LDN

[Guest guest]

Hi pinkmatsy,It is doubtful whether LDN can help in that particular situation. However, may I suggest the application of hot castor oil packs over the liver and gall bladder area. To learn more about this particular modality, visithttp://www.edgarcayce.org/health/database/chdata/data/thcast1.htmlAll the best,Dudley Delany

dudley_delanyFrom: pinkmatsy

Sent: Sunday, February 10, 2008 10:53 PM

low dose naltrexone

Subject: [low dose naltrexone] ldn

can ldn help with galbladder atacks

[Guest guest]

Jim,

Are you folloeing the MS diet? and taking the required nutrient therapy?

low dose naltrexone From: jharbott@...Date: Wed, 20 Feb 2008 15:30:38 -0700Subject: [low dose naltrexone] LDN

I've been on LDN three years, I'm still having urinary track infection, antibiotics treats it for a few weeks, then it's back again, what can I do to cure the infection? I have taken cranberry tablets, but I don't think they do much good.

Thanks,

Jim H.---- Msg sent via CableONE.net MyMail - http://www.cableone.net Everything in one place. All new Windows Live!

[Guest guest]

Add d-mannose instead of cranberry

[low dose naltrexone] LDN

I've been on LDN three years, I'm still having urinary track infection, antibiotics treats it for a few weeks, then it's back again, what can I do to cure the infection? I have taken cranberry tablets, but I don't think they do much good.

Thanks,

Jim H.---- Msg sent via CableONE.net MyMail - http://www.cableone.net

Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.11.19/956 - Release Date: 8/16/2007 9:48 AM

[Guest guest]

Joyce,

I've tried MS diet gulten free, I really haven't noticed any change, do you have a diet and required nutrients you could forward?

Best to you,

Jim H

On Wed Feb 20 15:37 , Joyce Brannigan sent:

Jim,

Are you folloeing the MS diet? and taking the required nutrient therapy?

low dose naltrexone

From: jharbottcableone (DOT) net

Date: Wed, 20 Feb 2008 15:30:38 -0700

Subject: [low dose naltrexone] LDN

I've been on LDN three years, I'm still having urinary track infection, antibiotics treats it for a few weeks, then it's back again, what can I do to cure the infection? I have taken cranberry tablets, but I don't think they do much good.

Thanks,

Jim H.

---- Msg sent via CableONE.net MyMail - http://www.cableone.net

Everything in one place. All new Windows Live! Msg sent via CableONE.net MyMail - http://www.cableone.net

[Guest guest]

Hi Jim,

Just a quick thought. Have you ever tried D-Mannose? I know a gal who had infection after infection and once she started this, never had another problem.

http://www.healingtherapies.info/D-Mannose.htm

Liz

___________________________________

www.ojaipaintedminis.com

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of jharbott@...Sent: Wednesday, February 20, 2008 5:07 PMlow dose naltrexone Subject: RE: [low dose naltrexone] LDN

Joyce,

I've tried MS diet gulten free, I really haven't noticed any change, do you have a diet and required nutrients you could forward?

Best to you,

Jim HOn Wed Feb 20 15:37 , Joyce Brannigan sent:

Jim, Are you folloeing the MS diet? and taking the required nutrient therapy?

low dose naltrexone From: jharbottcableone (DOT) netDate: Wed, 20 Feb 2008 15:30:38 -0700Subject: [low dose naltrexone] LDN

I've been on LDN three years, I'm still having urinary track infection, antibiotics treats it for a few weeks, then it's back again, what can I do to cure the infection? I have taken cranberry tablets, but I don't think they do much good.Thanks,Jim H.---- Msg sent via CableONE.net MyMail - http://www.cableone.net

Everything in one place. All new Windows Live!

Msg sent via CableONE.net MyMail - http://www.cableone.net

[Guest guest]

>

> I have a friend who said go to this website and hang around a few days.

> I would learn how to get ldn at very low cost and with no script.I've

> met some great people but no ldn.

>

I cant help in the US; maybe someone here knows around in Il?

I am a bit confused: you got liver/gallbladder problem or multiple

sclerosis? I may have lost something here - or mixed up threads?

Anyway good luck again!

[Guest guest]

,

Hang out a little longer

annf02

In a message dated 3/25/2008 8:02:38 A.M. Eastern Daylight Time, shilst@... writes:

I have a friend who said go to this website and hang around a few days. I would learn how to get ldn at very low cost and with no script.I've met some great people but no ldn. Create a Home Theater Like the Pros. Watch the video on AOL Home.

