LDN

[Guest guest]

Dear Spike,

I would strongly suggest trying to take out the morning dosage as soon as you think you can handle it. It may take you back just a bit, but most likely you will recover to have similar effects once your body acclimate to the LDN.

There are others that have temporary taken the larger dosages and gotten out of exacerbations with it and then return back to the normal dosage a bit after they get through them. So I know what you are feeling is highly possible. But the concern is that over 4.5mg you might not be able to capture the lack of progression that LDN is hoped to effect.

When you do try to cut out the morning dosage you might want to substitute by trying to incorporate DLPA in the morning and even in the afternoon. That might also have the desired effect that your morning dosage of LDN has given you.

My best

Aletha

[low dose naltrexone] Re: LDN

I never told anyone to take LDN in the morning. I tell people to take their LDN at night between the recommended hours of 9:00PM and 3:00AM. You have me mixed up with someone else.Art-->> > Hi everyone,I want to thank Art Hansen for telling me to take 1.5 in the morning to help my vision,,and i friggen do not need a nap,it my last i hope.THANKS ART> __________________________________________________________> Send a smile, make someone laugh, have some fun! Start now!> http://www.freemessengeremoticons.ca/?icid=EMENCA122>

Have fun while connecting on Messenger! Click here to learn more.

[Guest guest]

It is not what Dr. Bihari and other doctors recommend.

Art

--

>

> Hi iam taking 4.5 dose at night when i wake up i take 1.5 wait 1hr

then have breakfast,,iam getting better results with ldn!! more energy

no more naps,?is this a okay dosage.Thanks spike

>

[Guest guest]

But it is not toxic,,so why not?spike

low dose naltrexone From: rtee54@...Date: Tue, 16 Oct 2007 22:07:37 +0000Subject: [low dose naltrexone] Re: LDN

It is not what Dr. Bihari and other doctors recommend.Art--> > Hi iam taking 4.5 dose at night when i wake up i take 1.5 wait 1hr then have breakfast,,iam getting better results with ldn!! more energy no more naps,?is this a okay dosage.Thanks spike> Are you ready for Windows Live Messenger Beta 8.5 ? Get the latest for free today!

[Guest guest]

By taking it again in the morning you are blocking endorphin

production a second time in 24 hours. You risk a progression in the

disease you're trying to control. If you're feeling better doing so

who am I to argue but this goes against what Dr. Bihari recommends.

This is from Dr. Gluck's website:

What dosage and frequency should my physician prescribe?

The usual adult dosage is 4.5mg taken once daily at night. Because of

the rhythms of the body's production of master hormones, LDN is best

taken between 9pm and 3am. Most patients take it at bedtime.

People who have multiple sclerosis that has led to muscle spasms are

advised to use only 3mg daily and to maintain that dosage.

Rarely, the naltrexone may need to be purchased as a solution — in

distilled water — with 1mg per ml dispensed with a 5ml medicine

dropper. If LDN is used in a liquid form, it is important to keep it

refrigerated.

The therapeutic dosage range for LDN is from 1.75mg to 4.5mg every

night. Dosages below this range are likely to have no effect at all,

and dosages above this range are likely to block endorphins for too

long a period of time and interfere with its effectiveness.

http://www.low dose naltrexone.org/

Art

--

>

>

> But it is not toxic,,so why not?spike

>

>

[Guest guest]

There must be something up with what iam doing,,maybe a superkick,maybe not i have been on ldn now for 7mths maybe my body is starting to get the full effect, ldn being not TOXIC,iam going to ride this train for awhile..spike

low dose naltrexone From: rtee54@...Date: Tue, 16 Oct 2007 22:53:21 +0000Subject: [low dose naltrexone] Re: LDN

