Re: looking for famous people with MCS

[Guest guest]

I wish I knew of one but I can't think of any! There are probably many that

don't even know they have it. I'll keep thinking and let you know if I

come up with anyone. I remember that Ed McMahon and a few others that don't

come to mind right now where exposed to mold. Having a celebrity to speak in

support of mold, Lyme and MCS would be extremely helpful to the cause.

People listen when it's someone famous but not to us poor peasants!!

I remember Bonnie Hunt talked about getting sick from the sofa she had

delivered. Her daughter and dog were also sick. I think she said it was from

the chemicals that were sprayed on it.

Lots of luck and keep us posted.

Hi Folks, I'm putting together a benefit with my community to a) raise $$

money to see see Dr. Rae raise awareness of MCS/mold injury/Lyme

Disease (EI's...added Lyme because of broader appeal and because for some

reason

there is a high prevalance of these existing concurrently.

I found a ton of celebs with Lyme, but could not find one name of a

celebrity with MCS-a diagnosed case. I plan to contact these celebrities and

ask if they would come speak or help in some way, BUT I NEED A FAMOUS PERSON

WITH MCS ASAP!!!!!!!!!!!!!!!!

Anybody know?? Bonnie Hunt was kinda mentioned in an article but it

wasn't clear she had it...

[Guest guest]

Whoopi Goldberg.   it has to fragrance free or she won't show

From: Michal <michalvictoria@...>

Subject: [] looking for famous people with MCS

Date: Monday, July 26, 2010, 1:50 PM

 

Hi Folks,  I'm putting together a benefit with my community to a) raise

$$ money to see see Dr. Rae raise awareness of MCS/mold injury/Lyme Disease

(EI's...added Lyme because of broader appeal and because for some reason there

is a high prevalance of these existing concurrently.

I found a ton of celebs with Lyme, but could  not find one name of a celebrity

with MCS-a diagnosed case.  I plan to contact these celebrities and ask if they

would come speak or help in some way, BUT I NEED A FAMOUS PERSON WITH MCS

ASAP!!!!!!!!!!!!!!!!

 

Anybody know??  Bonnie Hunt was kinda mentioned in an article but it wasn't

clear she had it...

 

[Guest guest]

someone mentioned to me that sandra bullock had mcs, but i really don't

know.... sue

>Hi Folks,  I'm putting together a benefit with my community to a) raise $

>$ money to see see Dr. Rae raise awareness of MCS/mold injury/Lyme

>Disease (EI's...added Lyme because of broader appeal and because for

>some reason there is a high prevalance of these existing concurrently.

>I found a ton of celebs with Lyme, but could  not find one name of a

>celebrity with MCS-a diagnosed case.  I plan to contact these

>celebrities and ask if they would come speak or help in some way, BUT I

>NEED A FAMOUS PERSON WITH MCS ASAP!!!!!!!!!!!!!!!!

> 

>Anybody know??  Bonnie Hunt was kinda mentioned in an article but it

>wasn't clear she had it...

> 

>

>

>

>

>

[Guest guest]

OMG!!!  Do you know if she was diagnosed?  Thank you, I'm going to see if I

can find out more.  Wouldn't that be something, if Whoopi does indeed have it

and she agrees to advocate?

From: a Townsend <kmtown2003@...>

Subject: Re: [] looking for famous people with MCS

Date: Monday, July 26, 2010, 6:27 PM

 

Whoopi Goldberg.   it has to fragrance free or she won't show

[Guest guest]

Ah, unfotunately she just " has a perfume allergy " .  She still smokes.  Could

be the beginning of MCS, but there is no diagnosis or info from her that she

might have other sensitivities.

From: a Townsend <kmtown2003@...>

Subject: Re: [] looking for famous people with MCS

Date: Monday, July 26, 2010, 6:27 PM

 

Whoopi Goldberg.   it has to fragrance free or she won't show

[Guest guest]

I remember reading a long time ago that Mayim Bialik, the actress that played

Blossom, had a child with MCS. She started an all natural baby line because of

it. Also had a website and probably is on Facebook too. I would google that. I

bet she'd be very amenable to a benefit.