[Guest guest]

ABRI - you're blessed not to have gotten more than a terrible headache!! most overdoses react much worse!!

marshiris@...

Planning your summer road trip? Check out AOL Travel Guides.

[Guest guest]

I would also like to recommend the words of THICH NHAT HANH ... he has great gentleness and the answers to true inner peace. with Warm Blessings for Strength and Courage ... of which we ALL need.

a

In a message dated 4/20/2008 12:08:52 P.M. Eastern Daylight Time, sassyfur98@... writes:

You can not change life, life changes you. You can control the energyyour life brings you though. The more positive energy you put out, themore that comes back to you. And you need to believe.The hardest thing I have ever had to do was learn this!! And step backand take care of myself first. The people in your life that truly loveyou and support you, will understand this, and be there for you. Therest are just excess baggage, and the sooner you get rid of them, thebetter off you will be. And those that seemed to be a negative force,may very well respond to your positive energy, and be a positive forceyou didn't even know they could be. Let the answers come to you,instead of always looking for them.I was always out trying to change the world, and it always ended in mystress levels being more than I could handle, and looking back, Ididn't accomplish anything. Now, I change the world because I havechanged myself. My happiness, my serenity, my peace with what will be,will be, gives me all this in return. People listen, they see, andthey believe. THIS is what changes the world!!! Make them listen, see,and believe, and you are on your way to changing the world, andyourself! SHOW them the path, and what is possible. Be the one toradiate strength, wisdom and peace, and you may very well be surprisedwho and what responds.Stop crying, and start LIVING!! Take back control. Demand what youdeserve..happiness, health, and peace. That being said, it seems you now know what causes these lesions, andhow to prevent them. Don't give up on LDN>....just believe....it canwork, but even miracles need something to work with. YOU are your ownbest medicine.....the rest is just an aid!!!Thank god your son is ok! I may know how he feels, as I did the samething at 15 yrs old. I don't want to clutter the boards with my story,so if you are interested, or looking for answers, email me privately.Just maybe I can give you some insight on the mind of a confusedteenager. sassyfur98 Good luck to you, my thoughts are with you and your familySaundra>> I just wanted to update everyone on my progress. On March 3rd my MRI > was looking great!!! Shortly after that my 14 year old son decided to > try and end his life by taking a ton of pills. Praise God he wasnt > successfull. It has been a battle with him. 3 weeks later my little > brother (25 yrs old) killed himself. He overdosed on heroin. This is > very hard for me to handle. This last week my other little brother > wrecked on his motorcycle and broke in half 6 of his ribs. I went > down to take care of him. During all this time my husband has decided > he is sick of me. I am not what he wants anymore. Instead saying it > out right he has continued to upset me. I have been crying for 6 wks. > The reason for telling you all this? I went to my neuro yesterday > because I have been having trouble with my right leg and hand. He > sent for another MRI right away. I found out that I have a new > lession on the left side of my brain that is positioned in the area > of my mobility for the right side of my body. This lession is three > times the size of any that I have had. My neuros wordds where the LDN > is not strong enough for your life style. He wanted to put me on > steroids and Rebif again. I refused. I asked for another 3months on > LDN to give a fair chance to work. He then said no matter what drugs > your using, with the amount of stress in your life you will be in a > home in less than a year. He told me to send my husband packing.> Anyway I want everyone to know that even with LDN stress is > terrible. All of us with MS really need to lead a simple life. If LDN > is going to do its job we must do ours.> Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

You can not change life, life changes you. You can control the energy

your life brings you though. The more positive energy you put out, the

more that comes back to you. And you need to believe.

The hardest thing I have ever had to do was learn this!! And step back

and take care of myself first. The people in your life that truly love

you and support you, will understand this, and be there for you. The

rest are just excess baggage, and the sooner you get rid of them, the

better off you will be. And those that seemed to be a negative force,

may very well respond to your positive energy, and be a positive force

you didn't even know they could be. Let the answers come to you,

instead of always looking for them.

