[Guest guest]

In a message dated 04/02/07 15:53:57 Eastern Daylight Time, mfroof writes:

Hi, Everyone....MOnica......ICE started after 9/11. I know it's been

advertised all over the states and I think the more people use cell phones the

more

it will become like 'call 911.'....just like Sara said.

Thanks. I never heard of it before but am thankful I know now.

Blessings, W

in CT

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 3, adoption finalized

2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome, Autism, SID)

[Guest guest]

<<Hi, Everyone......I have used that word, too......issues. Gareth

always has one issue or another is the way I say it!!! Like you, it goes with

everything.....medical, educational, behavioral, etc.>>

Yeah! I WISH being cognitively delayed was the only " issue " we had to worry

about. Sheesh.

Sherry

[Guest guest]

Hey everyone......

I am being a hermit........ crazy crazy life just wants to make you hide.. I

hope everyone is coping with end of school, heat, rain and esy/summer

issues......argggggggg

Does anyone know of the website that rates state disability services including

transition....... if so please feel free to share...... :-) I only run to the

library every so often so please feel free to email me so I don't have to sift

through tons of email.....although I love to read them, just no time........

thanks in advance....lol

crazy in Va,

Leah

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Hang in there Leah - I am pulling for you.

Try going to www.cms.gov for Medicaide waiver info.

My cousin who is veep for a company providing residential services to people

with mh/mr on the east coast, says that DE and MD are the two best states.

We thought services were good in PA, but he will not provide services in

PA!!! Opinion only

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Re:

>Date: Fri, 27 Apr 2007 11:48:12 -0700 (PDT)

>

>Hey everyone......

>

> I am being a hermit........ crazy crazy life just wants to make you

>hide.. I hope everyone is coping with end of school, heat, rain and

>esy/summer issues......argggggggg

>

> Does anyone know of the website that rates state disability services

>including transition....... if so please feel free to share...... :-) I

>only run to the library every so often so please feel free to email me so I

>don't have to sift through tons of email.....although I love to read them,

>just no time........

>

> thanks in advance....lol

>

> crazy in Va,

> Leah

>

>

>---------------------------------

>Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>

>

[Guest guest]

Welcome to this list where we search for answers and even sometimes find

them and most of all we support each other!!!

What makes you think that your son may have ASD? Sociability is the bugaboo

that most of our kids present - because they display more sociability than

other ASD kids, they are then eliminated from the possibilty of having ASD.

But there are so many other behavior issues. And in appropriate social

behavior is one of them!!!

_________________________________________________________________

Download Messenger. Join the i’m Initiative. Help make a difference today.

http://im.live.com/messenger/im/home/?source=TAGHM_APR07

[Guest guest]

In a message dated 5/8/2007 2:28:59 PM Eastern Daylight Time,

I know some people consider baby wearing, co-sleeping,

>nursing to sleep to be new age, but I do all of that and don't think

>its new age. Is it?

+JMJ+

I don't think it is new age at all. Baby Wearing, co-sleeping and nursing

have been around since the beginning of time.

I am into homeopathy, attachment parenting and organic foods (I still enjoy

a good ring ding so I am not a complete freak!) but I have found the majority

of folks who are consistently this same way are more into the " new Age " type

of thinking. By that I mean Mother Earth or the Earth goddess and the whole

good karma/bad karma thing.

Some will put all animals on the same level as human beings.....very earthy.

Me, I am not like that at all. While I believe in helping animals I do not

put them at the same level as my child or any other human being.

Blessings, W

homeschooling Mom to AJ (12), (8), ^l^, (5,

Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 4, adoption

finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol Syndrome,

Autism, SID)

************************************** See what's free at http://www.aol.com.

[Guest guest]

My oldest son has a description for NEW AGE as " Artzy Fartzy " thinking that

leads one to think that pouring down rain is a manifestation of dew on a

thirsty world and other sorts of strange talking.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To:

>Subject: Date: Tue, 8 May 2007 09:29:03 -0800

>

>I am glad I wasn't the only one who could not figure out indigo baby.

>I am not sure where my sis heard her son was autistic, maybe we were

>thinking of Toni Braxton? Isn't her son autistic? New age baby

>thinking, I know some people consider baby wearing, co-sleeping,

>nursing to sleep to be new age, but I do all of that and don't think

>its new age. Is it?

>

>

>

>--------------------------------------------------

>Checkout our homepage for information, bookmarks, and photos of

>our kids. Share favorite bookmarks, ideas, and other information by

>including them. Don't forget, messages are a permanent record of the

>archives for our list. http://groups.yahoo.com/group/

>--------------------------------------------

>

[Guest guest]

McCarthy DID say her 5 yo son was dxed autistic when she was on the View.

Of course if he's being raised partially by her boyfriend Jim Carrey I'm not

surprised he has some sort of diagnosis LOL. I'm sorry to learn her big deal

book about autism will be going this New Age route; I thought maybe she was

going to be politically incorrect.

I don't think of New Age as co-sleeping etc. I think of it as crystals and Tarot

cards and out of body experiences and incense and UN traditional religious

meditation and beliefs, seances, maybe chatting with spirit guides etc. Again,

I'm not saying this is bad stuff (just that it makes ME puke).

Sherry

[Guest guest]

I see nothing straange or NEw Age about parenting a child at the most basic

level - especially children who never had the birth bonding experience.

- I certainly know where you are coming from in that respect. I have

3 adopted children - 2 adopted in the flower child era of the '70's. So all

the earth mother thing is very comfortable to me.

But that does not begin to answer the Indigo/Chrystal child idea.

Sara - Choose to make lemonade, not complain about the lemons.

>From: stamtorch@...

>Reply-To:

>To:

>Subject: Re:

>Date: Tue, 8 May 2007 14:59:10 EDT

>

>In a message dated 5/8/2007 2:28:59 PM Eastern Daylight Time,

>

>I know some people consider baby wearing, co-sleeping,

> >nursing to sleep to be new age, but I do all of that and don't think

> >its new age. Is it?

>

>

>+JMJ+

>

>I don't think it is new age at all. Baby Wearing, co-sleeping and nursing

>have been around since the beginning of time.

>I am into homeopathy, attachment parenting and organic foods (I still enjoy

>a good ring ding so I am not a complete freak!) but I have found the

>majority

>of folks who are consistently this same way are more into the " new Age "

>type

>of thinking. By that I mean Mother Earth or the Earth goddess and the

>whole

>good karma/bad karma thing.

>Some will put all animals on the same level as human beings.....very

>earthy.

>Me, I am not like that at all. While I believe in helping animals I do

>not

>put them at the same level as my child or any other human being.

>

>Blessings, W

>

>

>homeschooling Mom to AJ (12), (8), ^l^,

>(5,

>Trisomy 18 mosaic AKA 's syndrome) and Birgitta (age 4, adoption

>finalized 2/1/05 !!, Trisomy 21 AKA Down's Syndrome, Fetal Alcohol

>Syndrome,

>Autism, SID)

>

>

>

>************************************** See what's free at

>http://www.aol.com.

>

>

>

[Guest guest]

Hi ,

What exactly is a school/community program? I apologize for all the questions.

Different areas have different names for specific programs. I am assuming he is

in a life skills class. Watching a video for a good day is considered part of a

behavioral intervention plan. Are you familiar with his IEP? What specific

information are you looking for?

Charlyne

Mom to Zeb 14 DS/OCD/ASD?

mrs_robinsonrces wrote:

SMD is a movement disorder, that is all I know he was just diagnossed

last week. is 10. He is in a school/community based program. He

does not have a behavior intervention plan that I am aware of.

