Re: Re: getting test results from NHS hospitals

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JgggGHhHJJdfdfjwejjJjKLSent from my BlackBerry® wireless deviceSender: Autism-Biomedical-Europe Date: Mon, 06 Feb 2012 19:38:22 -0000To: <Autism-Biomedical-Europe >ReplyTo: Autism-Biomedical-Europe Subject: Re: getting test results from NHS hospitals Thank you everyone for your replies. Thinking about it some more I really need to get the local hospital mto accept I am dth lead co-ordinator of Henry's medical care. When we went for the MRI and lumbar puncture before Christmas I finally met the aneasthetist. He tolds me the neurologist had said that I didn't want Henry to have a GA but to be sedated. I said that the exact opposite was the case. A good example of what communication shouldn't leave out the patient or the patient's parent.Regarding my own care at the same hospital I was not sent copies of some letters - I didn't even know of their existence - and this led to a complete impasse, where one bit of the NHS was saying no x until y has happened and the other service was saying no y. The jam was caused by the letters containing inaccurate information. Had I been copied in, (or even consulted!)the problem would never have happened.Margaret> >> > If anyone finds the doctors at their hospital will asctully give details of test results to you (not just a general " it's fine " ) please would they let me know. Addenbrooke's is awful and faltly refuses . Yhe bloody PA:LS woman was talking abouit " compliance " - that is the patient's compliance and said basically patients can't be trusted with their notes or with information.> > I shoudl like some examples of a more helpful attitude and to be able to name hospitals which are more helpful. (If there are any.)> > Margaret> >>

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GvbjhbgfvGghySent from my BlackBerry® wireless deviceSender: Autism-Biomedical-Europe Date: Mon, 06 Feb 2012 19:38:22 -0000To: <Autism-Biomedical-Europe >ReplyTo: Autism-Biomedical-Europe Subject: Re: getting test results from NHS hospitals Thank you everyone for your replies. Thinking about it some more I really need to get the local hospital mto accept I am dth lead co-ordinator of Henry's medical care. When we went for the MRI and lumbar puncture before Christmas I finally met the aneasthetist. He tolds me the neurologist had said that I didn't want Henry to have a GA but to be sedated. I said that the exact opposite was the case. A good example of what communication shouldn't leave out the patient or the patient's parent.Regarding my own care at the same hospital I was not sent copies of some letters - I didn't even know of their existence - and this led to a complete impasse, where one bit of the NHS was saying no x until y has happened and the other service was saying no y. The jam was caused by the letters containing inaccurate information. Had I been copied in, (or even consulted!)the problem would never have happened.Margaret> >> > If anyone finds the doctors at their hospital will asctully give details of test results to you (not just a general " it's fine " ) please would they let me know. Addenbrooke's is awful and faltly refuses . Yhe bloody PA:LS woman was talking abouit " compliance " - that is the patient's compliance and said basically patients can't be trusted with their notes or with information.> > I shoudl like some examples of a more helpful attitude and to be able to name hospitals which are more helpful. (If there are any.)> > Margaret> >>