Guest guest Posted December 30, 2005 Report Share Posted December 30, 2005 In a message dated 12/30/2005 11:10:52 PM Central Standard Time, marina_troi@... writes: I've just dropped into a state of self pity. I'm just so sick and tired of being sick and tired. Marina, I know how you feel. I know i dont have near the amount of health issues as you do, but i still feel that way. With 2 young kids and a house to keep running... it gets overwhelming.Hugs happy new year i hope this one is better for everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Marina, that's a terrible update. I'm so sorry. It's understandable that you are beginning to feel frustrated. Maybe you should go see a nephrologist? Here's to hoping that 2006 is much better for you! Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Happy New Year > Hello, everyone!! First Iw ould like to welcome all the new > members. You are in good, no, great hands in here. > > Well, I'm still off the Enbrel. It's been about 6 weeks now. To > recap: my rheumy had me stop the Enbrel to see if it was the cause > of the vasculitis. TNF-inhibitors can cause it. Well, a few days > after I stopped it, I ended up hospitalized for 5 days with > pylonephritis. Running a temp of 103, nausea, dry heaves, the > abvsolute worse flare I had ever had. Anyway, after 5 days of IV > antibiotics every 6 hours, I was finally discharged with a 10 day > supply of antibiotic pills. Well, when I finished them I had a > follow up appointment with my rheumy and he ran some tests. Well, > the infection was still there. My choice of antibiotics was either > take one of the listed pills that I am allergic to or go for IV > antibiotics. I chose to take my chances with the pills I was > allergic to. I increased my prednisone and took a lot of benadryl. > Well, I just had another test done Tuesday and guess what!! I still > have the kidney infection. The thing is, all 3 antibiotics I took > should have taken care of it. They were listed on the report of > what the antibiotic would sensitive to. > > So, now I have to go see my urologist. I go in 2 weeks. Now, in > the middle of all that I had my knee scoped. The RA is really > damaging the connective tissues in my right knee. The articular > surface looked amazingly good!! I thanked God for that!! There > were a few tears that were easily fixed. The underside of my patella > was a disaster!!. He shaved and heat treated it. It does feel > better, but it is going to take a long time to get it well. Funny > thing is, when I saw my surgeon one week after the surgery, he told > me what exercises to do. Just simple ones to strengthen the > quadriceps. He also " pre-yelled " at me for over doing it. He knows > me too well!! LOL > > Well, I'm getting frustrated. I was going to restart the Enbrel if > my tests came back negative. So much for that!! Thing is, I > haven't worked since I've been off the Enbrel because of all the > crap I've been going through. I didn't realize how little fatigue I > was having ON the Enbrel until I stopped it. I thought the pain and > fatigue was barely tolerable on Enbrel. Well, I have had a reminder > of how bad it can be and how bad it was!! Funny how easily we > forget how bad we felt pre-medication. > > Well, I'm supposed to go back to work on Tuesday. I am a little > concerned. My rheumy was going to have me start back on the Enbrel > and see what happens with the vasculitis leasions. See, they > started to get better when I came off the Enbrel, but the problem > is, I had to go on pretty high doses of steroids over the last 6 > weeks because of the flare and the surgery. So, we don't really > know if the leasions got better because of the steroids (which is > the treatment for vasculitis) or if it was the Enbrel. Thing is, I > think it was due to the steroids. Even off the Enbrel I developed > new leasions and they think I have them on my kidneys as well!! > > I have been drinking lots of water and cranberry juice. Hasn't > really helped. Well, maybe it has been helping. My temperatures > have stayed at about 101 or less. So, that's a good thing. > > Another thing that happened is phlebitis. I have two veins in my > right arm that have hardened. I hope they recover. I they are as a > result of two different IV's going bad and causing phlebitis. The > one starts at my wrist and does up to the middle of my upper arm. > The other one is in the middle of my right forearm. It starts there > and goes up to the inner elbow. That one hurts so much. There is > also a leasion where the IV was