However, if he has a good day he gets to watch a video.

> My brother was recently diagnosed DS/SMD/PDD/ODD. My mom

was wondering

> what should happen now, should services change? Should his goals

> change? Are there strategies used in teaching kids that have this

> diagnosis? What works best? Is there anyone who has gone through or

> is going through this in land? We live in Montgomery County.

> Please help!

> Thanks!

>

>

>

>

>

>

>

>

[Guest guest]

I know..........I don't know why they are sooooooooo resistant. Fred reads

pretty well-solid third grade, but has more difficulty with comprehension. He

counts the value of coins and can add them together. I want him to read at a

minimum of a fifth grade level by graduation (4 years). They want to continue

the reading and math in a functional way.............more functional sight words

for reading, etc. Functional math is fine with us. I have such a hard time

envisioning Fred's future because I don't want to pigeon hole him. I do know

that he likes acting, singing and performing. I feel that he will be active

doing that in his future- through a local theater group and church worship

services. He enjoys videotaping and making up his own tapes from various CDs.

Transitional outcomes that relate to vocational goals seem to be a bit overrated

as the job market is so limited and he won't be working fulltime. They do try

to get the students in their vocational program despite its value..........it

must make their lives easier I think. Sorry if I am rambling............ It

all comes down to attitude I guess. They have an idea where Freddie will be in

five years because he has MR, not because they know him. It must be

nice.........................

<<so we agreed to have the content areas taught in the AS class. They did

not do much with teaching there........................ " parent is requesting

IEP for instruction with significant emphasis on academics despite the intense

need for goals related to Transition Outcomes. " Does that sound

significant?????>>

Hi, Everyone........this is where the problem lies. In our AS classes,

they are taught academics......as in the resource room setting. Can he

read and do some basic math? I agree with what Carol posted.....math and

reading/comprehension are just as important in Transitioning. Just what are

their

'intense need for goals related to TO?'

Take care,

Everyone.

Margaret

************************************** See what's free at http://www.aol.com.

[Guest guest]

Margaret: What do you mean your moving??? When, how, why??? Did I miss

something along the way?

Liz

Hi, Everyone.......welcome to the group. I use to live near you....in

Bourbonnais......6 yrs ago. Now we're in the process of moving from

Lancaster,Pa. to State College, Pa. Glad you found the group and please chime

in

often. Most importantly for Cole, is that the Autism becomes his PRIMARY

dx.....it will make the DS look like a walk in the park!!! Don't let the

school

district tell you otherwise, either, because our kids can learn and it's the

autism that will cause the most problems.....sensory issues, noise issues,

behavioral, speech, etc. My son, Gareth, is 19 with DS/Autism/OCD and will be

going to PSU's Lifelink program in Sept.

Take care, Everyone.

Margaret

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi, Laurie,

doesn't like the evil eye, either. When he notices his sister's

hair (what there is of it), he'll always look to me first to see if

I'm watching before he reaches out to pull it. The frustrating thing

is, I'll have the two babies in separate rooms doing fun stuff and

then rush to the bathroom or to throw a load of wash in (we go through

a lot of laundry!) or let the dogs out. will hear me walk away

from his sister and then will go over to her and start bugging her.

It's awful. I just wish that he'd stop when she cries...it's starting

(slowly) to happen now because I always shout at him when I hear her

cry, but the bad thing is that she's starting to cry as soon as he

comes near her so I can't count on the cry actually meaning anything.

I need a clone!

>

>

> Welcome to our group I am Laurie mom to Mic 6 yrs old dxed ds/asd

Mic was a hair puller I had bald spots from him pulling my hair. One

summer I wore a tight hat Mic couldnt get his hands under I looked

ridculas at 85 degrees out with that hat on but after about 2 months

the hairpulling stopped and he moved on to pinching he was also a

biter hes grown out of most of it now he loves my hair and will pet my

head sometimes he gets the urge to pull it but I grab his arm and sign

and say mad and he stops. I still get pinched but not often hes

looking for sensory input.The biting was tough I would run when I saw

him coming or try to reroute his behavior.This year is the first year

we finally have pretty good eye contact and I look at him and give him

the evil eye when hes about to do something thats gonna hurt

someone.He hates the evil eye and seems to understand Mom is mad. I

have had Mic enrolled in a strict ABA school and hes non-compliant

there too some weeks are bad they just dont tolerate it. Time out does

not work with Mic.It does seem to be so much better the older he gets

and if hes really acting up I take him out and swing him as rough as I

can and he forgets about the behavior.His new behavior is pushing me

but I keep a close eye on him. Last week he pushed my 81 year old Aunt

and almost pushed her down his father yells at him and it works for

dad I am not a yeller and have tried it it didnt make me feel very

good so I stopped thank goodness the evil eye is working. Thanks for

all your information you seem very in tune with your children and Im

sure youll do great.You certainly sound like you have your hands full

hats off to you. Laurie

> _________________________________________________________________

> Hotmail to go? Get your Hotmail, news, sports and much more! Check

out the New MSN Mobile!

> http://mobile.msn.com

>

>

[Guest guest]

, you do need a clone.

is one intelligent child.

What a character, sneeking in to mess with his siblings.

I could see him being an attention seeker too, even though he

receives already alot through all his therapist working with him,

its not the same when everyone needs or wants to hang out with mom.

On the laundry thing, is there any way if the dirty clothes are in

the hamper or laundry basket to have help push it near the

laundry room area, this will give him something to do knowing that

the little ones are safe, this will also help with the continuous

proprioception input. I bet would love doing this when you ask

him to " help mom " & of course whatever words you would like to praise

him with " nice looking at mom, or helping mom, boy you are strong,

etc. " Do this while you are not in such a hurry so that could

also hand you the clothes to put in the washer, make sure to add " all

done or finish " , then tell him something like " let's go check in on

your sister " .

Have him help with placing the dog food in the dog bowl, alot you

would have to prep him for until he master certain skills you would

like for him to learn. There seems to be alot of imitation here to

whereever or whatever you are doing he is following along but has

caused some fear towards his sister by pulling her hair besides

enjoying pulling her hair, especially if he sees that he will receive

some type of attention when this happens.

When you go over to your little girl and in front of him, say

something like " I have to be gentle with ______, no pulling hair.

I see you already worked with helping with the bottle.

Seems like this will help him alot from bullying his sibs, just

trying to keep him busy.

Are you using a incentive chart, something like

" I am working for_________. Has to earn about 5 stars/token system,

then on top have a surprise. This is where you have something like a

choice board with activities to do, you already know he seeks sensory

input, have pics ready where he could place it on his " Working on

chart_______ " .

Did the ST, your neighbor work on this with to have his own

visual schedule to follow?

http://www.lindahodgdon.com/newsletters-nov-06.html#article1

http://www.dotolearn.com/picturecards/printcards/social_behavior.htm

http://www.dotolearn.com/picturecards/howtouse/schedule.htm

I have a 3 y/o grandson who I just see having to redirect him alot

these days when he comes over as his dad (my son return home) to live

with us, there are alot of emotion, social anxiety issues going on

and some speech delay. His parents have separated and you could say

his mom just thinks " A boy is a boy thing " . Not in my eyes as I could

see he has alot of frustration especially when no one understands him

when he tries to tell us something. Behavior will happen.

There is also a family history like with speech impairment, ADHD and

of course with his Uncle DS & AU, then the fact of possible

Fetal Alcohol syndrome, this has not been ruled out.

