LDN

[Guest guest]

Jean

If theres ANY liver warnings to be found it would be the full dose Naltrexone

anyway, certainly now LDN. You cant lose your license for prescribing drugs

" off label " as long as they are FDA approved and since the high dose of

Naltrexone is approved, then taking a tiny dose each day is obviously also OK.

If you are having trouble finding a doctor then Crystal keeps a list of LDN

friendly doctors or you could always order some online without a script.

Bev

-- In low dose naltrexone , Baugh <oldglory@...> wrote:

>

> Hi,

>

> The moment I heard about and researched LDN, I knew this might be the answer

> to my low immune system and the help my sister needed for her back and other

> misc. problems.

>

> I set up an appointment with the doctor/s and brought printed out

> information to hand them in case they weren't familiar with this. I needn't

> have bothered for they knew all about it.

>

> As soon as I explained what we were hoping to get, they began to run

> backwards. I kept saying, But It's FDA approved! (the one time in my life

> I thought this name might be a good thing) I heard several things in

> return. This LDN had black box (liver), warnings, they didn't want to lose

> their license and there was a doctor in the big city (400 miles away), who

> might prescribe for pain. I had no pain but my sister does. I was too

> upset with them to even ask what the doctor's name was.

>

> I went home and immediately researched the FDA website for liver

> information. I found not one reference to liver damage caused by LDN. I

> printed this out and mailed it to the doctors but have no plans to go back

> to them.

>

> Jean

>

[Guest guest]

you cannot take ldn together with methotrexate and because you have hashimoto

,you have to start at 1.5 mg.

>

> Hi I am new to the site. I am a 54 year old male with multiple autoimmune

diseases. Eight years ago I was diagnosed with Hashimotos thyroiditis, Iam

currently taking 200 mcg of synthroid for it. Three years ago I was diagnosed

with a hair disorder called alopecia areata universal, I have lost all my hair

on my body. Currently I am going to a skin clinic study which is applying a

sensitizer to my scalp called diphenylcyclopropenone DPCP to stimulate hair

growth, it is getting minimal results. I am getting small patches over parts of

my scalp. I have been in the program for two years now.Four months ago I was

diagnosed with rheumatoid arthritis. I am taking hydroxyquine 200 mg and

methotrexate 6-2.5 mg at one time for it. The pills seem to be starting to work

as I am getting more mobility with less pain. I have several questions I would

like to put out there.Is there anyone else out there with the same or similar

diseases that are using ldn. When I start ldn should I start at 1.5 mg and try

to reduce my hydroxyquine and my methotrexate while I try to increase my ldn to

4.5 mg. I suppose I should also monitor my Hashimotos. Any other ideas out there

would be greatly appreciated. Thanks Jim.

>

[Guest guest]

also, you didn't say anything about what are you eating, but many people with many autoimmune deseases (Hashimoto particularly) are intolerant to gluten. You may check Art Ayers anti-inflamatory diet here: 

http://coolinginflammation.blogspot.com/search/label/anti-inflammatory%20diet []Mário.

2009/7/23 zahavi <zahavi100@...>

 

you cannot take ldn together with methotrexate and because you have hashimoto ,you have to start at 1.5 mg. >> Hi I am new to the site. I am a 54 year old male with multiple autoimmune diseases. Eight years ago I was diagnosed with Hashimotos thyroiditis, Iam currently taking 200 mcg of synthroid for it. Three years ago I was diagnosed with a hair disorder called alopecia areata universal, I have lost all my hair on my body. Currently I am going to a skin clinic study which is applying a sensitizer to my scalp called diphenylcyclopropenone DPCP to stimulate hair growth, it is getting minimal results. I am getting small patches over parts of my scalp. I have been in the program for two years now.Four months ago I was diagnosed with rheumatoid arthritis. I am taking hydroxyquine 200 mg and methotrexate 6-2.5 mg at one time for it. The pills seem to be starting to work as I am getting more mobility with less pain. I have several questions I would like to put out there.Is there anyone else out there with the same or similar diseases that are using ldn. When I start ldn should I start at 1.5 mg and try to reduce my hydroxyquine and my methotrexate while I try to increase my ldn to 4.5 mg. I suppose I should also monitor my Hashimotos. Any other ideas out there would be greatly appreciated. Thanks Jim.

>

[Guest guest]

if it is from diabetis then ALPA lipoic acid can help.read the book of berkson

about alpha lipoic acid.

>

> has anyone had any experience/success using ldn for peripheral neuropathy ?

