Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 > > 90 plus percent of those I or Dr. McCandless or anyone else has > recommended to try lowering candida via diet on this forum hasn't > tried it. > > Marcie is lowering her candida and virus load and I speak to her quite > often on the phone. The last time we spoke her speech had improved > alot in just a couple months. It was like talking to a different > person. She feels like death warmed over while detoxing but I am > hearing improvement in her speech. > > One person lowered her candida load but it was by precription meds. > Her LDN had quit working and once candida was lowered her LDN kicked > back in again. That post of her thanking me for suggesting she lower > her candida level is on Elsegood's forum. I had suggested she > lower candida the natural way or a prescription of Diflucan, she chose > Diflucan. > > There was someone else that was a male. I don't know if he ever tried > the diet or supplements. > > The down side of using prescription meds to lower candida. If you > continue your old eating habits that caused candida in the first place > the candida yeast will grow right back further down the road. I am > doing the diet, supplements and prescription antifungal to be sure my > candida is as low as possible. Considering that I've had paralysis at > different times everywhere on my body except for my eyelids upward, I > am doing darn good. I contribute that to LDN, diet, supplements, > exercise, massage therapy, family, friends, etc. > > Over 3 years ago there would have been no way I could've stood at the > stove and cooked a meal. I did that tonight for my parent's 49th > wedding anniversary. I would not have been able to do this even after > I started LDN, the things I've done to compliment LDN is what helped > me be able to accomplish the task tonight and accomplish many other > things I've enjoyed lately. > > > Perhaps I'm the male you speak of? I am on the diet and taking the supplements. Is it working? I am still walking and working full time as a blue-collar supervisor over difficult employees doing a physical job, so the answer has got to be yes. Am I able to play sports and have sex all night long with the women like I did when I was younger. The answer is no. I wish I had known about LDN many years ago before the CRAB/Novantrone drugs and IV steroids. Woulda, coulda, shoulda. I'll never know what could have been. But these are the cards that are dealt to me and I've got to play'em. I'd rather stay positive and try to help people. The way some people talk on these discussion boards, I can guarantee you they'd never speak that way to my face. Artie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 I share Arties view. is trying to help people. This is something that I have loved about the forum. Positive attitudes and a strong willingness to share and help others (even if it stretches away from LDN just a bit). Aletha [low dose naltrexone] Re: LDN > >> > > > I'd like to see other people post alternative, constructive ideas and > suggestions on how we can help LDN do a better job, rather than jump > all over 's case. She seems to be the only one who'll stick her > neck out. To her credit she's able to take the heat and still > maintain her credibility. If I were her I'd say screw you all, you're > on your own. > > Artie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 I guess I'll stick my neck out for a change. Allot of the reasons are not posting if something else is working is becasue there not supposed too. If it's alternative stuff there supposed to take it to other websites to talk about that stuff. This has been posted many times lately on her from the Glucks. But we still have to read about red cherry tart from all the time. The same rules need to apply to everyone. Either we can talk alternative stuff or we can't. It would be nice if others could get a word in edge wise and the others would be quite for awhile. Because theres allot of people posting stuff thats not on the LDN site. > >> > > > > > I'd like to see other people post alternative, constructive ideas and > > suggestions on how we can help LDN do a better job, rather than jump > > all over 's case. She seems to be the only one who'll stick her > > neck out. To her credit she's able to take the heat and still > > maintain her credibility. If I were her I'd say screw you all, you're > > on your own. > > > > Artie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 One thing that I'm trying, and perhaps it's too soon to say this, but I've noticed an increase in the strength of my left leg, is a product called 'super B-15' (Vitamin B-15, pangemic acid) Is anyone else using this?> > >> >> > >> > > I'd like to see other people post alternative, constructive ideas > and> > > suggestions on how we can help LDN do a better job, rather than > jump> > > all over 's case. She seems to be the only one who'll stick > her> > > neck out. To her credit she's able to take the heat and still> > > maintain her credibility. If I were her I'd say screw you all, > you're> > > on your own.