The sad part of all of this which I found out as I sat with him

during playdoh time. I begin shaping whatever I ask him he would like

for me to make. He'll say something like " daddy's car " , then I will

make a little house for dad, then he opens up like make " mommy's

house " , the list goes on, he expresses out what is bothering him and

most of the time he will get the playdoh Noah and his playdoh daddy

always sitting together and mom tossed to the side. He seems like

upset with her. I do not ask alot of questions, I believe he is

already pretty confused enough.

The latest as I had mentioned to my son Roland " What is wrong with

this picture, if we are having to redirect him more than ever when

mom is not going to school or work. " The latest while playing with

the playdoh was that he was going to school. His mom kept this from

my son, his dad. Because my son ended up asking her " Why does Noah

keep mentioning he is going to school? " She caved in and told him

that she had enrolled him in a daycare. The other was a dental follow-

up, found out that she pulled another number on my son, she had taken

him and made it look like he was allowing Noah to become a picky

eater. I am glad that my son knew he needs to watch out here and told

the staff at the dentist office that he only has him for a couple of

days versus her with him 5 days.

Sorry, it just irks me to watch my grandson going through this as

there are more stories.

Anyways in your situation, I hope 's teacher could incorporate

something like this with the Floortime with his emotions/feelings.

I could see something like this for to begin expressing

something.

Once again just sharing some stuff to think about but alot I could

see are already being implemented.

Irma,18,DS/ASD

>

> Hi, Laurie,

>

> doesn't like the evil eye, either. When he notices his

sister's

> hair (what there is of it), he'll always look to me first to see if

> I'm watching before he reaches out to pull it. The frustrating

thing

> is, I'll have the two babies in separate rooms doing fun stuff and

> then rush to the bathroom or to throw a load of wash in (we go

through

> a lot of laundry!) or let the dogs out. will hear me walk

away

> from his sister and then will go over to her and start bugging her.

> It's awful. I just wish that he'd stop when she cries...it's

starting

> (slowly) to happen now because I always shout at him when I hear her

> cry, but the bad thing is that she's starting to cry as soon as he

> comes near her so I can't count on the cry actually meaning

anything.

>

> I need a clone!

>

>

>

[Guest guest]

Hi, Irma,

Thanks again! What super ideas!

could take the laundry basket to the basement door, but the

actual machine is downstairs and the floor down there is concrete and

it's not kid-safe at all. Cat litter boxes on the ground and tools

and boxes all over, that sort of unsafe. If I couldn't keep him with

me, I'd be worried like crazy. Even if I could keep him with me, it'd

be hard. Just getting him AND the laundry down the stairs would be

hard (he just turned 2 and isn't walking yet, let alone down the

stairs). Usually, I only do laundry during the day if I need to rush

down to the washer with an emergency (someone pooped out of a diaper

or ate blueberries and got it on their clothes and it needs to be

washed ASAP, which happens pretty often with 2 in diapers). I do

regular laundry after DH gets home from work. Anyway, if I need to

make an emergency laundry run, I'll usually put in the swing

(it's an ikea pouch-type swing, he can climb in and out of it safely

and loves it as do his older brothers, it's probably the most-used toy

in our home and even my 11-year-old mother's helper loves going in

there to escape) and then I'll set Annika over on the other end of the

house in the family room by the slide. Half the time I find both of

them in the kitchen.

We did try giving him play-doh but he hated it. The OT is trying to

work him up to play doh because it IS a good way to get them to

express what's inside. And it's great sensory-wise. just

wanted to put it in his mouth, but will play in a box of dried beans

just fine. We also don't do a sticker chart because I don't think

he'd even begin to understand what it's all about. He's still at the

stage where things are tasted and chewed on on thrown down the stairs

to watch them go down. I think the whole planning and delaying

gratification is something we'll have to wait with. I'm honestly not

even sure whether my older boys would have been good with a sticker

chart at 2, though definitely at 3 (I used one for potty training each

of them at 3). How do you explain it to someone so young?

I'm going to check out the links you sent. Thanks so much!!!!

> >

> > Hi, Laurie,

> >

> > doesn't like the evil eye, either. When he notices his

> sister's

> > hair (what there is of it), he'll always look to me first to see if

> > I'm watching before he reaches out to pull it. The frustrating

> thing

> > is, I'll have the two babies in separate rooms doing fun stuff and

> > then rush to the bathroom or to throw a load of wash in (we go

> through

> > a lot of laundry!) or let the dogs out. will hear me walk

> away

> > from his sister and then will go over to her and start bugging her.

> > It's awful. I just wish that he'd stop when she cries...it's

> starting

> > (slowly) to happen now because I always shout at him when I hear her

> > cry, but the bad thing is that she's starting to cry as soon as he

> > comes near her so I can't count on the cry actually meaning

> anything.

> >

> > I need a clone!

> >

> >

> >

>

[Guest guest]

Hi ,

Will I could see scratching the laundry assistance off your list.

Oh yes, I forgot that most places beyond the Texas outlines have

basements. Definitely not a safe zone.

I keep forgetting you still have a baby. Stickers did not work for my

son or my grandson but ended up using his favorite Disney or Sesame

Street character on a laminated card stock paper into star shapes

with some velcro worked here for me. They just loved it and with pics

above the reinforcing chart. I had to be creative around this too, it

is shaping the behavior. Kinda of like what is it for me?

This is once again where ABA intervention came in, to target the goal

areas needed. This was my objective using a technique to engage and

maintain their attention and motivation.

This is now where the behavior intervention is applied, once we know

the function, we can take the steps to:

- Reduce the likelihood of occurrence

- Replace with something appropriate

- Respond in a way that won't reinforce

Prevention/Reduce

* What can we do to reduce motivation for the behavior to occur in

the first place?

- sleep, diet, hydration

- Sensory activities

- Errorless teaching techniques

- Physical environment

Teaching new behaviors

* We must also teach something to REPLACE the behaviors

* Appropriate COMMUNICATION skills are usually the behaviors we want

to teach!

- Ask appropriately

- follow a direction

- Interaction and play

RESPOND Appropriately

* DON'T REINFORCE the behaviors!

* Tangible/Attention: prevent access to item or attention

* Stimulatory: block the behavior.

Treating Behaviors by Function

* Let's look at each function (Escape, Tangible, Sensory) and talk

about how we can:

* PREVENT

* REPLACE

* RESPOND

Tangible or Attention Seeking

* Prevent by giving frequent attention and access to preferred items

* Replace by teaching: requesting, accepting no, waiting, and giving

up reinforcers

* Respond with:

- STOP AND REDO if can have

- WALK AND PEEL, if can't have

The list goes on beginning here on who has the power with the demand

procedure to start off with, once so much is implemented then it is

time to teach Gaining Instructional Control, where

* Identify reinforcers

* Functionally assess behaviors

* Pairing

* Easy and infrequent demands

ABA/VB has been one of the best effective teaching procedures for my

son and everyone who end up under my care, even with my hubby.

I love the swing idea, to this day, great for vestibular input for my

son.

My son now at a young adult age still has a swing. To this day still

requires alot of vestibular & proprioceptive activities.

This helps build the autonomic nervous system for my son .

On a daily basis I have to apply Head lift: Prone & Supine, Airplane

hold, full body roll, neck motility exercises, hip twists, spinning,

yoga ball balance, trampoline and some light therapy and wears some

Irlen lenses 20 min. total, 2x a day. This is one of the treatments

my son is undergoing with a Developmental Optometrist.

Since you still have a little one, he could make a connection.

In the mean time please do not miss out reading up on ABA/Verbal

Behavior I find this as one of the best intervention even at your

son's age.