By taking it again in the morning you are blocking endorphin production a second time in 24 hours. You risk a progression in the disease you're trying to control. If you're feeling better doing so who am I to argue but this goes against what Dr. Bihari recommends.This is from Dr. Gluck's website:What dosage and frequency should my physician prescribe?The usual adult dosage is 4.5mg taken once daily at night. Because of the rhythms of the body's production of master hormones, LDN is best taken between 9pm and 3am. Most patients take it at bedtime.People who have multiple sclerosis that has led to muscle spasms are advised to use only 3mg daily and to maintain that dosage.Rarely, the naltrexone may need to be purchased as a solution — in distilled water — with 1mg per ml dispensed with a 5ml medicine dropper. If LDN is used in a liquid form, it is important to keep it refrigerated.The therapeutic dosage range for LDN is from 1.75mg to 4.5mg every night. Dosages below this range are likely to have no effect at all, and dosages above this range are likely to block endorphins for too long a period of time and interfere with its effectiveness.http://www.low dose naltrexone.org/Art-->> > But it is not toxic,,so why not?spike> > R U Ready for Windows Live Messenger Beta 8.5? Try it today!

[Guest guest]

Hi Clare,Welcome to the group!Glad the LDN is starting to work for you. In my opinion, it should be the drug of choice in treating MS.If I were you, however, I would not depend on LDN alone to defeat my MS. For more information on additional treatment options (e.g., diet, food supplements, etc), visithttp://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delanyFrom: Clare Magee

Sent: Thursday, October 18, 2007 3:26 AM

low dose naltrexone

Subject: [low dose naltrexone] ldn

Hi all

I am new to the group. My name is Clare,and I'm from cork , Ireland I was diagnosed with ms three years ago and was on avonex for only a short time it did not like me and I had a needle phoeba.

Eight weeks ago a friend introduced me to ldn, she is on it now 5years with no relapses.I've had nothing but sleepless nights and bizzare dreams for eight weeks now. But my friend says dont give up initially you will feel terrible but that goes away.

Anyway I slept all night last night with no dreams,i feel more alert for 1st time but nothing else still have balance problems and weak limbs but the latter is great. so I want to tell you all of my experience.It may last it may not but I,m taking one day at a time.A tablet is much better than conventional medication.

Regards.

Clare.

[Guest guest]

welcome Clare glad you have found LDN

what mg did you start on

lyn

[low dose naltrexone] ldn

Hi all

I am new to the group. My name is Clare,and I'm from cork , Ireland I was diagnosed with ms three years ago and was on avonex for only a short time it did not like me and I had a needle phoeba.

Eight weeks ago a friend introduced me to ldn, she is on it now 5years with no relapses.I've had nothing but sleepless nights and bizzare dreams for eight weeks now. But my friend says dont give up initially you will feel terrible but that goes away.

Anyway I slept all night last night with no dreams,i feel more alert for 1st time but nothing else still have balance problems and weak limbs but the latter is great. so I want to tell you all of my experience.It may last it may not but I,m taking one day at a time.A tablet is much better than conventional medication.

Regards.

Clare.

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[Guest guest]

Hi lyn

Thank you for email.I went to see a dr Crowley in Kilkenny, Ireland. He started me on 3mg I stayed on that for 2 weeks then 4mg now.

Regards,

Clare.

[low dose naltrexone] ldn

Hi all

I am new to the group. My name is Clare,and I'm from cork , Ireland I was diagnosed with ms three years ago and was on avonex for only a short time it did not like me and I had a needle phoeba.

Eight weeks ago a friend introduced me to ldn, she is on it now 5years with no relapses.I've had nothing but sleepless nights and bizzare dreams for eight weeks now. But my friend says dont give up initially you will feel terrible but that goes away.

Anyway I slept all night last night with no dreams,i feel more alert for 1st time but nothing else still have balance problems and weak limbs but the latter is great. so I want to tell you all of my experience.It may last it may not but I,m taking one day at a time.A tablet is much better than conventional medication.

Regards.

Clare.

