Steroids

[Guest guest]

Well now, that is very scary. Considering my liver function tests I

mentioned to you. Is the way I am told to reduce the meds going to be

sufficient for me? Maybe because I am taking so small an amount in the

eye, it won't be a problem? Sorry to be so questioning about all

this. As I said, I hate taking this kind of medication so I am a

little nervous about it. Thanks for your patience.

Venizia

-- In hypothyroidism , " nancie barnett "

<deifspirit@...> wrote:

>

> Venizia,

> that tapering you were told to do is usually reserved for oral

doses or IV doses, because anytime you take any steroid meds if you

take it long enough and in high enough doses, the body recognizes that

steroids are coming into the body and it shuts down it's own

production of cortisol. so if you abruptly stop them you go into what

we call adrenal crisis, which has the potential to kill you.

> since, we do not know the threshold for each individual patient as

far as their adrenal functioning goes, we tell all patients who take

any form of steroids to taper down their dose even for short courses

of steroids.

> patients have gone into adrenal crisis on low doses and on short

courses of steroids without warning when they abruptly stopped them,

especially if you are under stress. since cortisol is a stress

response hormone. surgery, illness, trauma can all add to stress on

your adrenals and if you aren't producing any physiological cortisol

because you are taking a chemical steroid- your body can go into shock

and you can die.

> nancie

>

>

> >

>

>

>

>

>

>

[Guest guest]

That is also very interesting Gracia. I should learn more about gene

therapy. I wish I was confident as you are in using iodine. I just

haven't gotten there yet.....I wish I was. I know it works for you

and others. I am just leery about it even after reading so much of

the material you have sent. I just can't get past what so many

doctors say about using it with having Hashi's. Thank you though for

your thoughts. They are helpful and thought provoking.

Venizia

- In hypothyroidism , " Gracia " <circe@...> wrote:

>

>

> I think that is the allopathic explanation. maybe in the future

you can get some gene therapy! alternatively you could take

iodine/iodide, b/c you are deficient. this deficiency slows

everything down.

> Gracia

>

> yes, your genetics are controlling your liver which is the organ

that metabolizes the drugs. it sounds like you clear them slower than

other people and they should probably do liver function studies as

pre-op labs to make sure they are wnl and also to adjust the dose for

you. you can tell the anesthesiologist about your experiences. do they

give you any anti-emetic meds aka anti- nausea and vomiting meds with

the anesthesia? they should or at least give it to you as they are

waking you up or right before.

>

> From: venizia1948

> Sent: Sunday, April 06, 2008 6:46 PM

> hypothyroidism

> Subject: Re: steroids

>

> My genetics must be really weird because I am soooo sensitive to most

> meds. When I have any surgery it will take me twice as long to wake up

> than others plus I get violently ill after the anesthetic. Venizia as

> in Venezia, Italy (Venice) only I spell it with the " i " just to be

> different. Thank you.

>

> Venizia

>

> ---

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[Guest guest]

Venizia,

I don't think it will be a problem with the eye drops. as I said it is mostly

applicable to oral or IV administration, but the FDA has put the instruction on

all forms of steroids. so, we give the patients the advice, because you never

know...we are just being careful. and we want to do no harm.

just taper like your provider said and you will be okay. I don't want to scare

you but one should be knowledgeable so you can be an advocate for yourself.

remember knowledge is power.

From: venizia1948

Sent: Sunday, April 06, 2008 8:24 PM

hypothyroidism

Subject: Re:steroids

Well now, that is very scary. Considering my liver function tests I

mentioned to you. Is the way I am told to reduce the meds going to be

sufficient for me? Maybe because I am taking so small an amount in the

eye, it won't be a problem? Sorry to be so questioning about all

this. As I said, I hate taking this kind of medication so I am a

little nervous about it. Thanks for your patience.

Venizia

-- In hypothyroidism , " nancie barnett "

<deifspirit@...> wrote:

>

> Venizia,

> that tapering you were told to do is usually reserved for oral

doses or IV doses, because anytime you take any steroid meds if you

take it long enough and in high enough doses, the body recognizes that

steroids are coming into the body and it shuts down it's own

production of cortisol. so if you abruptly stop them you go into what

we call adrenal crisis, which has the potential to kill you.

> since, we do not know the threshold for each individual patient as

far as their adrenal functioning goes, we tell all patients who take

any form of steroids to taper down their dose even for short courses

of steroids.