--- In , Michal <michalvictoria@...>

wrote:

>

> Hi Folks,  I'm putting together a benefit with my community to a) raise $$

money to see see Dr. Rae raise awareness of MCS/mold injury/Lyme Disease

(EI's...added Lyme because of broader appeal and because for some reason there

is a high prevalance of these existing concurrently.

> I found a ton of celebs with Lyme, but could  not find one name of a celebrity

with MCS-a diagnosed case.  I plan to contact these celebrities and ask if they

would come speak or help in some way, BUT I NEED A FAMOUS PERSON WITH MCS

ASAP!!!!!!!!!!!!!!!!

>  

> Anybody know??  Bonnie Hunt was kinda mentioned in an article but it wasn't

clear she had it...

>  

>

>

>

>

>

[Guest guest]

there are mutiple toxins/chemicals in purfumes and colone.

who diagnosed her with a allergy to purfume? a allergest?

what does smokeing and purfume have to do with each other, I've have

chemical sensitivitys to many things ,includeing purfumes and colone and I still

smoke.

if you think about dose for a minute, which would effect you the worst?

someone with a very mild scent of purfume left over from applying a few drops in

the morning or someone who has splashed it all over their body 30 seconds before

they walked into your space.

for me, both will get to me soner or later but the second is instantly and

severe, where the first also instant but not so severe but is also a gradual

worsening effect the longer I'm around it.

but it wouldn't affect someone without a WDB exposure this way,

but if they were continually around a strong chemical offgasing

wether it's in purfumes or whatever, they well become sensitive to it at some

level. just like formagahide can mess you up and it doesn't have to be in a

moldy environment to do so.

basically, theres different levels of effects to the nasal to brain route

dependent on the amount of damage there. just like some here may have a mild

lung reaction while others have a severe lung reaction, it's based on damage to

those organs and the worse the damage the worse the effects.

while some may have brain fog, some may have seizure type effects

to the exact same dose.

with the organ and tissue damage you not only deal with very bad effects of some

chemicals but things that are basicly harmless but act as irritants can cause a

lot of suffering too,exspecially with

the sinus area and for me some " harmless " irritants can cause alot of pain.

for me the worst effects I get from smokeing are from the residue that lingers

in my sinuses. this is where washing the sinuses comes in, and even smokeing

outside where you are breathing more clean air than smoke. it's not that big of

a deal, but I think that if I were to set in a heavily smoke filled room for

awhile it would start to bother me and would probably lead to a headacke, maybe

some other effects too. I suppose it would be worse effects than most people

would have that haven't been damage by a WDB exposure.

but all and all, I base alot on how I am affected by different exposures and

really, smokeing is just not in my list of things to

avoid. given that, there are some brands of cigerettes that might effect me more

than others and cigars just wipe me out and to me are in a whole other catagory

of their own, but some of them dont affect me as bad as others, but I cant say

if thats all about the brand or more about the processing, or just dependant on

where they have been

setting, what they have absorbed or anything like that.

you see, even on this subject theres so many possabilities of other things being

involved you just cant know.

all you can really go by is what affects you and what doesn't and one time it

could affect you and another time it might not depending on

many things that we dont even think about.

so really, just because someone smokes, you cant assume that they dont have a

chemical sensitivity to something, or chemical sensitivity to many things or

even that their version of chemical sensitivity and your version of chemical

sensitivity are the same.

so really, in this sence maybe the term chemical sensitivity has it's place but

really it could be viewed as not being much more

worse than what most people view a allergy to mean.

I think both can be anywhere from mild to severe, and I think theres some WDB

exposed people who might fall anywhere in the mild to severe level of chemical

sensitivity, because I dont think everyone gets TE

who are exposed in WDB's. some people do recover.

some dont. what does it boil down to? I can only see one thing and thats the

level of damage. and really, I see where this is a hudge problem and always has

been, because you cant put everyone in the same boat when it comes to damages.

theres a reason why some die, some recover, and everything inbetween.

there is a reason why some of us have a chunk of our frontal lobes missing,

lesions in the brain, some have severe damage to theri

vision,some dont,some become bed ridden, some dont, ect.

there is and needs to be a difference between haveing TE and MCS or chemical

sensitivity, because we are not all dealing with the same level of damage or

effects.

and really when you hear the chemical sensitiviy is actually more common than

once thought, that really is not discribeing people

damaged from WDB exposures that are damaged beyond what MCS or chemical

sensitivity is becomeing known as.