inserted. So, that's just one more > skin leasion to add to the list and that I have to dress everyday!! > I really hope those recover. They were my two best veins. I'm a > very difficult stick. I dred getting blood work because it never > happens with just one stick!! So, with all this, and the recent > phone call with the lab results, I've just dropped into a state of > self pity. I'm just so sick and tired of being sick and tired. > > Well, I think I should end this novel here. I hope that this makes > some sense. I took two Percocet about an hour ago and it has fogged > the brain a little more than it usually is and my eyes are pretty > blurry!! Thanks for reading and listening to my whoa's. I believe > that 2006 is the year of the dog in the Chinese New Year. I was > born under the year of the dog so maybe next year will be my year!! > I can always hope and pray! > > Well, I hope everyone has a great New Year. And that it is as > painfree as possible. > > a, , thank you for your support and for all the wonderful > information you post. I can't believe how big this group has > gotten. And I haven't been here that long!! The people here are > the best and everyone is so thoughtful, helpful, and spiritually > uplifting and supportive. > > God Bless!! Gentle hugs and love from your RA sister, Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Wishing you healing and peace. Sierra > [ ] Happy New Year > > > > Hello, everyone!! First Iw ould like to welcome all the new > > members. You are in good, no, great hands in here. > > > > Well, I'm still off the Enbrel. It's been about 6 weeks now. To > > recap: my rheumy had me stop the Enbrel to see if it was the cause > > of the vasculitis. TNF-inhibitors can cause it. Well, a few days > > after I stopped it, I ended up hospitalized for 5 days with > > pylonephritis. Running a temp of 103, nausea, dry heaves, the > > abvsolute worse flare I had ever had. Anyway, after 5 days of IV > > antibiotics every 6 hours, I was finally discharged with a 10 day > > supply of antibiotic pills. Well, when I finished them I had a > > follow up appointment with my rheumy and he ran some tests. Well, > > the infection was still there. My choice of antibiotics was either > > take one of the listed pills that I am allergic to or go for IV > > antibiotics. I chose to take my chances with the pills I was > > allergic to. I increased my prednisone and took a lot of benadryl. > > Well, I just had another test done Tuesday and guess what!! I still > > have the kidney infection. The thing is, all 3 antibiotics I took > > should have taken care of it. They were listed on the report of > > what the antibiotic would sensitive to. > > > > So, now I have to go see my urologist. I go in 2 weeks. Now, in > > the middle of all that I had my knee scoped. The RA is really > > damaging the connective tissues in my right knee. The articular > > surface looked amazingly good!! I thanked God for that!! There > > were a few tears that were easily fixed. The underside of my patella > > was a disaster!!. He shaved and heat treated it. It does feel > > better, but it is going to take a long time to get it well. Funny > > thing is, when I saw my surgeon one week after the surgery, he told > > me what exercises to do. Just simple ones to strengthen the > > quadriceps. He also " pre-yelled " at me for over doing it. He knows > > me too well!! LOL > > > > Well, I'm getting frustrated. I was going to restart the Enbrel if > > my tests came back negative. So much for that!! Thing is, I > > haven't worked since I've been off the Enbrel because of all the > > crap I've been going through. I didn't realize how little fatigue I > > was having ON the Enbrel until I stopped it. I thought the pain and > > fatigue was barely tolerable on Enbrel. Well, I have had a reminder > > of how bad it can be and how bad it was!! Funny how easily we > > forget how bad we felt pre-medication. > > > > Well, I'm supposed to go back to work on Tuesday. I am a little > > concerned. My rheumy was going to have me start back on the Enbrel > > and see what happens with the vasculitis leasions. See, they > > started to get better when I came off the Enbrel, but the problem > > is, I had to go on pretty high doses of steroids over the last 6 > > weeks because of the flare and the surgery. So, we don't really > > know if the leasions got better because of the steroids (which is > > the treatment for vasculitis) or if it was the Enbrel. Thing is, I > > think it was due to the steroids. Even off the Enbrel I developed > > new