Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 venizia1948 wrote: > > Thanks Chuck it eases my mind somewhat. My doctor did say it was > autoimmune like arthritis etc. Did he test for antibodies? Other possible causes are listed here: http://en.wikipedia.org/wiki/Iritis Several causes are related to other autoimmune conditions, in which the iritis is secondary to other conditions but is not strictly autoimmune itself. Some, such as ankylosing spondylitis, may or may not be autoimmune. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 Hi Venizia- usually the eye drops won't cause you any long term problems if you only use them for a short period of time. .the problem comes in when you use them over a period of time longer than 3 months and/or the dose you take is high. generally speaking steroid eye drops should not affect your thyroid because you are not taking them orally, which gets into the blood stream and travels throughout your total body. eye drops' affects are more localized to the eye itself, although some of it can get into the general circulation, just not as concentrated as if you took it orally or by IV. so, I don't think it will affect the metabolism or the thyroid since you will be only taking them for a short time. the fact that you had symptoms after placing the drops in the eye says that you are very sensitive to the steroids. when one takes them in high doses or for longer than 3 months- that is when we start to see secondary infections of the eye from decreased immunity to the eye or if the person has the genetics for cataracts then the long term usage may set them up for later problems. I have been lucky that I haven't had any eye infections where I need to take steroid eye drops, because I am not sure I would take them.... I hope I have helped. nancie From: venizia1948 Sent: Saturday, April 05, 2008 8:29 AM hypothyroidism Subject: steroids , You were talking about steroids. Up until last Monday, I would not take prednisone or any other steroid. I went thru that back in the 80's and said I would NEVER take them again. However, last Monday I came down with something call iritis; an inflammation inside my eye (apparently an autoimmune condition) I did not realize it was prednisone drops that he gave me. He gave me something called pred-forte. On a follow-up visit yesterday, I found out it was prednisone. I am not happy! My question is: will this cause me any problems with this thyroid and metabolism problem? I was taking 4 drops a day and each week I have to reduce it by one drop until I am down to one drop a day. I told him if I had known it was prednisone I would have refused it. He said it was the only way to treat it. He suggested I put pressure at the inside corner of my eye for about 45 seconds after putting in the drops and that will prevent so much from getting into my system.....I was having nausea and lightheadedness and I could taste it. Does anyone know am I going to cause myself more problems by taking this? I do realize, now that I started it I have to finish but those doctors should make sure the patient understands what they are being given. I would appreciate any input from anyone that understands steroid treatment. Venizia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2008 Report Share Posted April 5, 2008 chuck- even with the pulse dosing; taking it every other day- on a long term basis can give you the same adverse side effects than taking it every day can. it is the long term consequences of the steroids that screw you up. I know fellow sle patients who had pulse dosing for only 6 months and still had major problems because they were more susceptible to the adverse reactions than the next person. From: Chuck B Sent: Saturday, April 05, 2008 9:20 AM hypothyroidism Subject: Re: steroids Venizia, You wrote: > ... However, last Monday I > came down with something call iritis; an inflammation inside my eye > (apparently an autoimmune condition) I did not realize it was > prednisone drops that he gave me. He gave me something called pred-forte. Opthalmic suspensions are only 1% concentrations. Even with frequent drops, you will be getting at most a few mg of prednisone per day. In contrast, the " shock " treatments they sometimes prescribe orally can involve up to 200 mg per day. They also have strategies where you take something like 80 mg every other day, so you can stay on the stuff longer without much risk. Most of the possible side effects listed for Pred-forte are directly for the eye. Unless you are allergic, systemic effects are very unlikely unless you keep using the drops for an extended time. Iritis is not necessarily an autoimmune problem. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 most docs do not understand how to use low dose (physiological) bioidentical steroids b/c they have been taught that adrenal insufficiency doesn't exist! and the testing is poor. you can get much better info from http://www.stopthethyroidmadness.com wonderful books like Hormone Solutions by Thierry Hertoghe MD, Safe Uses of Cortisol by Jefferies MD cortisol is a lifesaver just like thyroid hormone. It just hasn't been used properly by allopathic medicine. I think it's another case of big pharma confusing ppl. If docs don't use Armour, cortef, iodine then they have to resort to patented drugs. Gracia , You were talking about steroids. Up until last Monday, I would not take prednisone or any other steroid. I went thru that back in the 80's and said I would NEVER take them again. However, last Monday I came down with something call iritis; an inflammation inside my eye (apparently an autoimmune condition) I did not realize it was prednisone drops that he gave me. He gave me something called pred-forte. On a follow-up visit yesterday, I found out it was prednisone. I am not happy! My question is: will this cause me any problems with this thyroid and metabolism problem? I was taking 4 drops a day and each week I have to reduce it by one drop until I am down to one drop a day. I told him if I had known it was