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No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.0/1076 - Release Date: 17/10/2007 19:53

[Guest guest]

Hi lyn

Thank you for email.I went to see a dr Crowley in Kilkenny, Ireland. He started me on 3mg I stayed on that for 2 weeks then 4mg now.

Regards,

Clare.

[low dose naltrexone] ldn

Hi all

I am new to the group. My name is Clare,and I'm from cork , Ireland I was diagnosed with ms three years ago and was on avonex for only a short time it did not like me and I had a needle phoeba.

Eight weeks ago a friend introduced me to ldn, she is on it now 5years with no relapses.I've had nothing but sleepless nights and bizzare dreams for eight weeks now. But my friend says dont give up initially you will feel terrible but that goes away.

Anyway I slept all night last night with no dreams,i feel more alert for 1st time but nothing else still have balance problems and weak limbs but the latter is great. so I want to tell you all of my experience.It may last it may not but I,m taking one day at a time.A tablet is much better than conventional medication.

Regards.

Clare.

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No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.0/1076 - Release Date: 17/10/2007 19:53

[Guest guest]

Hi Dudley thank you for best wishes and information.

Re: [low dose naltrexone] ldn

Hi Clare,Welcome to the group!Glad the LDN is starting to work for you. In my opinion, it should be the drug of choice in treating MS.If I were you, however, I would not depend on LDN alone to defeat my MS. For more information on additional treatment options (e.g., diet, food supplements, etc), visithttp://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delany

From: Clare MageeSent: Thursday, October 18, 2007 3:26 AMlow dose naltrexone Subject: [low dose naltrexone] ldn

Hi all

I am new to the group. My name is Clare,and I'm from cork , Ireland I was diagnosed with ms three years ago and was on avonex for only a short time it did not like me and I had a needle phoeba.

Eight weeks ago a friend introduced me to ldn, she is on it now 5years with no relapses.I've had nothing but sleepless nights and bizzare dreams for eight weeks now. But my friend says dont give up initially you will feel terrible but that goes away.

Anyway I slept all night last night with no dreams,i feel more alert for 1st time but nothing else still have balance problems and weak limbs but the latter is great. so I want to tell you all of my experience.It may last it may not but I,m taking one day at a time.A tablet is much better than conventional medication.

Regards.

Clare.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.0/1076 - Release Date: 17/10/2007 19:53

[Guest guest]

Hi, Clare,

What is a 'needle phoeba'?

Welcome to the LDN group. A friend of mine lives north of

Belfast...how far are you from Belfast?

Aimee

>

> Hi lyn

> Thank you for email.I went to see a dr Crowley in Kilkenny,

Ireland. He started me on 3mg I stayed on that for 2 weeks then 4mg

now.

> Regards,

> Clare.

> [low dose naltrexone] ldn

>

>

>

> Hi all

> I am new to the group. My name is Clare,and I'm from

cork , Ireland I was diagnosed with ms three years ago and was on

avonex for only a short time it did not like me and I had a needle

phoeba.

> Eight weeks ago a friend introduced me to ldn, she is

on it now 5years with no relapses.I've had nothing but sleepless

nights and bizzare dreams for eight weeks now. But my friend says

dont give up initially you will feel terrible but that goes away.

> Anyway I slept all night last night with no

dreams,i feel more alert for 1st time but nothing else still have

balance problems and weak limbs but the latter is great. so I want

to tell you all of my experience.It may last it may not but I,m

taking one day at a time.A tablet is much better than conventional

medication.

> Regards.

> Clare.

>

> -------------------------------------------------------------------

-----------

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and store photos and experience exclusively recorded live music

Sessions from your favourite artists. Click Here for more

information.

>

>

>

>

>

> -------------------------------------------------------------------

-----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.488 / Virus Database: 269.15.0/1076 - Release Date:

17/10/2007 19:53

>

[Guest guest]

a needle phoeba is a fear of needles.Cork is south of Ireland, Belfast is north about 8 hour journey. Many thanks for email.

