Re: Leaving/ posting requests,MCS

[Guest guest]

interesting subject. I always looked at the term of MCS/brain fog as being

solely related to sensory hypersensitivity involement and all the other symptoms

to all the other organs beyond that,TE, A dreaded plus that happens from WDB

exposure. but maybe theres a point where you go from what might be considered

MCS and TE.

defenitly, damage to tissues/organs can make things much worse.

just like some here dont have the sinus issues,chronic sinusitis,

same lung issues,same level of nerve damage,ect.

the head is not immune from getting different levels of damage too.

I know I've read over and over again where theres a level of damage where organs

may heal on their own and a level where they dont.

a question has come into my mind about the term because of recent oil spill,

they havent been exposed to a moldy environment.

so in some ways their illness might be a little different than ours.

exposures to mold and it's by products and funky bacterias, ect.

and straight chemical exposure surley has a few different effects.

I think CIR's and TE are good to use in our case.

but to even have the knowledge of the long tremed MCS getting out to the public

is good.

>

> Actually the US dept of education does recognize MCS as a disability.   I

know because I have spoken with several reps at the office of civil rights and

I  am about to file a formal complaint w/ them on services not provided to my

daughter from  her crappy school. 

>

[Guest guest]

Toxic exposure is toxic exposure regardless of whether it is bacteria, fungi or

petroleum by-products. They all cause brain damage. Chronic sinusitis in the

moldies leads to the direct route of toxins, bacteria and fungi into the brain.

There is ample information in the peer reviewed literature regarding chronic

fungal sinusitis and entry of fungi into the brain. I am tired of the attempts

to justify the existence of MCS. The term became used long before we understood

what CIRS is all about.

For example, epidemiology research in California has demonstrated that exposure

to pesticides is associated with autistic spectrum disorder, Parkinson's disease

and Alzheimer's. These people do not necessarily have chronic sinusitis, but

they have one thing in common: brain inflammation and toxic exposure. i.e.

toxic encephalopathy.

[] Re: Leaving/ posting requests,MCS

interesting subject. I always looked at the term of MCS/brain fog as being

solely related to sensory hypersensitivity involement and all the other symptoms

to all the other organs beyond that,TE, A dreaded plus that happens from WDB

exposure. but maybe theres a point where you go from what might be considered

MCS and TE.

defenitly, damage to tissues/organs can make things much worse.

just like some here dont have the sinus issues,chronic sinusitis,

same lung issues,same level of nerve damage,ect.

the head is not immune from getting different levels of damage too.

I know I've read over and over again where theres a level of damage where

organs may heal on their own and a level where they dont.

a question has come into my mind about the term because of recent oil spill,

they havent been exposed to a moldy environment.

so in some ways their illness might be a little different than ours.

exposures to mold and it's by products and funky bacterias, ect.

and straight chemical exposure surley has a few different effects.

I think CIR's and TE are good to use in our case.

but to even have the knowledge of the long tremed MCS getting out to the

public is good.

[Guest guest]

sure, but I dont know that we can make the term go away.

I know it's all about inflammation, but it is a mutiorgan disease and we dont

all get sick to the same level or have the same symptoms in the same organs.

I dont think that term is going anywhere in the near future but agree that we

here shouldn't use it. thats kindof out of our control.

at least there is reconition of something. maybe eventially it well

disappear. just like Fibromyalgia hit the news, now they have to deal with

finding out just what is causeing it and why some prescribed med's aren't

working. eventually new terms take over but seems everything involved with WDB

exposures takes years to get to the public.

in the mean time we have this term,MCS ,just in the few years getting reconized

by some agencies,what are we supposed to do with it.

it's all over the web.

if we all dont answer posts because if used, theres going to be alot of

unanswered posts. all we can do is keep spreading the word on CIRS-WDB and TE.

I've been diagnosed with all of these things, MCS back in 2004, some of that

involved IgE,IgG testing to certain molds, levels 1,11,111. anaphaltic,

cytotoxic,systemic, dilated pupils,lung rasps,

food intolerance testing, all went toward the diagnoses of MCS.

while the term might not be right, this line of testing was helpful to me, so I

dont see why even the term and even getting diagnosed with that would be

something that wouldn't be even heard in court, it can also's be elaberated on,

cant it? with " what we know now " ect.

I understand it was a term coined a long time ago when there really was no

knowledge on what was happening with WDB exposures.

but this is some of the first medical proff I got and it does show exposure and

it does show my system was affected.

--- In , " Jack Thrasher, Ph.D. " <toxicologist1@...>

wrote:

>

> Toxic exposure is toxic exposure regardless of whether it is bacteria, fungi

or petroleum by-products. They all cause brain damage. Chronic sinusitis in

the moldies leads to the direct route of toxins, bacteria and fungi into the

brain. There is ample information in the peer reviewed literature regarding

chronic fungal sinusitis and entry of fungi into the brain. I am tired of the

attempts to justify the existence of MCS. The term became used long before we

understood what CIRS is all about.

>

> For example, epidemiology research in California has demonstrated that

exposure to pesticides is associated with autistic spectrum disorder,

Parkinson's disease and Alzheimer's. These people do not necessarily have

chronic sinusitis, but they have one thing in common: brain inflammation and

toxic exposure. i.e. toxic encephalopathy.

>