>

[Guest guest]

Awesome, bin there, done that, I was afraid they may have to scrap my gums, I hear that is painful, but now my gums lie tight against my teeth.

, david

[low dose naltrexone] ldn

Hello all....

Today i had to go to the dentist, and i just realized that my good exam was because of LDN. Before when i would go for cleanings, and they measure how your gums are doing, my numbers were not real bad but today almost all my numbers were only a "1".....(the lower the number, the better) The dentist said he was surprised because he saw my xrays and expected to see higher numbers but he said my teeth were strong and my gums were healthy and tight. It didn't hit me till I got home...and i realized it must be the LDN....because 4 months ago my gums were worse.

thank you LDN!

Terri

[Guest guest]

Hello Kath...

You can buy LDN from Alldaychemist

<http://www.alldaychemist.com/index.php> without a prescription, this

is were many get theirs. Just type Naltrexone in the search box.

Here is a good LDN forum <http://ldndatabase.com/forum/index.php> with

lots of info about it's use and what you can expect.

Sandy

>

> Does someone know a Dr. in Kansas that will write a prescription for

LDN so that I can get some for a friend? He has Emphysema and cancer in

his colon and liver. He has about 6 months to live but from what I have

read, LDN can make a difference in his quality of life if not help get

rid of the illnesses.....thanks

>

[Guest guest]

Also, Kath ADC will ask for a prescription but if you leave it blank they will

still fill the script.

Sandy

>

> Does someone know a Dr. in Kansas that will write a prescription for LDN so

that I can get some for a friend? He has Emphysema and cancer in his colon and

liver. He has about 6 months to live but from what I have read, LDN can make a

difference in his quality of life if not help get rid of the

illnesses.....thanks

>

[Guest guest]

I buy my Naltrexone from the AllDayChemist but you must turn it into LDN on your

own. You need to mix 50 ml of distilled water with one tablet in a small glass

container and keep it in the fridge. Each night before bed you shake it and take

out 4.5 mls using a dropper and drink it followed by water. You must also take

300-600 mg. of Alpha Lapoic Acid each day. (I bought my dropper in the baby

section of the drug store).

Cheryl

> >

> > Does someone know a Dr. in Kansas that will write a prescription for LDN so

that I can get some for a friend? He has Emphysema and cancer in his colon and

liver. He has about 6 months to live but from what I have read, LDN can make a

difference in his quality of life if not help get rid of the

illnesses.....thanks

> >

>

[Guest guest]

It is different for each invidual. some people have improvements within few

weeks, Mine was longer. 2-3 months. you may experience sleep problem for few

days to few weeks. mine was around a week. you should take it between 11 pm to 2

am. good luck

From: <arjay47@...>

Subject: rheumatic LDN

rheumatic

Date: Friday, October 23, 2009, 7:31 PM

 

Hi All

After 11 years on AP with no flares, no morning pains, etc, well last summer

I way over did and have been in a bad flare for a few weeks. I started to

follow the info on LDN and was pleasantly surprised to find out that my

doctor was very willing to prescribe it so as soon as the pharmacy can get

it here I'll be trying it. Any idea how long it takes for improvement?

[Guest guest]

Since I've been flaring I tend to go to bed around 9 so should i take it in

the middle of the night? My dogs generally wake me up sometime in the night

so I could do it then. I'm excited to start it and very pleased that my dr

knew about it and was so agreeable. Nov 10th I have my first rheumatologist

appt, I've gone 12 years doing fine on minocin, I'm hoping to be doing

better when i see him. For those in NE WA, Dr Corell in Spokane is very

good.

On Fri, Oct 23, 2009 at 8:18 PM, soheila A <soadl80@...> wrote:

>

>

> It is different for each invidual. some people have improvements within few

> weeks, Mine was longer. 2-3 months. you may experience sleep problem for few

> days to few weeks. mine was around a week. you should take it between 11 pm

> to 2 am. good luck

>

>

>

> From: <arjay47@... <arjay47%40gmail.com>>

> Subject: rheumatic LDN

> rheumatic <rheumatic%40>

> Date: Friday, October 23, 2009, 7:31 PM

>

>

>

>

> Hi All

>

> After 11 years on AP with no flares, no morning pains, etc, well last

> summer

> I way over did and have been in a bad flare for a few weeks. I started to

> follow the info on LDN and was pleasantly surprised to find out that my

> doctor was very willing to prescribe it so as soon as the pharmacy can get

> it here I'll be trying it. Any idea how long it takes for improvement?