ABA/VB has helped overcome aggressive type of behavior, then they are

ready to learn by creating an environment that keeps them motivated

to learn and helps gain functional language, etc.

I know there are certain Verbal Behavior Schools in NJ. If you would

like to check them out to do some homework in regards to this type of

intervention.

I have not heard of any of them, hopefully one of the therapist who

works with your son have heard on one of the places from the list I

will post. Its always nice to hear some feedback.

I have the list from a book I am currently reading which I will

recommend as it is parent friendly.

Educate Toward Recovery, Turning the Tables on Autism, A Teaching

Manual for the Verbal Behavior Approach to ABA by Schramm, MA,

BCBA.

http://stores.lulu.com/knospe-aba

I have not heard these places but I have had the pleasure of meeting

the President/CEO of Lifespire, Inc from NJ, Mark van Voorst and if

you ever need an attorney, he works very close with Mark along with

another person who is Dr. Holmes who specializes with ABA, they

do work with all ages and all levels but most of all focusing for the

older ones as there is a national dilemma with the adult issues.

Verbal Behavior Schools in NJ:

Allegro, town, NJ

Above and Beyond, Hawthorne, NJ

www.aboveandbeyondlearninggroup.com

Center for Developmental Excellence, Voorhees, NJ

www.cdeinfo.com

Interactive Kids LLC, Marlton, NJ

www.interactivekidsllc.com

NJ Public schools, New Jersey

www.poace.net

Princeton Child Development Institute, Princeton, NJ

www.pedi.org

Sorry do not mean to bore you I just get in one of those ABA mold.

I just highly recommend it only due to what I have experienced with

my son and witnessing when " The School Bus Stops Coming " which is

another story.

Irma,18,DS/ASD

>

> Hi, Irma,

>

> Thanks again! What super ideas!

>

> could take the laundry basket to the basement door, but the

> actual machine is downstairs and the floor down there is concrete

and

> it's not kid-safe at all. Cat litter boxes on the ground and tools

> and boxes all over, that sort of unsafe. If I couldn't keep him

with

> me, I'd be worried like crazy. Even if I could keep him with me,

it'd

> be hard. Just getting him AND the laundry down the stairs would be

> hard (he just turned 2 and isn't walking yet, let alone down the

> stairs). Usually, I only do laundry during the day if I need to

rush

> down to the washer with an emergency (someone pooped out of a diaper

> or ate blueberries and got it on their clothes and it needs to be

> washed ASAP, which happens pretty often with 2 in diapers). I do

> regular laundry after DH gets home from work. Anyway, if I need to

> make an emergency laundry run, I'll usually put in the swing

> (it's an ikea pouch-type swing, he can climb in and out of it safely

> and loves it as do his older brothers, it's probably the most-used

toy

> in our home and even my 11-year-old mother's helper loves going in

> there to escape) and then I'll set Annika over on the other end of

the

> house in the family room by the slide. Half the time I find both of

> them in the kitchen.

>

> We did try giving him play-doh but he hated it. The OT is trying to

> work him up to play doh because it IS a good way to get them to

> express what's inside. And it's great sensory-wise. just

> wanted to put it in his mouth, but will play in a box of dried beans

> just fine. We also don't do a sticker chart because I don't think

> he'd even begin to understand what it's all about. He's still at

the

> stage where things are tasted and chewed on on thrown down the

stairs

> to watch them go down. I think the whole planning and delaying

> gratification is something we'll have to wait with. I'm honestly

not

> even sure whether my older boys would have been good with a sticker

> chart at 2, though definitely at 3 (I used one for potty training

each

> of them at 3). How do you explain it to someone so young?

>

> I'm going to check out the links you sent. Thanks so much!!!!

>

>

[Guest guest]

Irma really hit on one thing in particulaar: REPLACE unacceptable behavior

with equally rewarding acceptable behavior.

The one I like is from a seminar I went to by Smull I believe: I

young lady in a RTF had constant notes being written that she spent alot of

time smearing feces all over and seemed to take great delite in doing this.

After much observation by all the " experts " who came up with resstirctive

clothing, close observation, medication to remove this unacceptable

behavior, one of the direct care aids quietly notcied that when the young

lady had chocolate pudding for a meal, that she smeared that on the table,

hersslef, etc.

The aid came to work one day with a huge bowl of chocoalte pudding, sat the

young lady at a table, and gave her the bowl with the pudding. This young

lady proceeded to smear, mess, plaay with the pudding. OVer time, with

direction, she learned not only to use the pudding more acceptably, but also

learned to use hair jell to design hair styles for herself and friends!

The feces smearing behavior disappeared when she learned a more acceptable

but just as rewarding behavior.

>

> Hi ,

>

> Will I could see scratching the laundry assistance off your list.

> Oh yes, I forgot that most places beyond the Texas outlines have

> basements. Definitely not a safe zone.

> I keep forgetting you still have a baby. Stickers did not work for my

> son or my grandson but ended up using his favorite Disney or Sesame

> Street character on a laminated card stock paper into star shapes

> with some velcro worked here for me. They just loved it and with pics

> above the reinforcing chart. I had to be creative around this too, it

> is shaping the behavior. Kinda of like what is it for me?

> This is once again where ABA intervention came in, to target the goal

> areas needed. This was my objective using a technique to engage and

> maintain their attention and motivation.

> This is now where the behavior intervention is applied, once we know

> the function, we can take the steps to:

> - Reduce the likelihood of occurrence

> - Replace with something appropriate

> - Respond in a way that won't reinforce

> Prevention/Reduce

> * What can we do to reduce motivation for the behavior to occur in

> the first place?

> - sleep, diet, hydration

> - Sensory activities

> - Errorless teaching techniques

> - Physical environment

> Teaching new behaviors

> * We must also teach something to REPLACE the behaviors

> * Appropriate COMMUNICATION skills are usually the behaviors we want

> to teach!

> - Ask appropriately

> - follow a direction

> - Interaction and play

> RESPOND Appropriately

> * DON'T REINFORCE the behaviors!

> * Tangible/Attention: prevent access to item or attention

> * Stimulatory: block the behavior.

> Treating Behaviors by Function

> * Let's look at each function (Escape, Tangible, Sensory) and talk

> about how we can:

> * PREVENT

> * REPLACE

> * RESPOND

> Tangible or Attention Seeking

> * Prevent by giving frequent attention and access to preferred items

> * Replace by teaching: requesting, accepting no, waiting, and giving

> up reinforcers

> * Respond with:

> - STOP AND REDO if can have

> - WALK AND PEEL, if can't have

> The list goes on beginning here on who has the power with the demand

> procedure to start off with, once so much is implemented then it is

> time to teach Gaining Instructional Control, where

> * Identify reinforcers

> * Functionally assess behaviors

> * Pairing

> * Easy and infrequent demands

> ABA/VB has been one of the best effective teaching procedures for my

> son and everyone who end up under my care, even with my hubby.

>

> I love the swing idea, to this day, great for vestibular input for my

> son.

> My son now at a young adult age still has a swing. To this day still

> requires alot of vestibular & proprioceptive activities.

> This helps build the autonomic nervous system for my son .

> On a daily basis I have to apply Head lift: Prone & Supine, Airplane

> hold, full body roll, neck motility exercises, hip twists, spinning,

> yoga ball balance, trampoline and some light therapy and wears some

> Irlen lenses 20 min. total, 2x a day. This is one of the treatments

> my son is undergoing with a Developmental Optometrist.

>

> Since you still have a little one, he could make a connection.

> In the mean time please do not miss out reading up on ABA/Verbal

> Behavior I find this as one of the best intervention even at your

> son's age.

