Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you." He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say "Cookie" He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three." He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said "no, In fact he is getting worse." And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said "Quirky! You don't think there is anything wrong with him?" She Said " No, Because he can look me in the eye and smile at me." And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him "no". He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 ,WRT to people casting you judgey looks when you're out and about, I have a small story:We have a son who's now ten and has an ASD. I met him for the first time when he was 7 and I was VERY conscious of people staring and whatever. My wife told me that it wouldn't take too long for my " give a s & *t " to break and I would care a lot less after that. And she was right.Hang in there!tt Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you. " He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say " Cookie " He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three. " He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said " no, In fact he is getting worse. " And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said " Quirky! You don't think there is anything wrong with him? " She Said " No, Because he can look me in the eye and smile at me. " And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him " no " . He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. -- Terri D. Eagen-TorkkoFull-time feminist event planner, freelance editor, 24/7 bonus mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Can you mom take him to the bus stop? or a friend of the family? Can you see if medicaid has a program to take him to a therapy based school? To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 9:57 AM Subject: Re: Coltons Regression Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you." He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say "Cookie" He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three." He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said "no, In fact he is getting worse." And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said "Quirky! You don't think there is anything wrong with him?" She Said " No, Because he can look me in the eye and smile at me." And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him "no". He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Actually I got it taken care of they are now making him his own bus stop at the end of our street. So happy!!! He needs the help so much! He will get to be with his teacher and then on different days of the week he will see a speech therapist, occupational therapist, physical therapist, and get to play in the sensory room. And he goes for his Autism screening in a month To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 11:04 AM Subject: Re: Coltons Regression Can you mom take him to the bus stop? or a friend of the family? Can you see if medicaid has a program to take him to a therapy based school? To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 9:57 AM Subject: Re: Coltons Regression Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you." He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say "Cookie" He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three." He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said "no, In fact he is getting worse." And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said "Quirky! You don't think there is anything wrong with him?" She Said " No, Because he can look me in the eye and smile at me." And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him "no". He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Yeah!!! I am happy this is working out for you!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 12:23 PM Subject: Re: Coltons Regression Actually I got it taken care of they are now making him his own bus stop at the end of our street. So happy!!! He needs the help so much! He will get to be with his teacher and then on different days of the week he will see a speech therapist, occupational therapist, physical therapist, and get to play in the sensory room. And he goes for his Autism screening in a month To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 11:04 AM Subject: Re: Coltons Regression Can you mom take him to the bus stop? or a friend of the family? Can you see if medicaid has a program to take him to a therapy based school? To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 9:57 AM Subject: Re: Coltons Regression Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you." He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say "Cookie" He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three." He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said "no, In fact he is getting worse." And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said "Quirky! You don't think there is anything wrong with him?" She Said " No, Because he can look me in the eye and smile at me." And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him "no". He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2012 Report Share Posted July 19, 2012 Awesome!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 2:09 PM Subject: Re: Coltons Regression Yeah!!! I am happy this is working out for you!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 12:23 PM Subject: Re: Coltons Regression Actually I got it taken care of they are now making him his own bus stop at the end of our street. So happy!!! He needs the help so much! He will get to be with his teacher and then on different days of the week he will see a speech therapist, occupational therapist, physical therapist, and get to play in the sensory room. And he goes for his Autism screening in a month To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 11:04 AM Subject: Re: Coltons Regression Can you mom take him to the bus stop? or a friend of the family? Can you see if medicaid has a program to take him to a therapy based school? To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 9:57 AM Subject: Re: Coltons Regression Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you." He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say "Cookie" He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three." He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said "no, In fact he is getting worse." And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said "Quirky! You don't think there is anything wrong with him?" She Said " No, Because he can look me in the eye and smile at me." And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him "no". He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2012 Report Share Posted July 20, 2012 Thanks me too! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 2:09 PM Subject: Re: Coltons Regression Yeah!!! I am happy this is working out for you!! To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 12:23 PM Subject: Re: Coltons Regression Actually I got it taken care of they are now making him his own bus stop at the end of our street. So happy!!! He needs the help so much! He will get to be with his teacher and then on different days of the week he will see a speech therapist, occupational therapist, physical therapist, and get to play in the sensory room. And he goes for his Autism screening in a month To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 11:04 AM Subject: Re: Coltons Regression Can you mom take him to the bus stop? or a friend of the family? Can you see if medicaid has a program to take him to a therapy based school? To: "autism-aspergers " <autism-aspergers > Sent: Thursday, July 19, 2012 9:57 AM Subject: Re: Coltons Regression Sara, I am so glad to read you changed doctors. In regards to the school do you have a friend or neighbor who can walk him to the bus stop? Lastly, my daughter (4) has a hard time with change. We made a book we use pictures not words in little boxes. The first row has four pictures, second row four pictures ect… each row represents an hour. It helps a ton. Can you try that? To: Autism-aspergers <autism-aspergers > Sent: Wednesday, July 18, 2012 2:14 PM Subject: Coltons Regression So Colton will be 23 months old on the 30th. And still does not say one word. Over the past couple of months Colton has learned how to say I love you Which he said " I you." He did that for maybe 2 months and hasn't done it since. About 2 weeks ago he learned to say "Cookie" He said that maybe 3 times and stopped completely. Then about a week ago my older children were showing him how to cont to 3. would say one... And Colton would Say " two, three." He did that maybe 3 or 4 times and stopped completely again. He is now starting to struggle with going in public places. Stores, parks, ect. Sometimes even just getting in the car is to much for him. He screams at the top of his lungs and thrashes violently. Hurting himself and people around him. Mean while everyone in the store is staring at me like I should do something about my kid. He also learned to wave bye-bye , He did that maybe twice and hasn't done it since. Still doesn't point to anything or even attempt to show you what he wants. I took him to the dr. for his shots that he was late on getting and the dr. asked me if he was doing any better and I Said "no, In fact he is getting worse." And went on to explain his regression. She then had the nerve to look at me an say well maybe he's just weird and quirky. I could feel my blood pressure rise instantly. I was LIVID!!! I said "Quirky! You don't think there is anything wrong with him?" She Said " No, Because he can look me in the eye and smile at me." And I left. When I got home I called medicaid and enrolled him into Childrens Medical Services Network. And Switched his Dr. Colton was accepted into A school for the disabled not far from where we live. The only problem now is that he can't go because they don't go door to door. They have drop off locations and none that I can walk to with 4 children. I have no car and no license. So that opportunity just flew out the window. I'm so aggravated. And his temper is so bad and he usually takes it out on my 5 month old. A few weeks ago he picked up his quite large purple helicopter that sings and threw it at the baby hitting him in the head with it, because he was mad about me telling him "no". He is also starting to become very resistant to change. Diaper changes, changes in activities or toys or routine, food. If my mom comes over on the wrong day that she normally comes he acts like he doesn't even know her. Thanks for letting me vent. I just feel so lost. And at times I feel like he is lost. I just want my sweet baby back the way he was when he was younger and didn't have as many issues. Quote Link to comment Share on other sites More sharing options...
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