I was always out trying to change the world, and it always ended in my

stress levels being more than I could handle, and looking back, I

didn't accomplish anything. Now, I change the world because I have

changed myself. My happiness, my serenity, my peace with what will be,

will be, gives me all this in return. People listen, they see, and

they believe. THIS is what changes the world!!! Make them listen, see,

and believe, and you are on your way to changing the world, and

yourself! SHOW them the path, and what is possible. Be the one to

radiate strength, wisdom and peace, and you may very well be surprised

who and what responds.

Stop crying, and start LIVING!! Take back control. Demand what you

deserve..happiness, health, and peace.

That being said, it seems you now know what causes these lesions, and

how to prevent them. Don't give up on LDN>....just believe....it can

work, but even miracles need something to work with. YOU are your own

best medicine.....the rest is just an aid!!!

Thank god your son is ok! I may know how he feels, as I did the same

thing at 15 yrs old. I don't want to clutter the boards with my story,

so if you are interested, or looking for answers, email me privately.

Just maybe I can give you some insight on the mind of a confused

teenager. sassyfur98@...

Good luck to you, my thoughts are with you and your family

Saundra

>

> I just wanted to update everyone on my progress. On March 3rd my MRI

> was looking great!!! Shortly after that my 14 year old son decided to

> try and end his life by taking a ton of pills. Praise God he wasnt

> successfull. It has been a battle with him. 3 weeks later my little

> brother (25 yrs old) killed himself. He overdosed on heroin. This is

> very hard for me to handle. This last week my other little brother

> wrecked on his motorcycle and broke in half 6 of his ribs. I went

> down to take care of him. During all this time my husband has decided

> he is sick of me. I am not what he wants anymore. Instead saying it

> out right he has continued to upset me. I have been crying for 6 wks.

> The reason for telling you all this? I went to my neuro yesterday

> because I have been having trouble with my right leg and hand. He

> sent for another MRI right away. I found out that I have a new

> lession on the left side of my brain that is positioned in the area

> of my mobility for the right side of my body. This lession is three

> times the size of any that I have had. My neuros wordds where the LDN

> is not strong enough for your life style. He wanted to put me on

> steroids and Rebif again. I refused. I asked for another 3months on

> LDN to give a fair chance to work. He then said no matter what drugs

> your using, with the amount of stress in your life you will be in a

> home in less than a year. He told me to send my husband packing.

> Anyway I want everyone to know that even with LDN stress is

> terrible. All of us with MS really need to lead a simple life. If LDN

> is going to do its job we must do ours.

>

[Guest guest]

My prayers are with you! I would get all the help I could right now. Let anyone willing to help something to do. It's hard to do, I know. Wish I could help.I was under a lot of stress last summer (but nothing compared to yours) and have not been as good since.Betty

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

>

> I just wanted to update everyone on my progress. On March 3rd my

MRI

> was looking great!!! Shortly after that my 14 year old son decided

to

> try and end his life by taking a ton of pills. Praise God he wasnt

> successfull. It has been a battle with him. 3 weeks later my little

> brother (25 yrs old) killed himself. He overdosed on heroin. This is

> very hard for me to handle. This last week my other little brother

> wrecked on his motorcycle and broke in half 6 of his ribs. I went

> down to take care of him. During all this time my husband has

decided

> he is sick of me. I am not what he wants anymore. Instead saying it

> out right he has continued to upset me. I have been crying for 6

wks.

> The reason for telling you all this? I went to my neuro yesterday

> because I have been having trouble with my right leg and hand. He

> sent for another MRI right away. I found out that I have a new

> lession on the left side of my brain that is positioned in the area

> of my mobility for the right side of my body. This lession is three

> times the size of any that I have had. My neuros wordds where the

LDN

> is not strong enough for your life style. He wanted to put me on

> steroids and Rebif again. I refused. I asked for another 3months on

> LDN to give a fair chance to work. He then said no matter what drugs

> your using, with the amount of stress in your life you will be in a

> home in less than a year. He told me to send my husband packing.

> Anyway I want everyone to know that even with LDN stress is

> terrible. All of us with MS really need to lead a simple life. If

LDN

> is going to do its job we must do ours.

>

==========

Sit your son and brothers down and tell them you are trying to improve

your quality of life. If they want to throw theirs away out of

stupidity then that's up to them but you refuse to allow them to put

you under undue stress from that point on. Tell them it's time to

start acting their age and start growing up to be law abidng and

respectful men and young men, not drug addicts and low lifes. I put

most of my dad's family out of my life the year before I started LDN.

