamentalist Baptists and take every word of the Bible literally. I am not, repeat not knocking anyone's religious beliefs here, so please don't anybody get all offended.

These particular people took things way too far in physical and emotional punishment. I am not inclined to call the police or have them arrested. I feel that would be innappropriate in this situation. I believe this happened out of sheer frustration with Sky's behavior and they lost control at times. KNOW THAT I AM NOT DEFENDING THEIR BEHAVIOR, BUT EXPLAINING IT AS I UNDERSTAND IT. They are not evil people. They are simply ignorant. Over time I sent her tons of information and web sites. They never bothered to educate themselves about Aspie kids. I simply want Sky to come home ASAP.

I will let y'all know when I receive word of the court date.

Lynn in Michigan

[Guest guest]

Hello Lynne,

Welcome to the group! After reading your story, I am quite concerned about you. How are you doing? Is your cancer gone now?

And yes I do believe that you should report the abuse these foster parents are inflicting on your grandson to the proper authorities, and that he should be taken away from them as soon as possible. It is one thing to be spanked or slapped, which is bad enough, but where he said his step dad punches him in the ribs with his fist, and choked him, that made me sick. These people are sick people, saying God told them it was the way to discipline him, this is downright evil I think, and is emotional and psychological abuse, as well as physical.

It is very scary to think he is being abused this way, and I hope you can do something about it. I do think you were right in holding your composure while he told you, and now you will have to figure out how to document the evidence before you file the charges against them. Maybe pictures of his bruises, etc.? And didn't you say that you had taped your conversation with him? Maybe talk to somebody in law enforcement who specializes in this sort of thing, and ask them how to get evidence to convict these people of child abuse?

I wish you well, and please keep in touch.

Best wishes,

Carolyn in Oregon

hello, I am new here

My name is Lynn and I live in Michigan. I am happy and relieved to have been accepted on this list. Here is my story as succinctly as I can explain it:

My second, middle,daughter is disabled. She has severe ADD and otherserious health issues. When her son was 4 she asked me to accept legalguardianship and raise him as he was too much for her to handle. (There isno dad for him in the picture). By age 6 my grandson Sky was diagnosed withAS and ADHD. By the time he was 8 my daughter also moved in with my husband and me due to her own health issues.Then in 2002, when Sky was 9, I was diagnosed with stage 3 breast cancer. Ifaced a long series of hospitalizations, surgeries, chemo, radiation, etc.,etc, and my prognosis was grim. In facing the stark reality of thesituation, my primary goal became about planning for Sky's future. Thischild is dearly loved. My family rallied to help. None of them were in aposition to take him, but they helped in a diligent search for private,temporary foster placement by contacting churches in our area - as we wantedto avoid placing him in *the system* for fear of losing him. This placementwas intended to be a stop-gap measure; an open-ended arrangement until weknew what course my health would take.We found a couple in our town in their 40's who had no biologic children oftheir own, but had an adopted son; now grown and out of the house. They hada lovely, clean home, seemed caring and nice - and they were eager to helpwith Sky. After many conversations and an in-depth interview we placed Skywith them. We maintained regular contact and Sky visited us frequently.One thing that bothered me a lot was that from Day One the woman complainedto me constantly about Sky's behavioral issues. I tried hard to be a goodlistener, to empathize and to coach and counsel and educate her on AS andADHD. The chronic complaining should have sent up a red flag for me, but Iguess I was too sick to see it.Then about 1 1/2 years ago, while I was still fairly down and outphysically, the foster mom approached me to ask for legal guardianship,"..just so we can get Sky off Medicaid and onto military benefits..." (Herhusband is retired Navy). My first reaction was no way! This really backedme up and scared me. She got a bit of a snotty attitude. I still did notknow if I was going to survive my cancer, and so in desperation I decidednot to protest this and just do whatever she thought was best for the child.As soon as she got guardianship she began telling me stuff about how herhusband hated his job here and they were thinking of moving to anotherstate - with Sky! My daughter and I did not need this added stress, but wewere relieved when they ended up moving only a few towns away.In conclusion - Sky is now 12 and has been with these people for 3 years.In the past year we have been allowed less and less time with him. She kepttelling me he could not come for any given weekend because he was grounded.He was acting out violently at their home and at school. When we finallygot to get him for a weekend recently, my husband and I sat down for a longchat with Sky. He was calm and quite open and honest with us, as he trustsand loves us. What came out of that child's mouth would curl your hair.Not knowing what to anticipate, we discreetly taped the conversation.Sky told us he is frequently bare-bottom spanked, slapped hard across hisface by the foster mom, and on at least one occasion he was grabbed by thethroat until "my head began to feel tingly", and punched in the ribs with aclosed fist by the foster dad. On many occasions he was threatened that thepolice would be called and he would lose his home and go to jail. Myhusband and I tried to keep poker faces as we listened. The saddest part ofall was that when he was done, Sky defended his foster parents actions, andclaimed they told him in the Bible it says parents must punish theirchildren and he believed he deserved this treatment. He added he was alittle scared, though, that they might break one of his bones one day.It really killed me to send him back home the next day, but I advised Sky tokeep our conversation to himself for now, and promised him I would look intomatters. The very next day I went to the courthouse and petitioned thecourt to regain guardianship of my grandson. I am awaiting a call fromfamily court as to the date set for the hearing.I joined the Asperger mailing list to gain input, knowledge andsupport beyond my own research into AS and ADHD. I want Sky to come home to his family and receive the best love, patience, treatment, education andfuture.Thanks for listening,Lynn