>

>

>

[Guest guest]

Dr Correll,

Integrative Medicine Assoc

3424 S Grand Blvd

Spokane, WA 99203

Phone: (509) 838-5800

Fax: (509) 838-4042?

?

> >

> > From: <arjay47@... <arjay47%40gmail.com>>

> > Subject: rheumatic LDN

> > rheumatic <rheumatic%40>

> > Date: Friday, October 23, 2009, 7:31 PM

> >

> >

> >

> >

> > Hi All

> >

> > After 11 years on AP with no flares, no morning pains, etc, well last

> > summer

> > I way over did and have been in a bad flare for a few weeks. I started to

> > follow the info on LDN and was pleasantly surprised to find out that my

> > doctor was very willing to prescribe it so as soon as the pharmacy can get

> > it here I'll be trying it. Any idea how long it takes for improvement?

> >

> >

> >

[Guest guest]

Hi Sandy,

Best thing to do is join the LDN-for-PLS-HSP group. Quite a few

of us on there using it successfully for PLS.

Cheers,

Resi wrote:

Hi, I am new to this group and I have Primary Lateral Sclerosis. I mainly am wondering how to approach my family doctor about prescribing LDN for me. Does any member of this group have PLS and if so how does LDN help? I would very much like to try LDN it is one of the only drugs that might help.

Thank you, Sandy

[Guest guest]

sleep problems meaning feeling exhausted, or not being able to sleep?

rheumatic LDN

rheumatic

Date: Friday, October 23, 2009, 7:31 PM

Hi All

After 11 years on AP with no flares, no morning pains, etc, well last summer

I way over did and have been in a bad flare for a few weeks. I started to

follow the info on LDN and was pleasantly surprised to find out that my

doctor was very willing to prescribe it so as soon as the pharmacy can get

it here I'll be trying it. Any idea how long it takes for improvement?

[Guest guest]

sleep problem means being sleepless and having vivid dreams.  most people

experience the sleepless nights phase but after their bodys adjust to the

drug sleep very well.

 

 

-- On Tue, 10/27/09, Mona Goldstein <spellers@...> wrote:

From: Mona Goldstein <spellers@...>

Subject: Re: rheumatic LDN

rheumatic

Date: Tuesday, October 27, 2009, 11:57 AM

 

sleep problems meaning feeling exhausted, or not being able to sleep?

rheumatic LDN

rheumatic@grou ps.com

Date: Friday, October 23, 2009, 7:31 PM

Hi All

After 11 years on AP with no flares, no morning pains, etc, well last summer

I way over did and have been in a bad flare for a few weeks. I started to

follow the info on LDN and was pleasantly surprised to find out that my

doctor was very willing to prescribe it so as soon as the pharmacy can get

it here I'll be trying it. Any idea how long it takes for improvement?

[Guest guest]

Hi Ana - What is RF and how do you feel? Thanks, Kathy

> rheumatic

> From: anaandrescu@...

> Date: Mon, 30 Nov 2009 18:10:56 -0800

> Subject: rheumatic ldn

>

> Hello Group,

> I have been taking ldn for three months and my CRP and ESR have dropped but RF

has risen.

> anybody experiencing somthing similar?

> thanks,

> Ana

>

>

>

>

>

[Guest guest]

Hi,

RF is rheumatoid factor.

I feel a little better on ldn, more energized.

Ana

________________________________

From: kathy hunt <rollercoaster120@...>

rheumatic

Sent: Mon, November 30, 2009 7:47:31 PM

Subject: RE: rheumatic ldn

 

Hi Ana - What is RF and how do you feel? Thanks, Kathy

> rheumatic@grou ps.com

> From: anaandrescu

> Date: Mon, 30 Nov 2009 18:10:56 -0800

> Subject: rheumatic ldn

>

> Hello Group,

> I have been taking ldn for three months and my CRP and ESR have dropped but RF

has risen.

> anybody experiencing somthing similar?

> thanks,

> Ana

>

>

>

>

>

[Guest guest]

My ESR dropped too. I don't have rheumatide artheritis, so cann't talk about RF.

From: Ana Andrescu <anaandrescu@...>

Subject: rheumatic ldn

rheumatic

Date: Monday, November 30, 2009, 6:10 PM

 

Hello Group,

I have been taking ldn for three months and my CRP and ESR have dropped but RF

has risen.

anybody experiencing somthing similar?

thanks,

Ana

[Guest guest]

Has anyone gone LDN with the intent to stop antibiotics? Is LDN meant

to be long term or simply to take for a while to reset your immune

system?