prednisone I would have refused it. He said it was the only way to treat it. He suggested I put pressure at the inside corner of my eye for about 45 seconds after putting in the drops and that will prevent so much from getting into my system.....I was having nausea and lightheadedness and I could taste it. Does anyone know am I going to cause myself more problems by taking this? I do realize, now that I started it I have to finish but those doctors should make sure the patient understands what they are being given. I would appreciate any input from anyone that understands steroid treatment. Venizia ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 4/1/2008 5:37 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 nancie barnett wrote: > > > chuck- even with the pulse dosing; taking it every other day- on a long > term basis can give you the same adverse side effects than taking it > every day can.... As I recall, alternating doses is mainly used for children, because it does not interfere with growth as much as daily dosing. You are probably quite right about other side effects, though. This is a miracle drug that should be reserved for situations in dire need of a miracle. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 gracia- my doc DOES know how to use bio-identical hormones because that is ALL she prescribes!! prudence does not even use OCP's because she believes that they are not good for women. the point with my treatment that you will not accept is that my case is unusually because I have lupus and lupus is an estrogen driven disease just like breast cancer and uterine cancer. it is very controversial to give any HRT to someone with lupus because of the risk of producing a flare in the disease. so, I take an extremely small dose to see how my body responds- if it doesn't drive activity of sle- then I may take a higher dose. although I really don't want to get my period back because I like it that I don't have to deal with that anymore, lol. there is no cure for lupus/sle as of yet and that is an universal consensus all around the world. because there is research going on almost in every country that has medical research capabilities. From: Gracia Sent: Sunday, April 06, 2008 7:09 AM hypothyroidism Subject: Re: steroids most docs do not understand how to use low dose (physiological) bioidentical steroids b/c they have been taught that adrenal insufficiency doesn't exist! and the testing is poor. you can get much better info from http://www.stopthethyroidmadness.com wonderful books like Hormone Solutions by Thierry Hertoghe MD, Safe Uses of Cortisol by Jefferies MD cortisol is a lifesaver just like thyroid hormone. It just hasn't been used properly by allopathic medicine. I think it's another case of big pharma confusing ppl. If docs don't use Armour, cortef, iodine then they have to resort to patented drugs. Gracia , You were talking about steroids. Up until last Monday, I would not take prednisone or any other steroid. I went thru that back in the 80's and said I would NEVER take them again. However, last Monday I came down with something call iritis; an inflammation inside my eye (apparently an autoimmune condition) I did not realize it was prednisone drops that he gave me. He gave me something called pred-forte. On a follow-up visit yesterday, I found out it was prednisone. I am not happy! My question is: will this cause me any problems with this thyroid and metabolism problem? I was taking 4 drops a day and each week I have to reduce it by one drop until I am down to one drop a day. I told him if I had known it was prednisone I would have refused it. He said it was the only way to treat it. He suggested I put pressure at the inside corner of my eye for about 45 seconds after putting in the drops and that will prevent so much from getting into my system.....I was having nausea and lightheadedness and I could taste it. Does anyone know am I going to cause myself more problems by taking this? I do realize, now that I started it I have to finish but those doctors should make sure the patient understands what they are being given. I would appreciate any input from anyone that understands steroid treatment. Venizia ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.4/1355 - Release Date: 4/1/2008 5:37 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 nope, it is also used in adults. I had it at one point in my treatment. my rheumatologist Bevra Hahn, who is chief of rheumatology at UCLA and has been for 20+ years uses that techniques often in her patients. Most rheumatologists have used that form of administration of steroids in the treatment of steroid responsive diseases. some people do better on that schedule, but it still gives you the adverse reactions over time as non-pulsed administration. From: Chuck B Sent: Sunday, April 06, 2008 11:46 AM hypothyroidism Subject: Re: steroids nancie barnett wrote: > > > chuck- even with the pulse dosing; taking it every other day- on a long > term basis can give you the same adverse side effects than taking it > every day can.... As I recall, alternating doses is mainly used for children, because it does not interfere with growth as much as daily dosing. You are probably quite right about other side effects, though. This is a miracle drug that should be reserved for situations in dire need of a miracle. