CDC releases results of Morgellons Disease ( insane agency once again!!!)

[Guest guest]

This is an outrage!! I cannot believe they are calling this a mental disorder.

This is just like the dismissal of vaccine damage!

Morgellons Disease is related to Lyme disease, its Real and needs to be treated

like

a serious condition, its not a mental Disorder! Gosh are we going backwards in

time

with such from the CDC?? Seriously there was a conf. of LLMD's in DC a few

years ago,

and even the FBI was interested in these fibers under these pt's skin, nothing

could break down the fibers, the fibers would not break down even when burned.

Who in the world is running the CDC??

http://dfw.cbslocal.com/2012/01/26/cdc-releases-results-of-morgellons-disease-in\

\

vestigation/

Response from Casey, Morgellons patient and founder of the E.

Holman Foundation:

First and foremost, I want to thank the CDC for making a very preliminary effort

to investigate this emerging infectious disease that should be of great concern

to everybody worldwide.

The study is flawed from the very beginning in the method of patient selections.

Only one of these patients was familiar to me and was known to have the symptoms

and manifestations we identify as Morgellons Disease. Sadly, that patient is now

deceased. The CDC was strongly resistant to any dialogue with those of us who

offered to provide information on what we describe as manifestations of

Morgellons Disease.

The CDC describes purulent drainage and associated with the lesions which were

investigated in the study. I have seen thousands of Morgellons lesions and one

remarkable finding is that Morgellons lesions are never purulent and rarely ever

is a Morgellons patient found to have any signs of infection within or

surrounding the lesion. It appears that the patients selected by the CDC for

this study were not patients who exhibited the characteristic symptoms that we

know to be consistent with Morgellons.

It is unfortunate for all that valuable resources were used rather recklessly

and no advancement was made in the understanding of this unique pathological

condition. In the absence of and resistance to any dialogue or collaboration,

the CDC has unfortunately chosen the wrong patient population to study. Thus the

results lend no further insight into this mysterious condition.

Delusional Parasitosis and neurotic excoriations are conditions that could

easily be mistaken for Morgellons, especially if the investigators are

unfamiliar with what we have found to be consistent with Morgellons.

Science is a moving target, and as new scientific information emerges the views

of scientists will shift. We are at the very beginning of the Morgellons saga in

terms of scientific investigation, and people need to keep an open mind about a

disease that is disfiguring, disabling, poorly understood and very frightening.

As more physicians and researchers are becoming actively involved with the

condition WE identify as Morgellons, science will be forthcoming and a better

understanding of the etiology will be determined.

The E. Holman Foundation will be holding our annual conference in

Austin, TX on March 24th and 25th of 2012. A lot of new information will be

presented by Morgellons researchers. This year we have some interesting new

speakers. Dermatologist Mayne will discuss a structured dermatological

approach to Morgellons Disease. Microbiologist nne Middelveen will discuss

her findings from examining the evidence under light microscopy. The conference

is geared primarilytoward medical professionals but everyone is invited to

attend. For more information on our upcoming conference, please visit our

website at www.thecehf.org

[Guest guest]

I saw this article in the LA Times and made a comment. It's just like LeRoy and "conversion disorder."

Disgusting, I know.

maurine

To: EOHarm Sent: Friday, January 27, 2012 1:11 PMSubject: CDC releases results of Morgellons Disease ( insane agency once again!!!)

This is an outrage!! I cannot believe they are calling this a mental disorder.This is just like the dismissal of vaccine damage!Morgellons Disease is related to Lyme disease, its Real and needs to be treated likea serious condition, its not a mental Disorder! Gosh are we going backwards in timewith such from the CDC?? Seriously there was a conf. of LLMD's in DC a few years ago,and even the FBI was interested in these fibers under these pt's skin, nothing could break down the fibers, the fibers would not break down even when burned. Who in the world is running the CDC?? http://dfw.cbslocal.com/2012/01/26/cdc-releases-results-of-morgellons-disease-investigation/Response from Casey, Morgellons patient and founder of the E.Holman Foundation:First and foremost, I want to thank the CDC for making a very preliminary effortto investigate this emerging infectious disease that should be of

great concernto everybody worldwide.The study is flawed from the very beginning in the method of patient selections.Only one of these patients was familiar to me and was known to have the symptomsand manifestations we identify as Morgellons Disease. Sadly, that patient is nowdeceased. The CDC was strongly resistant to any dialogue with those of us whooffered to provide information on what we describe as manifestations ofMorgellons Disease.The CDC describes purulent drainage and associated with the lesions which wereinvestigated in the study. I have seen thousands of Morgellons lesions and oneremarkable finding is that Morgellons lesions are never purulent and rarely everis a Morgellons patient found to have any signs of infection within orsurrounding the lesion. It appears that the patients selected by the CDC forthis study were not patients who exhibited the characteristic symptoms that weknow to

be consistent with Morgellons.It is unfortunate for all that valuable resources were used rather recklesslyand no advancement was made in the understanding of this unique pathologicalcondition. In the absence of and resistance to any dialogue or collaboration,the CDC has unfortunately chosen the wrong patient population to study. Thus theresults lend no further insight into this mysterious condition.Delusional Parasitosis and neurotic excoriations are conditions that couldeasily be mistaken for Morgellons, especially if the investigators areunfamiliar with what we have found to be consistent with Morgellons.Science is a moving target, and as new scientific information emerges the viewsof scientists will shift. We are at the very beginning of the Morgellons saga interms of scientific investigation, and people need to keep an open mind about adisease that is disfiguring, disabling, poorly understood and very

frightening.As more physicians and researchers are becoming actively involved with thecondition WE identify as Morgellons, science will be forthcoming and a betterunderstanding of the etiology will be determined.The E. Holman Foundation will be holding our annual conference inAustin, TX on March 24th and 25th of 2012. A lot of new information will bepresented by Morgellons researchers. This year we have some interesting newspeakers. Dermatologist Mayne will discuss a structured dermatologicalapproach to Morgellons Disease. Microbiologist nne Middelveen will discussher findings from examining the evidence under light microscopy. The conferenceis geared primarilytoward medical professionals but everyone is invited toattend. For more information on our upcoming conference, please visit ourwebsite at www.thecehf.org