Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Kurt - I was not in diagreement - read my message again - I said it could cause neutropenia Note my latest Atlanta success - I'm trying to arrange a special presentation on autoimmmune complications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Sorry , You can get all the opinions you want to get, but Rituxan DOES cause delayed on-set neutropenia in many studies and research projects. The facts don't lie. The percentages are not large, but it does happen, it happened to me and to several other members here. It does happen !! The thing to do is to accept it and move on, go on about doing all those things that may help prevent neutropenia when you take Rituxan, figure out all the correct procedures that will hape control neutropenia when it happens to yoU!!!! It does not have to be life threatending, " Depending upon what you do about it! " I will be showing up soon with many more abstracts and research articles proving the existence of Delayed On-Set Neutropenia from 'Rituxan' as soon as I get a little more time. If any of you really care, simply put it into Google, " Rituxan Delayed On-set Netropenia " into Google and read for yourself to your hearts consent. There are dozens of articles there. But, be prepared to weed it out of the articles yourself as they are usually dealing with many or all of the other various sides or ingredients of Rituxan and Delayed on-set Netropenia, or the rest of the possibilities that the article is searching for. Takes a lot of time and research to find these things. Kurt Neutropenia More very soon, but we may be able to have a session on this subject at the LRF seminar in October - I will be posting re this in a day or so - In the meantime, I think nobody really knows, but there certainly appears the possiblity that Rituxan " could " be causing late onset neutropenia - stay with me, I'll have some great announcements re SLL-CLL-edu as well as CIG shortly - had a great meeting with the Lymphoma Research Foundation this morning..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 Hi , I didn't think you were in disagreement, I was just commenting on the process, as we have done in private. For my father especially I had a very hard time telling him it was OK to take Rituxan, even though he needed it desperately because of the " FACT " that it is attributed to causing Neutropenia is many cases. He is 86 yrs old and have many other major health issues including low Hgb close to anemia on any given week no matter what we do and platelets that range between 12 and 25, which could simply be the natural lab differences. However, " understanding that Rituxan can give him Neutropenia " , I still opted for him to have it, simply because it was a situation where we had no choice. BUT, if he were one of the low 8% to 24% depending upon the abstracts and tests made, if he developed Neutropenia it could very easily allow him to get infections or a lowering of body defences that would allow common usually safe viruses and infections to take his life. That is what usually and commonly kills any of us. When our immune system falls way below safe blood count areas and then normal, usually handled simple infections give us pneumonia or sepsis or any number of other viruses or infections that do us in. If your older and weaker all ready it's very dangerous. However, I opted for the Rituxan and thank God he hasn't developed any adverse side-effects as of yet. We also gave it to him very slowly as a preventative. Meaning that we gave it once a week every two weeks spreading it out over 6 weeks. That gives the body time to adjust and hopefully us time to prevent any adverse reaction as it may tend to come up, 'before' we have continued on with the next infusion. That was what I was talking about " Being aware " so you can adjust your technique and be on the watch so that you can stop things before they get out of hand. The Rituxan did not help my Dad. He is not one of the lucky people who it helped, which tells us that he has a different type of antibody reaction and so we just took series of special blood tests and a full Bone Marrow Biopsy that will hopefully give us a more clear insight into what is happening. We will do comparisons to his other BMBs in the past etc. There are several things we can still do. If my Dads body now were to go into Neutropenia, " which is still possible " , we will give him IVIG immediately and there are other more rare options to prevent the neutropenia, not to forget the standard Neulasta. So we are prepared " BECAUSE " we were aware of the potential for dangerous reaction to Rituxan! A patient and especially his/her doctor just don't close your eyes about these things and ignor them as rare and essentially wrong! THE MAIN POINT HERE: Any responsible doctor just does not say to a patient with CLL that is about to take Rituxan: " This is greatly overstated (so much so that it is essentially wrong). Rituxan very rarely causes neutropenia when given alone or with leukine, and would very rarely be so delayed. Giving it with other strong chemo may slightly worsen the neutropenia associated with the chemo, but it is the chemo that is primarily responsible for this. It is really quite safe. " The above statement by this doctor borders on medical irresponsibility and even malpractice. How can a doctor who treats people and is supposed to tell the truth and " Do no harm " tell an out and out lie due to her own personal interpretation or lack of experience in the matter at hand? It seems to happen every day from doctors. By her own admission " Rituxan very rarely causes neutropenia when given alone or with leukine, and would very rarely be so delayed " , . Hello !! 