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Hi Nancie, Yes, you did help. What I don't understand is why I am so sensitive to steroids and I KNOW I am. Back in the 80's when I was put on it for Ramsey-Hunt syndrome which is Bell's palsy and shingles, I slept most of the time and ballooned out so much so that the first time I looked in the mirror was a shock. I gained water weight of over 20#. So I will not go on any steroids if I can at all get away with it. Side effects are inhumane. I hope this Iritis is not going to be an ongoing problem. Thanks so much for your input. Venizia > > Hi Venizia- > usually the eye drops won't cause you any long term problems if you only use them for a short period of time. .the problem comes in when you use them over a period of time longer than 3 months and/or the dose you take is high. generally speaking steroid eye drops should not affect your thyroid because you are not taking them orally, which gets into the blood stream and travels throughout your total body. eye drops' affects are more localized to the eye itself, although some of it can get into the general circulation, just not as concentrated as if you took it orally or by IV. so, I don't think it will affect the metabolism or the thyroid since you will be only taking them for a short time. > the fact that you had symptoms after placing the drops in the eye says that you are very sensitive to the steroids. > when one takes them in high doses or for longer than 3 months- that is when we start to see secondary infections of the eye from decreased immunity to the eye or if the person has the genetics for cataracts then the long term usage may set them up for later problems. > > I have been lucky that I haven't had any eye infections where I need to take steroid eye drops, because I am not sure I would take them.... > > I hope I have helped. > nancie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 I understand that you believe this--it just isn't true. gracia gracia- my doc DOES know how to use bio-identical hormones because that is ALL she prescribes!! prudence does not even use OCP's because she believes that they are not good for women. the point with my treatment that you will not accept is that my case is unusually because I have lupus and lupus is an estrogen driven disease just like breast cancer and uterine cancer. it is very controversial to give any HRT to someone with lupus because of the risk of producing a flare in the disease. so, I take an extremely small dose to see how my body responds- if it doesn't drive activity of sle- then I may take a higher dose. although I really don't want to get my period back because I like it that I don't have to deal with that anymore, lol. there is no cure for lupus/sle as of yet and that is an universal consensus all around the world. because there is research going on almost in every country that has medical research capabilities. Recent Activity a.. 19New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Memory Loss Are you at risk for Alzheimers? Popular Y! Groups Is your group one? Check it out and see. . ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.8/1362 - Release Date: 4/6/2008 11:12 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 i have no " side effects " on cortef. i have taken it for several years. gracia Hi Nancie, Yes, you did help. What I don't understand is why I am so sensitive to steroids and I KNOW I am. Back in the 80's when I was put on it for Ramsey-Hunt syndrome which is Bell's palsy and shingles, I slept most of the time and ballooned out so much so that the first time I looked in the mirror was a shock. I gained water weight of over 20#. So I will not go on any steroids if I can at all get away with it. Side effects are inhumane. I hope this Iritis is not going to be an ongoing problem. Thanks so much for your input. Venizia --- Recent Activity a.. 19New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Memory Loss Are you at risk for Alzheimers? Drive Traffic Sponsored Search can help increase your site traffic. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Chuck, Thanks for the wikpedia website. I will check it out. As for testing for antibodies; are you referring to antithyroid antibodies? I saw my eye doctor and that is not something I think he would do. I do have antithyroid antibodies i.e. Tpo etc. I also have antibodies for the Epstein-Barr virus. Don't know for sure what antibodies you are referring to. I also have arthritis in my knee and lower spine. Venizia -- In hypothyroidism , Chuck B <gumboyaya@...> wrote: > > venizia1948 wrote: > > > > Thanks Chuck it eases my mind somewhat. My doctor did say it was > > autoimmune like arthritis etc. > > Did he test for antibodies? > > Other possible causes are listed here: > http://en.wikipedia.org/wiki/Iritis > > Several causes are related to other autoimmune conditions, in which the > iritis is secondary to other conditions but is not strictly autoimmune > itself. Some, such as ankylosing spondylitis, may or may not be autoimmune. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Not sure cortef would have helped with the Iritis though. Venizia > > > i have no " side effects " on cortef. i have taken it for several years. > gracia > > Hi Nancie, > > Yes, you did help. What I don't understand is why I am so sensitive to > steroids and I KNOW I am. Back in the 80's when I was put on it for > Ramsey-Hunt syndrome which is Bell's palsy and shingles, I slept most > of the time and ballooned out so much so that the first time I looked > in the mirror was a shock. I gained water weight of over 20#. So I > will not go on any steroids if I can at all get away with it. Side > effects are inhumane. > > I hope this Iritis is not going to be an ongoing problem. > > Thanks so much for your input. > > Venizia > > --- > Recent Activity > a.. 19New Members > Visit Your Group > Meditation and > Lovingkindness > > A Group > > to share and learn. > > Health > Memory Loss > > Are you at risk > > for Alzheimers? > > Drive Traffic > Sponsored Search > > can help increase > > your site traffic. > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 iodine http://www.optimox.com iodine Gracia Not sure cortef would have helped with the Iritis though. Venizia > > > i have no " side effects " on cortef. i have taken it for several years. > gracia > > Recent Activity a.. 19New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Moderator Central Join and receive produce updates. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 I have had allergies for over 60 years with many typical rhinitis symptoms [as well as others] but in the past few years most of my symptoms have gone away except one: I get a very sever itching in the inner corners of my eyes. I've tried about every available medication for prevention and none of them completely control it. The most I can hope for is a few days between the itching bouts. One of the treatments I have is a steroid eye drop. Both my eye doctor and my allergy specialist have taken quite a bit of time to make sure I understand the harm that can come to my eyes if I over use this medication. As a matter of fact when I got the prescription from my allergy specialist he was very comfortable with giving it to me when he found out how sparingly I have used the prescription from my eye doctor. In addition he researched the latest recommendations for frequency and length of usage. When he found that I make a 3 month supply last a year and that my eye doctor is also extremely careful in pointing out the possible negative effects of over usage he was less adverse to providing it. I DO NOT use it long term; as a matter of fact I have experimented and found out that when I get into a very bad case in which my eyes are both itching horribly and sore from all the rubbing I do I can usually knock out the inflammation in less than 24 hours, rather than the 3 or 4 days prescribed. If I use it in the evening and then before going to bed and then once in the morning it will knock out most cases of inflammation and allow my eyes to heal... Until the next time. Of course, this is when the inflammation is caused by the rubbing; not some other ailment. I don't like using it, but if you've never experienced it you don't know how horrible really excruciating eye itch can be. Before I got the steroid I used another treatment that may render some of you aghast. After rubbing my eyes until they were raw [and still itching] I would apply rubbing alcohol directly to the tissue where the skin was rubbed off; keeping the alcohol out of my eye as much as possible. This burns like holy fire; but the burning is preferable to the horrible itching, and allowed a little time for my eyes to heal a little without rubbing them. I don't have to do that now that I have the steroid for occasional use. But I am EXTREMELY careful in how much and how long I use it. So I think a steroid is like many other treatments: It is a choice between the lessor of two evils. If the medication provides much better help than harm then it may well be the best choice. However, you need to be sure you have a doctor that is very careful to point out the possible negative effects of the treatment. My eye doctor and allergist are like that, but I've had experience with other doctors who were not. Luck, > > steroids > <hypothyroidism/message/37317;_ylc=X3oDMTJxNWRwODg\ zBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzczMTcEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwNzQ3OTcwNQ--> > > > > Posted by: " venizia1948 " nelsonck@... > <mailto:nelsonck@...?Subject=%20Re%3Asteroids> > venizia1948 <venizia1948> > > > Sat Apr 5, 2008 8:29 am (PDT) > > , > > You were talking about steroids. Up until last Monday, I would not > take prednisone or any other steroid. I went thru that back in the > 80's and said I would NEVER take them again. However, last Monday I > came down with something call iritis; an inflammation inside my eye > (apparently an autoimmune condition) I did not realize it was > prednisone drops that he gave me. He gave me something called pred-forte. > > On a follow-up visit yesterday, I found out it was prednisone. I am > not happy! My question is: will this cause me any problems with this > thyroid and metabolism problem? I was taking 4 drops a day and each > week I have to reduce it by one drop until I am down to one drop a > day. I told him if I had known it was prednisone I would have refused > it. He said it was the only way to treat it. He suggested I put > pressure at the inside corner of my eye for about 45 seconds after > putting in the drops and that will prevent so much from getting into > my system.....I was having nausea and lightheadedness and I could > taste it. Does anyone know am I going to cause myself more problems by > taking this? > > I do realize, now that I started it I have to finish but those doctors > should make sure the patient understands what they are being given. > > I would appreciate any input from anyone that understands steroid > treatment. > > Venizia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Hi Venzia- I believe it is your genetics, which control every cell in your body including your thyroid. everyone is different and so what one person can tolerate doesn't mean the next person can tolerate the same drug. some of my patients can tolerate a certain antibiotic and the next person will have horrible diarrhea or hives. it is just like some people are really sensitive/allergic to certain plants and others aren't. the examples go on. the fluid retention you described is classic side effect from steroids. I experienced that, too. on another note, your name is really pretty, does it mean anything? nancie From: venizia1948 Sent: Sunday, April 06, 2008 3:41 PM hypothyroidism Subject: Re: steroids Hi Nancie, Yes, you did help. What I don't understand is why I am so sensitive to steroids and I KNOW I am. Back in the 80's when I was put on it for Ramsey-Hunt syndrome which is Bell's palsy and shingles, I slept most of the time and ballooned out so much so that the first time I looked in the mirror was a shock. I gained water weight of over 20#. So I will not go on any steroids if I can at all get away with it. Side effects are inhumane. I hope this Iritis is not going to be an ongoing problem. Thanks so much for your input. Venizia > > Hi Venizia- > usually the eye drops won't cause you any long term problems if you only use them for a short period of time. .the problem comes in when you use them over a period of time longer than 3 months and/or the dose you take is high. generally speaking steroid eye drops should not affect your thyroid because you are not taking them orally, which gets into the blood stream and travels throughout your