Told them ADIOS and don't call me. Your husband is up to you, send

him packing or lay some ground rules.

[Guest guest]

Saundra, Nicknamedjaylo, and Everyone, What a profound observation you have made and so well expressed! I have begun to write and may soon have a first person essay published. I truly appreciate the creative, and emotionally open way you have given the best possible advice for EVERYONE- with or without chronic illness. It is life's hardes lesson, just as you said. I'm so sorry to hear about the incredibly trying times you are going through Nicknamedjaylo. Wow what strengthh you have to even just still BE here! The best healing energy is sent to you and the wish for the absolute best possible joy to enter your life and soon. Here's my LDN update da da duh da dadun....presenting : "IC and the 7 Dwarfs" IBS, GERD, Allergies, Asthma, Fibromyalgia, Hypothyroidism, and finally,

Restless Leg Syndrome, I’ve now been on LDN for 17 days and am happy to report very good results so far. The dose I’m using at present is 3.4 mg. and I’m tolerating it very well. I began with a first dose of 1.5 mg. because IC/hypothyroid patients are notoriously sensitive to meds. LDN is something I very much look forward to each night. Within 2 hours, a feeling of tranquility seems to

gently wrap around me like a blanket of peace. One of my other LDN guy buddies calls it the “LDN smile”(you know who you are!) and that really comes the closest to describing it. If you're a creative soul or someone with a vivid imagination, I know this will make some sense to you too. IBS is really calming down to a point that using OTC stuff like Equalactin and Imodium sparingly is helping to bring it under control. I also think it is really helping me sleep. The last several nights, I’ve slept 10-11 hours without any interruption! Also, later in the evening anywhere from 9 PM or so, I feel

myself start to relax as if my body is anticipating a good night's sleep. Intermittently, I began sleeping better from about the 5th day. The nerve pain in the sacral area is steadily abating! YES! April 16th I began taking Vistaril (generic hydroxyzine pamoat) 50 mg. at bedtime. My uro had changed my Rx antihistamine from Atarax 100 mg. q hs (bed time) and 25-50 -100mg q 4 h as needed (prn) to Vistaril 50 mg. q hs and q 4h prn. There’s been a significant lessening of allergies!

Now, since the Vistaril was only added 4 days ago, and intermittently I had already been sleeping better with the LDN and Atarax, I really believe the LDN is most responsible for improving my sleep. It could also be that Vistaril works well with LDN? Wish I knew……. Last night, for the first time ever, I went to the piano and a song literally flowed through my fingers onto the keys effortlessly. LDN may have also cleared up the creative channel by lifting the pain and balancing the endorphins and immune system, Sweet! I very much look forward to that continuing.... The Interstitial Cystitis is improving, though not as dramatically as the IBS has. IC is very much a stubborn dwarf Contemplating moving the dose up in a few

nights to see if that will bring it under control Do any of you with MS have symptoms you'd describe as "burning in the urethra? This is a common IC symptom and very uncomfortable. How does MS typically/atypically affect a person's bladder? Years ago, I knew a beautiful young woman who continued having symptoms of bladder infections. Eventually, she was diagnosed via spinal tap with MS. This was 36 years ago and I've lost track of her many years now. Vistaril is improving the allergic stuff, and that is very important in IC management. For the first 2 days taking Vistaril left me with a little "hangover" the next morning. But, the "hangovers" lifted quickly and I barely noticed it this morning, which is DAY 4 with Vistaril. Hope you are doing GREAT! I was so excited today when I realized how much better I have been feeling. I’m sending you healing energy and

hope you have a similar or even better experience with LDN and soon, my friends! Saundra, thank you so much again for that poignant, honest and uplifting post. It will help me stay positive too.Janet "I absolutely believe to my soul that this corporate greed

andcorporate power has an ironclad hold on our democracy." -- Sen. , Iowa, 2008

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi Jan,

What great news that you're already having good effects from the LDN.

I hope it helps your cystitis soon as well. I suffered from

nonbacterial urethritis for years and can sympathisize (it went away

after taking herbs and having a dilation and only resurfaced once

recently, when I was eating dried goji berries on a regular basis--

which must have irritated my system).

I wanted to comment on Imodium. I've heard here that it's an opiate

and so it should not be taken with LDN. Hopefully you won't need it

anyway!