'Yes Rituxan does by her own admission (rarely from 8% on up)... cause neutropenia'! Rarely is what our disease of SLL/CLL is all about! Everything that happens to us from contracting SLL/CLL to treating SLL/CLL to the reactions both negative and positive of any medication used to treat our disease and the remission from our disease is a very rare and low percentage situation either way! How can any of us avoid and consider anything we do that is a rare occurance as nothing to seriously consider and that it is essentially wrong. Does that mean then using this doctors reasoning, that SLL/CLL itself (a rarely occuring disease) is essentially wrong? Tell that to those of us who suffer from it. Tell that to those of us who have developed Delayed Neutropenia from Rituxan! How do you as a doctor just suddenly and arbitrarily excuse the reality of a very severe and dangerous fact in the treatment of SLL/CLL just because it's rare! Thats like saying that car accidents in your life are rare so don't worry about it, don't get insurance, don't drive on safe tires, don't wear your safety belt don't worry about drinking and driving! Because it's a rare occurrance ! This doctor needs to be repremanded. Especially when this doctor Brown goes on to say to patients about to receive Rituxan: " Giving Rituxan with other strong chemo may slightly worsen the neutropenia associated with the chemo, but it is the chemo that is primarily responsible for this. It is really quite safe. " First of all her information and understanding of CLL and her understanding of the facts concerning the treatment of Rituxan with combinations of Chemo is more than essentially wrong, it is dead wrong ! Everyone who is an informed doctor or researcher or treatment specialist with the treatment of CLL and the involvement of Rituxan with those Chemo treatments is fully and responsibly aware and knows that Rituxan when mixed with Chemo definitely causes Delayed on-set Neutropenia in any range of possibility depending upon the study from 24% on up to 60%. Which makes it anything but a slight occurrance or slight worsening for the reality of Neutropenia! Also, No one knows how much adversity is added to the mixture by Rituxan......but it is a fact that it makes the occurrance of Neutropenia much higher with Rituxan in the mix! Then this doctor says " It (Rituxan) is really quite safe " Yes, safe for those who don't have an adverse reaction ! Safe for those that don't develop Neutropenia ! Dear Dr. Brown, We are the percentage that does develop Neutropenia, we are the hundreds of people, perhaps thousands across the world that can and do develop Neutropenia from taking Rituxan and the addition of Rituxan to Chemo and we are those few rare people who do almost die from it and some of us do die from it. So, Dr. Brown...? Who is left to be concerned about us " The essentially wrong rare group of critically sick individuals that do get Neutropenia from Rituxan? I guess to her we are the greatly overstated ! My solution? Tell the truth from the beginning if you are a doctor, take the time to explain how it is possible to handle this possibility of Neutropenia and how it is going to be watched for and what is going to be done when it shows up to lessen it's effects and to hopefully stop it from becoming full blown. Doesn't that make a lot more sense? Kurt Re: Neutropenia Kurt - I was not in diagreement - read my message again - I said it could cause neutropenia Note my latest Atlanta success - I'm trying to arrange a special presentation on autoimmmune complications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 --Why do you consider IVIG a " Not attractive " choice? I had two treatments which did not harm and gave me more energy. Carolyn R. Swift, dx Fall 04 > Kurt - a powerful argument to be considered when using Rituxan maintenance > willy nilly > > You recall we discussed Rituxan maintenance here extensively in the past, I > was very interested myself. At the time I chose not to do it, even IDEC said > that there was no indication that it would be useful especially if already in > a nice remission. They called it " late start Rituxan maintenance " . > > Now, with AIHA, it's a different kettle of fish, I've had two goes at four > Rituxans. The first with Prednisone, the second without. > > My other choices are IVIG, cyclosporine, or a spleenectomy. Not attractive > choices. > > But, I agree, most certainly, that docs need to be fully open with their > patients about the possible delayed side effects. > > I don't know if you noticed the extra SLL/CLL session I pushed through for > the October LRF Seminar. It has just been accepted, and the subject will deal > with CLL and complications, e.g. AIHA, neutropenia, ITP. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Dear Carolyn, I must apologize to you. You are in a sense the messenger and I am blasting away and I should say that you are nothing more than a very interested and conscientious Cll patient that takes the time to ask and research and get involved and I appreciate very much that you brought up those remarks by Dr. Brown. If you hadn't then those examples of a doctor not paying enough attention and a doctor giving out advice when they don't even know the material they are talking about, would not have been there for all of us to see and in a wonderful way they have make it clear for all to see that we all better check, re-check and triple-check everything we are doing, as you are doing Carolyn in order to get the correct information for us personally. Personally I always check with at least 5 to 6 different physicians and then researchers and then the CLL web sites and then with other patients, all things you are doing also. Just be very careful with anything Dr. Brown tells you in the future. I'm afraid she is more interested in her position of importance as her Title allows her rather than being more interested in keeping up with her on-going studies and following the medical creed of doing no harm! Thanks Carolyn for have the courage and the persistence to delve into these things. Sure gets my blood going :-) (Big Smile) Thanks, Kurt Re: Neutropenia --Why do you consider IVIG a " Not attractive " choice? I had two treatments which did not harm and gave me more energy. Carolyn R. Swift, dx Fall 04 > Kurt - a powerful argument to be considered when using Rituxan maintenance > willy nilly > > You recall we discussed Rituxan maintenance here extensively in the past, I > was very interested myself. At the time I chose not to do it, even IDEC said > that there was no indication that it would be useful especially if already in > a nice remission. They called it " late start Rituxan maintenance " . > > Now, with AIHA, it's a different kettle of fish, I've had two goes at four > Rituxans. The first with Prednisone, the second without. > > My other choices are IVIG, cyclosporine, or a spleenectomy. Not attractive > choices. > > But, I agree, most certainly, that docs need to be fully open with their > patients about the possible delayed side effects. > > I don't know if you noticed the extra SLL/CLL session I pushed through for > the October LRF Seminar. It has just been accepted, and the subject will deal > with CLL and complications, e.g. AIHA, neutropenia, ITP. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Dear Kurt, Thank you for your apology and you excellent description of our need to get many opinions. Blasting away " , as you describe yourself, is accurate picture of your earlier letters. Even though you are very concerned about everyone's well-being, I believe such letters will discourage people from writing their ideas for fear of being blasted away if Kurt happens to disagree with them. As the person whose letter led to your responses, I must say that I wish you would try to change your tone so that it is more like the letter herewith attached to mine. It welcomes criticism and response. People have a right to disagree with you without being treated as the enemy. My doctor's objection to your letter was not that you were wrong but that it was overstated. She was commenting on your use of the same tone that I am suggesting harms communication. Your comments about my doctor are so angry that they border on libel. She does not need my defense, but since I exposed her to your public anger, I must answer you that I have always found Dr. Brown to be a caring and concerned professional, who listens to my questions and tries to answer them. She has not pushed me into any treatments and leaves final decisions to me. She knows that I try to educate myself about CLL and discusses treatments with me, knowing that we are both equally intelligent and equally educated people. In no way does she act as the only authority on a question. In addition, she is highly respected by my physicians at Brigham and Women's Hospital and by the Director of Dana Farber Cancer Institute. Furthermore, to turn to details, she has never kept me waiting an unreasonable length of time, even when she was the only doctor on duty for lymphoma patients, and she always apologizes for even slight delays. In addition, she gave me her email address and answers my emails promptly. I wonder how many of our members are able to email their doctors. I hope everyone in this group finds a doctor who is as caring and informative a professional as mine is. She does not deserve the insults which you have imprudently placed on the internet and which