> ABA/VB has helped overcome aggressive type of behavior, then they are

> ready to learn by creating an environment that keeps them motivated

> to learn and helps gain functional language, etc.

>

> I know there are certain Verbal Behavior Schools in NJ. If you would

> like to check them out to do some homework in regards to this type of

> intervention.

> I have not heard of any of them, hopefully one of the therapist who

> works with your son have heard on one of the places from the list I

> will post. Its always nice to hear some feedback.

> I have the list from a book I am currently reading which I will

> recommend as it is parent friendly.

> Educate Toward Recovery, Turning the Tables on Autism, A Teaching

> Manual for the Verbal Behavior Approach to ABA by Schramm, MA,

> BCBA.

> http://stores.lulu.com/knospe-aba

>

> I have not heard these places but I have had the pleasure of meeting

> the President/CEO of Lifespire, Inc from NJ, Mark van Voorst and if

> you ever need an attorney, he works very close with Mark along with

> another person who is Dr. Holmes who specializes with ABA, they

> do work with all ages and all levels but most of all focusing for the

> older ones as there is a national dilemma with the adult issues.

>

> Verbal Behavior Schools in NJ:

>

> Allegro, town, NJ

>

> Above and Beyond, Hawthorne, NJ

> www.aboveandbeyondlearninggroup.com

>

> Center for Developmental Excellence, Voorhees, NJ

> www.cdeinfo.com

>

> Interactive Kids LLC, Marlton, NJ

> www.interactivekidsllc.com

>

> NJ Public schools, New Jersey

> www.poace.net

>

> Princeton Child Development Institute, Princeton, NJ

> www.pedi.org

>

> Sorry do not mean to bore you I just get in one of those ABA mold.

> I just highly recommend it only due to what I have experienced with

> my son and witnessing when " The School Bus Stops Coming " which is

> another story.

>

> Irma,18,DS/ASD

>

>

> >

> > Hi, Irma,

> >

> > Thanks again! What super ideas!

> >

> > could take the laundry basket to the basement door, but the

> > actual machine is downstairs and the floor down there is concrete

> and

> > it's not kid-safe at all. Cat litter boxes on the ground and tools

> > and boxes all over, that sort of unsafe. If I couldn't keep him

> with

> > me, I'd be worried like crazy. Even if I could keep him with me,

> it'd

> > be hard. Just getting him AND the laundry down the stairs would be

> > hard (he just turned 2 and isn't walking yet, let alone down the

> > stairs). Usually, I only do laundry during the day if I need to

> rush

> > down to the washer with an emergency (someone pooped out of a diaper

> > or ate blueberries and got it on their clothes and it needs to be

> > washed ASAP, which happens pretty often with 2 in diapers). I do

> > regular laundry after DH gets home from work. Anyway, if I need to

> > make an emergency laundry run, I'll usually put in the swing

> > (it's an ikea pouch-type swing, he can climb in and out of it safely

> > and loves it as do his older brothers, it's probably the most-used

> toy

> > in our home and even my 11-year-old mother's helper loves going in

> > there to escape) and then I'll set Annika over on the other end of

> the

> > house in the family room by the slide. Half the time I find both of

> > them in the kitchen.

> >

> > We did try giving him play-doh but he hated it. The OT is trying to

> > work him up to play doh because it IS a good way to get them to

> > express what's inside. And it's great sensory-wise. just

> > wanted to put it in his mouth, but will play in a box of dried beans

> > just fine. We also don't do a sticker chart because I don't think

> > he'd even begin to understand what it's all about. He's still at

> the

> > stage where things are tasted and chewed on on thrown down the

> stairs

> > to watch them go down. I think the whole planning and delaying

> > gratification is something we'll have to wait with. I'm honestly

> not

> > even sure whether my older boys would have been good with a sticker

> > chart at 2, though definitely at 3 (I used one for potty training

> each

> > of them at 3). How do you explain it to someone so young?

> >

> > I'm going to check out the links you sent. Thanks so much!!!!

> >

> >

>

>

>

[Guest guest]

OMG , you have the twins, the thought of not one but two who

you have to consider. I can relate to those emergency restroom urges.

Hate those moments. I understand what you mean on the rushing in and

out errands.

We do always have to always work around so much.

Thank goodness all went well and once again with the " not alone

feeling " with what you have shared.

I really hope you do find something that will work for your little

ones.

Do you at least have a handicap placecard?

Irma,18,DS/ASD

>

> Wow, I had a similar instance when my twins were babies, I was out

running errands, the girls were sleeping in their carseats, and I had

to use the bathroom. I drove to my house, pulled all the way up into

my garage, and went to leave the car running while I went to the

bathroom, which is just inside the house door of the garage. But a

lady's car had just been stolen at our local WalMart with her baby in

the back, and I was plagued with fear about this, so I took off my

clicker, and leaving the ignition on, I locked the van. Of course

could not reopen. Called a locksmith in a panic, and he was there in

a matter of minutes, which is apparently a policy whenever there is a

child locked in a car. He said he would have to call the police to

report it though, and I begged him not to, and he obliged. There was

also no charge for the service.

>

> Now my girls are 7, and recently we were running to Walgreens.

The kids were in the back watching a movie, and my non-DS twin asked

if they could wait in the car. I said yes, but only if you stay in

your seatbelt until I get back, at which time I will need you to

unlock the car for me. So I left it on with the doors locked,

knowing I would not be able to unlock it myself. The whole time I

was in the store, which was only a minute or two, I was freaking out

thinking what if she somehow knocked the car into gear, and the doors

are locked, so no one can jump in and help them, and, and.

and....... and I will not do that again. I hate how much work it is

to take them into a store for a one minute thing, but there just

isn't another option. Katy won't walk for long, and at 55ish pounds,

it is exhausting lifting her into a cart, or carrying her, or

setting up her big ole special needs stroller, just to run in to pick

up some pictures or something, but that's just the way

> it is.

>

[Guest guest]

No, I don't, but I have thought about it. Doesn't seem entirely right

considering my girls can walk, but with Katy unwilling in some instances, I do

sometimes wish I had that handicap thingy. Do you have one?

mum592001 wrote: OMG , you have the

twins, the thought of not one but two who

you have to consider. I can relate to those emergency restroom urges.

Hate those moments. I understand what you mean on the rushing in and

out errands.

We do always have to always work around so much.

Thank goodness all went well and once again with the " not alone

feeling " with what you have shared.

I really hope you do find something that will work for your little

ones.

Do you at least have a handicap placecard?

Irma,18,DS/ASD

>

> Wow, I had a similar instance when my twins were babies, I was out

running errands, the girls were sleeping in their carseats, and I had

to use the bathroom. I drove to my house, pulled all the way up into

my garage, and went to leave the car running while I went to the

bathroom, which is just inside the house door of the garage. But a

lady's car had just been stolen at our local WalMart with her baby in

the back, and I was plagued with fear about this, so I took off my

clicker, and leaving the ignition on, I locked the van. Of course

could not reopen. Called a locksmith in a panic, and he was there in

a matter of minutes, which is apparently a policy whenever there is a

child locked in a car. He said he would have to call the police to

report it though, and I begged him not to, and he obliged. There was

also no charge for the service.

>

> Now my girls are 7, and recently we were running to Walgreens.