total body. eye drops' affects are more localized to the eye itself, although some of it can get into the general circulation, just not as concentrated as if you took it orally or by IV. so, I don't think it will affect the metabolism or the thyroid since you will be only taking them for a short time. > the fact that you had symptoms after placing the drops in the eye says that you are very sensitive to the steroids. > when one takes them in high doses or for longer than 3 months- that is when we start to see secondary infections of the eye from decreased immunity to the eye or if the person has the genetics for cataracts then the long term usage may set them up for later problems. > > I have been lucky that I haven't had any eye infections where I need to take steroid eye drops, because I am not sure I would take them.... > > I hope I have helped. > nancie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 it is true, but until you get some advanced medical education under your belt you will never un From: Gracia Sent: Sunday, April 06, 2008 3:50 PM hypothyroidism Subject: Re: steroids I understand that you believe this--it just isn't true. gracia gracia- my doc DOES know how to use bio-identical hormones because that is ALL she prescribes!! prudence does not even use OCP's because she believes that they are not good for women. the point with my treatment that you will not accept is that my case is unusually because I have lupus and lupus is an estrogen driven disease just like breast cancer and uterine cancer. it is very controversial to give any HRT to someone with lupus because of the risk of producing a flare in the disease. so, I take an extremely small dose to see how my body responds- if it doesn't drive activity of sle- then I may take a higher dose. although I really don't want to get my period back because I like it that I don't have to deal with that anymore, lol. there is no cure for lupus/sle as of yet and that is an universal consensus all around the world. because there is research going on almost in every country that has medical research capabilities. Recent Activity a.. 19New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Memory Loss Are you at risk for Alzheimers? Popular Y! Groups Is your group one? Check it out and see. .. ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.8/1362 - Release Date: 4/6/2008 11:12 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 it goes both ways- right back at you. From: Gracia Sent: Sunday, April 06, 2008 3:50 PM hypothyroidism Subject: Re: steroids I understand that you believe this--it just isn't true. gracia gracia- my doc DOES know how to use bio-identical hormones because that is ALL she prescribes!! prudence does not even use OCP's because she believes that they are not good for women. the point with my treatment that you will not accept is that my case is unusually because I have lupus and lupus is an estrogen driven disease just like breast cancer and uterine cancer. it is very controversial to give any HRT to someone with lupus because of the risk of producing a flare in the disease. so, I take an extremely small dose to see how my body responds- if it doesn't drive activity of sle- then I may take a higher dose. although I really don't want to get my period back because I like it that I don't have to deal with that anymore, lol. there is no cure for lupus/sle as of yet and that is an universal consensus all around the world. because there is research going on almost in every country that has medical research capabilities. Recent Activity a.. 19New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Memory Loss Are you at risk for Alzheimers? Popular Y! Groups Is your group one? Check it out and see. .. ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.8/1362 - Release Date: 4/6/2008 11:12 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Venizia, You wrote: > > > As for testing for antibodies; are you referring to antithyroid > antibodies?... No. All autoimmune conditions are mediated by antibodies. To know for certain that your disease is caused by one, you would look for antibodies specific to that condition. However, iritis is consistent with all the autoimmune conditions you already know you have, so there would not be much point in checking. The treatment is going to be the same. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 , I am surprised that you can use it for just 24hrs because my doctor said that I have to reduce the drops each week by one until I am takin g them once a day for 5 days. Something about steriods being dangerous if you stop them all of a sudden. So I started out taking 4 drops a day and this week I will start 3 drops a day until I am doing one drop a day for 5 days. Venizia > > I have had allergies for over 60 years with many typical rhinitis > symptoms [as well as others] but in the past few years most of my > symptoms have gone away except one: I get a very sever itching in the > inner corners of my eyes. I've tried about every available medication > for prevention and none of them completely control it. The most I can > hope for is a few days between the itching bouts. > > One of the treatments I have is a steroid eye drop. Both my eye doctor > and my allergy specialist have taken quite a bit of time to make sure I > understand the harm that can come to my eyes if I over use this > medication. As a matter of fact when I got the prescription from my > allergy specialist he was very comfortable with giving it to me when he > found out how sparingly I have used the prescription from my eye > doctor. In addition he researched the latest recommendations for > frequency and length of usage. When he found that I make a 3 month > supply last a year and that my eye doctor is also extremely careful in > pointing out the possible negative effects of over usage he was less > adverse to providing it. > > I DO NOT use it long term; as a matter of fact I have experimented and > found out that when I get into a very bad case in which my eyes are both > itching horribly and sore from all the rubbing I do I can usually knock > out the inflammation in less than 24 hours, rather than the 3 or 4 days > prescribed. If I use it in the evening and then before going to bed and > then once in the morning it will knock out most cases of inflammation > and allow my eyes to heal... Until the next time. Of course, this is > when the inflammation is caused by the rubbing; not some other ailment. > > I don't like using it, but if you've never experienced it you don't know > how horrible really excruciating eye itch can be. Before I got the > steroid I used another treatment that may render some of you aghast. > After rubbing my eyes until they were raw [and still itching] I would > apply rubbing alcohol directly to the tissue where the skin was rubbed > off; keeping the alcohol out of my eye as much as possible. This burns > like holy fire; but the burning is preferable to the horrible itching, > and allowed a little time for my eyes to heal a little without rubbing > them. I don't have to do that now that I have the steroid for > occasional use. But I am EXTREMELY careful in how much and how long I > use it. > > So I think a steroid is like many other treatments: It is a choice > between the lessor of two evils. If the medication provides much better > help than harm then it may well be the best choice. However, you need > to be sure you have a doctor that is very careful to point out the > possible negative effects of the treatment. My eye doctor and allergist > are like that, but I've had experience with other doctors who were not. > > Luck, > > > > > > steroids > > <hypothyroidism/message/37317;_ylc=X3oDMTJxNWRwODg\ zBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzczMTcEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwNzQ3OTcwNQ--> > > > > > > > > Posted by: " venizia1948 " nelsonck@... > > <mailto:nelsonck@...?Subject=%20Re%3Asteroids> > > venizia1948 <venizia1948> > > > > > > Sat Apr 5, 2008 8:29 am (PDT) > > > > , > > > > You were talking about steroids. Up until last Monday, I would not > > take prednisone or any other steroid. I went thru that back in the > > 80's and said I would NEVER take them again. However, last Monday I > > came down with something call iritis; an inflammation inside my eye > > (apparently an autoimmune condition) I did not realize it was > > prednisone drops that he gave me. He gave me something called pred-forte. > > > > On a follow-up visit yesterday, I found out it was prednisone. I am > > not happy! My question is: will this cause me any problems with this > > thyroid and metabolism problem? I was taking 4 drops a day and each > > week I have to reduce it by one drop until I am down to one drop a > > day. I told him if I had known it was prednisone I would have refused > > it. He said it was the only way to treat it. He suggested I put > > pressure at the inside corner of my eye for about 45 seconds after > > putting in the drops and that will prevent so much from getting into > > my system.....I was having nausea and lightheadedness and I could > > taste it. Does anyone know am I going to cause myself more problems by > > taking this? > > > > I do realize, now that I started it I have to finish but those doctors > > should make sure the patient understands what they are being given. > > > > I would appreciate any input from anyone that understands steroid > > treatment. > > > > Venizia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 My genetics must be really weird because I am soooo sensitive to most meds. When I have any surgery it will take me twice as long to wake up than others plus I get violently ill after the anesthetic. Venizia as in Venezia, Italy (Venice) only I spell it with the " i " just to be different. Thank you. Venizia > > > > Hi Venizia- > > usually the eye drops won't cause you any long term problems if you > only use them for a short period of time. .the problem comes in when > you use them over a period of time longer than 3 months and/or the > dose you take is high. generally speaking steroid eye drops should not > affect your thyroid because you are not taking them orally, which gets > into the blood stream and travels throughout your total body. eye > drops' affects are more localized to the eye itself, although some of > it can get into the general circulation, just not as concentrated as > if you took it orally or by IV. so, I don't think it will affect the > metabolism or the thyroid since you will be only taking them for a > short time. > > the fact that you had symptoms after placing the drops in the eye > says that you are very sensitive to the steroids. > > when one takes them in high doses or for longer than 3 months- that > is when we start to see secondary infections of the eye from decreased > immunity to the eye or if the person has the genetics for cataracts > then the long term usage may set them up for later problems. > > > > I have been lucky that I haven't had any eye infections where I need > to take steroid eye drops, because I am not sure I would take them.... > > > > I hope I have helped. > > nancie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Yes, my doctor did tell me that whatever the cause, the treatment would be the same. Thanks so much for you input on this. I know I can count on this list to be of tremendous help. Venizia -- In hypothyroidism , Chuck B <gumboyaya@...