Thanks,

On Nov 30, 2009, at 10:34 PM, soheila A wrote:

> My ESR dropped too. I don't have rheumatide artheritis, so cann't

> talk about RF.

>

>

>

> From: Ana Andrescu <anaandrescu@...>

> Subject: rheumatic ldn

> rheumatic

> Date: Monday, November 30, 2009, 6:10 PM

>

>

>

> Hello Group,

> I have been taking ldn for three months and my CRP and ESR have

> dropped but RF has risen.

> anybody experiencing somthing similar?

> thanks,

> Ana

>

>

[Guest guest]

Hi, How long have you been taking it? I was told that I have RA but now they

are saying reactive arthritis due to strep. I have been no AP for almost a year

with two diff docs. It seems to help some. What really seems to help is what I

eat or do not eat. Best, Kathy

> rheumatic

> From: anaandrescu@...

> Date: Mon, 30 Nov 2009 18:58:59 -0800

> Subject: Re: rheumatic ldn

>

> Hi,

> RF is rheumatoid factor.

> I feel a little better on ldn, more energized.

> Ana

>

>

>

>

> ________________________________

> From: kathy hunt <rollercoaster120@...>

> rheumatic

> Sent: Mon, November 30, 2009 7:47:31 PM

> Subject: RE: rheumatic ldn

>

>

>

> Hi Ana - What is RF and how do you feel? Thanks, Kathy

>

> > rheumatic@grou ps.com

> > From: anaandrescu

> > Date: Mon, 30 Nov 2009 18:10:56 -0800

> > Subject: rheumatic ldn

> >

> > Hello Group,

> > I have been taking ldn for three months and my CRP and ESR have dropped but

RF has risen.

> > anybody experiencing somthing similar?

> > thanks,

> > Ana

> >

> >

> >

> >

> >

[Guest guest]

Hi Kathy,

my ra is also due to strep or at least that is how it started.

how is your ASO titer and ANTI D-NASE B tests? they tell you the strep load by

how reactive your body is to it.

I also take a monthly shot of long-acting penicillin.

Ana

________________________________

From: kathy hunt <rollercoaster120@...>

rheumatic

Sent: Tue, December 1, 2009 2:35:53 AM

Subject: RE: rheumatic ldn

 

Hi, How long have you been taking it? I was told that I have RA but now they are

saying reactive arthritis due to strep. I have been no AP for almost a year with

two diff docs. It seems to help some. What really seems to help is what I eat or

do not eat. Best, Kathy

> rheumatic@grou ps.com

> From: anaandrescu

> Date: Mon, 30 Nov 2009 18:58:59 -0800

> Subject: Re: rheumatic ldn

>

> Hi,

> RF is rheumatoid factor.

> I feel a little better on ldn, more energized.

> Ana

>

>

>

>

> ____________ _________ _________ __

> From: kathy hunt <rollercoaster120@ hotmail.com>

> rheumatic@grou ps.com

> Sent: Mon, November 30, 2009 7:47:31 PM

> Subject: RE: rheumatic ldn

>

>

>

> Hi Ana - What is RF and how do you feel? Thanks, Kathy

>

> > rheumatic@grou ps.com

> > From: anaandrescu

> > Date: Mon, 30 Nov 2009 18:10:56 -0800

> > Subject: rheumatic ldn

> >

> > Hello Group,

> > I have been taking ldn for three months and my CRP and ESR have dropped but

RF has risen.

> > anybody experiencing somthing similar?

> > thanks,

> > Ana

> >

> >

> >

> >

> >

[Guest guest]

LDN is new when it comes to the effect on immunity. I do not think anybody can

say much at this point.

I read, symptoms come back when you stop ldn

Ana

________________________________

From: Brady <MAMBrady@...>

rheumatic

Sent: Mon, November 30, 2009 9:26:41 PM

Subject: Re: rheumatic ldn

Has anyone gone LDN with the intent to stop antibiotics?  Is LDN meant 

to be long term or simply to take for a while to reset your immune 

system?

Thanks,

On Nov 30, 2009, at 10:34 PM, soheila A wrote:

> My ESR dropped too. I don't have rheumatide artheritis, so cann't 

> talk about RF.

>

>

>

> From: Ana Andrescu <anaandrescu@...>

> Subject: rheumatic ldn

> rheumatic

> Date: Monday, November 30, 2009, 6:10 PM

>

>

>

> Hello Group,

> I have been taking ldn for three months and my CRP and ESR have 

> dropped but RF has risen.