The kids were in the back watching a movie, and my non-DS twin asked

if they could wait in the car. I said yes, but only if you stay in

your seatbelt until I get back, at which time I will need you to

unlock the car for me. So I left it on with the doors locked,

knowing I would not be able to unlock it myself. The whole time I

was in the store, which was only a minute or two, I was freaking out

thinking what if she somehow knocked the car into gear, and the doors

are locked, so no one can jump in and help them, and, and.

and....... and I will not do that again. I hate how much work it is

to take them into a store for a one minute thing, but there just

isn't another option. Katy won't walk for long, and at 55ish pounds,

it is exhausting lifting her into a cart, or carrying her, or

setting up her big ole special needs stroller, just to run in to pick

up some pictures or something, but that's just the way

> it is.

>

[Guest guest]

You can certainly get a handicap parking for on behalf of your child. Just have

your doctor fill out the required form. Anyone would understand the diffuiculty

you have

Brigid

Re: Re:

No, I don't, but I have thought about it. Doesn't seem entirely right

considering my girls can walk, but with Katy unwilling in some instances, I do

sometimes wish I had that handicap thingy. Do you have one?

mum592001 wrote: OMG , you have the twins, the

thought of not one but two who

you have to consider. I can relate to those emergency restroom urges.

Hate those moments. I understand what you mean on the rushing in and

out errands.

We do always have to always work around so much.

Thank goodness all went well and once again with the " not alone

feeling " with what you have shared.

I really hope you do find something that will work for your little

ones.

Do you at least have a handicap placecard?

Irma,18,DS/ASD

>

> Wow, I had a similar instance when my twins were babies, I was out

running errands, the girls were sleeping in their carseats, and I had

to use the bathroom. I drove to my house, pulled all the way up into

my garage, and went to leave the car running while I went to the

bathroom, which is just inside the house door of the garage. But a

lady's car had just been stolen at our local WalMart with her baby in

the back, and I was plagued with fear about this, so I took off my

clicker, and leaving the ignition on, I locked the van. Of course

could not reopen. Called a locksmith in a panic, and he was there in

a matter of minutes, which is apparently a policy whenever there is a

child locked in a car. He said he would have to call the police to

report it though, and I begged him not to, and he obliged. There was

also no charge for the service.

>

> Now my girls are 7, and recently we were running to Walgreens.

The kids were in the back watching a movie, and my non-DS twin asked

if they could wait in the car. I said yes, but only if you stay in

your seatbelt until I get back, at which time I will need you to

unlock the car for me. So I left it on with the doors locked,

knowing I would not be able to unlock it myself. The whole time I

was in the store, which was only a minute or two, I was freaking out

thinking what if she somehow knocked the car into gear, and the doors

are locked, so no one can jump in and help them, and, and.

and....... and I will not do that again. I hate how much work it is

to take them into a store for a one minute thing, but there just

isn't another option. Katy won't walk for long, and at 55ish pounds,

it is exhausting lifting her into a cart, or carrying her, or

setting up her big ole special needs stroller, just to run in to pick

up some pictures or something, but that's just the way

> it is.

>

[Guest guest]

>

> No, I don't, but I have thought about it. Doesn't seem entirely

right considering my girls can walk, but with Katy unwilling in some

instances, I do sometimes wish I had that handicap thingy. Do you

have one?

Yes, have one now when he turn 13 y/o. I wish I had listen to

others who told me this when my son was younger, it would of cut down

alot. I too, figure that it was not right due his physical ability to

walk but there was so much involved like in your case cutting down on

some of the stress, especially for safety issues.

My son was a runner/escape artist, no fun while I was attending to my

other son when they were toddlers, 's brother is 17 months

apart whom I still had to attend to, too. would run into the

middle of the parking lot or even have me chase him in those danger

areas. On one occasion had a fracture foot, no fun chasing him

undergoing this.

Then I would end up having to deal with those melt downs in the

middle of the parking lot as he ended up getting older. I ended up

having low-back surgery for the wear and tear. Trust me it will

decrease some of the sensory issues too.

When there are alot of handicap parking lots, I still try to park

like further away from the nearest ones and still try to avoid those

that have for the van parking as there are some that have them.

Irma,18,DS/ASD

[Guest guest]

I have a Handicap Parking Placard because of Miss Tori (a/k/a Miss

Stop/Drop/Flop)

Re: Re:

No, I don't, but I have thought about it. Doesn't seem entirely right

considering my girls can walk, but with Katy unwilling in some instances, I do

sometimes wish I had that handicap thingy. Do you have one?

mum592001 wrote: OMG , you have the twins, the

thought of not one but two who

you have to consider. I can relate to those emergency restroom urges.

Hate those moments. I understand what you mean on the rushing in and

out errands.

We do always have to always work around so much.

Thank goodness all went well and once again with the " not alone

feeling " with what you have shared.

I really hope you do find something that will work for your little

ones.

Do you at least have a handicap placecard?

Irma,18,DS/ASD

>

> Wow, I had a similar instance when my twins were babies, I was out

running errands, the girls were sleeping in their carseats, and I had

to use the bathroom. I drove to my house, pulled all the way up into

my garage, and went to leave the car running while I went to the

bathroom, which is just inside the house door of the garage. But a

lady's car had just been stolen at our local WalMart with her baby in

the back, and I was plagued with fear about this, so I took off my

clicker, and leaving the ignition on, I locked the van. Of course

could not reopen. Called a locksmith in a panic, and he was there in

a matter of minutes, which is apparently a policy whenever there is a

child locked in a car. He said he would have to call the police to

report it though, and I begged him not to, and he obliged. There was

also no charge for the service.

>

> Now my girls are 7, and recently we were running to Walgreens.

The kids were in the back watching a movie, and my non-DS twin asked

if they could wait in the car. I said yes, but only if you stay in

your seatbelt until I get back, at which time I will need you to

unlock the car for me. So I left it on with the doors locked,

knowing I would not be able to unlock it myself. The whole time I

was in the store, which was only a minute or two, I was freaking out

thinking what if she somehow knocked the car into gear, and the doors

are locked, so no one can jump in and help them, and, and.

and....... and I will not do that again. I hate how much work it is

to take them into a store for a one minute thing, but there just

isn't another option. Katy won't walk for long, and at 55ish pounds,

it is exhausting lifting her into a cart, or carrying her, or

setting up her big ole special needs stroller, just to run in to pick

up some pictures or something, but that's just the way

> it is.

>

[Guest guest]

I live near the Allegro School- most of the autism schools in NJ are excellent (

hence why we have a greater number of autistic children compared to other

states, because our resources for this population are one of the top 5 in the

nation and many families relocate here), however, most autism schools will not

accept a dually-diagnosed child because of the cognitive delays

(code phrase for: we don't know how to address the Down syndrome piece of this

learning pie, ie: sensory integration, oral-motor feeding, etc.).

Many of the NJ school districts still do not recognize or fully understand the

dual diagnosis. However, some are open to creating a true individualized program

for students, based on their particular needs. For example, we just moved to

Livingston, NJ, which is the home of the Essex County ARC. It is apparent to my

husband and I since we have moved here that our town

is familiar with and responds to the individual needs of special needs folks- so

different from our last residence in NJ, when they did not want to acknowledge

anything, let alone pay extra!

Generally, children with autism alone or dually diagnosed students, receive

anywhere from 20 to 40 hours a week of ABA therapy. It is typical for trained

ABA aides to implement programs that are created and overseen by behavioral

therapists in most districts.

Best,

Mom to , 3 yrs. old

PDD-NOS

To: @...: ICANFIELD@...: Mon, 25 Jun 2007

11:14:53 +0000Subject: Re:

Hi , Will I could see scratching the laundry assistance off your list. Oh

yes, I forgot that most places beyond the Texas outlines have basements.

