LDN

[Guest guest]

Good One Dave! (sorry I just couldn't resist!) LOL!!!!!!!!

[low dose naltrexone] LDN

Dave,why don't you start your own liquid LDN group? You seem to have a lot of the answers and, you wouldn't be confronted or confused by doctors or facts. Cat

[Guest guest]

Jim,

That is absolutely terrible! How could they do something so

incompetent? I don't know what the other drug is but that sort of

mistake could have had bad, even fatal, consequences with some drugs.

We always hear America is a very litigious society and whilst I can't

stand people who sue for trivial reasons or when they've had some part

to play in their own problems (not taking responsibility for their own

actions) in this case can you sue?

Jharbott wrote:

> Aletha;

>

> I've been doing so well on LDN, over the past 2 1/2 weeks, now, I " ve

> been loosing the use of my legs that I had previously gained by being

> on LDN, what happened, the pharmacy gave me the wrong prescription, so

> now I will be starting back on LDN tonight, do you know how long it

> will take me to recover what I lost by being off LDN the last 2 1/2

> weeks? my Dr said, I should gain back what I lost, but, didn't know

> how long it would take.

>

> The pharmacy gave me " Aminopyridine " instead of LDN, my mouth, hands &

> feet hurt me so bad and I didn't know why, the Dr said, that was the

> side effect of the mistake the pharmacy made, sure screwed up my legs

> and trying to walk, I now have trouble transferring.

>

> Jim H.

Every day I beat my own previous record for the number of consecutive days I've

stayed alive.

.

,-._|\ C

/ Oz \

\_,--.x/

v

[Guest guest]

Hi ;

I started LDN 8/25/05 and doing well, I got back on LDN again last night.

When I took the other caps back and gave me the LDN, they said, sorry, that they would credit my account for their mistake. I suppose I could sue, but, I've never believed in suing, I don't need the money, but, what I could do is sue, and donate the money for research on MS, not to the NMSS, but, then I would have to find another compounding pharmacy.

I guess I will have to think about what to do, any suggestions?

"Aminopyridine", you can't find it under medications, when I found it, it said, it was used as a pesticide for rodents, and said if dogs and cats would eat the rodents it could kill them, when I asked the pharmacy about this, they said what I took was only 10mgs and I should be alright when it wears off and I get back on LDN. While I was on Aminopyridine, my legs got so weak, I fell twice in the shower and six other times in the house, I'm 6'2" and weigh 205lbs, my wife helpt me up every time, now she has hurt her back, it has also affected my digestive system. I just regain what I lost while on that drug.

Jim

Re: [low dose naltrexone] LDN

Jim,That is absolutely terrible! How could they do something so incompetent? I don't know what the other drug is but that sort of mistake could have had bad, even fatal, consequences with some drugs. We always hear America is a very litigious society and whilst I can't stand people who sue for trivial reasons or when they've had some part to play in their own problems (not taking responsibility for their own actions) in this case can you sue?Jharbott wrote:> Aletha;> > I've been doing so well on LDN, over the past 2 1/2 weeks, now, I"ve > been loosing the use of my legs that I had previously gained by being > on LDN, what happened, the pharmacy gave me the wrong prescription, so > now I will be starting back on LDN tonight, do you know how long it > will take me to recover what I lost by being off LDN the last 2 1/2 > weeks? my Dr said, I should gain back what I lost, but, didn't know > how long it would take.> > The pharmacy gave me "Aminopyridine" instead of LDN, my mouth, hands & > feet hurt me so bad and I didn't know why, the Dr said, that was the > side effect of the mistake the pharmacy made, sure screwed up my legs > and trying to walk, I now have trouble transferring.> > Jim H. Every day I beat my own previous record for the number of consecutive days I've stayed alive..,-._|\ C / Oz \ \_,--.x/ v

[Guest guest]

I steadfastly don't believe in litigation either, unless there's a

purpose for the greater good. I've never done it, but in your situation

I would seriously consider it. The pharmacy in question is a hazard to

all with whom it does business. The next person they make a " mistake "

with could be seriously hurt. It could be the mother of a young child,

for instance. I would see this as an opportunity to help the

community. Donating the proceeds would be a fine approach.

Jharbott wrote:

> Hi ;

>

> I started LDN 8/25/05 and doing well, I got back on LDN again last night.