> > >> > > Artie> > >> > >> > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2006 Report Share Posted November 3, 2006 > > I guess I'll stick my neck out for a change. Allot of the reasons > are not posting if something else is working is becasue there not > supposed too. If it's alternative stuff there supposed to take it to > other websites to talk about that stuff. This has been posted many > times lately on her from the Glucks. But we still have to read about > red cherry tart from all the time. The same rules need to > apply to everyone. Either we can talk alternative stuff or we > can't. It would be nice if others could get a word in edge wise and > the others would be quite for awhile. Because theres allot of people > posting stuff thats not on the LDN site. > ============= Off-topic Posts: It is natural for discussion, on occasion, to stray into areas tangential to LDN. Discussion of a topic related to LDN can be a valid use of this discussion group -- as long as the topic does actually relate in some way to group members' use of LDN. In practice, members are rarely banned for making the occasional off-topic post, unless the nature of the post is offensive to other members. However, if an extended discussion (more than three messages) ensues that is not relevant to LDN use, please take it somewhere else (e.g., e- mailing one another directly, or finding a more appropriate forum). Please be considerate to general readers of the group who must wade through off-topic discussions in order to find something relevant to LDN. ========== If you'll notice in most of my posts I have made referrence to LDN in most of them. I try to tie most all my supplement, diet and exercise posts to connect in some way with LDN or how these can compliment LDN. I haven't mentioned Tart Cherry in months but if I feel someone can benefit from it and it does not coincide with their LDN use I'll email them privately. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 > > I was wondering if LDN comes in pills or injections? > > Manon > ========= It comes in capsules made up by a compounding pharmacy or in liquid. LDN website http://www.ldninfo.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 It can also be made into a cream, or you can make it yourself. [low dose naltrexone] Re: LDN >> I was wondering if LDN comes in pills or injections?> > Manon>=========It comes in capsules made up by a compounding pharmacy or in liquid.LDN websitehttp://www.ldninfo.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hi Manon, LDN typically comes in pill form. A small percentage of people get it as a liquid and children are usually give a form in oil that can be put on the skin. If you are interested in LDN for MS, please let me know and I can send you a copy of the "welcome e-mail" It explains a bit more. Thanks Aletha [low dose naltrexone] LDN I was wondering if LDN comes in pills or injections?Manon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Alektha: would it be possible to get a copy of the Welcome Email for MS and LDN thenks Ken > > Hi Manon, > > LDN typically comes in pill form. A small percentage of people get it as a liquid and children are usually give a form in oil that can be put on the skin. > > If you are interested in LDN for MS, please let me know and I can send you a copy of the " welcome e-mail " It explains a bit more. > > Thanks > Aletha > [low dose naltrexone] LDN > > > I was wondering if LDN comes in pills or injections? > > Manon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 In South Africa LDN comes in 4.5 mg pills. Very handy. Malcolm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 Does anyone know if one can take LDN while doing chemotherapy? Will it still be as effective? ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 > > Does anyone know if one can take LDN while doing chemotherapy? Will it > still be as effective? > ne > hi Suzanne, My son has been on chemo since May (cyclophosphamide) and has continued on LDN throughout. Overall, he has had tremendous improvement - when he started chemo could not walk at all or even stand; now he is walking unaided. I don't know if the LDN has had anything to do with it, but it certainly has not seemed to hurt. He can also write again; prior to this he had great difficulty holing a pen and his handwriting was illegible - hope this is helpful.