Guest guest Posted July 8, 2010 Report Share Posted July 8, 2010 OMgosh so those bumps on the back of my throat are polops. I keep forgetting to mention them and asper is one of the toxins in my house. Makes sense of why they aren't going away and now I'm going to have to ask more questions of what the heck did the er do when I went last year. I can't even remember them doing a culture. Thank you. I feel better when I see these posts it will give me an idea of what type of treatment I should expect as I am already scared as it is. Have a great night everyone. I am going to go try to relax. I am so tired of being in toxins every day and it's about ready to end and I'm off to watch a show and relax for a few. ________________________________ From: osisposis <jeaninem660@...> Sent: Thu, July 8, 2010 1:58:13 PM Subject: [] fungal rhinosinusitis,fungal infection CNS,  well, I have high hopes for the antifungal nasal spray, I hope it makes my polops go away and allows some healing in the sinus>brain area. gezz, was trying to find a compounding pharmacy around here, the minute I mentioned antifungal things became a little different story. I'm going to get pretty upset if I cant get this done in my area, this is crazy. I wonder how my medicad ins. is going to take this.? I have a felling it's going to be a battle. Fungal infections of the CNS http://yassermetwally.wordpress.com/cns-infection/fungal-infections-of-the-cns/ Fungal infections of the central nervous system (CNS) are being increasingly diagnosed both in immunocompromised and immunocompetent individuals. Sinocranial aspergillosis is more frequently described from countries with temperate climates, more often in otherwise immunocompetent individuals. (maybe some WDB's are very closely like these temperate climates) Most of the fungi are aerosolized and inhaled and initiate a primary pulmonary infection which is usually self-limited. Hematogenous dissemination may follow the initial infection, with subsequent involvement of the CNS. Local extension from paranasal sinuses, ear and orbit [5] and rarely trauma [6] also provide the route to intracranial spread. -------------------------------------------- Vojnosanit Pregl. 2010 Mar;67(3):209-12. [impact of rhinosinusal polyposis on CT score in patients with chronic rhinosinustis] [Article in Serbian] Dudvarski Z, Janoseviæ L, Pender I, Djukiæ V, Jesiæ S, Dimitrijeviæ M, Arsoviæ N. Klinicki centar Srbije, Institut za otorinolaringologiju i maksilofacijalnu hirurgiju, Beograd, Srbija. dudvarski@... Abstract BACKGROUND/AIM: Chronic sinusitis is a disease characterized with mucosal inflammation of nasal and paranasal sinuses for at least 12 weeks. In order to assess the extent and severity of inflammatory changes in paranasal sinuses CT score according to Lund-Mackay is the most commonly used. Recent studies show the possibility of existing different subtipes of chronic rhinosinusitis, pointing out the presence of nasal polyps and their influence on the severity of chronic rhinosinusitis. The aim of this research was to examine the influence of sinonasal polyposis on the extensity of inflammatory changes on computerized tomography (CT), evaluated by the Lund-Mackay CT score. METHODS: A prospective study compared the Lund-Mackay CT score values between the patients with chronic rhinosinusitis associated with nasal polyps and those without them. We determined mean values of the total CT score in both groups of the patients, as well as mean values of CT score for each group of sinuses and ostiomeatal complexes. RESULTS: The study included 90 patients, 47 males and 43 females, 45-year old on average, diagnosed with chronic rhinosinusitis on the basis of diagnostic algorithm. The group with uncomplicated chronic rhinosinusitis (without nasal polyps) consisted of 30 patients and the group with complicated chronic rhinosinusitis (with nasal polyps) of 60 patients. Observing these two groups of patients revealed statistically highly important intergroup difference in CT score for each group of sinuses and ostiomeatal complexes. The mean value of total CT score in the group with uncomplicated chronic rhinosinusitis was 4.37 while in the group with complicated chronic rhinosinusitis it was 16.05 (p < 0.01). CONCLUSION: Chronic rhinosinusitis complicated by sinonasal polyposis is characterized with more extensive inflammatory changes on CT and, consequently, with higher CT score for each group of sinuses and ostiomeatal complexes, as well as higher total CT score. PMID: 20361694 [PubMed - indexed for MEDLINE] http://www.ncbi.nlm.nih.gov/pubmed/20361694 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. Abrams Pharmacy 214-349-8000 or 800-458-0804 www.abramsroyalpharmacy.com > > well, I have high hopes for the antifungal nasal spray, I hope it makes my polops go away and allows some healing in the sinus>brain area. gezz, was trying to find a compounding pharmacy around here, > the minute I mentioned antifungal things became a little different story. I'm going to get pretty upset if I cant get this done in my area, this is crazy. I wonder how my medicad ins. is going to take this.? I have a felling it's going to be a battle. > > > Fungal infections of the CNS > > http://yassermetwally.wordpress.com/cns-infection/fungal-infections-of-the-cns/ > > Fungal infections of the central nervous system (CNS) are being increasingly diagnosed both in immunocompromised and immunocompetent individuals. Sinocranial aspergillosis is more frequently described from countries with temperate climates, more often in otherwise immunocompetent individuals. > > (maybe some WDB's are very closely like these temperate climates) > > Most of the fungi are aerosolized and inhaled and initiate a primary pulmonary infection which is usually self-limited. Hematogenous dissemination may follow the initial infection, with subsequent involvement of the CNS. Local extension from paranasal sinuses, ear and orbit [5] and rarely trauma [6] also provide the route to intracranial spread. > -------------------------------------------- > Vojnosanit Pregl. 