> patients have gone into adrenal crisis on low doses and on short

courses of steroids without warning when they abruptly stopped them,

especially if you are under stress. since cortisol is a stress

response hormone. surgery, illness, trauma can all add to stress on

your adrenals and if you aren't producing any physiological cortisol

because you are taking a chemical steroid- your body can go into shock

and you can die.

> nancie

>

>

> >

>

>

>

>

>

>

[Guest guest]

actually I am kidding about the gene therapy LOL. I think Iodoral would work

best here b/c it even influences " gene expression " .

hopefully Shomon will write about iodine soon.

Gracia

That is also very interesting Gracia. I should learn more about gene

therapy. I wish I was confident as you are in using iodine. I just

haven't gotten there yet.....I wish I was. I know it works for you

and others. I am just leery about it even after reading so much of

the material you have sent. I just can't get past what so many

doctors say about using it with having Hashi's. Thank you though for

your thoughts. They are helpful and thought provoking.

Venizia

-

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[Guest guest]

Got it. Thanks so much.

Venizia

> >

> > Venizia,

> > that tapering you were told to do is usually reserved for oral

> doses or IV doses, because anytime you take any steroid meds if you

> take it long enough and in high enough doses, the body recognizes that

> steroids are coming into the body and it shuts down it's own

> production of cortisol. so if you abruptly stop them you go into what

> we call adrenal crisis, which has the potential to kill you.

> > since, we do not know the threshold for each individual patient as

> far as their adrenal functioning goes, we tell all patients who take

> any form of steroids to taper down their dose even for short courses

> of steroids.

> > patients have gone into adrenal crisis on low doses and on short

> courses of steroids without warning when they abruptly stopped them,

> especially if you are under stress. since cortisol is a stress

> response hormone. surgery, illness, trauma can all add to stress on

> your adrenals and if you aren't producing any physiological cortisol

> because you are taking a chemical steroid- your body can go into shock

> and you can die.

> > nancie

> >

> >

>

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

LOL, I was also kidding.

Venizia

-- In hypothyroidism , " Gracia " <circe@...> wrote:

>

>

> actually I am kidding about the gene therapy LOL. I think Iodoral

would work best here b/c it even influences " gene expression " .

> hopefully Shomon will write about iodine soon.

> Gracia

>

>

> That is also very interesting Gracia. I should learn more about gene

> therapy. I wish I was confident as you are in using iodine. I just

> haven't gotten there yet.....I wish I was. I know it works for you

> and others. I am just leery about it even after reading so much of

> the material you have sent. I just can't get past what so many

> doctors say about using it with having Hashi's. Thank you though for

> your thoughts. They are helpful and thought provoking.

>

> Venizia

>

> -

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>

> Sell Online

> Start selling with

>

> our award-winning

>

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[Guest guest]

Hi Venizia,

Have you looked into a liver cleanse and rebuilding your liver through

dandilion and milk thistle? If you are interested, I can send you some

information.

Blessings,

venizia1948 <nelsonck@...> wrote:

My liver function tests are on the high side so my gastroenterologist

has me repeat the tests every 3 to 6 months. I just had one three

weeks ago and he said the numbers were on the high side but stable so

he wants to have me repeat the liver panel in 3 months this time.

I have always had them give me anti-nausea meds before surgery. The

last time I was so sick from the anesthetic they gave me 3 different

anti-nausea medications and nothing relieved it. It took 8 hrs after

surgery for the nausea to subside. It is the absolute worst feeling.

I thought because I have a sulfite sensitivity that maybe I am

reacting to the preservative in the medication. More than likely it

is what you suggest. Thanks for your concern and input Nancie!

Venizia

> > >

> > > Hi Venizia-

> > > usually the eye drops won't cause you any long term problems if you

> > only use them for a short period of time. .the problem comes in when

> > you use them over a period of time longer than 3 months and/or the

> > dose you take is high. generally speaking steroid eye drops should not

> > affect your thyroid because you are not taking them orally, which gets

> > into the blood stream and travels throughout your total body. eye

> > drops' affects are more localized to the eye itself, although some of

> > it can get into the general circulation, just not as concentrated as

> > if you took it orally or by IV. so, I don't think it will affect the

> > metabolism or the thyroid since you will be only taking them for a

> > short time.

