Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Debra, yes...I think the best thing would be to watch one of their shopathome shows...they explain it all...natural...what it can do...etc...I have lines around my mouth, SD...and I have never smoked...the few on my forehead are minimized as well...I love it...think you can go to Aloette ..com and call them and ask when its on tv...then its cheaper..Let me know..I swear by it now...Hugs, Debb rheumatic TMJ > > > > > > > I noticed that someone brought up the problem with > > TMJ. Before I was > > > dx with scleroderma, my dentist thought I had TMJ > > and it was the sd > > > rearing its ugly head. I had to go to an oral > > surgeon and had 3 teeth > > > cut out. I was in so much pain at that time. > > Then, of course, my face > > > started tightening. That was in 1999 and today my > > skin has loosened > > > alot and I have wrinkles....yea...wonderful > > wrinkles...who would have > > > thought that I would like wrinkles. I am very > > vain, however, and I > > > went to see a plastic surgeon (his MIL has sd) and > > he said " no way > > > would I do anything to your face " . So.......hey, > > I'm 53 and I guess > > > everyone has wrinkles at that age. I'm just glad > > to be alive and > > > somewhat healthy. > > > > > > Susie in Oklahoma > > > > > > > > > > > > > > > > > > > > > > > > To unsubscribe, email: > > rheumatic-unsubscribeegroups > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 No I do not have SD. I have RA and fibro. I also had a tic bite many years ago and tested positive but they said it was a false positive(go figure). No I do not take the pills. I am just on Minocin MWF 200ms. I quit the IV's because over a period of about 6 IV's nothing was gained. I figuered at this point I had become immune to the Clindy (even with Minocin you may need to go on a different med for a while after many years on it). If your labs are not normal and you still have access to the IV's ...why don't you try a 5 day stretch of IV's and see if they help? Some times increasing your Minocin to MWF and Saturday can cause a reaction that might lower the labs. cooky rheumatic TMJ I noticed that someone brought up the problem with TMJ. Before I was dx with scleroderma, my dentist thought I had TMJ and it was the sd rearing its ugly head. I had to go to an oral surgeon and had 3 teeth cut out. I was in so much pain at that time. Then, of course, my face started tightening. That was in 1999 and today my skin has loosened alot and I have wrinkles....yea...wonderful wrinkles...who would have thought that I would like wrinkles. I am very vain, however, and I went to see a plastic surgeon (his MIL has sd) and he said " no way would I do anything to your face " . So.......hey, I'm 53 and I guess everyone has wrinkles at that age. I'm just glad to be alive and somewhat healthy. Susie in Oklahoma To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 I had trouble with my jaw at one point in my RA journey. It fit descriptions that I've read of TMJ, and it was just in one jaw. I told myself that if it was from the RA, then the meds for RA should fix it, and luckily they did, LOL. Sue On Saturday, June 16, 2007, at 05:56 PM, Angie wrote: > when i saw my rhuemy at the beginning of the month he said he felt > it was all related to the ra DIdn't think it was tmj because its > just in one jaw haven't talked to a dentist as a really don't have > one or dental insurance THanks for replying Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 I have TMJ in my right jaw. Whenever I try to eat an apple the joint slips out. So I cut my apples up. If I yawn to wide it slips out also. It's an annoying problem but no fix. Only have fibro and OA right now. Debbie L > > I had trouble with my jaw at one point in my RA journey. It fit > descriptions that I've read of TMJ, and it was just in one jaw. I told > myself that if it was from the RA, then the meds for RA should fix it, > and luckily they did, LOL. Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 I have TMJ also and I have fibromyalgia and just a touch of OA. I can be very annoying and I also night grind due to stress. About every time the dentist wants to do a mouthguard, I get magically better. Hugs, Penny > > > > I had trouble with my jaw at one point in my RA journey. It fit > > descriptions that I've read of TMJ, and it was just in one jaw. I > told > > myself that if it was from the RA, then the meds for RA should fix > it, > > and luckily they did, LOL. Sue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 HI All, I have a friend visiting whose 22 yo daughter has debilitating TMJ. Wondering if anyone has seen this from either mold exposure or emf sensitivity? Thanks, Sue V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 I have very bad TMJ but then I also have Ehlers Danlos Syndrome and general joint hypermobility. A lot if times, though, what we think of as TMJ is actually TMD--that is, not necessarily joint related. People can have jaw pain that is diagnosed as TMJ/TMD but is purely muscular and not joint-related. Anyway, since mold can cause or contribute to inflammation, I could see it being related. But there are many causes for TMD, including stress (stress = clenching jaw). Sent from my iPhone On Oct 31, 2010, at 12:41 AM, sue <svican@...> wrote: HI All, I have a friend visiting whose 22 yo daughter has debilitating TMJ. Wondering if anyone has seen this from either mold exposure or emf sensitivity? Thanks, Sue V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Hi,  TMJ is Temporal Mandibular Jont which we all have. TMJD is the disorder. I have TMJD from an accident in which my jaw was displaced. When afflicted by mold my right side of my face which was more affected.   My TMJD is also more affected by the mold exposure which is why I feel my trigeminal nerve which was weak from the TMJD was more affected too by the mold exposure. One side of my face is a little druppier than the other and if I get exposure that side also swells.   I think if one part of your body had already suffered an injury before the mold exposure WDB then that part of your body is more likely also to suffer more damage or be more suceptible to damage. Yes I do have more problems with my TMJD upon exposure and is affected by the WDB. I just have a little of everything I guess................... God Bless !! dragonflymcs Mayleen ________________________________ From: sue <svican@...> Sickbuildings < >; Emfrefugee <emfrefugee >; Safety Network EMF <EMFSafe@...> Sent: Sun, October 31, 2010 1:41:04 AM Subject: [] TMJ  HI All, I have a friend visiting whose 22 yo daughter has debilitating TMJ. Wondering if anyone has seen this from either mold exposure or emf sensitivity? Thanks, Sue V. Quote Link to comment Share on other sites More sharing options...
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