are by implication equally insulting to the people who have chosen her as their doctor. Carolyn R. Swift, age 78, Providence, RI 02903, dx 9/04, IVIG Mar. and April 04 > > Kurt - a powerful argument to be considered when using Rituxan maintenance > > willy nilly > > > > You recall we discussed Rituxan maintenance here extensively in the past, I > > was very interested myself. At the time I chose not to do it, even IDEC said > > that there was no indication that it would be useful especially if already in > > a nice remission. They called it " late start Rituxan maintenance " . > > > > Now, with AIHA, it's a different kettle of fish, I've had two goes at four > > Rituxans. The first with Prednisone, the second without. > > > > My other choices are IVIG, cyclosporine, or a spleenectomy. Not attractive > > choices. > > > > But, I agree, most certainly, that docs need to be fully open with their > > patients about the possible delayed side effects. > > > > I don't know if you noticed the extra SLL/CLL session I pushed through for > > the October LRF Seminar. It has just been accepted, and the subject will deal > > with CLL and complications, e.g. AIHA, neutropenia, ITP. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Dea Del, I'm really sorry to hear about your neutropenia and your pain, but thank you very much for sharing your experience with us. I hope things are better soon for you. Carolyn R. Swift --- Woody & Del <delwoody@...> wrote: > Just reading the discussions on Neutropenia and > sorry to say that I have been given Rituxan and each > time ended up with Neutropenia which I have right > now. My Neuts have bottomed out and by tonight or > tomorrow they will be at 0.00. I was given Neupogen > shots the very first time I had Rituxan, but they > did not work for me, it was very expensive and I had > such severe bone pain from it that I decided I'd > wait this out, and hopefully my Neuts will return > fairly quick on their own. I had the Rituxan on May > 4th. My own Oncologist told me when I did start > Rituxan that Neutropenia was inevitable, I have to > be extremely careful now, when I am around people, > due to my compromised immune system even though I am > fighting a bladder and chest infection and on yet > again another antibiotic. Just my point of view. > Cheers, > Del Woodward > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Andy Clutter suggests supplementing with Ornithine Alpha Ketoglutarate powder (I use one by source natural). Ornithine increases nuetrophils count. Also check out for yeast problems as neoutrophils help fight yeast. If you read the files on autism and mercury group you will find this info. Other immune boosters are vitamin c, lysine, coenzyme q10. HTH Leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Biotics Research makes a product called " Neutrophil Plus " . It raised our little one's neutrophils in about 5 weeks, with just 2 capsules per day. There is a file on that talks about all the other ways to raise neutrophils. Good luck, Neutropenia My son was just diagnosed with Neutropenia Anyone else know about this immune disorder ? I am looking for some help on how to work on his immune system with a more natural and biomedical approach. Could use any help or suggestions. Thanks so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 Maybe this will help some: Neutrophils [] Description Neutrophils are a type of small, nimble Granulocyte comprising 65% of total White Blood Cells. They are formed in, mature in, and are stored in the Bone Marrow and circulate in the bloodstream (but move out of the bloodstream into infected tissues in order to attack Antigens). Abnormally low number of Neutrophils in the circulating Blood are known medically as Neutropaenia; Neuropenia ; Neutrophilic Leukopaenia; Neutrophilic Leukopenia; Neutrophilopaenia or Neutrophilopenia. Biological Function of Neutrophils Enzymes Neutrophils release Beta-Glucuronidase. Immune System Neutrophils are involved (as a primary defense) in the destruction of Antigens including Detrimental Bacteria, Viruses and Cancer Cells (by functioning as Phagocytes and releasing Lysozyme as a means of destroying Antigens): - Serious bacterial infections cause the body to produce higher-than-normal number of Neutrophils. Neutrophils are able to function as Phagocytes. Neutrophils are the principal component of Pus (the remnant of the Inflammation process). Neutrophils produce Interleukin 1 beta. Neutrophils generate Superoxide Free Radicals as part of their function as Phagocytes (these Superoxide Free Radicals are part of the body¢s arsenal against Antigens). Skin Neutrophils are the first White Blood Cells to reach the site of Wounds (where they initiate the process of phagocytosis by affixing themselves to Antigens (e.g. Bacteria) at the site of the Wound. These Substances may Enhance the Function of Neutrophils Amino Acids Carnitine may enhance the function of Neutrophils. references Glutamine may enhance the ability of Neutrophils to destroy Antigens and to destroy Detrimental Bacteria. references