Re: Very sick new member needs expert advice

Posted August 2, 2010 · August 2, 2010

Not that I am any authority to back up what Dr. Thrasher is saying but I would

like to as a victom say that waht he is saying is very true. I went from perfect

vision to one eye being far and the other near sighted so it makes no difference

the glasses I wear my vision is still blury. My sinus's Ive yet to figure out.

Thus far Dr. Thrasher is the only person I have talked to that seems to have

some key answers to the missing links. I know he (you Dr. Thrasher) can indeed

point you in the right direction and he is a book I would love to read but I ran

out of the financial ability to continue testing before I had spoken to him. Get

his and Carl Grimes opinions before you spend alot or any money on this subject.

Yhis is the best advice I can think of to start with.

Chris...

________________________________

From: " Jack Thrasher, Ph.D. " <toxicologist1@...>

Sent: Mon, August 2, 2010 9:21:47 PM

Subject: [] Very sick new member needs expert advice

Â

Have you done any testing to determine the fungi you have been exposed to. Also,

there are bacteria growing along with the fungi that are also dangerous to ones

health.

I am willing to have a chat with both you and your husband if you wish to call

me. My telephone numbers are below. The sinus involvement and double vision are

serious symptoms. I am located in the Sacramento area (West Coast).

Jack-Dwayne: Thrasher, Ph.D.

Toxicologist/Immunotoxicologist/Fetaltoxicologist

www.drthrasher.org

toxicologist1@...

Off: 916-745-4703

Cell: 575-937-1150

L. Crawley, M.ED., LADC

Trauma Specialist

sandracrawley@...

916-745-4703 - Off

775-309-3994 - Cell

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Posted August 3, 2010 · August 3, 2010

you need to get out of that house and stay out, you well only get sicker if you

dont. you have discribed some things that I have been through, I have permenant

double vision now and sometimes it becomes more than double. plus blured vision.

I also suffered severe sinus and brain involvement with my exposure.

I also was tested with being highly allergic to many molds and other things that

may actually have mold involved with them, right after my exposure.

however several years later now, I have been retested and found to have no

allergies what so ever, so you may not have true allergies, but you have become

intolerant to many things.

these can include things like steriods,+ I had bad reactions to many

prescribed medicines for a long time after my exposure and it has mellowed out

some now but I still react severely to some.

I found out the hard way that spaying a steriod nasal spray up my nose is not

the thing to do. so yes, even ENT's without expertize

on the illness can prescribe the wrong med's.

even though I was diagnosed with allergies, I never experienced

the tipical allergy symptoms.

I never tried the allergy shots and glad I didn't, but did started washing my

sinuses regulary, which helps alot.

you need to stay away from that house and also get rid of any other chemicals in

your invironment to give yourself a chance to start felling better. besides the

obvious things this also means, purfumes, sented candles, sented laundry

detergents and drier products, scented shampoos, soaps, house hold cleaning

products, ect.

and dont take anything with you from your house that may be contaminated, and

porus things tend to soak up this contamination and

that includes cloths, you may be able to wash them several times and get rid of

that but maybe not and you really dont need to try to deal with that right now,

maybe just by some cheap cotton cloths for now.

make sure you wash them to get rid of chemicals and smells they have picked up

from being in the store. these smells can also affect you.

yes, cut grass was one of the things I was diagnosed as allergic to but I've

realized sence that it's not the grass I'm reacting to but whats stirred up into

the air with mowing which can be alot of things includeing chemicals and toxins

that have settled there.

the way I figured this out was by being at my daughters house one day and

usually if someones mowing I would get the heck out of there before they started

and even being inside didn't keep me from haveing effects. but this day it had

rained earlier and her husband desided to mow even though the grass was still

fairly wet. I was braseing myself inside for severe reactions when I heard the

mower start up and was wishing he would have said something so I could have left

before he started mowing, but no reactions came,I was baffled, so I desided to

step outside, I had no reactions, it was than that I realized it wasn't the

grass, or the cutting of grass that affected me so bad, it was what became

airborn with the act of mowing.

