LDN

October 24, 2007

Hi Clare,LDN is most effective in halting progression of MS. It may or may not relieve symptoms.In any case, I suggest you not depend solely on LDN to defeat your MS. Other considerations like diet, food allergens, and stress are also important. For more informaton, visithttp://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delanyFrom: Clare Magee

Sent: Wednesday, October 24, 2007 3:13 AM

low dose naltrexone

Subject: [low dose naltrexone] ldn

Hi All

For the past year now I have muscle spasms. Has anyone had this experience.My left leg goes stiff an numb, my left hand goes the same and makes a fist shape completely stiff, this only lasts seconds but is very frightening.I started on ldn 9 weeks ago prescribed by Dr Crowley Kilkenny. I live in Cork so travelled to see him,about 150 miles.I can report a great improvement in my fatigue but not in symptoms yet, especially pins and needles, numbness. balance ,and muscle spasms which I had one at 3am last night while sleeping.Can anyone throw any light on these. I am new to the sight, but love reading your emails because the information you share is great.

Regards,

Clare.

October 24, 2007

Dear Clare ,

I was feeling great improved in fatigue but not in tightness spasms after 5 months on ldn in fact my tightness increased. I discovered www.cpnhelp.org which has treatment for chylamdia pnemonia infections which is considered a cause (bacterial) underlying for MS I have been on that protocol additionally with lddn and all most all my symptoms have receded. Check it out I am quite pleased . Please understand that I am quite clearly aware that every incidence of MS or exacerbation was preceded by flushish walking/pnemonis symptoms Barbara

low dose naltrexone From: claremagee@...Date: Wed, 24 Oct 2007 08:13:44 +0100Subject: [low dose naltrexone] ldn

Hi All

For the past year now I have muscle spasms. Has anyone had this experience.My left leg goes stiff an numb, my left hand goes the same and makes a fist shape completely stiff, this only lasts seconds but is very frightening.I started on ldn 9 weeks ago prescribed by Dr Crowley Kilkenny. I live in Cork so travelled to see him,about 150 miles.I can report a great improvement in my fatigue but not in symptoms yet, especially pins and needles, numbness. balance ,and muscle spasms which I had one at 3am last night while sleeping.Can anyone throw any light on these. I am new to the sight, but love reading your emails because the information you share is great.

Regards,

Clare.

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October 24, 2007

Hi Barbara

Thank you for information.

Regards,

Clare.

[low dose naltrexone] ldn

Hi All

For the past year now I have muscle spasms. Has anyone had this experience.My left leg goes stiff an numb, my left hand goes the same and makes a fist shape completely stiff, this only lasts seconds but is very frightening.I started on ldn 9 weeks ago prescribed by Dr Crowley Kilkenny. I live in Cork so travelled to see him,about 150 miles.I can report a great improvement in my fatigue but not in symptoms yet, especially pins and needles, numbness. balance ,and muscle spasms which I had one at 3am last night while sleeping.Can anyone throw any light on these. I am new to the sight, but love reading your emails because the information you share is great.

Regards,

Clare.

Windows Live Hotmail and Microsoft Office Outlook – together at last. Get it now!

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.8/1089 - Release Date: 23/10/2007 19:39

October 24, 2007

Thank you for information Dudley.

Regards,

Clare

Re: [low dose naltrexone] ldn

Hi Clare,LDN is most effective in halting progression of MS. It may or may not relieve symptoms.In any case, I suggest you not depend solely on LDN to defeat your MS. Other considerations like diet, food allergens, and stress are also important. For more informaton, visithttp://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delany

From: Clare MageeSent: Wednesday, October 24, 2007 3:13 AMlow dose naltrexone Subject: [low dose naltrexone] ldn

Hi All

For the past year now I have muscle spasms. Has anyone had this experience.My left leg goes stiff an numb, my left hand goes the same and makes a fist shape completely stiff, this only lasts seconds but is very frightening.I started on ldn 9 weeks ago prescribed by Dr Crowley Kilkenny. I live in Cork so travelled to see him,about 150 miles.I can report a great improvement in my fatigue but not in symptoms yet, especially pins and needles, numbness. balance ,and muscle spasms which I had one at 3am last night while sleeping.Can anyone throw any light on these. I am new to the sight, but love reading your emails because the information you share is great.

Regards,

Clare.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.8/1089 - Release Date: 23/10/2007 19:39

October 24, 2007

Many thanks for information.

Regards,

Clare.