leasions and they think I have them on my kidneys as well!! > > > > I have been drinking lots of water and cranberry juice. Hasn't > > really helped. Well, maybe it has been helping. My temperatures > > have stayed at about 101 or less. So, that's a good thing. > > > > Another thing that happened is phlebitis. I have two veins in my > > right arm that have hardened. I hope they recover. I they are as a > > result of two different IV's going bad and causing phlebitis. The > > one starts at my wrist and does up to the middle of my upper arm. > > The other one is in the middle of my right forearm. It starts there > > and goes up to the inner elbow. That one hurts so much. There is > > also a leasion where the IV was inserted. So, that's just one more > > skin leasion to add to the list and that I have to dress everyday!! > > I really hope those recover. They were my two best veins. I'm a > > very difficult stick. I dred getting blood work because it never > > happens with just one stick!! So, with all this, and the recent > > phone call with the lab results, I've just dropped into a state of > > self pity. I'm just so sick and tired of being sick and tired. > > > > Well, I think I should end this novel here. I hope that this makes > > some sense. I took two Percocet about an hour ago and it has fogged > > the brain a little more than it usually is and my eyes are pretty > > blurry!! Thanks for reading and listening to my whoa's. I believe > > that 2006 is the year of the dog in the Chinese New Year. I was > > born under the year of the dog so maybe next year will be my year!! > > I can always hope and pray! > > > > Well, I hope everyone has a great New Year. And that it is as > > painfree as possible. > > > > a, , thank you for your support and for all the wonderful > > information you post. I can't believe how big this group has > > gotten. And I haven't been here that long!! The people here are > > the best and everyone is so thoughtful, helpful, and spiritually > > uplifting and supportive. > > > > God Bless!! Gentle hugs and love from your RA sister, Marina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Thank you, Sierra. Happy New Year to you.....Marina > > Wishing you healing and peace. > > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Glad to hear your RA is doing alright, especially through such a stressful time right now. I am glad that your hubby is doing OK, I will keep you both in my prayers, Tawny > > happy new year!!!! I am the biggest lurker here.. but to all a > happy new year.. this last month has been a real challenage > (9sp/?).. MY R.A. IS O.K. NO PITY PARTY HERE...!!!! But my husband > has had a 4 bypass heart surgery..... and then 4 days later they put > in a pace maker...24 hours later and an i.v. drip and all is o.k. so > far.. but you must know GOD is with us... he is whinning a bit ... > but we both know we will be o.k. w/GOD and exercise.. there is > so much pain in the world... I am glad and happy to wake up each > morning.... semi -pain free... love and soft hugs to all HAPPY NEW > YEAR................ XO XO MISWEEZ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 > > Glad to hear your RA is doing alright, especially through such a > stressful time right now. I am glad that your hubby is doing OK, I > will keep you both in my prayers, Tawny > > > >thank-you.............but i spoke too soon, feel alittle crap today, stiff and very tired... but with all the pain and loniness, and saddness in this world i really feel blessed. this group is the best w/cheer, understanding and love............((((((hugs))))) to all amd happy 2006......... misweez Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Thank you dear a, beautiful sentiment [ ] Happy New Year Happy New Year!!! http://wandascountryhome.com/newyear/cheers.html a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2010 Report Share Posted December 31, 2010 I second that !!! Happy New Year !! Janet In a message dated 12/31/2010 5:18:43 P.M. Eastern Standard Time, candalah@... writes: Happy new year to all. I truely hope it brings better things and improvements in health and happiness to all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2010 Report Share Posted December 31, 2010 Hope everyone has a Happy New Year. hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Happy New Year to everyone! I pray for healing. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Ditto! Happy new year! Surella > > Hope everyone has a Happy New Year. hugs, > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.