Definitely not a safe zone. I keep forgetting you still have a baby. Stickers

did not work for my son or my grandson but ended up using his favorite Disney or

Sesame Street character on a laminated card stock paper into star shapes with

some velcro worked here for me. They just loved it and with pics above the

reinforcing chart. I had to be creative around this too, it is shaping the

behavior. Kinda of like what is it for me? This is once again where ABA

intervention came in, to target the goal areas needed. This was my objective

using a technique to engage and maintain their attention and motivation.This is

now where the behavior intervention is applied, once we know the function, we

can take the steps to:- Reduce the likelihood of occurrence- Replace with

something appropriate- Respond in a way that won't reinforcePrevention/Reduce*

What can we do to reduce motivation for the behavior to occur in the first

place? - sleep, diet, hydration- Sensory activities- Errorless teaching

techniques- Physical environmentTeaching new behaviors* We must also teach

something to REPLACE the behaviors* Appropriate COMMUNICATION skills are usually

the behaviors we want to teach!- Ask appropriately- follow a direction-

Interaction and playRESPOND Appropriately* DON'T REINFORCE the behaviors!*

Tangible/Attention: prevent access to item or attention* Stimulatory: block the

behavior. Treating Behaviors by Function* Let's look at each function (Escape,

Tangible, Sensory) and talk about how we can:* PREVENT* REPLACE* RESPONDTangible

or Attention Seeking* Prevent by giving frequent attention and access to

preferred items* Replace by teaching: requesting, accepting no, waiting, and

giving up reinforcers* Respond with:- STOP AND REDO if can have- WALK AND PEEL,

if can't haveThe list goes on beginning here on who has the power with the

demand procedure to start off with, once so much is implemented then it is time

to teach Gaining Instructional Control, where* Identify reinforcers*

Functionally assess behaviors* Pairing* Easy and infrequent demandsABA/VB has

been one of the best effective teaching procedures for my son and everyone who

end up under my care, even with my hubby. I love the swing idea, to this day,

great for vestibular input for my son. My son now at a young adult age still has

a swing. To this day still requires alot of vestibular & proprioceptive

activities. This helps build the autonomic nervous system for my son . On

a daily basis I have to apply Head lift: Prone & Supine, Airplane hold, full

body roll, neck motility exercises, hip twists, spinning, yoga ball balance,

trampoline and some light therapy and wears some Irlen lenses 20 min. total, 2x

a day. This is one of the treatments my son is undergoing with a Developmental

Optometrist. Since you still have a little one, he could make a connection. In

the mean time please do not miss out reading up on ABA/Verbal Behavior I find

this as one of the best intervention even at your son's age.ABA/VB has helped

overcome aggressive type of behavior, then they are ready to learn by creating

an environment that keeps them motivated to learn and helps gain functional

language, etc. I know there are certain Verbal Behavior Schools in NJ. If you

would like to check them out to do some homework in regards to this type of

intervention. I have not heard of any of them, hopefully one of the therapist

who works with your son have heard on one of the places from the list I will

post. Its always nice to hear some feedback. I have the list from a book I am

currently reading which I will recommend as it is parent friendly. Educate

Toward Recovery, Turning the Tables on Autism, A Teaching Manual for the Verbal

Behavior Approach to ABA by Schramm, MA,

BCBA.http://stores.lulu.com/knospe-abaI have not heard these places but I have

had the pleasure of meeting the President/CEO of Lifespire, Inc from NJ, Mark

van Voorst and if you ever need an attorney, he works very close with Mark along

with another person who is Dr. Holmes who specializes with ABA, they do

work with all ages and all levels but most of all focusing for the older ones as

there is a national dilemma with the adult issues. Verbal Behavior Schools in

NJ:Allegro, town, NJAbove and Beyond, Hawthorne,

NJwww.aboveandbeyondlearninggroup.comCenter for Developmental Excellence,

Voorhees, NJwww.cdeinfo.comInteractive Kids LLC, Marlton,

NJwww.interactivekidsllc.comNJ Public schools, New Jerseywww.poace.netPrinceton

Child Development Institute, Princeton, NJwww.pedi.orgSorry do not mean to bore

you I just get in one of those ABA mold. I just highly recommend it only due to

what I have experienced with my son and witnessing when " The School Bus Stops

Coming " which is another story. Irma,18,DS/ASD>> Hi, Irma,> >

Thanks again! What super ideas!> > could take the laundry basket to the

basement door, but the> actual machine is downstairs and the floor down there is

concrete and> it's not kid-safe at all. Cat litter boxes on the ground and

tools> and boxes all over, that sort of unsafe. If I couldn't keep him with> me,

I'd be worried like crazy. Even if I could keep him with me, it'd> be hard. Just

getting him AND the laundry down the stairs would be> hard (he just turned 2 and

isn't walking yet, let alone down the> stairs). Usually, I only do laundry

during the day if I need to rush> down to the washer with an emergency (someone

pooped out of a diaper> or ate blueberries and got it on their clothes and it

needs to be> washed ASAP, which happens pretty often with 2 in diapers). I do>

regular laundry after DH gets home from work. Anyway, if I need to> make an

emergency laundry run, I'll usually put in the swing> (it's an ikea

pouch-type swing, he can climb in and out of it safely> and loves it as do his

older brothers, it's probably the most-used toy> in our home and even my

11-year-old mother's helper loves going in> there to escape) and then I'll set

Annika over on the other end of the> house in the family room by the slide. Half

the time I find both of> them in the kitchen. > > We did try giving him play-doh

but he hated it. The OT is trying to> work him up to play doh because it IS a

good way to get them to> express what's inside. And it's great sensory-wise.

just> wanted to put it in his mouth, but will play in a box of dried

beans> just fine. We also don't do a sticker chart because I don't think> he'd

even begin to understand what it's all about. He's still at the> stage where

things are tasted and chewed on on thrown down the stairs> to watch them go

down. I think the whole planning and delaying> gratification is something we'll

have to wait with. I'm honestly not> even sure whether my older boys would have

been good with a sticker> chart at 2, though definitely at 3 (I used one for

potty training each> of them at 3). How do you explain it to someone so young?>

> I'm going to check out the links you sent. Thanks so much!!!!> >

[Guest guest]

I II wonder how the school in VINELAND (Home of the VINELAND TEST which

evaluates ability to function) and now is run thru ELWYN has a program ?

OR at least lends expertice to school districts? My son attended the day

school of ELWYN (son School) . The best part of the program was the

behavior management, FBA part of the program. I believe that componant came

from VINELAND>

BTW - lived in PA for 10 years where there also are a number of APS for kids

with AUTISM. Most won't accept kids with IQ's below 75. Leaves out most

dual dx kids.

I was born and raised in town - makes me glad to hear about good

things from other parts of NJ.

>

> I live near the Allegro School- most of the autism schools in NJ are

> excellent ( hence why we have a greater number of autistic children compared

> to other states, because our resources for this population are one of the

> top 5 in the nation and many families relocate here), however, most autism

> schools will not accept a dually-diagnosed child because of the cognitive

> delays

> (code phrase for: we don't know how to address the Down syndrome piece of

> this learning pie, ie: sensory integration, oral-motor feeding, etc.).

>

> Many of the NJ school districts still do not recognize or fully understand

> the dual diagnosis. However, some are open to creating a true individualized

> program for students, based on their particular needs. For example, we just

> moved to Livingston, NJ, which is the home of the Essex County ARC. It is

> apparent to my husband and I since we have moved here that our town

> is familiar with and responds to the individual needs of special needs

> folks- so different from our last residence in NJ, when they did not want to

> acknowledge anything, let alone pay extra!

