Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hi all, I have a question. My adult daughter has had Lyme for about 3 years. She is treated by a LLMD and has been on antibiotics for most of the time. She is feeling well and only has occasional symptoms. She has been off antibiotics for about 2 months and saw her LLMD this week. He is leaving the decision of whether or not to go back on antibiotics up to her. She doesn't know what to do? Should she wait until symptoms recur? Should she take antibiotics in the hope of totally killing every bug? Do you have any opinions. Thank, Libby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Libby, You'll probably get a variety of opinions about this because no one really knows for sure how long one should stay on antibiotics. Generally, though, if there's any chance there's even one bug left, people prefer to try to kill them all. Having occasional symptoms makes me think she'll probably need to go back on abx at some point. Jessie > > Hi all, > I have a question. My adult daughter has had Lyme for about 3 years. > She is treated by a LLMD and has been on antibiotics for most of the > time. She is feeling well and only has occasional symptoms. She has > been off antibiotics for about 2 months and saw her LLMD this week. He > is leaving the decision of whether or not to go back on antibiotics up to > her. She doesn't know what to do? Should she wait until symptoms > recur? Should she take antibiotics in the hope of totally killing > every bug? Do you have any opinions. > Thank, > Libby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Libby, I've been told it is the clinical symptoms and not the test results that determine whether we are clean of Borrelia (Lyme). I wonder though, has your daughter been tested with ELISA and Western Blot at the end of her treatment? I have been retested recently and I continue to have both IgG (chronic) and IgM (acute) antibodies in spite of being treated with Doxy, Rocephin, Ketek and Amox combined. I was infected eraly August but did not start treatment till the end of August for 2 weeks of Doxy, 18 days off abx, and 3 more weeks of Doxy, followed by Rocephin IV, and now Ketek and Amox for over 1 month. Personally, 3 years of continuous abx is a very long time. I don't think I would go even that long if my symptoms abated. It is important to strengthen her immune system at this point. Look into this alternative. I also have heard that it is impossible to ever completely eradicate all the bacteria, because they change their forms and hide in areas where they are protected from abx. -- Lida > > Hi all, > I have a question. My adult daughter has had Lyme for about 3 years. > She is treated by a LLMD and has been on antibiotics for most of the > time. She is feeling well and only has occasional symptoms. She has > been off antibiotics for about 2 months and saw her LLMD this week. He > is leaving the decision of whether or not to go back on antibiotics up to > her. She doesn't know what to do? Should she wait until symptoms > recur? Should she take antibiotics in the hope of totally killing > every bug? Do you have any opinions. > Thank, > Libby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 My son had a CT scan done when he was 5 months old to rule out craniosyntosis. I found it to be a very easy procedure. They didn’t sedate him, just wrapped him up well in a blanket and I was able to sit on the table with him. Had he not cooperated we would have had to sedate him but fortunately that didn’t happen. I didn’t even give the level of radiation a second thought. Molly Novato, California Nicolas, 2, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 5 , 8 From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Sent: 18 March 2008 01:06 Plagiocephaly Subject: [sPAM] question?? We took Jayden (our daughter) to the neurologist today. He wants her to have a CT scan to rule out craniosynostosis. He believes that she has positional plagiocephaly but said there is no way to know that she does not have craniosyn. without a scan. I asked why other people are diagnosed without a scan and he said they go with the stats- far more babies have plagio. Did anyone else get a scan? Were you worried about the levels of radiation you baby was exposed to? aarg! I am getting so frustrated. Thanks for your replies! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 We chose not to do a scan because we were pretty confident that it was positional plagio. Our dd had torticollis and the mishapen head was classic plagio vs. cranio. In some of the research that we did, plagio will result in pushing the forhead forward of the same side as the flat spot (ex: our dd had a right rear flat spot and a slight right sided forehead protrusion). Whereas cranio will cause the opposite forehead to protrude (ex: IF our dd had cranio, her left forehead should have protruded with the right rear flat spot). So, we decided based on those two factors that we did not want to go through the expense or exposure for a ct scan. That was just our personal experience and in my opinion each parent has to make the decision based on their situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Interesting, I thought with plagio that the forehead protruding was opposite of the flat side??? > > We chose not to do a scan because we were pretty confident that it was positional plagio. Our dd had torticollis and the mishapen head was classic plagio vs. cranio. In some of the research that we did, plagio will result in pushing the forhead forward of the same side as the flat spot (ex: our dd had a right rear flat spot and a slight right sided forehead protrusion). Whereas cranio will cause the opposite forehead to protrude (ex: IF our dd had cranio, her left forehead should have protruded with the right rear flat spot). So, we decided based on those two factors that we did not want to go through the expense or exposure for a ct scan. That was just our personal experience and in my opinion each parent has to make the decision based on their situation. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 No, the forehead protruding is the same side as the flat spot. My son's flat spot is on the back right of his head and it pushed his right ear and forehead forward as well. His cheek is more forward too (though not as bad as it used to be). Everything on that side was pushed forward from him laying with his head to his right all the time. I did not know the opposite was true for cranio though. Good to know. Jake-18m (tort resolved/rt plagio/DocBand 2/11/08) Jordan-4 > > > > We chose not to do a scan because we were pretty confident that it > was positional plagio. Our dd had torticollis and the mishapen head > was classic plagio vs. cranio. In some of the research that we did, > plagio will result in pushing the forhead forward of the same side as > the flat spot (ex: our dd had a right rear flat spot and a slight > right sided forehead protrusion). Whereas cranio will cause the > opposite forehead to protrude (ex: IF our dd had cranio, her left > forehead should have protruded with the right rear flat spot). So, we > decided based on those two factors that we did not want to go through > the expense or exposure for a ct scan. That was just our personal > experience and in my opinion each parent has to make the decision > based on their situation. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2010 Report Share Posted September 3, 2010 I read on one of the groups that someone said their doctor recommended using baby shampoo in their nasal rinse. Just read a post from another list where it was posted that baby shampoo can break up the biofilm in aspergellius (ms) ..any info would be great. Lee Quote Link to comment Share on other sites More sharing options...
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