>

> When I took the other caps back and gave me the LDN, they said, sorry,

> that they would credit my account for their mistake. I suppose I could

> sue, but, I've never believed in suing, I don't need the money, but,

> what I could do is sue, and donate the money for research on MS, not

> to the NMSS, but, then I would have to find another compounding pharmacy.

>

> I guess I will have to think about what to do, any suggestions?

>

>

[Guest guest]

then I would have to find another compounding pharmacy.

I guess I will have to think about what to do, any suggestions?

Jim

regardless if you sue, I would go to a different pharmacy! One on the ldn website list of approved pharmacies.

just my opinion.

hope you regain what you lost

Arlene

[Guest guest]

Some here like http://skipspharmacy.com

arlizotte@... wrote:

> then I would have to find another compounding pharmacy.

>

> I guess I will have to think about what to do, any suggestions?

>

> Jim

> regardless if you sue, I would go to a different pharmacy! One on

> the ldn website list of approved pharmacies.

> just my opinion.

> hope you regain what you lost

> Arlene

>

>

[Guest guest]

Jim,

You are right, if you sue you can donate the $ to MS research. It would probably have press coverage and in turn LDN will have a lot of publicity. The thing is, was it an honest mistake and does it really warrant suing? I don't know. Only you can answer that.

Peg

-- Re: [low dose naltrexone] LDN

Hi ;

I started LDN 8/25/05 and doing well, I got back on LDN again last night.

When I took the other caps back and gave me the LDN, they said, sorry, that they would credit my account for their mistake. I suppose I could sue, but, I've never believed in suing, I don't need the money, but, what I could do is sue, and donate the money for research on MS, not to the NMSS, but, then I would have to find another compounding pharmacy.

I guess I will have to think about what to do, any suggestions?

"Aminopyridine", you can't find it under medications, when I found it, it said, it was used as a pesticide for rodents, and said if dogs and cats would eat the rodents it could kill them, when I asked the pharmacy about this, they said what I took was only 10mgs and I should be alright when it wears off and I get back on LDN. While I was on Aminopyridine, my legs got so weak, I fell twice in the shower and six other times in the house, I'm 6'2" and weigh 205lbs, my wife helpt me up every time, now she has hurt her back, it has also affected my digestive system. I just regain what I lost while on that drug.

Jim

Re: [low dose naltrexone] LDN

Jim,That is absolutely terrible! How could they do something so incompetent? I don't know what the other drug is but that sort of mistake could have had bad, even fatal, consequences with some drugs. We always hear America is a very litigious society and whilst I can't stand people who sue for trivial reasons or when they've had some part to play in their own problems (not taking responsibility for their own actions) in this case can you sue?Jharbott wrote:> Aletha;> > I've been doing so well on LDN, over the past 2 1/2 weeks, now, I"ve > been loosing the use of my legs that I had previously gained by being > on LDN, what happened, the pharmacy gave me the wrong prescription, so > now I will be starting back on LDN tonight, do you know how long it > will take me to recover what I lost by being off LDN the last 2 1/2 > weeks? my Dr said, I should gain back what I lost, but, didn't know > how long it would take.> > The pharmacy gave me "Aminopyridine" instead of LDN, my mouth, hands & > feet hurt me so bad and I didn't know why, the Dr said, that was the > side effect of the mistake the pharmacy made, sure screwed up my legs > and trying to walk, I now have trouble transferring.> > Jim H. Every day I beat my own previous record for the number of consecutive days I've stayed alive..,-._|\ C / Oz \ \_,--.x/ v

[Guest guest]

I have a A/C but he just seems to feel worse at night than during the day. I don't know what that is from.

[low dose naltrexone] LDN

Hi ,It has been hot where I am lately, too. I know I'm making my husband crazy over it! We are in Southern California and, I'm going to get a/c, as soon as possible. The heat never used to bother me. But that is only a memory, now. Every summer, I dread it!As for the heat being worse at night, I know that there are some cold packs one can buy. At a drugstore, like Rite-Aid, Walgreens, Save-On? I got some at Rite-Aid. They do help.I hope this helps,

[Guest guest]

Jim,

You don't know the long term effect of the drug they "accidently" gave you. They have insurance for this type of "accident". Do not be swayed. It already has had a bad effect on your personal life. Your wife now has a back problem that she will probably suffer from for the rest of her life? At the very least get her medical coverage in writing for as long as she needs. Hell, I'd take them to the cleaners and not even bat an eye. You could have died!