> wrote: > > Venizia, > > You wrote: > > > > > > As for testing for antibodies; are you referring to antithyroid > > antibodies?... > > No. All autoimmune conditions are mediated by antibodies. To know for > certain that your disease is caused by one, you would look for > antibodies specific to that condition. However, iritis is consistent > with all the autoimmune conditions you already know you have, so there > would not be much point in checking. The treatment is going to be the same. > > Chuck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 yes, your genetics are controlling your liver which is the organ that metabolizes the drugs. it sounds like you clear them slower than other people and they should probably do liver function studies as pre-op labs to make sure they are wnl and also to adjust the dose for you. you can tell the anesthesiologist about your experiences. do they give you any anti-emetic meds aka anti- nausea and vomiting meds with the anesthesia? they should or at least give it to you as they are waking you up or right before. From: venizia1948 Sent: Sunday, April 06, 2008 6:46 PM hypothyroidism Subject: Re: steroids My genetics must be really weird because I am soooo sensitive to most meds. When I have any surgery it will take me twice as long to wake up than others plus I get violently ill after the anesthetic. Venizia as in Venezia, Italy (Venice) only I spell it with the " i " just to be different. Thank you. Venizia > > > > Hi Venizia- > > usually the eye drops won't cause you any long term problems if you > only use them for a short period of time. .the problem comes in when > you use them over a period of time longer than 3 months and/or the > dose you take is high. generally speaking steroid eye drops should not > affect your thyroid because you are not taking them orally, which gets > into the blood stream and travels throughout your total body. eye > drops' affects are more localized to the eye itself, although some of > it can get into the general circulation, just not as concentrated as > if you took it orally or by IV. so, I don't think it will affect the > metabolism or the thyroid since you will be only taking them for a > short time. > > the fact that you had symptoms after placing the drops in the eye > says that you are very sensitive to the steroids. > > when one takes them in high doses or for longer than 3 months- that > is when we start to see secondary infections of the eye from decreased > immunity to the eye or if the person has the genetics for cataracts > then the long term usage may set them up for later problems. > > > > I have been lucky that I haven't had any eye infections where I need > to take steroid eye drops, because I am not sure I would take them.... > > > > I hope I have helped. > > nancie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Venizia, that tapering you were told to do is usually reserved for oral doses or IV doses, because anytime you take any steroid meds if you take it long enough and in high enough doses, the body recognizes that steroids are coming into the body and it shuts down it's own production of cortisol. so if you abruptly stop them you go into what we call adrenal crisis, which has the potential to kill you. since, we do not know the threshold for each individual patient as far as their adrenal functioning goes, we tell all patients who take any form of steroids to taper down their dose even for short courses of steroids. patients have gone into adrenal crisis on low doses and on short courses of steroids without warning when they abruptly stopped them, especially if you are under stress. since cortisol is a stress response hormone. surgery, illness, trauma can all add to stress on your adrenals and if you aren't producing any physiological cortisol because you are taking a chemical steroid- your body can go into shock and you can die. nancie From: venizia1948 Sent: Sunday, April 06, 2008 6:40 PM hypothyroidism Subject: Re:steroids , I am surprised that you can use it for just 24hrs because my doctor said that I have to reduce the drops each week by one until I am takin g them once a day for 5 days. Something about steriods being dangerous if you stop them all of a sudden. So I started out taking 4 drops a day and this week I will start 3 drops a day until I am doing one drop a day for 5 days. Venizia > > I have had allergies for over 60 years with many typical rhinitis > symptoms [as well as others] but in the past few years most of my > symptoms have gone away except one: I get a very sever itching in the > inner corners of my eyes. I've tried about every available medication > for prevention and none of them completely control it. The most I can > hope for is a few days between the itching bouts. > > One of the treatments I have is a steroid eye drop. Both my eye doctor > and my allergy specialist have taken quite a bit of time to make sure I > understand the harm that can come to my eyes if I over use this > medication. As a matter of fact when I got the prescription from my > allergy specialist he was very comfortable with giving it to me when he > found out how sparingly I have used the prescription from my eye > doctor. In addition he researched the latest recommendations for > frequency and length of usage. When he found that I make a 3 month > supply last a year and that my eye doctor is also extremely careful in > pointing out the possible negative effects of over usage he was less > adverse to providing it. > > I DO NOT use it long term; as a matter of fact I have experimented and > found out that when I get into a very bad case in which my eyes are both > itching horribly and sore from all the rubbing I do I can usually knock > out the inflammation in less than 24 hours, rather than the 3 or 4 days > prescribed. If I use it in the evening and then before going to bed and > then once in the morning it will knock out most cases of inflammation > and allow my eyes to heal... Until the next time. Of course, this is > when the inflammation is caused by the rubbing; not some other ailment. > > I don't like using it, but if you've never experienced it you don't know > how horrible really excruciating eye itch can be. Before I got the > steroid I used another treatment that may render some of you aghast. > After rubbing my eyes until they were raw [and still itching] I would > apply rubbing alcohol directly to the tissue where the skin was rubbed > off; keeping the alcohol out of my eye as much as possible. This burns > like holy fire; but the burning is preferable to the horrible itching, > and allowed a little time for my eyes to heal a little without rubbing > them. I don't have to do that now