> > > the fact that you had symptoms after placing the drops in the eye

> > says that you are very sensitive to the steroids.

> > > when one takes them in high doses or for longer than 3 months- that

> > is when we start to see secondary infections of the eye from decreased

> > immunity to the eye or if the person has the genetics for cataracts

> > then the long term usage may set them up for later problems.

> > >

> > > I have been lucky that I haven't had any eye infections where I need

> > to take steroid eye drops, because I am not sure I would take them....

> > >

> > > I hope I have helped.

> > > nancie

> >

> > >

> > >

> > >

> > >

[Guest guest]

Hi !

Haven't heard from you for a long time. Although I haven't been on the

computer because of the move so maybe you have been here. Anyway, yes

I would love some info on the liver cleanse. Have never done anything

like that so are there a lot of side effects?

How is your pregnancy going? Hope you are doing well.

Venizia

> > > >

> > > > Hi Venizia-

> > > > usually the eye drops won't cause you any long term problems

if you

> > > only use them for a short period of time. .the problem comes in when

> > > you use them over a period of time longer than 3 months and/or the

> > > dose you take is high. generally speaking steroid eye drops

should not

> > > affect your thyroid because you are not taking them orally,

which gets

> > > into the blood stream and travels throughout your total body. eye

> > > drops' affects are more localized to the eye itself, although

some of

> > > it can get into the general circulation, just not as concentrated as

> > > if you took it orally or by IV. so, I don't think it will affect the

> > > metabolism or the thyroid since you will be only taking them for a

> > > short time.

> > > > the fact that you had symptoms after placing the drops in the eye

> > > says that you are very sensitive to the steroids.

> > > > when one takes them in high doses or for longer than 3 months-

that

> > > is when we start to see secondary infections of the eye from

decreased

> > > immunity to the eye or if the person has the genetics for cataracts

> > > then the long term usage may set them up for later problems.

> > > >

> > > > I have been lucky that I haven't had any eye infections where

I need

> > > to take steroid eye drops, because I am not sure I would take

them....

> > > >

> > > > I hope I have helped.

> > > > nancie

> > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi -

how's your pregnancy? I am very interested in your liver cleanse. I would love

any and all info on it.

nancie

From: and Irwin

Sent: Monday, April 07, 2008 7:29 AM

hypothyroidism

Subject: Re: Re: steroids

Hi Venizia,

Have you looked into a liver cleanse and rebuilding your liver through dandilion

and milk thistle? If you are interested, I can send you some information.

Blessings,

venizia1948 <nelsonck@...> wrote:

My liver function tests are on the high side so my gastroenterologist

has me repeat the tests every 3 to 6 months. I just had one three

weeks ago and he said the numbers were on the high side but stable so

he wants to have me repeat the liver panel in 3 months this time.

I have always had them give me anti-nausea meds before surgery. The

last time I was so sick from the anesthetic they gave me 3 different

anti-nausea medications and nothing relieved it. It took 8 hrs after

surgery for the nausea to subside. It is the absolute worst feeling.

I thought because I have a sulfite sensitivity that maybe I am

reacting to the preservative in the medication. More than likely it

is what you suggest. Thanks for your concern and input Nancie!

Venizia

> > >

> > > Hi Venizia-

> > > usually the eye drops won't cause you any long term problems if you

> > only use them for a short period of time. .the problem comes in when

> > you use them over a period of time longer than 3 months and/or the

> > dose you take is high. generally speaking steroid eye drops should not

> > affect your thyroid because you are not taking them orally, which gets

> > into the blood stream and travels throughout your total body. eye

> > drops' affects are more localized to the eye itself, although some of

> > it can get into the general circulation, just not as concentrated as

> > if you took it orally or by IV. so, I don't think it will affect the

> > metabolism or the thyroid since you will be only taking them for a

> > short time.

> > > the fact that you had symptoms after placing the drops in the eye

> > says that you are very sensitive to the steroids.

> > > when one takes them in high doses or for longer than 3 months- that

> > is when we start to see secondary infections of the eye from decreased

> > immunity to the eye or if the person has the genetics for cataracts

> > then the long term usage may set them up for later problems.

> > >

> > > I have been lucky that I haven't had any eye infections where I need

> > to take steroid eye drops, because I am not sure I would take them....

> > >

> > > I hope I have helped.