N-Acetyl-Cysteine (NAC) (600 mg per day) may enhance the function of Neutrophils (it may decrease the production of Superoxide Free Radicals by stimulated Neutrophils and may improve the ability of Neutrophils to function as Phagocytes). references Taurine may improve the function of Neutrophils - it may improve the ability of Neutrophils to function as Phagocytes and may improve the ability of Neutrophils to destroy Detrimental Bacteria. references Hormones Human Growth Hormone (hGH) may enhance the function of Neutrophils, may increase the production of Free Radicals (used to fight Antigens) by Neutrophils, may promote the maturation of Neutrophils and may delay the cellular death of Neutrophils. references Immune System Chemicals Granulocyte Colony-Stimulating Factor (G-CSF) stimulates the growth of Neutrophils. Interleukin 8 (IL-8) activates Neutrophils. Lipids Leukotriene B4 (LTB4) functions as a highly potent chemoattractant for Neutrophils - it stimulates adherence, degranulation and Free Radical formation by Neutrophils. references Peptides Carnosine may increase the production of Interleukin 1 by Neutrophils and enhances the function of Neutrophils. references Microorganisms Bifidobacteria bifidus may enhance the ability of Neutrophils to function as Phagocytes. references Lactobacillus acidophilus may enhance the ability of Neutrophils to function as Phagocytes. references Minerals Copper is essential for the production of Neutrophils - Neutropenia (low Neutrophils count) can occur as a result of Copper deficiency. references Selenium may enhance the function of Neutrophils. references Zinc may enhance the function of Neutrophils. references Pharmaceutical Drugs Biostim may activate Neutrophils and may enhance their ability to function as Phagocytes. references Proteins Lactoferrin may enhance the function of Neutrophils. references Second Messengers Inositol Triphosphate is the Second Messenger that is responsible for the activation of Neutrophils. Smart Drugs Pyritinol may enhance the ability of Neutrophils to migrate to sites of injury (chemotaxis). references Vitamins Vitamin A may enhance the function of Neutrophils. references Vitamin B6 may improve the ability of Neutrophils to function as Phagocytes. references Neutrophils are unable to function as Phagocytes unless adequate Vitamin C is available. Vitamin C may improve the motility of Neutrophils (i.e. their ability to migrate to sites of infections). references Vitamin E may improve the ability of Neutrophils to function as Phagocytes. references These Foods/Herbs may Enhance the Function of Neutrophils Animal-Derived Extracts Thymus Extract may enhance the ability of Neutrophils to function as Phagocytes. references Herbs Echinacea may stabilize the ratio of Neutrophils to other White Blood Cells and increases the number of circulating Neutrophils. references Triphala may enhance the function of Neutrophils. references Mushrooms Shiitake Mushrooms may enhance the function of Neutrophils. references These Substances may Interfere with Neutrophils Carbohydrates Excessive consumption of Simple Sugars may interfere with the ability of Neutrophils to function as Phagocytes: references - Excessive consumption of Fructose may interfere with the function of Neutrophils. references - Excessive consumption of Glucose may interfere with the function of Neutrophils. references - Excessive consumption of Sucrose may interfere with the function of Neutrophils. references Microorganisms Candida albicans may inhibit the ability of Neutrophils to destroy Antigens. These Ailments may Interfere with Neutrophils Aging Process The function of Neutrophils deteriorates in tandem with the progression of the Aging Process. Immune System Acquired Immune Deficiency Syndrome (AIDS) patients may have an increased risk of developing Neutropenia (abnormally low number of circulating Neutrophils). references Agranulocytosis may cause severe, acute deficiency of Neutrophils as a result of damage to the Bone Marrow by toxic drugs or chemicals. Musculoskeletal System Rheumatoid Arthritis patients may exhibit deficient levels of (Cellular) Superoxide Dismutase (SOD) in their Neutrophils. Related Topics Bone Marrow Granulocytes Immune System Phagocytes Copyright (Hyperhealth Pro 6.0, 2006) In-Tele-Health © 2006 (from Hyperhealth Pro CD-ROM) Neutropenia My son was just diagnosed with Neutropenia Anyone else know about this immune disorder ? I am looking for some help on how to work on his immune system with a more natural and biomedical approach. Could use any help or suggestions. Thanks so much Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2011 Report Share Posted March 2, 2011 Neutrophils: A subgroup of granulocytes defending the body against bacteria. Neutrophils are also known as segs, polys or segmented neutrophils. Neutropenia: An abnormally low level of neutrophils in the blood. Neutropenia is a health condition marked by a low neutrophil count in circulating blood. Neutrophils are a type of white blood cell and one of the primary natural defenses