[low dose naltrexone] Re:ldn

Clare

The nutritional supplements listed on Dr Lawrence's site may be very beneficial to you. I think it is the MS Research Trust.

mjh

Posted by: "Clare Magee" claremageeimagine (DOT) ie

Wed Oct 24, 2007 12:13 am (PST)

Hi AllFor the past year now I have muscle spasms. Has anyone had this experience.My left leg goes stiff an numb, my left hand goes the same and makes a fist shape completely stiff, this only lasts seconds but is very frightening.I started on ldn 9 weeks ago prescribed by Dr Crowley Kilkenny. I live in Cork so travelled to see him,about 150 miles.I can report a great improvement in my fatigue but not in symptoms yet, especially pins and needles, numbness. balance ,and muscle spasms which I had one at 3am last night while sleeping.Can anyone throw any light on these. I am new to the sight, but love reading your emails because the information you share is great.Regards,Clare.

See what's new at AOL.com and Make AOL Your Homepage.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.8/1089 - Release Date: 23/10/2007 19:39

October 24, 2007

You may be having a tonic or paroxysmal spasm. You can Google it to read more, but here is what the MS Society has to say: "Paroxysmal spasm A sudden, uncontrolled limb contraction that occurs intermittently, lasts for a few moments, and then subsides."

I do not find that LDN relieves these at all--only trileptal which is an anti-seizure medication.

Joyce See what's new at AOL.com and Make AOL Your Homepage.

October 25, 2007

Hi and everyone else,The DVD will take around six weeks from tape to completion. You can send me an email at psychrn@... and I'll put your name aside and send you an email when they are almost ready to go. Shooting it is easy. Adam is capturing right now (thats when you take the tapes and transfer the information into a hard drive) then we have to editcreate an actual workable dvdcreate artwork- we have lovely picture from dr MCc's site of an endorphin so if I know who wants one it give me a good idea how many to order when we get them reproduced.I did a lovely interview with Dr Crowley today. I was so upset that Dr ce was not there-I had so many questions for him about his protocol especially when people are exacerbating. So my prayers go out for him.cyndiOn Oct 25, 2007, at 10:44 AM, Clare Magee wrote:Hello I would love a copy of the dvd when it is ready can you help?. Clare.

October 25, 2007

Please drop a note when the dvd is ready.

I am so unhappy about missing the conference that I want to see it as soon as

possible.

Regards,

Bruce

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Cyndi Lenz

Sent: Thursday, October 25, 2007

6:04 PM

low dose naltrexone

Subject: Re: [low dose naltrexone]

ldn

Hi and everyone else,

The DVD will take around six weeks from tape to completion. You can

send me an email at psychrn@... and

I'll put your name aside and send you an email when they are almost ready to

go. Shooting it is easy. Adam is capturing right now (thats when you take the

tapes and transfer the information into a hard drive)

then we have to edit

create an actual workable dvd

create artwork- we have lovely picture from dr MCc's site of an

endorphin

so if I know who wants one it give me a good idea how many to order

when we get them reproduced.

I did a lovely interview with Dr Crowley today. I was so upset that Dr

ce was not there-I had so many questions for him about his

protocol especially when people are exacerbating. So my prayers go out for

him.

cyndi

On Oct 25, 2007, at 10:44 AM, Clare Magee wrote:

Hello

I would love a copy of the dvd when it is ready can you help?.

Clare.

November 9, 2007

Hello Liz,

I run the LDN_4_cancer site and you might want to join

that group also for all the information you are

looking for.

LDN_4_cancer/

The links section give you all the information:

LDN_4_cancer/links

You need a prescription from a GP but if you have

difficulty in finding one we have lists of prescribing

doctors to help you.

Please feel free to contact me anytime,

Dee

--- imsinfo <imsinfo@...> wrote:

> I have red about this drug and it seems it is

> effective.

> If somebody used it and know where it is available?

> Were is it possible to buy LDN ?

> Thanks, Liz

November 24, 2007

Hi All

Regarding LDN for a lymphoprolific disorder. I have Mantle Cell Lymphoma with Lymphocytosis I tried the LDN when I had been lucky enough to have my WBC at 25 ( normal 4 to 11) I used it for one month and it increased the wbc by 20% to 30. So that is not the result you want with CLL. Just a friendly warning, I was very disapointed that the LDN was not good for me.