> > > nancie

> >

> > >

> > >

> > >

> > >

[Guest guest]

My guess would be that it is because of the cause of the inflammation.

In my case it it caused by either the allergy response or the rubbing;

and my guess is that it is mostly the rubbing. So I'm not using the

steroid to heal or help with an underlying problem that might well need

to be taken in the manner you mention.

>

> steroids

>

<hypothyroidism/message/37378;_ylc=X3oDMTJxMnZrcDZ\

rBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzczNzgEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwNzUzNDIwNA-->

>

>

>

> Posted by: " venizia1948 " nelsonck@...

> <mailto:nelsonck@...?Subject=%20Re%3Asteroids>

> venizia1948 <venizia1948>

>

>

> Sun Apr 6, 2008 6:40 pm (PDT)

>

> ,

>

> I am surprised that you can use it for just 24hrs because my doctor

> said that I have to reduce the drops each week by one until I am takin

> g them once a day for 5 days. Something about steriods being dangerous

> if you stop them all of a sudden. So I started out taking 4 drops a

> day and this week I will start 3 drops a day until I am doing one drop

> a day for 5 days.

>

> Venizia

>

>

> >

> > I have had allergies for over 60 years with many typical rhinitis

> > symptoms [as well as others] but in the past few years most of my

> > symptoms have gone away except one: I get a very sever itching in the

> > inner corners of my eyes. I've tried about every available medication

> > for prevention and none of them completely control it. The most I can

> > hope for is a few days between the itching bouts.

> >

> > One of the treatments I have is a steroid eye drop. Both my eye doctor

> > and my allergy specialist have taken quite a bit of time to make sure I

> > understand the harm that can come to my eyes if I over use this

> > medication. As a matter of fact when I got the prescription from my

> > allergy specialist he was very comfortable with giving it to me when he

> > found out how sparingly I have used the prescription from my eye

> > doctor. In addition he researched the latest recommendations for

> > frequency and length of usage. When he found that I make a 3 month

> > supply last a year and that my eye doctor is also extremely careful in

> > pointing out the possible negative effects of over usage he was less

> > adverse to providing it.

> >

> > I DO NOT use it long term; as a matter of fact I have experimented and

> > found out that when I get into a very bad case in which my eyes are

> both

> > itching horribly and sore from all the rubbing I do I can usually knock

> > out the inflammation in less than 24 hours, rather than the 3 or 4 days

> > prescribed. If I use it in the evening and then before going to bed

> and

> > then once in the morning it will knock out most cases of inflammation

> > and allow my eyes to heal... Until the next time. Of course, this is

> > when the inflammation is caused by the rubbing; not some other ailment.

> >

> > I don't like using it, but if you've never experienced it you don't

> know

> > how horrible really excruciating eye itch can be. Before I got the

> > steroid I used another treatment that may render some of you aghast.

> > After rubbing my eyes until they were raw [and still itching] I would

> > apply rubbing alcohol directly to the tissue where the skin was rubbed

> > off; keeping the alcohol out of my eye as much as possible. This burns

> > like holy fire; but the burning is preferable to the horrible itching,

> > and allowed a little time for my eyes to heal a little without rubbing

> > them. I don't have to do that now that I have the steroid for

> > occasional use. But I am EXTREMELY careful in how much and how long I

> > use it.

> >

> > So I think a steroid is like many other treatments: It is a choice

> > between the lessor of two evils. If the medication provides much

> better

> > help than harm then it may well be the best choice. However, you need

> > to be sure you have a doctor that is very careful to point out the

> > possible negative effects of the treatment. My eye doctor and

> allergist

> > are like that, but I've had experience with other doctors who were not.

> >

> > Luck,

> >

[Guest guest]

IIRC the dosage and the drops in your eye rather than oral or IV is

probably far below the level that normally causes any concern at all.

But it doesn't hurt to be knowledgeable and careful about ANY medicine

you take, because you never know when your personal experience may fall

far outside the norm. It also gives you a chance to look for

incompatible medications you may be given; for example if you had been

given another steroid for another problem then they could start to add up.