2010 Mar;67(3):209-12. > > [impact of rhinosinusal polyposis on CT score in patients with chronic rhinosinustis] > [Article in Serbian] > > Dudvarski Z, Janoseviæ L, Pender I, Djukiæ V, Jesiæ S, Dimitrijeviæ M, Arsoviæ N. > > Klinicki centar Srbije, Institut za otorinolaringologiju i maksilofacijalnu hirurgiju, Beograd, Srbija. dudvarski@... > > Abstract > BACKGROUND/AIM: Chronic sinusitis is a disease characterized with mucosal inflammation of nasal and paranasal sinuses for at least 12 weeks. In order to assess the extent and severity of inflammatory changes in paranasal sinuses CT score according to Lund-Mackay is the most commonly used. Recent studies show the possibility of existing different subtipes of chronic rhinosinusitis, pointing out the presence of nasal polyps and their influence on the severity of chronic rhinosinusitis. The aim of this research was to examine the influence of sinonasal polyposis on the extensity of inflammatory changes on computerized tomography (CT), evaluated by the Lund-Mackay CT score. METHODS: A prospective study compared the Lund-Mackay CT score values between the patients with chronic rhinosinusitis associated with nasal polyps and those without them. We determined mean values of the total CT score in both groups of the patients, as well as mean values of CT score for each group of sinuses and ostiomeatal complexes. RESULTS: The study included 90 patients, 47 males and 43 females, 45-year old on average, diagnosed with chronic rhinosinusitis on the basis of diagnostic algorithm. The group with uncomplicated chronic rhinosinusitis (without nasal polyps) consisted of 30 patients and the group with complicated chronic rhinosinusitis (with nasal polyps) of 60 patients. Observing these two groups of patients revealed statistically highly important intergroup difference in CT score for each group of sinuses and ostiomeatal complexes. The mean value of total CT score in the group with uncomplicated chronic rhinosinusitis was 4.37 while in the group with complicated chronic rhinosinusitis it was 16.05 (p < 0.01). CONCLUSION: Chronic rhinosinusitis complicated by sinonasal polyposis is characterized with more extensive inflammatory changes on CT and, consequently, with higher CT score for each group of sinuses and ostiomeatal complexes, as well as higher total CT score. > > PMID: 20361694 [PubMed - indexed for MEDLINE] > http://www.ncbi.nlm.nih.gov/pubmed/20361694 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 J, key pharmacy in kent WA, they do exactly what Gray prescribes plus they will allways help you with any ?? K From: dianebolton52 <dianebolton@...> Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, Date: Friday, July 9, 2010, 10:50 AM Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. Abrams Pharmacy 214-349-8000 or 800-458-0804 www.abramsroyalpharmacy.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 Forgive me, but polyps might have to be removed. They can do a minor laser surgery. It's not a big deal. They do it outpatient, you go home the same day. Please go to an ENT. Blessings, Kathy  <dianebolton@...> Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. Abrams Pharmacy 214-349-8000 or 800-458-0804 www.abramsroyalpharmacy.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2010 Report Share Posted July 9, 2010 No need, anti-fungals take care of them. From: KathyB <calicocat477@...> Subject: [] Re: Re: fungal rhinosinusitis,fungal infection CNS, Date: Friday, July 9, 2010, 5:36 PM Forgive me, but polyps might have to be removed. They can do a minor laser surgery. It's not a big deal. They do it outpatient, you go home the same day. Please go to an ENT. Blessings, Kathy  <dianebolton@...> Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. Abrams Pharmacy 214-349-8000 or 800-458-0804 www.abramsroyalpharmacy.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 a is right. This is good stuff. My daughter used to have to have sinus surgery about every two years before she used this. She has not used the nasal spray in a long time. But, she has also not required any surgery or developed any more polyps since using it. Last sinus surgery was in 2003. In a message dated 7/10/2010 7:30:37 A.M. Pacific Daylight Time, kmtown2003@... writes: No need, anti-fungals take care of them. From: KathyB <_calicocat477@..._ (mailto:calicocat477@...) > Subject: [] Re: Re: fungal rhinosinusitis,fungal infection CNS, _ _ (mailto: ) Date: Friday, July 9, 2010, 5:36 PM Forgive me, but polyps might have to be removed. They can do a minor laser surgery. It's not a big deal. They do it outpatient, you go home the same day. Please go to an ENT. Blessings, Kathy <_dianebolton@..._ (mailto:dianebolton@...) > Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. Abrams Pharmacy 214-349-8000 or 800-458-0804 www.abramsroyalpharmacy.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Diane, Is this nasal spray good for systemic things also like Dr M used to prescribe or suggested for nasal infections only? Thanks > > Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. > > Abrams Pharmacy 214-349-8000 or 800-458-0804 > www.abramsroyalpharmacy.