Re: [low dose naltrexone] LDN

Jim,That is absolutely terrible! How could they do something so incompetent? I don't know what the other drug is but that sort of mistake could have had bad, even fatal, consequences with some drugs. We always hear America is a very litigious society and whilst I can't stand people who sue for trivial reasons or when they've had some part to play in their own problems (not taking responsibility for their own actions) in this case can you sue?Jharbott wrote:> Aletha;> > I've been doing so well on LDN, over the past 2 1/2 weeks, now, I"ve > been loosing the use of my legs that I had previously gained by being > on LDN, what happened, the pharmacy gave me the wrong prescription, so > now I will be starting back on LDN tonight, do you know how long it > will take me to recover what I lost by being off LDN the last 2 1/2 > weeks? my Dr said, I should gain back what

I lost, but, didn't know > how long it would take.> > The pharmacy gave me "Aminopyridine" instead of LDN, my mouth, hands & > feet hurt me so bad and I didn't know why, the Dr said, that was the > side effect of the mistake the pharmacy made, sure screwed up my legs > and trying to walk, I now have trouble transferring.> > Jim H. Every day I beat my own previous record for the number of consecutive days I've stayed alive..,-._|\ C / Oz \ \_,--.x/ v

[Guest guest]

I agree. I dont think the pharmacy is punishing themselves, I think

they are keeping their fingers crossed hoping that you dont pursue

this. You SHOULD. It's not about not needing the money, it's about

making them think twice about this kind of mistake. I would get an

attorney, you deserve everything you can get.

>

> > Aletha;

> >

> > I've been doing so well on LDN, over the past 2 1/2 weeks, now,

I " ve

> > been loosing the use of my legs that I had previously gained by

being

> > on LDN, what happened, the pharmacy gave me the wrong

prescription, so

> > now I will be starting back on LDN tonight, do you know how long

it

> > will take me to recover what I lost by being off LDN the last 2

1/2

> > weeks? my Dr said, I should gain back what I lost, but, didn't

know

> > how long it would take.

> >

> > The pharmacy gave me " Aminopyridine " instead of LDN, my mouth,

hands &

> > feet hurt me so bad and I didn't know why, the Dr said, that was

the

> > side effect of the mistake the pharmacy made, sure screwed up my

legs

> > and trying to walk, I now have trouble transferring.

> >

> > Jim H.

>

> Every day I beat my own previous record for the number of

consecutive days I've stayed alive.

> .

> ,-._|\ C

> / Oz \

> \_,--.x/

> v

>

[Guest guest]

Hi Jim,

From reading other peoples' responses it seems that there shouldn't be

any long term effects for you directly, which is good news. However,

the bad news is unfortunately your wife's back which may never be the

same again, especially if she has to help you up from time to time. We

have horses and my wife and daughter both have no problems lugging

around 40kg (100 lb) bags of horse feed yet both have hurt their back

trying to help me up when I have fallen and I feel terrible for that.

They will probably never be the same again and unfortunately if I fall

now I no longer have the strength in my arms/shoulders/chest to be able

to get myself back on my knees. Once I can get to my knees my legs have

enough strength to get me standing (using my walking frame) but need

help to get to my knees.

Jharbott wrote:

> Hi ;

>

> I started LDN 8/25/05 and doing well, I got back on LDN again last night.

>

> When I took the other caps back and gave me the LDN, they said, sorry,

> that they would credit my account for their mistake. I suppose I could

> sue, but, I've never believed in suing, I don't need the money, but,

> what I could do is sue, and donate the money for research on MS, not

> to the NMSS, but, then I would have to find another compounding pharmacy.

>

> I guess I will have to think about what to do, any suggestions?

>

> " Aminopyridine " , you can't find it under medications, when I found it,

> it said, it was used as a pesticide for rodents, and said if dogs and

> cats would eat the rodents it could kill them, when I asked the

> pharmacy about this, they said what I took was only 10mgs and I should

> be alright when it wears off and I get back on LDN. While I was on

> Aminopyridine, my legs got so weak, I fell twice in the shower and six

> other times in the house, I'm 6'2 " and weigh 205lbs, my wife helpt me

> up every time, now she has hurt her back, it has also affected my

> digestive system. I just regain what I lost while on that drug.