I really am starting the hate the term about as much as I hate the time allergy,

but maybe they all have there place, just not the same place.

I have always felt that sensitive and hyper-reactive are two different things

and to me , sensitive fits closer with a allergy where hyper-reactive should be

discribing a more severe reaction of some sort. sensitivity-allergic reaction,

hyper-reactive>more like anaphalaxia attack.

and seems to me that anaphlaxia attacks and the intolerance reaction some of us

have could be really really close to the same effects,

although one is a presummed allergy and one is a intolerance.

and really the term multiple chemical intolerance is what it should be called

because we are more than just sensitive to the chemical, we have lost our

tolerance to be able to be around that chemical.

even a term like hyper-reactive syndrome would be better than MCS.

I kindof doubt that to many people who have been exposed in WDB's to a point

where they wont just recover by leaveing the building, or even in a short period

of time would fall into the same catagory as someone that becomes sensitive to

smell that they describe as just somewhat irritateing or anoying, or even that

it might give them a headacke for a little bit until they get some fresh air.

so really, if MCS or chemical sensitivity is going to become known as something

so very common (something close to what a allergy is precieved as, " a anoyance

but otherwise harmless " )like a little brain fog effect that goes away with

alittle fresh air, I don't want any part of it cause what I have is much worse

than that, it affects my whole body and it rules my life, it can be quit scary

and dangerous to me and others around me, it affects my moods,my balance, it

greatly effects my ability to drive or function in many other ways.

and I just dont really see to many people walking around haveing the same

effects as me so I dont think it's all that common at all.

humm, must be TE.

--- In , Michal <michalvictoria@...>

wrote:

>

> Ah, unfotunately she just " has a perfume allergy " .  She still smokes.  Could

be the beginning of MCS, but there is no diagnosis or info from her that she

might have other sensitivities.

[Guest guest]

Thank you, I didn't even consider that someone with MCS would smoke.  The

people with MCS that I know are extremely intolerant of cigarette smoke as well

as so many other things, and they all have reactions like you have described

yourself having, so your reactions may not be as uncommon as you think. 

I suppose I would be called " chemically sensitive " at this point, but to me

they're just degrees on the spectrum.    

From: osisposis <jeaninem660@...>

Subject: [] Re: looking for famous people with MCS

Date: Tuesday, July 27, 2010, 8:37 PM

 

there are mutiple toxins/chemicals in purfumes and colone.

who diagnosed her with a allergy to purfume? a allergest?

what does smokeing and purfume have to do with each other, I've have

chemical sensitivitys to many things ,includeing purfumes and colone and I still

smoke.

if you think about dose for a minute, which would effect you the worst?

someone with a very mild scent of purfume left over from applying a few drops in

the morning or someone who has splashed it all over their body 30 seconds before

they walked into your space.

for me, both will get to me soner or later but the second is instantly and

severe, where the first also instant but not so severe but is also a gradual

worsening effect the longer I'm around it.

but it wouldn't affect someone without a WDB exposure this way,

but if they were continually around a strong chemical offgasing

wether it's in purfumes or whatever, they well become sensitive to it at some

level. just like formagahide can mess you up and it doesn't have to be in a

moldy environment to do so.

basically, theres different levels of effects to the nasal to brain route

dependent on the amount of damage there. just like some here may have a mild

lung reaction while others have a severe lung reaction, it's based on damage to

those organs and the worse the damage the worse the effects.

while some may have brain fog, some may have seizure type effects

to the exact same dose.

with the organ and tissue damage you not only deal with very bad effects of some

chemicals but things that are basicly harmless but act as irritants can cause a

lot of suffering too,exspecially with

the sinus area and for me some " harmless " irritants can cause alot of pain.