Luck,

>

> steroids

>

<hypothyroidism/message/37391;_ylc=X3oDMTJxc2Jqa29\

uBF9TAzk3MzU5NzE1BGdycElkAzE0NTY2NARncnBzcElkAzE3MDkyNTEwODIEbXNnSWQDMzczOTEEc2V\

jA2Rtc2cEc2xrA3Ztc2cEc3RpbWUDMTIwNzU2NzcwMg-->

>

>

>

> Posted by: " venizia1948 " nelsonck@...

> <mailto:nelsonck@...?Subject=%20Re%3Asteroids>

> venizia1948 <venizia1948>

>

>

> Sun Apr 6, 2008 8:24 pm (PDT)

>

> Well now, that is very scary. Considering my liver function tests I

> mentioned to you. Is the way I am told to reduce the meds going to be

> sufficient for me? Maybe because I am taking so small an amount in the

> eye, it won't be a problem? Sorry to be so questioning about all

> this. As I said, I hate taking this kind of medication so I am a

> little nervous about it. Thanks for your patience.

>

> Venizia

>

> -- In hypothyroidism

> <mailto:hypothyroidism%40>, " nancie barnett "

> <deifspirit@

> ...> wrote:

> >

> > Venizia,

> > that tapering you were told to do is usually reserved for oral

> doses or IV doses, because anytime you take any steroid meds if you

> take it long enough and in high enough doses, the body recognizes that

> steroids are coming into the body and it shuts down it's own

> production of cortisol. so if you abruptly stop them you go into what

> we call adrenal crisis, which has the potential to kill you.

> > since, we do not know the threshold for each individual patient as

> far as their adrenal functioning goes, we tell all patients who take

> any form of steroids to taper down their dose even for short courses

> of steroids.

> > patients have gone into adrenal crisis on low doses and on short

> courses of steroids without warning when they abruptly stopped them,

> especially if you are under stress. since cortisol is a stress

> response hormone. surgery, illness, trauma can all add to stress on

> your adrenals and if you aren't producing any physiological cortisol

> because you are taking a chemical steroid- your body can go into shock

> and you can die.

> > nancie

[Guest guest]

Hi Beverly, what is calcium orotate and where can one find it? I take 7 mg of prednisone, but hopefully, I will taper down to 5 over the next month or so.

a

[low dose naltrexone] Steroids

Seems some people on this forum take steroids now and then. I just wanted to mention that, in a paper I read by Hans Nieper, he states: "...calcium orotate seems to me to be one of the most important substances to prevent cortisone side effects in, e.g., rheumatoid arthritis. This is very important."I would assume that though he gave an example of R.A., that calcium orotate would be protective for whatever you take cortisone for.When I went on 5mg Prednisone, my herbalist suggested I take 2 calcium orotate capsules a day. I didn't know why then; now I do.FYIBeverly

[Guest guest]

Ok, I would like to know: what does orotate mean, is it describing a spesific calcium or?...( my English vocabulary is not too good)

In advance, thanks! :-) Ingrid

[low dose naltrexone] SteroidsSeems some people on this forum take steroids now and then. I just wanted to mention that, in a paper I read by Hans Nieper, he states: "...calcium orotate seems to me to be one of the most important substances to prevent cortisone side effects in, e.g., rheumatoid arthritis. This is very important."I would assume that though he gave an example of R.A., that calcium orotate would be protective for whatever you take cortisone for.When I went on 5mg Prednisone, my herbalist suggested I take 2 calcium orotate capsules a day. I didn't know why then; now I

do.FYIBeverly------------------------------------

[Guest guest]

Ingrid: Please see my post #70397 Sept. 19 for answer to your question.

Hope this helps,

Beverly

>

> Ok, I would like to know: what does orotate mean, is it describing a

spesific calcium or?...( my English vocabulary is not too good)

> In advance, thanks! :-)

> Ingrid

>

[Guest guest]

Yes your right but thats not what I am talking about I am talking about illegal

Steroids boys and men get in the gym. There are tons of men with low T from

doing Anabolic Steroids.

Co-Moderator

Phil

> From: Randy Hoops <Randy@...>

> Subject: Steroids

>

> Date: Tuesday, July 28, 2009, 2:36 PM

> But Phil.....   I do

> steroiods, you do steriods and most of us do.  That's

> what Testosterone Cypionate is.

>

>

> >

> > Also boys that go to the gym get involved with

> Steroids I pray he is not doing this Steroids are bad and

> can give a man high levels of Estradiol and Gynecomastia or

> man breasts.