>

> Jim

[Guest guest]

It was at this point, when I was falling fairly regularly 5 yrs ago,

breaking many bones, that my hubby asked me to stay fulltime in a chair, to

take better care of myself so he could go to work knowing that I'd be OK for

the day. We'd already had several situations where he'd come home to find me

waiting on the floor... That's the point when I decided I'd better get a

wheelchair, finally selecting the snazziest Jazzy wheelchair I'd ever seen.

If you don't want to be a burden on others for picking you up, then that's

the point where you should seriously debate about getting one too.

Speaking as a girl for a second... It was kinda fun calling the local

firemen and having their big burley arms heaving me back onto a couch/chair

though! Mind you, my hubby wasn't terribly impressed!

Cheers, Rae

Re: [low dose naltrexone] LDN

Hi Jim,

From reading other peoples' responses it seems that there shouldn't be any

long term effects for you directly, which is good news. However, the bad

news is unfortunately your wife's back which may never be the same again,

especially if she has to help you up from time to time. We have horses and

my wife and daughter both have no problems lugging around 40kg (100 lb) bags

of horse feed yet both have hurt their back trying to help me up when I have

fallen and I feel terrible for that.

They will probably never be the same again and unfortunately if I fall now I

no longer have the strength in my arms/shoulders/chest to be able to get

myself back on my knees. Once I can get to my knees my legs have enough

strength to get me standing (using my walking frame) but need help to get to

my knees.

Jharbott wrote:

> Hi ;

>

> I started LDN 8/25/05 and doing well, I got back on LDN again last night.

>

> When I took the other caps back and gave me the LDN, they said, sorry,

> that they would credit my account for their mistake. I suppose I could

> sue, but, I've never believed in suing, I don't need the money, but,

> what I could do is sue, and donate the money for research on MS, not

> to the NMSS, but, then I would have to find another compounding pharmacy.

>

> I guess I will have to think about what to do, any suggestions?

>

> " Aminopyridine " , you can't find it under medications, when I found it,

> it said, it was used as a pesticide for rodents, and said if dogs and

> cats would eat the rodents it could kill them, when I asked the

> pharmacy about this, they said what I took was only 10mgs and I should

> be alright when it wears off and I get back on LDN. While I was on

> Aminopyridine, my legs got so weak, I fell twice in the shower and six

> other times in the house, I'm 6'2 " and weigh 205lbs, my wife helpt me

> up every time, now she has hurt her back, it has also affected my

> digestive system. I just regain what I lost while on that drug.

>

> Jim

[Guest guest]

Kathy,

Thanks for the input. I am exploring my options. The dr wants to wait to give a definitive diagnosis until until he gets the biopsy results back. I'll keep you guys posted. Do you think she could have an auto immune disease cuz of my MS?

-- Re: [low dose naltrexone] Re: LDN in Canada

Call Skip at the pharmacy and see if she should start at a lower dosage like 1.0 or 1.5. Afriend of mine developed Garden of Life and he was very ill with Chrohn's. He took Primal; Defense and it really helped him. He has written two books. One is the Maker's Diet and the other is "Physician, Heal Thyself" His name is Jordan and you can look him up on the internet. He is free of symptoms now for many years and was so ill, he traveled to 9 countries seeking an answer. I would give my child LDN, probiotics (Primal Defense), oils, enzymes and L-glutamine to help restore the mucosa lining. Check out his story. it is very inspiring . Best wishes, Kathy