I was also diagnosed as being allergic to roaches even though I hadn't ever

really been exposed to them in a hudge way. I researched this and found that

roaches eat mold,and live around it.

along with several other insects.

I was supposedly allergic to some trees, but this can be much like cut grass

because trees catch particles and things out of the air.

so than I desided that if I was truely allergic to anything it must be mold,

however, I know now that it's just not a true allergy to even mold but a

intolance of mold and mold byproducts that also include their toxins.

knowing that people can be diagnosed as allergic to some toxins

basicly tells me that allergy testing can be about a reaction to more than just

allergens. for example a bee sting which some people are highly " allergic " to,

is a poison.

why some people after a exposure in a water damaged home or building

show possitive allergy testing results and some dont has baffled me for some

time, but it's not possable to do allergy testing for everything, all toxins

involved in a water damaged home.

maybe if it was, maybe most of us would show possitive to something that we were

exposed to. this is just my thought on this, hopefully sometime soon we well

have the answers.

haveing said that, their are people with true allergies and it does seem that

these exposures would be really hard for them to deal with, however it also

seems that they may be some of the first ones to reconize that something in

their environment is getting to them and may get out quicker, thus, saveing

theirselfs from getting severe damage. maybe?

--- In , " dennispowell@... " <dennispowell@...>

wrote:

>

> I believe I am suffering from exposure to a water damaged shower in my home.

The shower pan leaked and wicked up the side of the shower and into the attic

and affected what I believe are all the belongings in my home. Once this was

discovered, I moved out of the home and into a suitable hotel with few

allergens, and began to feel a little better, while my husband tried to

remediate things at home. I am renting a home now (I will never be able to move

back home) but can't seem to shake this illness-it seems to keep morphing into

new and equally debilitating symptoms. Is there a doctor/expert out there who

can review my symptoms and give me some advice? I have seen many doctors where

I live and while they try to help, they admit they have never seen or treated

patients with this exposure problem before.

>

> My symptoms - began about two years ago, with eye, mouth and gum irritation.

My eyes grew so painful, I had to put cold washcloths on them to sleep at night.

The mouth, gums were irritated and upper salivary glands were swollen. The

orbital tissue felt swollen and the tissues felt rotten. My left pupil was

slightly larger than the right. Many visits to the eye doctor only found

inflammation, unknown cause. Fans bothered me, so I moved out of my bedroom with

my husband into another bedroom, with no relief. Then I began to get such

horrible inflammation in the nose and sinuses, I had to isolate myself in one

bedroom, wearing masks and goggles for most of the day, closing the vents and

providing a separate a/c system for this room. My whole face was painful under

the surface. Breathing was like breathing fire - I tried to put vaseline in the

sinuses and at times had to plug my nostrils and breath through my mouth so air

would not pass over them. Ink from magazines was nearly intolerable. My

breathing became shallow for months, because it just hurt to pass air over the

sinus tissues. I began to worry about my lungs - I knew if my lungs became

inflammed like that I would be toast.

> I developed a ball of inflammed tissue in the left ethmoid sinus which hurt so

bad, it sent me into a screaming fit. Several ENT doctors just thought it was a

booger-I finally had to see a head trauma specialist to get a proper diagnosis

of 'sinus disease with lesion, with signaling'. I was also developing

intermittent double vision and was diagnosed with allergies to many airborn

things (just about everything present in and outside my home, including my cats,

weeds, trees, feathers, all molds, grass, pollen-odd for an older lady who never

had allergies before). I had to see a facial cranial surgeon who agreed to

remove the lesion in my sinus, upon biopsy showed as simply inflammed tissue.

This was sitting on a nerve and blood vessel over my left eye. I remember

resting upstairs after the surgery - and then my husband mowed the lawn for the

first time that year. It was as though a bully had thrown sand in my eyes, me

in a panic trying to understand what was happening to me. I had grown

hypersensitive to the molds/grass that was stirred up in the mowing. I made the

husband put plastic up over all the windows in the house after that incident.

The double vision improved for a while, but would return after every allergy

shot. I began the allergy shots shortly before the surgery and they seemed to

help the horrible sinus inflammation after several months of accelerated

treatment. After about 14 months of shots, I started having intolerable side

effects and had my last and final shot about three weeks ago.