> >

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Steriods people obtain through 'gym contacts' or the likes are not buying

medically controlled products nor are they being supervised by a medical

professional.

People with hypogonadism are being treated with controlled drugs that have

passed rigorous clinical trials with the FDA or similar body. They are also

being medically supervised by a medical - and hopefully competent - doctor.

There is a huge difference between the two situations. Most guys who take

steriods probably have no idea that adding exogeneous testosterone will shut off

the body's natural production and that long-term use is likely to do

irreversible damage to their HPTA axis.

> > >

> > > Also boys that go to the gym get involved with

> > Steroids I pray he is not doing this Steroids are bad and

> > can give a man high levels of Estradiol and Gynecomastia or

> > man breasts.

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Hi Steph,

 

Yes I agree to stick with the natural ways to improve adrenal function. I found

out the hard way. Loni

From: Marc <marcufoseries (DOT) com>

Subject: Re: GEORGE CARLO'S ES TREATMENT PROTOCOL

groups (DOT) com

Date: Saturday, August 15, 2009, 11:36 AM

 

> His first treatment was stabalize adrenal hormones. Well, my adrenals

> burnt out due to exposures years ago & I am on steroids probably for good

> now.

Maybe, although there are various supplements on the market that are

supposed to help rebuild the adrenal glands over time (extracts of

animal adrenal glands, or herbs like licorice and rehmannia)

Marc

____________ _________ _________ _________ _________ __

[Guest guest]

Hi Brynn,

I had a link to his info and it seems to not be working right. Would you email

the link to this. And, thanks, this supports what I was trying to say

yesterday. I think the only " steroid " that is considered okay is cortef,

because it supports the natural cortisol levels and supports the adrenals and

then immune system.

Thanks for the link... Cindi

[ ] Steroids

Here was the startling comment from Dr. ph Burrascano, Jr's book, Advanced

Topics in Lyme Disease:

Never give steroidsIf

More evidence has accumulated indicating the severe detrimental effects of the

concurrent use of

immunosuppressants including steroids in the patient with active B.

burgdorferi infection.

or any other immunosuppressant to any patient who may even remotely be

suffering from Lyme, or

serious, permanent damage may result, especially if given for anything greater

than a short course.

immunosuppressive therapy is absolutely necessary, then potent antibiotic

treatment should begin at least 48

hours prior to the immunosuppressants.

As someone who was diagnosed and treated with MS for ten years (incorrectly?),

it was really discoraging to read this, since steroids are always used for MS

flareups. Obviously, I am not an expert but the info would definitely be a

subject to discuss with your doctor. If anyone would like copy of his booklet

pdf, send me a note and I would be happy to email it over...it is a really good

read. Brynn

[Guest guest]

Yes please email it to me.

Timtam (Australia)

________________________________

From: Brynn <brynn2068@...>

Sent: Sun, 8 November, 2009 10:33:29 AM

Subject: [ ] Steroids

Here was the startling comment from Dr. ph Burrascano, Jr's book, Advanced

Topics in Lyme Disease:

" More evidence has accumulated indicating the severe detrimental effects of the

concurrent use of immunosuppressants including steroids in the patient with

active B. burgdorferi infection. or any other immunosuppressant to any patient

who may even remotely be suffering from Lyme, or

serious, permanent damage may result, especially if given for anything greater

than a short course.. If immunosuppressive therapy is absolutely necessary, then

potent antibiotic treatment should begin at least 48hours prior to the

immunosuppressants..

As someone who was diagnosed and treated with MS for ten years (incorrectly? ),

it was really discoraging to read this, since steroids are always used for MS

flareups. Obviously, I am not an expert but the info would definitely be a

subject to discuss with your doctor. If anyone would like copy of his booklet

pdf, send me a note and I would be happy to email it over...it is a really good

read. Brynn

[Guest guest]

Brynn

I was treated with injections of Depo-Medrol months before I found the

rash that I now believe was a tick bite. I was also treated with oral

AND IV steroids and I had surgery twice. After the 2nd surgery I've

never been the same and have remained dependent on steroids for 20+

years after being dx'd with adrenal failure and hypothyroid.

Finally was dx'd with Lyme nearly 20 YEARS later. I read Burrascano's

guidelines but I don't know what I can do. I try to take the minimum

amt of steroids possible but when I go too low the adrenal failure

symptoms are so severe and so painful that I often don't think that I

will get thru the episode. Sometimes, I end up really sick and in the

hospital for IV steroids.