[low dose naltrexone] Re: LDN in Canada

>> I know LDN is being used for Crohn's. My daughter is 10 and just had a> colonoscopy Tuesday. She has a problem of bleeding rectally occassionally. > The doctor took a specimen for biopsy, we get the results Tuesday. The only> thing he mentioned so far is there is one area that appears like Crohn's but> he doesn't want to talk yet until he gets the biopsy results (which will be> next Tuesday). I know LDN is being used for Crohn's. Is it possible that> she has Crohn's due to me having MS (an autoimmune disease) or is it just> one of those things she could have anyway-that's the way our cookie> crumbled? Do you think she should start on LDN?> > I would appreciate any feedback I could get.> =========Candida yeast of the gut is a huge contributor to Crohn's. Her diet must be radically changed. Gluten free, Dairy free, Soy free, Wheat free, SUGAR FREE(use stevia sweetener from healthfood store). This diet is basically what Dr. McCandless uses on her Autistic clients who suffer gut problems.Supplements to compliment the diet are...A good quality non-dairy Acidophilus...take 2 to 4 capsules daily.Lauricidin(do a google search)Oil of Oregano-take as directedOlive Leaf Extract-take as directedChlorofresh by Nature's Way, great source of chlorophyll/Alfalfa. http://www.naturesway.com Warning stools will be dark green so don't panic. If she has crohn's get her on LDN along with diet and supplements.If you change your diet to same as her's you'll both benefit and she won't feel alienated. The whole family needs to change diet to help her adjust. Dr. Atkins low carb diet eliminating dairy and wheat is best to follow to lower candida. You need to make sure your meats and eggs are free of growth hormones and antibiotics as these keep candida growing and growth hormones and antibiotics break down the immune system

[Guest guest]

Kathy,

You know how sometimes you just need a push to get over things? You really helped.

-- Re: [low dose naltrexone] Re: LDN

Well 3 out of 10 people will get an auto-immune condition of some type so they say. I think it is even higher. It can raise her susceptibility towards getting an auto-immune disorder but LDN has been really great at managing Chrohn's dis-ease. Don't blame yourself for this if it turns out to be Chrohn's is what I am trying to say. My cousin has ms, my niece CFS, my mom and aunt fibro, my other aunt, Parkinson's. I believe our predisposition stems from

environmental toxins in addition to other things (genetics, viral). The good thing is there are alot of people whose Chrohn's just goes into a remission indefinitely. I wish you both the best. Please do keep us posted. Kathy

[low dose naltrexone] Re: LDN in Canada

>> I know LDN is being used for Crohn's. My daughter is 10 and just had a> colonoscopy Tuesday. She has a problem of bleeding rectally occassionally. > The doctor took a specimen for biopsy, we get the results Tuesday. The only> thing he mentioned so far is there is one area that appears like Crohn's but> he doesn't want to talk yet until he gets the biopsy results (which will be> next Tuesday). I know LDN is being used for Crohn's. Is it possible that> she has Crohn's due to me having MS (an autoimmune disease) or is it just> one of those things she could have anyway-that's the way our cookie> crumbled? Do you think she should start on LDN?> > I would appreciate any feedback I could get.> =========Candida yeast of the gut is a huge contributor to Crohn's. Her diet must be radically changed. Gluten free, Dairy free, Soy free, Wheat free, SUGAR FREE(use stevia sweetener from healthfood store). This diet is basically what Dr. McCandless uses on her Autistic clients who suffer gut problems.Supplements to compliment the diet are...A good quality non-dairy Acidophilus...take 2 to 4 capsules daily.Lauricidin(do a google search)Oil of Oregano-take as directedOlive Leaf Extract-take as directedChlorofresh by Nature's Way, great source of chlorophyll/Alfalfa. http://www.naturesway.com Warning stools will be dark green so don't panic. If she has crohn's get her on LDN along with diet and supplements.If you change your diet to same as her's you'll both benefit and she won't feel alienated. The whole family needs to change diet to help her adjust. Dr. Atkins low carb diet eliminating dairy and wheat is best to follow to lower candida. You need to make sure your meats and eggs are free of growth hormones and antibiotics as these keep candida growing and growth hormones and antibiotics break down the immune system

[Guest guest]

Dear Peg .. from what i have read .. LDN works on that childhood tumor

in mice .... i have no human examples. However .. based on my

knowledge to date the lab experiments from Dr Zagon are mirroring

clinical data from Dr Bihari .. that is quite astounding .. so it has

to be worth a shot .. I know I would try it and I would use the

protocol set in place by Dr McCandless ..

All the very, very Best ..