[Guest guest]

Welcome to the group! I'm sorry, I don't have any experience with g-tube's or a trache. But, I thought I'd mention trying to get him to accept food - if he is not wanting to accept it due to oral sensitivity . . . where he doesn't want to accept food (due to the texture, etc). I'd try Sara Rosenfeld 's oral motor therapy - www.talktools.net .

Qadoshyah

*Got Down Syndrome?

www.gotdownsyndrome.net

From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of nathanielsmom2001Sent: Monday, June 12, 2006 6:55 AMDown Syndrome Treatment Subject: Hello, I am new here

My name is Sara and my Son iel is gtube fed and trached. We are dealing with the issue of him not wanting to accept food orally and it is VERY frusterating! Looking forward to getting to know you all and all about your kids.. I live in Calgary, Canada and my Hubby is

[Guest guest]

Hi Sara-

How old is iel?

will he let you put anything at all in his mouth? (toothbrush, chewy

toy, etc?)

KathyR

>

> My name is Sara and my Son iel is gtube fed and trached. We are

> dealing with the issue of him not wanting to accept food orally and it

> is VERY frusterating! Looking forward to getting to know you all and

> all about your kids.. I live in Calgary, Canada and my Hubby is

>

[Guest guest]

Hello! My boys are 16 and 5 and they both have AS. My older son has many other

dx as well but it's just been recently that AS was added to the list.

Jen

>

> Good Morning,

> I have a 6 year old grandson who has Asperger's. He started with an IEP last

year in pre-school and is currently mainstreamed in half-day public school

kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the

services of the special-ed team.

> He has improved greatly from the nightmare that was his first year in

pre-school at age 4.

> I am looking forward to networking with parents and grandparents and getting

some practical advice as he grows and matures.

> My first question is: Do any families have multiple children on the autism

spectrum?

> Have a great weekend.

>

[Guest guest]

Wecome!!

We have a 13 yr old with Aspergers, ADHD, OCD mild Tourettes.An 11 yr old with Anxiety and noise issues who lately,,,,,seems to present a lot of the same Asperger traits her brother has.............we've just always "tacked" it up to her being moody, a girl and being so anxious.

A 9 year old with ADHD and processing delays.

A 7 year old (adopted) with sensory issues.

Robin

From: wistfulwinds <wistfulwinds@...>Subject: ( ) Hello, I am new here Date: Sunday, January 17, 2010, 5:30 AM

Good Morning,I have a 6 year old grandson who has Asperger's. He started with an IEP last year in pre-school and is currently mainstreamed in half-day public school kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the services of the special-ed team.He has improved greatly from the nightmare that was his first year in pre-school at age 4.I am looking forward to networking with parents and grandparents and getting some practical advice as he grows and matures.My first question is: Do any families have multiple children on the autism spectrum? Have a great weekend.

[Guest guest]

Hiya,

I have five children and two of them are Aspies. one with dyslexia and adhd. my

youngest son is currently being assessed now for Aspergers. So I soon may have

three children on the spectrum. Life is a little difficult again because i now

have to fight the LEA ... (third time) for an appropriate education..

very weary of it all......

Jessie

> >

> > Good Morning,

> > I have a 6 year old grandson who has Asperger's. He started with an IEP

last year in pre-school and is currently mainstreamed in half-day public school

kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the

services of the special-ed team.

> > He has improved greatly from the nightmare that was his first year in

pre-school at age 4.

> > I am looking forward to networking with parents and grandparents and

getting some practical advice as he grows and matures.

> > My first question is: Do any families have multiple children on the autism

spectrum?