for me the worst effects I get from smokeing are from the residue that lingers

in my sinuses. this is where washing the sinuses comes in, and even smokeing

outside where you are breathing more clean air than smoke. it's not that big of

a deal, but I think that if I were to set in a heavily smoke filled room for

awhile it would start to bother me and would probably lead to a headacke, maybe

some other effects too. I suppose it would be worse effects than most people

would have that haven't been damage by a WDB exposure.

but all and all, I base alot on how I am affected by different exposures and

really, smokeing is just not in my list of things to

avoid. given that, there are some brands of cigerettes that might effect me more

than others and cigars just wipe me out and to me are in a whole other catagory

of their own, but some of them dont affect me as bad as others, but I cant say

if thats all about the brand or more about the processing, or just dependant on

where they have been

setting, what they have absorbed or anything like that.

you see, even on this subject theres so many possabilities of other things being

involved you just cant know.

all you can really go by is what affects you and what doesn't and one time it

could affect you and another time it might not depending on

many things that we dont even think about.

so really, just because someone smokes, you cant assume that they dont have a

chemical sensitivity to something, or chemical sensitivity to many things or

even that their version of chemical sensitivity and your version of chemical

sensitivity are the same.

so really, in this sence maybe the term chemical sensitivity has it's place but

really it could be viewed as not being much more

worse than what most people view a allergy to mean.

I think both can be anywhere from mild to severe, and I think theres some WDB

exposed people who might fall anywhere in the mild to severe level of chemical

sensitivity, because I dont think everyone gets TE

who are exposed in WDB's. some people do recover.

some dont. what does it boil down to? I can only see one thing and thats the

level of damage. and really, I see where this is a hudge problem and always has

been, because you cant put everyone in the same boat when it comes to damages.

theres a reason why some die, some recover, and everything inbetween.

there is a reason why some of us have a chunk of our frontal lobes missing,

lesions in the brain, some have severe damage to theri

vision,some dont,some become bed ridden, some dont, ect.

there is and needs to be a difference between haveing TE and MCS or chemical

sensitivity, because we are not all dealing with the same level of damage or

effects.

and really when you hear the chemical sensitiviy is actually more common than

once thought, that really is not discribeing people

damaged from WDB exposures that are damaged beyond what MCS or chemical

sensitivity is becomeing known as.

I really am starting the hate the term about as much as I hate the time allergy,

but maybe they all have there place, just not the same place.

I have always felt that sensitive and hyper-reactive are two different things

and to me , sensitive fits closer with a allergy where hyper-reactive should be

discribing a more severe reaction of some sort. sensitivity-allergic reaction,

hyper-reactive>more like anaphalaxia attack.

and seems to me that anaphlaxia attacks and the intolerance reaction some of us

have could be really really close to the same effects,

although one is a presummed allergy and one is a intolerance.

and really the term multiple chemical intolerance is what it should be called

because we are more than just sensitive to the chemical, we have lost our

tolerance to be able to be around that chemical.

even a term like hyper-reactive syndrome would be better than MCS.

I kindof doubt that to many people who have been exposed in WDB's to a point

where they wont just recover by leaveing the building, or even in a short period

of time would fall into the same catagory as someone that becomes sensitive to

smell that they describe as just somewhat irritateing or anoying, or even that

it might give them a headacke for a little bit until they get some fresh air.

so really, if MCS or chemical sensitivity is going to become known as something

so very common (something close to what a allergy is precieved as, " a anoyance

but otherwise harmless " )like a little brain fog effect that goes away with

alittle fresh air, I don't want any part of it cause what I have is much worse

than that, it affects my whole body and it rules my life, it can be quit scary

and dangerous to me and others around me, it affects my moods,my balance, it

greatly effects my ability to drive or function in many other ways.

and I just dont really see to many people walking around haveing the same

effects as me so I dont think it's all that common at all.

humm, must be TE.

--- In , Michal <michalvictoria@...>

wrote:

>

> Ah, unfotunately she just " has a perfume allergy " .  She still smokes. 