Bradley

While I am here .. i want to share this letter I posted on

http://disc.server.com/Indices/226358.html

Dear Harry .. Your questions and skepticism are just. Here are my

honest thoughts. For the NMSS to acknowledge LDN might prove to be a

potential treatment for MS is a huge step forward .. not

scientifically or financially have the strides been made .. yet ...

but it is a huge political step forward. Regarding research .. there

are two definite and distinct schools of thought that can be split

into red sox yankees camps .. lab rats versus clinical. Here are the

facts .. Dr Zagon provided the spark for Dr Bihari's vision. For that,

Dr Zagon deserves much credit, much of which he may not have duly

received to date. Dr Bihari, while working with Naltrexone and holding

a huge interest in Naltrexone due to his patients at the time .. made

a legal clinical decision based on compassionate medicine to try the

drug on humans .. and because of his clinical results that expanded

beyond his wildest dreams .. he took the drug to where it is today

(which although has saved thousands of lives .. we really have not got

very far). Please remember also as far as ethics go .. Dr Bihari was

his own first guinea pig. For the NMSS to give the money to a

researcher could make one think that they are just playing games ..

the drug is FDA approved etc .. lab rats are not needed .. however the

NMSS did give the money to a guy who knows for a fact the lab rats

will prove that LDN works .. and given the implications of this drug

and its many potential uses .. in my heart .. I feel the more tests at

this stage the better because at a low dose the implications are

completely different than at a high dose. For example .. at a low dose

naltrexone reduces tumors and stops autoimmune progression .. at a

high does (50mg) .. it speeds up cancer growth, accelerates autoimmune

progression and yet also promotes wound healing .. there are many

things we need to know about the drug and its safety at a low does

that almost make the high dose trial of naltrexone that granted it FDA

approval redundant. I also think at this stage .. what difference do a

few more hoops make. We have come so far .. lets not rush things ..

lets make sure when we get our shot at proving the biggest medical

discovery ever .. in all of history .. that we act as responsibly as

possible and leave no stone unturned .. the implications of the drug

are so wide and vast .. it has to warrant rigorous testing. We all

have to admit .. it sounds too good to be true .. lets see is it? As

to mice models failing humans .. historically speaking I could not

agree more .. again this is where Naltrexone is proving different ..

so far from my lessons with Dr Zagon .. his lab research is mimicking

Dr Bihari's clinical work .. fascinating .. that does make the drug

seem even more like a wonder drug .. and even holds the potential to

help many animals .. I am monitoring every angle very closely and

remain most optimistic. To say the least Harry my friend .. this is a

most interesting and unique journey .. I firmly believe history is in

the process of being written.

Sincerely

Bradley

www.marybradleybooks.com

>

> Does anyone know if LDN has been used for neuroblastoma? I know of

a little

> 9 year old that has been through all the test drugs and has now

failed with

> her second stem cell transplant. The cancer has spread everywhere.

The

> letter I just received said that she is very positive and anxious to

start

> fifth grade and would fly back to her hospital 500 miles from home

to see

> what treatment options still exist (if any).

> I know it is a long shot but does anyone have a knowledgeable answer?

> Peg

>

[Guest guest]

Well 3 out of 10 people will get an auto-immune condition of some type so they say. I think it is even higher. It can raise her susceptibility towards getting an auto-immune disorder but LDN has been really great at managing Chrohn's dis-ease. Don't blame yourself for this if it turns out to be Chrohn's is what I am trying to say. My cousin has ms, my niece CFS, my mom and aunt fibro, my other aunt, Parkinson's. I believe our predisposition stems from

environmental toxins in addition to other things (genetics, viral). The good thing is there are alot of people whose Chrohn's just goes into a remission indefinitely. I wish you both the best. Please do keep us posted. Kathy

[low dose naltrexone] Re: LDN in Canada

>> I know LDN is being used for Crohn's. My daughter is 10 and just had a> colonoscopy Tuesday. She has a problem of bleeding rectally occassionally. > The doctor took a specimen for biopsy, we get the results Tuesday. The only> thing he mentioned so far is there is one area that appears like Crohn's but> he doesn't want to talk yet until he gets the biopsy results (which will be> next Tuesday). I know LDN is being used for Crohn's. Is it possible that> she has Crohn's due to me having MS (an autoimmune disease) or is it just> one of those things she could have anyway-that's the way our cookie> crumbled? Do you think she should start on LDN?> > I would appreciate any feedback I could get.> =========Candida yeast of the gut is a huge contributor to Crohn's. Her diet must be radically changed. Gluten free, Dairy free, Soy free, Wheat free, SUGAR FREE(use stevia sweetener from healthfood store). This diet is basically what Dr. McCandless uses on her Autistic clients who suffer gut problems.Supplements to compliment the diet are...A good quality non-dairy Acidophilus...take 2 to 4 capsules daily.Lauricidin(do a google search)Oil of Oregano-take as directedOlive Leaf Extract-take as directedChlorofresh by Nature's Way, great source of chlorophyll/Alfalfa. http://www.naturesway.com Warning stools will be dark green so don't panic. If she has crohn's get her on LDN along with diet and supplements.If you change your diet to same as her's you'll both benefit and she won't feel alienated. The whole family needs to change diet to help her adjust. Dr. Atkins low carb diet eliminating dairy and wheat is best to follow to lower candida. You need to make sure your meats and eggs are free of growth hormones and antibiotics as these keep candida growing and growth hormones and antibiotics break down the immune system