against bacteria, fungi and other foreign invaders. So, whenever its concentration is low your infection risk significantly increases. Neutropenia can be caused by numerous health conditions, congenital disorders, medications, treatments, toxin exposure and vitamin deficiencies. Mild non febrile neutropenia may not require treatment because it can resolve on its own. http://www.healthblurbs.com/causes-of-neutropenia-low-neutrophil-count-infection\ -risk-febrile-neutropenia/ Bone Marrow: The spongy material located in the center of our bones. It is the home of our stem cells, which reproduce to create our blood, including white blood cells, red blood cells, platelets, B- and T lymphocytes and macrophages CSF rhinorrhoea refers to the drainage of cerebrospinal fluid through the nose. It is characterized by unilateral nasal discharge, which will test positive for glucose and, uniquely, beta-2 transferrin.[citation needed] It is a sign of basal skull fracture. Management includes watchful waiting - leaks often stop spontaneously; if this does not occur then neurosurgical closure is necessary to prevent the spread of infection to the meninges.[citation needed] Other signs of basal skull fracture includes CSF otorrhoea (drainage of CSF through the ear). It can have devastating complications in some patients, as the communication between the nasal cavity and the cerebrospinal fluid and CNS can result in bacterial infections of the CNS that can have catastrophic effects on the patient.[1] CSF rhinorrhoea can also be a symptom of a pituitary adenoma http://en.wikipedia.org/wiki/CSF_rhinorrhea Toxic encephalopathy, also known as toxic-metabolic encephalopathy, is a degenerative neurologic disorder caused by exposure to toxic substances.[1] It can be an acute or chronic disorder. Exposure to toxic substances can lead to a variety of symptoms, characterized by an altered mental status.[2] Toxic encephalopathy can be caused by various chemicals, some of which are commonly used in everyday life.[3] Toxic encephalopathy can permanently damage the brain and currently, treatment is mainly just for the symptoms http://en.wikipedia.org/wiki/Toxic_encephalopathy Bone marrow culture Tests are performed for routine health screenings or if a disease or toxicity is suspected. http://adam.about.net/encyclopedia/Bone-marrow-culture.htm Proteinuria: The occurrence of protein in the urine Severe Chronic Neutropenia: Encompassing a group of rare hematologic disorders in which the patient's ANC falls below 500 cells per cubic millimeter. In most cases, SCN is due to underproduction of neutrophils. The three forms of SCN are congenital neutropenia, cyclic neutropenia and idiopathic neutropenia Idiopathic Neutropenia: An acquired form of severe chronic neutropenia of unknown cause; a broad term for unexplained neutropenia in both adults and children. The condition can be inherited or acquired Osteopenia: Mildly demineralized bone substance. Osteoporosis: Severely demineralized bone substance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi Steve I'm neutropenic. When my GP spotted it, he referred me to a haemotologist. As the hospital had huge numbers of blood tests on their system for me, the haemo was able to compare my white blood cell levels with my health and pregnancies at the time the bloods were done, and to see that my wbc rose and fell appropriately in those circumstances. That is what I wss told is the important thing. Recently, I've been reading a lot on Dr Myhill's website. i don't know exactly what page it was on, I'm afraid, but she mentions somewhere that she has observed that it is common for people with fatigue syndromes (including hypot) to have low wbc and be prone to infection and that she puts this down to low zinc. I know I have low zinc, so this could well be true for me, and I know it is common for hypots to have low zinc. So, if you want to do something about it: ask for a haemo referral to check that your neutropenia is not of concern and supplement zinc (be warned, you're unlikely to get any help from the nhs on this last one, they wouldn't even test mine - I got it done privately via biolab). Hope that helps Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 ANITA, I HAVE EDITED YOUR MESSAGE THIS TIME TO REMOVE MOST OF THE MESSAGE YOU ARE RESPONDING TO. PLEASE CHECK THAT YOU HAVE DONE THIS BEFORE CLICKING 'SEND' IN ANY OTHER MESSAGES. LUV - SHEILA _________________________________ I have the same problem!! My WBC is always really low, (last test - I got the results yesterday: WBC: 4.03 - ref range: 4.00-10.5; Lymphocyte: 1.2 - ref. range: 1.3-4) and my GP says he is not worried about it and he doesn't know what causes it. When I suggested that it could be the hypothyroidism or Candida, he dismisses it and says he doesn't know the reason but he is definitely not concerned! I feel like crying, they just don't care that we are sick!! Anita > > Does anybody have any expierence of this ? > > Despite the name its actually the term for constant Low white blood cells. Which i have and i believe could be contributing to the fungal infection. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Thank you very much Susie. What treatment if any did you recieve when you went to the haemotologist? I will ask for a referal on my endo appointment on monday and see what he has to say. Did you know that zinc lowers cortisol? There are a few documents around and the people over at the adrenal group also advise this. I also have low lympocyte with 0.6 (1.5-40.) My WBC was 3.0 (4.0-11.0) Steve > > > Hi Steve > I'm neutropenic. When my GP spotted it, he referred me to a haemotologist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 After doing a bit of research this morning Anita, it does seems hypo and candida are someway related to neutropenia, im not sure exactly how tho. Also hydrocortisone can cause neutropenia. Steve > I have the same problem!! > My WBC is always really low, (last test - I got the results yesterday: WBC: 4.03 - ref range: 4.00-10.5; Lymphocyte: 1.2 - ref. range: 1.3-4) and my GP says he is not worried about it and he doesn't know what causes it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 So can addisons? > Also hydrocortisone can cause neutropenia. http://bloodjournal.hematologylibrary.org/content/3/7/769 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi Steve I didn't get any treatment as the haemo said my levels were 'normal for me'. Hmm. I was aware about zinc lowering cortisol. It's something that bothers me as my cortisol is on the low side. A lot of people use it in the evening as many people with adrenal fatigue have high night time cortisol so it can help with that. i don't know what the answer is in my case and wish I did! I vaguely heard about the candida link too and I too suffer with that. I'm hoping someone a bit more knowledgeable will be able to come along and give some insight Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Indeed Chris How are you health wise at the minute, not seen you posting all that much recently ? Steve > > So can addisons? > > > Also hydrocortisone can cause neutropenia. > > > > http://bloodjournal.hematologylibrary.org/content/3/7/769 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi Steve, I remember reading this fact somewhere before but when I mentioned it to my GP, he was quick to dismiss it! I have taken zinc but then someone on TPA advised that I stop it. My WBC and lymphocyte levels were low while I was taking the zinc too... My GP didn't refer me to anyone as he thinks my levels are OK! Does anyone have more info / knowledge about this, who can advise? Thanks, Anita > > After doing a bit of research this morning Anita, it does seems hypo and candida are someway related to neutropenia, im not sure exactly how tho. > > Also hydrocortisone can cause neutropenia. > > Steve > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Yeh im thinking its because my body is fighting the candida infection and failing would this fit low WBC ? My actual results are lympocyte count 0.6 (1.5-40.) WBC 3.0 (4.0-11.0) The last 3 full blood counts my white blood cells have all been under range, i do not have them all to hand jus the latest results. There are 4 gp's at my local doctors all of them are rubbish and in some way have let me down big time in the past, the only other option i have would be to move doctors. But while i am under the care of one specialist(endo), just got a referal to another(gastrolist) and it looks like i need to see a 3rd (hematologist) - I will just use my gps for referals to save the hasstle of changing who all my specialist write to. When/if i become well again i will move doctors and hopefully wipe the slate clean. Thanks for the information on copper trish its something i will look into and ask my endo about. Steve > > Simply Steve, Neutropenia is caused through some form of infection - > somewhere in the body, but it doesn't tell you exactly where. Identify the > infection, treat it to the best of your ability, once treated, the white > cells will increase and your neutropenia will likely disappear. What level > of white cells have you and what is the reference range? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Thanks Sheila, I have read this but my GP is still ignorant and thinks my test results are OK! Maybe I will print off a copy and give it to him! I started taking the ferrous fumarate and feel better!! The dizziness is much less, my head is less foggy, I'm more alert and awake, get going easier and quicker in the morning, have more energy! And this is after 4 days of taking it! Started the B12 nuggets too. Thanks very much, Anita x > > Anita - read about Neutropenia here > http://www.medicinenet.com/neutropenia/article.htm > > Luv - Sheila > When I suggested that it could be the hypothyroidism or Candida, he > dismisses it and says he doesn't know the reason but he is definitely not > concerned! > > I feel like crying, they just don't care that we are sick!! Quote Link to comment Share on other sites More sharing options...
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