Kendra

On Sat, Nov 7, 2009 at 1:33 PM, Brynn <brynn2068@...> wrote:

> Here was the startling comment from Dr. ph Burrascano, Jr's book, Advanced

Topics in Lyme Disease:

>  Never give steroids

> More evidence has accumulated indicating the severe detrimental effects of the

concurrent use of immunosuppressants including steroids in the patient with

active B. burgdorferi infection.

> or any other immunosuppressant to any patient who may even remotely be

suffering from Lyme, or serious, permanent damage may result, especially if

given for anything greater than a short course.

> immunosuppressive therapy is absolutely necessary, then potent antibiotic

treatment should begin at least 48 hours prior to the immunosuppressants.

>

> As someone who was diagnosed and treated with MS for ten years (incorrectly?),

it was really discoraging to read this, since steroids are always used for MS

flareups.  Obviously, I am not an expert but the info would definitely be a

subject to discuss with your doctor. If anyone would like copy of his booklet

pdf, send me a note and I would  be happy to email it over...it is a really good

read.  Brynn

[Guest guest]

Kendra,

What kind of steroids are you taking? There's a difference between something

like cortef and most of the steroids prescribed.

Cindi

Re: [ ] Steroids

Brynn

I was treated with injections of Depo-Medrol months before I found the

rash that I now believe was a tick bite. I was also treated with oral

AND IV steroids and I had surgery twice. After the 2nd surgery I've

never been the same and have remained dependent on steroids for 20+

years after being dx'd with adrenal failure and hypothyroid.

Finally was dx'd with Lyme nearly 20 YEARS later. I read Burrascano's

guidelines but I don't know what I can do. I try to take the minimum

amt of steroids possible but when I go too low the adrenal failure

symptoms are so severe and so painful that I often don't think that I

will get thru the episode. Sometimes, I end up really sick and in the

hospital for IV steroids.

Kendra

[Guest guest]

Hi Kendra,  I am really sorry to hear you are having such troubles.  That

certainly sounds like a vicious cycle.  I don't have any knowledge of adrenal

issues so I can't offer any thoughts on your course of action.  After Googling

adrenal failure, it makes me ask whether you have done any hormone therapy? I

have read a fair amount about Lyme screwing up hormone levels,. I had my  own

hormone levels tested in August because I began having hot flashes.  41 years

old seemed too young to put  up with this!  Sure enough, my hormone levels

were all at rock bottom, so I have been applying a hormone laden cream each day

that is created by a local compoun pharmacy, which has caused the hot flashes

and emotional sensitivity to go away.  The only other thought I have to  offer

is that I take 4.5 mg of  Low Dose Naltrexone (LDN) each night before bed. 

Do some resarch on that to see if it might play into your world at all.  I wish

you the very

best!  Take care, Brynn

________________________________

From: Kendra <KCuyler@...>

; brynn2068@...

Sent: Sat, November 7, 2009 8:29:11 PM

Subject: Re: [ ] Steroids

 

Brynn

I was treated with injections of Depo-Medrol months before I found the

rash that I now believe was a tick bite. I was also treated with oral

AND IV steroids and I had surgery twice. After the 2nd surgery I've

never been the same and have remained dependent on steroids for 20+

years after being dx'd with adrenal failure and hypothyroid.

Finally was dx'd with Lyme nearly 20 YEARS later. I read Burrascano's

guidelines but I don't know what I can do. I try to take the minimum

amt of steroids possible but when I go too low the adrenal failure

symptoms are so severe and so painful that I often don't think that I

will get thru the episode. Sometimes, I end up really sick and in the

hospital for IV steroids.

Kendra

On Sat, Nov 7, 2009 at 1:33 PM, Brynn <brynn2068 (DOT) com> wrote:

> Here was the startling comment from Dr. ph Burrascano, Jr's book, Advanced

Topics in Lyme Disease:

>  Never give steroids

> More evidence has accumulated indicating the severe detrimental effects of the

concurrent use of immunosuppressants including steroids in the patient with

active B. burgdorferi infection.

> or any other immunosuppressant to any patient who may even remotely be

suffering from Lyme, or serious, permanent damage may result, especially if

given for anything greater than a short course.