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 > > > > Does anyone know if one can take LDN while doing chemotherapy? > Will it > > still be as effective? > > ne ============== Dr. Bihari says LDN will not be near as effective taken with chemo. The chemo pretty much wipes out most of the effect of LDN. These two drugs work just the opposite of one another. The chemo being the strong immune system suppressant well overpowers LDN's effectiveness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 Hi all, Do any of you take LDN for MS? I have recently been diagnosed with PPMS and it is really cripppling me. I have become disabled. I can no longer walk, I am wondering if LDN will help me. I am desperate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 , You found the right place to come. LDN is used in place of a CRAB drug, to prevent progression of disease. The only CRAB drug you can use it with it is Copaxone. What is REAL nice about it is: !). It is cheap (less than $30.00 a month, 2). One of the benefits you get by taking it is help with bladder conditions 3). Some people get help with their balance. I have been on since the end of June for my MS, I take 3mg nightly. I only take 3mg because I have spascticity in my right leg and that is the amount they recommend when you have that problem. My leg hasn'tt gotten better but it hasn't gotten worse either. I have had NO MS problems since starting it. Good luck, hope I helped, -- Re: [low dose naltrexone] Re:LDN Hi all, Do any of you take LDN for MS? I have recently been diagnosed with PPMS and it is really cripppling me. I have become disabled. I can no longer walk, I am wondering if LDN will help me. I am desperate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 , I, too, have PPMS. I haven't stood or walked in 7 1/2 years. I started LDN over 3 years ago. I have seen slight improvements, but no miracles. I had a UTI last summer that has really set me back. Most here take LDN for MS. Some have seen great results. It does seem the best hope, medically speaking. Hang in there. Marcie Hinson <ehinson@...> wrote: Hi all, Do any of you take LDN for MS? I have recently been diagnosed with PPMS and it is really cripppling me. I have become disabled. I can no longer walk, I am wondering if LDN will help me. I am desperate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2007 Report Share Posted January 28, 2007 I am so grateful to all who have responded to me, directly or indirectly. It seems one has to find a 'unique' doctor to work with in terms of LDN-i.e. that it is not common place for them to prescribe LDN. I am afraid that this specialist I am to meet is going to try to be quite persuasive about Tysabri (who knows, kick back from pharmaceutical?) Does anyone here with MS also have TN? -trigeminal neuralgia? and has the LDN helped with that? I've had both the MVD (basically, brain surgery) and the Gamma Knife, and am still left with a good deal of pain...blessings, kate [low dose naltrexone] Re: LDNlow dose naltrexone > Most of us here take LDN for MS and many of us have had very > good results. I > feel that the progression stopped or slowed significantly when I > started on > 3.0 last April. I still use a walker and a scooter to get > around, but thank > goodness, the other symtoms appear to have resolved.> > Try to get on the LDN as soon as you can so you can see if it > helps you and > so you can minimize the damage. Good luck> Joyce> Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 I am in Aberdeen and take LDN but my GP is based in Glasgow. Janice [low dose naltrexone] ldn HI EVERYONE IS THERE ANYONE OUT THERE INGLASGOW WHO ARE TAKING LDNJOHN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 > > IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy, > please let me know. My daughter is no longer taking it because it made > her worse than she had ever been in the 11 years that she has had MS and > she never got better. She is doing soooo much better since stopping it. > She's actually walking with no assistance now. We're going to wait > after the clinical trial to see what happens. Right now it's just so > much that is unknown about it right now. I received a 90 day supply > from skip in January and my daughter only took it for about a week. > However, she was actually on the LDN for 2 months. I know there will be > some of you that say that we let the fear win out but, we had to do what > was best for her. We've changed her diet and supplements. She's seeing > a Natural Path, a nutritionist and a Chiropractor. > > > > Thanks and good luck to you all > >====== I hate your daughter quit LDN after being on LDN only a week. I just told the lady Dr. Gironi in Italy doing the LDN trial in MS that increased symptoms can take place in the first 3 months on LDN and listed a few of those symptoms. I wrote that these symptoms generally fade away as time passes and endorphins rise and level out. She wrote me back and said that what I described is exactly what happened to 4-5 of the patients she has started LDN and thanked me for that valuable information. Your daughter should possibly start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship way too soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hello Jackie; As much as I wish LDN works for everyone, it doesn't. I take mine mixed in water but wouldn't mind trying some from Skip if the price is right. Email me at luigi@... [low dose naltrexone] LDN IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy, please let me know. My daughter is no longer taking it because it made her worse than she had ever been in the 11 years that she has had MS and she never got better. She is doing soooo much better since stopping it. She’s actually walking with no assistance now. We’re going to wait