Re: Gastroparesis and WDB--from Policyholders of America paper

[Guest guest]

General inflamatory problems, systemwide. Can you tolerate swallowing detox

agents, CSM, or milk thistle, etc. If not, perhaps sauna treatment would bring

down the amt of inflamation in your body.

>

> I've answered my own question about gastroparesis (and about why my acid

reflux has gotten so bad)...I found the answer in the Policyholders of America

paper, " Research Committee Report on Diagnosis and Treatment of Chronic

Inflammatory Response Syndrome Caused by Exposure to the Interior Environment of

Water-Damaged Buildings. "

>

> It reports:

>

> " Further, treating physicians must remain aware of the likelihood of

co-occurring illnesses

> in CIRS-WDB patients compared to non-cases. For example we commonly find

> restrictive lung disease and not true obstructive lung disease; decreased

contractility of

> gastric smooth muscle causing gastroparesis;

[Guest guest]

AN, I had esphogeal problems and also stomach. Researcher of mold toxins,

Croft, says the digestive system is one of most usually affected systems. When

I first tried to take CSM, I couldn't keep it down, it was so irritating to me.

I went to see Dr Shoe but couldn't take that. I can take it now but I don't

take as much as it recommends but it does help me with certain things. Are you

sure you are in a safe place for you? What steps are you taking now to bring

down systemic inflamation? I think that is what you need to do, take steps to

bring down systemic inflamation.

>

> I've answered my own question about gastroparesis (and about why my acid

reflux has gotten so bad)...I found the answer in the Policyholders of America

paper, " Research Committee Report on Diagnosis and Treatment of Chronic

Inflammatory Response Syndrome Caused by Exposure to the Interior Environment of

Water-Damaged Buildings. "

>

>

[Guest guest]

I don't know anything about milk thistle. Sounds intriguing--I'll have to look

it up. Are there other detox agents I should look into? My family doc prescribed

cholyestramine but I have not tried it yet, mainly because I take calcium three

times a day and am not sure how I would space all that out and not risk

interference with calcium absorption (I have osteopenia). Thanks for the good

ideas, AN

[Guest guest]

Wow, that's great information! I'll have to look up Croft--I don't know who that

is. I haven't moved yet (am doing so at the end of the month) so I'm still in

the hot zone. I am eagerly awaiting the end of the month! Are yiur esophageal

and stomach problems gone now?Thanks for your help~AN

[Guest guest]

I have same trouble with cholestyramine AN. I don't have a big appetite and

concerned about it absorbing the nutrients and at bedtime I need my medicine to

stay in me all night, so I take cholestyramine in the am when I get up and then

wait a couple hours. If I need to have breakfast right away, I may have it

later but have it way far away from food. I only take it once a day when I have

symptoms. There are other detox agents: charcoal, milk thistle which is an herb

I believe, it's freq in other supplements that claim to have liver support

products in it. I've heard many people who have liver trouble take milk

thistle. My digestive system is much better. Right now, like you, I'm on an

antibiotic so having some trouble with it again but probably is that, forget to

take the probiotics sometimes.

>

> I don't know anything about milk thistle. Sounds intriguing--I'll have to look

it up. Are there other detox agents I should look into? My family doc prescribed

cholyestramine but I have not tried it yet, mainly because I take calcium three

times a day and am not sure how I would space all that out and not risk

interference with calcium absorption (I have osteopenia). Thanks for the good

ideas, AN

> >

>

[Guest guest]

Have any of you had nerve pain effecting your whole body? It sounds like Polio,

w no dx. The neuro suggested meds made it worse.  Does he suggest CSM?

 I can't get a doc. here to consider it or any of his labs. I should insist.

They say insurance won't cover.

Thanks, Kathy

[Guest guest]

Yes,I did. It was a burn throb pain similar to what people with MS describe. I

started Low Dose Naltrexone in 2004 which stopped that symptom.

>

> Have any of you had nerve pain effecting your whole body?

[Guest guest]

I have nerve pain from my hips down.  have u had an MRI?

victoria

From: KathyB <calicocat477@...>

Subject: [] Re: Gastroparesis and WDB--from Policyholders of

America paper

Date: Thursday, October 14, 2010, 9:09 AM

 

Have any of you had nerve pain effecting your whole body? It sounds like Polio,

w no dx. The neuro suggested meds made it worse.  Does he suggest CSM?

 I can't get a doc. here to consider it or any of his labs. I should insist.

They say insurance won't cover.

Thanks, Kathy