Regards,

Clare.

[low dose naltrexone] ldn> > > > Hi all> I am new to the group. My name is Clare,and I'm from cork , Ireland I was diagnosed with ms three years ago and was on avonex for only a short time it did not like me and I had a needle phoeba.> Eight weeks ago a friend introduced me to ldn, she is on it now 5years with no relapses.I've had nothing but sleepless nights and bizzare dreams for eight weeks now. But my friend says dont give up initially you will feel terrible but that goes away.> Anyway I slept all night last night with no dreams,i feel more alert for 1st time but nothing else still have balance problems and weak limbs but the latter is great. so I want to tell you all of my experience.It may last it may not but I,m taking one day at a time.A tablet is much better than conventional medication.> Regards.> Clare.> > ---------------------------------------------------------------------> Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.> > > > > > ---------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.488 / Virus Database: 269.15.0/1076 - Release Date: 17/10/2007 19:53>

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.0/1077 - Release Date: 18/10/2007 09:54

[Guest guest]

Phobia? :-)

Clare Magee wrote:

> a needle phoeba is a fear of needles.Cork is south of Ireland, Belfast

> is north about 8 hour journey. Many thanks for email.

> Regards,

> Clare.

[Guest guest]

Hi Jim,What is your diagnosis?If it's MS, here is a site you may find helpful:http://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delanyFrom: Jharbott

Sent: Monday, October 22, 2007 3:02 PM

low dose naltrexone

Subject: [low dose naltrexone] LDN

To All;

I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects?

Jim H.

[Guest guest]

Jim,

Never tried that.

Have you ever tried 4-AP?

Art

--

> To All;

>

> I've been on LDN over three years but, need more help, has

anyone been on Sphingolin? if so, did it help and any side effects?

>

> Jim H.

>

>

> --------------------------------------------------------------------

------

>

[Guest guest]

Art: What is 4-Ap? Thanks Art Hansen <rtee54@...> wrote: Jim,Never tried that. Have you ever tried 4-AP?Art--> To All;> > I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects?> > Jim H. > > >

----------------------------------------------------------------> __________________________________________________

[Guest guest]

I've been taking this for a few months now. Helps, somewhat.

4-AP (or 4-aminopyridine) is a drug that improves the function of

surviving nerve fibers in your spinal cord. Most people with spinal

cord injury still have some connections, but many have lost their

myelin (an insulating material) and cannot conduct signals well. 4-AP

allows these de-myelinated axons to send signals...

http://www.mult-sclerosis.org/news/May2000/4APFAQ.html

>

> Art:

>

> What is 4-Ap?

>

> Thanks

>

>

> Art Hansen <rtee54@...> wrote:

> Jim,

>

> Never tried that.

>

> Have you ever tried 4-AP?

>

> Art

> --

>

> > To All;

> >

> > I've been on LDN over three years but, need more help, has

> anyone been on Sphingolin? if so, did it help and any side effects?

> >

> > Jim H.

> >

> >

> > ----------------------------------------------------------

> ------

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Art;

I've never tried 4-AP, is it by perscription?

Jim H.

[low dose naltrexone] Re: LDN

I've been taking this for a few months now. Helps, somewhat.4-AP (or 4-aminopyridine) is a drug that improves the function of surviving nerve fibers in your spinal cord. Most people with spinal cord injury still have some connections, but many have lost their myelin (an insulating material) and cannot conduct signals well. 4-AP allows these de-myelinated axons to send signals... http://www.mult-sclerosis.org/news/May2000/4APFAQ.html>> Art:> > What is 4-Ap?> > Thanks> > > Art Hansen <rtee54@...> wrote:> Jim,> > Never tried that. > > Have you ever tried 4-AP?> > Art> --> > > To All;> > > > I've been on LDN over three years but, need more help, has > anyone been on Sphingolin? if so, did it help and any side effects?> > > > Jim H. > > > > > > ----------------------------------------------------------> ------> >> > > > > > __________________________________________________>

[Guest guest]

Hi Dudley;

Thanx for the info, will have to go over it and see what would fit me.

