Re: Welcome and others

October 25, 2006

Dear Group,

Has anyone have any children or adults with sleep apnea?

Louise & Andy wrote:

Welcome to the group, also welcome to all the other new people,

this is a great group, check out the pictures from our picnic we had in

July it is listed under Picnic July 1 2006. Louise

Re: Louise Update

Hi!

I am new to the group. A few days ago I thought I sent an email

introducing myself to the group, but think I did it wrong. Anyway, my

7-year-old daughter with DS, ADHD, and OCD was just diagnosed about 2

months ago with PDD. She also has sensory issues, mostly to noise and

more. I thought she had tourettes or something and had never heard of

the combination of DS and ASD. Now I am learning a lot about this from

reading all your posts. Finding out we are not the only family with a

kid like Janie made me cry with relief. Thank you all for sharing. We

are currently trying to get the right combination of meds and are using

abilify with positive results for Janie's aggression, metadate without

much success for her ADHD, and cyproheptad to help her sleep. We have a

sleep study scheduled for next Monday night. We live in Bonney Lake WA.

We also have a 10-year-old daughter with ADHD. Both girls are adopted

and we have 3 adult daughters and 7 grandkids.

Louise, a few years ago my son-in-law got cancer in his duodenum. It was

terribly hard on all of us to see him practically disappear from weight

loss and go through chemo. Fortunately he survived. Unfortunately the

marriage didn't which broke my heart, but he seems to be doing okay now

and is getting on with his life. I used to listen to the song " He's My

Son " by Mark Schultz and cry as it conveyed the pain parents feel when

their child is seriously ill. I pray that is a survivor and his

entire family, including you, get comfort in knowing that God is hearing

from so many of us in your favor. It sounds like your shares

Janie's love of books!

Janie has a terrific sense of humor and often lies on her bed tickling

herself and laughing and laughing. She also loves to tease people

(though we don't always appreciate it), and is extremely stubborn and

determined. She is in a self-contained classroom. They have music and PE

with typical peers. I am trying to get better communication about her

classroom behavior from her teacher and not too successful so far. For

kindergarten and 1st grade her teacher was awesome about communications.

Any suggestions anyone?

- new at this and eager to learn

--------------- Original message ---------------

From: " Louise & Andy " <HYPERLINK

" mailto:louandy%40wideopenwest.com " louandy@...>

> The last couple months have been a whirlwind of happenings. First part

> of September our 42 yr old son was diagnosed with a Glioblastoma,

> grade IV the worse kind of malignant brain tumor. He thought he had

the

> flu the week before and headaches and since the first CT scan showed a

> mass on his lift side of the brain he had surgery and has been in and

> out of the hospital a couple times. He is getting radiation and the

> chemo med Temodar and has his good and not so good days. Please

> remember him and his family, wife and two teen daughters in your

> thoughts and prayers.

>

> Fund raisers have been held to help pay for medical bills and living

> expenses. Our son Jim set up a website for so if you want to

check

> it out it is at HYPERLINK

> " HYPERLINK

" http://info-on-paul.blogspot.com/ " http://info--on-paul.blogspot-.com/ " H

YPERLINK

" http://info-on-paul.blogspot.com/ " http://info--on-paul.blogspot-.com/

>

> We had a trip planed to Nova Scotia and the Canadian Maritimes with my

> sister and her husband for Oct 6-19 and just returned from there where

> we had a good time. It worked well to be in touch with back home via

> email and an occasional phone call.

>

> The day before we left on our trip had two primary teeth

extracted;

> yes at 44 he still has some primary teeth. The dentist was able to

> anesthetize the areas, top left and top right, extract the teeth,

> did fantastic. We took him back to his home later that day and were

> anxious about going on the trip not only for ?s recovery but for

how

> things were going with . Our daughter had last weekend

> and he had a great time with her 11 yr old daughter Faith and 5 yr old

> Graham. Check out the photo section under M and you will see I

> finally got pictures of Faith and her poster she did for the report

she

> gave on DS earlier this year.

>

> We picked up today at work to take him for a doctor?s appt. He is

> looking forward to coming home this weekend where we will be going to

> the library book sale one of his favorite things to do. He is counting

> on his fingers how many books he will get. We will also be getting our

> flu shots and showed us how strong he will be to get that.

>

> I started to check over the posts to the list and may never catch up

> with that. Did notice a new member Judi, we had a friend in Chicago

who

> spelt her name that way years ago, surely not the same person but

> wouldn?t that be exciting if it were. Read about Pat?s trip to Disney,

> so happy it turned out so well.

>

> Hope all is well with all the moves and school year for everyone.

>

> Louise Mom to 44, DS, Deaf, ASD (Mom to 6 and grandmother to 7)

--

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.408 / Virus Database: 268.13.11/493 - Release Date:

10/23/2006

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.408 / Virus Database: 268.13.11/493 - Release Date:

10/23/2006

October 25, 2006

My son has sleep apnea and GERD. He is 17 now and got a cpap machine when

he was 14. He needed a lot of behavior supports prior to this. His behavior

changed immensely after a short time on the cpap machine. He takes Nexium for

his reflux. Reflux often goes hand in hand with apnea...and is common in kids

who have Down syndrome.

Brigid