> anybody experiencing somthing similar?

> thanks,

> Ana

>

>

[Guest guest]

Thanks Ana, that's pretty much what I've concluded from what I've read

also.

On Dec 1, 2009, at 10:39 AM, Ana Andrescu wrote:

> LDN is new when it comes to the effect on immunity. I do not think

> anybody can say much at this point.

> I read, symptoms come back when you stop ldn

> Ana

>

> ________________________________

> From: Brady <MAMBrady@...>

> rheumatic

> Sent: Mon, November 30, 2009 9:26:41 PM

> Subject: Re: rheumatic ldn

>

> Has anyone gone LDN with the intent to stop antibiotics? Is LDN meant

> to be long term or simply to take for a while to reset your immune

> system?

> Thanks,

>

>

> On Nov 30, 2009, at 10:34 PM, soheila A wrote:

>

> > My ESR dropped too. I don't have rheumatide artheritis, so cann't

> > talk about RF.

> >

> >

> >

> > From: Ana Andrescu <anaandrescu@...>

> > Subject: rheumatic ldn

> > rheumatic

> > Date: Monday, November 30, 2009, 6:10 PM

> >

> >

> >

> > Hello Group,

> > I have been taking ldn for three months and my CRP and ESR have

> > dropped but RF has risen.

> > anybody experiencing somthing similar?

> > thanks,

> > Ana

> >

> >

[Guest guest]

I am taking LDN and my understanding is this is a long-term treatment to stop

the health issue it is used for. I have Dermatomyositis, RA with interstitial

pulmonary fibrosis and doing lots better since I have started taking LDN.

Eva

> >

> > From: Ana Andrescu <anaandrescu@...>

> > Subject: rheumatic ldn

> > rheumatic

> > Date: Monday, November 30, 2009, 6:10 PM

> >

> >

> >

> > Hello Group,

> > I have been taking ldn for three months and my CRP and ESR have

> > dropped but RF has risen.

> > anybody experiencing somthing similar?

> > thanks,

> > Ana

> >

> >

[Guest guest]

Thanks Eva; were you ever on antibiotics for RA? I'm wondering if LDN

would be a better long-term option than antibiotics, based on people's

experience. I'm on antibiotics, Plaquenil and many supplements and am

doing very well, but my doctor would prefer me to be on LDN than

antibiotics--I'm just a bit nervous.

On Dec 1, 2009, at 2:10 PM, Eva Holloway wrote:

> I am taking LDN and my understanding is this is a long-term

> treatment to stop the health issue it is used for. I have

> Dermatomyositis, RA with interstitial pulmonary fibrosis and doing

> lots better since I have started taking LDN.

> Eva

>

>

> > >

> > > From: Ana Andrescu <anaandrescu@...>

> > > Subject: rheumatic ldn

> > > rheumatic

> > > Date: Monday, November 30, 2009, 6:10 PM

> > >

> > >

> > >

> > > Hello Group,

> > > I have been taking ldn for three months and my CRP and ESR have

> > > dropped but RF has risen.

> > > anybody experiencing somthing similar?

> > > thanks,

> > > Ana

> > >

> > >

[Guest guest]

,

 

I am on Minoxin MWF and Biaxin TuThSa and just supplements on Sunday. I take LDN

4.5 mg every night about 10 pm. I will be on antibiotics and LDN for a long time

because I was very sick after having chemo for a year, then taking Cellcept

and Enbrel for 1 1/2 years plus all that time also taking Prednison on a

high dosage. Two years ago I was so weak that I slept almost 20 hours a day.

even putting the blanket on myself was a chore and turning in the bed was even

worse. The muscle weakness is absolutly horrible, I am getting finally my life

back being able t walk almost upright. Still using a cane, the wheelchair is in

the back of my van just for longer outings and sometimes I walk it. I tell

people then my chariott had run out of power LOL.

Now taking antibiotics and LDN has given me a lot more energy and can do things

I couldn't have done two years ago.

I wish you well

Eva

 

> > >

> > > From: Ana Andrescu <anaandrescu@...>

> > > Subject: rheumatic ldn

> > > rheumatic

> > > Date: Monday, November 30, 2009, 6:10 PM

> > >

> > >

> > >

> > > Hello Group,

> > > I have been taking ldn for three months and my CRP and ESR have

> > > dropped but RF has risen.

> > > anybody experiencing somthing similar?

> > > thanks,

> > > Ana

> > >

> > >