that I have the steroid for > occasional use. But I am EXTREMELY careful in how much and how long I > use it. > > So I think a steroid is like many other treatments: It is a choice > between the lessor of two evils. If the medication provides much better > help than harm then it may well be the best choice. However, you need > to be sure you have a doctor that is very careful to point out the > possible negative effects of the treatment. My eye doctor and allergist > are like that, but I've had experience with other doctors who were not. > > Luck, > > > > > > steroids > > <hypothyroidism/message/37317;_ylc=X3oDMTJxNWRwODg\ zBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzczMTcEc2V\ jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwNzQ3OTcwNQ--> > > > > > > > > Posted by: " venizia1948 " nelsonck@... > > <mailto:nelsonck@...?Subject=%20Re%3Asteroids> > > venizia1948 <venizia1948> > > > > > > Sat Apr 5, 2008 8:29 am (PDT) > > > > , > > > > You were talking about steroids. Up until last Monday, I would not > > take prednisone or any other steroid. I went thru that back in the > > 80's and said I would NEVER take them again. However, last Monday I > > came down with something call iritis; an inflammation inside my eye > > (apparently an autoimmune condition) I did not realize it was > > prednisone drops that he gave me. He gave me something called pred-forte. > > > > On a follow-up visit yesterday, I found out it was prednisone. I am > > not happy! My question is: will this cause me any problems with this > > thyroid and metabolism problem? I was taking 4 drops a day and each > > week I have to reduce it by one drop until I am down to one drop a > > day. I told him if I had known it was prednisone I would have refused > > it. He said it was the only way to treat it. He suggested I put > > pressure at the inside corner of my eye for about 45 seconds after > > putting in the drops and that will prevent so much from getting into > > my system.....I was having nausea and lightheadedness and I could > > taste it. Does anyone know am I going to cause myself more problems by > > taking this? > > > > I do realize, now that I started it I have to finish but those doctors > > should make sure the patient understands what they are being given. > > > > I would appreciate any input from anyone that understands steroid > > treatment. > > > > Venizia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 I think that is the allopathic explanation. maybe in the future you can get some gene therapy! alternatively you could take iodine/iodide, b/c you are deficient. this deficiency slows everything down. Gracia yes, your genetics are controlling your liver which is the organ that metabolizes the drugs. it sounds like you clear them slower than other people and they should probably do liver function studies as pre-op labs to make sure they are wnl and also to adjust the dose for you. you can tell the anesthesiologist about your experiences. do they give you any anti-emetic meds aka anti- nausea and vomiting meds with the anesthesia? they should or at least give it to you as they are waking you up or right before. From: venizia1948 Sent: Sunday, April 06, 2008 6:46 PM hypothyroidism Subject: Re: steroids My genetics must be really weird because I am soooo sensitive to most meds. When I have any surgery it will take me twice as long to wake up than others plus I get violently ill after the anesthetic. Venizia as in Venezia, Italy (Venice) only I spell it with the " i " just to be different. Thank you. Venizia --- Recent Activity a.. 18New Members Visit Your Group Health Asthma Triggers How you can identify them. Meditation and Lovingkindness A Group to share and learn. Share Photos Put your favorite photos and more online. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 My liver function tests are on the high side so my gastroenterologist has me repeat the tests every 3 to 6 months. I just had one three weeks ago and he said the numbers were on the high side but stable so he wants to have me repeat the liver panel in 3 months this time. I have always had them give me anti-nausea meds before surgery. The last time I was so sick from the anesthetic they gave me 3 different anti-nausea medications and nothing relieved it. It took 8 hrs after surgery for the nausea to subside. It is the absolute worst feeling. I thought because I have a sulfite sensitivity that maybe I am reacting to the preservative in the medication. More than likely it is what you suggest. Thanks for your concern and input Nancie! Venizia > > > > > > Hi Venizia- > > > usually the eye drops won't cause you any long term problems if you > > only use them for a short period of time. .the problem comes in when > > you use them over a period of time longer than 3 months and/or the > > dose you take is high. generally speaking steroid eye drops should not > > affect your thyroid because you are not taking them orally, which gets > > into the blood stream and travels throughout your total body. eye > > drops' affects are more localized to the eye itself, although some of > > it can get into the general circulation, just not as concentrated as > > if you took it orally or by IV. so, I don't think it will affect the > > metabolism or the thyroid since you will be only taking them for a > > short time. > > > the fact that you had symptoms after placing the drops in the eye > > says that you are very sensitive to the steroids. > > > when one takes them in high doses or for longer than 3 months- that > > is when we start to see secondary infections of the eye from decreased > > immunity to the eye or if the person has the genetics for cataracts > > then the long term usage may set them up for later problems. > > > > > > I have been lucky that I haven't had any eye infections where I need > > to take steroid eye drops, because I am not sure I would take them.... > > > > > > I hope I have helped. > > > nancie > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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