after the clinical trial to see what happens. Right now it’s just so much that is unknown about it right now. I received a 90 day supply from skip in January and my daughter only took it for about a week. However, she was actually on the LDN for 2 months. I know there will be some of you that say that we let the fear win out but, we had to do what was best for her. We’ve changed her diet and supplements. She’s seeing a Natural Path, a nutritionist and a Chiropractor. Thanks and good luck to you all Jackie 'To the world you might be one person, but to one person you just might the world' No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.17.36/681 - Release Date: 2/11/2007 6:50 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc. I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline. Dennis Bren wrote: > > IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy, > please let me know. My daughter is no longer taking it because it made > her worse than she had ever been in the 11 years that she has had MS and > she never got better. She is doing soooo much better since stopping it. > She's actually walking with no assistance now. We're going to wait > after the clinical trial to see what happens. Right now it's just so > much that is unknown about it right now. I received a 90 day supply > from skip in January and my daughter only took it for about a week. > However, she was actually on the LDN for 2 months. I know there will be > some of you that say that we let the fear win out but, we had to do what > was best for her. We've changed her diet and supplements. She's seeing > a Natural Path, a nutritionist and a Chiropractor. > > > > Thanks and good luck to you all > >====== I hate your daughter quit LDN after being on LDN only a week. I just told the lady Dr. Gironi in Italy doing the LDN trial in MS that increased symptoms can take place in the first 3 months on LDN and listed a few of those symptoms. I wrote that these symptoms generally fade away as time passes and endorphins rise and level out. She wrote me back and said that what I described is exactly what happened to 4-5 of the patients she has started LDN and thanked me for that valuable information. Your daughter should possibly start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship way too soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Introductory Side-effects: There may be some initial transient, though temporary, increase in MS symptoms during the adaptive period when the LDN is first introduced. This usually lasts no more than one week but if symptoms are severe, or more prolonged, then the initial dose of 1.5 for a month, 3 for a month, then 4.5 until the anticipated improvements begin to develop. Introductory symptoms, on starting this treatment, may include such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. Symptoms related to increased endorphins: These may include such as nausea or constipation. These symptoms diminish naturally as the body adjusts to the increased endorphin level. Symptoms related to previous Opiate use: On starting LDN the recent use of opiate analgesics will result in an opiate withdrawal syndrome, with increased pain, spasm, vomiting and diarrhea. These symptoms may be prevented by stopping all opiate analgesics at least two weeks before starting the LDN. Always, Crystal LDN_Users Group Owner CrystalAngel Novelties To Support MS,TM and LDN Crystal's MS,TM & LDN Website Crystal's LDN Support Group MS & TM Spouse & Caregiver Support Group Crystal's MySpace Re: [low dose naltrexone] Re: LDN I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc.I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline.Dennis Bren wrote: >> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,> please let me know. My daughter is no longer taking it because it made> her worse than she had ever been in the 11 years that she has had MS and> she never got better. She is doing soooo much better since stopping it.> She's actually walking with no assistance now. We're going to wait> after the clinical trial to see what happens. Right now it's just so> much that is unknown about it right now. I received a 90 day supply> from skip in January and my daughter only took it for about a week.> However, she was actually on the LDN for 2 months. I know there will be> some of you that say that we let the fear win out but, we had to do what> was best for her. We've changed her diet and supplements. She's seeing> a Natural Path, a nutritionist and a Chiropractor.> > > > Thanks and good luck to you all > >======I hate your daughter quit LDN after being on LDN only a week. I just told the lady Dr. Gironi in Italy doing the LDN trial in MS that increased symptoms can take place in the first 3 months on LDN and listed a few of those symptoms. I wrote that these symptoms generally fade away as time passes and endorphins rise and level out. She wrote me back and said that what I described is exactly what happened to 4-5 of the patients she has started LDN and thanked me for that valuable information. Your daughter should possibly start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship way too soon. Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Autos' Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 LDN did nothing for me and I took it over a year. it turns out I have lyme disease, but I had to have an Igenex test and see a LLMD (lyme literate MD). a regular doc or regular lab tests won't do it. several people who took LDN with no results, actually had lyme, about 15 i believe. Arlene -------------- Original message -------------- From: dlarussa <dlarussa@...> I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc.I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline.Dennis Bren wrote: >> IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy,> please let me know. My daughter is no longer taking it because it made> her worse than she had ever been in the 11 years that she has had MS and> she never got better. She is doing soooo much better since stopping it.> She's actually walking with no assistance now. We're going to wait> after the clinical trial to see what happens. Right now it's just so> much that is unknown about it right now. I received a 90 day supply> from skip in January and my daughter only took it for about a week.> However, she was actually on the LDN for 2 months. I know there will be> some of you that say that we let the fear win out but, we had to do what> ; ; was best for her. We've changed her diet and supplements. She's seeing> a Natural Path, a nutritionist and a Chiropractor.> > > > Thanks and good luck to you all > >======I hate your daughter quit LDN after being on LDN only a week. I just told the lady Dr. Gironi in Italy doing the LDN trial in MS that increased symptoms can take place in the first 3 months on LDN and listed a few of those symptoms. I wrote that these symptoms generally fade away as time passes and endorphins rise and level out. She wrote me back and said that what I described is exactly what happened to 4-5 of the patients she has started LDN and thanked me for that valuable information. Your daughter should possibly start on 1.0mg for 2 weeks, then up to 1.5mg for 3 weeks then up .5mg every month till she reaches 3mg or 4.5mg. She jumped ship way too soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi Jackie, That's a generous offer. Medications - just like anything else - can deteriorate after opening. This means there's additional risk in ingesting second-hand medications - and that's especially so for those who are already suffering from adverse health conditions. I don't think it'd be wise for anyone to take on that risk - especially as LDN is already a low cost medication. Regards, Cris > > IF anyone would like 3.0mgs of LDN that I got from Skips Pharmacy, > please let me know. My daughter is no longer taking it because it made > her worse than she had ever been in the 11 years that she has had MS and > she never got better. She is doing soooo much better since stopping it. > She's actually walking with no assistance now. We're going to wait > after the clinical trial to see what happens. Right now it's just so > much that is unknown about it right now. I received a 90 day supply > from skip in January and my daughter only took it for about a week. > However, she was actually on the LDN for 2 months. I know there will be > some of you that say that we let the fear win out but, we had to do what > was best for her. We've changed her diet and supplements. She's seeing > a Natural Path, a nutritionist and a Chiropractor. > > > > Thanks and good luck to you all > > > > Jackie > > 'To the world you might be one person, but to one person you just might > the world' > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 took me MONTHS to go through all the cycling my body went through trying to heal itself. starting LDN is like cutting open a scab and then just letting it bleed. The body has to go through it all, especially given the factors such as age, existing damage, and levels of other drugs fed into the body system over the years. Sometimes it can trigger withdrawal symptoms from old dormant issues. How come people start Avonex and once a week feel like they're DYING, but they stick with it? And if side effects stop, they consider that it was a good thing that the body was beaten into submission by not reacting to the insults of the med? Good luck to ya. Re: [low dose naltrexone] Re: LDN I was in the same boat and quit after one month. I am still left one month later with new symptoms and old aggravated symptoms that were caused by my trial with LDN. While I have no doubt that many receive benefits from LDN, I am sure that others just do not well. This may be a result of different factors, such as age, existing nerve damage, status of the disease, gender, etc.I have a great deal of difficulty with the notion that someone should continue in the face of adverse results although I did just that and will regret it if I don't get back to baseline.Dennis Quote Link to comment Share on other sites More sharing options...
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