> > Have a great weekend.

> >

>

[Guest guest]

It is great to hear that your grandson is getting all of those services. My son is in a mainstream grade one and gets absolutely nothing. We have an IPP but really nothing else. So YEAH for a school that is getting it right. To answer your question yes there are families that have multiple children on the spectrum.Take care,From: wistfulwinds <wistfulwinds@...>To:

Sent: Sun, January 17, 2010 4:29:53 AMSubject: ( ) Hello, I am new here

Good Morning,

I have a 6 year old grandson who has Asperger's. He started with an IEP last year in pre-school and is currently mainstreamed in half-day public school kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the services of the special-ed team.

He has improved greatly from the nightmare that was his first year in pre-school at age 4.

I am looking forward to networking with parents and grandparents and getting some practical advice as he grows and matures.

My first question is: Do any families have multiple children on the autism spectrum?

Have a great weekend.

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

If your child is in public school and has an IEP or even if he doesn't -- you have many right in terms of getting the supports necessary for your child to get along in school...My son is getting PT, OT & Social Skills counselling -- all 2x week and we're about to add speech because he was just diagnosed with a APD.Another list-serve on was created to help parents advocate for their kids and can be joined by sending an email to : ParentEmpowermentGroup-subscribe This is the description of the group : Generally speaking, parents know their children better than anyone

else. They are therefore, able to provide important input into their

childrens' educational needs. The Federal Government acknowledged this

when they passed IDEIA 2004. Parents are part of the IEP team. Parents,

for the most part, are not lawyers, but they are well informed about

special education laws. The purpose of this group is to provide a forum

in which parents can support each other, share ideas that have been

successful or failures, and help our children access the appropriate

education that they are entitled to (regardless of what local schools

may say).

In addition, we will support each other in learning how to speak to

school personnel in order to engage them in wanting to help our

children rather than alienating them and putting them on the defensive.

Together, we can and will raise generations of children who will be

able to attain the goals of special education: higher education,

employment, and independent living.

From: Murrel <mommio55@...>Subject: Re: ( ) Hello, I am new here Date: Tuesday, January 19, 2010, 9:02 PM

It is great to hear that your grandson is getting all of those services. My son is in a mainstream grade one and gets absolutely nothing. We have an IPP but really nothing else. So YEAH for a school that is getting it right. To answer your question yes there are families that have multiple children on the spectrum.Take care,From: wistfulwinds <wistfulwinds>To:

Sent: Sun, January 17, 2010 4:29:53 AMSubject: ( ) Hello, I am new here

Good Morning,

I have a 6 year old grandson who has Asperger's. He started with an IEP last year in pre-school and is currently mainstreamed in half-day public school kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the services of the special-ed team.

He has improved greatly from the nightmare that was his first year in pre-school at age 4.

I am looking forward to networking with parents and grandparents and getting some practical advice as he grows and matures.

My first question is: Do any families have multiple children on the autism spectrum?

Have a great weekend.

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

[Guest guest]

I was impressed by the services you are receiving for your Aspergers child. My

son is diagnosed Aspergers and tourettes and ADHD and PANDAS but the school has

not wanted to give social skills or speech because they don't see the behaviors

that we are saying we are concerned about which is social skills and

communication problems. He does have an IEP for tutoring and OT How do I get

more?

>

> From: Murrel <mommio55@...>

> Subject: Re: ( ) Hello, I am new here

>

> Date: Tuesday, January 19, 2010, 9:02 PM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> It is great to hear that your grandson is getting all of those services.

My son is in a mainstream grade one and gets absolutely nothing. We have an IPP

but really nothing else. So YEAH for a school that is getting it right. To

answer your question yes there are families that have multiple children on the

spectrum.

>

> Take care,

>

>

>

> From: wistfulwinds <wistfulwinds>

> To:

>

> Sent: Sun, January 17, 2010 4:29:53 AM

> Subject: ( ) Hello, I am new here

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

> Good Morning,

>

> I have a 6 year old grandson who has Asperger's. He started with an IEP last

year in pre-school and is currently mainstreamed in half-day public school

kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the

services of the special-ed team.

>

> He has improved greatly from the nightmare that was his first year in

pre-school at age 4.

>

> I am looking forward to networking with parents and grandparents and getting

some practical advice as he grows and matures.

>

> My first question is: Do any families have multiple children on the autism

spectrum?