[Guest guest]

Hi -- I'm curious about the combo list of family diseases you mention, Kathy -- MS, CFS, fibro, Parkinson's -- that list is included in a list of what Lyme disease can cause. I have fibro which has turned out to be Lyme disease. Ditto for so many people's CFS. Check out www.lymediseaseassociation.org., www.lymenet.org and www.anapsid.org for symptoms and discussions. This list of diseases can result from tickbites.You can email me back if you want. -- sfrobink@... -- Robin

[Guest guest]

>

> Does anyone know if LDN has been used for neuroblastoma? I know of a little

> 9 year old that has been through all the test drugs and has now failed with

> her second stem cell transplant. The cancer has spread everywhere. The

> letter I just received said that she is very positive and anxious to start

> fifth grade and would fly back to her hospital 500 miles from home to see

> what treatment options still exist (if any).

> I know it is a long shot but does anyone have a knowledgeable answer?

> Peg

>

======

It's on the list of diseases that LDN helps. Go to http://www.ldninfo.org

[Guest guest]

I am so glad to hear that . I didn't know if my post came across as compassionate as I feel about your situation but it was what I was trying to convey. We, as women, have a tendency to blame ourselves when things don't go as planned for our families and most certainly our children. I just want you to know whatever the outcome, there is a great plan. Sometimes when people get a chronic condition they live longer than the seemingly healthy individual. Dis-ease in the body can bring us to a heightened level of awareness where we become better people and actually help others which I believe learning and loving are the only two reasons we are on this planet. I know when Jordan was in college so ill and disassociated from all the other students he never knew one day he would touch millions of lives and also be wealthy in mind, body and spirit. God Bless, Kathy

[low dose naltrexone] Re: LDN in Canada

>> I know LDN is being used for Crohn's. My daughter is 10 and just had a> colonoscopy Tuesday. She has a problem of bleeding rectally occassionally. > The doctor took a specimen for biopsy, we get the results Tuesday. The only> thing he mentioned so far is there is one area that appears like Crohn's but> he doesn't want to talk yet until he gets the biopsy results (which will be> next Tuesday). I know LDN is being used for Crohn's. Is it possible that> she has Crohn's due to me having MS (an autoimmune disease) or is it just> one of those things she could have anyway-that's the way our cookie> crumbled? Do you think she should start on LDN?> > I would appreciate any feedback I could get.> =========Candida yeast of the gut is a huge contributor to Crohn's. Her diet must be radically changed. Gluten free, Dairy free, Soy free, Wheat free, SUGAR FREE(use stevia sweetener from healthfood store). This diet is basically what Dr. McCandless uses on her Autistic clients who suffer gut problems.Supplements to compliment the diet are...A good quality non-dairy Acidophilus...take 2 to 4 capsules daily.Lauricidin(do a google search)Oil of Oregano-take as directedOlive Leaf Extract-take as directedChlorofresh by Nature's Way, great source of chlorophyll/Alfalfa. http://www.naturesway.com Warning stools will be dark green so don't panic. If she has crohn's get her on LDN along with diet and supplements.If you change your diet to same as her's you'll both benefit and she won't feel alienated. The whole family needs to change diet to help her adjust. Dr. Atkins low carb diet eliminating dairy and wheat is best to follow to lower candida. You need to make sure your meats and eggs are free of growth hormones and antibiotics as these keep candida growing and growth hormones and antibiotics break down the immune system

[Guest guest]

Does anyone know the date(s) of the conference?