Could be the beginning of MCS, but there is no diagnosis or info from her that

she might have other sensitivities.

[Guest guest]

I remember hearing that Travolta's wife (different last name I

forget) has a kid with MCS. I think was promting awareness too.

>

>

> I wish I knew of one but I can't think of any! There are probably many that

> don't even know they have it. I'll keep thinking and let you know if I

> come up with anyone. I remember that Ed McMahon and a few others that don't

> come to mind right now where exposed to mold. Having a celebrity to speak in

> support of mold, Lyme and MCS would be extremely helpful to the cause.

> People listen when it's someone famous but not to us poor peasants!!

> I remember Bonnie Hunt talked about getting sick from the sofa she had

> delivered. Her daughter and dog were also sick. I think she said it was from

> the chemicals that were sprayed on it.

> Lots of luck and keep us posted.

>

>

> Hi Folks, I'm putting together a benefit with my community to a) raise $$

> money to see see Dr. Rae raise awareness of MCS/mold injury/Lyme

> Disease (EI's...added Lyme because of broader appeal and because for some

reason

> there is a high prevalance of these existing concurrently.

> I found a ton of celebs with Lyme, but could not find one name of a

> celebrity with MCS-a diagnosed case. I plan to contact these celebrities and

> ask if they would come speak or help in some way, BUT I NEED A FAMOUS PERSON

> WITH MCS ASAP!!!!!!!!!!!!!!!!

>

> Anybody know?? Bonnie Hunt was kinda mentioned in an article but it

> wasn't clear she had it...

>

>

>

>

>

>

[Guest guest]

But, do they really have a chemical sensitivity attack to cigerette smoke or

does the smell just disagree with them,annoy them or cause them discomfort in

other ways. I'd be interested to know.

do their airways react/close up with the tinyest bit of cigerette smoke around?

do they instantly lose the strenght in their bodys makeing it hard to stand, do

they have seizure type effects to the brain, and lose the ability to think

straight, or do you just preceived the smell as irritating in other ways.

or is it because second hand cigerette smoke is said to be so bad they just say

it effects them. some people are like that.

some people that dont smoke like the smell,some dont, some who have smoked and

quit hate it worse than anybody, but it's because it makes them want to smoke,

been there done that.

I've never been a big fan of the smell myself, like if I am smokeing in a car

the window has to be open, always been this way, even prior to my WDB exposure.

I always thought that the smell comeing from a ashtray full of butts was more

offenceive than any other part of it.

theres this thing called masking but with masking you still have all the effects

but supposedly you become somehow masked to the smell that is causeing the

effects, but the effects are not masked so I

dont see who that would apply to smokeing. nobody has ever really explained it

in a way that I could make sence out of it.

I understand getting used to a smell that your around to wear you might not

smell it inless you leave for awhile than come back,but as far as that smell ,if

it causes a chemical reaction, somehow causeing a worse reaction based on

weither you smell it or not doesn't make sence to me unless it is based around

actually haveing a fear of a smell that causes added symptoms, which does

happen, just like a certain smell can bring forth a memory, good or bad. for

some smelling a smell that they preceive is harmful can cause symptoms like

anixity,stress. and with this illness,exspecially with the CNS damage, stress

or anixity can make you fell pretty bad but still, thats not the same as a

chemical sensitivity reaction caused by exposure to a chemical/toxin.

I have lost some of my sence of smell but I still have the reactions to things

weither I smell them or not. so I just dont get the masking thing, or understand

how, other than what I just discribed that not

smelling a smell or getting used to a smell because your around would have any

effect on weither that smell causes a chemical reaction or not.

--- In , Michal <michalvictoria@...>

wrote:

>

> Thank you, I didn't even consider that someone with MCS would smoke.  The

people with MCS that I know are extremely intolerant of cigarette smoke as well

as so many other things, and they all have reactions like you have described

yourself having, so your reactions may not be as uncommon as you think. 

I suppose I would be called " chemically sensitive " at this point, but to me

they're just degrees on the spectrum.