Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 I'm taking Minocycline and LDN for Psoriatic Arthritis. LDN is not a stand alone treatment or pain releiver. LDN has allowed me to cut back on my Minocycline level and eliminate Diclofenac, but I expect to alsways have to take some level of Minocycline vinnylid > > > > > > > > From: Ana Andrescu <anaandrescu@...> > > > > Subject: rheumatic ldn > > > > rheumatic > > > > Date: Monday, November 30, 2009, 6:10 PM > > > > > > > > > > > > > > > > Hello Group, > > > > I have been taking ldn for three months and my CRP and ESR have > > > > dropped but RF has risen. > > > > anybody experiencing somthing similar? > > > > thanks, > > > > Ana > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 rheumatic ldn > > rheumatic > > Date: Monday, November 30, 2009, 6:10 PM > > > > > > > > Hello Group, > > I have been taking ldn for three months and my CRP and ESR have > > dropped but RF has risen. > > anybody experiencing somthing similar? > > thanks, > > Ana > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 Goodness, Eva, this is quite a path you've been on; I'm glad you've found success with both the antibiotics and LDN. Best of luck to you as well, and thank you. On Dec 1, 2009, at 5:51 PM, Eva Holloway wrote: > , > > I am on Minoxin MWF and Biaxin TuThSa and just supplements on > Sunday. I take LDN 4.5 mg every night about 10 pm. I will be on > antibiotics and LDN for a long time because I was very sick after > having chemo for a year, then taking Cellcept and Enbrel for 1 1/2 > years plus all that time also taking Prednison on a high dosage. Two > years ago I was so weak that I slept almost 20 hours a day. even > putting the blanket on myself was a chore and turning in the bed was > even worse. The muscle weakness is absolutly horrible, I am getting > finally my life back being able t walk almost upright. Still using a > cane, the wheelchair is in the back of my van just for longer > outings and sometimes I walk it. I tell people then my chariott had > run out of power LOL. > Now taking antibiotics and LDN has given me a lot more energy and > can do things I couldn't have done two years ago. > I wish you well > Eva > > > > > > > > > > From: Ana Andrescu <anaandrescu@...> > > > > Subject: rheumatic ldn > > > > rheumatic > > > > Date: Monday, November 30, 2009, 6:10 PM > > > > > > > > > > > > > > > > Hello Group, > > > > I have been taking ldn for three months and my CRP and ESR have > > > > dropped but RF has risen. > > > > anybody experiencing somthing similar? > > > > thanks, > > > > Ana > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 Hello Eva, how much mino and biaxin do you take a day? thank you for your answer Ana ________________________________ From: Eva Holloway <holloway-eva@...> rheumatic Sent: Tue, December 1, 2009 3:51:45 PM Subject: Re: rheumatic ldn  ,  I am on Minoxin MWF and Biaxin TuThSa and just supplements on Sunday. I take LDN 4.5 mg every night about 10 pm. I will be on antibiotics and LDN for a long time because I was very sick after having chemo for a year, then taking Cellcept and Enbrel for 1 1/2 years plus all that time also taking Prednison on a high dosage. Two years ago I was so weak that I slept almost 20 hours a day. even putting the blanket on myself was a chore and turning in the bed was even worse. The muscle weakness is absolutly horrible, I am getting finally my life back being able t walk almost upright. Still using a cane, the wheelchair is in the back of my van just for longer outings and sometimes I walk it. I tell people then my chariott had run out of power LOL. Now taking antibiotics and LDN has given me a lot more energy and can do things I couldn't have done two years ago. I wish you well Eva  > > > > > > From: Ana Andrescu <anaandrescu> > > > Subject: rheumatic ldn > > > rheumatic@grou ps.com > > > Date: Monday, November 30, 2009, 6:10 PM > > > > > > > > > > > > Hello Group, > > > I have been taking ldn for three months and my CRP and ESR have > > > dropped but RF has risen. > > > anybody experiencing somthing similar? > > > thanks, > > > Ana > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2009 Report Share Posted December 1, 2009 at the present time I take 100 mg of Minoxin MWF and Biaxin 500 mg TuThSa. I used to use 200 mg Minoxin and 1000 mg Biaxin but since I have started LDN I have been using less. I have an appointment with my doctor on the 11 December and tell her that I cut down my antibiotic, see what she says. Eva > > > > > > From: Ana Andrescu <anaandrescu> > > > Subject: rheumatic ldn > > > rheumatic@grou ps.com > > > Date: Monday, November 30, 2009, 6:10 PM > > > > > > > > > > > > Hello Group, > > > I have been taking ldn for three months and my CRP and ESR have > > > dropped but RF has risen. > > > anybody experiencing somthing similar? > > > thanks, > > > Ana > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2009 Report Share Posted December 16, 2009 Hi Everyone, I was wondering if anyone knows of a doctor around Richmond, VA who prescribes LDN. My Neurologist said he would definitely not do it and is pushing hard for me to take the MS drugs. I've had MS for 23 years and have always refused the drugs because I prefer to concentrate on nutrition & exercise instead. I recently have been learning about Naltrexone and I really want to try it. Just need a good doctor who is familiar with it and who will prescribe it. Thanks! Anita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 OK, now I'm very confused. I thought that if you wanted 4.5 mg dose you would fill your syringe to 4.5 ml. You are saying to only fill your syringe to 1.8 ml? This is the first I've heard of that. Unless I'm misunderstanding