>

> I developed extremely oily skin in about Jan of this year while at the hotel.

All the pores have filled up with white, waxy sebum which is not normal for me.

I have these black hair-like things in the pores of my chin, like a blackhead

but not. More like a hair without a root attached. The skin continued to worsen

into pustules, improving some when the shots stopped. I have terrible joint

pain in the elbow and sometimes finger joints that came on over the last couple

of months, pain and burning skin sensations at the injection sites and below

toward the hands. I am so hypersentitive to my environment, I don't go outside

in the summer (had some skin burning issues with the pollen season-afraid to go

out). Allergens have horrible odors, cause blood to ooze from the sinus,

usually accompanied by burning eyes, pins and needles in the mouth, lips, asthma

attacks, tightening muscles in chest, stomach and throat. I have lately

developed an occasional cough, white discharge from eyes and nose that is thick

like elmer's glue. Sometimes I get nauseated, hot sweats, dizzy, diareah,

actually vomited one morning after getting up.

> I have to mop the floors just about every day with a sore elbow, use my air

cleaners, shower before bed, keep linens clean, use dehumidifiers to keep

humidity under 50%, etc. It's killing me, not sustainable forever. If I don't

keep my environment spotless it irritates the sinuses and can cause asthma

attacks. My sense of smell has been magnified about 100 times, which is mainly

bad except when I eat, and food is intensely flavorful. I have trouble visiting

with my family-they have to scrub in the shower and wear sanitized clothing

first. I am currently seeing an infectious disease doctor I trust, he is

treating with tetracycling and testing me for some previous serious infections I

have had. The antibiotic doesn't seem to be helping for these symptoms (about

three weeks now). Tried inhaled steriods for a while but broke out in a rash

each time, each time sooner and more severe so had to abandon the steriod route.

My life revolves around mopping, cleaning, watching TV, avoiding people as they

carry allergens on their clothes and skin that make me sick. This is not the

way I want to live.

> PLEASE SOME EXPERT NEEDS TO HELP ME GET OUT OF THIS NIGHTMARE and get my life

back to some extent....ANY TREATMENTS FOR ME?

> Signed - Isolated,suffering and frightened new female member

>

Posted August 3, 2010 · August 3, 2010

I'm sorry you are suffering.

If you haven't already, you will want to look at Dr. Ritchie Shoemaker's work.

He believes that some of us with certain genetics do not make enough of the

right kind of antibiodies to get rid of mycotoxins (the toxins made by mold).

We end up highly toxic and need binders in order to rid ourselves of mycotoxins.

My sisters and I all have the genetic issue. It is estimated that 25%+ of the

population may have this problem.

The mycotoxins cause many problems and mess up a slew of hormones and thus body

functions. There are doctors who know how to try to repair the damage.

The book " Mold Warriors " by Dr. Shoemaker will be a good place to start looking

into this.

http://www.moldwarriors.com/

You may want to take the VCS test to see if you are being affected by the

toxins. It's not foolproof but might be helpful. It is relatively cheap.

http://www.chronicneurotoxins.com/

Another site of Dr. Shoemakers

http://www.biotoxin.info/

Technical info based on Dr. Shoemakers theory

http://www.biotoxin.info/docs/GordonMD_ILADS_Biotoxins_RS_9_5_08.pdf

If you can't make the antibodies to rid yourself of mycotoxins, seems like the

shots could make you much sicker. Mold also depresses the immune system which

can then make you susceptible to fungal and other infections.

Terry

I'm not a doctor, this info is based on my own experience and research

Posted August 3, 2010 · August 3, 2010

Thought it should be added, mainly in my own opinion, because of the sinus

involvement you've had, that you may want to consider going to Dr. Gray in

Benson,az. if you fell you may be suffering from fungal infection, along with

the toxin exposure we suffer from these exposures that is not only from

mycotoxin exposure but other toxins that molds produce and still even other

toxins that can be present in water damaged environments.

Dr. Gray does prescribe a antifungal nasal spray that may help you if he

determines that you need it.

I just dont know if Dr. Shoemaker is addressing to possability of fungal

infection yet. anyone know?