-- [low dose naltrexone] Re: LDN in Canada>>What the heck, swing by Phoenix, I'd love to go to. []>>> >>> >>> >>> > I understand the lab rat thing and i'm all this is getting>> >>> done-hopefully at the next ldn conferance i'll be taping some very>> >>> exciting research studies.>> >>> > the one thing I love about LDN besides the fact that it works is>> >>that>> >>> it is PEOPLE POWERED -correct me if I'm wrong -i don't know any>> >>other>> >>> medication that people feel so passonately about.>> >>> > i just think about my friend margaret who is sitting in a wheel>> >>chair>> >>> -her hands are curled up and her doctor refused period end of>story.>> >>> > to me that cruel.>> >>> > cyndi>> >>>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>

[Guest guest]

mary bradly says it best. there are three groups of people. one that responds immediately. one that it takes a little longer. and some people who don't feel like they responding but they are. I encourage people to keep a diary --nothing huge -but jot down symptoms before you start good and bad then jot down changes to see what is really going on. the general knowledge is the ldn stop progression and that everything else is gravy.cyndiOn Sep 29, 2006, at 1:27 PM, Janice Kirkbride wrote: Can anyone explain why LDN works better fo some people than others and why some people have an immediate response and others do not.   I started taking LDN 6 weeks ago - started on 1.5 and then went up to 3 ml.  Cannot say I have noticed a great deal of differrence.  I have been told that it could take months before I see improvements.   Can anybody help me on this?   Thanks Re: [low dose naltrexone] Off Topic Posts

[Guest guest]

It took 3 months for me to notice a difference. The reason it is probably different for everyone is our immune systems are all functioning at different levels. It takes some people longer to achieve a state of balance than others. It may be your own starting point. It makes more sense than anything else. Actually it could be something as intricate as whose pineal gland has more calcification. All we can really have is an educated guess at this point. Noone knows for sure all the physiological mechanisms involved. We are just grateful it works for the majority. I think I can speak safely for everyone here by saying that. Kathy

[low dose naltrexone] Off Topic Posts

I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options.

-do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others.

I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems?

Joyce

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

Kathy

Thanks so much for your e-mail. I expect I am the only one of your members who is not in the USA. I am in Aberdeen, Scotland. I have had MS for 17 years but surprisingly am still able to walk almost a mile (unaided) on a good day but wanted the LDN to help my bladder problems (frequency) and fatigue and also for me to be able to walk further and not be so exhausted all the time. I was previously on beta inhterferon for 8 years but decided to come off it about 3 years ago. I also have numbness in both feet.

Janice Kirkbride

[low dose naltrexone] Off Topic Posts

I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options.

-do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others.

I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems?

Joyce

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

>

> I think the problem is that we're not seeing any posts from all of

those

> who are benefitting from her suggestions.

==========

90 plus percent of those I or Dr. McCandless or anyone else has

recommended to try lowering candida via diet on this forum hasn't

tried it.

Marcie is lowering her candida and virus load and I speak to her quite

often on the phone. The last time we spoke her speech had improved

alot in just a couple months. It was like talking to a different

person. She feels like death warmed over while detoxing but I am

hearing improvement in her speech.

One person lowered her candida load but it was by precription meds.

Her LDN had quit working and once candida was lowered her LDN kicked

back in again. That post of her thanking me for suggesting she lower

her candida level is on Elsegood's forum. I had suggested she

lower candida the natural way or a prescription of Diflucan, she chose

Diflucan.

There was someone else that was a male. I don't know if he ever tried

the diet or supplements.

The down side of using prescription meds to lower candida. If you

continue your old eating habits that caused candida in the first place

the candida yeast will grow right back further down the road. I am

doing the diet, supplements and prescription antifungal to be sure my

candida is as low as possible. Considering that I've had paralysis at

different times everywhere on my body except for my eyelids upward, I

am doing darn good. I contribute that to LDN, diet, supplements,

exercise, massage therapy, family, friends, etc.

Over 3 years ago there would have been no way I could've stood at the

stove and cooked a meal. I did that tonight for my parent's 49th

wedding anniversary. I would not have been able to do this even after

I started LDN, the things I've done to compliment LDN is what helped

me be able to accomplish the task tonight and accomplish many other

things I've enjoyed lately.

[Guest guest]

> >

I'd like to see other people post alternative, constructive ideas and

suggestions on how we can help LDN do a better job, rather than jump

all over 's case. She seems to be the only one who'll stick her

neck out. To her credit she's able to take the heat and still

maintain her credibility. If I were her I'd say screw you all, you're

on your own.

Artie