something. Thanks! ~ > > every ml is then 2.5 mg.when you need 4.5 mg then take with a syringe without needle 1.8 ml after shaking.put it in a bit of mineral water and drink. > for every other amount you have to calculate.1 ml is 2.5 mg > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I take 2mg which equals 2ml in my mesurements. My dropper measures in ml and they are the same. I use 50mg Naltrexone and 50ml distilled water in a dark wide mouth bottle and this gives me enough for about 3 weeks or so at the rate I'm dosing. [low dose naltrexone] Re: ldn OK, now I'm very confused. I thought that if you wanted 4.5 mg dose you would fill your syringe to 4.5 ml. You are saying to only fill your syringe to 1.8 ml? This is the first I've heard of that. Unless I'm misunderstanding something. Thanks! ~ >> every ml is then 2.5 mg.when you need 4.5 mg then take with a syringe without needle 1.8 ml after shaking.put it in a bit of mineral water and drink.> for every other amount you have to calculate.1 ml is 2.5 mg> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2653 - Release Date: 01/28/10 06:55:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Mystery solved. Zahavi wrote that it was a special situation where someone had 20ml of fluid, or something. Just in case anyone else was wondering if they were doing it right (o;. I thanked him privately, but my one line reply got lost in a ton of computor language mumble, jumble. A big long page of it! Don't know where that came from??? Sorry Zahavi, and thanks. ~ > > > > every ml is then 2.5 mg.when you need 4.5 mg then take with a syringe without needle 1.8 ml after shaking.put it in a bit of mineral water and drink. > > for every other amount you have to calculate.1 ml is 2.5 mg > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 I'm sorry. But did you mean oregano oil? ~ > > OREGANI OIL KILLS YEASTÂ I TAKE TWO CAPSLES EVERY MORNING AND HAVE REMAINED FREE OF IT FOR THREE MONTHS, BEFORE THAT I WAS TAKING DEFLUCAN EVERY 10 DAYS. > > HOPE THIS HELPS > > JUDI J > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 that is very nice to read.thanks for sharing and it is time that people understand that ldn is not rx medecine,but a way to trick the body to produce more endorphines. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 So can we say that the higher dose of LDN we take the more endorphines we get...I never thought I'd get to 2.5mg and now getting close to 3mg soon. Took me 4 months to get here since I had side effects; like sleep issues that I just couldn't bear to have. [low dose naltrexone] Re: LDN that is very nice to read.thanks for sharing and it is time that people understand that ldn is not rx medecine,but a way to trick the body to produce more endorphines. No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.733 / Virus Database: 271.1.1/2688 - Release Date: 02/14/10 11:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2010 Report Share Posted February 15, 2010 with ldn not always more is better.4.5 is maximum and ideal for most.but the naltrexone should not be too long in the body.people with liver problem should not go to 4.5,because then there is the danger that the naltrexone will stay too long.they should fix the liver and then go up.every one must find the ideal point for himself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 There are never too many questions as long as theythey pertain to LDN. Art http://ldn.proboards.com/index.cgi > > Someone said I asked too many questions. I am so sorry that I did. I am in so much pain I didn't think it would bother anyone. > > Rae > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 > > How can I get this drug ? > What can I say to my or other MD that I'd like to try this ? > Thank You, > R Wisconsin > THE email responses received do not allow me to respond,,,,,, I live in wisconsin............ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2010 Report Share Posted February 25, 2010 Becky, please email Crystal at angelindisguiseldn@... and in this email mention your area, she holds a list of prescribing Drs. Best of luck, Jayne Crocker www.LDNNow.com Important! Please sign our LDN petition to the European Parliament by clicking here tel: +44 (0) 7877 492 669 Dr Steele MBE, talking about LDN LDNNow, a patient and friend led organisation (so not a charity) with no funding and no affiliation to any company or organisation, but rather a group of concerned individuals focussed on improving the health of those who suffer from the many diseases and conditions that LDN treats. From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of rjsrhx4Sent: 25 February 2010 19:06low dose naltrexone Subject: [low dose naltrexone] Re: LDN >> How can I get this drug ?> What can I say to my or other MD that I'd like to try this ?> Thank You,> R Wisconsin>THE email responses received do not allow me to respond,,,,,,I live in wisconsin............ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 I think it varies - some people feel it within a day or two, some take a while. Partly depends on what you are needing it for, I think, and partly depends on how your particular body works. Good luck, I hope you see results soon!~EileenOn Mar 27, 2010, at 9:36 PM, smokland wrote: I got my LDN yesterday generally how long does it take for one to start to notice anything? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Smokland - what are you taking it for? Different diseases show different effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 For what are you taking LDN for! Art My MS/LDN story/1988 - 2009 http://ldn.proboards.com/index.cgi?board=personal & action=display & thread=867 -- > > I got my LDN yesterday generally how long does it take for one to start to notice anything? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 Note to MS sufferers using LDN. For MS LDN's main purpose is to halt disease progression, not improve symptoms. If you get symptom improvement on LDN then that's an added plus, only approximately 2/3 of those with MS using LDN will see symptom improvement. LDN will not repair permanent damage already done. LDN can halt disease progression and this can allow the body to heal itself but healing is not a guarantee even if LDN halts the progression. Damage from paralysis may never improve, hearing may never return if you've lost hearing or eyesight if nerve damage has occurred. If you have candida yeast overgrowth or bacterial infections you must clean them up for LDN to work properly. You may have to clean up your diet. As doctor McCandless has said many times, LDN is not a stand alone treatment. It's not going to perform 100% miracles unless one is very mild relapsing remitting MS and has little to no damage. Low Dose Naltrexone Forum http://ldn.proboards.com/index.cgi? > > I have MS and wonder how long does it take to start to notice results with LDN? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2010 Report Share Posted March 28, 2010 My friend who deals with MS started with 1.5mg and worked up to 4.5mg over a couple month period. She felt a good shift pretty quickly. [low dose naltrexone] LDN I have MS and wonder how long does it take to start to notice results with LDN? No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.791 / Virus Database: 271.1.1/2773 - Release Date: 03/27/10 00:32:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2010 Report Share Posted April 30, 2010 most people get stronger immune system with ldn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Great to hear how well it's working for you. >The only problem, I seem to have with LDN is UTI, which from what I have >researched, maybe caused from too much yeast, so I have to work on that! >I won't be jumping off the band wagon anytime soon, AND, I will keep my >LDN on my person, or in my purse just n case! D-Mannose is the best thing to try for the UTI. It is a highly concentrated form of the factor in cranberry juice that helps, without all the rest of the cranberry that isn't helpful. It's a simple carbohydrate, a nutrient. It won't allow the pathogens to stick to the walls of the UT system, so they are washed out of the body. Because it is a nutrient, there are no side effects. Other anti-yeast protocols should be followed in order to clear the body of yeast, but D-Mannose will (most likely) give relief of the UTI so that life can go on. Once the acute problem is over, some people prone to UTIs take it weekly to stay clear. -- > > > > > >No virus found in this incoming message. >Checked by AVG - www.avg.com >Version: 9.0.819 / Virus Database: 271.1.1/2887 - Release Date: 05/21/10 >01:26:00 ~~~ There is no way to peace; peace is the way ~~~~ --A.J. Muste Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 many have had success w/ CSilver against UTI's. you pee and poop it out within a few hours of drinking it, so having a shotglass every few hours keeps it going through the uriinary tract, and does much liike LDN on the immune system. you can douche with it too. great adjunct with LDN. From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of wroSent: Friday, May 21, 2010 11:02 AMlow dose naltrexone Subject: [low dose naltrexone] LDN Recently, I was out of town for a few days, WITHOUT my LDN and no where to have it re-filled! I was miserable, all crohns symptoms came back full force, not to mention that cloudy, gloomy, no energy feeling. 2 days back on it and I am on my way to feeling much better! I have said this many times, I never realized just how bad I felt until I began feeling better! It is just amazing to me, that this little 35.00 a month pill makes me feel so much better. People are beginning to even see it in me, I had a family member who hadnt seen me in awhile say, "You look great, for having cancer & crohns....you look and sound better then I do" HAHAHAHA I told him to get LDN! LOLOLOL Again, I am not saying that LDN is some miracle drug, but>>>>>It does make me feel better, it gives me more energy, and a clearer mental state then I have had in years! I am so thrilled that I was able to find out about it.....I know many crohns patients ar reluctant to try it, many have ven said to me that I am jumping on the "miracle drug,band wagon" Well, YES, YES I am!!! And I feel better then I ever had with prednisone, Humira, endocort, or any of those other side effect causing drugs. The only problem, I seem to have with LDN is UTI, which from what I have researched, maybe caused from too much yeast, so I have to work on that! I won't be jumping off the band wagon anytime soon, AND, I will keep my LDN on my person, or in my purse just n case! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Current time: Friday, 2010/05/21, 21:03 Hello bob, Well I am convinced then. I suppose all those sites that have researched it and found it to have no clinical effect whatsoever aside from placebo, if any at all, are plainly deluded. Can you tell me why you say it is a great adjunct with LDN..what precisely makes that so? -- Best regards, Friday, May 21, 2010, 6:45:03 PM, you wrote: many have had success w/ CSilver against UTI's. you pee and poop it out within a few hours of drinking it, so having a shotglass every few hours keeps it going through the uriinary tract, and does much liike LDN on the immune system. you can douche with it too. great adjunct with LDN. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.