> immunosuppressive therapy is absolutely necessary, then potent antibiotic

treatment should begin at least 48 hours prior to the immunosuppressants.

>

> As someone who was diagnosed and treated with MS for ten years (incorrectly?

), it was really discoraging to read this, since steroids are always used for MS

flareups.  Obviously, I am not an expert but the info would definitely be a

subject to discuss with your doctor. If anyone would like copy of his booklet

pdf, send me a note and I would  be happy to email it over...it is a really

good read.  Brynn

[Guest guest]

This is a response I received from the post I sent regarding the fact that for some of us folks, prednisone, antidepressants, etc. can be not only necessary, but life-saving.  It really says what was on my mind, but in much better wording.  Thanks, Eyeon!

---------- Forwarded message ----------Hi ,  I wanted to post this to the group but seemed to only be able to get your email. If you like, feel free to group post.

   This is just to say how right you are in what you wrote about not everyone being able to avoid steroids, or certain other prescription meds. Fortunately for me, I don't need steroids, but have family members with asthma who do.  I've also known people with severe biochemical depression who would have been dead or more damaged long ago without some of the standard medications.

  These people are all serious about taking as little of any medications as possible. None are blind followers of mainstream medicine. All have spent countless hours, money and efforts trying more " natural " solutions. Some have helped - but even so, there are moments when the power of steroids, or anti-depressants, or other pharmaceuticals is life-saving.

   I've had what's inaccurately called 'chronic fatigue syndrome' for 12 years. Blasted my life -- not able to work, or socialize regularly. Can spend days to months, exhausted, half dizzy, sick feeling. Or get several clear, 'normal' hours a day and then be wiped out for a few days.

   Have spent myself almost into destitution trying " natural " supplements, various kinds of healing, standard and less standard testing. Some things I have taken have helped - mostly those things with research behind them, like acupuncture, and some of the supplements.

   But when it's an emergency, when I absolutely have to function -- say to get to a critical medical appointment -- or because I've gotten a letter from the IRS -- I have to do Provigil or Wellbutrin for a while -- because they are simply so much more powerful than the " natural " supplements.

   I've also had cancer and know people who have done standard treatment, alternative treatment and mixes. Some of each are alive; some of each are dead.    All this to both support what you say for yourself, and also to remind people that while a science-based critique of BigPharma culture is valid, there's also an equally uncritical new " orthodoxy " which insists, without evidence, that " natural " will cure anything, is always safer or more effective.

     Well guys, cholera is natural too; so is cancer; so are many poisons, molds, toxic substances. And though it's human nature to oversimplify and decide that if something works for you it should work for everyone else, that's not always true either.

     In some cases, less " natural " is even better. For example, with bioidentical hormones, a synthetic molecule that is actually matched to the human molecule is a lot cleaner than " natural " from animal sources.

     So, cheers for open-mindedness, proper skepticism and respect for evidence; including the evidence that people sometimes have different needs and responses. Eyeon   

[Guest guest]

I am researching this as well. I believe it is Dr. Duffy in Boston that uses a 6

month steroid protocol for treating seizures and is having success in

eliminating them with it. This is per our DAN! doctor.

>

> Has anyone had success with seizure control using steroids? If so what side

effects and how long was your child on them

>

[Guest guest]

we just did a 4 week steroid trial with prednisone. dose is 2mg per kg per day.

had referenced a georgetown univ study on prednisone and seizures ( zimmerman et

al) our autism doctor likes aldactone instead as it has antinflammatory

properties without the nasty side effects of prednisone, but both our

pediatrician and autism doc okayed the trial. they are awesome.

in researching this i found evidence of great success with lennox- gastaut

syndrome type epilepsy but alas the prednisone did not help us, daughter with

mixed type, atonic and absence and autism.

i then found an iteresting report from hopkins on the type of inflammation in

the brain, can't find link now will look. it discussed autism with seizures was

found to be an " innate " immune response, not " adaptive " immune response.

adaptive is like an allergen response, so they found steroids did not work on

" innate " type autoimmune inflammation.

predisone used to be the first drug given for seizure disorder way back when we

didnt have all these other drugs.

we are now trying hyperbaric for seizures... fingers crossed

good luck to you. you never know, the steroids sure looked promising to me.

teresa

>

> Has anyone had success with seizure control using steroids? If so what side

effects and how long was your child on them

>