>

> Have a great weekend.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Be smarter than spam. See how smart SpamGuard is at giving junk email

the boot with the All-new

>

[Guest guest]

You can request evaluations from the school for pragmatics... The results should tell you that he needs the services...Sign up for that group in my earlier post and Sharon can help you with specifics. On Jan 20, 2010, at 9:22 PM, "Michele" <m.snyder78@...> wrote:

I was impressed by the services you are receiving for your Aspergers child. My son is diagnosed Aspergers and tourettes and ADHD and PANDAS but the school has not wanted to give social skills or speech because they don't see the behaviors that we are saying we are concerned about which is social skills and communication problems. He does have an IEP for tutoring and OT How do I get more?

>

> From: Murrel <mommio55@...>

> Subject: Re: ( ) Hello, I am new here

>

> Date: Tuesday, January 19, 2010, 9:02 PM

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

> It is great to hear that your grandson is getting all of those services. My son is in a mainstream grade one and gets absolutely nothing. We have an IPP but really nothing else. So YEAH for a school that is getting it right. To answer your question yes there are families that have multiple children on the spectrum.

>

> Take care,

>

>

>

> From: wistfulwinds <wistfulwinds>

> To:

>

> Sent: Sun, January 17, 2010 4:29:53 AM

> Subject: ( ) Hello, I am new here

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

> Good Morning,

>

> I have a 6 year old grandson who has Asperger's. He started with an IEP last year in pre-school and is currently mainstreamed in half-day public school kindergarten. Ethan is receiving OT, PT, speech and articulation therapy and the services of the special-ed team.

>

> He has improved greatly from the nightmare that was his first year in pre-school at age 4.

>

> I am looking forward to networking with parents and grandparents and getting some practical advice as he grows and matures.

>

> My first question is: Do any families have multiple children on the autism spectrum?

>

> Have a great weekend.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new

>

[Guest guest]

We have two ds's with HFA.

Roxanna

" The only thing necessary for the triumph of evil is for good men to do

nothing. " E. Burke

( ) Hello, I am new here

Good Morning,

I have a 6 year old grandson who has Asperger's. He started with an

IEP last year in pre-school and is currently mainstreamed in half-day

public school kindergarten. Ethan is receiving OT, PT, speech and

articulation therapy and the services of the special-ed team.

He has improved greatly from the nightmare that was his first year in

pre-school at age 4.

I am looking forward to networking with parents and grandparents and

getting some practical advice as he grows and matures.

My first question is: Do any families have multiple children on the

autism spectrum?

Have a great weekend.

[Guest guest]

sounds like your medical records well speak for themself, but I would go to one

of the doctors that specialize in these exposures and they well testify in

court. if thats what you plan on doing. I understand the small town liveing

querks, but you can work around that. it's doughtful that your doctor would

quailify as a expert witness anyway.

so he can give if opinion, that does mean he's right or honest.

yep,small town liveing, common interests stick together like glue.

you just have to find ways to work around that.

ps, I wouldn't get a lawyer from there either.

ps, if you deside to sue, and people that you dont know kindof start comeing

around out of nowwhere, weither pretending to care, or giveing advice on where

you can find a good lawyer, or even trying to befriend you by saying they also

got sick from a moldy environment,

be very careful, you may be better off in just pretty much sticking with

yourself and only yourself. insurance,family ties and

common interests in seeing your case fail can bring out the worst in people, or

bring the worst kind of people into yourlife.

>

>

>

>

> Hi everyone.I have been working for 3 years for a company that rents from a

person who ownes the building. The carpets have never been cleaned in 20+ years.

There were 20 ceiling tiles that had water marks on them. Since working for this

company, I have had 2 sinus surgeries and have been ill since last January. My

company finally did an air quality test and it took me a month and a threat from

Osha to give me the results. There are 6 types of molds up in the attic/rooms

and I am allergic to 5 of them. The company pulled us out of that building. My

doctor told me 6 times that it is the building and to get out of there. Now I

continue to take 400 mg. of Diflucan with an iv drip every day. My doctor told

me up front that he won't testify if I choose to sue the owner of the building.

He told me that if I do sue, he will tell them that he isn't sure as there are

molds outside too. I can't believe he won't help me. He told me that a doctor

owns the place where I used to work at, we live in a small town and he doesn't

want to turn on another doctor here. Is this right? What are my recourses? I

have missed so much time from work going to daily iv treatments, the cost of

medical expenses, not to mention how ill I've been since January (this round). I

have severely ill since working there 3 years ago. We didn't know it was the

building until now. Any advice?Cheri

>

> I was diagnosed with mycoplasma infection, chlamydia pneumonia, chronic

sinusitis/polyps, bronchitis. CFS & FMS.