Best to you,

Jim H. Re: [low dose naltrexone] LDN

Hi Jim,What is your diagnosis?If it's MS, here is a site you may find helpful:http://tinyurl.com/grpm9With best wishes,Dudley Delany

dudley_delany

From: JharbottSent: Monday, October 22, 2007 3:02 PMlow dose naltrexone Subject: [low dose naltrexone] LDN

To All;

I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects?

Jim H.

[Guest guest]

Yes, a medical doctor must write a prescription for 4-AP and, I

believe, it's only available through a compounding pharmacy. I get mine

from Skip's. When I first started taking it my walking improved and it

was very encouraging, but lately the good benefits seem to be less and

less. I think it's still worth a try, though. Best wishes if you do.

Art

--

>

> Art;

>

> I've never tried 4-AP, is it by perscription?

>

> Jim H.

>

[Guest guest]

no heard of it sorry what are you taking the LDN for and what problems are you looking for help with

lyn

[low dose naltrexone] LDN

To All;

I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects?

Jim H.

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[Guest guest]



Hi lyn;

I'm taking LDN for MS, I would like to walk without a walker, my Dr said, my MS is inactive, I go to therapy five days a week, I do walk on parallel bars.

Jim H.

[low dose naltrexone] LDN

To All;

I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects?

Jim H.

Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information.

[Guest guest]

Hi Jim: I have been told the best PT for MS is aqua therapy in a pool that is 89 degrees or lower. I can walk but have a lot of sensory numbness and tingling and I see my neuro this Thursday and I know he will write the script for this kind of PT. The water works the muscles much better than land-based therapy. You walk back and for across the pool and they have floaters to help support you if needed. You have to stay away from the hotter arthritic pools and orthopedic therapy pools because they are higher than your normal body heat. My insurance will cover this kind of therapy if a PT conducts it but it will not pay for programs at a YMCA or other program like that. Jharbott <jharbott@...> wrote:  Hi lyn; I'm taking LDN for MS, I would like to walk without a walker, my Dr said, my MS is inactive, I go to therapy five days a week, I do walk on parallel bars. Jim H. [low dose naltrexone] LDN To All; I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects? Jim H. Get a FREE AOL Email account with unlimited storage. Plus, share and store photos and experience exclusively recorded live music Sessions from your favourite artists. Click Here for more information. __________________________________________________

[Guest guest]

Jim. I was on Sphingolin for about 3 months. No bad side effects, but no great help either. I was actually in pretty good shape when I started taking it. At that time I was under incredible stress ;so its hard to tell if staying the same was great (and possibly due to Sphinogolin). But like I said there were no bad side effects at all for me. Good luck to you! Jharbott <jharbott@...> wrote: To All; I've been on LDN over three years but, need more help, has anyone been on Sphingolin? if so, did it help and any side effects? Jim H. __________________________________________________

[Guest guest]

Clare

The nutritional supplements listed on Dr Lawrence's site may be very beneficial to you. I think it is the MS Research Trust.

mjh

Posted by: "Clare Magee" claremagee@...

Wed Oct 24, 2007 12:13 am (PST)

Hi AllFor the past year now I have muscle spasms. Has anyone had this experience.My left leg goes stiff an numb, my left hand goes the same and makes a fist shape completely stiff, this only lasts seconds but is very frightening.I started on ldn 9 weeks ago prescribed by Dr Crowley Kilkenny. I live in Cork so travelled to see him,about 150 miles.I can report a great improvement in my fatigue but not in symptoms yet, especially pins and needles, numbness. balance ,and muscle spasms which I had one at 3am last night while sleeping.Can anyone throw any light on these. I am new to the sight, but love reading your emails because the information you share is great.Regards,Clare.

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