November 24, 2007

Hi ,Sorry that LDN does not appear to be working for you. Perhaps, as happens when LDN is used to treat MS, the symptoms of CLL get worse before getting better. This is where it would be nice to have input from others with CLL who HAVE used LDN successfully, and how it went for them (not to mention, of course, research bearing on the issue).You might want to give LDN more than one month trial period. The full therapeutic effect of LDN is often not achieved for weeks, months, or sometimes even a year or more.With best wishes,Dudley Delany

dudley_delanyFrom: Kilner

Sent: Saturday, November 24, 2007 12:54 PM

low dose naltrexone

Subject: [low dose naltrexone] Re:LDN

Hi All

Regarding LDN for a lymphoprolific disorder. I have Mantle Cell Lymphoma with Lymphocytosis I tried the LDN when I had been lucky enough to have my WBC at 25 ( normal 4 to 11) I used it for one month and it increased the wbc by 20% to 30. So that is not the result you want with CLL. Just a friendly warning, I was very disapointed that the LDN was not good for me.

December 5, 2007

Hi Sonja,I don't think symptom improvement is that rare an occurance when using LDN.In the study of LDN for Crohn's disease summarized athttp://tinyurl.com/2urywq89% of the participants experienced at least some symptomatic improvement, and 67% experienced total remission of their symptoms.Also, there is more to treating your various conditions than just using LDN. There are other important factors to consider, such as diet, food allergies, and stress. For more information, visithttp://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delanyFrom: SONJA Dawson

Sent: Wednesday, December 5, 2007 10:18 AM

low dose naltrexone

Subject: [low dose naltrexone] LDN

Hi List Group~I'm still here reading and reading...........I have been told repeatedly that "the only thing I can expect for the good, is no progression on my brain"I'm reading all yall that want symptom improvement and I have not had any......I wish that I could get symtom relief also but....I couldn't drive for a month with my right leg going dead and now it's a wax and wane situation........having to use a cane for the most part and before LDN I had little problems with my walking~ I have had problems in the past. I'm gunna stay on LDN but not everyone has symptom improvements ~ If you have them you are VERY VERY LUCKY.Christmas BlessingsSonjaMS, FMS, SS, Conecting Tissue Disease LDN 4 months

December 6, 2007

ï»¿

Do you have and go to chiropractors? Maybe try to find one that will work with you.

Do you crave and eat chocolate? Perhaps quit it cold turkey for 4 weeks minimum and see how you feel after over 3 weeks.

Do you drink a lot of coffee and caffeine products? Quit it cold turkey and in 3-4 weeks you should notice a difference.

Do you take any vitamins? I recommend only B1 - 100 MG, I don't know for sure, but it seems to be the thing responsible for my legs' improvements back in 2005. This year when I had bought refills, moved and misplaced the, I ran out and stopped taking them. A few days later I realized it had to be the B1 that helped my legs, stopped and go a new bottle and 2 days later my legs were fine again.

IN the early days/months of LDN, I think if someone is super fatigued, their body may have a LOT of issues it wants to 'check out', the body works best while sleeping, so maybe it's just encouraging lots of sleep to it can do some work?

I only take LDN 3.0 and B1 100 MG every day

NO guarantees, but no charge either. FIFO and GIGO

Good luck

JMHO, OC, YMMV, HAND

-- LarryGC/LarryLDN LDN Info rrms

[low dose naltrexone] LDN

Hi List Group~I'm still here reading and reading...........I have been told repeatedly that "the only thing I can expect for the good, is no progression on my brain"I'm reading all yall that want symptom improvement and I have not had any......I wish that I could get symptom relief also but....I couldn't drive for a month with my right leg going dead and now it's a wax and wane situation........having to use a cane for the most part and before LDN I had little problems with my walking~ I have had problems in the past. I'm gunna stay on LDN but not everyone has symptom improvements ~ If you have them you are VERY VERY LUCKY.Christmas BlessingsSonjaMS, FMS, SS, Conecting Tissue Disease LDN 4 months

December 6, 2007

Hi Lorna,

LDN is recommended for all forms of MS. For more information about LDN in the

treatment of MS, visit

http://tinyurl.com/grpm9

All the best,

Dudley Delany

dudley_delany

[low dose naltrexone] ldn

Is ldn recommended for RRMS as well as progressive? Thought I read

something about this that I cannot now recall.

Lorna

December 12, 2007

Hi Cristine,Your doctor is dead wrong. Don't take more than 4.5 mg nightly. Anything more is counterproductive. Take the 50 mg tablets and make our own liquid LDN according to the instructions given here:http://tinyurl.com/2dfbvdFor additional information about LDN, visithttp://tinyurl.com/2boot2With best wishes,Dudley Delany

dudley_delany

December 13, 2007

, above 6 mg's may actually INCREASE disease

progression. Your doctor has you on way to much.