> Generally, children with autism alone or dually diagnosed students,

> receive anywhere from 20 to 40 hours a week of ABA therapy. It is typical

> for trained ABA aides to implement programs that are created and overseen by

> behavioral therapists in most districts.

>

> Best,

>

>

> Mom to , 3 yrs. old

> PDD-NOS

>

>

> To: @... <%40yahoogroups.comFrom>:

> ICANFIELD@... <ICANFIELD%40satx.rr.comDate>: Mon, 25 Jun 2007

> 11:14:53 +0000Subject: Re:

>

> Hi , Will I could see scratching the laundry assistance off your list.

> Oh yes, I forgot that most places beyond the Texas outlines have basements.

> Definitely not a safe zone. I keep forgetting you still have a baby.

> Stickers did not work for my son or my grandson but ended up using his

> favorite Disney or Sesame Street character on a laminated card stock paper

> into star shapes with some velcro worked here for me. They just loved it and

> with pics above the reinforcing chart. I had to be creative around this too,

> it is shaping the behavior. Kinda of like what is it for me? This is once

> again where ABA intervention came in, to target the goal areas needed. This

> was my objective using a technique to engage and maintain their attention

> and motivation.This is now where the behavior intervention is applied,

> once we know the function, we can take the steps to:- Reduce the likelihood

> of occurrence- Replace with something appropriate- Respond in a way that

> won't reinforcePrevention/Reduce* What can we do to reduce motivation for

> the behavior to occur in the first place? - sleep, diet, hydration- Sensory

> activities- Errorless teaching techniques- Physical environmentTeaching new

> behaviors* We must also teach something to REPLACE the behaviors*

> Appropriate COMMUNICATION skills are usually the behaviors we want to

> teach!- Ask appropriately- follow a direction- Interaction and playRESPOND

> Appropriately* DON'T REINFORCE the behaviors!* Tangible/Attention: prevent

> access to item or attention* Stimulatory: block the behavior. Treating

> Behaviors by Function* Let's look at each function (Escape, Tangible,

> Sensory) and talk about how we can:* PREVENT* REPLACE* RESPONDTangible or

> Attention Seeking* Prevent by giving frequent attention and access to

> preferred items* Replace by teaching: requesting, accepting no, waiting, and

> giving up reinforcers* Respond with:- STOP AND REDO if can have- WALK AND

> PEEL, if can't haveThe list goes on beginning here on who has the power with

> the demand procedure to start off with, once so much is implemented then it

> is time to teach Gaining Instructional Control, where* Identify reinforcers*

> Functionally assess behaviors* Pairing* Easy and infrequent demandsABA/VB

> has been one of the best effective teaching procedures for my son and

> everyone who end up under my care, even with my hubby. I love the swing

> idea, to this day, great for vestibular input for my son. My son now at a

> young adult age still has a swing. To this day still requires alot of

> vestibular & proprioceptive activities. This helps build the autonomic

> nervous system for my son . On a daily basis I have to apply Head

> lift: Prone & Supine, Airplane hold, full body roll, neck motility

> exercises, hip twists, spinning, yoga ball balance, trampoline and some

> light therapy and wears some Irlen lenses 20 min. total, 2x a day. This is

> one of the treatments my son is undergoing with a Developmental Optometrist.

> Since you still have a little one, he could make a connection. In the mean

> time please do not miss out reading up on ABA/Verbal Behavior I find this as

> one of the best intervention even at your son's age.ABA/VB has helped

> overcome aggressive type of behavior, then they are ready to learn by

> creating an environment that keeps them motivated to learn and helps gain

> functional language, etc. I know there are certain Verbal Behavior Schools

> in NJ. If you would like to check them out to do some homework in regards to

> this type of intervention. I have not heard of any of them, hopefully one of

> the therapist who works with your son have heard on one of the places from

> the list I will post. Its always nice to hear some feedback. I have the list

> from a book I am currently reading which I will recommend as it is parent

> friendly. Educate Toward Recovery, Turning the Tables on Autism, A Teaching

> Manual for the Verbal Behavior Approach to ABA by Schramm, MA,

> BCBA.http://stores.lulu.com/knospe-abaI have not heard these places but I

> have had the pleasure of meeting the President/CEO of Lifespire, Inc from

> NJ, Mark van Voorst and if you ever need an attorney, he works very close

> with Mark along with another person who is Dr. Holmes who specializes

> with ABA, they do work with all ages and all levels but most of all focusing

> for the older ones as there is a national dilemma with the adult issues.

> Verbal Behavior Schools in NJ:Allegro, town, NJAbove and Beyond,

> Hawthorne, NJwww.aboveandbeyondlearninggroup.comCenter for Developmental

> Excellence, Voorhees, NJwww.cdeinfo.comInteractive Kids LLC, Marlton,

> NJwww.interactivekidsllc.comNJ Public schools, New

> Jerseywww.poace.netPrinceton Child Development Institute, Princeton,

> NJwww.pedi.orgSorry do not mean to bore you I just get in one of those ABA

> mold. I just highly recommend it only due to what I have experienced with my

> son and witnessing when " The School Bus Stops Coming " which is another

> story. Irma,18,DS/ASD>> Hi, Irma,> > Thanks again! What super

> ideas!> > could take the laundry basket to the basement door, but

> the> actual machine is downstairs and the floor down there is concrete and>

> it's not kid-safe at all. Cat litter boxes on the ground and tools> and

> boxes all over, that sort of unsafe. If I couldn't keep him with> me, I'd be

> worried like crazy. Even if I could keep him with me, it'd> be hard. Just

> getting him AND the laundry down the stairs would be> hard (he just turned 2

> and isn't walking yet, let alone down the> stairs). Usually, I only do

> laundry during the day if I need to rush> down to the washer with an

> emergency (someone pooped out of a diaper> or ate blueberries and got it on

> their clothes and it needs to be> washed ASAP, which happens pretty often

> with 2 in diapers). I do> regular laundry after DH gets home from work.

> Anyway, if I need to> make an emergency laundry run, I'll usually put

> in the swing> (it's an ikea pouch-type swing, he can climb in and out of it

> safely> and loves it as do his older brothers, it's probably the most-used

> toy> in our home and even my 11-year-old mother's helper loves going in>

> there to escape) and then I'll set Annika over on the other end of the>

> house in the family room by the slide. Half the time I find both of> them in

> the kitchen. > > We did try giving him play-doh but he hated it. The OT is

> trying to> work him up to play doh because it IS a good way to get them to>

> express what's inside. And it's great sensory-wise. just> wanted to

> put it in his mouth, but will play in a box of dried beans> just fine. We

> also don't do a sticker chart because I don't think> he'd even begin to

> understand what it's all about. He's still at the> stage where things are

> tasted and chewed on on thrown down the stairs> to watch them go down. I

> think the whole planning and delaying> gratification is something we'll have

> to wait with. I'm honestly not> even sure whether my older boys would have

> been good with a sticker> chart at 2, though definitely at 3 (I used one for

> potty training each> of them at 3). How do you explain it to someone so

> young?> > I'm going to check out the links you sent. Thanks so much!!!!> >

>

>

>

[Guest guest]

this is very true, nathan loves to help out at home. he empties the dishwasher,

throws the dirty clothes down, will pick ukp his toys after some complaining,

lol, those need to stay on the floor you know, lol but i threaten to vacume them

up and he picks them up in a jiffy. He does other things to, carries in

groceries, helps cook supper, and breakfast, etc, he is always very proud of

himself and ofcourse we give lots of praise and rewards such as timeo the xbox

or a dvd he picks out. shawna

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