I dont know, it's been a few years sence I went to him, he may be addressing

this now.

>

> I'm sorry you are suffering.

>

> If you haven't already, you will want to look at Dr. Ritchie Shoemaker's work.

>

> He believes that some of us with certain genetics do not make enough of the

right kind of antibiodies to get rid of mycotoxins (the toxins made by mold).

We end up highly toxic and need binders in order to rid ourselves of mycotoxins.

My sisters and I all have the genetic issue. It is estimated that 25%+ of the

population may have this problem.

>

> The mycotoxins cause many problems and mess up a slew of hormones and thus

body functions. There are doctors who know how to try to repair the damage.

>

> The book " Mold Warriors " by Dr. Shoemaker will be a good place to start

looking into this.

> http://www.moldwarriors.com/

>

> You may want to take the VCS test to see if you are being affected by the

toxins. It's not foolproof but might be helpful. It is relatively cheap.

> http://www.chronicneurotoxins.com/

>

> Another site of Dr. Shoemakers

> http://www.biotoxin.info/

>

> Technical info based on Dr. Shoemakers theory

> http://www.biotoxin.info/docs/GordonMD_ILADS_Biotoxins_RS_9_5_08.pdf

>

> If you can't make the antibodies to rid yourself of mycotoxins, seems like the

shots could make you much sicker. Mold also depresses the immune system which

can then make you susceptible to fungal and other infections.

>

> Terry

> I'm not a doctor, this info is based on my own experience and research

>

Posted August 3, 2010 · August 3, 2010

I'm sorry you are suffering.

If you haven't already, you will want to look at Dr. Ritchie Shoemaker's work.

He believes that some of us with certain genetics do not make enough of the

right kind of antibiodies to get rid of mycotoxins (the toxins made by mold).

We end up highly toxic and need binders in order to rid ourselves of mycotoxins.

My sisters and I all have the genetic issue. It is estimated that 25%+ of the

population may have this problem.

The mycotoxins cause many problems and mess up a slew of hormones and thus body

functions. There are doctors who know how to try to repair the damage.

The book " Mold Warriors " by Dr. Shoemaker will be a good place to start looking

into this.

http://www.moldwarriors.com/

You may want to take the VCS test to see if you are being affected by the

toxins. It's not foolproof but might be helpful. It is relatively cheap.

http://www.chronicneurotoxins.com/

Here are some other links that you might find helpful.

This is a book about mold illness and mold remediation.

http://tinyurl.com/artglb

Another site of Dr. Shoemakers

http://www.biotoxin.info/

Technical info based on Dr. Shoemakers theory

http://www.biotoxin.info/docs/GordonMD_ILADS_Biotoxins_RS_9_5_08.pdf

If you can't make the antibodies to rid yourself of mycotoxins, seems like the

shots could make you much sicker. Mold also depresses the immune system which

can then make you susceptible to fungal and other infections.

Terry

I'm not a doctor, this info is based on my own experience and research

Posted August 3, 2010 · August 3, 2010

Where are you? I can so relate to your e-mail. I truly felt as if I were

dying; every system, it seemed, was impacted. Simply living became a series of

days revolving around trying to avoid another flare of new symptoms--emphysema,

edema, heart failure, joint inflammation, tachacardia...on and on. I am seeing

a doctor in Santa Barbara whom Jack Thrasher told me about. Thanks to him, I

now see treatments that are making a dent in my illness. Dr. Janette Hope

provides treatments for the cause of exposure, rather than merely trying to sort

out and treat the symptoms as they arise. I am so grateful for her--and for

Jack's recommendation. She truly has saved my life! I am still beginning in my

treatment protocol, but I can see a light...life can be lived again, albeit

without exposures that lurk everywhere!!!

Good wishes to you. I surround you with prayers and know that wherever you are,

there is a doctor who can help! Listen to Dr. Thrasher, as he lives this and

has a wealth of information. I remain grateful to him and hope that he is the

toxicologist my lawyers choose for researching the environment. I know he will

be my choice, as I trust his knowledge and know that he understands the breadth

of exposure like few do!

Good thoughts,

sally