December 13, 2007

>

> Hi All, I'm new to the group and fairly new to LDN. My doctor

> prescribed a 50mg tablet and told me to cut it in half and take 25

mg.

> I notice a lot of you folks are getting much lower doses at

compounding

> pharmacies. What is the difference? Is one method more beneficial

> than the other? Am I wasting my time? Love to hear your feedback.

>

===============

Please read the LDN website, doses over 4.5mg can make autoimmune

diseases and cancers worse.

www.ldninfo.org

, LDN user over 4 years, no progression of MS since starting on

LDN.

December 31, 2007

Hi ,

This site will tell you how to get LDN without a prescription:

http://tinyurl.com/2dfbvd

With best wishes for the New Year,

Dudley

From: szukipoo

Dudley,

Where can I find a vet who is very reasonably priced to get a perscription

for LDN for Flurry? My homeopathic vet has been unresponsive.

Thanks,

February 7, 2008

Yes, they are reputable source for Naltrexone.

>

> I bought ldn 50mg from eshoprx is it safe thanks

>

February 7, 2008

My understanding is that LDN can be used to help some types of diabetes. A few people have written in that their blood pressure is better after using LDN. Just watch everything carefully while trying any new drug.

[low dose naltrexone] ldn

can i take ldn if i have diabetes, high blood pressure and thyroid thanks

February 7, 2008

To Art Hansen: loving greetings Art. Sounded like you might be

an authority on Naltrexone and the maladies it is meant to relieve

or remove. Please excuse me if I'm assuming too much. I have no

idea where Naltrexone can be purchased in Winnipeg, Manitoba,

Canada, or in what strength: or what producer or brand name I

should look for. What strength is it safe to start with?

I've seen MS often mentioned in all the communications my Inbox

has been flooded with. Has anyone considered that Aspertame

(poison) sweetener might be responsible for a host of autoimmune

diseases. A key figure in the U.S. government has a major share in

the manufacture of this deadly substance. I'm wondering if many

seemingly "harmless" food additives are wreaking havoc with our

health? I'd be grateful for a response from someone who might be

in a position to know the answers. Thank you and God bless you;

remember, Jesus loves you, and gave His life to save us and heal

our diseases. With all of our love to each one of you.

[low dose naltrexone] Re: ldn

Yes, they are reputable source for Naltrexone.>> I bought ldn 50mg from eshoprx is it safe thanks>

February 7, 2008

I would say yes, but you should run this by your doctor first or call

Dr. Skip Lenz and ask him just to be safe. 561.218.0111

-Art

--

>

> can i take ldn if i have diabetes, high blood pressure and thyroid

> thanks

>

February 7, 2008

Thank you for your kind remarks.

You too can become an expert on LDN by reading thoroughly Dr. Gluck's

great website. Most questions can be answered from there.

http://www.low dose naltrexone.org/

When starting LDN the conservative recommendation is: 1st month

1.5mgs, 2nd month 3.0mgs and 3rd month 4.5mgs, which is the optimal

adult dosage.

And yes I agree Aspertame is not good for your health, along with a

bunch of other things.

-Art

Diagnosed with MS April 1988

Using LDN since March 2005

--

>

> To Art Hansen: loving greetings Art. Sounded like you might be

> an authority on Naltrexone and the maladies it is meant to relieve

> or remove. Please excuse me if I'm assuming too much. I have no

> idea where Naltrexone can be purchased in Winnipeg, Manitoba,

> Canada, or in what strength: or what producer or brand name I

> should look for. What strength is it safe to start with?

> I've seen MS often mentioned in all the communications my Inbox

> has been flooded with. Has anyone considered that Aspertame

> (poison) sweetener might be responsible for a host of autoimmune

> diseases. A key figure in the U.S. government has a major share in

> the manufacture of this deadly substance. I'm wondering if many

> seemingly " harmless " food additives are wreaking havoc with our

> health? I'd be grateful for a response from someone who might be

> in a position to know the answers. Thank you and God bless you;

> remember, Jesus loves you, and gave His life to save us and heal

> our diseases. With all of our love to each one of you.

>

February 7, 2008

You can purchase Naltrexone from River Pharmacy which is located in

Canada.

http://www.riverpharmacy.com

They come in 50mgs tablets from which you can make homemade liquid