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Thanks for the info K and Daine, can you fill me in on cost K ? I need my medicaid to cover it but that probably wont happen inless I can get a local compounding pharmacy to do it. sounds like I may get some help fighting them from az. theres really no reason why they shouldn't be able to do it here and medicaid should cover it. so well see how that goes. > > From: KathyB <calicocat477@...> > Subject: [] Re: Re: fungal rhinosinusitis,fungal infection CNS, > > Date: Friday, July 9, 2010, 5:36 PM > > Forgive me, but polyps might have to be removed. They can do a minor laser surgery. It's not a big deal. They do it outpatient, you go home the same day. > > Please go to an ENT. > > Blessings, Kathy > > > Â <dianebolton@...> > > Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, > > Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. > > Abrams Pharmacy 214-349-8000 or 800-458-0804 > > www.abramsroyalpharmacy.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Thanks Kathy, but theres alittle more to it for me, and I'm hopeing I can avoid surgery. with chronic rhinosinusitis theres a high rate of polops comeing back and of csf leaks which I already have. > > Forgive me, but polyps might have to be removed. They can do a minor laser surgery. It's not a big deal. They do it outpatient, you go home the same day. > > Please go to an ENT. > > Blessings, Kathy > > > Â <dianebolton@...> > Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, > > > > > Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. > > > > Abrams Pharmacy 214-349-8000 or 800-458-0804 > > www.abramsroyalpharmacy.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 I'm sorry for commenting when I don't have experience with nasal polyps. I had sinus bone spurs removed years ago, before my mold exposure by an ENT. They caused terrible headaches. I don't recall the cost, our insurance covered it. I don't know whether medicaid does. If there is a spray that works, use that. Have your doc. check out progress. Kathy From: snk1955@... <snk1955@...> Subject: Re: [] Re: Re: fungal rhinosinusitis,fungal infection CNS, Date: Saturday, July 10, 2010, 9:38 AM a is right. This is good stuff. My daughter used to have to have sinus surgery about every two years before she used this. She has not used the nasal spray in a long time. But, she has also not required any surgery or developed any more polyps since using it. Last sinus surgery was in 2003. In a message dated 7/10/2010 7:30:37 A.M. Pacific Daylight Time, kmtown2003@... writes: No need, anti-fungals take care of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Kathy, no problem, we are all learning here. you cant just get this antifungal nasal spray from any doctor, and you cant get just any compounding pharmacy to fill the scrip. theres just not much about this disease that is easy, largely because it's been tottally ignored for decades. so theres alot of medical information out there that just doesn't fit with what we deal with and you have to do alot of reading inbetween the lines and mainly trust in yourself and what your know is true. to a large extent, you have to be your own doctor. and thank goodness for the few doctors out there that are trying to help us. > > I'm sorry for commenting when I don't have experience with nasal polyps. > > I had sinus bone spurs removed years ago, before my mold exposure by an ENT. They caused terrible headaches. > > I don't recall the cost, our insurance covered it. I don't know whether medicaid does. If there is a spray that works, use that. Have your doc. check out progress. > > Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 Hi: I haven't been following all the emails and am curious about this prescription nasal spray. Is there a web link, name, ingredients, etc to take a look at it? Thanks, Rosie From: [mailto: ] On Behalf Of osisposis Sent: Saturday, July 10, 2010 3:43 PM Subject: [] Re: fungal rhinosinusitis,fungal infection CNS, Kathy, no problem, we are all learning here. you cant just get this antifungal nasal spray from any doctor, and you cant get just any compounding pharmacy to fill the scrip. theres just not much about this disease that is easy, largely because it's been tottally ignored for decades. so theres alot of medical information out there that just doesn't fit with what we deal with and you have to do alot of reading inbetween the lines and mainly trust in yourself and what your know is true. to a large extent, you have to be your own doctor. and thank goodness for the few doctors out there that are trying to help us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 I used it religiously for about two years. Its GREAT. For me, it would help clear up brain fog within minutes of inhaling. For my daughter, it helped to cause large amounts of discharge from her sinuses. Sharon K In a message dated 7/10/2010 6:57:49 P.M. Pacific Daylight Time, dianebolton@... writes: I have never used this nasal spray Barb, was just giving Jeannine the info for Abrams as I am sure they could help her out filling her script. > > > > Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. > > > > Abrams Pharmacy 214-349-8000 or 800-458-0804 > > www.abramsroyalpharmacy.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2010 Report Share Posted July 10, 2010 I have never used this nasal spray Barb, was just giving Jeannine the info for Abrams as I am sure they could help her out filling her script. > > > > Jeannine: I dont know what state you are in, but Abrams Royal Pharmacy in Dallas,Texas is a compounding pharmacy that will ship. So give them a call, see if they can help you out. > > > > Abrams Pharmacy 214-349-8000 or 800-458-0804 > > www.abramsroyalpharmacy.com > > > > > Quote Link to comment Share on other sites More sharing options...
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