[Guest guest]

maybe you should have a talk to your lawyer about takeing your case on a

contingentcy fee. we can supply names of experts for you to see. theres a few

very well known ones.

I went through the same with my lawyer, I think he understands now

that it's not that easy to find a doctor that well want to be your primary

doctor. and theres very little the many doctors well do for you, be prepared to

see the nasty side of some of them. maybe it's changed some sence I first went

through this but I actually had doctors get quite rude, say it's impossable that

mold hurts you,

basicly say " you are nuts " . I think things have changed some but in a small town

maybe not much or any.

good luck with that, just keep looking. meanwhile you should try to get yourself

to one of these experts to get some proper diagnoses and go from there. that

well also give you more leverage,with reports in hand to get a primary doctor,

and one that well work with the expert if needed.

your lawyer needs to realize that this is the best possable first step. this is

just my advice based on my own experiences through this.

--- In , Sharon Van Treek -Le Coeur <svtlc@...>

wrote:

>

>   I nust thank you for for your reply, my attorney, whom  I've consulted,

> albeit, very concerned, has had my self with a laundry list of primary

homework

> assignments, to begain with is to see a priemary care doc and that primary

care

> doctor never heard of a mold specialist....said that she could only recommend

an

> allergist when I find one who takes my insurance..I just feel like I am in a

> rock and a hard place.

[Guest guest]

don't know where you live but not many Drs. are able to prove it is from

the building. I went to an allergist who did nothing but make me worse.

Taking weekly injections actually made me worse and when I finally had proof it

was from mold in the building the allergist just looked at me like I was

crazy. He knew absolutely nothing about the symptoms I was having and said

that mold could not cause those problems!!!

Let us know where you live and many of us can give you some names of Drs.

that can help. You may have to travel but seeing the right physician is your

only answer!

>>

Hi everyone.I have been working for 3 years for a company that rents from

a person who ownes the building. The carpets have never been cleaned in 20+

years. There were 20 ceiling tiles that had water marks on them. Since

working for this company, I have had 2 sinus surgeries and have been ill since

last January. My company finally did an air quality test and it took me a

month and a threat from Osha to give me the results. There are 6 types of

molds up in the attic/rooms and I am allergic to 5 of them. The company

pulled us out of that building. My doctor told me 6 times that it is the

building and to get out of there. Now I continue to take 400 mg. of Diflucan

with

an iv drip every day. My doctor told me up front that he won't testify if

I choose to sue the owner of the building. He told me that if I do sue, he

will tell them that he isn't sure as there are molds outside too. I can't

believe he won't help me. He told me that a doctor owns the place where I

used to work at, w e live in a small town and he doesn't want to turn on

another doctor here. Is this right? What are my recourses? I have missed so

much time from work going to daily iv treatments, the cost of medical

expenses, not to mention how ill I've been since January (this round). I have

everely ill since working there 3 years ago. We didn't know it was the building

until now. Any advice?Cheri

[Guest guest]

Hi,

My doctor is the best infectious diseases doctor around here. He told me that I

was sick due to the building I worked in, due to the air test that was done.

There were 6 types of molds discovered, one being toxic. Out of the six, 5 of

those molds I am allergic to (had allergy tests done after my 2nd sinus

surgery). The doctor just doesn't want to go to court and testify against

another local doctor. The owner of my company did pull us all out of that

building. We are working at another location down the street. I can't believe my

own doctor (infectious diseases) won't stand up for me after all I've been

through in the past 3 years. I was diagnosed with Mycoplasma infection,

chlamydia pneumoniae, Streptococcus pneumoniae. I hurt all over and am so tired.

All this with trying to hold down a full time job. Not easy.

They had me on Cubicin antibiotic for one week along with Diflucan 200 mg. The

color of the sputum has been green since January. At the end of the first week

of these two drugs, the color went to perfectly clear. They pulled me off the

Cubicin thinking it is fungal and put me on Diflucan 400 mg. on a daily iv drip.

Two days later the color is back to green again. I've been on all sorts of

antibiotics before this. I'm so tired of not getting better.

Signed: Discouraged

Cheri

>

>

> don't know where you live but not many Drs. are able to prove it is from

> the building. I went to an allergist who did nothing but make me worse.

> Taking weekly injections actually made me worse and when I finally had proof

it

> was from mold in the building the allergist just looked at me like I was

> crazy. He knew absolutely nothing about the symptoms I was having and said

> that mold could not cause those problems!!!

> Let us know where you live and many of us can give you some names of Drs.

> that can help. You may have to travel but seeing the right physician is your

> only answer!

> >>

>