Best wishes,

B., Graves' disease, thyroid eye disease, eczema, some RA

>.

>

> Here's my LDN update da da duh da dadun....presenting :

> " IC and the 7 Dwarfs " IBS, GERD, Allergies, Asthma,

Fibromyalgia, Hypothyroidism, and finally, Restless Leg Syndrome,

>

>

>> IBS is really calming down to a point that using OTC stuff like

Equalactin and Imodium sparingly is helping to bring it under

control. I also think it is really helping me sleep. The last

several nights, I've slept 10-11 hours without any interruption!

Also, later in the evening anywhere from 9 PM or so, I feel myself

start to relax as if my body is anticipating a good night's sleep.

Intermittently, I began sleeping better from about the 5th day. The

nerve pain in the sacral area is steadily abating! YES!

>

>

[Guest guest]

>

> Saundra, Nicknamedjaylo, and Everyone,

> What a profound observation you have made and so well expressed!

Thank you!!

I am so happy you are feeling better. I am too. Isn't it amazing how

much we just went through life 'dealing' with it, instead of living it?

I know what you mean about your creative side coming through again.

And, to be honest, I hadn't even realized I had lost mine. But now

that it's back, I sure did miss it.

You know, I realize how much I had lost myself. Funny thing is, that

is just what I needed. They always say you need to loose yourself to

find yourself, and that was so true for me.

The best thing that has every happened to me, is getting Graves

Disease!! Then the LDN. Because of these 2 things, I am sure of who I

am for the first time in 36 years. Funny too, that I am just who I

thought I was...only better....LOL

Saundra

[Guest guest]

It's funny you should mention being creative. I have become creative

again over the past year or so for the first time in ages. It is very

cathartic. It's like therapy - I suppose. I've heard much about the

psychology behind illnesses and I can't help but think that things

come about to redirect us to where we should be. I'm writing again

and I love it. So - thanks MS and LDN.

> >

> > Saundra, Nicknamedjaylo, and Everyone,

> > What a profound observation you have made and so well expressed!

>

> Thank you!!

> I am so happy you are feeling better. I am too. Isn't it amazing how

> much we just went through life 'dealing' with it, instead of living it?

> I know what you mean about your creative side coming through again.

> And, to be honest, I hadn't even realized I had lost mine. But now

> that it's back, I sure did miss it.

> You know, I realize how much I had lost myself. Funny thing is, that

> is just what I needed. They always say you need to loose yourself to

> find yourself, and that was so true for me.

> The best thing that has every happened to me, is getting Graves

> Disease!! Then the LDN. Because of these 2 things, I am sure of who I

> am for the first time in 36 years. Funny too, that I am just who I

> thought I was...only better....LOL

> Saundra

>

[Guest guest]

In Florida or the land down under?

[low dose naltrexone] LDN

Hi. Was wondering if anyone can tell me of any doctors prescribing LDNin Melbourne. Thanks .

[Guest guest]

Hi Donna,

This website will tell you where and how to obtain LDN:

http://tinyurl.com/2dfbvd

Best regards,

Dudley Delany

dudley_delany

[Guest guest]

Good luck getting Aetna or other providers to pay for this. Maybe some others on this list know how to get around this. Interestingly, a friend of mine on medicare disability got her Rx paid for and it only cost her a $2 co-pay. Perhaps one of the pharmacies monitoring this list can offer guidance. Bob CAnnette <nettiereno@...> wrote: Hi All, I have been on LDN for three or four years now. We have been moving around a bit, and in February

I lost my LDN in moving. The doc in my new area pooh poohed LDN, and I figured well, why bother taking it any more. I had a terrible exacerbation, and surely did order another batch from Skip. I tried to submit it to Aetna, and they will not pay, saying that the FDA did not approve LDN for MS. I am trying to fight it. Any suggestions? Annette Dogs are like people, only without the bullshit.

[Guest guest]

I live in the state of New York, USA and have Empire Blue Cross Blue

Shield. They said they would pay for my LDN if I used one of their

compounding pharmacies. As I do not want to change from Skip's

Pharmacy to an unknown I'll continue to pay $25.00 for a month's

supply.

Art

--

>

> Hi All,

>

> I have been on LDN for three or four years now. We have been

moving around a bit, and in February I lost my LDN in moving. The doc

in my new area pooh poohed LDN, and I figured well, why bother taking

it any more. I had a terrible exacerbation, and surely did order

another batch from Skip. I tried to submit it to Aetna, and they will

not pay, saying that the FDA did not approve LDN for MS. I am trying

to fight it. Any suggestions?

>

> Annette

>

>

> Dogs are like people, only without the bullshit.

>

[Guest guest]

I get my LDN from Skip's Pharmacy and they don't except insurance but sent me a paper to fill out to send to Medicaid so I filled it out and sent it in and never heard a word. I'll have to try and see if Medicare will pay for it now since I have that now too. Who knows....Worth a try even though they probably won't pay it.

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 8 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

Re: [low dose naltrexone] LDN

Good luck getting Aetna or other providers to pay for this. Maybe some others on this list know how to get around this. Interestingly, a friend of mine on medicare disability got her Rx paid for and it only cost her a $2 co-pay.

Perhaps one of the pharmacies monitoring this list can offer guidance.

Bob CAnnette <nettiereno (DOT) com> wrote:

Hi All,

I have been on LDN for three or four years now. We have been moving around a bit, and in February I lost my LDN in moving. The doc in my new area pooh poohed LDN, and I figured well, why bother taking it any more. I had a terrible exacerbation, and surely did order another batch from Skip. I tried to submit it to Aetna, and they will not pay, saying that the FDA did not approve LDN for MS. I am trying to fight it. Any suggestions?

Annette

Dogs are like people, only without the bullshit.

[Guest guest]

This question comes up often....... See

low dose naltrexone/msearch?query=parkinsons & \

\submit=Search

<low dose naltrexone/msearch?query=parkinsons\

& submit=Search>

In particular read the posts by Destiny and mboylebradley. Aletha will

probably be able to send you some of the relevant posts she has saved.

touchofclass wrote:

> Anyone here taking LDN and have parkinson? IF so, how has it heped

> you, I understand it has stop progression?

[Guest guest]

Tramadol is a narcotic so LDN should be rendering it useless, but if

it ain't broke don't fix it. The others are fine to take with LDN.

Art

--

Hi All;

I've been on 3mg LDN over three years, my doctor said my MS is

inactive, I presume she means it's not progressing?

My question is; I'm on Tizanidine, Tramadol, Oxybutynin chloride &

Gabapentin, are these drugs compatible with LDN or do they cancel out

LDN somewhat? I feel LDN has done me good, but wondering if I'm

getting the full benefit of LDN.

Thanx,

Jim (ND)

[Guest guest]

Hi Cheryl,

I will also talk to him about LDN in my next appointment.

He told me the same thing in a reply of a weekly update.

Naltrexone works as an opioid antagonist at high doses, but at low

doses it works as an immune modulator. The only side effects reported

have been hyperactivity and insomnia during the first 5-7 days.

Please read the information from the website below and it will make

wonder why it should not be used. Isn't this the immune modulating

drug that we have been waiting for many years???? Many people are

saying that LDN is work very effectively as an immune system

modulator. This is an FDA approved medication, just like the SSRIs and

just like the SSRIs the Naltrexone is given in very low doses.

http://www.low dose naltrexone.org/

The link below from the author of the Children with Starving brains

books claims that LDN has been used in more than 10,000 immune-impaired

children with autism over the past two years successfully. They also

claim that LDN is very safe.

http://www.treatstarvingbrains.com/alternate%20pages/articles.htm

Thanks,

>

>

> Talked to Dr. G today about the LDN and he is against it because:

>

> 1. He doesn't believe our kids have an opioid problem.

>

> 2. It's not incredibly safe and he will only do things that are

safe

> for our kids. He said to look at the list of possible reactions and

> you'll see what he means.

>

> Cheryl

>

[Guest guest]

Please - anyone diagnosed w/ALS, research/google "Lyme ALS" - read as much as you can. I have a published article by WT Harvey and D Martz on motor neuron disease and recovery w/antibiotic therapy scanned into my computer. Be glad to send it to you privately (can't send attachments to the list).

Sue

Posted by: "DL Dycus" bluemustangragtop@... bluemustangragtop

Mon Sep 1, 2008 2:20 pm (PDT)

I have ALS and have been on LDN for 4 months. LDN helped greatly with my fatigue. I will continue to take it because I have had no side effects, and I feel better on it. My ALS symptoms continue to increase slowly. The LDN costs me $40 a month. Don't give up the fight!!